I'm 81 yrs old and noticed spots on my under arm at the age of 27 and I was scared to death my aunt took me to family Dr and he diagnosed it and gave me some cream for it i don't even remember what kind of cream.within a few years it was all over my body and I did not leave my house for almost 2 years not even to grocery shop I was devastated and I had 3 children at that time and had seen many Dr's nothing worked i was embarrassed Out of the blue I woke up one day and realized iwas ok I could see,walk,talk take care of my family no health problems at all no pain just a fading of skin color that not one person in my near and far family recalled it happiness to any other member. I rose up dressed and never look back even with the stares I still get today. I went back to school worked at a renown hospital and taught at a local community College and retired in 2016 at 74 yrs old 🎉
Love your positive attitude towards the diagnosis! I'm one of your old time followers (since the acne journey days!). Always love the mixed content you produce, it's nice to see a person's varying interests rather than boxing yourself into one niche.
Like others always love you channel because you surprise us with different subjects and not the same thing on repeat. Love listening to you chat your so natural just like a chat with a friend. Vitiligo won’t change the fact you’re naturally stunning and a lovely person x😊
I recently got the diagnosis. This video helped a lot. Thank you so much :)) I'm 17 and struggling with finding new patches, but since I have light skin it's not too visible. (Not that it's a bad thing, but it gives me personally anxiety) I wish you and everyone else the best ❤
I'm glad you found the video helpful! My heart goes out to you at this time, it's a strange thing to have to deal with, an unknown that not many people talk about, but there's so many people out there with this condition, so take heart. I hope you learn to believe that your vitiligo makes you more beautiful :)
Look up Ruxolitnib EMA and the UK approved it recently for Vitiligo first ever drug (topical) cream that is approved for vitiligo only. The americans had it for over 2-3 years of label. Now dermatologist finally can prescribe it for patients, but be aware it might not be covered by insurance, its ridicously expensive for one small tube of 60 gram. It was many years of trials and different stages to test for safety.. i first got to know it when Dr. John Harris probably the best researcher and scientist posted a long blog post about its potential back in 2014, and now here we are 2023 and its approved, but even better treatments coming down the line that will have different pathways and maybe even oral or some form of injection such as il-15 in the next 5-7 years if the clinical trials shows effectivness and safety. I hope this also helped. If you are curious, Google Umass Vitiligo blog and you find pretty much all the answers there.
I fully understand the challenges of remaining positive about your appearance in the face of societal pressure! Menopause has been very challenging in regard to that, for me. But fear not, you're beautiful and you have Jesus ... vitiligo and menopause ... pfffft ... 😉 ♥
Keeping going and stay motivated, not much bothers about people surrounding you, being you is important, also i am a person that having vitiligo since 10 years old, i did allopathy it seems that its not a good way to deal with vitiligo, then i shift to Ayurvedic its seems somewhere okay, doing diet and unchanged my activity and i feel i am differnet from others that make me good feeling and positive thought about my thinking. Then after one years of taking diet and medicine being not satisfied about the pigmentation. Then one of my familiy friend intimate about siddha medicine. I went to take those medicine and having diet as well i can see that there is change in pigmentation in my skin. It help me to cover most of the vitilgo place. But having problem is that after few month i didnt take the medicine regularly and still now around 10 years. I can feel that when i am able to apply the medicine over my skin for 6 month its should depigmentation in my skin. I need to gain more motivation to do so in the busy life
Hi there. It’s nice to hear your positive spin on the diagnosis. I’ve had vitiligo since I was 12 or 13. Started as a little dot on my hand, and then showed up on my feet. About 10 years ago it started on my face around the ends of my lips, and about 5 years ago on my cheeks and forehead. As it became more prevalent on my face I went to see a dermatologist, and started with tacrolimus ointment (.03). Then, since it was marginally effective we combined it with phototherapy… 3 days a week. That restored all pigment on my face, and about 40% of my hands (still working on knuckles and fingers). A month ago I also was able to get Opzelura cream (1.5)… And I now combine it with a Daavlin home photography booth (1400 mjoules 3x a week). Biggest things I’ve learned - 1.) No one really cares what I look like, I’m in control of my reactions and thoughts about my self image, and 2.) Vitiligo is a work in process. You have to constantly work at it, or else you’ll lose progress and the re-pigmentation will go away. I’ve never been itchy from Vitiligo, you’re probably itchy from the topical steroids. Good luck!
