Dealing with ascites, Living with liver disease
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- เผยแพร่เมื่อ 2 ต.ค. 2024
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#alcoholic #aa #alcohol #alcoholfree #alcoholism #cirrhosis #liver #liverdisease #pancreatitis #aud #liverproblems #na
Thank you so much for your courage and for turning your nightmare into a lifesaving message. We love you LD! God bless you and Mrs. LD and the kids always ❤
LD is a warrior, always sharing and helping people!
Yes much love LD.
You are always so welcome! It's my pleasure! God bless ❤❤❤❤
You're a beautiful intelligent man❤
Wow! Thank you so much for saying that! God bless ❤❤❤
Dude you are helping so many. Bless you!
Thank you so much for saying that! God bless❤❤❤
Ron's whole body filled up... even scrotum...which was very painful for him. He had 4 parenthesis procedues over two years. Ron's chief cause of death was septic shock...he had a spontaneous bacterial peritoneal tear. Bcoz there was fecal matter in the fluid, they were unable to drain him. All this after parenthesis five days earlier. He never had tips procedure. Well presented LD!
I’m so sorry he had so many complications. I’m sorry for your loss 💚💚💚🙏🏼
I'm so sorry for all that you both went through... and I don't know if I ever sent you my condolences...I can't imagine your grief. So I'm so sorry for your loss. Sending love and prayers your way ❤❤
Doesn't make it a whole lot easier, but when he was having 1st parenthesis, the Dr. told us he had a year, and if he didn't have Life insurance, to hurry up and get it. He was furious with the staff and remained in denial. He blew off appointments all the time. I finally had to let go and let the chips fall where they may. I believe he's finally at peace, but he is so sadly missed. Thank you for your condolences.Rest well my friends!
@@RonsMom40-pu1en2gj4p you, too!! ❤️❤️❤️
Great vid. I am going to San Francisco tomorrow for my versaseal. I little nervous, but hopeful
You will be in my thoughts no doubt!! If u can pop back in tomorrow and let us know how you are. Many prayers for a smooth procedure.
Hugs
I’ll be thinking about u and saying prayers dear 🙏🏼💚
I'll be praying for you!! Know that you have friends here who are thinking about you!! ❤❤❤
Prayers and positive thoughts.
My thoughts and prayers are with you for success with the procedure ❤🙏
Very important message! And it's so good to hear it from someone who's gone through it. Obviously you're a friend to everyone here, but your videos really feel like a heart to heart conversation with a good friend. And when someone is going through scary things like this, the caring but honest and informative way you share this information is comforting. Thanks for another great video, LD! ❤❤❤😊
Thank you so much Amanda! Taking all the things I have been through and sharing them with everyone, I would hate to waste the opportunity! God bless ❤❤❤
@@liverdisease-qb6rk I understand that!! 😊❤️
LD great video. All accurate. There are videos on TH-cam of actual real paracentesis procedures. It’s not painful and you can see the patient get relief.
You are a great resource for ascites and liver problem information. Keep on keeping on.
Thank you so much brother! God bless 😊😊
Very timely message for me, LD. Why would this start to happen after almost two years (my situation)? 😢
Sending you lots of love ❤️
You aren’t alone hugs 🥰
I'm so sorry for what you're going through... Please go get checked out! There's just something going on that needs to be addressed. I'm sending you tons of prayers and a big hug. Know that you have friends who are thinking about you and wishing for you only the best ❤❤
@@amandaflaherty7528 thank you 😊
@@Kristen10-22 thank you 😊
Unfortunately, yes. It can happen anytime. Please go see a Dr and see what they say. There is obviously something going on that is causing it, and not trying to scare you, but it can be serious. Keep me posted on what you find out please! I am praying for you my friend! God bless❤
I agree with Lydia... again, thank you so much for what you're doing for people!! ☀🍊🌺🍀
You are so welcome! Thank you so much! God bless❤❤❤❤
Man that is such an awful thing to go through! I'm glad you were able to come out of that situation successfully. I've seen a video here on youtube showing a man with ascites, and apparently the process of draining the fluid/reducing abominal swelling can take several hours!! Hopefully you don't have to experience ascites again anytime soon! You're doing amazing work by making these videos and sharing this vital information! Thanks LD!! ❤
Thank you so much David!!!! I hope you are having a great day! God bless❤❤❤
I have a rare liver disease which lead to Cirrhosis . ascites is awful, I’m a petite lady at 51 and 110 lbs. Before I gots a TIPS shunt places I was having 6 liters drained out of my abdomen and 2 liters out of my lung every 6 days. I was also hospitalized from when the fluid got infected. I take diuretics 4x a day, low sodium diet. Also get Albumin IV.
Will do should be hopefully done by afternoon california tine
You ok crystal?
