5(ish) Shocking Ways CPAP Fixed My Life (and Maybe My Butt?)

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  • เผยแพร่เมื่อ 30 มิ.ย. 2024
  • We think of Obstructive Sleep Apnea as a condition that affects the heart and lungs. But I was diagnosed with OSA because my butt kept trying to kill me. And now there's some evidence that CPAP might be lowering the inflammation that destroyed my gastrointestinal tract. More testing needs to be done, but that's the current working hypothesis!
    More information on the link between sleep apnea and chronic inflammation at: www.sciencedaily.com/releases...
    In this episode, I also explore my entire OSA journey, including all the clues I ignored my entire life, as well as the ways CPAP is improving my relationships.
    Chapters
    0:00 Intro
    0:21 Opening credits.
    0:36 The signs of sleep apnea I overlooked my entire life.
    2:56 OK, but seriously, what does my butt have to do with my breathing?
    5:28 How I was diagnosed with OSA and details on my sleep study.
    8:04 CPAP didn't work for me at first, but I made it work.
    8:57 How things changed once I finally found the right mask and pressure settings.
    9:50 Friends and family chime in on how I've changed.
    13:49 But seriously, though, CPAP cured my awful acid reflux.
    15:34 I wonder if my memory loss and panic attacks were caused by sleep apnea.
    19:00 I met my new GI. He thinks I have Crohn's disease. But I don't. But I do. But I don't.
    20:23 How we figured out that sleep apnea causes chronic inflammation.
    21:34 We're still investigating, but it seems like CPAP might keep my butt from killing me.
    Images from Mister Rogers' Neighborhood © Fred Rogers Productions.
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ความคิดเห็น • 216

  • @nightknight6845
    @nightknight6845 24 วันที่ผ่านมา +5

    Just diagnosed with severe apnea. 38 years old, 6'2" 185 lbs. In a bit of shock, feeling nervous, scared, even embarrassed. This comes also after being diagnosed with gout, elevated BP, high cholesterol. Not a heavy drinker, not a terrible diet. Doctor described it lovingly as hitting the hereditary jackpot. I was very intrigued with the portion about apnea causing inflammation, as gout is indeed an inflammatory disease. Perhaps once I begin CPAP, or whatever my specialist puts me on (I have to wait 5 months to finally see one unfortunately), perhaps my gout will also see benefits. Thanks for your videos of hope, I'm definitely having extreme anxiety from all this.

    • @BeeRich33
      @BeeRich33 2 วันที่ผ่านมา

      Research what triggers gout, and change your diet. Also cpap can work well. I had my second sleep study last night, for pressure.

  • @Banana04218
    @Banana04218 2 หลายเดือนก่อน +13

    I dont mean to sound corny, but I feel like finding your channel was a sign from God. I was diagnosed with sleep apnea and struggled so badly with the CPAP that i was ready to give up. I was angry because I'm not even 40 and so much is going wrong. Then i listened to you talk and it calmed me down enough to tolerate it for four hours last night. Perhaps not all is lost. Ive been through so much health wise , but maybe now ill at least have more energy to deal with life. And to be a better mom. Thank you from the bottom of my ❤

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 หลายเดือนก่อน +7

      I have a saying I love: Anything worth doing is worth doing poorly!
      By that, I mean that doing it sub-optimally is better than not doing it! Enduring your CPAP for four hours is a massive improvement over not being able to endure it at all!
      Maybe tonight you can endure it for four hours and thirty seconds. But you know what? If you go in the opposite direction and can only take it for two hours, that's better than zero!
      You will get there. In fact, you'll learn to love it. My CPAP mask has gone from being this thing that seems necessary to a sort of security blanket. I wear it now sometimes when I'm lying in bed reading, because I've grown to associate it with better health and better mental acuity.
      You've got this, Banana. You're going to succeed. I know that. I don't doubt it for a second. You may slip up. You may not succeed right this very now. But you will succeed in the long run, and you're going to feel SO MUCH BETTER!

    • @Banana04218
      @Banana04218 2 หลายเดือนก่อน +2

      @@AdventureswithCPAP thank you so so much for this ❤️I have made it to six hours!

    • @Banana04218
      @Banana04218 2 หลายเดือนก่อน +2

      Wishing you and yours all the best 🙏❤️

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 หลายเดือนก่อน +2

      @@Banana04218 I didn't have a doubt in the world that you would!

    • @joeblough261
      @joeblough261 2 หลายเดือนก่อน +3

      @@AdventureswithCPAP My old physical therapist always said that. 2 is better than 0, and if you can do 5 out of 10, it's better than 2!

  • @christinekeuling1440
    @christinekeuling1440 5 หลายเดือนก่อน +18

    Thank you for sharing. I was diagnosed at 45 with 32 events an hour (likely from birth). My CPAP therapist said I was lucky to find out because I’m slim and female, and we don’t always get tested. I have enormous random gaps in my memory that make me feel extremely disoriented, and when my kids were babies, I regularly toppled over from exhaustion without knowing why I was more tired than the other Moms. I had such bad vertigo, dizziness, and lack of coordination in my 40s that I was initially examined for MS. My sleep study was the last resort for me, and I expected it to come back negative like all the other tests. It didn’t, and the only thing worse than having to wear a CPAP for the rest of my life is the way I feel without it. I found your channel on one of my down days when I wanted to give it up again, and your genuine joy at finding health with CPAP has changed my mind. Thanks again. I’m making an appointment to get a new mask instead of throwing the whole thing off the balcony. I hope you keep making content.

    • @AdventureswithCPAP
      @AdventureswithCPAP  5 หลายเดือนก่อน

      This literally made my day. Thank you!

    • @Sam-gs7yb
      @Sam-gs7yb 4 หลายเดือนก่อน +1

      I have same symptoms how long did it take after starting cpap that you felt better or normal per say

    • @AdventureswithCPAP
      @AdventureswithCPAP  4 หลายเดือนก่อน +2

      @@Sam-gs7yb, a couple weeks! Basically, as soon as I figured out how to keep my mouth closed and got my AHI below 5.

  • @spazamitaz
    @spazamitaz 3 หลายเดือนก่อน +6

    I suffered from chronic insomnia, acid reflux, and heart palpitations for over 15 years. Since starting CPAP 8 months ago, all of these symptoms have disappeared. Love my CPAP.

  • @karend.9218
    @karend.9218 ปีที่แล้ว +23

    Here’s a tip: early with my cpap, I felt like I wasn’t getting enough air with the ramp up setting for 20 min. I’m fine on about 6.2. So, we (tech and me) agreed to turn that function off. Full air from “on”. It works for me. It takes the machine about 20 minutes to get the rhythm right and be more quiet but it works. If you a are struggling getting used to it, work with your tech and adjust different settings. Also, turn your unit on before you tighten your mask all the way. Most folks make the mask too tight to get a good seal and that backfires.

    • @wardzaza768
      @wardzaza768 ปีที่แล้ว +3

      same here I could not do the ramp. Turned it off made a bug difference.

    • @jmoyet
      @jmoyet 9 หลายเดือนก่อน +1

      Same here. I turned it off. Now I sit in bed with it on for the first few minutes to (forgot the word I'm looking for) "get used to it" then I lay down for bed and I don't feel like I'm not getting enough air anymore. (Still rip my mask off 2hrs into it in my sleep)

    • @ToJoMayer
      @ToJoMayer 5 หลายเดือนก่อน +5

      As a pulmonary function technologist-turned sleep tech, I quickly recognized that big men often fail the initial effort due to the large anxiety breaths they take. A normal volume of air during normal sleep breathing, for a man over 220 pounds, should be around 340 to 420 ml. However, an anxiety breath can run as high as 3000 ml. A CPAP mask is designed to deal with normal respirations, and it does not handle gigantic anxiety breaths. These large breaths create a pressure inside the mask (negative and positive) that anxiety breathers blame on the delivered CPAP pressures. Breathing retraining and biofeedback usually allows people to deal with these perceived “high” pressures. I have rarely been unable to help people deal with their severe CPAP anxiety.

