Life & Breath Foundation for Sarcoidosis
Life & Breath Foundation for Sarcoidosis
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Stand Up for Your Health with Dr. Irina Koyfman
Dr. Irina Koyfman shares how to advocate for yourself and ensure coordinated care.
Learn more at LifeandBreath.org
มุมมอง: 80

วีดีโอ

Iron and Sarcoidosis with Dr. Harris
มุมมอง 1782 หลายเดือนก่อน
Dr Harris answers a patient's question about Iron and Sarcoidosis.
Sarcoidosis Q&A with Dr. Carr
มุมมอง 3133 หลายเดือนก่อน
Dr. Elisabeth Carr is the Program Director for the Internal Medicine Residency as well as a practicing Pulmonary and Critical Care physician at the Greater Baltimore Medical Center (GBMC). She developed a deep interest in Sarcoidosis and has been working with Sarcoidosis patients since 2001.
Mastering the Conversation with Tiffany Ryder
มุมมอง 994 หลายเดือนก่อน
Simple Approaches to Improve Communication Between Patients and the Medical Team that Improve Quality of Care. Tiffany Ryder is a dynamic and influential speaker, clinician entrepreneur, and advocate for transformative change in the healthcare industry. With over two decades of experience, Tiffany offers thought-provoking insights into the intersection of medicine, business, and empowerment. He...
Sarcoidosis and Fatigue with Dr Harris
มุมมอง 6395 หลายเดือนก่อน
Dr. Harris discusses the research behind reducing fatigue with Sarcoidosis. Learn more about Sarcoidosis and our monthly webinar series at LifeandBreath.org
Sarcoidosis Genetics 101
มุมมอง 2596 หลายเดือนก่อน
This is a webinar replay with Dr. Natalie Rivera and Life & Breath Foundation. Natalia Rivera, PhD, is a geneticist with a specialized focus on the genetics and genomics of sarcoidosis, and she possesses extensive expertise in the study of complex human diseases. Appointed as an Assistant Professor in 2018, Dr. Rivera has since dedicated her research to advancing the understanding of sarcoidosi...
What's 12 hours on a Saturday: Running an Ultra with Sarcoidosis
มุมมอง 617 หลายเดือนก่อน
Josh Polito will be live on Instagram tomorrow, May 11th. Follow his 12-hour ultra. Learn More and Support Josh at LifeandBreath.org Donate: lifeandbreath.charityproud.org/Donate/MiniCampaign/23551
Ask the Expert: Sarcoidosis Q&A with Dr Raj
มุมมอง 8638 หลายเดือนก่อน
The amazing Dr Raj is back to answer your great sarcoidosis questions.
Do I need a Biopsy? Ask the Expert with Dr. Raj
มุมมอง 1328 หลายเดือนก่อน
Join our April Ask the Expert webinar with Dr. Raj on April 17th at 7 pm EST. Register here: us02web.zoom.us/webinar/register/WN_ATmuz3gQTK-M3C2QhOElTw #sarcoidosis #sarcoidosisawareness #drraj #asktheexpert
NeuroSarcoidosis 101 with Dr Barreras
มุมมอง 1.2K9 หลายเดือนก่อน
Watch the replay of this amazingly informative webinar with Dr. Paula Barreras. Dr. Barreras completed her medical school at the University of the Andes followed by a postdoctoral research fellowship in neuroimmunology at Johns Hopkins University. Then she completed her neurology residency and then clinical neuroimmunology fellowship with an emphasis in neurosarcoidosis also at Johns Hopkins be...
Sarcoidosis Q&A with Dr. Lamos
มุมมอง 93310 หลายเดือนก่อน
