I got rejected by the Undiagnosed Disease Network

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  • เผยแพร่เมื่อ 8 พ.ย. 2024

ความคิดเห็น • 51

  • @bodyodorsufferers3952
    @bodyodorsufferers3952  8 หลายเดือนก่อน +6

    Greetings, even though I got rejected from the UDN maybe one of you will have a better chance than I did at getting accepted. Here is the link to apply (undiagnosed.hms.harvard.edu/apply/)

    • @princeprince9227
      @princeprince9227 7 หลายเดือนก่อน

      How are your kidneys?

    • @Hpe4ch
      @Hpe4ch 7 หลายเดือนก่อน +2

      We could all buy some land somewhere, work remote jobs, and help each other find a cure.

    • @Bunny62893
      @Bunny62893 7 หลายเดือนก่อน

      Can you please try again 🥺 dear because most of people like us are either jobless or poor due to condition and they don't got any help.
      I want you to go to gastroenterologist and to do colonoscopy because reason is something related to food digestion only. No other reason breakdown of food only inside body.

  • @tsiecoseitebaleng9461
    @tsiecoseitebaleng9461 8 หลายเดือนก่อน +14

    I know the strength we have and we will not loose hope..

  • @fahimarahman-r8z
    @fahimarahman-r8z 8 หลายเดือนก่อน +10

    Looking forward to the day this becomes something contagious! That’s when they will start looking for an answer

  • @Noura56868
    @Noura56868 8 หลายเดือนก่อน +20

    Honestly when I comes to family can't smell us is not true. They can smell us. They just don't want us to feel bad. Some people have sinus issues; they can't smell things like others people do. Others than that people with normal sense can smell us.

    • @Hpe4ch
      @Hpe4ch 8 หลายเดือนก่อน

      Depends on what kind of smell you have but it really is dependent on the person. In fact I smelled some other people who had tmau and it was very obvious, but those same people could not smell me and even one of their partners never smelled me.

    • @WilsonCarry-jk9zz
      @WilsonCarry-jk9zz 8 หลายเดือนก่อน +1

      I have had my body odor for 33yrs, not one of the 30doctors and specialists, my family and some friends state they can not smell me. Some people really can’t not smell us. The odor perception does not recognize the odor as foul or offensive, be use the odor is there. Yes some people lie but the fact is, some people do not smell us, period. Everyone is not lied

    • @braulioalvarez814
      @braulioalvarez814 8 หลายเดือนก่อน +2

      Before I had my smell problem, my brother had it. I could not smell him most of the time and told him so. He wouldn’t believe me and asking me if I was lying to tell him to not make him feel bad. Now I can smell him.

  • @NT-qb7td
    @NT-qb7td 8 หลายเดือนก่อน +13

    I am considering seeing a witch to have this curse broken because doctors will never figure out what’s wrong with me. I was hoping it wouldn’t come to this because I don’t want to go down this path but I don’t have anything to lose at this point.

    • @junebugtrippin
      @junebugtrippin 8 หลายเดือนก่อน +5

      Don't do it

    • @renata6534
      @renata6534 8 หลายเดือนก่อน

      I understand where you're coming from, this illness is very demonic. It brings out evil and cruel spirits out of people, which brings you down. But consulting a witch, who commonly have some of the most evil spirits connected to them is not a good idea. Drastic measures can have drastic consequences. Instead of doing this you should listen to stories and sermons about suffering, sickness, and healing from the bible. You'll be able to better understand why you're being faced with this challenge in life. You will learn how to endure until God answers your cries and prayers for healing. I recommend Joel Osteen,

    • @UNITED-yx9ko
      @UNITED-yx9ko 7 หลายเดือนก่อน

      My Tmau odor was very bad that I was sitting alone in the office without have any friend then I have been suffering this Tmau odor (Body odor) for the almost 9 years. I tired everything to make sure I get cure permanently from this problem and everything I did was in vein. Until a friend of mine refer me to Dr.Auchi on TH-cam channel we’re I order effective herbal supplement for my Tmau odor after using the herbal medicine I was cured permanently from Tmau odor and there’s no longer body odor smell symptoms again…..

    • @tatrader7665
      @tatrader7665 หลายเดือนก่อน

      @@junebugtrippinwhy?

