I've been getting Botox every 12 weeks for the last 2 years. I've found it very helpful for me. I always book my physio therapy for the same day to help get it moving into the muscles as suggested by my Physical Therapist and my Physiatrist who does my Botox injections I also go to physiotherapy every other week and do about 2 hours a day every day except Sunday at home. Just the other day at therapy I was able to move my foot from the ankle. I've been able to lift the toes of the affected side for a while but, lifting the foot by bending at the ankle was new. I'm due for more Botox in about 4 weeks. Still hoping to get hand and finger movement back some day. My stroke was Dec 29, 2019.
Wow, that's so good; glad to hear Botox is helpful for you. May I ask whether your insurance covers the cost? Or you need to pay for all of the costs of getting Botox. Thanks!
Botox was great for me, helped my affected left arm. Received injections every 3 months for 1 year, now just twice a year. The cons are the injections are very painful and out of pocket money is a lot. 3 year stroke survivor, Julius from Vero Beach, Fl
my wife is in the process of being approved for botox treatments and we are looking forward to seeing if it helps! coincidences are strong w your channel, every new vid is something we are dealing w specifically at the same time, AND we have the same sun print in our kitchen hahahhaa
I am planning to take Botox in this week for my elbow and wrist. Can please suggest some exercises videos for elbow and wrist for post Botox treatment.
After my 1st stroke in 2013 I spent 9yrs walking on my toes well the ball of my right foot. So after the 3rd stroke they tried to fix it with Botox. With an AFO and the change is amazing after 4mths But it’s wearing off now and in England I have to go on a waiting list which is a year long. But I think with continuing with my boot I might not need it again. xx
Each case is different. I can only share my experience. When I was in intensive rehab, my doctor and my PT put pressure that I got Botox in my left calf to reduce spasticity and clonus. I was relunctant to do it. I finally concede. I got injections 3 times during the year. Each time, I wasn't sure it was a good thing to do. I finally decide to stop receive it, against the advice of the doctor and the PT. 10 years later, I still got spasticity and clonus, but I learn to manage it. My left calf is less than half the size of the right calf, even if I do a lot of exercises (walked more than 10 000 steps each day since the beginning of this month for example). I don't know how the things would be if I haven't had those injections, but my feeling is that the size of my calf is in part the result of them. If it was to be done today, I wouldn't get those injections.
Spasticity after stroke got me feeling helpless and depressed, toes do their own thing and it hurts to walk or try to run/jog like I used to normally do. It hurts after a while, dealing with every minute of every day. My first trial of botox has gone alright, one particular contracture is less painful but it was a small dose. Insurance is a pain in the ass, and getting the shot in the bottom of the foot like I did friggin hurts!
I’ve had brain injury in 2016 and because of it I started feeling spasticity after 2-3 years in my right hand and right leg. I tried to control it for 2-3 years but my hand wouldn’t open until I pull my fingers out so I got Botox and it actually helped a lot but I didn’t use to exercise daily because of which it’s getting bad and I have to increase the dose, now my right leg was in control till last year but then the condition started to get even worse and now my right foot rejects my body weight, I’m thinking to go for Botox in my right leg too. My advice would be to take Botox and to exercise each and everyday till you are alive.
TBH, i had an ischemic stroke back in 2015, which damaged 2/3rd of my brain's right hemesphere, mainly right MCA twrritory, resulting in left sidsd hemiparesis. Have gone for botox sessions twice, but suprisingly with no effects. Infact my PMR waz Lso confused seeing that.i found daily intense streaches by my physical thwrapist more effective and way lwss expensive.
I've had Botox injections since the beginning of my stroke. It certainly helped with the severe pain I was in and the high tonicity. However the side effects for me are atrocious. I wouldn't mind so much if it wasn't impacting my lower limb treatment. Can't walk or exercise if you are dizzy, weak and tired. Several weeks of flu like symptoms, extreme fatigue, aching body, all over muscle weakness, dizziness, double vision for around 6 weeks and constipation. I was getting the maximum dose of 1500 units. I read that to keep side effects at bay for us sensitive people, it has to be under 500 units, but I still get side effects but less. At least the double vision has eased. It's a necessary evil for me.