Join Life & Breath and Dr. Mark Lamos as he answers patient questions about Sarcoidosis. This webinar is for educational purposes only. This webinar does not give medical advice. Speak with your doctor before acting on any of the information you hear this evening.
Sarcoidosis and the Life & Breath Foundation
มุมมอง 193ปีที่แล้ว
Learn about sarcoidosis and how the Life & Breath Foundation seeks to support patients. Learn more at LifeandBreath.org
What Data you should bring to Your Doctors Appointment with Dr. Carr
มุมมอง 97ปีที่แล้ว
Dr Carr overviews what data is helpful to bring to show your doctor at an appointment. This section is part of a webinar on the use of the Sarcoidosis Planner. Watch the full video here: th-cam.com/video/pl_qcicL5Ds/w-d-xo.html
Tracking your Sarcoidosis Journey
มุมมอง 355ปีที่แล้ว
Dr. Carr, Ellen Nestorick, and Abigail Mangum discuss the Life & Breath Sarcoidosis Planner as well as the best way to track your sarcoidosis journey to empower you to be able to communicate with your physicians and get the best care for your disease.
Combatting Chronic Stress with Dr Harris
มุมมอง 279ปีที่แล้ว
Dr. Richard Harris discusses how to deal with stress when you have sarcoidosis. Dr. Harris is a board-certified pharmacist and holistic lifestyle internal medicine physician in Houston, TX. With a passion to educate, Dr. Harris uses a holistic approach to wellness. Learn more about Sarcoidosis and the Life & Breath Foundation at LifeandBreath.org
Organ Involvement in Sarcoidosis with Dr. Sharp
มุมมอง 2.3Kปีที่แล้ว
Organ Involvement in Sarcoidosis with Dr. Sharp
Update Covid right before the race- Dare to Tri
มุมมอง 114ปีที่แล้ว
Update Covid right before the race- Dare to Tri
Ocular Sarcoidosis with Dr Berkenstock
มุมมอง 1.1Kปีที่แล้ว
Ocular Sarcoidosis with Dr Berkenstock
How to Engage with your Sarcoidosis Doctor with Dr. Mark Lamos
มุมมอง 300ปีที่แล้ว
How to Engage with your Sarcoidosis Doctor with Dr. Mark Lamos
Sharing his Story and Inspiration
มุมมอง 67ปีที่แล้ว
Sharing his Story and Inspiration
Worry and Sarcoidosis with Carl Robbins
มุมมอง 260ปีที่แล้ว
Worry and Sarcoidosis with Carl Robbins
Josh is using Ultras as training
มุมมอง 35ปีที่แล้ว
Josh is using Ultras as training
Josh's Recovery Routines - Dare to Tri
มุมมอง 41ปีที่แล้ว
Josh's Recovery Routines - Dare to Tri
Anxiety and Sarcoidosis: Common Companions with Carl Robbins
มุมมอง 575ปีที่แล้ว
Anxiety and Sarcoidosis: Common Companions with Carl Robbins
Preventing the Adverse Effects of Prednisone with Megan Milne
มุมมอง 1.2Kปีที่แล้ว
Preventing the Adverse Effects of Prednisone with Megan Milne
Having Difficult Conversations with Your Doctor
มุมมอง 227ปีที่แล้ว
Having Difficult Conversations with Your Doctor
Sarcoidosis Patient Experiences: Ellen, Erica, and Kim
มุมมอง 8Kปีที่แล้ว
Sarcoidosis Patient Experiences: Ellen, Erica, and Kim
CBD & Sarcoidosis with Dr Richard Harris
มุมมอง 1.5Kปีที่แล้ว
CBD & Sarcoidosis with Dr Richard Harris
My Life & Breath Sarcoidosis Planner
มุมมอง 645ปีที่แล้ว
My Life & Breath Sarcoidosis Planner
How to Stay Consistent with an Inconsistent Disease with David Zetts and Dr. Richard Harris
มุมมอง 110ปีที่แล้ว
How to Stay Consistent with an Inconsistent Disease with David Zetts and Dr. Richard Harris

