As a friend said to me, "Time changes nothing, Death changes everything." I believe this is where you are at the point in this video...I pray that you have found more comfort in these two years. Even just a little. God, please send comfort to this beautiful, grieving family. Amen and amen. Georgia Meloy Scott
+Michelle Meloy : Which God? Almighty one? "God, please send comfort to this beautiful, grieving family. Amen and amen. " If he/she exist it didn't do jack shit for this lovely girl,and only because of respect and sorrow for her i will refrain my self from telling what i think about your God.
This reminds me of the time our oldest son developed a dangerous abscess in his neck. He was aged 6 at the time and I was told his chance of survival was 15%. The floor just seems to disappear from under you in that moment and suddenly your daily life is no longer important. We were lucky and he fully recovered, but it made me a better nurse later, when I had to care for a young man whose mother was devastated by her own son's diagnosis. I cannot stress how important it is to be sensitive to the loved ones of a person suffering a serious illness. It is an absolute shock and turns your whole world upside down. I so wish that Charlotte had also made a full recovery. Much love to you guys and thanks for the video.
Incredibly brave of you both to talk about such a traumatic experience. I know from my own personal experience with finding out about my mum's terminal Cancer how utterly devastating the news can be and so think it's so important to enlighten others about it also. Charlotte was an outstanding young lady and clearly loved by the two of you. I know you speak often on here and on Twitter of visiting her resting place and I'd love to know more about what else you do to remember and celebrate Charlotte's life, and comfort yourselves during this difficult grieving process. Brilliant video as always xx
Caregiving of an ill family member is hardly ever spoken about. Is it because when you are right in the middle of it you really don't have time to talk about it. Could it be that after it is all over one almost never wants to talk about it. Either way it is such an important discussion to have for the future caregivers because it will inevitably happen to all of us one day. Thank YOU both for giving us your time!!! Blessings!!!
Congrats Miles on starting a new job. My grandmother died of a brain tumor. I was a very little girl when she passed, around 5 yrs old so I don't remember her. But just the stories that my mother tells me. Her tumor wasn't malignant, but it still took her life non the less. They operated on her and removed what they could. But it continued to grow back until there was nothing more the doctors could do. It was hard on my mother and her siblings because just like your family, they watched her deteriorate. As a parent, I can't imagine what devastation your family when through upon hearing such tragic news. I'm sure your world stopped at that point. Again thank you so much for talking about this and sharing your experiences. One never know what life will throw at them. Even though I don't think anyone can prepare themselves for such news as having cancer or any other awful deadly disease. Much love to you both :)
Congratulations Miles, I'm so happy for you. I have pseudotumor cerebri, I was diagnosed at Walmart Vision Center with swollen optic nerves, and was sent to the hospital. It saddens me how long it took for them to order an MRI. In the US we get MRI orders quickly if you have insurance. I guess that's the give and take of universal healthcare, things take more time. Thank you both so much for sharing this. I remember my scare and how I felt initially. But luckily it was a false tumor of cerebral spinal fluid instead of a mass, 2 surgeries fixed it after 2 years. I think carers is a great topic. My parents are my caregivers and I'm much larger than Charlotte. I've been disabled nearly my whole life so it's not something I thought about, but now at 28 I realize what a burden it is on them. Then it's the idea of still wanting to maintain dignity but having to do the tasks necessary. Some tough videos ahead. Please take care of yourselves, if a video isn't uploaded we'll understand xx
My heart breaks for both of you, I'm so sorry. I'm so deeply sorry. I don't know what else to say, Charlotte was amazing. You could see it from her videos and it shone through. I hope everything gets easier for you. X
It must be very difficult to carry on talking about Charlotte but just remember you are having a positive impact and you will meet in heaven one day I hope xx
It is fascinating that Charlotte knew what was wrong before the doctors did. I know why they don't take a patient's self-diagnosis as gospel, but they should listen more. You can't feel a brain tumour but you know that something is very wrong. I think the fact that it's in the brain gives you a sort of instinctive knowledge. Once I developed symptoms, Google kept telling me that I could have a brain tumour, but it took a lot of arguing with health professionals to get a referral to neurology. The instinctive knowledge was already there, however: after my 50th birthday celebrations, I was musing on what I might do for my 60th, when a very clear thought arose: You're not going to have a 60th. It was scary but at the time I wasn't ill and I dismissed it. But it nagged on at me, the conviction that I was going to die young. My eventual symptoms didn't make sense in terms of my tumour location, yet my body was clearly finding a way to show me that I needed a brain scan.
Alexandra Eades Oh ok thanks it's just I'm wondering how Charlotte would have coped with the symptoms I know the headaches are a symptom but I don't know any more
My heart breaks for both of you, I'm so sorry. I'm so deeply sorry. I don't know what else to say, Charlotte was amazing. You could see it from her videos and it shone through. I hope everything gets easier for you. X
As a friend said to me, "Time changes nothing, Death changes everything." I believe this is where you are at the point in this video...I pray that you have found more comfort in these two years. Even just a little. God, please send comfort to this beautiful, grieving family. Amen and amen. Georgia Meloy Scott
+Michelle Meloy : Which God? Almighty one?
"God, please send comfort to this beautiful, grieving family. Amen and amen. "
If he/she exist it didn't do jack shit for this lovely girl,and only because of respect and sorrow for her i will refrain my self from telling what i think about your God.
