ASPIRE - Susan Swedo, MD - PANS & PANDAS Recognition, Diagnosis & Treatment

ASPIRE PANS PANDAS Treatment & Scientific Updates webinar series
Lecturer: Susan Swedo, MD
Webinar: PANS and PANDAS Recognition, Diagnosis and Treatment of Acute-onset Neuropsychiatric Symptoms
Recorded: Thursday, March 24, 2022
For more information on ASPIRE’s Webinar Series: aspire.care/resources/aspire-...
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Download ASPIRE’s PANS PANDAS Diagnosis and Treatment - Resources for Clinicians: aspire.care/clinicians/aspire...
Download ASPIRE’s Overview of PANS PANDAS Toolkit: aspire.care/clinicians/aspire...
ABOUT ASPIRE:
Our Mission - To improve the lives of children and adults affected by PANS, PANDAS, and related encephalopathies.
Our Vision - We aspire to create a world where children and adults affected by PANS, PANDAS and related encephalopathies obtain a timely diagnosis from informed providers and receive effective, proven and affordable treatments and support in all areas of daily living, without discrimination.
Who We Are - We are experienced leaders in the PANS advocacy community. We are parents, providers and experts in our field who believe collaboration and empowered action are the keys to the world we seek: one where no one suffers through PANS and immune-related encephalopathies without access to a knowledgeable provider, insurance coverage for standard-of-care treatments or the support that comes with public awareness.

[@smileyjoewiley8319]

Is Cunningham panel helping to diagnose Pan/Pandas?

[@aspirepanspandas]

Since PANS/PANDAS is a clinical diagnosis, the CP is not required. aspire.care/symptoms-diagnosis/diagnosing/

[@smileyjoewiley8319]

Thank you very much, all the information are very helpful since I am coming from the country where is hard to get professionals that understand Pans/Pandas. Thank you for all.

[@Evelyn-zn6td]

It’s so frustrating… My pandas dr recommends tonsils out, but at 1hr05min Dr Swedo says it can make things worse. My son constantly has colds, but I have no idea of any of them were strep. If my son got worse after removing t&a it would be devastating.

[@aspirepanspandas]

Is your dr Dr K?

[@mamigetsreal4503]

@@aspirepanspandasyes. Here. He recommends tonsils out first.

[@ROBERTRDEMARTINO57]

What about adults suffering forever.??

[@aspirepanspandas]

Keep treating with the full treatment triangle. And also work symptomatically.