You are amazing! I’ve had POTs for 3 years and I’ve never heard any doctor be so thorough and be able to help their patients in this way. Nice work. Thank you for taking time to care for your patients. It’s beautiful to see
Hi, im from Louisiana. I have been having POTS symptoms due to head injuries 51 years and finally found a Dr. 5 years ago that diagnosed me, but not treating the core of the problem. Your videos have given me hope that one day i can have a breakthrough. I sure wish i lived closer to your clinic. Thank you for all you are doing to help your patients.
Have struggle w pots basically my whole life. I can’t even imagine life w out it and it’s been so much worse since covid. No one even believes my symptoms and it’s very frustrating l have ended up in the er and am discharged bc they think I’m crazy it’s just so frustrating. Thank you for this hope
My housemate /friend is bed bound with POTS has been stuck in bed for 4 years now. Still trying to find a way for her to live life upright again one day. One day we hope to see a miracle for her.
I also think Disautonomia can be linked to Lupus and Sarcoidosis. In my family there are cases of orthostatic hipotension, diabetes type 1, celiac (although not positive in genetic test, with dermatitis herpetiforme which diseappears with a no gluten diet), sarcoidosis and different types of cancer and young alzeimer. I think maybe sarcoidisis gene has a strong reaction to covid which appears as dermatitis and makes blood thiker and blood pressure drops. Something strange is that my dad had sarcoidosis for years and after an only egg diet he did for some heart scan he had 1 month of fever and his sarcoidosis disappeared. I don't know if it's because egg blocks angiotension. I also think dermatitis herpetiforme looks fungal and cinnamon cleans fungal bacteria on blood, regulates hormones, and lowers sugar. I would recomend it to people with orthostatic hipotension and a no milk and no gluten diet.
THIS PERSONS STORY IS MINE! The only difference is my right side of my body is affected. I just figured out I have autonomic issues, pots, vasovagal syncope and gasteoporesis. I have struggled for so long with Complex Regional Pain Syndrome and it morphed into all of this after a neck injury. I had a TBI as a child. I am trying to find HOPE. Doctors here are limited and I want my life back so bad. Please help me. This is exactly what I am living. I want help. 😭 I'm in rural NY. 🙏💔your video is hope for me!!! I need to be studied.
Watching your videos gives me hope! Started with a mTBI w/LOC 10yrs ago. Now POTS sounds like what I'm experiencing. I'm getting worse, I think my husband thinks I'm nuts. I'm easily overstimulated, so a big grocery store is overwhelming. I could go on. Do you have any colleagues in the Boston area? If I was to travel to see you, how long would I need to stay?
Can I book a flight from Australia to come and get treated? All of the Doctors here are clueless to POTS and simply pass this off as anxiety and it’s so frustrating! After 14 months of suffering I just want to be well again at any price
@Nathan Keiser Sorry to hijack the post but where abouts in Australia are your colleagues? My names Jess I'm 29 in July ( I used my partners TH-cam account) I'm in Brisbane and have been suffering with POTS for about 6 years so far, recently I've declined in all aspects, I've dropped significant amounts of weight ( to the point I'm having to buy children's clothes), my heart rate is still spiking over 30bpm on Beta loc, the pain from the blood pooling in my arms and legs is unbearable. Please if there's anyway to help let me know.
Dr. K, how long do Pots people have to do this type of treatment for? Once they leave the clinic, do you have them do like HW type continued care? I have been working with a FNC for about a month doing similar stuff and my HR still inc by more than 30 all day, shortness of breath and other symptoms. Wondering at what point you would know if its helping or not.
Amazing story Nate thank you so much for sharing these personal case studies with us; its a really valuable insight. This seems like an awful lot of progress in such a short space of time for the girl considering she'd been dealing with POTS for 8 years. I'd be interested to know if the patients you see are able to sustain these levels of fitness for months or even years down the line, or do they sometimes regress back to shortness of breath and orthostatic intolerance? Obviously some of the treatments you utilise in your clinic are artificial and not true to real life systems that the body can rely on (for example the peripheral nerve stimulator); do you find patients are able to trust their bodies without relying on an external 'crutch'?