This reminds me of the time our oldest son developed a dangerous abscess in his neck. He was aged 6 at the time and I was told his chance of survival was 15%. The floor just seems to disappear from under you in that moment and suddenly your daily life is no longer important. We were lucky and he fully recovered, but it made me a better nurse later, when I had to care for a young man whose mother was devastated by her own son's diagnosis. I cannot stress how important it is to be sensitive to the loved ones of a person suffering a serious illness. It is an absolute shock and turns your whole world upside down. I so wish that Charlotte had also made a full recovery. Much love to you guys and thanks for the video.
Incredibly brave of you both to talk about such a traumatic experience. I know from my own personal experience with finding out about my mum's terminal Cancer how utterly devastating the news can be and so think it's so important to enlighten others about it also. Charlotte was an outstanding young lady and clearly loved by the two of you. I know you speak often on here and on Twitter of visiting her resting place and I'd love to know more about what else you do to remember and celebrate Charlotte's life, and comfort yourselves during this difficult grieving process. Brilliant video as always xx
+Meg Lewis Thank you Meg. We will note your request and do that at some point.
Caregiving of an ill family member is hardly ever spoken about. Is it because when you are right in the middle of it you really don't have time to talk about it. Could it be that after it is all over one almost never wants to talk about it. Either way it is such an important discussion to have for the future caregivers because it will inevitably happen to all of us one day.
Thank YOU both for giving us your time!!! Blessings!!!
Congrats Miles on starting a new job. My grandmother died of a brain tumor. I was a very little girl when she passed, around 5 yrs old so I don't remember her. But just the stories that my mother tells me. Her tumor wasn't malignant, but it still took her life non the less. They operated on her and removed what they could. But it continued to grow back until there was nothing more the doctors could do. It was hard on my mother and her siblings because just like your family, they watched her deteriorate. As a parent, I can't imagine what devastation your family when through upon hearing such tragic news. I'm sure your world stopped at that point. Again thank you so much for talking about this and sharing your experiences. One never know what life will throw at them. Even though I don't think anyone can prepare themselves for such news as having cancer or any other awful deadly disease. Much love to you both :)
Congratulations Miles, I'm so happy for you.
I have pseudotumor cerebri, I was diagnosed at Walmart Vision Center with swollen optic nerves, and was sent to the hospital. It saddens me how long it took for them to order an MRI. In the US we get MRI orders quickly if you have insurance. I guess that's the give and take of universal healthcare, things take more time.
Thank you both so much for sharing this. I remember my scare and how I felt initially. But luckily it was a false tumor of cerebral spinal fluid instead of a mass, 2 surgeries fixed it after 2 years.
I think carers is a great topic. My parents are my caregivers and I'm much larger than Charlotte. I've been disabled nearly my whole life so it's not something I thought about, but now at 28 I realize what a burden it is on them. Then it's the idea of still wanting to maintain dignity but having to do the tasks necessary. Some tough videos ahead. Please take care of yourselves, if a video isn't uploaded we'll understand xx
You are all so inspirational I watched Charlotte a lot and I loved all her videos xx stay strong love to you all x
My heart breaks for both of you, I'm so sorry. I'm so deeply sorry. I don't know what else to say, Charlotte was amazing. You could see it from her videos and it shone through. I hope everything gets easier for you. X
You guys are awesome! Charlotte was very lucky to have you as her family :)
Did you discuss with Charlotte what she would want for her funeral? Much love to you all she would be proud xx
Thank you SO much for taking my video request into consideration!
Lots of love and internet hugs from Serina xx
Congrats Miles on your new job! Charlotte was such a courageous girl and I think It's great that your spreading awareness of this type of cancer X
+Fashioneyesta Thank you Emily. Hope you are well xxx
It must be very difficult to carry on talking about Charlotte but just remember you are having a positive impact and you will meet in heaven one day I hope xx
thank you for sharing her story
It is fascinating that Charlotte knew what was wrong before the doctors did. I know why they don't take a patient's self-diagnosis as gospel, but they should listen more. You can't feel a brain tumour but you know that something is very wrong. I think the fact that it's in the brain gives you a sort of instinctive knowledge. Once I developed symptoms, Google kept telling me that I could have a brain tumour, but it took a lot of arguing with health professionals to get a referral to neurology. The instinctive knowledge was already there, however: after my 50th birthday celebrations, I was musing on what I might do for my 60th, when a very clear thought arose: You're not going to have a 60th. It was scary but at the time I wasn't ill and I dismissed it. But it nagged on at me, the conviction that I was going to die young. My eventual symptoms didn't make sense in terms of my tumour location, yet my body was clearly finding a way to show me that I needed a brain scan.
They both look so devastated :(
stay strong 💖
Can you please do a video on the symptoms
+Bethany Kerr We will be covering that shortly. Some other people have asked the same question.
Alexandra Eades Oh ok thanks it's just I'm wondering how Charlotte would have coped with the symptoms I know the headaches are a symptom but I don't know any more
Did you have any sort of faith to lean on? This is a video suggestion from me. If you had any sort of faith, did it make you doubt it? xx
+Serina T We refrain from talking about religion as it is unique to the individual. x
Ah right ok. I understand of course x
My heart breaks for both of you, I'm so sorry. I'm so deeply sorry. I don't know what else to say, Charlotte was amazing. You could see it from her videos and it shone through. I hope everything gets easier for you. X