  • @LEEHARTJES
    @LEEHARTJES 4 หลายเดือนก่อน +19

    Thank you so much for your honest and open story. Mine is similar. I am at the very beginning of my cpap journey and am already feeling better. Just 2 weeks ago I was in tears telling my children that my lack of sleep felt like it was killing me. I had gone years blaming everything on my depression, weight gain, arthritis, psoriasis, etc. It now gives me hope that I can regain my own light. I'm tired of existing and not living. I have never written a comment before, but your video touched me deeply and you need to know that what you do can help change lives.

    • @AdventureswithCPAP
      @AdventureswithCPAP  4 หลายเดือนก่อน +3

    • @gust9464
      @gust9464 3 หลายเดือนก่อน

      Great video, thank you. Very sorry for your loss. Question… Do you have to use a CPAP the rest of your life?

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 หลายเดือนก่อน +2

      @@gust9464, me personally? Yes, without question. Over the past six months I've lost over 70 lbs, and my necessary pressures haven't changed a bit. I'm one of those people who was fat because they needed CPAP, not needing CPAP because they're fat.
      My dad, on the other hand, has in the past lost similar amounts of weight and gone off CPAP entirely until the weight came back. For him, it's a function of the extra weight on his neck. For me, it's a function of my floppy soft palate and constricted nasopharynx.

  • @GeoffMorrison
    @GeoffMorrison 3 ปีที่แล้ว +9

    I choked up when The Missus said she had peace of mind now

  • @kristahouston4743
    @kristahouston4743 4 หลายเดือนก่อน +11

    I'm very new, literally the respiratory therapist just left and I'm just staring at this machine. I'm scared, I'm nervous and also overwhelmed. BUT she also told me my apnea is severe at 63 events per hour. I need to figure this out. I'm beyond exhausted & my memory sucks. I'm a young (at heart) 47 with disabling back issues (13 herniated disks and DDD). So, I'm already at my limit most days. That being said I'm often a happy "bubbley" person. I'd like to get back to her. I'm so thankful I found your page and it may be just the thing that gets me through these beginning, overwhelming, stages

    • @midnightrider1827
      @midnightrider1827 4 หลายเดือนก่อน +2

      I too was at 63 per hour. Take the time and put the effort into making it work. it truly has been amazing for me in how I feel EVERY SINGLE DAY. You will make this work.

    • @kristahouston4743
      @kristahouston4743 4 หลายเดือนก่อน +1

      @@midnightrider1827 thank you, I'm trying every day

    • @adearthical
      @adearthical 4 หลายเดือนก่อน +4

      I was at 85 events an hour. Basically every breath. When I woke up after my first night on the machine, I felt like somersaulting out of bed, that's how good I felt.

  • @chrismartin5859
    @chrismartin5859 ปีที่แล้ว +10

    Thanks! Your story really hit home. I was the snorer, the sleep apnea denier... My wake up was a TMJ crisis caused by teeth grinding due to low O2 levels... I'm only a week in and I'm a cpap fan! To anyone on the fence... try it, you may be surprised at how much you ENJOY IT!

    • @RunningNotStopping
      @RunningNotStopping 6 หลายเดือนก่อน

      Yeah I loved it to begin with too. ...it's been 3 years. Night and nap no matter what. I can't even begin to tell you how it goes for me. Good luck

  • @tracytinker
    @tracytinker 3 หลายเดือนก่อน +7

    I love that you are in Mr. Roger's house!

  • @JuanReyes-cl2in
    @JuanReyes-cl2in 2 หลายเดือนก่อน +4

    Man, I relate to everything you said. That first morning after I got my cpap was probably the greatest morning of my life. I was avg 88 events per hour. When you described feeling like I’d been hit by trucks was so true.

  • @unitedstatesmarine5087
    @unitedstatesmarine5087 วันที่ผ่านมา +1

    I appreciate this video. I always thought it was ptsd that caused my sleep to be constantly interrupted. Doctor’s and councilors agreed. I got a new doctor and she sent me for a sleep study where I’ve been diagnosed with severe sleep apnea. I haven’t received my machine yet but I’m so excited to know what it’s like to not be tired all the time. Thank you for sharing!!

  • @davidmccoy112
    @davidmccoy112 ปีที่แล้ว +6

    I just had my sleep study last night and it is exactly what you said 1 hour in they woke me up and put me on cpap

  • @sjdye92
    @sjdye92 10 วันที่ผ่านมา

    This is exactly the video I needed to see. I just got my cpap today after suffering from narcolepsy and sleep apnea my whole life and I’m now in my 30s.

  • @MountainDiva
    @MountainDiva 2 ปีที่แล้ว +14

    Great video Dennis. Thank you!! Been on CPAP for 4 months. My GERD totally disappeared on CPAP as did daily headaches. BP is now normal and my energy level is great. My quality of life has improved vastly. Really want to work on getting more REM sleep though since I find myself getting sleepy during the day. Continue the good work and thank you for sharing your Adventures with CPAP.

  • @tattooyu
    @tattooyu 5 หลายเดือนก่อน +3

    Dennis, my hosehead brother. We lived so many of the same things! I have huge holes in my memory that I'll never get back. I also had similar episodes in the middle of the night!
    It was 2009. My AHI was 72. I was near death. I know it. CPAP saved my life.
    Benefits:
    - Acid reflux went away
    - Energy / alertness
    - Lost 25 lbs with no other changes
    - No more getting up during sleep to pee
    - Very few anxiety/panic attacks
    - Better men's health
    - BP better controlled with med, lower dosage
    - Random chest pain and headaches GONE
    So much more!

  • @RunningNotStopping
    @RunningNotStopping 6 หลายเดือนก่อน +10

    This is totally off topic but you should do voices for cartoon movies. You got a great voice!

  • @eveperry4321
    @eveperry4321 2 ปีที่แล้ว +9

    Hi Dennis, I just found your channel the other day and I’m glad I did. I’ve been on CPAP therapy since 2001-2002-ish. My problems with Sleep Apnea may have started 40 years ago while I was pregnant. I was up at my friends cabin with her and her family and her little girl complained that I snored so loud that she couldn’t sleep. I attributed it to my pregnancy and allergies. I’ve since been told that my upper airway passages are rather small and with the swelling due to allergies, my upper airway easily becomes obstructed. At the time, I had been working in an acute care hospital, primarily in the ICU’s for about 6 years where I continued to work until the early 1990s when my mother’s health took a turn. I quit working for the next 7 years to care for my mom until she passed away from Alzheimer’s in 2000. Shortly after I started caring for mom, I began to fall asleep in the Lazy Boy every day after mom and I had lunch only to wake myself up with my own snoring. Since I no longer had insurance when I quit working, I was unable to address the issue. Just prior to my mom’s death, I had chest pains and was diagnosed with an MI of unknown age. The last year of her life was unbelievably stressful for me and the stress did not go away after she passed. I went back to work shortly after the funeral and finally had insurance. I had a Cardiac Cath and a sleep study. The catheterization came out pretty well, but the sleep study was a different story. My O2 sat dropped to 52% and I stopped breathing 137 times in 2 hours. Needless to say, I became very motivated to faithfully use my CPAP. (When we can’t get a patient’s O2 Sat back up over 90%, chances are very good that they will end up intubated on a ventilator.) I spent the better part of the next 2 decades working stressful jobs in various Intensive Care Units and I lead our Local Labor Union for close to a decade. Poor health took me out of work in 2019. My CPAP has saved my life, but decades of Severe Sleep Apnea and sleep deprivation takes its toll; your weight and blood pressure start to go up, blood sugars increase, and arrhythmias rear their ugly heads. If one is lucky, these conditions can be improved. The moral of both our stories seems to be to address your sleep apnea problem early, rather than later. I always strongly encouraged the Cardiologists, with whom I worked, to get more sleep studies on their patients. It wouldn’t surprise me, in the least, if CPAP therapy helped your derrière. When I was first reading about Sleep Apnea, I was puzzled to read that having to get up during the night to urinate was one of the symptoms. After I started CPAP Therapy, that issue went away for me. As for the unsettling problems with your memory, I understand that the maintenance that the brain does on itself happens when we are sleeping and dreaming and that doesn’t happen when you’re sleep deprived. PTSD has a major effect on memory, as well.
    Keep up the good work sharing your knowledge and experience. 😃

  • @genebeckytorres6355
    @genebeckytorres6355 3 วันที่ผ่านมา

    Thank you so much for sharing. I really do not want o to wear one of these things. I am worried about being attractive to my husband, aging, looking older and frail. I am a young 55 and have been diagnosed that I need a CPAP. My sleep pros have not been communicative or told me how to use my new CPAP. Your videos helped me to understand the importance of CPAP. Your words are encouraging. Your humanness is beautiful. (Not to mention you are a wonderful story teller, :-) God's blessings to you and your beautiful wife. Love to you and yours from Tucson, Arizona. And may your caboose keep running well and strong.

