I had this pain on the right side. It started in 2003 and finally stoped in 2005 by itself. I hope and I pray that people do understand the pain your enduring. 😢
damn, how is this possible, please tell me its true that its going away, i havent been diagnosed with it yet but from the symptoms i have im 90% sure i’ve got it, im litteraly being depressed right now knowing it can follow me for the rest of my life
It is the worst pain. I'm by my partner's side every day. She was a professional tennis player and owns bussiness and now that the pain has progressed to daily attacks, she really can't do much more than sleep. She became allergic to Tegretrol. It started 4 years ago. It went away. But it came back. It's at the point since December 2023 that she gets constant pain attacks throughout the day. It's really hard for most people to comprehend how healthy people can get this out of nowhere. We believe dental work (root canals etc) was the catalyst. She's considering this surgery in the next 3 months.
I am an acupuncturist and had a patient with trigeminal neuralgia. It is caused by tight muscles in the jaw. Notice the nerve originates from that area. I did acupuncture in her jaw and cheek to relax the muscles and it went away. Most pain is caused by tight muscles. Acupuncture is wonderful for that.
Thank you for your input. Whilst I'm waiting for a scan, I've decided to try a bunch of therapies including acupuncture, chiropractor, massage. My posture is so bad as well as tension in my body so might as well try.
I've had TN since 2005 and I'm not a candidate for MVD. I take Gabapentin and Carbamazepine amongst many other medications to deal with the side effects of the disease and the medications. My life revolves around this disease. I have to watch the weather in order to make plans just to chance a grocery shopping trip or other outings. I never know when I'll get slammed with an attack that'll take me to the ground at any given moment. It's a horrible disease for anyone who has it and a lifetime of agony for those of us who aren't able to have MVD.
@@Lovescoffeeandtea Because MVD is for people who have TN due to the nerve being compressed by a blood vessel. My TN is from my nerve being irreparably damaged due to the Shingles virus or a blow to the head like being hit with fists or being in a car accident.
@@CAJUNBEE I'm the same. Even if I could have the MVD I wouldn't because I know too many people who have had major complications from it AND/OR had their TN come back in less than a year. I hope you have many pain free days ahead of you!❣
I had trigeminal on both sides of my face. I had the vascular decompression surgery at the university of Pittsburg. Literally life changing. I sustained during a physical trauma which was a “slip and fall” type of accident at the age of 26 in 2010. I was misdiagnosed and told I was a pain med seeker for about 3 years. Doctors in my area at the time just didn’t think a heathy 26 year old female could sustain during a trauma. The vascular decompression saved my life. TN is known as the “suicide disease” for very good reason.
Hello, it would really mean alot to me if you could answer a question for me. I'm going through something very similar and I wanted to know if your doctor found the vessel on a MRI/MRA before you had the surgery- or did they just do the surgery based on symptoms. Again, would mean alot to me if you responded and I'm glad you're doing well now, thanks.
This is one of the worst pains ever. I had MVD surgery and it did not work for me. Maybe it will work for you. We are all different. I would say as well that its probably a 50/50 chance of working. There is typical TN and Atypical TN as well and the MVD surgery success is different for both. Praying for all TN sufferers that our pain may be gone! Keep strong TN warriors! There is hope! God bless!
Yeah this video feels very misleading with their 70-90% chance of success figure. My doctors say there is a 30% chance of temporary pain relief with a near 100% of the pain eventually returning.
I'm headed for a appointment next week, and I have paralysis along with the pain every 4-5 months (so far). I haven't heard anything from others about paralysis (in the mouth, tongue - chewing and swallowing are challenging) but I'll see what the neurologist says about.
I have TN. It’s caused from Mast Cell Activation Disease. Maybe that’s why you’re surgery didn’t help. This is good ole fashioned anaphylaxis of the central nervous system. I’ve noticed many doctors don’t have this knowledge. I’ve been sick 8 weeks now, and I am going into remission. I take Zyrtec, Lyrica, montelukast and metformin. This has an allergic hypothesis.
I’ve seen too many and heard too many stories of the surgery making people worse than before going in which is insane! The surgery worsened the pain for two people I knew and they’re no longer here among us. I won’t take that risk my pain is already suicidal levels but meds and pain meds keep me alive
lol... not this video suggesting two doctors just found this? That's been a treatment for over twenty years. My mom has TN. And this surgery often doesn't work, or works short term, OFTEN damaging other facial nerves and causing partial or full paralysis. Things like this are called 'misinformation' and also prove to me not a single bloody thing has advanced in helping people with TN.
That's exactly why I'm afraid to have this surgery done. But it's become so bad that I'm actually almost suicidal at this point. I'm taking opiates but even they don't work anymore. Idk what to do!
@@yunhosmile try homeopathy and ayurvedic medicines once and dont go for surgery as it remains same even it can cause any bad .i agree that pain is so much but try prolotherapy
I've had it over 30 years I had a cyst pushing on the nerve it was terrible surgery and it just rerouted the pain it just hits whenever it wants and now that I'm older cuz it gets worse when you get older I've developed this wrenching twitch in my eye and face on the right side of course that's where it like to live and kills me
My mom has Trigeminal Neuralgia since 2007.... After trying thousands of options now we are trying Physiotherapy and surprusingly is working! Her pain episodes no longer come as often, even so she continues having It... But it's a progress! I hope to help someone with this
So many ppl have reported awful side effects from this surgery though. I'm afraid to have it but I'm almost suicidal from this pain. I can't take it anymore.
Ive got TN, suffered this since 2016 and got diagnosed in 2018, ive had 3 teeth pulled out. This disease has ruined my life and i suffer in constant pain 24 hrs a day. Ive had a Mri scan and nothing come up so i dont need the decompression surgery. I got this because a dentist really hurt my face doing 3 root canals next to eachother on the face. I emplore people dont have multiple canals next to eachother
My partner has TN and it's progressed like yours to daily pain and it's taken over her life. Her story is just like yours with dental work being the culprit. It took many years to figure this out. The MRI in the majority of people will not show the compressed Trigeminal nerve. It doesn't mean that the surgery will not work. In the majority of people like you and her it won't show in an mRI. But the surgery will still work. She's on her way to get this surgery so she can reclaim her life. I hope you get more opinions and seek a good nuerosurgeon. We have come to Los Angeles and are happy with UClA. This good health care in California. Blessings
The MRI is typically to rule out everything else. GammaKnife radiation is just as successful as MVD. I've had the MVD and it only worked for 4 years. Had GammaKnife in December 23, and I'm still experiencing hell. This is my 12th year with TN. Don't let an MRI scan prevent you from getting the procedure. If you want the pain to stop, GET IT!! Get you an appointment with a Neurosurgeon. Don't let someone tell you NO. You're in pain. Get the procedure
Yeah I'm in the same boat....I don't take anything for it....I get this really bad shock on my bottom front tooth from time to time but most of of the time it feels like my gums are burning but just in that same spot...it won't go away for weeks at a time...I hope it doesn't get worse....my sister told me to go see a TMJ specialist an chiropractor that it can help
I had surgery and it just rerouted the pain I understand what you're talking about hurts like hell I had a cyst pushing on that good old fifth cranial nerve I was on hard narcotics for years I got on methadone got off of it and I just tried to deal and take gabapentin tegretol and Klonopin does help maybe it's just the anxiety that helps when it comes on but there are some exercises you can do on the left side of your face and massage techniques Dr Berg here on TH-cam try it out it does bring you some at least temporary relief
@@yunhosmile Hang in there bud ive got this sh!t to, it bugs the hell out of me ive tryed so many things, my Dr, says ive got to lesrn to live with the ups and downs i hate this bullsh!t, im trying to hang in there to.. i read a study that said in 10 yrs they will have a cure for this crap and the study was 5 yrs ago,, so i guess another 5 to go. i can make it, if you will i will RB
I have had this pain since my thirties and I'm in my 60s had surgery to remove a cyst that was pushing on it and it just rerouted the pain and yes it's the worst pain FYI gets worse with age
I had MVD surgery in December 2017. I'm still pain free. My neurologist said that hopefully I'll be pain free for ten years. This surgery is not a cure.