Thank you for sharing your story and what has been working for you, that's really helpful information. I find it crazy that here in the UK I literally had one treatment option and that was all, when it sounds like there's so many different things to try.
You’re welcome. There are more treatment options as well. From do it yourself phototherapy wands on Amazon (may be a little sketchy)… to Jak inhibitor medication (lowers immune response). There’s plenty of options. Good luck on your journey!
@ Ciaran I’ve found that I need to use my phototherapy booth three times a week and rotate each ointment. As far as effectiveness - my skin responds better to Tacrolimus; however, my dermatologist want me to stick with opzelura as well.
Thanks Joe. I started initially on tacrolimus and felt it helped. I switched to opzelura for about two months and felt I regressed a little. All of this was in combination with NBUVB phototherapy. But I have read that opzelura is a slow process with people seeing real improvements after 6 months, a year or even longer. Maybe I was too impatient? Thanks again and best wishes.
I have vitiligo I am fair skinned so not too noticeable, however I live in a very hot part of Western Australia (I am English originally). I have found that my forehead burns even if I have factor 50spf on
Thank you for sharing, its good to hear I am not alone with my diagnosis. I can imagine the sun is very strong in that part of the world! I also find that it does go quite pink with the SPF50 on if I don't reapply it at midday.
❤Thank you so much for the video! Really appreciate you sharing. The only thing that has really helped me/my skin has been changing my diet. I just avoid industrial seed oils (soybean, corn, safflower….etc.), and anything processed. There’s a lot of information out there, but since I started just eating whole foods I’m not as sun sensitive, and my skin has calmed way down (I’ve also lost weight- but wasn’t trying). Best of luck, no matter what works, I hope you fine your solution!
Thanks for sharing! Whole foods are the only way forward, it's just such a shame that it's even so tricky to eat out or get takeaways when one needs a little break from the food prep. I'm endeavouring to be more prepared with things though and that helps hugely!
Got it too 2 years ago, caused in my case by covid. Going to be many more of us with it. I meant to get an all over tan this summer to see the total end result but not gotten around to it. I have it over my face, hands, shoulders, chest....and me ole fella!! Thats the worst😅
I absolutely adore people with vitiligo and find them WAY more attractive. I think it’s super unique and beautiful as well as it shows that they are on a journey of self acceptance in this ‘culture of perfection’ which brings out their character. It’s like “skin fractals” beautifully unique ☺️ As for diabetes - KETOSIS - look up Dr Eric Berg if you wish. It also helps heal a lot of health issues, keeps the body and skin looking young and beautiful, sharpens mind and makes the body shed a lot of extra weight. Best wishes to You all ☺️
I researched it and the side effects are a long list of horrible things, including: increased risk of death, serious infections, cancer and immune system problems, increase risk of heart attack and stroke, blood clots, low blood cell counts. And it doesn't cure the disease, just helps the pigment return, but doesn't last, if you stop the medication. Very expensive too. I have vitiligo, don't like it, but oh well, it makes me unique.
Be careful with steroid creams. Have a look into topical steroid withdrawal just to be aware of the risks as it's not that commonly talked about. Best of luck!
Thank you for this message! I've thankfully come to the end of the use of it, and can honestly say it hasn't made any difference from what I can see, positively or negatively, so I would never recommend anyone else try it. The doctor hadn't even made me aware of TSW but had made sure that my use of the cream daily was only two weeks long, which does reduce the risk of TSW significantly. It's a shame that's the only thing that the medical team had to offer me really.
@@alissaevelyn shame that they didn't help but you look great either way and it's always lovely to see videos of people being so positive and accepting of vitiligo! Anyway, just thought I'd jump in as I wasn't properly informed about TSW when being prescribed steroids so wanted to give some advice just in case 😊
That's a really interesting thought, and I've been thinking a lot about how I can adjust my diet to help. AIP is quite restrictive, but I can see the benefits of AIP or an elimination diet. Just trying to get organised and plan out a menu I'm happy with - as I don't want to eat too different to the family!
