Progeria: A Growing Hope

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  • เผยแพร่เมื่อ 29 ธ.ค. 2024
  • Part 2: A new drug treatment adds hope -- and maybe years -- to lives of kids with aging disease.

ความคิดเห็น • 676

  • @baharam98
    @baharam98 ปีที่แล้ว +10

    "Don't let one thing, ruin your life." So much wisdom in that saying. Much love and respect to you and family.

  • @donkeylvr.1925
    @donkeylvr.1925 8 ปีที่แล้ว +61

    If we all just had an ounce of her attitude and energy this world would be such a better place

  • @savannahmathis9381
    @savannahmathis9381 8 ปีที่แล้ว +35

    I've watched this video a million times and cry each time. Haters are so heartless its unreal, they need to be put in their place. These girls are so amazing and their positive outlook on life inspires me.

    • @scarbarber2129
      @scarbarber2129 7 ปีที่แล้ว

      Savannah Mathis I like how she looks like an alien. Aliens are cool!!!

  • @viccy8609
    @viccy8609 9 ปีที่แล้ว +56

    Y'all need to stop being mean. This made me cry tears of joy because of what she wishes. You an amazing, young and beautiful girl😘.

    • @devoncheng5563
      @devoncheng5563 5 ปีที่แล้ว +5

      Literally no one was mean

    • @softy4803
      @softy4803 8 หลายเดือนก่อน

      area 51 creature

    • @joeyduberules
      @joeyduberules 2 หลายเดือนก่อน

      @@devoncheng5563 lmao, i think there's a word for that or a term...

    • @joeyduberules
      @joeyduberules 2 หลายเดือนก่อน

      @@softy4803 we'll assume youre 12.

  • @jorgealvidrez589
    @jorgealvidrez589 4 ปีที่แล้ว +60

    Who’s here in 2020
    Tell me if you want her tik tok

  • @jackycook64
    @jackycook64 9 ปีที่แล้ว +16

    I am so glad they are finally offering the drug trials to all of the kids with Progeria. These kids deserve every opportunity available!

    • @carolyoung9269
      @carolyoung9269 9 ปีที่แล้ว +1

      YAY Jackie!How are you? It's been a while my friend!
      🌈🐨

    • @carolyoung9269
      @carolyoung9269 9 ปีที่แล้ว +1

      To all of you wishing harm on these precious Souls. SHAME ON YOU! God gave them life with his ETERNAL Love just like everyone. They are more worthy of a place in his Kingdom of Heaven than the likes of you spewing hatred! You have obviously deluded yourself with your claims of not being a sinner but YOU CAN'T LIE TO HIM! By claiming you don't sin you are saying you are equal to him & we all know what happened to Satan & his lot.So keep going with your grandiose claims & lies but leave these little ones & everyone with a firm understanding of & grip on- reality, alone.You are CLOWNS!Don't take your anti-psychotics so you fast-track your final judgement.
      The sooner you are gone the better. Who did Jesus declare more worthy at the place where John was baptizing? The rich man who gave a bag of coins - a pitance for him;or the lady who gave a single coin-her wages for a full week & all she possessed?Now-GO AWAY! 🌈🐨
      

    • @jackycook64
      @jackycook64 9 ปีที่แล้ว +1

      Carol YOUNG​ Hi Carol! It has been awhile. Haven't been on much. Not doing well. Have to have another surgery. Dr said at least a 8-12hr surgery and possibility of losing more of both my large and small intestine. I know it will be fine. Have an outstanding surgeon that has done over 30 of my other surgeries. How have you been?

    • @carolyoung9269
      @carolyoung9269 9 ปีที่แล้ว +2

      jackycook64​​ There you are~ FINALLY!Missed you! YAY!! You really should donate your body to science~ YOU ARE PHENOMENAL!! I"m getting there,thankyou for asking.My hip is great~Just a bit wobbly still.Getting a brand knew shoulder within a few months.
      Pain is a bloody nuisance but you know that better than me.
      Do you have a colostomy/ileostomy? I'm surprised you have much left to play with. Wish I could make you all better forever! Hang in there honey~I value my friends! Mwwaaaahhh

    • @jackycook64
      @jackycook64 9 ปีที่แล้ว +2

      Carol YOUNG​ Thank you so much for your kind words! so glad your hip is doing so well. Praying that your shoulder does just as well. The pain is really a nuisance!!! I am surprised I have as much left to play with as I do. No colostomy yet. Just a j-tube. The tract for the tube, like the rest of my GI tract keeps breaking down. I will definitely donate my body. It is one crazy contraption!!! Wish I could make you better as well. But even with all these issues, I would have to say I have a very good life. Was so good to hear from you! Take care and keep in touch! I value my friends so much!