    • @junebugtrippin
      @junebugtrippin หลายเดือนก่อน

      @@tatrader7665 because it’s demonic

  • @Bunny62893
    @Bunny62893 8 หลายเดือนก่อน +15

    My roommate once said it smell like food is getting rotting inside something it's smell like that.
    Actually at my home my parents n nephew said I farted but actually I didn't, many times
    actually something is fermenting inside gut.
    According to me a enzyme or juices inside stomach is not active and due to this it's happening.

    • @WilsonCarry-jk9zz
      @WilsonCarry-jk9zz 8 หลายเดือนก่อน +3

      We have faulty enzymes and our digestive tract is not breaking our food down properly, hence we have body odor

    • @Bunny62893
      @Bunny62893 7 หลายเดือนก่อน

      @@MonaLisa-ww3ys I'm from Maharashtra India and you??? If possible can u share ur mail id

    • @NicoNoir-cf6iq
      @NicoNoir-cf6iq 7 หลายเดือนก่อน +1

      ​@@WilsonCarry-jk9zzI wouldn't even say it's faulty enzymes, we just don't have ENOUGH digestive enzymes, prebiotics, probiotics and fiber to sweep out waste. This is why I keep saying we need to do colonics. Not forever, just to get our gut back absorbing nutrients properly. None of us are holding ourselves accountable, but I'll be the first to admit that we've done this to ourselves...our bodies didn't just turn on us. I'm pretty sure that the majority of the people going through any of these conditions are not getting 34 or more grams of fiber a day and they were eating however they wanted with no regard to their health before this condition came along.

    • @Bunny62893
      @Bunny62893 7 หลายเดือนก่อน +1

      Guys please please i request you to speak out and tell what is working for you and what is not
      Because there's no one going to understand except us only we have to construct things for ourselves so reply on every comments

    • @NicoNoir-cf6iq
      @NicoNoir-cf6iq 7 หลายเดือนก่อน

      @@Bunny62893 I'm Nicole, I did an interview a few weeks ago. Since the interview, I have been taking fiber, eating foods with prebiotics, probiotics and digestive enzymes while continuing kombucha. I haven't started kefir yet, but I will and I will also supplement with prebiotics, probiotics and digestive enzymes. I can say that as long as I am taking fiber morning and night, my odor is minimal. My theory is once we remove the waste (poop, yeast, parasites and heavy metals) we will get our lives back. You HAVE to be having three good/full bowel movements a day, not little balls of hard poop and not loose poop either. Take colon cleansers to get things moving but you HAVE to be drinking a minimum of half your body weight in water, high fiber, prebiotics, probiotics, digestive enzymes, exercise and replenish electrolytes as well EVERY day.

  • @ellahunt7612
    @ellahunt7612 8 หลายเดือนก่อน +8

    Good morning I am going through the same thing, people smell me but they tell everyone but me. I can smell me when I am sitting in my room after a hot flash . I all depends on what I eat, chicken is ok but mainly veggies help or if
    I just drink lots of water. I have chronic sinusitis so I really can't smell

    • @UNITED-yx9ko
      @UNITED-yx9ko 7 หลายเดือนก่อน

      My Tmau odor was very bad that I was sitting alone in the office without have any friend then I have been suffering this Tmau odor (Body odor) for the almost 9 years. I tired everything to make sure I get cure permanently from this problem and everything I did was in vein. Until a friend of mine refer me to Dr.Auchi on TH-cam channel we’re I order effective herbal supplement for my Tmau odor after using the herbal medicine I was cured permanently from Tmau odor and there’s no longer body odor smell symptoms again…..

  • @n3cacid117
    @n3cacid117 6 หลายเดือนก่อน +1

    Hey everyone I finally found out what’s wrong with me after all these years of suffering😭😭😭 I’m currently being diagnosed by the Ibs treatment center

    • @bodyodorsufferers3952
      @bodyodorsufferers3952  6 หลายเดือนก่อน

      That's good to know

    • @n3cacid117
      @n3cacid117 6 หลายเดือนก่อน

      @@bodyodorsufferers3952 why don’t you give them a try ?

  • @Noura56868
    @Noura56868 8 หลายเดือนก่อน +15

    Don't worry bro there people prefer investing in plastic surgery like bbl, face lift than real issue that high rate of suicide in America. This is sad honestly. They won't do it unless it like a pandemic.

