Cervical Dystonia/ Spasmodic Torticollis New Treatment Dr. Demerjian TMJCONNECTION Case 13
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- เผยแพร่เมื่อ 4 ต.ค. 2024
- Has had cervical dystonia 5 years and was contemplating doing deep brain stimulation surgery, but the TMJ mouthpiece help with her symptoms. Listen to her two day follow up visit.
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I am a 31 year old female who lives in Florida your video made me cry because this is what I have exactly and by doing research I figured it out on my own! I have an appointment next month with shands tmj clinic! Thank you for making this video
Hey did you finally get better? Because i have this and its putting life on hold.
How are you feeling now ? Did you find any help and relief
@kaitlinh1204 how are you doing now
Thank you so much for your video. I have incurable cervical dystonia. The worst bit is the chronic pain I suffer and the dystonia affects my sleep. It is very debilitating. Your a very inspirational young woman. Thank you. noel from London
I have had cervical dystonia for 22 years. I have been having Botox injections that many years. It's truly a blessing to have this treatment, but it's not perfect and doesn't get rid of the dystonia and you can have other things from the botox and it is in no way a cure. Sometimes it helps quite a bit and sometimes it doesn't help much.
I wanted to know about botox treatment can we please connect somehow...??
Botox is very effective- however it's not a quick fix. Took about four years of quarterly injections before being truly corrected. Back in the day before much was known about Dystonia (70's) and during the trials prior to "Botox" receiving a din number, approaching this as TMJ induced was common. The DMRF today states that true Cervical Dystonia is probably caused by head trauma or genetics. They still don't know.
I'd lean toward genetics as I have cervical dystonia, as does my cousin.
I think neck injury can cause cervical dystonia too. I have CD mostly due to injury to neck and head.
Merhaba benim başım spazm şeklinde hızlıca sağa dönüyor. Etki eder mi?
Hello. my name is Rogério and I am from Brazil. Nice to meet you. I was
diagnosed with cervical dystonia. I would like to know if a remedy
(natural or not except botox since I am already taking it) could stop
the head tremor or at least make it less severe. Thank you.
This is fantastic... how do I go about finding out where I can get a TMJ evaluation? I suffer from Spasmodic torticollis for 4 years now. I do PT, acupuncture, Botox and muscle relaxers but none of it lasts too long. I would love be able to sit straight up without my head pulling to the right, giving me shoulder pain, stiff neck, neck spasms, headaches, loss of balance and slowly feeling my quality of life fading away. I live in New York. Can you recommend a doctor or treatment facility??
Gaming Squad how are u doing? I live in ny too did u find a doctor? I would appreciate ur help
How much does this treatment usually?
Where can I get treatment in Indianapolis ?
I really want to try this
I have torsion dystiona. I take trihexyphenidyl and Baclofen. I experienced very few spasms still be able to walk I suggest anyone with dystonia take those two medications and see how much it benefits you
Interesting what are the symptoms of torsion dystonia ? How are you feeling now ? Can you function normally
Where can I get this in India. ? Or this treatment has started in India. ?
Yeah I too wanted to know
@@kunal4076 how your problem started?
@@vishal9030It started due to injury to, neck and head 10years ago. What about you?
@@kunal4076I also injured my neck . when I rotate my head I feel jerky , movement is not smooth
@@vishal9030 I am sorry buddy. When did your symptoms started showing?
Where is treatment is this problem plz plz send mi address
does this actually work??
i have my doubts. Seemed a bit staged to be honest
I have yet to be diagnosed with cervical dystonia, but functional movement disorder and one doctor said it looks like spasmodic torticollus but isn't a neurologist. Its been 3 years since the onset of my symptoms and it has plateaued to my current state where i can walk and talk on my own. Are there any diagnostic tests for dystonia?
There some common typical things with torticcolis. Like if you put one hand to your head or neck, or lay down or stable your head, the spasms stop. As long as I know these are the only diagnose methods for torticcolis symptoms. But the reason of torticcolis can be different it can be dystonia (what is not able to diagnose activly) or a brain tumour or some other things.
You need to see a neurologist to be diagnosed but dystonia often gets mis- diagnosed. I was told I had Parkinson's disease as the symptoms are very similar. Lots of love from Noel in London. BTW it is great to know we are not alone. take care.
@@noelcampbell1672 hi you... Wanna chat a little somehow? Maybe through another channel? I like to share my experiences and questions :)
@@sam.n7762 I also like to share my experience and ask question... Please let me know how to connect?
@@noelcampbell1672bruh I do have cervical dystonia also known as spasmodic torticollis but comparing this movement disorder to parkinson disease is way different bruh cervical dystonia affects only in neck and head though in parkinson disease it’s about extremities muscles and limbs tremors in hands and legs,calves,arms and feet. They’re are types of movement disorders but not the same disease!
sounds like quackery bullshit. I have cervical dystonia. theres no way this would do better than voo doo or placebo effect .
i agree. Seemed staged.
i saw no neck tension before she closed here eyes at all.
This is fake