@@salomeomamo5593 I live in Canada. The neurosurgeon's name is Dr. Keith McDougall, London Health Sciences Center, University campus in London Ontario Canada. You would need to be referred to him by a neurologist.
Yeah. I have that too. I’ve had to go through many dentist when the pain starts. It has been a long while. The pain is back. One side of my face to up thru my forehead. I have diabetes, blood disorder itp. Old timers wanted to do gamma knife on me. But , since my medical prob. And birth defects it’s been super challenging. I did a ct scan through my ent. He caught that nerve inflamed just recently. I see my Neuro doc soon. Hopefully an answer and no more meds.
Thank you this is very helpful. My partner who's only 44 just got diagnosed two months (Jan. 2024) ago with TN. She had the first attack in 2019 but it wasn't until a year ago it progressed and we started with dentists to figure out the cause. After spending hundreds of thousands of dollars in dental care that didn't cure the pain and seeing 6 specialists we finally got a diagnosis. The medication helped for a month until she got a sever allergic reaction. We have just consulted with a Nuerosurgeon at UCLA, and she will most likely undergoing the decompression surgery in the next few months. However we have one more vascular MRI and we want a couple more opinions and interviews of surgeons before we decide. What they didn't mention is this surgery usually involves putting Teflon wool inside the brain to decompress the nerves. I wonder that is what this man got? Or if they had another method to go about this surgery without inserting a foreign body in the brain?
I’m not a doctor but going by the described symptoms and what father is currently experiencing, I think he has this. I hope he can get the right treatment soon because I hate seeing him suffer like this. Date of this post: December 24, 2022. I think he started getting the shock-like pain on Dec 21.
@@martonbalazskajari5587 ya bro I m doing fine now, actually it was related to veins of my eyes and now doctor has advised me with some eye dips daily and now the pain is much much improved
Sorry but yeah it does hurt like hell I've been living with it over 30 years how to sis pushing on it it's the 5th cranial nerve methadone seem to be the most effective not that I'm suggesting you get on it but that's how bad it got
Cure for him🙏♥️so happy for him. Sadly ..this disorder is varied and complicated. I have it myself and I pray for answers to all patients...it's very hard to handle. Hope this works for many...but the degrees of it tells me it's not a cure. Sorry.
This is not for everyone. It's not recommended for the elderly and if you have multiple sclerosis cause by lesions in the brain. Also there is a neuroplasticity that has the ability to reorganize the nerve connections by framing new nerve connections in response to new situations or changes in their environment. So you have to have realistic expectations when it comes to trigeminal neuralgia. And I have MS and Trigeminal Neuralgia bilateral.
I have mcas and TN. I have this by allergic hypothesis. I take anti histamine and pregablin and montelukast and metformin. Not everyone has this by micro compression of blood vessels. I do have a brain lesion-AVM however it is in occipital lobe. I am almost in remission, my attacks are very mild. Trigger elimination is key here. Controlling mast cells is not easy. God bless to others, keep strong
@@lauriekline178I also have MCAS with TN. I have multiple cranial nerve disorder with bilateral TN. I have been wondering if my MCAS is partially to blame for my TN and other cranial neuralgias. Already had MVD and then GammaKnife on left side only. Gk resulted in worse TN plus anesthesia dolorosa. Trying right now to get treatment for MCAS, POTS and Ehlers-Danlos.
Yes!!! I went through he'll as child..i took it that I ate too much sweet candy..my mom handed me bags of small candy.i lost my teeth.they rotted..i have one small piece rot left on left side of jaw..i really do not want to experience that kind of pain.it is so severe!! I cried.put very hot towel over ben gay on my jaw.after while it died.i had rest teeth taken out.but I have one tooth 2rots on left side.2 teeth and 2 roots on right side.im only scared if they get touched will I end up with more of that severe pain???😮OH lord!?
I have just been diagnosed with this condition. All the drugs they have tried don’t work and the pain is daily. I can’t even chew on my left side. Does anyone else have their teeth and tongue hurt as well with this? I can barely touch my teeth together on that side either.
@Flower GemsGirl I have the same problems, but on the right side. I went thru many different drug cocktails until me and my doctor finally found the combo of meds that helped me. Unfortunately our bodies build up a tolerance to these medications over time and I'm at toxicity levels on my Gabapentin 3600mg daily and my Carbamazepine 400mg daily. I've tried all those homeopathic, ayurveda, and/or wacky "cures" out there but none worked for me. My cousin said cold laser worked for him, but it didn't do anything for me. Just beware of your expectations if you do try any alternative medicines or supplements and don't get frustrated if none of them do much for you. I was able to wean off of my meds after the first 6 months of being diagnosed and I was able to live pain free for almost two months afterwards. But as I was walking down my hallway while getting ready for work one morning I was slammed to the ground with one of the worst flare-ups that I've ever had. I've yet to get my TN into remission since that day. My advice is take it one day at a time, make sure you keep protein drinks and soft foods stocked for those days that you'll really need them, and never give up hope. Take care and I hope you can find something to help bring your pain to a manageable level.
Yes I have a burning sensation where I don't even have a tooth not to mention it just takes out the whole right side of my face I had a cyst pushing up against the nerve had surgery rerouted the pain check out Dr Berg's video on massaging it on the opposite side he shows you how and it will give you some relief but it does hurt like hell when you're doing it when you find the spot that is but it will help alleviate it for at least a short time
I have ATN and Burning Mouth Syndrome. My pain is constant, I am not a candidate for surgery. I've suffered since September 2010. I take Clonazepam 5 mg. 3 times a day. It does not help enough. I'm tired of hurting. I was in ER 4 times in September 2023 then in hospital for a week. Help please. South Texas, any recommendations would be helpful. Thank you.❤
I was diagnosed with this 7 years ago and ruined my life!! I have a very high pain threshold but nothing and I mean nothing could comprehend the pain when this strikes, I was shaking and crying nonstop gamma knife worked for 5 years now back😞😞
I have the tn2 type which is a constant pain in my teeth rather than the lightning shock of tn1. Unfortunately the treatments here won't help me, but cold packs to the face and opioids give enough relief that I can function.
I was diagnosed in 1999, I was 36. I had gamma knife in 2001 lasted 4 months. I had MVD in 2003 didn’t work. In 2006 I had gamma knife again, I was able to go to work in 2007. I still live in horrible pain every day of my life.
Please look into MLS therapy it is a type of painless laser. I have CRPS, a different kind of nerve pain and over time it have made it more manageable. Wishing you good health
I had TN many years ago and was placed on carbamazepine, which worked for me. However, some moths after that, I had to have an upper wisdom tooth removed on the same side of my face. The pain was gone and I haven't needed carbamazepine since then.