  • @AffyisAffy
    @AffyisAffy 3 หลายเดือนก่อน +3

    Holy crap this is so motivating. I wake up at night feeling like I'm dying, but I don't know how to form words or thoughts, arms feel numb and I have to take deep breaths for a minute until everything comes back to normal. I have recently un-shelved my CPAP and am not seeing progress yet and it's so frustrating, but the butt issues, memory issues, mood...it's all too relatable, and I need to do something and take this more seriously. Thanks

  • @wardzaza768
    @wardzaza768 ปีที่แล้ว +3

    35 years ago I was in the hospital for a back surgery , I was approached by my doctor who told me I the people on the floor including the nurses could not believe hoe bad I was snoring . I ignored it. Since then through the years I became so disfuntional and could not even drive for ten minutes without asking my wife to drive it was terrible . I believe I was in the fight of flight mode several times gasping for air . It was horrible, I did a sleep study & got a cpap, i could not get used to it & put it in a closet ( I still have it) A year or so ago I again went to another sleep study & was told I stopeed breathing 87 times an hr which was consisteant with the study several years before. The past year I started the cpap . It took awhile to get used to it wasnt easy by a long shot . I started getting used to it . I could not believe the difference in my life . What a difference. Trust me I still get tired even though I get great sleep as per the cpap . I went from stopping breathing 87 times an hr ( yes 87 times! Every minute plus I stopped breathing for over ten seconds per minute !) I now average five to seven which is a life changer . Its not easy getting used to but I actually love my cpap now & do not sleep without it . Well maybe not love but like :) Its a getting used to thing but its a great thing I swear to you. THANKS FOR POSTING THIS ! GOOD LUCK TO YOU !

  • @tk0150
    @tk0150 ปีที่แล้ว +5

    Memory loss is absolutely related to sleep cycles according to Dr. Huberman and a sleep expert guest. I just had a sleep study and I’m getting zero REM or deep sleep moderate sleep apnea you had severe and it definitely relates to memory consolidation, etc. fact I’m happy for you and your chance in the new life.

  • @nalignmentwlifehealinglife
    @nalignmentwlifehealinglife 6 หลายเดือนก่อน +2

    Yes, I was complaining to my doctor about memory loss. I told her I was scared and my family was scared. She had me take a sleep test and found out I had sleep apnea. Ive been on cpap for 3 months... slowly but surely my memory is better, Ive even had dreams with my childhood memories I forgot about. When I woke up, I still remembered my dream❤❤❤❤.

    • @Tallie602
      @Tallie602 หลายเดือนก่อน +1

      I guess there’s a correlation with sleep apnea and Alzheimer’s. It makes sense that they are connected. I’m glad you sought out help for it!

  • @dolemite786
    @dolemite786 ปีที่แล้ว +2

    What a likable chap, great, useful content, thanks for sharing- kind regards from London Uk

  • @spineful
    @spineful 3 หลายเดือนก่อน

    Thank you for sharing your story! Honest, uplifting, encouraging.

  • @rmc489
    @rmc489 10 หลายเดือนก่อน +5

    Hey mate, those panic episodes I can relate to and are absolutely a physiological response to the stress of not breathing, O2 saturation dropping, heart under stress etc. Yours were definitely more severe than mine, I would wake up convinced I'd ruined my family, and it took a long time until I realised the physical is the cause.
    I'm hoping my other chronic conditions also clear up like yours did.
    I had none of the typical symptoms the medicos look out for.

  • @bookbarmy6426
    @bookbarmy6426 2 ปีที่แล้ว +2

    Thank you Dennis. As a newbie I've been watching your videos (and Nicko's)~~all very helpful - BUT this video in particular hit home. My husband shared almost the exact same reaction as your lovely wife - he used to be on edge all night, as if waiting to give me CPR. But with CPAP he told me I'm happier, lighter and almost (not quite) bright and chipper in the morning...but most of all he expressed relief and has peace of mind that I am breathing through the night. Still getting used to it all but like you I am getting positive feedback from those who I love. Thanks so much... Deborah

  • @Gaz.91
    @Gaz.91 5 หลายเดือนก่อน +2

    This video gave me the feels. If you ever write the story of your life, I would love to hear you tell it. You are such a compelling speaker, thank you for sharing your experience.

  • @StephaneBergeronPixelyzed
    @StephaneBergeronPixelyzed 2 ปีที่แล้ว +1

    Great video Dennis! I was myself diagnosed with severe sleep apnea 12 years ago at age 44 (56 now). I had nowhere near the major health issues you where having but my heart was definitely struggling. My brain felt like gruyere cheese with the sleepiness and memory loss that came with it. Don't know if you're joking when saying you're not sure if CPAP has cured the problems you had. Personally, I'm sure of it :) I remember the waking up gasping for air with adrenalin flowing in my body which was panicking (my events numbers where above 40 but what made my doctor and my wife panic was the length of the events...) Never feeling rested. That wears down on the body in many ways and my health was declining quickly. Now I feel great and am now working on my sleep hygiene. I sleep well... just not enough hours ;) (I'm a night owl with a stressful job). So I make a real effort to go to bed earlier and sleep a min of 7 hours a night. That is starting to have an effect too.
    Good luck with your continued therapy. Your wife seems lovely and you clearly have great friends.Consider yourself lucky. I know I am! Cheers from the soon to be Great White North!

  • @nalignmentwlifehealinglife
    @nalignmentwlifehealinglife 6 หลายเดือนก่อน +1

    Thank you for bringing up the chronic inflammation. I was in the emergency room everyday for months for migraines. I've had an emergency temporal biopsy and bone marrow biopsy and till this day, they cannot figure out why I had these elevated inflammatory red blood cell markers in my blood or why I had these intense migraines and the migraines were causing rapid vision loss. Then, I started grinding my teeth in my sleep so badly that I broke some of my teeth.
    Now that I'm on cpap. My teeth grinding calmed down a lot, when I miss a cpap treatment, I grind my teeth real bad. Also, my migraines are not as bad. When I miss a treatment, I wake up with a headache. Although my vision has not improved yet, it stopped declining. Thank you for doing these videos. You are saving lives because I didn't realise until watching your videos and sharing your story that all my health problems steamed from sleep apnea.

  • @mattbarnett6787
    @mattbarnett6787 9 หลายเดือนก่อน +1

    Thanks for the video. I actually had a similar story. I had an anesthesiologist tell me I had severe sleep apnea during a biopsy where they confirmed I had lymphoma. All I heard was cancer and forgot about the apnea. Beat the cancer and recently had a sleep study performed. The study just confirmed severe apnea and am awaiting the cpap. Hoping for big things, been exhausted lately.

  • @liddfamily10
    @liddfamily10 4 หลายเดือนก่อน +1

    I’m finding your videos are so helpful. I’m about to go on CPAP. I had no idea The Sleep Apnea was so severe until I got a test recently. I thought I might have it but it turns out up to 94 Episodes in an hr, 764 Events in 1 single night. That’s crazy and frightening. It was literally a regular nights sleep. These videos are very helpful in advising me of making sure the mask etc does fit properly.

  • @NYHalfassprepper
    @NYHalfassprepper 3 ปีที่แล้ว +3

    Similar story here probably had it my whole life. Between the study and "machine day" I took a weekend trip. My buddies made a video and you can hear me snoring in the background. All I could think about was getting my hands on my machine. DME insisted on sending a tech to my house to set it up. 100% compliance since that first night.

  • @janetotovic1442
    @janetotovic1442 ปีที่แล้ว

    Love your videos Dennis!

  • @AngieFromCanada
    @AngieFromCanada 17 วันที่ผ่านมา +1

    I asked my doctors why I have memory loss and they kept telling me probably from how many times I was put under for surgeries (I also have had Chronic Kidney Disease since childhood and have just had my 3rd kidney transplant (first one was rejected, and the second one died from septic shock) and also had surgery for abscesses). I did not realize it was related to Sleep Apnea until I was diagnosed with Severe Sleep Apnea 11 years ago.

