PANS Symptoms Not Improving Long-term? Factors To Consider

[@sarilynsteiner7049]

Thank you for sharing your expertise and story. Don't stop. I reshare because the news is so helpful.

[@Truerealism747]

Your videos are great so alike with autism and symptoms ive had and have

[@michelevanhulse9339]

Love you, Romy, you’re so incredible ❤

[@ChronicAdvocate]

Aww that is so kind thank youuu! You are as well!

[@Samara-e2o]

Super informative 🤗 thank you! 😘💕

[@illavitar]

Look into the Cell Danger Response. Couple of papers and youtube videos (naviaux lab). Along with the book "Toxic" by Neil Nathan. Basically even if the trigger is removed the healing cycle can still be stuck and things like rebooting the bodys systems and future antipurinergics will address that

[@Truerealism747]

If ive got pans i must have had it 40 years untreated but son has same ocd atb13

[@Truerealism747]

Pans mcas must be related with cirs

[@Truerealism747]

Where us inherited metabolic dr in uk

[@ChronicAdvocate]

metabolicsupportuk.org/information/metabolic-centres-in-the-uk/

[@Truerealism747]

My ocd is genetic started at 3 sane as my mum my grandfather his mum.and grandmother all hypermobile all autism

[@ChronicAdvocate]

PANS is also genetic mine started at 3 also

[@Truerealism747]

​@@ChronicAdvocatedid it start with a infection though to be pans my son's started exact same time

[@Truerealism747]

​@@ChronicAdvocatealso worth noting uf i take antibiotics which i havnt un 29 years my OCD anxiety goes manic

[@Truerealism747]

Did the crappy NHS test pick up your Lyme

[@ChronicAdvocate]

I didn't get the NHS test as I heard about the low accuracy rate so I just got Armin testing