Sarcoidosis Medications and Side Effects hosted by Dr. Raj Dasgupta
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- เผยแพร่เมื่อ 13 ส.ค. 2020
- Dr. Raj Dusgupta discusses common Sarcoidosis medications and their side effects for the Life & Breath Foundation's Sarcoidosis Speaker series. Recorded on August 13, 2020.
Excellent video. Very informative
Thanks for giving up your time to educate.
Thank you. Great presentation. It gives me some understanding
I use to get a flare up every 6 years I was only on Prednisone. No sparing medication
In my Journey I have seen pulmonary doctors that are Not interested in the Sarcoidosis Patients but
Are interested in the Sarcoidosis Patients getting lung transplants
It seems like lung transplant is the Trend and that is what Pulmonary Doctors are going for instead of helping the patient with Sparing with the Prednisone to 5mg rather than 10mg Ect. Doing that
Before lung transplant
My WBC is very high with Sarc. Taking prednisone and methotrexate....almost off of prednisone though. Thank God ! Should my wbc be high?
I feel like I am alone at my Doctor's appointments . Not a lot of Sarcoidosis Doctors in the hospitals
I am so sorry you are experiencing this. We have some resources for you to bring along to appointments. Hopefully these can help. www.lifeandbreath.org/assessment-forms
Hi this is Afroza, Please could you please help me... i am currently way to dipressed and need more advice and help for my stage 2 or 3 pulmonary Sarcoidosis - I live in Australia but can i consult with Dr Raj online ? please that will be a great help for me. i am always scared as i have lost my mum 3 years ago from lung condition ( possibly undiagnosed sarcoidosis ) and lost dad from covid 4 months ago. and as a new mum i am also under diagnosis for stage 2 sarcoidosis. . please help . i have all my reports and recent meds written and ready to be reviewed @life and Breath foundation for sarcoidosis.
Is Carbon dioxide common in Patients who have lung issues
I’m in need of a Sarcoidosis doctor in the BayArea. Any recommendations on a private practice would be great. My current doctor does not understand.
I am sorry, we do not have a list of recommendations right now (hopefully in the future we will). Here are some recommendations on questions you can ask a Doctor you are interviewing. instagram.com/p/CVx6_s5PW8F/?
Hi Dr Raj, have your Parents with Lung Sarcoidosis expressed Any difficulties With their Oxygen Providers? Example Bad Equipment, Tanks that are Empty, and bad Customer service. I just wanted to bring this to your Attention because this is a Huge Stresser For Patients with Lung Sarcoidosis that Needs Supplemental Oxygen. And, how the tubing and become a Accident just waiting to happen if you're Not Careful. It Needs to be a Up Grade on the Tubing's. More Safe !
How can I submit questions? I was diagnosed in December 2021 and have it in my lungs, but I also had hypercalcemia. I’m on steroids, but when I go down 5mg, it flares!
I was extremely athletic but now my lungs burn all the time. I’m within that first 6 mo and terrified that if I don’t do something now, it will become chronic.
My CT scan shows improvement from November 2021, but I’m still breathless and with ‘the burn!‘
Can you email info@lifeandbreath.org with your question and I will have one of our Doctors reach out to you. Thank you for watching.
@@lifeandbreathfoundation thank you!
Can you talk about food. It’s really important. I hear we are not supposed to eat nightshade so I feel guilty when I eat eggplant. I now eat dragon fruit. I hear it helps. Also I have wicked migraines. My organs hurt. I have been vomiting for 7 years.
Yes! We have several webinars on nutrition and Sarcoidosis. Here is one..th-cam.com/video/jujR9RDKCTk/w-d-xo.html
Hope this helps. If you look through our replays you will find several more. Thanks for watching
Hi Dr. Raj, I was interested in Ofev but decided Not to because of side effects like Cirrhosis of the Liver, Hair lost, Ect. Ofev is expensive and Medicare does Not Pay for it
I have reached out to our specialists and they are working on your question. Thank you for commenting. Abigail
Do Methotrexate take your hair out?
"Yes it can. But usually at higher dose than most Sarcoid patients receive." Thanks for reaching out.