  • @uncletj1
    @uncletj1 หลายเดือนก่อน

    man, this motivatates me to keep pushing to use my CPAP..love the content brother! new sub here

  • @lisarundle1205
    @lisarundle1205 5 หลายเดือนก่อน +1

    HI, I've just been diagnosed with severe sleep apnea with 49 episodes in an hour. I've only had the machine a few weeks and have consulted with the sleep clinic. I'm ordering a new different type of mask. I've watched a few of your episodes so far and they're very helpful. Thank you so much

    • @AdventureswithCPAP
      @AdventureswithCPAP  5 หลายเดือนก่อน +2

      Thank you, Lisa! You're on that awkward adjustment period that I remember all too well. Just know that it gets better if you persevere and find the right mask for you and your needs!

  • @TruckerRICHcom
    @TruckerRICHcom 4 หลายเดือนก่อน +1

    Great video Dennis, I was just diagnosed with sleep apnea. 20 events per hour, just waiting for my machine to ship. Resmed Airsense 11 I when with the resumed memory foam nose mask. I tried on my sister in laws and it seemed comfortable. If it doesn’t work I’ll let them know asap… I just retired from 45 years in the trucking industry. Keep up the great work and again I appreciate the information!

    • @EvertG8086
      @EvertG8086 27 วันที่ผ่านมา +2

      I got the Airsense 10, it works well, just make sure the mask actually fits you, and it should be easy enough to adjust.

  • @myshavikes6263
    @myshavikes6263 ปีที่แล้ว +2

    Thank you for this video. I'm so happy this has helped you so much!
    I was just diagnosed with sleep apnea and am going to be meeting with a respiratory therapist tomorrow about a CPAP.
    I have been dealing with severe fatigue and chronic pain, it effects my daily life. I am really hoping this helps me and in able to get back to making art, which I haven't been able to do due to the tiredness and pain.
    I also have really bad acid reflux and I'm excited to see if that helps!

    • @wardzaza768
      @wardzaza768 ปีที่แล้ว

      So how are you doing ?

  • @wellensalat5402
    @wellensalat5402 ปีที่แล้ว +2

    Hi Dennis, thanks for your detailed descriptions. My wife told me that sometimes I stood besides our bed talking paranoid shit in the middle of the night... Or I was sitting in bed shouting. But I do not remember anything of that.... She has never witnessed this behaviour again since I started CPAP in september last year. I have heard that there are differences in which sleep phases one suffers most of OSA.

  • @peterhessels2903
    @peterhessels2903 6 หลายเดือนก่อน +1

    I'm a bit like you, very analytical. Mechanically, I can fix anything. I'm an industrial Mechanic. Coincidences happen but...
    Like you, CPAP fixed my acid reflux.
    I stopped falling asleep while driving, yes, that was a serious problem for years. Falling asleep during trade school courses, Father Dale's homily (despite it being interesting), anytime while something mundane was going on during the day. My sleep apnea was severe; 60 times per hour I would go low on oxygen, my pulse went up to 200bpm a few times per night.
    What really surprised me was not having to pee 5x a night. Weird huh? I can go through the night no problem. I also sleep thru the night.
    Still new with this, only a few weeks, I expect much more improvement.
    Thanks for your videos, you are very talented at explaining the issues regarding sleep apnea.

  • @oohithankdeylykme
    @oohithankdeylykme ปีที่แล้ว +3

    It’s scary how patients ignore the things providers say to them. It’s so scary, but what can we do?

  • @artcraftsorceress
    @artcraftsorceress ปีที่แล้ว

    Thank you for giving me hope that I can heal now.❤

  • @toadintheh0le
    @toadintheh0le 5 หลายเดือนก่อน

    Just had my sleep study and I’m at 25 episodes an hour. Will be trying CPAP in a month or so.
    I have an IBD along with lots of gut issues, I’m hoping that the therapy will help with the symptoms. My memory and mental health are shot too.
    Watching your vids have been enlightening.
    I’m most worried about trying to breathe against the machine though.
    Hope you’re well brother

  • @GregRobinsonHD
    @GregRobinsonHD 3 ปีที่แล้ว +1

    Loving these videos, Dennis. Looking forward to the next installment...

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 ปีที่แล้ว

      Trying to decide between a sort of “Everything you need to know about CPAP masks that they don’t tell you” and “Here’s all the crap you need to buy when you go on CPAP that they don’t tell you about.”
      But, you know, with a cheesy clickbait headline, either way.
      Any thoughts on which you might want/need first?

    • @GregRobinsonHD
      @GregRobinsonHD 3 ปีที่แล้ว

      @@AdventureswithCPAP I think I'd probably go with the former before the latter, since apart from the machine, the mask would seem to be - I naively assume - the second most critical "thing" in the CPAP inventory.
      Maybe a Bane-inspired headline and/or thumbnail. "Choosing the wrong mask would be extremely painful... for you."

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 ปีที่แล้ว +3

      Oh yeah, I'm going full Bane with the intro to the mask video. I've already done some graphics for it in my spare time. First line: "Ah, yes! I was wondering which would break first: your spirit or your mask seal."
      I'm of the opinion that the mask is the MOST important component, because finding the right one is difficult, and until you get one that works for you, this therapy ain't worth Jack Patootey.
      But there's no such thing as a "good" or "bad" CPAP mask. My wife thinks my favorite mask is a violation of the Geneva Conventions. I think her favorite mask is just kinda okay-ish.
      And she thinks my absolutely least favorite mask I've tried is better than the best I've tried.
      It's totally individual. It's all subjective. So the video isn't about which masks are better than others; it's about how to find what works for you, and also the fact that your DME is supposed to let you swap masks until you find one that works within the first 30 days of your therapy. But they don't tell you that. Mine certainly didn't tell me. So I've gone completely out-of-pocket for like four different masks now.

    • @jasonfrye9188
      @jasonfrye9188 3 ปีที่แล้ว +1

      @@AdventureswithCPAP I 100% agree with Greg on the well-done videos, anticipation of the next installment, and the idea of doing the mask next. If it's that individual and complicated to figure out, then it seems likely that there are people out there who could really benefit from your thoughts on that one.

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 ปีที่แล้ว +1

      Right, then. It's settled. Masks it is!
      Oy, keeping this one simple and concise is gonna be tough. But my Executive Producer has informed me that I have to keep the next episode to under 10 minutes.

  • @jessamynrock9951
    @jessamynrock9951 3 ปีที่แล้ว +4

    As always, thank you for sharing your experience and knowledge. Also, I love the editing in this one. And the background.

  • @RJones-tn5vg
    @RJones-tn5vg 11 หลายเดือนก่อน +1

    My husband convinced me to get checked out. I had my test a few weeks ago and I am waiting on the results. I hope I feel better soon too.

  • @rhondahunt9888
    @rhondahunt9888 8 หลายเดือนก่อน

    So fascinated by the info. I had a sleep study but they found no issue.
    My ex swore i snored bad. No one else i’ve ever shared a bed with…daughter when ex and i fought, sister on trips where we shared a bed, no one says i snore!
    I attribute it to him crowding me out on the bed and me being super uncomfortable.
    I do catch myself in occasional singular snores that wake me up.
    Anyhow, i am going to share your info with my nursing student friends.

  • @ThisTruckingLife
    @ThisTruckingLife หลายเดือนก่อน +1

    I'm finally taking the leap my company pays for everything so I'm going for it I definitely have it I guarantee it I too totally wake up not knowing who I am where I'm at why I'm where I'm at I've lost so much of my memory I woke up gasping for air but here's one thing that's really scary I woke up in the middle of the night with sleep paralysis but my ears would start hissy and it would get louder and louder and louder until I can hear everything normal again and then I can move that is terrifying to me and your videos help me make the call if anyone else is reading this and having the same thing please just get checked out the best you can as soon as you can

  • @uppercrust400
    @uppercrust400 4 หลายเดือนก่อน

    2019 was the first time I was put on the CPAP machine in the sleep lab. I woke up feeling very refreshed. I hadn't slept that well in decades. CPAP therapy saved and has greatly improved the quality of my life.