Good question Chris. When we apply something like a nerve stimulator, we are using it as a tool to strengthen a signal. The intention is to build strength in the system over time. If that can be achieved, they have the capacity to do more life which also builds more strength. We are using it to build a bridge to the next level of function. That said, patients may have set backs, get sick or encounter events in life that affect their health like the rest of us. When the hurdles come we work through them and adjust to try to keep them moving forward. Make no mistake, what we do is work… a workout designed for the nervous system. It takes effort for people to build their bodies. But the outcomes can be very cool.
@@dockeiser Makes a lot of sense Nate thank you for clearing that up and explaining it so thoroughly! You hear a lot of people say that good habits promote good health, but the problem comes into play when your body experiences enough damage to become dysfunctional - because then you find yourself in a position where your fatigue, shortness of breath, orthostatic intolerance etc.. only promotes further unhealthy habits, as you're not freely able to build any sort of momentum/stamina; you try to push yourself to participate in activities you used to, but the pushback is very rough. It's very difficult to participate in doing what you think is the right thing when the body offers you very little consistency; I'm sure you hear this sort of thing all the time from patients.
What if there s a structural neck problem-- like cervical neck instability? Or the atlas being off-- or other spinal dysfunctions? Do you do physical adjustments as well as more neurological treatments--?
Thank you for the information! I had this done almost a year ago with another functional neurologist. I was doing well for about 4 months and as soon as summer came I was having difficulty with the heat. I got sick a few times and didn’t recover back to how I was feeling right after therapy the first time. Do some people need to continual follow up after a setbacks?
My daughter has POTS and pees frequently (she passed out during the tilt table test. She is 20. She has a greater than 40 difference in her systolic blood pressure. Her pupils dilate differently from each other during a POTS. episode.
@chrisl418 my 16 year old daughter has been dealing with POTS for about 4 months now. She passes out after any type of exercise, low energy. Have you found any help with your daughter yet?
Do you have any colleagues in the east Tennessee area? There is a FN in my town but his set up does not seen very technologically advanced. Maybe that's not an issue. I don't know
That’s great that there is one locally. Might be a great place to start. I have colleagues in Nashville and Chattanooga as well that may be helpful. You can go to acnb.org and search under the doctor locator to see who is near you. Take care!
Hi im from the uk, developed this from October last year its been HELL! I became unwell for a couple weeks every time i ate or during eating my stomach got tight my breathing got restricted my body felt heavy (felt this from the beginning till the end of epidural then it felt like my heart sank (impending doom) sinking into the floor sensation (feeling as if blood is dropping to legs and arms felt like being pulled down…tingles up my left side in back these sensations lasted seconds and then a chest pressure (lasted couple mins) this happened 6 times i stopped eating for months and lost over a stone and caused a huge amount of anxiety i felt like i was dying at the time… since then i have pots symptoms my HR goes upto 130/140 upon standing from resting at 70/80bpm i have shortness of breath… my HR gets to about 155 just cleaning its making me cry and break down i lost my mum to cancer last june so im not sure if this has caused my health issues 😔 im from the uk im 30 and feel depressed as im worried its goin to affect my working life i have been sacked from one job a month ago and now starting a new job working for NHS doing 13 hours shifts and it scares me if im not going to be fit enough to do it, not sure if this gives an insight but ive had a cough for 2 years (drs say reflux) i gained alot of floaters in my eyes suddenly had them checked nothing serious then i have a flutter in my right ear that comes and goes had these symptoms a while now, any advice? Appreciate any help
@@tashadavis7261 I lost like 20 pounds because I couldn't eat because my heart would start thumping so fast. I am not healed but I have some natural ways of controlling the fast heart rate now so I can eat whenever!