Does it sound like you had trigeminal neuralgia many people go in and have dental procedures and it doesn't believe me do some research you had something else going on or you're in remission
Does anyone here suffering with Trigeminal Neuralgia relate to these experience/symptoms? After getting a dental filling about 2 years ago, I had excruciating pain in one of my molars afterwards. The pain was so bad that I could not brush my teeth and chew/drink hot or cold food without a stabbing sensation. Over time, the entire right side of my face became numb over the pain, and it developed on the left side of my face as well. I (mistakenly) got the molar refilled + extracted to get rid of the pain but the pain still somewhat persists in the area. The right and left side of my face (especially around my cheeks, scalp, and temple) is still numb. I have been to a neurologist, numerous dentists, have gotten 2 MRI brain scans and yet never received a definitive diagnosis of TN. Just want to see if anyone else with TN has had a similar experience as me. Thank you all!
Hello, I feel your pain and frustration! I have the same pain have not been diagnosed with TN but after some unnecessary cosmetic fillings on L eye teeth and a bad ear infection I started with the awful pain on L side of face like I was about to die it was so bad! I have also been to several dentists, root canal specialists, and my family doctor and now have been taking Gabapentin for the last month with great results! I am grateful that my doctor put me on something that works - 300mg 3x a day - I started with 100mg every 4 hrs and it did not ease my pain until dose upped. I hear that this med does not work for some but for me it has been a lifesaver. Do not let them work in your mouth or get any more injections in your gum if you can help it! That's how the nerves were injured in my face! Best of luck to you, peace ☮️
Yeah these dentists aren't going to admit they hit a nerve in some way and cause this. I had a tooth extraction last year and have been messed up since . I have pain that switches sides of my mouth and I even went to a different dentist who was a jerk and told me dental work doesn't cause TN. Lol They probably drilled to far down and put the filling in . That also happened to me and it caused an infection and I had a root canal . The nerve in your tooth was damaged because of the filling and even though they pulled the tooth the nerve was damaged to long ago to heal. Only get done what is absolutely needed and research all dentists before getting anything done
I had the exact experience like you. After tooth filling, my face and teeth hurt for 5 years and couldn’t find diagnosis. I went for Prolotherapy and it works. Go research Prolotherapy.
Yes I had a root canal and went to numerous dental specialists and I finally self diagnosed after reading n researching. My responses trigger from teeth brushing, talking n chewing the wind, cell phone use.. they thought I had TMJ. I also requested BRAIN MRI which shows signs for trigeminal neuralgia
Hi. Can anyone explain to me what anatomically and physiologically causes this. A week ago after a tooth extraction I developed TN. The dentist knocked out my tmj and now I have TN which causes me paralysis and is debilitating. I've got an appointment with my chiro who does dry needling and tonight I'm seeing a cranio sacral therapist. I'm trying to use Quantum Energy to write up a protocol to help people. I managed to reduce the pain to somewhat manageable but I still need help in understanding this. If anyone can help me I'd really appreciate it. I need to understand the dysfunction and what causes it. I'm hoping to help everyone posting on here!
I’m scared for my life as this is my 3rd flare up in a year and this week I have had hundreds of attacks thru the day , no medicated working , I love my family and I hope they will not lose me to this as I’m on the edge
@@user-vc3wm5fk7m yes sometime I have constant attacks then maybe nothing for a week or months , because I have a small infection on my right side it’s triggering it , well that’s what my specialist says
Hang in there Megan, I’ll pray for you. I just got this, although I had a monster migraine a couple years ago where I was literally yelling from the pain and it would crescendo just like this does so I’m thinking I had it back then. Keep looking for solutions, find a counselor who knows about this condition and you can express your feelings to. Distracting myself during a pain attack sometimes helps. I refuse to let my mind focus on it. Don’t get pulled down into that hole of hopelessness. It sounds like you have periods of remission so remind yourself you just have to get through this time and things will be better. This to shall pass. I plan on looking into every natural treatment I can find. Hugs and prayers ❤❤🙏🙏
I have this also. I think I have tnp..I have constant dull ache and burning..ugh...im going to try dtr and nucca at this point I'm throwing everything in my face.
fuck my life man, medical system in canada is so slow im stuck dealing with this shit everyday, progressing worse. more frequently. Now im so dizzy / vertigo I cant move!
Stay away from white sugar, spicey foods, salt. When the nerve is damaged. These things will cause inflammation . Stop the sugar, salt , obay spices. Use a substitute instead.
Im taking a Natural remedy now, these trigeminal neurology drops ordered on line, the only thing im worried about is the alcohol preservative in it, idk if its ok to be ingesting that, i cant figure out how to contact the company to ask, but if anyone knows if its harmful,lmk.
I think I got this over a bad molar with a cavity last few yrs I go through a period of serious pain behind me eye and numbness in my cheek and jaw. The pain is more severe behind my eye to the point I can’t even work and tears come out i literally need to try sleep to get rid of the pain wonder if I get my root canal treatment would it make it go away
Sadly the surgery is not a option for everyone as i clot during surgeries unless given blood thinners which run their own risks. Clotting or bleeding in that are would likely end very badly. As for the meds they turn me into a paranoid asshole and i saw what that was doing to my better half so i live with it.
My mom is currently going through this rn and she’s crying like crazy idk what to do. I see only surgery is the solution to this. Anything else I can do ?
@Veronica Vasco There is no scientific evidence that virgin olive oil will get rid of trigeminal neuralgia pain. It must be going away on its own from luck your it’s a coincidence. Or something else is going on.
This surgery does not work for so many people. Think once think twice and think once more! No relief here! Just a horrible thing to get! Your whole world stops and your life is over.
After COVID-19 vaccinations, though neurological involvements are described, the exact mechanism is not fully elucidated and has been attributed to molecular mimicry and immune-mediated inflammatory response (Doser et al. 2002)(Narasimhalu et al. 2021). While the former often requires at least 10-14 days to develop, the latter needs less time to develop than it. In our case, we think immune-mediated inflammation is a more likely mechanism due to the fairly rapid onset of the symptoms and the response to corticosteroids. In conclusion, neurological complications including TN can be observed in a COVID-19 vaccination. Its pain may fail to respond to traditional treatments and recur. In such cases, corticosteroids should be considered as a choice of therapy. Therefore, we suggest that the efficacy of administration of steroids in this situation should be explored.
MVD surgery is not a new procedure and does not work for everyone. TN can return even if you have had an initial successful surgery "Dr. Jannetta performed the first microvascular decompression operation in 1966. The patient, a 41-year-old man, was relieved of his pain. It took about a decade for the procedure to win acceptance from the neurosurgical establishment, owing partly to Dr.14 Apr 2016"
They are understating the effectiveness and risks of surgery. People contemplating this should look for wider reviews that those from clinics that carry it out. The latest very effective treatment is the use of a pulsed cold laser that cures the disorder within 3 to 5 five minute sessions, can be done with a home device and is risk free whereas with surgury the relapse rate is 50%..
Yes that is how mine is it feels like you have a dull tooth ache the gums and teeth are tender to the touch. Then it ramps up into full blown sharp pains.
I will never claim any dr diagnosis but my neurologist is saying I have atypical facial pain. I'm off to see a facial pain clinic tomorrow. Nucca has been helping me.
@@Zyahthemessiah all my wisdom teeth are gone i went to the dentist for a second opinion. turns out I had an abscess on my gum and needed a root canal and ever since then I have had no pain. I hope any of this info helps.