  • @Canchasor79
    @Canchasor79 3 หลายเดือนก่อน

    Wow that's crazy. Great testimony

  • @methywoz
    @methywoz 4 หลายเดือนก่อน +1

    I love the mister rogers house background… got distracted by remembering when I was young thinking he was secretly a bad ass because he stole a traffic light and put it in his house. But that friend of his, ughhh… Lady Elaine… a.k.a. The bringer of nightmares… come to think of it, she’s probably responsible for my insomnia and sleep apnea, I bet deep down my inner child is still so damn traumatized by that HAG… 😂

  • @Bob-Fields
    @Bob-Fields 8 หลายเดือนก่อน

    Thanks for sharing!

  • @andreaclark9398
    @andreaclark9398 4 หลายเดือนก่อน +1

    I just found your channel tonight. Wow! I gave up my CPAP 4-5 years ago because I couldn’t keep my mouth shut and would end up waking up and ripping off my nose piece mask, gasping for air. I should have tried other types of masks, but I was sick of it and the bothersome daily maintenance and waking up gasping for air. Long story short, I had to get a pacemaker recently because my heart rate was low and skipping a beat every couple minutes. Pacemakers cause high blood pressure so after another ER visit I was told my morning headaches would get better if I started using my CPAP again. After watching your video I’m wondering if my lung, breathing issues, vertigo and needing a pacemaker to begin with was brought on by my neglecting to continue with the CPAP. Who knows, but your video has me practicing keeping my tongue on the roof of my mouth to learn to breath through my nose. I am scheduled for another sleep study next month because I gave away my other equipment and have to start over to get the Rx for another machine and mask. Anyways, I’m hoping I can find the right mask and reap the benefits and start getting my health and breathing back in order and not be so tired every day. Thank you for sharing your story and all the great information. God bless you!

    • @AdventureswithCPAP
      @AdventureswithCPAP  4 หลายเดือนก่อน +2

      Good luck, friend!
      If I may say one thing in response: don't worry about what could've been. Don't fret over what if. You've decided to give CPAP another go. Focus on that! Think of all the future health problems you're getting out in front of!
      You've GOT this!

  • @emdavis1343
    @emdavis1343 4 หลายเดือนก่อน

    Thanks for this is made me laugh and gave me hope that CPAP will help me get better. I am enjoying your videos. I too was a joke about snoring, so much of this hit home. I am on day 3 of treatment. Thank you for being so honest.

  • @R1Kyle
    @R1Kyle 9 หลายเดือนก่อน +2

    I feel like less of a man needing mine but I would truly be dead without a Cpap machine. I have been a snorer since I was young but I used to sleep so well. I hit 48 several years ago and things unraveled real fast. I was the poster child for sleep apnea problems, gerd, frequent urination only at night, daytime sleepiness so bad, I was a massive hazard on the road due to tiredness and in life in general. My blood pressure the day I went to get tested after a stressful event was 217 over 197. The machine reversed everything within days. I just went camping several days ago and I could not get my machine running for the trip and the first night I tried to sleep but I felt like I was choking repeatedly, I had to go to the bathroom 3x. The second night I tried to sleep again and same thing. I got up and slept in my truck with the engine running as that was the only way the power plug built into my truck would work.
    Today I forked over the cash for the 12v power supply and plug I would need to avoid this problem because what is my life and quality of life actually worth.

    • @AdventureswithCPAP
      @AdventureswithCPAP  9 หลายเดือนก่อน +2

      You took charge of your life and your health. You did what you needed to do to protect not only yourself but others on the road with you. I'm not sure what you could do that would make you more of a man than that. 💪

    • @grak1396
      @grak1396 8 หลายเดือนก่อน +2

      Your right, what's your life worth? I'm gonna invest in a DC adapter and battery for my machine... last time there was a black out, I just had to stay awake until it was over as sleeping means choking without CPAP. I miss camping :D

  • @meeppeep4113
    @meeppeep4113 2 ปีที่แล้ว +2

    Your such a gifted storyteller. I'm glad your doing better now with CPAP! I'm going to take up sleep apnea with my doctor since I've been waking up several times a night the last few years. I might need CPAP. At first I thought I just needed som sleeping pills, but my doctor wouldn't give me any(Sweden...weird country). But I guess that was lucky. Combined with sleep apnea that could have ended in disaster.

  • @AggressiveEnnui
    @AggressiveEnnui หลายเดือนก่อน +1

    I was just diagnosed, probably way too late. My reading showed a mean of 102.7 AHI per hour. Holy pooplogs, right? Yeah. We have so much in common--amazingly patient wives, for one, but also the weird gut connection. I was diagnosed a while ago with diverticulitis by a super-rude gasto doc who seemed to be making fun of my intestines. I was 30-something and he said I had the colon of an 80-year-old and had this disgusted expression of his face that suggested he thought I was doing something evil or amoral to get it that way. I wanted to bust his nose right there, but the lack of pants and the benzos kinda held me back. I ended up having 11 inches of it ripped out. Nice. After that, I amassed a metric shit ton of adhesions and fibrous garbage in there and was eventually admitted for emergency surgery for a blockage that had worked its way through my abdominal wall like a little poop-balloon which almost killed me.
    Anyway, I am so grateful for your content, your intelligence, humor, honesty and great voice :-) Thanks for the videos!

  • @user-cu3xn4xj3i
    @user-cu3xn4xj3i 2 ปีที่แล้ว

    Your testimony is a blessing to me Dennis. Thank you so much for sharing. I've recently been diagnosed with SA and I had a heart attack in 2018. I wonder if that contributed to it and the other issues I have.

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 ปีที่แล้ว +1

      I don’t know! But I sure am glad you made it through! ❤️

    • @user-cu3xn4xj3i
      @user-cu3xn4xj3i 2 ปีที่แล้ว

      @@AdventureswithCPAP Yes! Thank you! I am subscribing to your channel. Thank you so much Dennis and God bless you.

  • @kerrib1474
    @kerrib1474 6 หลายเดือนก่อน

    Wow. I was on pins and needles with your story. Thanks for sharing I can tell this is hard for you to talk about. ,

  • @adinelewis2164
    @adinelewis2164 3 หลายเดือนก่อน +2

    This this this!!!! I am in tears!!!!!! Every thing you have described is what I have. The constant cyst on the tailbone, the acid reflux even with water, the forgetfulness. The everything, the inflammation in the body. I get my auto APAP tomorrow and you give me hope!!!!! I am exhausted and I am so tired of being sick and tired. Thank you soooooooo much for this video. For the first time I don’t feel alone.

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 หลายเดือนก่อน

      You've got this, precious soul! You will persist and learn how to make CPAP work for you and it will make your life better. Please stick with it!

  • @mattingly1217
    @mattingly1217 ปีที่แล้ว +3

    Dude! I had the panic attacks too! In the middle of the night! Cpap definitely helped me too!

    • @ktburger659
      @ktburger659 10 หลายเดือนก่อน +1

      Me too, I called them my night terrors. I would wake up thinking I was about to die.

    • @Boababa-fn3mr
      @Boababa-fn3mr 12 วันที่ผ่านมา +2

      Classic OSA symptom.

  • @rhondahunt9888
    @rhondahunt9888 8 หลายเดือนก่อน

    Re your episodes, you lacked oxygen, right? Amazing you survived all thar time without CPAP!
    Glad you finally listened to someone!

  • @karynmayer9083
    @karynmayer9083 หลายเดือนก่อน +1

    Yup. Yup. And Yup! I no longer have GERD either. One year in and i haven't perfected my mask yet, But that GERD IS GONE. It was gone in the first couple months. One day i just suddenly realized it. We will see what my next colonoscopy brings.
    Thank you so much for sharing. I too have apoxia (i drop to 77) and i would wake up disoriented also. That has also not happened since CPAP. I also had inflammatory markers in my blood. I haven't had a new yest done yet so i can't say if that dropped or not. Just wanted to ask if you had swelling in face, hands and ankles/feet? Mine is still there.