Nice video and goodmorning everyone, I had a condition of leucoderma, I went to the clinic and took different medicines recommended by the medical doctors. But somehow I came to know about Dr Iyhere on youtube. So I thought to give it a chance. And that has been one of the best decisions i have made so far.
I was diagnosed with vitiligo in February. In December I noticed a white spot above my left eye. I went to the dermatologist and she confirmed it was vitiligo. I’ve been taking the Opzelura cream and I started taking D3 vitamins. It was heartbreaking 💔 when I first got the diagnosis but I’m moving forward. ❤️🩹
Nice video and goodmorning everyone, I had a condition of leucoderma, I went to the clinic and took different medicines recommended by the medical doctors. But somehow I came to know about Dr Iyhere on youtube. So I thought to give it a chance. And that has been one of the best decisions i have made so far.
I'm 81 yrs old and noticed spots on my under arm at the age of 27 and I was scared to death my aunt took me to family Dr and he diagnosed it and gave me some cream for it i don't even remember what kind of cream.within a few years it was all over my body and I did not leave my house for almost 2 years not even to grocery shop I was devastated and I had 3 children at that time and had seen many Dr's nothing worked i was embarrassed Out of the blue I woke up one day and realized iwas ok I could see,walk,talk take care of my family no health problems at all no pain just a fading of skin color that not one person in my near and far family recalled it happiness to any other member.
I rose up dressed and never look back even with the stares I still get today. I went back to school worked at a renown hospital and taught at a local community College and retired in 2016 at 74 yrs old
🎉
What a beautiful story! Thank you so much for sharing this, it’s inspiring and uplifting ❤️
Love your positive attitude towards the diagnosis! I'm one of your old time followers (since the acne journey days!). Always love the mixed content you produce, it's nice to see a person's varying interests rather than boxing yourself into one niche.
Thank you! This is a huge encouragement to me :) thank you for being here for so long and sticking with me!
Like others always love you channel because you surprise us with different subjects and not the same thing on repeat. Love listening to you chat your so natural just like a chat with a friend. Vitiligo won’t change the fact you’re naturally stunning and a lovely person x😊
I appreciate that! Thank you so much for your kindness, it always means a lot :)
I recently got the diagnosis. This video helped a lot. Thank you so much :))
I'm 17 and struggling with finding new patches, but since I have light skin it's not too visible. (Not that it's a bad thing, but it gives me personally anxiety)
I wish you and everyone else the best ❤
I'm glad you found the video helpful! My heart goes out to you at this time, it's a strange thing to have to deal with, an unknown that not many people talk about, but there's so many people out there with this condition, so take heart. I hope you learn to believe that your vitiligo makes you more beautiful :)
Look up Ruxolitnib EMA and the UK approved it recently for Vitiligo first ever drug (topical) cream that is approved for vitiligo only. The americans had it for over 2-3 years of label. Now dermatologist finally can prescribe it for patients, but be aware it might not be covered by insurance, its ridicously expensive for one small tube of 60 gram.
It was many years of trials and different stages to test for safety.. i first got to know it when Dr. John Harris probably the best researcher and scientist posted a long blog post about its potential back in 2014, and now here we are 2023 and its approved, but even better treatments coming down the line that will have different pathways and maybe even oral or some form of injection such as il-15 in the next 5-7 years if the clinical trials shows effectivness and safety.
I hope this also helped. If you are curious, Google Umass Vitiligo blog and you find pretty much all the answers there.
I always love your content because it is so random. 😊 Thank you for sharing your journey with us.💕
😊 thank you
You are so cute and vitiligo will never change that ❤
I had ptosis and had surgery to correct it, but it is hard when it's something that's so present like your face. You're beautiful
I fully understand the challenges of remaining positive about your appearance in the face of societal pressure! Menopause has been very challenging in regard to that, for me. But fear not, you're beautiful and you have Jesus ... vitiligo and menopause ... pfffft ... 😉 ♥
Sending you love! Thank you for sharing your story!