Watch Doctor Berg video on TH-cam I've hadn't tried them on neuralgia for years and there's a technique he shows you on how to rub your face on the opposite side and it will give you some relief I've had surgery I had a cyst pushing on that fifth cranial nerve this is the worst disease that just came out of nowhere when I was at work sitting at my desk I can't work anymore the surgery just rerouted the pain😢
Thank you so much for your suggestion of the olive oil, I tried and it seems to be helping me! I'm praying it will be long lasting as I will be doing the 4 tablespoons daily. Peace ✌🏽
@@TheAazah Shit.... my dr won't even talk to me anymore unless I agree to surgery but I just don't want to risk it. I can't live like this anymore. Idk what to do.
@@yunhosmile try homeopathy or ayuredic treatment once and surgery is dangerous thing..its a lottery sometimes you win but it has harsh sideeffects and secomdarily it can cause more bad than good
@@yunhosmile have the surgery! Even if it's a fail at least you tried... my friend( he hasn't gotten an MRI yet so we don't know what kind of TN he has) so I gotten him a good doctor he's going to get a referral to him at westmead ( we live in Australia ) .. so I took so long to reply I'm just going though videos to learn more about it and it seems I already seen this... I'm glad I'm pain free from my surgery
It most definitely can and is caused by dental work! I went in 2 years ago for a filling in my upper L eye tooth and they injected my gum with Novacaine and must have damaged my nerve cause it's been hell since! I went to root canal specialist and I don't need root canal. Don't let these dentists drill or inject you if you can help it! Especially as you get older! Try 4 tablespoons of Extrs virgin olive oil per day this seems to be helping me 😢
My mamma suffers with this. Could Anyone tell me what on earth I can feed her? We season nothing, she still hasn't eaten in weeks. Please! Offer any ideas at all?
The dumb butts pulled his teeth one at a time and thought I was nuts and treated us both like idiots .he's me tally impared from this. .I should sue them
They are NOT the inventors of MVD. DR.PETER Janetta is the surgeon and he has been doing it for close to thirty years before he passed away. His understudy was Dr. Sekula from Pittsburgh. Which I had not one but 2 MVD's. I have greatly improved, but there is NO CURE!!!!
I have a clicking sound when I swallow, among the whole TN problem Dr won't do anything for me anymore, tried everything, they won't even surgery, may not be candidat, anyway ive been taking a natural remedy for my TN , hoping it helps 🤷
I got it too and I’m 25 had since 2018 I stay positive and still work through the pain I heard changing your diet and eating better helps s lot with it
@@wintube1693 As of right now, its seems I have pain almost everyday. Some days with the pain I cant speak, chew, lay down and such. Other days the pain isnt far too hurtful, hey I may have only 1 shock in one day. When pain isn't felt, it usually last about 2 weeks or less. But pain has always been happening whether the pain is 1/10 or 10/10
I had this pain on the right side. It started in 2003 and finally stoped in 2005 by itself. I hope and I pray that people do understand the pain your enduring. 😢
You're lucky I had a cyst removed off of the nerve and the pain went away for a few months rerouted came back with a vengeance
Oh yeah and it's usually on the right side it can spread to the left but it is mostly right-sided fifth cranial nerve😢
Did you change anything diet lifestyle ?
damn, how is this possible, please tell me its true that its going away, i havent been diagnosed with it yet but from the symptoms i have im 90% sure i’ve got it, im litteraly being depressed right now knowing it can follow me for the rest of my life
It is the worst pain. I'm by my partner's side every day. She was a professional tennis player and owns bussiness and now that the pain has progressed to daily attacks, she really can't do much more than sleep. She became allergic to Tegretrol. It started 4 years ago. It went away. But it came back. It's at the point since December 2023 that she gets constant pain attacks throughout the day. It's really hard for most people to comprehend how healthy people can get this out of nowhere. We believe dental work (root canals etc) was the catalyst. She's considering this surgery in the next 3 months.
I am an acupuncturist and had a patient with trigeminal neuralgia. It is caused by tight muscles in the jaw. Notice the nerve originates from that area. I did acupuncture in her jaw and cheek to relax the muscles and it went away. Most pain is caused by tight muscles. Acupuncture is wonderful for that.
Or just try some marjoram oil as it helps to relax muscles and reduce inflammation.
Thank you for your input. Whilst I'm waiting for a scan, I've decided to try a bunch of therapies including acupuncture, chiropractor, massage. My posture is so bad as well as tension in my body so might as well try.
I've had TN since 2005 and I'm not a candidate for MVD. I take Gabapentin and Carbamazepine amongst many other medications to deal with the side effects of the disease and the medications. My life revolves around this disease. I have to watch the weather in order to make plans just to chance a grocery shopping trip or other outings. I never know when I'll get slammed with an attack that'll take me to the ground at any given moment. It's a horrible disease for anyone who has it and a lifetime of agony for those of us who aren't able to have MVD.
Why can’t you have it?
@@Lovescoffeeandtea Because MVD is for people who have TN due to the nerve being compressed by a blood vessel. My TN is from my nerve being irreparably damaged due to the Shingles virus or a blow to the head like being hit with fists or being in a car accident.
I have had TN for over 20 years it's awful disease I won't do surgery because I am to afraid to have worse pain then I have now!
@@CAJUNBEE I'm the same. Even if I could have the MVD I wouldn't because I know too many people who have had major complications from it AND/OR had their TN come back in less than a year. I hope you have many pain free days ahead of you!❣
I’m here with you! I have it bilaterally!
I had trigeminal on both sides of my face. I had the vascular decompression surgery at the university of Pittsburg. Literally life changing. I sustained during a physical trauma which was a “slip and fall” type of accident at the age of 26 in 2010. I was misdiagnosed and told I was a pain med seeker for about 3 years. Doctors in my area at the time just didn’t think a heathy 26 year old female could sustain during a trauma. The vascular decompression saved my life. TN is known as the “suicide disease” for very good reason.
BOTH sides? OMG.
I hope you have relief now & for a very long time.
Did you end up doing MVD
Happy for u..🙏♥️.I can't handle it. Too much.😟
THANK YOU FOR SHARING ---- im tripping here, so many docs over time tell me "lets just wait"
Hello, it would really mean alot to me if you could answer a question for me. I'm going through something very similar and I wanted to know if your doctor found the vessel on a MRI/MRA before you had the surgery- or did they just do the surgery based on symptoms. Again, would mean alot to me if you responded and I'm glad you're doing well now, thanks.
This is one of the worst pains ever. I had MVD surgery and it did not work for me. Maybe it will work for you. We are all different. I would say as well that its probably a 50/50 chance of working. There is typical TN and Atypical TN as well and the MVD surgery success is different for both. Praying for all TN sufferers that our pain may be gone! Keep strong TN warriors! There is hope! God bless!
Yeah this video feels very misleading with their 70-90% chance of success figure.
My doctors say there is a 30% chance of temporary pain relief with a near 100% of the pain eventually returning.
did u have a typicalfacial pain
I'm headed for a appointment next week, and I have paralysis along with the pain every 4-5 months (so far). I haven't heard anything from others about paralysis (in the mouth, tongue - chewing and swallowing are challenging) but I'll see what the neurologist says about.
I have TN. It’s caused from Mast Cell Activation Disease. Maybe that’s why you’re surgery didn’t help. This is good ole fashioned anaphylaxis of the central nervous system. I’ve noticed many doctors don’t have this knowledge. I’ve been sick 8 weeks now, and I am going into remission. I take Zyrtec, Lyrica, montelukast and metformin. This has an allergic hypothesis.
