Episode #28: Criteria Parkinson's patients can use to find the best Neurologist for them
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- เผยแพร่เมื่อ 2 ต.ค. 2024
- The Secret Life of Parkinson's: This episode was created because of a comment we received from one of our listeners. The question was: "I thought my doctor was great until I realized he was treating the disease and not me, the patient. What criteria do others look for in finding the right Neurologist / Movement Disorder Specialist?" So I reached out and asked my local PD community. This episode shares their criteria based on experience.
Very informative, you need to be comfortable with your team that treats you.
Looks like Brian has lost a few pounds. 👍
Listening to you, I feel I probably have the right guy in my neurologist. Thanks guys!
Best regards from Sweden
excellent programming. please do a deep dive into the zhittya genesis medicine and a company called charco cue 1 . my wife is at the stage to find a good mds in madison,wis. and the hardest thing is dealing with off times. 2 on 2 off. so they are suggesting dbs or a duopa pump. i hear a new pump design is in human trials. can't wait to be approved. that fgf-1 looks promising but it's almost to good to be true.
Please check out power for Parkinson's on you tube for exercise and community if you are not able to join a local place. Parkinson specific exercises to help you keep moving.
Good day guys! Great topic. For me personally after my initial visit(s) with a neurologist I was sent to MDS at UBC in Vancouver. Luckily, she has been great and treating me and my issues. But if I felt that something was off I would totally try someone else. 🤙🏽🇨🇦
Totally agree!
I live in san Francisco Bay area and love your show: short, informative.... My MDS advised me in March 22 to get DBS and I agreed.. The average waiting list is crazy: 2 years in UCSF 12 months in Stanford and Kaiser..
What is the waiting list in your area?
Elias,
I was pretty lucky and got in within 6 months. I would guess that's the normal time here in Central Ohio.
I live in New York. How would I access the zoom classes you mentioned.
Funny you should ask! We just recorded an episode like 5 min ago that talked about accessing the home workout series and/or zoom workouts. Reach out to Melissa Carlson at melissa@pdnextsteps.com or visit www.pdnextsteps.com
This is such a good podcast. I live in Ireland and the care for Parkinson's is very bad. I feel like people see it as an old persons disease. I am in my fifties and was diagnosed three years ago but definitely had it for much longer. My doctor says he doesn't know anything about Parkinson's and my neurologist just looks after medication. I was On holiday lately and my left leg just did not work. I felt like I was using up my dopamine really quickly because of an adrenaline flow. Would I be able to access classes on zoom. Thank you. Eithne
So glad you are enjoying it! There definitely is a stigma that comes with Parkinson's. With the time difference, I'm not sure zoom would be the best option. But the gym I go to, PDNextSteps, has an At Home Workout Series. There are a LOT of options on there for a small fee I believe. Check it out: www.PDnextsteps.com
Thank you very much for your help
Jessica u don't look have Parkinson's
If you have been watching our podcast or any PD podcast, you should know that there are many faces of Parkinson’s and there is no Parkinson’s “look”. I have Bradykinesia (which you can’t see on the podcast because it’s slowness in movement), I have ridigity along my right side, I have tremors but I’m on medication that helps and we record during my “on” time, my writing is horrible, I suffer from depression which is curved now by medication, and I don’t sleep at night. That’s my “look”.