ความคิดเห็น

  • @MYMAKEUPROOMDIVA
    @MYMAKEUPROOMDIVA 2 วันที่ผ่านมา

    I'm going through it im so scared of all that is happening to me and not much help I and so deficient in vitamin D and can't take it its taking a toll on me so bad i don't know what to do I feel like I'm dying in my own body I just need 1 person to care about me just a little to help me smh

    • @lifeandbreathfoundation
      @lifeandbreathfoundation 22 ชั่วโมงที่ผ่านมา

      I'm glad you found our channel! Please join our next support group on the 8th! We would love to be able to chat. You can also email me at Abigail@LifeandBreath.org. We are here to help! Check it out at LifeandBreath.org

  • @sharolhathaway6836
    @sharolhathaway6836 10 วันที่ผ่านมา

    New diagnosis here😢😢😢

  • @edh6096
    @edh6096 2 หลายเดือนก่อน

    Wow, very impressive! THANKS!

  • @suzannehoffman9509
    @suzannehoffman9509 2 หลายเดือนก่อน

    Is there a Sarcoidosis specialist in Mesa, AZ Area? Or do you treat long distance? Also interested in your findings on environmental impact. Could changing the diet help?

    • @lifeandbreathfoundation
      @lifeandbreathfoundation 2 หลายเดือนก่อน

      Email me at Abigail@LifeandBreath.org and I'll get you more info on these.

  • @suzanneholzman9548
    @suzanneholzman9548 2 หลายเดือนก่อน

    I have sarcodosis of my lungs 🫁

  • @jenniferhughes5992
    @jenniferhughes5992 3 หลายเดือนก่อน

    I have type 2 diabetes as well as pulmonary sarcoidosis,which has bone involvement,going for a heart mri to see if thats involved..it is so fustrating when no one understands it.

  • @jaceevela8042
    @jaceevela8042 3 หลายเดือนก่อน

    The CDC has been involved, also only in Africa .im 1/2white, 1/2 mexican american.. i have other medical problems. jaceel... .

  • @Christianforjews
    @Christianforjews 3 หลายเดือนก่อน

    Thank you.

  • @pauldemartino4007
    @pauldemartino4007 3 หลายเดือนก่อน

    Yeah so I have zero trust in pharmaceuticals, not to mention that most doctors have zero information on proper nutrition and no direction as far as any holistic or natural healing it’s all poisonous steroids and chemo, i’m trying to be nice but I’ve been suffering with this for years sure could use some help

  • @natashasadler6551
    @natashasadler6551 3 หลายเดือนก่อน

    How do I get in contact with you? I’m in New Zealand. Are there any supports you know of down here?

  • @natashasadler6551
    @natashasadler6551 3 หลายเดือนก่อน

    My left arm has huge clumpy masses and now the lumps are presenting all over my legs

    • @alouise3557
      @alouise3557 3 หลายเดือนก่อน

      There's a Facebook support group I just joined and I find it completely bizarre that *suddenly* there are tons of people posting in the Facebook group. I was diagnosed last year with Pulmonary (2 months after covid) and now I believe it's gone to Neurosarc as I just had an episode that appeared like a stroke. I'm starting to wondering if this has been brought on by covid. Although I do think I may have had it much longer than recently.

    • @queenofpond
      @queenofpond หลายเดือนก่อน

      @@alouise3557my issues started after covid. My doctor denies any correlation but considering how recent covid is I think more research needs to be done before dismissing the hypothesis.

  • @efraincanales5357
    @efraincanales5357 3 หลายเดือนก่อน

    I have ocular sarcoid. Lost vision in right eye due to scarring. Trying to left eye going. I go to Cleveland Clinic. In my left eye i have a blue and yellow checkerboard floater, it sits at about nine o'clock, in my eye, have had this for a little over a year, it wont go way. Any thoughts?

  • @jeanettetaylor856
    @jeanettetaylor856 3 หลายเดือนก่อน

    Sarcoidosis for me is chronic, seldom goes in remission. Living with for 21 years.