I’ve seen too many and heard too many stories of the surgery making people worse than before going in which is insane! The surgery worsened the pain for two people I knew and they’re no longer here among us. I won’t take that risk my pain is already suicidal levels but meds and pain meds keep me alive
lol... not this video suggesting two doctors just found this? That's been a treatment for over twenty years. My mom has TN. And this surgery often doesn't work, or works short term, OFTEN damaging other facial nerves and causing partial or full paralysis.
Things like this are called 'misinformation' and also prove to me not a single bloody thing has advanced in helping people with TN.
Right??!
That's exactly why I'm afraid to have this surgery done. But it's become so bad that I'm actually almost suicidal at this point. I'm taking opiates but even they don't work anymore. Idk what to do!
@@yunhosmile Don’t unalive, smoke weed it helps me more than pills ever could.
@@yunhosmile try homeopathy and ayurvedic medicines once and dont go for surgery as it remains same even it can cause any bad .i agree that pain is so much but try prolotherapy
@@yunhosmile I can second that. Weed makes it tolerable
I was just Diagnosed with TN after a heart attack with 2 stents! It came on suddenly and with a vengeance! This pain is not compatible with life!! 😢
I've had it over 30 years I had a cyst pushing on the nerve it was terrible surgery and it just rerouted the pain it just hits whenever it wants and now that I'm older cuz it gets worse when you get older I've developed this wrenching twitch in my eye and face on the right side of course that's where it like to live and kills me
Thank you for for lettimg me know that some people can get treatment in this very unfair place we live in. No help whatsoever.
contact dr ani john on TH-cam channel for help. he cured me permanently from this same virus with his natural herbal medication,,
My mom has Trigeminal Neuralgia since 2007.... After trying thousands of options now we are trying Physiotherapy and surprusingly is working! Her pain episodes no longer come as often, even so she continues having It... But it's a progress! I hope to help someone with this
Thank you for sharing. What type of physiotherapy worked for your mom?
the characteristic of this disease is it often going away but always comeback, but i wish the best luck to your mom and myself, im suffering
Thanks
So many ppl have reported awful side effects from this surgery though. I'm afraid to have it but I'm almost suicidal from this pain. I can't take it anymore.
I'm sorry you have it to I wish the best for you
@@michael.imv.8989 Thanku Michael (that's my son's name too🤗), same to you
my fiance is going through the same thing... i'm so sorry...
I honestly know what your going through, I'm scared to death of surgery but simply cannot live with the pain it's ruined my life, pure torture x
Have you tried psilocybin
Ive got TN, suffered this since 2016 and got diagnosed in 2018, ive had 3 teeth pulled out. This disease has ruined my life and i suffer in constant pain 24 hrs a day. Ive had a Mri scan and nothing come up so i dont need the decompression surgery. I got this because a dentist really hurt my face doing 3 root canals next to eachother on the face. I emplore people dont have multiple canals next to eachother
My partner has TN and it's progressed like yours to daily pain and it's taken over her life. Her story is just like yours with dental work being the culprit. It took many years to figure this out. The MRI in the majority of people will not show the compressed Trigeminal nerve. It doesn't mean that the surgery will not work. In the majority of people like you and her it won't show in an mRI. But the surgery will still work. She's on her way to get this surgery so she can reclaim her life. I hope you get more opinions and seek a good nuerosurgeon. We have come to Los Angeles and are happy with UClA. This good health care in California. Blessings
The MRI is typically to rule out everything else. GammaKnife radiation is just as successful as MVD. I've had the MVD and it only worked for 4 years. Had GammaKnife in December 23, and I'm still experiencing hell. This is my 12th year with TN. Don't let an MRI scan prevent you from getting the procedure. If you want the pain to stop, GET IT!! Get you an appointment with a Neurosurgeon. Don't let someone tell you NO. You're in pain. Get the procedure
I was gonna have surgery, but the risk is too dangers. I change my mind. I’m living taking Carbamazepine, in which at times, it doesn’t help.
Yeah I'm in the same boat....I don't take anything for it....I get this really bad shock on my bottom front tooth from time to time but most of of the time it feels like my gums are burning but just in that same spot...it won't go away for weeks at a time...I hope it doesn't get worse....my sister told me to go see a TMJ specialist an chiropractor that it can help
@@michael.imv.8989 She is saying correct and try yog
Me too. Carbamazapene has stopped working though. Idk what to do anymore. I can't live like this!
I had surgery and it just rerouted the pain I understand what you're talking about hurts like hell I had a cyst pushing on that good old fifth cranial nerve I was on hard narcotics for years I got on methadone got off of it and I just tried to deal and take gabapentin tegretol and Klonopin does help maybe it's just the anxiety that helps when it comes on but there are some exercises you can do on the left side of your face and massage techniques Dr Berg here on TH-cam try it out it does bring you some at least temporary relief
@@yunhosmile Hang in there bud ive got this sh!t to, it bugs the hell out of me ive tryed so many things, my Dr, says ive got to lesrn to live with the ups and downs i hate this bullsh!t, im trying to hang in there to.. i read a study that said in 10 yrs they will have a cure for this crap and the study was 5 yrs ago,, so i guess another 5 to go. i can make it, if you will i will RB
This is misleading.
My MVD for Geniculate Neuralgia is still successful after 20 years.
I have had for 20 years on both side .
I have had occipital and trigeminal neuralgia for 2 years now and it's the most horrible pain ever.
Same.
Same.
I have had this pain since my thirties and I'm in my 60s had surgery to remove a cyst that was pushing on it and it just rerouted the pain and yes it's the worst pain FYI gets worse with age
@@deathbystereo-how do you feel
I had MVD surgery in December 2017. I'm still pain free. My neurologist said that hopefully I'll be pain free for ten years. This surgery is not a cure.
Who is your doctor please. Any references or contact?
@@salomeomamo5593 I live in Canada. The neurosurgeon's name is Dr. Keith McDougall, London Health Sciences Center, University campus in London Ontario Canada. You would need to be referred to him by a neurologist.
Yeah. I have that too. I’ve had to go through many dentist when the pain starts. It has been a long while. The pain is back. One side of my face to up thru my forehead. I have diabetes, blood disorder itp. Old timers wanted to do gamma knife on me. But , since my medical prob. And birth defects it’s been super challenging. I did a ct scan through my ent. He caught that nerve inflamed just recently. I see my Neuro doc soon. Hopefully an answer and no more meds.
Thank you this is very helpful. My partner who's only 44 just got diagnosed two months (Jan. 2024) ago with TN. She had the first attack in 2019 but it wasn't until a year ago it progressed and we started with dentists to figure out the cause. After spending hundreds of thousands of dollars in dental care that didn't cure the pain and seeing 6 specialists we finally got a diagnosis. The medication helped for a month until she got a sever allergic reaction. We have just consulted with a Nuerosurgeon at UCLA, and she will most likely undergoing the decompression surgery in the next few months. However we have one more vascular MRI and we want a couple more opinions and interviews of surgeons before we decide. What they didn't mention is this surgery usually involves putting Teflon wool inside the brain to decompress the nerves. I wonder that is what this man got? Or if they had another method to go about this surgery without inserting a foreign body in the brain?
I’m not a doctor but going by the described symptoms and what father is currently experiencing, I think he has this. I hope he can get the right treatment soon because I hate seeing him suffer like this. Date of this post: December 24, 2022. I think he started getting the shock-like pain on Dec 21.