  • @lashawnablanton4649
    @lashawnablanton4649 6 ปีที่แล้ว +31

    God bless all children with progeria! God bless all children! #CureProgeria

  • @alilamberson8275
    @alilamberson8275 8 ปีที่แล้ว +170

    She is 9 now?
    I follow her on musically she is so sweet

  • @a1sauce374
    @a1sauce374 9 ปีที่แล้ว +16

    So cute and brave....so proud of this little angel that came from heaven...god bless you all who love this child of hope and confidence ;)

  • @allishaolsen1644
    @allishaolsen1644 9 ปีที่แล้ว +75

    She is sooo cute she is a diva

    • @srbroze
      @srbroze 9 ปีที่แล้ว

      I think it's cute that she's a diva :)

    • @allishaolsen1644
      @allishaolsen1644 9 ปีที่แล้ว

      Are you competing me

    • @allishaolsen1644
      @allishaolsen1644 9 ปีที่แล้ว

      Copyed

    • @srbroze
      @srbroze 9 ปีที่แล้ว +1

      What, no I was agreeing with you, sheesh

    • @maisyholzer9744
      @maisyholzer9744 9 ปีที่แล้ว +5

      such a beautiful girl

  • @elizabethmacy1643
    @elizabethmacy1643 11 ปีที่แล้ว +11

    "Dont let one thing ruin your life." So true keep fighting for progeria.

  • @chainsawkitten3766
    @chainsawkitten3766 7 ปีที่แล้ว +19

    Why should they have to pay when they are in a drug research/trial?? One would think it would be free for them.

  • @phillipmedeiros3962
    @phillipmedeiros3962 10 ปีที่แล้ว +87

    Soooo Cute! Jesus please try and do something with this disease. I am soooo lucky to not have this disease but she got struck with such a horrible..... Horrible..... Horrible disease ;(

  • @troyswife71
    @troyswife71 10 ปีที่แล้ว +111

    Thumbs up if u think she is cute,awesome,and most of all brave!!!!👍💪☀

  • @edwardramsey527
    @edwardramsey527 7 ปีที่แล้ว +1

    She's so bubbly happy. Just beautiful, funny the whole family is awesome. Kaylee your a shining star.

  • @crybaby9800
    @crybaby9800 8 ปีที่แล้ว +21

    Those kids are so happy,and we have everything and not happy even tho we are healthy!
    I AM SO SHAME OF MYSELF,I HAVE EVERYTHING I EEVER WANTED,AND NEVER HAPPY!

  • @tosh7989
    @tosh7989 8 ปีที่แล้ว +5

    5:04 is the mother of Sam Berns. Sam Berns Had Progeria as well but he died at the age of 17. To be honest he is very lucky to live the age of 17.

  • @rainstorm.
    @rainstorm. 8 ปีที่แล้ว +33

    I love her they were right she is now a musical.ly star

  • @ruchikakarmakar3545
    @ruchikakarmakar3545 9 ปีที่แล้ว +6

    She has that awesome thing "Confidence"...Stay Blessed sweetie...

  • @carolyoung9269
    @carolyoung9269 9 ปีที่แล้ว +1

    Dear God I love Barbara! Who better for this interview?!😀 I certainly pray for these little angels & their families. PLEASE LORD HELP MANKIND TO FIND WAYS TO HELP ALL WHO SUFFER. 🌈 🐨

  • @anniemac7625
    @anniemac7625 9 ปีที่แล้ว +15

    I love how sassy and cute she is

    • @scarbarber2129
      @scarbarber2129 7 ปีที่แล้ว +1

      Ånnëka Cat queen I really like how she looks like an alien. Aliens are cool!!!

  • @mrsub4subb
    @mrsub4subb 9 ปีที่แล้ว +11

    They are such cuties. I wish they could grow their own hair too, something we all take for granted. ♥

  • @Zumbagirl517
    @Zumbagirl517 6 ปีที่แล้ว +4

    She’s so brave! She more mature than a lot of kids her age!

  • @jovanisis7050
    @jovanisis7050 9 ปีที่แล้ว +25

    I love like they dont even care about their looks, they are really brave :) I mean really.

    • @EmPurple
      @EmPurple 3 ปีที่แล้ว

      Yup. The happiest people don't have vanity. I know I don't, I never bother with make up. I will brush my hair and wear casual clothes. I just want to live life and have adventures like these people with projeria.