Hi I'm in desperate need of a Dr like you I have a pots diagnosis but most my issues are in my neck but I'm in Australia could I see you for s virtual appointment or I see you have colleagues in Australia I'm in Melbourne
Hey Doc. I'm sinking so I've reached out to you in a few different ways. I'd be a good case study for you. Lyme, TIA, TBI, POTS, RA, now food sensitivities, eek. The list is getting too long. V/R... Call me Katie.
Hey there! I’m not exactly sure who is close. You may be able to locate someone at acnb.org and look at the doctor locator. I hope you find a good fit!
Thank you for your expertise. Do you have any recommendations for doctors or chiropractic neurologists in Arizona? Or where I can find that information?
You are amazing! I’ve had POTs for 3 years and I’ve never heard any doctor be so thorough and be able to help their patients in this way. Nice work. Thank you for taking time to care for your patients. It’s beautiful to see
That’s a very kind thing to say. I hope it helps you on your journey. Thanks for taking the time to make such a nice comment!
Hi, im from Louisiana. I have been having POTS symptoms due to head injuries 51 years and finally found a Dr. 5 years ago that diagnosed me, but not treating the core of the problem. Your videos have given me hope that one day i can have a breakthrough. I sure wish i lived closer to your clinic. Thank you for all you are doing to help your patients.
This is a REAL DOCTOR
If only more doctors were like you.
You are brilliant
Have struggle w pots basically my whole life. I can’t even imagine life w out it and it’s been so much worse since covid. No one even believes my symptoms and it’s very frustrating l have ended up in the er and am discharged bc they think I’m crazy it’s just so frustrating. Thank you for this hope
😥
My housemate /friend is bed bound with POTS has been stuck in bed for 4 years now. Still trying to find a way for her to live life upright again one day. One day we hope to see a miracle for her.
What he did brother. I am also suffering from pots
Wish you were here in Vancouver, Canada - we live in the dark ages in this city with this topic.
I also think Disautonomia can be linked to Lupus and Sarcoidosis. In my family there are cases of orthostatic hipotension, diabetes type 1, celiac (although not positive in genetic test, with dermatitis herpetiforme which diseappears with a no gluten diet), sarcoidosis and different types of cancer and young alzeimer. I think maybe sarcoidisis gene has a strong reaction to covid which appears as dermatitis and makes blood thiker and blood pressure drops. Something strange is that my dad had sarcoidosis for years and after an only egg diet he did for some heart scan he had 1 month of fever and his sarcoidosis disappeared. I don't know if it's because egg blocks angiotension. I also think dermatitis herpetiforme looks fungal and cinnamon cleans fungal bacteria on blood, regulates hormones, and lowers sugar. I would recomend it to people with orthostatic hipotension and a no milk and no gluten diet.
THIS PERSONS STORY IS MINE! The only difference is my right side of my body is affected. I just figured out I have autonomic issues, pots, vasovagal syncope and gasteoporesis. I have struggled for so long with Complex Regional Pain Syndrome and it morphed into all of this after a neck injury. I had a TBI as a child. I am trying to find HOPE. Doctors here are limited and I want my life back so bad. Please help me. This is exactly what I am living. I want help. 😭 I'm in rural NY. 🙏💔your video is hope for me!!! I need to be studied.
Thanks for the wonderful compliment. I appreciate it.
Watching your videos gives me hope! Started with a mTBI w/LOC 10yrs ago. Now POTS sounds like what I'm experiencing. I'm getting worse, I think my husband thinks I'm nuts. I'm easily overstimulated, so a big grocery store is overwhelming. I could go on. Do you have any colleagues in the Boston area? If I was to travel to see you, how long would I need to stay?
Can I book a flight from Australia to come and get treated? All of the Doctors here are clueless to POTS and simply pass this off as anxiety and it’s so frustrating! After 14 months of suffering I just want to be well again at any price
You are of course welcome to come. Where are you in AUS? I do have a few colleagues down there that I work with if you’d like to try that first.