  • @HolyMoly432
    @HolyMoly432 3 หลายเดือนก่อน

    My husband had a very small crusty spot on his cheek that I kept annoying him to go get removed. He finally did and it came back positive for sarcoidosis. Of course we had never heard of it and were surprised to learn it mostly affects black women in their 30’s - he was white and in his early 60’s. He has gone in annually for the 8 or 9 years to get pulmonary function tests and occasionally a CT. His lungs test better than average and the CT shows small nodules on some lymph glands. But for the last few months he has had one joint after another become incredibly painful. At first they thought, Achilles, and then torn meniscus, but then it went to his shoulder, so obviously something to do with arthritis…? He has a number of doctors - the latest tests show pretty bad osteoporosis of his hip, which we were very surprised about, as well as very high calcium in his 24 hour urine collection. Serum calcium is normal. He was on prednisone but that’s not the best for long term - switched to methotrexate which helped but still some symptoms. Now he’s on Humera. Seems to be helping but early to say. It’s not nearly as bad as it was a few months back. The doctor believes he has arthritis - possibly reactive arthritis, but now I’m wondering if it could be the sarcoidosis? He’s always been healthy and active, never overweight, used to do a lot of cycling and eats pretty well. Just wondering how I can help him.

  • @hlifebowserE
    @hlifebowserE 4 หลายเดือนก่อน

    Any one know a sarcoidosis specialist I could go to in the Carolina's

  • @WatchingMyLifeFlashB
    @WatchingMyLifeFlashB 4 หลายเดือนก่อน

    Yup, told lung cancer & lymphoma until AFTER the biopsy of my chest lymph.

  • @clancycreations
    @clancycreations 4 หลายเดือนก่อน

    I had the pleasure of seeing Dr. Barreras a couple of times with my kids as her patients at John’s Hopkins many years ago. Wish I still lived on that side of country as I’m trying to deal with my Sjogren’s and now possible Sarcoidosis. 💜

  • @Christianforjews
    @Christianforjews 4 หลายเดือนก่อน

    Hi this is been tough. I have a lot of support from partner but not from basically anyone else.

  • @ishouldbesleeping1354
    @ishouldbesleeping1354 5 หลายเดือนก่อน

    I’m too nervous to hear this 😂 I’ll come back to it.

  • @felipemolina6370
    @felipemolina6370 5 หลายเดือนก่อน

    What a good doctor. So appreciated. Thank you.

  • @joymorales4891
    @joymorales4891 5 หลายเดือนก่อน

    Vigorously is hard for me

  • @endrebandy
    @endrebandy 5 หลายเดือนก่อน

    örülök, hogy találkoztunk! Nekem az 1970-es években találták meg a sarcoidosis betegségemet a tüdőmön. IV-es stádiumban voltak mikor szövettannal igazolták. Magyarországon az orvosok akkor még alig ismerték, ezt a betegséget, de volt Debrecenben egy professzor, akit ha végre megtaláltak, akkor prednizolonnal kezdtek. Fél év után csípőfájdalom miatt az összes cortizon származékot kipróbálták, de a csípőimben a femur elhalt. 4 évig minden létezőt kipróbáltak, de ha elhagyták a cortizont, megint elindult a gyulladás. Aztán a saját döntésem az volt, hogy gyógyszereket nem szedek. Akkor fejlesztette dr. Béres József a Béres cseppet, ami nyomelekből ásványi anyagokból állt és stimulálta az immunrendszert. Csak ezt szedtem ezután, és 10 év alatt írta le a professzorom, hogy elmult a sarcoidózis, már csak hegek maradtak a tüdőmön. ma 45 évvel a kezdetek után szedem a Béres cseppet, a tüdőm, szívem gyengélkedik, de élek, mert sose adtam fel a reményt!

  • @nicoleduplantis
    @nicoleduplantis 6 หลายเดือนก่อน

    Is there a sarcoid clinic near south east Louisiana?

  • @nicoleduplantis
    @nicoleduplantis 6 หลายเดือนก่อน

    Is there a sarcoid clinic near south east Louisiana?

  • @Nisha-kl8rl
    @Nisha-kl8rl 7 หลายเดือนก่อน

    Sarcoidosis was overwhelming until I found Planet Ayurveda. Their treatment is the best solution I’ve found.

  • @MARKREACTION368
    @MARKREACTION368 7 หลายเดือนก่อน

    Today i just diagnosed with sarcoidosis in lung.

