I have dementia and there is nothing more irritating than when nurses or others talk to me like I'm a child. I know you don't mean any disrespect, but hear a little bit of that coming from you. Thank you and Richard for these videos.
He seems so self aware of his condition. My husband also has FTD, and he denies he has any problems. He was just diagnosed last May and his condition is so much worse.
It is definitely not an easy disease and I am sorry about your husband's diagnosis! My Dad is very aware of it and knows that he has it. But in the beginning he was very angry and also in denial. Unfortunately it's not an easy disease to watch and is very different depending on the person. The biggest piece of advice I can give you is he is not the same person he once was and try to focus on what he can do versus what can't do. It won't be easy and it may change daily. My Dad always says he feels like a kid and responds better when treated as one. But others don't always understand and will be quick to judge. Find what works for you guys and the new normal. Feel free to reach out anytime if you want to talk or have questions - 216-509-1798.
@Richard's Journey with FTD (Frontal Lobe Dementia) Thank you, any advice is welcomed. I don't always handle his changes well. Your right, about treating him as a child. I get so frustrated when he doesn't care if I'm tired, or ill. I'm still trying to live and handle every day responsibilities, and he no longer understands that. Sorry to vent, every day is a struggle.
What is the family dynamic? I'm a new subscriber. Your dad referred to his wife, daughter and son. Is his wife your mom or stepmother? Are his son and daughter your siblings or step siblings? Where does he live? Who is his caregiver? Sorry for all the questions but I am so impressed with both your Dad and yourself and I intend on following you and I want all of the intel I can garner! THANK YOU AND GOD BLESS! 🙏❤️
Great question! So my Dad lives at home with his wife and full-time caregiver Terry (My Stepmom) and his step-son Chris. My Dad and his wife have one child together - my half sister Kim who is married and lives locally. Dad has another son, David, who is my full brother that lives in North Carolina. I try and get my Dad a few days a week, typically Wednesday after work and all day Sundays, to spend time with him and give his wife a break. Thank you for watching and following my Dad! He really enjoys talking and sharing with people his story in hopes that it will bring more awareness to FTD.
He used to walk walder by himself all the time. But he isn't allowed to go alone anymore because he brought home a homeless guy from the park and invited him to live with him and his wife 😭
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Adorable
I have dementia and there is nothing more irritating than when nurses or others talk to me like I'm a child. I know you don't mean any disrespect, but hear a little bit of that coming from you. Thank you and Richard for these videos.
He doesn't seem annoyed though, so maybe she's just talking to him in a way that works for them 😊
He seems cool with it though. And I believe talking to him and doing recall of the events that happened is going to help him stimulate his brain.
What a pleasant man.
Richard you are so sweet and I love listening to you. You express yourself very well. Thank you for your videos.
💖
He seems so self aware of his condition. My husband also has FTD, and he denies he has any problems. He was just diagnosed last May and his condition is so much worse.
It is definitely not an easy disease and I am sorry about your husband's diagnosis! My Dad is very aware of it and knows that he has it. But in the beginning he was very angry and also in denial. Unfortunately it's not an easy disease to watch and is very different depending on the person. The biggest piece of advice I can give you is he is not the same person he once was and try to focus on what he can do versus what can't do. It won't be easy and it may change daily. My Dad always says he feels like a kid and responds better when treated as one. But others don't always understand and will be quick to judge. Find what works for you guys and the new normal. Feel free to reach out anytime if you want to talk or have questions - 216-509-1798.
@Richard's Journey with FTD (Frontal Lobe Dementia) Thank you, any advice is welcomed. I don't always handle his changes well. Your right, about treating him as a child. I get so frustrated when he doesn't care if I'm tired, or ill. I'm still trying to live and handle every day responsibilities, and he no longer understands that. Sorry to vent, every day is a struggle.
Hey!!! Fellow northeast Ohioan!!! We’re near Barberton. Rock on, Richard!
He’s extremely articulate. I was not expecting that. This is such a positive way to look at FTD.
Hello Richard ♥️
Beth from Baltimore, Ohio
Richard, you are a great radio announcer. I love your honesty. Your daughter is a great interviewer, also.
What is the family dynamic? I'm a new subscriber. Your dad referred to his wife, daughter and son. Is his wife your mom or stepmother? Are his son and daughter your siblings or step siblings? Where does he live? Who is his caregiver? Sorry for all the questions but I am so impressed with both your Dad and yourself and I intend on following you and I want all of the intel I can garner! THANK YOU AND GOD BLESS! 🙏❤️
Great question! So my Dad lives at home with his wife and full-time caregiver Terry (My Stepmom) and his step-son Chris. My Dad and his wife have one child together - my half sister Kim who is married and lives locally. Dad has another son, David, who is my full brother that lives in North Carolina. I try and get my Dad a few days a week, typically Wednesday after work and all day Sundays, to spend time with him and give his wife a break. Thank you for watching and following my Dad! He really enjoys talking and sharing with people his story in hopes that it will bring more awareness to FTD.
😀
He may have saw the northern lights
My son does and then gets lost!!!!
I am so sorry to hear that. I am sure that is scary.
Do you wander around?
He used to walk walder by himself all the time. But he isn't allowed to go alone anymore because he brought home a homeless guy from the park and invited him to live with him and his wife 😭
He needs a microphone 🎤
With all due respect, you're talking to him like a kindergartner.