  • @kingsqueak2221
    @kingsqueak2221 5 หลายเดือนก่อน +1

    Thanks for this video, so many parallels. I just had a sleep study that came back with fairly bad results, so I'm just looking for what people have experienced. I'm going on almost 20 years of not knowing WTF is wrong with me and I'm hoping that it was just this simple.
    The cognitive issues you talked about, black outs of periods of relatively recent time, even a similar death of my mother at almost the same time period, same issues patchy recollection of things during that period. Eerie parallels. I can watch a movie and really not recall what was in it. I used to have an almost photographic recall.
    I've been screened and tested for many things, and really it's never come back with anything conclusive. If this is what my problem is, it will be such a relief.

    • @AdventureswithCPAP
      @AdventureswithCPAP  5 หลายเดือนก่อน

      I wish all the best for you! Please keep me updated!

    • @kingsqueak2221
      @kingsqueak2221 5 หลายเดือนก่อน

      @@AdventureswithCPAP If it's as "simple" as this, I will surely update. I'm still in process to get the equipment.

    • @AdventureswithCPAP
      @AdventureswithCPAP  5 หลายเดือนก่อน

      @@kingsqueak2221 , wooooo! No, it's not simple at all. Finding the right mask is a journey. Getting used to the therapy can be a challenge. You need to decide right now whether you're going to make it work or not. If you decide it's going to work for you, it will. But that doesn't mean it'll be simple! Make sure to watch this video, too:
      th-cam.com/video/gejYbiBQ0CI/w-d-xo.htmlsi=x0DrXmqxGB2e_59i

    • @kingsqueak2221
      @kingsqueak2221 5 หลายเดือนก่อน

      @@AdventureswithCPAP yup just meant simple to fix the misery level

    • @kingsqueak2221
      @kingsqueak2221 5 หลายเดือนก่อน

      @@AdventureswithCPAP Actually while you're here, I have a beard and moustache too and my nose is badly broken so I'm looking at the Airfit F30i as one option.
      Watching the vid you linked now.

  • @couchrou
    @couchrou 3 หลายเดือนก่อน

    Wish I had found your videos months ago. Been on an autoset for a month.

  • @ssiewnad
    @ssiewnad 2 ปีที่แล้ว

    Thanks for the video.... I just had my 1st visit with my sleep doctor waiting for my insurance to clear the sleep study.

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 ปีที่แล้ว

      Let us know how it goes!
      So, what made you decide to get a sleep study? What's your story, Dan?

    • @ssiewnad
      @ssiewnad 2 ปีที่แล้ว

      @@AdventureswithCPAP I've been in denial for years regarding my poor sleep. At 66 I now find myself to tired to do the things I love to do. My wife is very happy that I'm finally acknowledging that I need help.

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 ปีที่แล้ว +3

      I'm happy, too!
      I'm hoping to get a video done soon about the stuff I wish I had known when I first started CPAP. It can be quite a lifestyle change. But it only took me a few weeks to adapt.
      The number one bit of advice I can give you: make up your mind that this is going to work for you. Be stubborn. Be determined. Realize that the first mask they give you is probably going to suck.
      Every person is different in terms of what kinds of masks work and what kinds don't. The first mask they gave me was a violation of my rights. My wife thinks it's okay. Her favorite mask just doesn't work for me at all.
      Even different kinds of nasal pillows can be accepted differently by different people. I think the Philips DreamWear gel nasal pillows are horrifically awful. My wife thinks they're just fine. I, meanwhile, absolutely adore the DreamWear silicone nasal cushions. My wife thinks they're evil.
      One thing your DME might not tell you -- mine didn't -- is that for the first 30 days, you can swap out masks as many times as you want, until you find one that works for you. All I can say for sure is that the first mask you try probably isn't going to be right for you. But keep trying! You'll find one you love, I promise!

  • @sylviafisher5973
    @sylviafisher5973 4 หลายเดือนก่อน

    I have used a cpap machine since 2006 o love it ,I’m more awake in the mornings and no longer wake up with headaches mine is a full face mask as I. A mouth breather

  • @kaiandtyler
    @kaiandtyler หลายเดือนก่อน +1

    My mum has a CPAP and before she got diagnosed I remember being terrified by her snoring and lack of breathing in between them. When she got her machine it was so much better. Then I met my husband 11 years ago and his snoring was VERY similar. Especially with the lack of breathing in between. I’d sit up at night in a panic that he was just not going to be alive in the morning if I didn’t watch him, turn him over, etc. But no doctor would listen. His mum had been trying to get him seen by a sleep specialist since before he was 10 but nope. It was a sinus issue apparently. No sleep study.
    Last year, he ended up hospitalised for severe pneumonia. He was in ICU for 18 days. Hospital for 6 weeks in total. On the 2nd or 3rd day of ICU I told the doctor’s they needed to check him for sleep apnoea. They looked at me a bit strangely - after all he literally had pneumonia with severe complications, it wasn’t the priority (which I agreed with) but I still kept on about it and towards the end of his stay they actually said yes, perhaps he does.
    He got put on a sleep study shortly after leaving hospital, to be done at home. Within a very short space of time he got his machine. He was stopping breathing I think somewhere between 70 and 90 times an HOUR. He was literally falling asleep all through the day before this.
    Don’t get me wrong, he’s still not well due to other chronic health issues, but he’s actually able to breathe at night now. He’s waking up and not falling straight back to sleep EVERY day. He asked me the other day does he still snore and I said yes. He looked deflated but I explained yes he still snores, but he snores like a little baby snores so quietly you can barely hear it. I am no longer terrified he is going to die in his sleep because he isn’t breathing. Honestly I heard what your wife says and yes. 100% I agree with her. It makes such a difference.
    So glad to hear you got your sleep therapy on track, and I hope all continues to improve for you ❤

    • @kaiandtyler
      @kaiandtyler หลายเดือนก่อน

      Sorry for the comment essay 😂

  • @cindytaylor6196
    @cindytaylor6196 25 วันที่ผ่านมา +1

    I have been on CPAP for about 25 years. I've documented several benefits. First was more energy and able to take larger breaths during the day. Second was the number of colds per year. I use to have about 3 or 4 but since I've been on CPAP with humidifer, I may only have 1 per year and many years...no colds. Just curious, if anyone else has experienced more gas by being on CPAP. That has been one drawback for me and it started when I started CPAP. Small price to pay compared to the benefits I've received. I take my CPAP everywhere I travel and won't sleep without it. One of my son's and my brother are also on CPAP and swear by it as well. I appreciate your directness and sharing of your experiences with CPAP. I hope that you are able to address all your health concerns quickly.

    • @DazzlingDanaOfficial
      @DazzlingDanaOfficial 23 วันที่ผ่านมา +2

      "Aerophagia, or air swallowing, is a common side effect of continuous positive airway pressure (CPAP) therapy that can cause painful abdominal bloating, belching, and flatulence. It occurs when the muscles in the esophagus relax during sleep, allowing air from the CPAP machine to be pushed into the stomach."

  • @lifeofmichael
    @lifeofmichael ปีที่แล้ว +2

    Mine was 84 times an hour :( I'm 3 weeks into my cpap and still getting used to it but I still seem to wake up throughout the night.

  • @RunningNotStopping
    @RunningNotStopping 6 หลายเดือนก่อน

    Love you personality. Ps sorry ive commented a lot

  • @Vincentorix
    @Vincentorix 10 หลายเดือนก่อน

    I think the human body is such a wonderful sophisticated machine, and given the right circumstances ( like a good night sleep) will heal itself.

  • @54lex
    @54lex วันที่ผ่านมา

    Hi Dennis during my last colonoscopy the nurse told me that i stopped breathing three times while on the table. Freaked the doctor out . Had to put an oxygen mask on me. That was my wake up call. But I’m starting over again next week. Wish me well.

  • @randymyers8600
    @randymyers8600 10 หลายเดือนก่อน

    I know this video is 2 years old, but I just wanted to let you know that I experienced extreme acid reflux before I was diagnosed with sleep apnea in the late 90's. Since going on CPAP, I have not had one episode since. My theory is I was straining so hard to breathe that it was siphoning the contents out of my stomach. No problems with that now after all these years. I went to the doctor for my sleep apnea when I started falling asleep going around I-285 in Atlanta at 70 mph. I can't live without a CPAP machine. No doubt in my mind.