  • @sgtpepper915
    @sgtpepper915 11 ปีที่แล้ว +1

    What a beautiful child! The world is better because she is in it.

  • @mariareneecurry1073
    @mariareneecurry1073 8 ปีที่แล้ว +20

    To be honest SHE'S GORGEOUS!!!😍😍❤️❤️💠🌀

    • @scarbarber2129
      @scarbarber2129 7 ปีที่แล้ว

      Maria Renee Curry that's gross

    • @JaneDoe-jr6wc
      @JaneDoe-jr6wc 5 ปีที่แล้ว

      Heavy, she is a beautiful gorgeous little girl

    • @HarryBerry316
      @HarryBerry316 4 ปีที่แล้ว

      Ee

  • @estherharrison3786
    @estherharrison3786 2 หลายเดือนก่อน +1

    Bless all these children 🙏

  • @xavierjoell5814
    @xavierjoell5814 8 ปีที่แล้ว +6

    her voice makes me smile

  • @bdahmartlangte5551
    @bdahmartlangte5551 4 ปีที่แล้ว +1

    Why they all are so special.. active.. funny .. kind ..etc.. everything nice.. omg.. they are really a Gift.. 🥰🥰🥰

  • @chubbsthebunny9437
    @chubbsthebunny9437 11 ปีที่แล้ว +11

    she's so cute!!!!!!!!! Thumbs up if u agree!

  • @theresarivera5369
    @theresarivera5369 10 ปีที่แล้ว +13

    Awwww... I love her 😊

  • @Jaadaaxoxo
    @Jaadaaxoxo 4 ปีที่แล้ว +8

    I remember when I use to see her on musically all the time💞😩 she’s about to be 17 !💕 on July 21st

    • @mariahsrobloxyt
      @mariahsrobloxyt 5 หลายเดือนก่อน +2

      Her golden birthday is today! (She turned 21!)

    • @Jaadaaxoxo
      @Jaadaaxoxo 5 หลายเดือนก่อน +1

      @@mariahsrobloxyt that is so crazy to meee and no way i commented this 4 years ago lmao

  • @kylir6399
    @kylir6399 9 ปีที่แล้ว +3

    you guys stop being mean to her she's too beautiful just the way she is

  • @homerminor8024
    @homerminor8024 4 ปีที่แล้ว

    Really inspires me with the angels and their bravery, as they face this disease daily and have the best outlook!! Watch these videos and it changes my perspective on how to face adversity. These sweet babies are brave heroes...In Jesus name,heal them!!

  • @troyswife71
    @troyswife71 10 ปีที่แล้ว +59

    God bless her thumbs up if u agree!👍

  • @bonnie4961
    @bonnie4961 9 ปีที่แล้ว +4

    These little girls are precious

  • @larman58
    @larman58 11 ปีที่แล้ว

    I love this little lady....stay bless Kaylee!!!!!

  • @QueenPenelope19
    @QueenPenelope19 4 ปีที่แล้ว +2

    Omg she was so young and now she’s a grown up🥺🥺🥺🥺❤️❤️❤️❤️

  • @nofomama9205
    @nofomama9205 7 ปีที่แล้ว +1

    How can people even Dislike such a Beautiful And Inspiring video?!?

  • @patriciajgreen2995
    @patriciajgreen2995 8 ปีที่แล้ว +3

    It is more than a growing hope it is a so much more. I Love these children with all my heart

  • @DunkeePlzSubscribe
    @DunkeePlzSubscribe 8 ปีที่แล้ว +2

    0:50

  • @sanmiguel3827
    @sanmiguel3827 11 ปีที่แล้ว +15

    thumbs up if u think shes the bravest 6yr old ever! so cute :)

  • @kay6521
    @kay6521 7 ปีที่แล้ว +1

    awww they're voices are adorable

  • @witchplease9695
    @witchplease9695 12 ปีที่แล้ว

    Such beautiful and bright little girls. God bless the both of them.

  • @_sashitheedreamangel24_
    @_sashitheedreamangel24_ 9 ปีที่แล้ว

    She is so adorable, I will keep her in my prayers!!!