Keeping going and stay motivated, not much bothers about people surrounding you, being you is important, also i am a person that having vitiligo since 10 years old, i did allopathy it seems that its not a good way to deal with vitiligo, then i shift to Ayurvedic its seems somewhere okay, doing diet and unchanged my activity and i feel i am differnet from others that make me good feeling and positive thought about my thinking. Then after one years of taking diet and medicine being not satisfied about the pigmentation. Then one of my familiy friend intimate about siddha medicine. I went to take those medicine and having diet as well i can see that there is change in pigmentation in my skin. It help me to cover most of the vitilgo place. But having problem is that after few month i didnt take the medicine regularly and still now around 10 years. I can feel that when i am able to apply the medicine over my skin for 6 month its should depigmentation in my skin. I need to gain more motivation to do so in the busy life
Hi there. It’s nice to hear your positive spin on the diagnosis. I’ve had vitiligo since I was 12 or 13. Started as a little dot on my hand, and then showed up on my feet. About 10 years ago it started on my face around the ends of my lips, and about 5 years ago on my cheeks and forehead.
As it became more prevalent on my face I went to see a dermatologist, and started with tacrolimus ointment (.03). Then, since it was marginally effective we combined it with phototherapy… 3 days a week. That restored all pigment on my face, and about 40% of my hands (still working on knuckles and fingers).
A month ago I also was able to get Opzelura cream (1.5)… And I now combine it with a Daavlin home photography booth (1400 mjoules 3x a week).
Biggest things I’ve learned - 1.) No one really cares what I look like, I’m in control of my reactions and thoughts about my self image, and 2.) Vitiligo is a work in process. You have to constantly work at it, or else you’ll lose progress and the re-pigmentation will go away.
I’ve never been itchy from Vitiligo, you’re probably itchy from the topical steroids.
Good luck!
Thank you for sharing your story and what has been working for you, that's really helpful information. I find it crazy that here in the UK I literally had one treatment option and that was all, when it sounds like there's so many different things to try.
You’re welcome. There are more treatment options as well. From do it yourself phototherapy wands on Amazon (may be a little sketchy)… to Jak inhibitor medication (lowers immune response). There’s plenty of options.
Good luck on your journey!
Great information.
How has opzelura been compared to tacrolimus for you?
Is it a better topical treatment in your experience?
@ Ciaran I’ve found that I need to use my phototherapy booth three times a week and rotate each ointment.
As far as effectiveness - my skin responds better to Tacrolimus; however, my dermatologist want me to stick with opzelura as well.
Thanks Joe.
I started initially on tacrolimus and felt it helped. I switched to opzelura for about two months and felt I regressed a little. All of this was in combination with NBUVB phototherapy.
But I have read that opzelura is a slow process with people seeing real improvements after 6 months, a year or even longer. Maybe I was too impatient?
Thanks again and best wishes.
I have vitiligo I am fair skinned so not too noticeable, however I live in a very hot part of Western Australia (I am English originally). I have found that my forehead burns even if I have factor 50spf on
Thank you for sharing, its good to hear I am not alone with my diagnosis. I can imagine the sun is very strong in that part of the world! I also find that it does go quite pink with the SPF50 on if I don't reapply it at midday.
I have vitiligo too! Thx for sharing
❤Thank you so much for the video! Really appreciate you sharing. The only thing that has really helped me/my skin has been changing my diet. I just avoid industrial seed oils (soybean, corn, safflower….etc.), and anything processed. There’s a lot of information out there, but since I started just eating whole foods I’m not as sun sensitive, and my skin has calmed way down (I’ve also lost weight- but wasn’t trying). Best of luck, no matter what works, I hope you fine your solution!
Thanks for sharing! Whole foods are the only way forward, it's just such a shame that it's even so tricky to eat out or get takeaways when one needs a little break from the food prep. I'm endeavouring to be more prepared with things though and that helps hugely!