  • @Commander_Aze
    @Commander_Aze 4 หลายเดือนก่อน +1

    So I was diagnosed with 86 events per hour. I failed cpap, tried the mouthpiece and now am back on Bipap which i find far easier than cpap as the pressure support really helps breath, I did notice immediately a change in energy went from tired at lunch and wanting to take a nap to energy til bed time. its insane. my sleep study, showed I was not getting the O2 consistent drops into the 60s and 70% range which would lead to waking up many times during the night and an overall groggy feeling whenever i would wake up. 2 weeks in my staff noticed the same mood changes and everything.
    the Crohns side of things I was diagnosed 10 years ago but went untreated. I had a GI doc take another look recently its gone. which we both know Crohns has no cure so that clearly wasnt it

  • @youneshamache3314
    @youneshamache3314 2 หลายเดือนก่อน +2

    2 months ago I woke up at 5 a.m with heart palpitations it was awfull and severe something I never experienced went to the hospital and I was diagnosed with atriale fibrillation at only 27yo, doctors said it was because of obesity and blood pressure, but I was not convinced I knew that something went wrong with my sleep as I only get the symptomes while sleeping, so what I l did is recording myself sleeping at night, and as I woke up I was chocked I was snoring as loud as a truck, and my breath stops for secs and sometimes for 2 min, that same day I went to see a sleep apnea specialist I took the so called test and it turned out that I was having 43 apnea per hour on average, since I was put on cpap and things went much better thanks god ! But I have to live with some consequences for the rest of my life as I didn't get my machine sooner!

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 หลายเดือนก่อน +1

      But think of all the new consequences you've staved off! Seriously, there's no doubt in my mind I should have been on CPAP from the age of 16 or so. But even starting as late as I did has had HYOOGE benefits for my health.

    • @youneshamache3314
      @youneshamache3314 2 หลายเดือนก่อน +2

      @@AdventureswithCPAP I have to agree with that, but for me the main reason why I never though that I had sleep apnea is because I'm single and I sleep alone and I never knew that I was snoring that bad, some members of my family told me that I was but I didn't realise how severe my apnea was untill I recorded myself, and what makes it even worse is the fact that I never felt sleepy or tired during the day, and I drive for miles safely without any troubles, even the doctor was confused and said that probably your body got used to that ! So you no longer know how it really feels to be fully awake ! But anyway the cpap makes me more comfortable, atleast now I know that I can sleep safely without any risk ! Thank you so much for the video, it's always nice to hear from other people experiences !

  • @michaelbattista1334
    @michaelbattista1334 5 หลายเดือนก่อน

    I just started on CPAP. I’m sleeping better but now I wake up groggy. Hopefully it passes.

  • @gillianmendez9488
    @gillianmendez9488 ปีที่แล้ว

    Hi I just started watching some of your videos just recently got my CPAP! the videos definitely help but I didn’t really come to comment about that. I came to comment about the last thing you said about forgetting Who you are. Not meaning to scare you but this sounds a lot like what happens to people that get abducted by aliens it’s worth having a look into usually people except the fact that they will be abducted the rest of their life and it kind of gives some answers.

  • @rhondahunt9888
    @rhondahunt9888 8 หลายเดือนก่อน

    Also i can imagine the acid reflux could cause lots of other health issues to the hiney; gastrointestinal issues. (I like the word hiney for butt).
    I wish i had gone into medical profession but i’d still say hiney, haha.
    You and your wife take care! Half your battle is won!

  • @jkmjemmadesigns5553
    @jkmjemmadesigns5553 4 หลายเดือนก่อน +1

    Respiration exchange is necessary for the cleansing and building of the system...😂

  • @easylonger
    @easylonger 2 วันที่ผ่านมา

    Great video!!

  • @jeff-73
    @jeff-73 2 ปีที่แล้ว

    What are the dangers of falling asleep during the day? (assuming it is safe to do so) ? Not doubting you. Also, you must have a day job in tv or radio. If you don’t you should because you would be very successful. Your voice and speaking ability is off the charts cool. thanks for the vid.

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 ปีที่แล้ว +2

      I've always been told I have a face for radio. 🤣
      Seriously, though, I work in print journalism, because I've always been too shy for anything else.
      I committed to and abandoned the idea of starting this channel numerous times over the course of many months, because the thought of seeing or hearing myself on a regular basis filled me with panic. I eventually sucked it up and did my best to get over my crippling shyness because I saw the need to normalize CPAP and discuss a lot of the misunderstood particulars. I'm also hoping the comments section develops into a community where people aren't afraid to ask questions that they may be afraid to ask elsewhere.
      So, yeah. No. Broadcast journalism is not in my nature. It's absolutely contrary to it. I started this channel because I felt someone *had* to. And that's not to take away from the excellent work that Jason and Nick already do on TH-cam, but I kinda feel like we need more normal people -- not related in any way to the sleep medicine industry -- discussing their personal experiences and guiding newbs on this journey.

  • @maurylehane5059
    @maurylehane5059 หลายเดือนก่อน

    I Don't know what to do myself, I have sleep apnea and tried cpap, the DME ended up reclaiming the cpap machine because I was not using it often enough, I tried and tried but had serious problems actually getting to sleep with it. you see i am ADHD and have a real problem with "comfort" i have trouble wearing clothes I am not used to, trouble sleeping in beds I am not used to, and I sure as heck was not used to sleeping with an apparatus on my face. But I believe in the treatment and I want to be better.

    • @AdventureswithCPAP
      @AdventureswithCPAP  หลายเดือนก่อน +1

      I so feel you on that, Maury! I'm autistic. I cannot wear shirts with tags in them. I've stopped reading books before because I couldn't stand the texture of the cover. Believe me when I say: I get it. I do. It's a real issue and it has to be pushed through. I hope you get another chance.

  • @blairakana9984
    @blairakana9984 หลายเดือนก่อน

    I could not stand the mask on my face at first and I would rip the mask off in one minute and then I tried again the next night for five minutes and rip it off, and I kept trying it every night and it led up to one hour, and then two hours and then four hours and then the whole night of eight hours. You just have to keep trying it until you get comfortable and you’re gonna love it and you’ll finally get good sleep without the snoring and gasping for air.

  • @giannipetrocelli472
    @giannipetrocelli472 10 หลายเดือนก่อน

    Hi Dennis, I decided to see a doctor for my sleep apnea. I dont snore that loud but I feel that something is wrong with how I feel during the day. Sometimes I am full of energy... and other days I feel like I have parked a truck on my chest. Now I denied always the Idea of a cpap. Can you tell me how It feels when air will be pressed in your lungs? This is the scariest thing for me... Thank you and thank you sharing your experiences. I want my life back and feel good. Life is wonderful but only if you feel good ❤

    • @AdventureswithCPAP
      @AdventureswithCPAP  10 หลายเดือนก่อน +1

      I am not going to sugarcoat it for ya, friend -- the first time, it's unnerving. Seriously unnerving. And then after a few minutes the sensation completely disappears. But I've developed a breathing technique to deal with that initial few minutes of unease! And as soon as I'm physically capable, I'm gonna make a video about it!

    • @giannipetrocelli472
      @giannipetrocelli472 10 หลายเดือนก่อน

      @@AdventureswithCPAP thank you Dennis. I immagine that its not easy but hope to get used to it fast.

  • @AngieFromCanada
    @AngieFromCanada 17 วันที่ผ่านมา

    I wish my titration test was that successful! They said I have Severe Sleep APnea and I have a BiLevel CPAP but I haven't gotten the best sleep from it as my mask leaks and I keep waking up. My AHI I was told is 85 before they got me the CPAP.

  • @Bidenvoterguy
    @Bidenvoterguy 5 หลายเดือนก่อน

    Im a 5 ft 10 275 lb guy
    But even in college i snored
    I weighed 170 then in 2004
    Got.my cpap last may
    Love it
    I have a resmed airsense 10

  • @starriderstudios
    @starriderstudios 3 หลายเดือนก่อน

    Thanks

  • @NYHalfassprepper
    @NYHalfassprepper 3 ปีที่แล้ว +1

    On the GERD if you have to take something use Famotodine instead of Nexium. Nexium has been linked to many problems.

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 ปีที่แล้ว +1

      I'm not taking anything anymore! I could seriously eat Carolina Ghost Peppers doused in nuclear waste now and not get acid reflux. It's amazing.