Sending prayers that your procedure goes well🙏
Also....Safe travels
I remember seeing your video about setting up for sleep, and it was basically whatI already do. I don’t know if I have ascites but likely. I’m in Canada and the doctors are trying to help with my liver disease but when I come in claiming I have these things they don’t seem to want to listen and everything takes forever. And they kinda seem to think I’m lying or just don’t want to deal with it, I don’t know. It’s weird. I’m trusting them as much as I can but I seem to keep getting worse waiting. Thank you for this video.
❤ prayers for you!❤
Thank you so much LD for posting this, i learned more about ascites that i needed to jear i have faith that it will eventually diminish over time, by following a lot of what i learned from you today, also i feel like i needed to hear the last bit about the effect it also has psychologically when it comes to being in public, made me tear up a bit 😅 thanks once again God bless you man
LD when you were septic did they take too much fluid off at once?
What caused the sepsis? (Infection in the blood)
I'm not sure Kristen. I think it came from them doing the needle, but I don't know for sure. Thank you for the question! God bless ❤
number 1
WTG Vinnie 🎉 enjoy your night xxxx
But who wants to be number 2?
@@Kristen10-22 Thanks Kristen you too!
Vinnie today you wear the golden wreath of Caesar!!
@@CraigFox-lt6lt Thanks, its nice to get lucky once in awhile.
I had my first paracentesis done in April and they drained 6 liters, followed by two rounds of Albumen via IV while in my recovery room. There's been some relief but they could definitely drain more. I hope to schedule my second one very soon. Ascites is no fun at all.
Great video. Really appreciate how articulate you are. Well done
Yikes! and OMG! thanks for sharing bro!
My LO is having ascites all the time! She gets paracentesis at least twice a month!!! No infection thank god! But no other answers. No pancreatitis. The doctors say it’s cirrhosis. Horrible! She is a small framed person so it it impossible to drain every bit of fluid because of the risk of puncturing the organs. It looks soooo painful as my LO says she only can lay on her back Only! Do you have any suggestions due to diet? Or giving some recipes ..?? I feel Horrible for Anyone with ascites
My LO is taking HIGH doses of both diuretics and fluid intake and sodium intake but ascites always comes back within days of parenthesis…has a dietitian but she definitely needs to be strict with shakes and protein 🥲 ascites is Absolutely torture
Hang in there. I know it's hard dealing with everything you're going through but you are doing great. Keep going.
Thank you! Will do! God bless ❤❤❤
Thanks so much explaining everything!
So sorry you and so many others have had to deal with ascites. Sounds absolutely terrible. Thanks for bringing awareness about the need to see a doctor. I’m sure that will help many! 👏👏❤️
Thank you Kathryn! I would hate to waste my experiences and not share them with others. Maybe, they will help someone out there who is going through this and aren't sure what's going wrong. I hope that these videos save someone's life! God bless ❤❤❤❤
Ascites was always my greatest fear!! Despite the tepid reassurance of Dr's, I'm almost certain I had it, and maybe still do to a small extent. I looked like the pictures, frightening,!! I still look like I'm "pregnant "
Wish they could just pull out 10cc and analyze the fluid.
I understand Craig. I'm really sorry that you are dealing with that. My advice would be to speak to your gp and see if they will refer you to a specialist. I would definitely get that checked if it's bothering you. Thank you for sharing! God bless❤❤❤❤
I've suffered with ascites for over 5 years. You are so right about it being the worst part of cirrhosis. Being normally a petite woman, it's embarrassing to appear pregnant all the time (especially being 65) and not wanting to go out or fitting in most of your clothes. I've been on diuretics for a long time, and it helps a bit, and have had numerous paracentesis procedures. I'm considering asking for a TIPS procedure, but scared about the possible dangers involved. Thank you LD for your advice and helping others who are dealing with this.
I’m sorry you’ve been dealing with this for so long. Thinking of you. We are all so blessed to have each other.
I had ascites many years ago. Barley grass juice, celery juice,green juice got me out. Along with garlic and colloidal silver.
Tell me more about
Thumbs Up 👍 and shared out.❤
Thank you Cindy! I sent you a message with my email. I hope that you are ok. God bless❤❤❤❤
@@liverdisease-qb6rk Hi LD! I didn’t receive your email but I will let you know here. I just got out of the hospital yesterday. I had to be rushed to the hospital last week and I had to have emergency surgery to remove my gallbladder and to clear out the bile ducts! I am in tremendous pain right now with fever so I’m not even out of the woods yet. I’m going to see my doctor tomorrow morning if I’m not better by then. If it gets too bad I’ll go back to the hospital today. I’m doing my best to recover but I am battling all this by myself alone. I’m only six days alcohol free but I’m Not tempted at all Today!!! It doesn’t solve anything! It Only creates even worse Problems! I literally almost died this week. Please keep me in your thoughts and prayers. Sending you lots of love and respect Always!!! I Will Overcome This!!! It’s just very very difficult and extremely painful right now.♥️🙏
Can you speak on how do you tell if you have ascites or if you're just chubby? Great video LD!