@@dockeiser ant colleagues somewhere in latinamerica? I'm in Argentina. Willing to travel but the closer, the better.
@@tomastorn1 I’m honestly not sure I know of a couple people in Brazil. They may be able to get you on the right path
@@dockeiser That might help!! Would you mind sharing their names to google them up? Thanks a lot.
@Nathan Keiser Sorry to hijack the post but where abouts in Australia are your colleagues? My names Jess I'm 29 in July ( I used my partners TH-cam account) I'm in Brisbane and have been suffering with POTS for about 6 years so far, recently I've declined in all aspects, I've dropped significant amounts of weight ( to the point I'm having to buy children's clothes), my heart rate is still spiking over 30bpm on Beta loc, the pain from the blood pooling in my arms and legs is unbearable. Please if there's anyway to help let me know.
Dr. K, how long do Pots people have to do this type of treatment for? Once they leave the clinic, do you have them do like HW type continued care? I have been working with a FNC for about a month doing similar stuff and my HR still inc by more than 30 all day, shortness of breath and other symptoms. Wondering at what point you would know if its helping or not.
Amazing story Nate thank you so much for sharing these personal case studies with us; its a really valuable insight. This seems like an awful lot of progress in such a short space of time for the girl considering she'd been dealing with POTS for 8 years. I'd be interested to know if the patients you see are able to sustain these levels of fitness for months or even years down the line, or do they sometimes regress back to shortness of breath and orthostatic intolerance? Obviously some of the treatments you utilise in your clinic are artificial and not true to real life systems that the body can rely on (for example the peripheral nerve stimulator); do you find patients are able to trust their bodies without relying on an external 'crutch'?
Good question Chris.
When we apply something like a nerve stimulator, we are using it as a tool to strengthen a signal. The intention is to build strength in the system over time. If that can be achieved, they have the capacity to do more life which also builds more strength. We are using it to build a bridge to the next level of function.
That said, patients may have set backs, get sick or encounter events in life that affect their health like the rest of us. When the hurdles come we work through them and adjust to try to keep them moving forward.
Make no mistake, what we do is work… a workout designed for the nervous system. It takes effort for people to build their bodies. But the outcomes can be very cool.
@@dockeiser Makes a lot of sense Nate thank you for clearing that up and explaining it so thoroughly! You hear a lot of people say that good habits promote good health, but the problem comes into play when your body experiences enough damage to become dysfunctional - because then you find yourself in a position where your fatigue, shortness of breath, orthostatic intolerance etc.. only promotes further unhealthy habits, as you're not freely able to build any sort of momentum/stamina; you try to push yourself to participate in activities you used to, but the pushback is very rough.
It's very difficult to participate in doing what you think is the right thing when the body offers you very little consistency; I'm sure you hear this sort of thing all the time from patients.
Hi Dr Keizer… thank you for your video. Could you recommend a functional neurologist in the UK please? Thank you
What if there s a structural neck problem-- like cervical neck instability? Or the atlas being off-- or other spinal dysfunctions? Do you do physical adjustments as well as more neurological treatments--?
great work
Thank you! Cheers!
Can you reverse the blood pooling from POTS
Do you know of anyone in California capable of properly treating pots ?
Thank you for the information! I had this done almost a year ago with another functional neurologist. I was doing well for about 4 months and as soon as summer came I was having difficulty with the heat. I got sick a few times and didn’t recover back to how I was feeling right after therapy the first time. Do some people need to continual follow up after a setbacks?
The fact that you did well is a great sign. It might be worth reevaluating to address the “why” behind the heat intolerance
My daughter has POTS and pees frequently (she passed out during the tilt table test. She is 20. She has a greater than 40 difference in her systolic blood pressure. Her pupils dilate differently from each other during a POTS. episode.
@chrisl418 my 16 year old daughter has been dealing with POTS for about 4 months now. She passes out after any type of exercise, low energy. Have you found any help with your daughter yet?
I’d be curious to know if you have ever worked with anyone with POTS & ME/CFS. Would the chronic fatigue interfere with your treatment plans?