    • @NYHalfassprepper
      @NYHalfassprepper 3 ปีที่แล้ว

      @@AdventureswithCPAP I know, I watched the whole video, posting for the benefit of the folks that "find" your channel like I did. I have the dreaded hiatal hernia. I will admit the reflux got much better after cpap, as well as a lot of other nagging things.

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 ปีที่แล้ว +1

      Ugh. I hope it gets better! Nothing fixed mine other than CPAP. Heck, even Nexium and Prilosec did little for me (this was before I knew about the health risks involved with both.)

    • @tarasnow-burch7203
      @tarasnow-burch7203 2 ปีที่แล้ว +1

      I can only hope that someday my GERD will go away. Nearly 6 months on cpap and taking famotodine 2x daily. Still no relief. I have had two endoscopies which found several ulcers and a stomach infection. Ended up having my gall bladder removed. In recovery they ended up giving me cpr and still sent me home the same night. I wish I had known about the long term effects of having untreated apnea. It took me 11 years to finally be seen.

  • @400_billion_suns
    @400_billion_suns 2 ปีที่แล้ว

    Hi there, really glad to hear of the ways things have improved for you! There were several years in my dad's life where I could not talk to him for more than about 30 seconds (no exaggeration) before his eyes would get heavy and he'd nod off. He finally had a sleep study and has been on a CPAP ever since. It made a *huge* difference in his alertness as well as his personality. That was about 20 years ago. Unfortunately the sleep study was partly prompted by a heart arrhythmia that still affects him. I can't help but wonder if the heart arrhythmia was caused by his many years of severe, untreated sleep apnea.
    Anyway, there must be something genetic to it, because my brother and I both have it too (and it's not weight related). As much as I want to pretend I don't have to deal with it, I guess this is just the hand we've been dealt! PS -- I too have had unsolvable reflux problems since childhood, which are significantly and noticeably improved with the CPAP. I just assumed it was due to less pressure on my abdomen when my diaphragm isn't working so hard to breathe... When I don't use the CPAP, the first difference I notice in the morning is that my lungs mildly ache, sort of like the sensation when you exercise in cold weather.

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 ปีที่แล้ว +1

      I'm not a doctor, obviously, but I think the acid reflux may be a product of inflammation!
      I've recently started to notice that my arthritis is getting better since I started CPAP. It's funny how we treat all of these disparate symptoms as unrelated, when -- as is the case with us -- there's one root cause.

  • @davidmccollough9172
    @davidmccollough9172 ปีที่แล้ว

    Pops did it for me..."you're not as scratchy as you use to be and you seem to be in a better mood all the time"😂😂😂

  • @tracytinker
    @tracytinker 3 หลายเดือนก่อน

    I also have sleep apnea. I started snoring after my second Son was born. I was not any larger than I was previous to pregnancys. 5'4" 120lbs. My Husband would wake me us mad as hell because he couldn't get any sleep and storm off to the couch. A couple years later (like you) I went for the study. I was suffering from anxiety, depression, recent loss of my Mother. My Psyc told me not to take my meds that night so they could get correct report. WELL, it was horrible. I suffer from anxiety and I in a hospital with strangers watching me with cameras. Hooked up to all that crap. If I needed to use the bathroom I had to talk to them. They come in and unhook you and all the wires and cords and you carry all of that crap with you. Their was a copper wire thing like upside down bull horns under my nose and was constantly poking and hurting me. They had told me we will hook you up and you sleep as long as you need to. I thought AHHHH no 5:30am to get ready for work, no kids wanting breakfast. OH NO. They were in there at 6:00am yanking crap off of me and shoving me out the door. I never went to sleep because I didn't have the anxiety meds to help me sleep. They said "well you never got out of the first stage" Yea NO SHIT. I went home and slept all day. They then came to my house to give me the machine set everything up la la la. They had no idea what setting I needed because the study was not completed. The guy just said well Ill put it on blah and see how that works. I can see if your body is starving for oxygen it probably would get inflamed. I also have three autoimmune dieses. I take imunesuppresants (chemo) to try to get my body to stop destroying itself like yours did. I told them I didn't want to dive right into biologics. Wanted to try diet and lifestyle change first before $5000 a month for one shot that my insurance wont pay for. I'm on disability because of all my issues. Something must be wrong. I'm calling to do another study tomarrow. THANK YOU.

    • @AdventureswithCPAP
      @AdventureswithCPAP  3 หลายเดือนก่อน

      Get your thyroid levels checked! Randomly, late last summer, my doc checked my TSH and did some further testing and discovered that I have Hashimoto's disease. I started levothyroxine and have lost 70 lbs since September!
      Sadly, that hasn't reduced my required pressures a bit, so it looks like I'm stuck with CPAP for life. But I've gotten so used to it I don't even notice!

  • @Flannery164
    @Flannery164 8 หลายเดือนก่อน

    Going on 4th month of using a ASV machine. I just cannot get my mask to stop leaking and I'm losing hope. Can't adjust my cpap and need to see Dr for any issue I'm having.

  • @whootyasmr3956
    @whootyasmr3956 4 หลายเดือนก่อน

    Waiting to hear back from my doctor. But the results showed that I have 56 episodes and that I have severe sleep apnea. I’m ready for my life to change. Is it really that big of a difference? How fast did you notice a difference? I’m worried about not finding a mask that makes me comfortable to sleep because I tend to be a stomach sleeper

    • @AdventureswithCPAP
      @AdventureswithCPAP  4 หลายเดือนก่อน

      For me, it took a couple weeks to adjust. As soon as I got my AHI consistently below 5, it was immediate and life-changing.

    • @whootyasmr3956
      @whootyasmr3956 4 หลายเดือนก่อน

      5 per hour or the whole night?@@AdventureswithCPAP

  • @lauragoble7314
    @lauragoble7314 หลายเดือนก่อน

    I was just diagnosed at 62 events per hour... any advice? I had an anesthesiologist plead with me after surgery to get a study. Titration test tomorrow!

    • @AdventureswithCPAP
      @AdventureswithCPAP  หลายเดือนก่อน

      Good luck with your titration! Don't be afraid to let them know if the mask they've given you doesn't work. You might have a choice between masks; you might not. But don't be afraid to ask!
      If you have a panic attack the first time they turn on the machine, the way I did, just try your best to breathe through it. If you're using a nasal mask of some sort, inhale deeply through your nose them exhale forcefully through your mouth to get rid of that CO2. If you feel like you're not getting enough oxygen, that's probably not the case! You're just not burning off CO2 fast enough. So that in-through-nose-out-through-the-mouth technique can get you breathing right much more quickly.
      Let us know how your titration goes!

  • @mariacampbell581
    @mariacampbell581 ปีที่แล้ว +1

    so you live in Mr Rogers house? I had to start the video over because I was laughing so hard

  • @ssiewnad
    @ssiewnad 2 ปีที่แล้ว

    Well I had my sleep study this weekend and after 2.5 hours they came back in and put me on the mask. I tolerated the cpap for the next 5 hours with no issues. The technician shared that he started me on 4 cm h2o and finished at 14 cm h2o. I'm now waiting for my Doctor to analyze the data and call me in. Being new to this I would appreciate any guidance in what to ask when I have me meeting.

    • @AdventureswithCPAP
      @AdventureswithCPAP  2 ปีที่แล้ว +1

      First thing first, I would ask if you could get a ResMed machine.
      Second, make sure to get a copy of your prescription, and hope that it’s a non-branded prescription. My sleep doctor, for example, specially wrote me a script for a Philips machine. So it was difficult for me to get a script for anything else.
      Also, the prescription will ideally read “mask of patient’s choice.” That way, if you need to try different masks, you’re free to do so without any fuss. To be clear, you CAN assemble your own mask from parts, which don’t require a prescription. But that really only applies to the modular mask systems. I’ll be doing a video about masks this week, hopefully before you need more info. If I don’t make in time, I’m so sorry!

    • @af1966
      @af1966 2 ปีที่แล้ว +1

      @@AdventureswithCPAP Also ask for a lifetime prescription

  • @annabell9148
    @annabell9148 4 หลายเดือนก่อน +1

    Mse expander look at up. It open your maxillofacial. For more air way

  • @danf2
    @danf2 5 หลายเดือนก่อน

    I think I grew up on the same street you lived on in Florida? The name is familiar.