PANS and PANDAS Disorders | Interview with Beth Maloney

Mary Barbera discusses the PANS and PANDAS disorders and their relationship to autism.
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Being a parent can be a challenge on any day, but it can be especially challenging if your child starts exhibiting extreme behavior changes and tics that seemingly come out of nowhere. Beth Maloney and her son experienced exactly that in 2002 and didn’t have many resources to turn to. Beth Maloney is sharing her son’s story and her experiences with PANS and PANDAS disorders.
Beth’s son started displaying symptoms that were extremely unlike him, and his symptoms eventually increased and became severe. He ended up missing two years of school. All of his behavior changes were due to an undiagnosed Strep infection and he was diagnosed with PANDAS. Once he was diagnosed and started treatment, his symptoms began to disappear, and he began the road to recovery.
So what are PANS and PANDAS disorders? PANDAS is an acronym for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. PANS is Pediatric Acute-onset Neuropsychiatric Syndrome. The difference between PANDAS and PANS is that PANDAS is associated only with a Strep infection, while PANS can be associated with multiple infections. Both can cause symptoms such as new tics, OCD, severe anxiety, mood swing, and irritability, among other things. The changes are rapid and can seemingly occur overnight. Typically, PANDAS and PANS can occur from age three to puberty. They can affect all children, including typically developing children, as well as children on the spectrum.
In today’s video you’ll learn:
-What should you do if you suspect that your child has PANDAS or PANS?
-Why are PANS and PANDAS often misdiagnosed?
-Can COVID cause PANDAS and PANS?
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Dr. Mary Barbera. I fell into the autism world as an autism mom in 1999 when her first-born son, Lucas, was diagnosed with autism. Since then, she became a Board-Certified Behavior Analyst and best-selling author of The Verbal Behavior Approach. Since 2015, she’s created 3 autism online courses based on applied behavior analysis for professionals and "gung-ho" parents. Whether you’re looking for autism parenting strategies, working with development delays in children, or in search of autism help for professionals, I can encourage you to subscribe to the channel and join me on my journey. I’ll be providing weekly autism resources that you don’t want to miss.

[@leah_1577]

Very informative thank you!!!

[@marybarbera]

Glad it was helpful!

[@trivenireddy289]

I heard about stem cell therapy. Is it work for autistic kids??