Best way to describe it, it's a pocket of air it's trapped..
Thanks for sharing!❤❤
You will know because it makes one look pregnant, also can swell the private areas and lower extremities. Can get get short of breath, fever and confusion/drowsiness 🙏🏼💚
@@Mmoose712 🌹
Thank you Angela! Will do! God bless ❤
Stay strong brother
You as well my friend! God bless 😊😊
One thing about the diet, especially nuts, it is really good for you if you don’t like protein shakes, but the issues is that they are very mineral dense, if you have weak kidney functions stay away or keep it low because it will put a lot of strain on it, which can cause kidney failures
I know someone who had a permanent drain put in. Do you?
I have one. It's very convenient for me as well as my doctor. It has its advantages. It's hard getting a shower though because of the dressing they put over the incision site to help prevent infection . Plus I am still unstable and have dizzy spells so I have to have help getting in and out. But this too will pass with time.
No, I do not. Thank you! I had a tips done. God bless ❤
Love you LD
Love you too Cheryl!!! God bless❤❤❤
Good video
Thank you!!!!❤❤❤❤❤ God bless
My iron is to high so protein shakes are hard to find any that doesn't have iron in it. I'm struggling. Any suggestions?
I wonder if the renal protein shakes are good for you. My dad had them
Talk to your doctor. Every time I see mine I flood him with my concerns and questions. That's what doctors are for and most times the will have an alternative medicine that you can take.
I'm not sure Sandra. I'm so sorry that you are going through this. I drink the muscle milk, I'm not sure if it has iron in it or not. Thank you! God bless ❤
I think sometimes you have to get rid of some blood. My nephew has that problem...
All derangement of cirrhosis is caused by portal hypertension.
Hi, love your channel, but I would like to know your name if I may. And, yes, wishing Cindy and Chrystal the best and saying a prayer. Thank you, Laura
LD I hope you don't mind me asking ! Has a liver transplant been an option for you ? My GI doctor told me I would not want to have one . Thank you you are so strong . Thank you for the hope you give so many to . God bless all . 💙❤️🙏
Hey Kent! No, it's not an option. I have too many clots in my portal vein. I have stints in there now, but I have spoken to the transplant team and they said no. I don't think I would want one anyway. Honestly, I caused this problem and would feel horrible taking a liver from someone else who didn't cause their problems. Thank you! God bless😊😊
I understand and yes I did this to myself as well .
@@liverdisease-qb6rkif this was an option for you, you would definitely deserve it. You have may caused this, but you turned your life around and I don’t think this was all your fault. I really believe that alcoholism is a type of disease. You are worth it . I don’t drink alcohol but I wouldn’t think twice about being a liver donor to an alcoholic that has stopped drinking.❤
It's been since February with me dealing with this. It's slowly getting better though. And yes! It's very unpleasant dealing with the pressure. Thanks for sharing sir.
I couldn’t keep my pants up due to a lack of b vitamin. No assatoll.
Thanks for sharing ♥️🫂🙏
Thank you for watching debra! God bless ❤❤❤❤
Thank you so much for addressing this issue LD, this has helped me a lot! I'm currently having to wear 4XL tops just to fit! I noticed people stare a lot at ascites more than someone who is overweight with body fat, i think they can tell its water and that it just dont look right due to the weird shape and the way your belly moves when walking! (tossing to and fro like waves on the ocean!) I will go back to my doc and try and suggest that I have ascites hopefully he will check me out properly the second time (docs are really unhelpful here in the UK!). I kinda knew it was ascites when I gained nearly 3stone in just a couple of weeks and also noticed when i laid flat that the fluid fell down into like bags on my left and right sides or would fill up like a bag on the side i laid on. what upsets me most is that i had no symptoms that something was seriously wrong until it was too late, you could call it a silent killer! My heart goes out to you for what you gone through, were here for you too! God bless buddy, always look forward to your videos. 😊👍🙏
You are so welcome and I am so sorry that you are dealing with this. I know exactly what you are going through, especially with people looking at you. Your belly is poking out and just like you said, you have to wear shirts that are soooo big just to be able to fit. I hope that the Dr's can help you! Keep me posted on what they say please! God bless❤❤❤❤
Why do I get nosebleeds when I vomit?
Glue/seal went good they were able to do all 6. In a little pain but should be all good tomorrow. Was a very long day. My fibroscan didn't come out too great have a lot of stiffness. I am just hoping to keep it there. I appreciate all your wonderful prayers. And please all pray for Cindy. We all need each other. Thank you Mr. LD for giving us this platform to support eachother
Praying for you Crystal
First
Way to go! 🎉
You get first a lot!!!!❤❤❤
@@liverdisease-qb6rk 😆♥️ i can’t tell u my secret 🤫
Happened to my father. Died of sepsis
I'm sorry to hear that. I'm so sorry for your loss. Thank you Gary! God bless❤