  • @rockylosco5596
    @rockylosco5596 5 ปีที่แล้ว

    What a sweet girl,what a personality,Lord Jesus let this precious precious girl live a long life,let her shock this world Lord,amen

  • @iturgirltaetae3773
    @iturgirltaetae3773 8 ปีที่แล้ว

    yeah I almost burst out in tears watching this video she is so cute and I love her voice

  • @simonepowell906
    @simonepowell906 8 ปีที่แล้ว

    she is so beautiful and confident and doesn't let things stop her

  • @myfz6
    @myfz6 12 ปีที่แล้ว

    They r such precious little ones. These families need our love and support not just words buy they need us to act and donate what u can even if its just $1

  • @Roger9Wilco
    @Roger9Wilco 11 ปีที่แล้ว

    She talks and acts like a young adult. She is indeed amazing.

  • @brooklinwebb9546
    @brooklinwebb9546 7 ปีที่แล้ว +3

    love her personality

  • @San47di
    @San47di 10 ปีที่แล้ว +1

    This beautiful child simply touches your heart!! :-)

  • @kellybowen2493
    @kellybowen2493 11 ปีที่แล้ว

    who could not like this.... it made my heart melt god bless you guys also in my prayers...

  • @emmakateguy9200
    @emmakateguy9200 3 ปีที่แล้ว

    I commented just so there wouldn’t be 666 comments... I love how great her personality is!

  • @driptoffen3604
    @driptoffen3604 7 ปีที่แล้ว +1

    What a Smile.....I wish you gonna celebrate your 100 birthday

  • @trevorharbolt6293
    @trevorharbolt6293 6 ปีที่แล้ว +1

    I love her voice

  • @christonrodriguez3374
    @christonrodriguez3374 9 ปีที่แล้ว +1

    I give props .. GOD SHOULD BLESS her ..she is an amazing girl.

  • @giadamagala3995
    @giadamagala3995 หลายเดือนก่อน

    E un piacere vedere che i genitori riescono interagire con loro riuscendo a tirare fuori la loro intelligenza!!! Bravissimi ❤❤❤❤

  • @BlessUPkinFOLK
    @BlessUPkinFOLK 4 ปีที่แล้ว +1

    I watch this video so many times and still can't stop crying 😭

    • @Thevoices1
      @Thevoices1 8 หลายเดือนก่อน

      Do you still watch it?!

  • @charitinii2244
    @charitinii2244 8 ปีที่แล้ว +14

    i follow her on musical.ly and she's just the cutest 😍

  • @calynndabarbie9118
    @calynndabarbie9118 8 ปีที่แล้ว

    Bruh this made me cry because she's so beautiful .... like I'll donate my hair for her she's awesome

  • @beckybojoy
    @beckybojoy 11 ปีที่แล้ว

    Love these strong beautiful souls they inspire and are real gifts

  • @shenitabeck2893
    @shenitabeck2893 10 ปีที่แล้ว

    I can move it she is awesome little girl I love her even though I don't know her she is brave and know how to survive good job boo keep it going

  • @clasherfn
    @clasherfn 8 ปีที่แล้ว +6

    Hi actually she is a star on musical.ly who follows kaylee halko on musical.ly

  • @renwong6327
    @renwong6327 12 ปีที่แล้ว

    I hope kaylee continues to live a long and healthy life

  • @miyaandgrace246
    @miyaandgrace246 12 ปีที่แล้ว

    Pray for these girls. they both are beautiful and hope that doctors find a cure!

  • @makennastoddard2536
    @makennastoddard2536 8 ปีที่แล้ว +3

    Her brother are so kind to her

  • @twosongs7396
    @twosongs7396 ปีที่แล้ว

    You are a Star, my Love. I carry you in my heart and always will. I’m so sorry I wasn’t able to pursue my studies. I’d hoped to participate in an effort for a cure… but I couldn’t afford continuing my studies.

  • @rockylosco5596
    @rockylosco5596 5 ปีที่แล้ว

    Folks,”don’t let one thing ruin your life”,wisest statement I ever heard,from the mouths of babes God has perfected praise!

  • @EnviousWingDings
    @EnviousWingDings 7 ปีที่แล้ว +2

    I think this lovely child is just so beautiful. She is just the sweetest girl I have ever seen. I really hope we can find a way to let these people live long and comfortable lives.

  • @bhavitasingh3764
    @bhavitasingh3764 8 ปีที่แล้ว

    Kaylee ,we all have deep regards to u ,it's so nice for a girl living with progeria act live as if she is a normal human being .enjoy your life kaylee.many people in ,India know you ,even I'm 13 years old

  • @sutoeben
    @sutoeben 7 ปีที่แล้ว

    If the US had universal healthcare that would take away the financial stress.

  • @akritikhanal3243
    @akritikhanal3243 8 ปีที่แล้ว

    she is such a big inspiration for me......