I had botox a few years ago but the volume is too low coz share with other customers. How much is the volume needed.. My spasticity is getting worse.. Please help me..
@BenSo, Thank you for sharing your experience. I'm sorry it didn't help you as much as you'd hoped. You'd need to see your doctor or neurologist for specific dosage and injection site recommendations. While daily stretching is not a long term fix for spasticity, it can help to better manage in the short term. I have several stretching for spasticity videos which are linked at the end of this video. You may find those helpful ❤️
I regret everyday that I tried Botox it relaxed my leg muscle so much it took away my ability to walk even after even after adjusting the dose. I went from walking with and without a cane to walking now with a walker which I never needed before.
I’m so sorry you had such a bad experience. Thank you for taking the time to share as other survivors might find it helpful when weighing the decision with their doctor. Are you still able to get therapy?
@CarrieA, Thank you for sharing your experiencing. It must be frustrating to have to continuously go back every 12 weeks for injections as the side effects wear off ❤️
I developed antibodies after two years of Botox injections (every 4-6 months) in my hand, arm, lower leg and foot, so there was no effect of the Botox, the blocking of the synapses did not work anymore. The treatment was purely cosmetic, motorically it did nothing, although I had a lot of specialized neurological therapy and practiced myself as best as I could. Botox is not a pill that you take and then your symptoms are gone. If you don't continue to go to therapy consistently and with motivation after treatment, you will have little or no benefit. My spasticity and tone in my arm, hand and foot is worse now than before treatment. My muscle tissue is stiffer and more gummed up than ever, my therapists agree. In my opinion, the therapy is used too quickly and inflationary. Long-term side effects are not yet sufficiently researched, Botox is definitely not a miracle cure after a stroke!
@karenmuller, Thank you so much for taking the time to share your experience and insights! Developing the antibodies can be so frustrating as the effectiveness wears off. You're absolutely right that you need to continue with movement and therapy after the injections to really see the benefit. It's not a miracle cure on its own and as I mentioned in the video, the decision to get Botox injections should be discussed with one's doctor! Thanks again ❤️
@@PostStrokeOrg you are welcome ☺️ It is also important to go to a specialist who knows well the anatomy .Here in Germany, the injection is mostly done under EMG to be sure to inject the muscle at the spot with the highest potentials. I have already heard from fellow patients that there are doctors who inject into the muscles on the off chance..., that is a NO GO!
If you go to physiotherapy it will keep getting better till the effect starts to wear off and if you don’t then you’ll only feel a little or no effect at all
I had a tbi in august 2022 my arm isn’t as spastic now but my wrist and hands are still stiff. I hope the Botox helps relieve it soo I can work on finger movements
I've been getting Botox every 12 weeks for the last 2 years. I've found it very helpful for me. I always book my physio therapy for the same day to help get it moving into the muscles as suggested by my Physical Therapist and my Physiatrist who does my Botox injections I also go to physiotherapy every other week and do about 2 hours a day every day except Sunday at home. Just the other day at therapy I was able to move my foot from the ankle. I've been able to lift the toes of the affected side for a while but, lifting the foot by bending at the ankle was new. I'm due for more Botox in about 4 weeks. Still hoping to get hand and finger movement back some day. My stroke was Dec 29, 2019.
Im having ttouble after stroke 2020 until today 2023
Spaticity, want to try botox
Wow, that's so good; glad to hear Botox is helpful for you. May I ask whether your insurance covers the cost? Or you need to pay for all of the costs of getting Botox. Thanks!
May I know what kind of treatment have you been doing? Just physical treatment or electrical stimulation as well?