Hey doctor I have similar pain on my forehead left part above eye do I suffer with this
@@manavsingla6795damn it must suck that he hasnt answered yet. Are you doing okay
@@martonbalazskajari5587 ya bro I m doing fine now, actually it was related to veins of my eyes and now doctor has advised me with some eye dips daily and now the pain is much much improved
I have this after my root canal. Thankfully I figured out that it only happens when I touch the root canal tooth or gums around it
Hoping for cure.
It does work my pain came back after four years!! I had a nerve block after the four years. I continue to take my medicine .
Did the nerve block help you?
@@JessiMoonSix yes it helped with a little burning to the right lowers part of the chin. I have zero shocks.
I didn't need all this negative stuff to hit me in the face as soon as I got on . I'm already having major anxiety attacks over this condition.
🫂 it just happened to me a month ago. From dental nerve block injection. I'm trying to have hope.
Sending love from a fellow TN Warrior 💙💙💙
⚡TN warrior since 2007⚡
TN Warrior sine 2013. The battle continues..
Sorry but yeah it does hurt like hell I've been living with it over 30 years how to sis pushing on it it's the 5th cranial nerve methadone seem to be the most effective not that I'm suggesting you get on it but that's how bad it got
Cure for him🙏♥️so happy for him. Sadly ..this disorder is varied and complicated. I have it myself and I pray for answers to all patients...it's very hard to handle. Hope this works for many...but the degrees of it tells me it's not a cure. Sorry.
This is not for everyone. It's not recommended for the elderly and if you have multiple sclerosis cause by lesions in the brain. Also there is a neuroplasticity that has the ability to reorganize the nerve connections by framing new nerve connections in response to new situations or changes in their environment. So you have to have realistic expectations when it comes to trigeminal neuralgia. And I have MS and Trigeminal Neuralgia bilateral.
@Veronica Vasco thank you so much for sharing and God bless you!
I have mcas and TN. I have this by allergic hypothesis. I take anti histamine and pregablin and montelukast and metformin. Not everyone has this by micro compression of blood vessels. I do have a brain lesion-AVM however it is in occipital lobe. I am almost in remission, my attacks are very mild. Trigger elimination is key here. Controlling mast cells is not easy. God bless to others, keep strong
@@lauriekline178I also have MCAS with TN. I have multiple cranial nerve disorder with bilateral TN. I have been wondering if my MCAS is partially to blame for my TN and other cranial neuralgias. Already had MVD and then GammaKnife on left side only. Gk resulted in worse TN plus anesthesia dolorosa. Trying right now to get treatment for MCAS, POTS and Ehlers-Danlos.
My friend has this. The pain is unbelievable..she swears that a Deep Tissue Massage brought this on..
Yes!!! I went through he'll as child..i took it that I ate too much sweet candy..my mom handed me bags of small candy.i lost my teeth.they rotted..i have one small piece rot left on left side of jaw..i really do not want to experience that kind of pain.it is so severe!! I cried.put very hot towel over ben gay on my jaw.after while it died.i had rest teeth taken out.but I have one tooth 2rots on left side.2 teeth and 2 roots on right side.im only scared if they get touched will I end up with more of that severe pain???😮OH lord!?
It’s debilitating!
I have just been diagnosed with this condition. All the drugs they have tried don’t work and the pain is daily. I can’t even chew on my left side. Does anyone else have their teeth and tongue hurt as well with this? I can barely touch my teeth together on that side either.
@Flower GemsGirl I have the same problems, but on the right side. I went thru many different drug cocktails until me and my doctor finally found the combo of meds that helped me. Unfortunately our bodies build up a tolerance to these medications over time and I'm at toxicity levels on my Gabapentin 3600mg daily and my Carbamazepine 400mg daily. I've tried all those homeopathic, ayurveda, and/or wacky "cures" out there but none worked for me. My cousin said cold laser worked for him, but it didn't do anything for me. Just beware of your expectations if you do try any alternative medicines or supplements and don't get frustrated if none of them do much for you. I was able to wean off of my meds after the first 6 months of being diagnosed and I was able to live pain free for almost two months afterwards. But as I was walking down my hallway while getting ready for work one morning I was slammed to the ground with one of the worst flare-ups that I've ever had. I've yet to get my TN into remission since that day. My advice is take it one day at a time, make sure you keep protein drinks and soft foods stocked for those days that you'll really need them, and never give up hope. Take care and I hope you can find something to help bring your pain to a manageable level.
@@thatlindgirlinutah5829 this really helped me this morning with a bad flare up. Thank you.
Yes I have a burning sensation where I don't even have a tooth not to mention it just takes out the whole right side of my face I had a cyst pushing up against the nerve had surgery rerouted the pain check out Dr Berg's video on massaging it on the opposite side he shows you how and it will give you some relief but it does hurt like hell when you're doing it when you find the spot that is but it will help alleviate it for at least a short time
I'm not on drugs.meds.i dislike side affects.
My son lives with this severe
I have ATN and Burning Mouth Syndrome. My pain is constant, I am not a candidate for surgery. I've suffered since September 2010. I take Clonazepam 5 mg. 3 times a day. It does not help enough. I'm tired of hurting. I was in ER 4 times in September 2023 then in hospital for a week. Help please. South Texas, any recommendations would be helpful. Thank you.❤
I was diagnosed with this 7 years ago and ruined my life!! I have a very high pain threshold but nothing and I mean nothing could comprehend the pain when this strikes, I was shaking and crying nonstop gamma knife worked for 5 years now back😞😞
I have the tn2 type which is a constant pain in my teeth rather than the lightning shock of tn1. Unfortunately the treatments here won't help me, but cold packs to the face and opioids give enough relief that I can function.
me too. Have you seen an oralfacial specialist-or TMJ specialist as these two things are usually in common.
I love when medicine gets it right
My dad had this and it was terrible and he got help through CyberKnife and hasn't had an occurrence since
I have pain since 2015.. Getting worse. I am 57.
Access denied. Looking for more information for this treatment. Looking for the web site or other link.
I had the MVD. Pain came back in 1 year.
I wish i could afford this!
Burning ear a symptom ear pain
Might be worth exploring Geniculate neuralgia, though trigeminal and glossopharyngeal nerves can both refer into the ear.
I was diagnosed in 1999, I was 36. I had gamma knife in 2001 lasted 4 months. I had MVD in 2003 didn’t work. In 2006 I had gamma knife again, I was able to go to work in 2007. I still live in horrible pain every day of my life.
Try dr joe Dispenza work google his testimonials
Please look into MLS therapy it is a type of painless laser. I have CRPS, a different kind of nerve pain and over time it have made it more manageable.
Wishing you good health
Thank you 🙏
I had TN many years ago and was placed on carbamazepine, which worked for me. However, some moths after that, I had to have an upper wisdom tooth removed on the same side of my face. The pain was gone and I haven't needed carbamazepine since then.
Was your TN symptoms was showing up because of the wisdom tooth? Did wisdom tooth played a role for TN?
Does it sound like you had trigeminal neuralgia many people go in and have dental procedures and it doesn't believe me do some research you had something else going on or you're in remission
Does anyone here suffering with Trigeminal Neuralgia relate to these experience/symptoms? After getting a dental filling about 2 years ago, I had excruciating pain in one of my molars afterwards. The pain was so bad that I could not brush my teeth and chew/drink hot or cold food without a stabbing sensation. Over time, the entire right side of my face became numb over the pain, and it developed on the left side of my face as well. I (mistakenly) got the molar refilled + extracted to get rid of the pain but the pain still somewhat persists in the area. The right and left side of my face (especially around my cheeks, scalp, and temple) is still numb. I have been to a neurologist, numerous dentists, have gotten 2 MRI brain scans and yet never received a definitive diagnosis of TN. Just want to see if anyone else with TN has had a similar experience as me. Thank you all!