  • @morekindnessnow9231
    @morekindnessnow9231 7 หลายเดือนก่อน

    I like doing the plank. I might try it again at the weekend. Thank you for this advice

  • @richardsaintjohn8391
    @richardsaintjohn8391 8 หลายเดือนก่อน

    I have sarcoid. At this point it has mainly affected my parathyroid/hypercalcemia. No serious issues with lungs but there is granuloma. I have CKD resulting from Sarcoid/Calcium toxicity. Was on presidone for a few years. And hydroxyclorquine for four years. Got off it for fear of eye issues. Are there any new Rx alternatives for auto immune/ anti inflammatory that won't potentially ruin my eyes or liver. And of course CKD. Thanks

  • @vishalchaudhary-nf6gr
    @vishalchaudhary-nf6gr 8 หลายเดือนก่อน

    Very informative & nice video on Sarcoidosis! It can be a tough battle, but Channel and sir offer hope and guidance. My friend's journey with sarcoidosis took a positive turn with Planet Ayurveda's supplements. Let's raise awareness and empower each other! 🙌

  • @suecooper8625
    @suecooper8625 8 หลายเดือนก่อน

    Thank you so much for such an informative and educational session. Dr Raj is fantastic and I love his upbeat style. I have pulmonary sarcoidosis (in remission) and sarcoid in my eyes. I live in New Zealand and must say I am well looked after currently with yearly checkups with my pulmonary specialist (although he doesn’t seem to know or share anything other than the basics) and two monthly checkups with Uveitis specialists etc. I was diagnosed via a bronchioscopy in 2020 and put on prednisone for a year. I completely agree with Dr Raj diet exercise and a healthy lifestyle is key to staying in remission. Thanks to Life and Breath Foundation I don’t feel so alone with this illness and have learnt so much that helps me stay positive. I found magnesium really helped me. Keep up the great work I’m sure many of us around the world appreciate your dedication to helping us with what can be a very difficult disease.

  • @3rz-rhymesreasonsandwritte437
    @3rz-rhymesreasonsandwritte437 8 หลายเดือนก่อน

    Amazing information. Thank you

  • @demetriusevans4139
    @demetriusevans4139 8 หลายเดือนก่อน

    I have NS and it's every three- four months there's a new symptom. I have numbness, vision problems, balance issues and weakness. I volunteered to be a test patient in a study of the disease by the Ohio State University. O hope they learn something that helps cure this horrible disease

  • @craftyninja007
    @craftyninja007 8 หลายเดือนก่อน

    I need help. I was just diagnosed and none of my Dr's seem to know much about it. So far they have found it in my lungs eyes and mouth. My teeth are literally grumbling out of my mouth for the last 6 months but I had to quit my job so I don't have the money to get them pulled and put new teeth in. I cannot find a way to make my insurance pay to help me since it is due to my sarcoidosis. What should I do?

  • @toddbarnett5810
    @toddbarnett5810 8 หลายเดือนก่อน

    Where is Dr. Raj located - I', in Houston, TX and I'm on a wait list to see a Pulmonogist based on lung CTs and bronch EBUS MD Anderson ruled out cancer and said Sarcoidosis is what they think

    • @miashipcott5114
      @miashipcott5114 8 หลายเดือนก่อน

      At USC Keck Medicine in Los Angeles, CA

  • @eddiesicoli
    @eddiesicoli 8 หลายเดือนก่อน

    For a change I have to admit , I like this pulmonologist Dr Raj. First & foremost I like his expertise , second to his apparent sarcoid & pulmonary expertise, would be his personality and sense of humor, which I’ll tell you , is hard to find. I would love to see or have this doctor as my pulmonologist. Too bad he’s not on the east coast near NJ/NYC area. I will say , I did consult back in 2016 with Dr Morganthau in NYC. I’ve had pulmonary sarcoid since 2004, thankfully I’m not on prednisone , which can do more havoc on the body/organs , than the sarcoidosis itself. I like Dr Raj’s demeanor and his seemingly prudent and conservative approach on whether to even treat those of us with sarcoid. He admits that sarcoid can mimic several other conditions/diseases, as most of us proactive sarcoid patients already know. That’s why I think a Dr’s choice of therapy for sarcoid becomes a paramount decision by any specialist the sarcoid patient might see. Bottom line, Drs. need to rule OUT multiple symptoms a sarcoid patient might present with “BEFORE” initiating ANY of these treatments mentioned in this webinar. Would hope to see this particular Dr do another webinar , preferably ,an interactive zoom with Audio/Video so patients can asks him questions directly.