Botox was great for me, helped my affected left arm. Received injections every 3 months for 1 year, now just twice a year. The cons are the injections are very painful and out of pocket money is a lot. 3 year stroke survivor, Julius from Vero Beach, Fl
❤
my wife is in the process of being approved for botox treatments and we are looking forward to seeing if it helps!
coincidences are strong w your channel, every new vid is something we are dealing w specifically at the same time, AND we have the same sun print in our kitchen hahahhaa
I really hope they help her! I'm glad my videos are touching on just the right subjects for you all. Haha It's a great print 🙂
What an amazing explanation Elyse, I have been receiving Botox every 3 months and recently had my 20th series of injections.
Thanks, Clive! And thanks for sharing a bit about your experience ❤️
I am planning to take Botox in this week for my elbow and wrist. Can please suggest some exercises videos for elbow and wrist for post Botox treatment.
After my 1st stroke in 2013 I spent 9yrs walking on my toes well the ball of my right foot. So after the 3rd stroke they tried to fix it with Botox. With an AFO and the change is amazing after 4mths But it’s wearing off now and in England I have to go on a waiting list which is a year long. But I think with continuing with my boot I might not need it again. xx
keep going :)
I'm grateful I found this about spasticity. I have a appointment this month.
Thanks for this information!!!😇🕊🕊
I hope your appointment goes well!!
I'll definitely share...
Your TH-cam channel is very helpful. Information I was searching for when I first got my hemorrhagic stroke.
Each case is different. I can only share my experience. When I was in intensive rehab, my doctor and my PT put pressure that I got Botox in my left calf to reduce spasticity and clonus. I was relunctant to do it. I finally concede. I got injections 3 times during the year. Each time, I wasn't sure it was a good thing to do. I finally decide to stop receive it, against the advice of the doctor and the PT. 10 years later, I still got spasticity and clonus, but I learn to manage it. My left calf is less than half the size of the right calf, even if I do a lot of exercises (walked more than 10 000 steps each day since the beginning of this month for example). I don't know how the things would be if I haven't had those injections, but my feeling is that the size of my calf is in part the result of them. If it was to be done today, I wouldn't get those injections.
I have the same problem and now I can’t control clonus anymore it’s getting difficult day by day I think I should get Botox
Spasticity after stroke got me feeling helpless and depressed, toes do their own thing and it hurts to walk or try to run/jog like I used to normally do. It hurts after a while, dealing with every minute of every day. My first trial of botox has gone alright, one particular contracture is less painful but it was a small dose. Insurance is a pain in the ass, and getting the shot in the bottom of the foot like I did friggin hurts!
I’ve had brain injury in 2016 and because of it I started feeling spasticity after 2-3 years in my right hand and right leg. I tried to control it for 2-3 years but my hand wouldn’t open until I pull my fingers out so I got Botox and it actually helped a lot but I didn’t use to exercise daily because of which it’s getting bad and I have to increase the dose, now my right leg was in control till last year but then the condition started to get even worse and now my right foot rejects my body weight, I’m thinking to go for Botox in my right leg too. My advice would be to take Botox and to exercise each and everyday till you are alive.
Always willing to heard your advice 😊😊
I'm currently going through a clinical trial for the Botox injections in my arm because I have really bad spasticity in my arm due to my stroke
I been receiving botox injections for about 10 years now
Any problems? Are they still as effective as the first year?
Im getting botox treatment in a week for spasticity in my arm
My friend had botox for incontinence, it lasted 4 for 4 months she loved it
Thank you for sharing!
TBH, i had an ischemic stroke back in 2015, which damaged 2/3rd of my brain's right hemesphere, mainly right MCA twrritory, resulting in left sidsd hemiparesis. Have gone for botox sessions twice, but suprisingly with no effects. Infact my PMR waz Lso confused seeing that.i found daily intense streaches by my physical thwrapist more effective and way lwss expensive.
Dysport is a Botox variant and I have found that it works faster and lasts longer than Botox.
what is the whole name of that again?? just short??