Do you have any colleagues in the east Tennessee area? There is a FN in my town but his set up does not seen very technologically advanced. Maybe that's not an issue. I don't know
That’s great that there is one locally. Might be a great place to start. I have colleagues in Nashville and Chattanooga as well that may be helpful. You can go to acnb.org and search under the doctor locator to see who is near you. Take care!
Hi im from the uk, developed this from October last year its been HELL! I became unwell for a couple weeks every time i ate or during eating my stomach got tight my breathing got restricted my body felt heavy (felt this from the beginning till the end of epidural then it felt like my heart sank (impending doom) sinking into the floor sensation (feeling as if blood is dropping to legs and arms felt like being pulled down…tingles up my left side in back these sensations lasted seconds and then a chest pressure (lasted couple mins) this happened 6 times i stopped eating for months and lost over a stone and caused a huge amount of anxiety i felt like i was dying at the time… since then i have pots symptoms my HR goes upto 130/140 upon standing from resting at 70/80bpm i have shortness of breath… my HR gets to about 155 just cleaning its making me cry and break down i lost my mum to cancer last june so im not sure if this has caused my health issues 😔 im from the uk im 30 and feel depressed as im worried its goin to affect my working life i have been sacked from one job a month ago and now starting a new job working for NHS doing 13 hours shifts and it scares me if im not going to be fit enough to do it, not sure if this gives an insight but ive had a cough for 2 years (drs say reflux) i gained alot of floaters in my eyes suddenly had them checked nothing serious then i have a flutter in my right ear that comes and goes had these symptoms a while now, any advice? Appreciate any help
I have this, its such a debilitating condition.
Hi Tasha did you find a good doc in the uk? Got a similar situation
I have this same symptoms. Diagnosed with dysautonomia/ pots
@@jessicacortez7017 yeah i think i have that as now every time i start my heart rate shoots up, absolutely gutted life is so different now xx
@@tashadavis7261 I lost like 20 pounds because I couldn't eat because my heart would start thumping so fast. I am not healed but I have some natural ways of controlling the fast heart rate now so I can eat whenever!
Hi I'm in desperate need of a Dr like you I have a pots diagnosis but most my issues are in my neck but I'm in Australia could I see you for s virtual appointment or I see you have colleagues in Australia I'm in Melbourne
Any suggestion to a person or place with similar expertises as you in London?
Is there anyone you know / recommend that does similar work to you in texas?😅 michigan is just sooo far 😭
Could you recommend a colleague in the Chicago area? POTS, hypermobility, Mast cell going on 14yrs
Hey Doc. I'm sinking so I've reached out to you in a few different ways. I'd be a good case study for you. Lyme, TIA, TBI, POTS, RA, now food sensitivities, eek. The list is getting too long. V/R... Call me Katie.
Thank you Dr Kaiser .. my daughter has been referred to cardiology, do you think I should request neuro in addition?
That’s a good question, but I would need to know about her case to have the insight to give an answer.
Sorry I spelt your name incorrectly 🙈
@@dockeiser you wish I could give insight 🙈
I don’t understand how she was able to get rid of the shortness of breath
Have to consider what is causing the shortness of breath. How do humans breathe when blood pressure or cerebral perfusion pressure drops?
Do you know of anyone in the Pittsburgh area that could treat me?
I’m from Indiana can I have the number to your office ?
Is there anyone in the gulf south close to new Orleans who has these skilled tests and rehabilitation ?
Hey there! I’m not exactly sure who is close. You may be able to locate someone at acnb.org and look at the doctor locator. I hope you find a good fit!
Is there anyone in California who offers this! I need it I want my life back
Thank you for your expertise. Do you have any recommendations for doctors or chiropractic neurologists in Arizona? Or where I can find that information?
The best resource is at acnb.org
You can use the doctor locator to research doctors near you. Thanks for reaching out!
@@dockeiser Thank you so much!
I don’t understand anything this person is saying