  • @BrianBogiaBricky
    @BrianBogiaBricky 8 หลายเดือนก่อน

    Your life will turn upside down with Sarcoidosis. I was denoised with Sarcoidosis in 2005 with my lungs. Now it spread to my skin. This disease is no joke so take it seriously. Bug your doctor as often as often as you need to. This is your life so do what can you do to get better. I am 61 so, I am scared of what don't know what is go on in my body.

  • @Nisha-kl8rl
    @Nisha-kl8rl 8 หลายเดือนก่อน

    Living with sarcoidosis presents its challenges, but discovering Planet Ayurveda has been a blessing. Their treatment and medicine are amazing, offering hope and a path to better health for those with this condition.

  • @othelo-ej7kj
    @othelo-ej7kj 9 หลายเดือนก่อน

    hey dr Harris, i am a obs/gynae doctor, want to write you on your email

  • @vishalchaudhary-nf6gr
    @vishalchaudhary-nf6gr 9 หลายเดือนก่อน

    Very useful & healthy food tips for Sarcoidosis! Big thanks to this channel and Doctor for addressing sarcoidosis! 🌿 Dealing with this condition can be overwhelming, but Planet Ayurveda's herbal remedies have been a game-changer for me. My neighbor, who also struggled with sarcoidosis, found relief with their supplements. Don't let sarcoidosis dictate your life; give Planet Ayurveda a try!

  • @m74w
    @m74w 9 หลายเดือนก่อน

    I have CBD for sarcoidosis and it helps a lot to sleep and get rid of nerve pains

  • @pauldemartino4007
    @pauldemartino4007 9 หลายเดือนก่อน

    Dr Burg has been a huge help with taking prednisone The Dangers and the alternatives

  • @pauldemartino4007
    @pauldemartino4007 9 หลายเดือนก่อน

    D3 with K2 50000 IU a day or more is what I’m taking

  • @Nisha-kl8rl
    @Nisha-kl8rl 9 หลายเดือนก่อน

    I've tried countless treatments for sarcoidosis, but Planet Ayurveda's approach is by far the most effective for me.

  • @lmac-pp5rq
    @lmac-pp5rq 9 หลายเดือนก่อน

    Best doctor I have ever had, because of the way he relates to the patient in wording, response to concerns, research, it feels like he actually cares about my life in general which i am not used to because we were taught to smile and say we feel fine at doctors because we don’t want to be impolite and take up their time.

  • @mareegoulden6424
    @mareegoulden6424 10 หลายเดือนก่อน

    When doing the straw breath practice, is it small increments of continuous inhalations until you fill only the lower part of the lungs before the exhalations? The first few inhalations go to the lower lungs, my diaphragm expands, then I seem to fill the upper part which causes me to suck my stomach in. Does this mean I'm using the upper chest, and I should stop beore I get to that?

  • @nicholebyers1611
    @nicholebyers1611 10 หลายเดือนก่อน

    So grateful I found this. Thank you for sharing your journeys. I recently was diagnosed with neuro sarcoidosis. I related to the last testimony. I’m alittle overwhelmed & scared but coming across this video has brought some peace of mind for the future. Thanks again and how can I get connected?

  • @annetalaoumzi9987
    @annetalaoumzi9987 10 หลายเดือนก่อน

    Thank you both for your support ❤

  • @inb2551
    @inb2551 10 หลายเดือนก่อน

    Dr. Harris you are speaking on measurements of Vitamin D level and PTH; if we do not have the tools how can this be checked? It’s extremely expensive to go to a Doctor and ask for a check of these different requirements. They only check for what they want to check not what the patient recommends. If we get well they lose money…