    • @alexisgiselle
      @alexisgiselle 8 หลายเดือนก่อน +2

      Real facts

    • @UNITED-yx9ko
      @UNITED-yx9ko 7 หลายเดือนก่อน

      My Tmau odor was very bad that I was sitting alone in the office without have any friend then I have been suffering this Tmau odor (Body odor) for the almost 9 years. I tired everything to make sure I get cure permanently from this problem and everything I did was in vein. Until a friend of mine refer me to Dr.Auchi on TH-cam channel we’re I order effective herbal supplement for my Tmau odor after using the herbal medicine I was cured permanently from Tmau odor and there’s no longer body odor smell symptoms again…..

  • @8cj1ec
    @8cj1ec 7 หลายเดือนก่อน

    I hope you're doing okay. Maybe retry taking a urine test. I know you did the genetics test, but nothing is absolute and errors are prone to happening. Its absolutely brutal dealing with this, trust me I understand and know, ive been aware of this for about 12 years. I still battle with my emotions and self confidence. Its definitely not easy, but try your best to remain positive. Also kind of interesting our birthdays are like a week apart, im on the 14th of February, same year as well.

  • @andrejandrej9901
    @andrejandrej9901 7 หลายเดือนก่อน

    Metabolic and energy imbalance, characteristic of persons with DST, undoubtedly affects the nature of the course of various gastroenterological diseases. According to the literature, 90% of people with connective tissue dysplasia are diagnosed with markers of catabolic processes in connective tissue and signs of mitochondrial failure: a decrease in aerobic oxidative processes, the activity of mitochondrial enzymes and the predominance of anaerobic glycolysis processes [13]. The presence in patients with DST of a wide range of disorders of cellular energy metabolism in the form of a decrease in the activity of succinate dehydrogenase of peripheral blood lymphocytes, fasting hyperlactatemia, hyperuricemia [13] indicates disorders of cellular energy metabolism and undoubtedly affects the course of inflammatory and reparative processes. Thus, connective tissue dysplasia is not only a special structural organization of organs and the body as a whole, but also an altered metabolic and biochemical constitution of a person.

  • @americochirichiello861
    @americochirichiello861 7 หลายเดือนก่อน

    Take a gut test. The poop test to see if you’re missing any kind of bacteria in gut/ colon.

  • @laurenwalton-q2g
    @laurenwalton-q2g 7 หลายเดือนก่อน +1

    Have you ever thought about visiting a medical intuitive?

    • @bodyodorsufferers3952
      @bodyodorsufferers3952  7 หลายเดือนก่อน +1

      What exactly is a medical intuitive?

    • @laurenwalton-q2g
      @laurenwalton-q2g 7 หลายเดือนก่อน

      They are people who use their intuitive abilities to find the cause of an illness. Check out youtube videos of Mona Lisa Schulz, Katie Beecher and Julie Lewin.
      I had a reading with Mona Lisa Schulz a few years ago because of bb and body odour issues (I have the exact same symptoms as you (I also tested negative for TMAU).
      She wasn't able to find the root cause but she did bring some clarity: She told me she saw a genetic component to the illness, bacteria on the lungs, two different liver enzymes that were not working properly, gut motility issues and 'crap' in the colon that she couldn't identify. She also told me she saw a red spot between my stomach and oesophagus (i have a small hiatus hernia) All amazingly accurate. My theory is that the FM03 enzyme isn't the only oxidising enzyme. I think we may have a fault in one of the oxidising enzymes that are not yet recognised/researched.
      I thought I may suggest alternative healing methods to you because the medical field understands so little about the gut microbiome and digestion. The science isn't there yet. Please message me if you need any more info

  • @andrejandrej9901
    @andrejandrej9901 7 หลายเดือนก่อน

    Metabolic and energy imbalance, characteristic of persons with DST, undoubtedly affects the nature of the course of various gastroenterological diseases. According to the literature, 90% of people with connective tissue dysplasia are diagnosed with markers of catabolic processes in connective tissue and signs of mitochondrial failure: a decrease in aerobic oxidative processes, the activity of mitochondrial enzymes and the predominance of anaerobic glycolysis processes [13]. The presence in patients with DST of a wide range of disorders of cellular energy metabolism in the form of a decrease in the activity of succinate dehydrogenase of peripheral blood lymphocytes, fasting hyperlactatemia, hyperuricemia [13] indicates disorders of cellular energy metabolism and undoubtedly affects the course of inflammatory and reparative processes. Thus, connective tissue dysplasia is not only a special structural organization of organs and the body as a whole, but also an altered metabolic and biochemical constitution of a person.