Hello, I feel your pain and frustration! I have the same pain have not been diagnosed with TN but after some unnecessary cosmetic fillings on L eye teeth and a bad ear infection I started with the awful pain on L side of face like I was about to die it was so bad! I have also been to several dentists, root canal specialists, and my family doctor and now have been taking Gabapentin for the last month with great results! I am grateful that my doctor put me on something that works - 300mg 3x a day - I started with 100mg every 4 hrs and it did not ease my pain until dose upped. I hear that this med does not work for some but for me it has been a lifesaver. Do not let them work in your mouth or get any more injections in your gum if you can help it! That's how the nerves were injured in my face! Best of luck to you, peace ☮️
Yeah these dentists aren't going to admit they hit a nerve in some way and cause this. I had a tooth extraction last year and have been messed up since . I have pain that switches sides of my mouth and I even went to a different dentist who was a jerk and told me dental work doesn't cause TN. Lol They probably drilled to far down and put the filling in . That also happened to me and it caused an infection and I had a root canal . The nerve in your tooth was damaged because of the filling and even though they pulled the tooth the nerve was damaged to long ago to heal. Only get done what is absolutely needed and research all dentists before getting anything done
I had the exact experience like you. After tooth filling, my face and teeth hurt for 5 years and couldn’t find diagnosis. I went for Prolotherapy and it works. Go research Prolotherapy.
Yes I had a root canal and went to numerous dental specialists and I finally self diagnosed after reading n researching. My responses trigger from teeth brushing, talking n chewing the wind, cell phone use.. they thought I had TMJ. I also requested BRAIN MRI which shows signs for trigeminal neuralgia
You’ll need to go on some anti convulsants.! I’m going to use Baclofein first it’s a muscle relaxer then may add Gabapentin less side effects
How does the guy feeling now? My son in law has this. There doesn't seem to be a cure. So would like to know more about this.
He needs to see a neurologist.
Hi. Can anyone explain to me what anatomically and physiologically causes this. A week ago after a tooth extraction I developed TN. The dentist knocked out my tmj and now I have TN which causes me paralysis and is debilitating. I've got an appointment with my chiro who does dry needling and tonight I'm seeing a cranio sacral therapist. I'm trying to use Quantum Energy to write up a protocol to help people. I managed to reduce the pain to somewhat manageable but I still need help in understanding this. If anyone can help me I'd really appreciate it. I need to understand the dysfunction and what causes it. I'm hoping to help everyone posting on here!
How's your research going?
I have this and it’s getting worse. I wear a baseball cap a lot and the pain is right where the brim presses against me head
I’m scared for my life as this is my 3rd flare up in a year and this week I have had hundreds of attacks thru the day , no medicated working , I love my family and I hope they will not lose me to this as I’m on the edge
What is a flare up? Does this mean you have pain free episodes in between?
@@user-vc3wm5fk7m yes sometime I have constant attacks then maybe nothing for a week or months , because I have a small infection on my right side it’s triggering it , well that’s what my specialist says
Hang in there Megan, I’ll pray for you. I just got this, although I had a monster migraine a couple years ago where I was literally yelling from the pain and it would crescendo just like this does so I’m thinking I had it back then. Keep looking for solutions, find a counselor who knows about this condition and you can express your feelings to. Distracting myself during a pain attack sometimes helps. I refuse to let my mind focus on it. Don’t get pulled down into that hole of hopelessness. It sounds like you have periods of remission so remind yourself you just have to get through this time and things will be better. This to shall pass. I plan on looking into every natural treatment I can find. Hugs and prayers ❤❤🙏🙏
@@mightywind7595 thank you for your kind and helpful words 🥰
My husband has this condition please help !
I have this also. I think I have tnp..I have constant dull ache and burning..ugh...im going to try dtr and nucca at this point I'm throwing everything in my face.
I have rot that is sensitive .i don't touch it
I can feel very little pain up in my ear from it..what causes it??
Sir, trigeminal neurolgia and trigeminal sensory neuropathy ( post operative) are same and treatment same ?
Whyyyy why do I have this?! 😩
GAWD hates u.
I had MVD surgery 3 yrs ago and am starting to have pain again 😢
Same here😢
Before surgery I had pain right side but after surgery it came both side of my face
0:53 i have sharp pain sometimes in the area where they all intersect near the root
I went to my doctor for this and he only tried to sell me vaccines and colonoscopies. I guess thats where they make their money.
I get a electric jolt feeling on the side of my face when I put earphones in, only my left ear though. Could that be what this condition is?
Under stated
fuck my life man, medical system in canada is so slow im stuck dealing with this shit everyday, progressing worse. more frequently. Now im so dizzy / vertigo I cant move!
Stay away from white sugar, spicey foods, salt. When the nerve is damaged. These things will cause inflammation . Stop the sugar, salt , obay spices. Use a substitute instead.
contact dr ani john on TH-cam channel for help. he cured me permanently from this same virus with his natural herbal medication,,
Im taking a Natural remedy now, these trigeminal neurology drops ordered on line, the only thing im worried about is the alcohol preservative in it, idk if its ok to be ingesting that, i cant figure out how to contact the company to ask, but if anyone knows if its harmful,lmk.
I think I got this over a bad molar with a cavity last few yrs I go through a period of serious pain behind me eye and numbness in my cheek and jaw. The pain is more severe behind my eye to the point I can’t even work and tears come out i literally need to try sleep to get rid of the pain wonder if I get my root canal treatment would it make it go away
I’ve had TN for years and was doing relatively good. Had a root canal and it has flared the TN. I’m looking at having the tooth pulled.
Sadly the surgery is not a option for everyone as i clot during surgeries unless given blood thinners which run their own risks. Clotting or bleeding in that are would likely end very badly. As for the meds they turn me into a paranoid asshole and i saw what that was doing to my better half so i live with it.
My mom is currently going through this rn and she’s crying like crazy idk what to do. I see only surgery is the solution to this. Anything else I can do ?
This is terribly misleading. Some patients don't qualify and its basically a 50/50 chance that this works.
@Veronica Vasco That’s not how it works
@Veronica Vasco There is no scientific evidence that virgin olive oil will get rid of trigeminal neuralgia pain. It must be going away on its own from luck your it’s a coincidence. Or something else is going on.
It's more "Common" than it is "Rare"...
I have all day and nausau so bad
This surgery does not work for so many people. Think once think twice and think once more! No relief here! Just a horrible thing to get!
Your whole world stops and your life is over.
Yes. Because that’s not how they have it. The doctor is stupid. I have it from MCAS.
After COVID-19 vaccinations, though neurological involvements are described, the exact mechanism is not fully elucidated and has been attributed to molecular mimicry and immune-mediated inflammatory response (Doser et al. 2002)(Narasimhalu et al. 2021). While the former often requires at least 10-14 days to develop, the latter needs less time to develop than it. In our case, we think immune-mediated inflammation is a more likely mechanism due to the fairly rapid onset of the symptoms and the response to corticosteroids.
In conclusion, neurological complications including TN can be observed in a COVID-19 vaccination. Its pain may fail to respond to traditional treatments and recur. In such cases, corticosteroids should be considered as a choice of therapy. Therefore, we suggest that the efficacy of administration of steroids in this situation should be explored.