Se ve muy bien toda blanca, no se debe de preocupar, se ve muy hermosa y bonita
Got it too 2 years ago, caused in my case by covid. Going to be many more of us with it. I meant to get an all over tan this summer to see the total end result but not gotten around to it. I have it over my face, hands, shoulders, chest....and me ole fella!! Thats the worst😅
Caused by Covid or the COVID vaccine?
Thank you for sharing.
Vitiligo treatments (creams/steroids) usually take 90 days at least to see any progress. On that ride right now myself.
Wich cream?
@@mikebrown41182protopic 0.1 twice daily for 90 day + V d3 + Feroglobin daily
I absolutely adore people with vitiligo and find them WAY more attractive. I think it’s super unique and beautiful as well as it shows that they are on a journey of self acceptance in this ‘culture of perfection’ which brings out their character.
It’s like “skin fractals” beautifully unique ☺️
As for diabetes - KETOSIS - look up Dr Eric Berg if you wish. It also helps heal a lot of health issues, keeps the body and skin looking young and beautiful, sharpens mind and makes the body shed a lot of extra weight.
Best wishes to You all ☺️
I need you help I have vitiligo and I do not know what to do you can share with me how was that you healed
The FDA has just approved the drug OPZELURA for vitiligo. Please research it to find out more information about it.
I researched it and the side effects are a long list of horrible things, including: increased risk of death, serious infections, cancer and immune system problems, increase risk of heart attack and stroke, blood clots, low blood cell counts. And it doesn't cure the disease, just helps the pigment return, but doesn't last, if you stop the medication. Very expensive too. I have vitiligo, don't like it, but oh well, it makes me unique.
my dermatologist recommened xtrac laser in additional to the cream havent tried it yet though just fyi
Be careful with steroid creams. Have a look into topical steroid withdrawal just to be aware of the risks as it's not that commonly talked about. Best of luck!
Thank you for this message! I've thankfully come to the end of the use of it, and can honestly say it hasn't made any difference from what I can see, positively or negatively, so I would never recommend anyone else try it. The doctor hadn't even made me aware of TSW but had made sure that my use of the cream daily was only two weeks long, which does reduce the risk of TSW significantly. It's a shame that's the only thing that the medical team had to offer me really.
@@alissaevelyn shame that they didn't help but you look great either way and it's always lovely to see videos of people being so positive and accepting of vitiligo! Anyway, just thought I'd jump in as I wasn't properly informed about TSW when being prescribed steroids so wanted to give some advice just in case 😊
Could you do a round of AIP with your diabetes? It really has helped my autoimmune condition go away
That's a really interesting thought, and I've been thinking a lot about how I can adjust my diet to help. AIP is quite restrictive, but I can see the benefits of AIP or an elimination diet. Just trying to get organised and plan out a menu I'm happy with - as I don't want to eat too different to the family!
What is AIP?
Thanks
Also your diet.
💖
Nice video and goodmorning everyone, I had a condition of leucoderma, I went to the clinic and took different medicines recommended by the medical doctors. But somehow I came to know about Dr Iyhere on youtube. So I thought to give it a chance. And that has been one of the best decisions i have made so far.
Use uVB treatment
Hopefully there will one day be a natural cure for vitiligo.
Go on carnivore higher fat diet.
Stay away from stress.
After covid vaccine is normal
I don’t see your vitiligo
Solamente tienes en la cara ? No te vi nada en las manos
Se extiende por todo el cuerpo, se bloquea todo
Se hizo toda blanca
I was diagnosed with vitiligo in February. In December I noticed a white spot above my left eye. I went to the dermatologist and she confirmed it was vitiligo. I’ve been taking the Opzelura cream and I started taking D3 vitamins. It was heartbreaking 💔 when I first got the diagnosis but I’m moving forward. ❤️🩹
How's the treatment plan going @marchelette
Is there an improvement?
Vitíligo is curable I'm recovering myself from vitíligo!!!
Nice video and goodmorning everyone, I had a condition of leucoderma, I went to the clinic and took different medicines recommended by the medical doctors. But somehow I came to know about Dr Iyhere on youtube. So I thought to give it a chance. And that has been one of the best decisions i have made so far.
Isn't it a scam?