  • @morito2321
    @morito2321 8 ปีที่แล้ว +8

    she's so cute and funny ☺❤

  • @sevenfuntasticdolls5154
    @sevenfuntasticdolls5154 8 ปีที่แล้ว

    my fave is when she said she's a star but really when she said yeah, mhm😍😍😘😍😍😍😍😘😘😘😘😘😂😍💓😘😘💓😘😂😍😘💓😘💓😘💓💓😘💓😘💓😘😘💓😂😍😂😍😂😍😂😍😂😍😍😂😂😍😍😂😍💓😍💓😍😍😂😍😂😍😂😍💓😍💓😍💓😘😂😍😂😍😍😂😍😂😍😂😘😘😘😂😍😂😍😂😘😂😘😂😘😂😍😂😘😂😂😂😍💓😍💓😍💓😍💓😍💓😍💓💓💓💓💓💓💓😍😍😍😍😍😂😘😘😘😘 and more

  • @Zumbagirl517
    @Zumbagirl517 6 ปีที่แล้ว +1

    Beautiful brave girls!

  • @drippypipes1932
    @drippypipes1932 8 ปีที่แล้ว +2

    Aww she is the sweetest thing ever❤️❤️❤️

  • @Morethanlife-tw3bh
    @Morethanlife-tw3bh 11 ปีที่แล้ว

    She is loved and will live a happy life

  • @crystalprados3601
    @crystalprados3601 7 ปีที่แล้ว

    all love this girl in her story she is so beautiful

  • @kmcghee143
    @kmcghee143 8 หลายเดือนก่อน

    Absolutely Adorable!!!❤❤❤❤

  • @Ceecee123
    @Ceecee123 11 ปีที่แล้ว

    she is definitely verrrrrrrrrrrrry fabulous!! so cute! god bless her!=)

  • @Trekzah
    @Trekzah 11 ปีที่แล้ว

    She is so precious.

  • @marciacarr2054
    @marciacarr2054 8 ปีที่แล้ว +1

    she is so sweet and i wish her all the best💜

  • @juanwani1851
    @juanwani1851 6 ปีที่แล้ว

    May the good lord guide and protect all the children with progeria all over the world

  • @alexnky2257
    @alexnky2257 8 ปีที่แล้ว

    I love her little squeaky voice it is adorable

  • @TheR005ter
    @TheR005ter 8 ปีที่แล้ว

    Does anybody know how we can follow them to know how there doing these little girls are real brave and strong too.

  • @wioi
    @wioi หลายเดือนก่อน

    Oh Ooh Ooh my little dear, If I only had thousands of dollars to spare for you, your family and children like you I swear I would! If I win the big lottery I would spare millions for your medicine. If I only had even millions to spare for you little angels I would. I hope that you can live a long fulfilling life. ❤

  • @chloekirk1500
    @chloekirk1500 11 ปีที่แล้ว

    they're both so adorable. especially with those bean boots

  • @kyleejo7569
    @kyleejo7569 10 ปีที่แล้ว +3

    The most adorable thing g I have ever seen

  • @laurena5769
    @laurena5769 8 ปีที่แล้ว

    such nice girls with good families stay fabulous and dont let one thing ruin ur life follow her motto

  • @jooooooswuck
    @jooooooswuck 11 ปีที่แล้ว

    I. LOVE. HER!!!!! She's amazing!

  • @jawn9915
    @jawn9915 8 ปีที่แล้ว

    I FOLLOW KAYLEEEEEEEE!! ON MUSIC.LY GOD BLESS HER

  • @bhavitasingh3764
    @bhavitasingh3764 8 ปีที่แล้ว

    Guys, kaylee is actually 13 years old ,go check it on google she born on July 2003

  • @kaitlynkaitlyn3076
    @kaitlynkaitlyn3076 8 ปีที่แล้ว

    Their both ADORABLE!

  • @kelmi412
    @kelmi412 10 ปีที่แล้ว

    "Be fabulous. Don't let one thing ruin your life."

  • @VanessasCrafts
    @VanessasCrafts 12 ปีที่แล้ว

    They are both Beautiful!!!

  • @nicolen7094
    @nicolen7094 8 ปีที่แล้ว

    I love her she's so energetic and happy

  • @audikeepsdancing5487
    @audikeepsdancing5487 8 ปีที่แล้ว

    I like that she loves the way she is.

  • @ruvstof
    @ruvstof 9 ปีที่แล้ว

    This touches me, we forget about time.

  • @CubanPete1990
    @CubanPete1990 10 ปีที่แล้ว

    Will they show her on Ripley's believe it or not?