What article is this from??? I was on high dose steroids and didn’t have an attack the entire 10 days!! Pls reference the article.
It will be back they put a some like cotton between the nerve but after time that where's down on the nerve a comes back even more
MVD surgery is not a new procedure and does not work for everyone. TN can return even if you have had an initial successful surgery
"Dr. Jannetta performed the first microvascular decompression operation in 1966. The patient, a 41-year-old man, was relieved of his pain. It took about a decade for the procedure to win acceptance from the neurosurgical establishment, owing partly to Dr.14 Apr 2016"
I have the same thing.
I did a lot of teeth .after I had migraine , trigeminal problem.
Too much pain...i take thiozac.and.vit D..its disappeard but when i stop the med..came back
It goes into a period of remission and then it returns. I guess because there’s no cure.
They are understating the effectiveness and risks of surgery. People contemplating this should look for wider reviews that those from clinics that carry it out. The latest very effective treatment is the use of a pulsed cold laser that cures the disorder within 3 to 5 five minute sessions, can be done with a home device and is risk free whereas with surgury the relapse rate is 50%..
what is the difference between of triennial neuralgia & tmj? plz tell me anybody?
TN is a nerve pain where as tmj is a joint pain 😢, I have both.
@@zenfan1098 dear I hv tmj problem😢😢😭😭
@@madhurichouhan3888
I'm sorry, I understand the pain 😣
Does anybody have the constant dull ache and the burning? Is this TN? My pain never goes away.
Yes that is how mine is it feels like you have a dull tooth ache the gums and teeth are tender to the touch. Then it ramps up into full blown sharp pains.
I will never claim any dr diagnosis but my neurologist is saying I have atypical facial pain. I'm off to see a facial pain clinic tomorrow. Nucca has been helping me.
@@anastasiagirl9064how are u now?
@@anastasiagirl9064let me know if u need help
@@Zyahthemessiah all my wisdom teeth are gone i went to the dentist for a second opinion. turns out I had an abscess on my gum and needed a root canal and ever since then I have had no pain. I hope any of this info helps.
Watch Doctor Berg video on TH-cam I've hadn't tried them on neuralgia for years and there's a technique he shows you on how to rub your face on the opposite side and it will give you some relief I've had surgery I had a cyst pushing on that fifth cranial nerve this is the worst disease that just came out of nowhere when I was at work sitting at my desk I can't work anymore the surgery just rerouted the pain😢
i have problem !!how to do treatement trigeminal neuralgia
Go to a neurologist, and they give you medication
@@lamishafleming1606 meditation
can it be caused by stress?
I feel like a mini stroke caused mine
Lol, this procedure has been around for YEARS! Its nothing new.
Please suggest konsa olive oil liya aapne name suggest kr please
Thank you so much for your suggestion of the olive oil, I tried and it seems to be helping me! I'm praying it will be long lasting as I will be doing the 4 tablespoons daily. Peace ✌🏽
omg it hurts so bad i am yt fix
What can trigger this?
For me, it’s stress.
My mom had this from a brain tumor pressing on the nerve.
Planet Ayurveda's yograj guggul, maharasnadi kwath, boswellia curcumin are very good in managing this condition along with the diet plan
I'm at the point I will try anything
I tried to kill myself but was saved by my family I wish you well and be strong doctors don't want to do the surgery.
@@TheAazah Shit.... my dr won't even talk to me anymore unless I agree to surgery but I just don't want to risk it. I can't live like this anymore. Idk what to do.
@@yunhosmile try homeopathy or ayuredic treatment once and surgery is dangerous thing..its a lottery sometimes you win but it has harsh sideeffects and secomdarily it can cause more bad than good
@@yunhosmile have the surgery! Even if it's a fail at least you tried... my friend( he hasn't gotten an MRI yet so we don't know what kind of TN he has) so I gotten him a good doctor he's going to get a referral to him at westmead ( we live in Australia ) .. so I took so long to reply I'm just going though videos to learn more about it and it seems I already seen this...
I'm glad I'm pain free from my surgery
Zyrtec, Lyrica and low histamine diet. I’m going into remission. You can too. This is beatable. Isn’t worthy of death
I’m only 34 and recently had 4 cavities one really deep cavity, and now having this same pain.
Can this be caused by dental work?
Anyone know?
Yes it is. I'm also 34 and a week ago after an extraction I got TN because the dentist knocked out my tmj
It most definitely can and is caused by dental work! I went in 2 years ago for a filling in my upper L eye tooth and they injected my gum with Novacaine and must have damaged my nerve cause it's been hell since! I went to root canal specialist and I don't need root canal. Don't let these dentists drill or inject you if you can help it! Especially as you get older! Try 4 tablespoons of Extrs virgin olive oil per day this seems to be helping me 😢
Yep. Wisdom tooth extraction and now pain
Hello, absolutely it can and is caused by dental work!
For me it’s started after my root canel work
My mamma suffers with this.
Could Anyone tell me what on earth I can feed her?
We season nothing, she still hasn't eaten in weeks.
Please! Offer any ideas at all?
Some reckon plant based diet or very low carb.
The days I can’t eat I have to drink water or smoothies and not through a straw either that can make the pain come chewing is not good some days
Does anyone had Tn with tingling sensation on face , head and ringing ear ?
Me
@@hustlemami8732 me
Yes 70% is great.
But 30% is not successful &, in some cases, makes things worse. It's not an operation to be undergone without a serious thought.
Thers another way gamma knife surgery is painless no anesthesia
Please elaborate and more information
@@redrotten1 do your research im no doctor i just heard of that procedure
I had gamma knife surgery painless procedure in hospital for a day........ pain free 5 years now back!!!
@@mrtizer6672 Now have you pain after 5 years?
The dumb butts pulled his teeth one at a time and thought I was nuts and treated us both like idiots .he's me tally impared from this. .I should sue them
This was the HEAD OF MAXOFACIAL AT SHANDS I. JACKSONVILLE .
I personally think surgery is the last method, I suffer from this and surgery is not my go to!
They are NOT the inventors of MVD. DR.PETER Janetta is the surgeon and he has been doing it for close to thirty years before he passed away. His understudy was Dr. Sekula from Pittsburgh. Which I had not one but 2 MVD's. I have greatly improved, but there is NO CURE!!!!
Does anyone have a clicking sound only when they swallow. No other time ???
I have a clicking sound when I swallow, among the whole TN problem Dr won't do anything for me anymore, tried everything, they won't even surgery, may not be candidat, anyway ive been taking a natural remedy for my TN , hoping it helps 🤷
@@zenfan1098 what’s the natural remedy and what does it do
So if it's available in the US we, in Canada, will have access to this procedure in about 10 years. 😂
Im 21 and I have it, is that normal??
I got it too and I’m 25 had since 2018 I stay positive and still work through the pain I heard changing your diet and eating better helps s lot with it
Im 20 and I have it too. At such a young age is does scare me, but I had got in in 2020 at 18
@@tiffanybarnes8286 is your pain constant or
@@wintube1693 As of right now, its seems I have pain almost everyday. Some days with the pain I cant speak, chew, lay down and such. Other days the pain isnt far too hurtful, hey I may have only 1 shock in one day. When pain isn't felt, it usually last about 2 weeks or less. But pain has always been happening whether the pain is 1/10 or 10/10
dude i got occipital neurolgy by lifting weights
Micro
It's not rare, and many people have got it due to COVID-19.
😢