@@raulruizruiz9608 it is called Dysport
I've had Botox injections since the beginning of my stroke. It certainly helped with the severe pain I was in and the high tonicity. However the side effects for me are atrocious. I wouldn't mind so much if it wasn't impacting my lower limb treatment. Can't walk or exercise if you are dizzy, weak and tired. Several weeks of flu like symptoms, extreme fatigue, aching body, all over muscle weakness, dizziness, double vision for around 6 weeks and constipation. I was getting the maximum dose of 1500 units. I read that to keep side effects at bay for us sensitive people, it has to be under 500 units, but I still get side effects but less. At least the double vision has eased. It's a necessary evil for me.
I had botox a few years ago but the volume is too low coz share with other customers. How much is the volume needed.. My spasticity is getting worse.. Please help me..
@BenSo, Thank you for sharing your experience. I'm sorry it didn't help you as much as you'd hoped. You'd need to see your doctor or neurologist for specific dosage and injection site recommendations. While daily stretching is not a long term fix for spasticity, it can help to better manage in the short term. I have several stretching for spasticity videos which are linked at the end of this video. You may find those helpful ❤️
I regret everyday that I tried Botox it relaxed my leg muscle so much it took away my ability to walk even after even after adjusting the dose. I went from walking with and without a cane to walking now with a walker which I never needed before.
I’m so sorry you had such a bad experience. Thank you for taking the time to share as other survivors might find it helpful when weighing the decision with their doctor. Are you still able to get therapy?
Now that is scary to hear, since I am thinking about getting Botox injections for my severe spasticity.
I get Botox every 12 weeks per my neurologists recommendation. It helps, but I really wish it would last longer.
@CarrieA, Thank you for sharing your experiencing. It must be frustrating to have to continuously go back every 12 weeks for injections as the side effects wear off ❤️
Right! It takes a week or so to kick in, lasts a week or two and then u need it again….🙄
How much does Botox cost
I had bad stroke spacity in side of face will it help me?
Didnt work for me
Can Botox reduce spasticity?
I didn’t have a stroke I had a spinal cord injury
thank you very much Dr ELYSE
You are very welcome! 😊
Do you have a video about stroke and stemcell teraphy? Thanks
Thank you for sharing!
I developed antibodies after two years of Botox injections (every 4-6 months) in my hand, arm, lower leg and foot, so there was no effect of the Botox, the blocking of the synapses did not work anymore.
The treatment was purely cosmetic, motorically it did nothing, although I had a lot of specialized neurological therapy and practiced myself as best as I could.
Botox is not a pill that you take and then your symptoms are gone. If you don't continue to go to therapy consistently and with motivation after treatment, you will have little or no benefit.
My spasticity and tone in my arm, hand and foot is worse now than before treatment.
My muscle tissue is stiffer and more gummed up than ever, my therapists agree.
In my opinion, the therapy is used too quickly and inflationary. Long-term side effects are not yet sufficiently researched, Botox is definitely not a miracle cure after a stroke!
@karenmuller, Thank you so much for taking the time to share your experience and insights! Developing the antibodies can be so frustrating as the effectiveness wears off. You're absolutely right that you need to continue with movement and therapy after the injections to really see the benefit. It's not a miracle cure on its own and as I mentioned in the video, the decision to get Botox injections should be discussed with one's doctor! Thanks again ❤️
@@PostStrokeOrg you are welcome ☺️ It is also important to go to a specialist who knows well the anatomy .Here in Germany, the injection is mostly done under EMG to be sure to inject the muscle at the spot with the highest potentials.
I have already heard from fellow patients that there are doctors who inject into the muscles on the off chance..., that is a NO GO!
Oh my gosh! That’s bananas. Definitely need to find physicians with practice and experience administering the injections. Great tips!
Great video Elyse!!! Thank you
Glad you liked it!
I just had botox injected, it is already one week. I am still waiting for it to archive maximal effect. Does anyone here know it will achieve soon?
If you go to physiotherapy it will keep getting better till the effect starts to wear off and if you don’t then you’ll only feel a little or no effect at all
any special exercises after inject butox on stroke patien
plz guide msm plz 😊
I had a tbi in august 2022 my arm isn’t as spastic now but my wrist and hands are still stiff. I hope the Botox helps relieve it soo I can work on finger movements
Thank
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❤️❤️ Always nice to see you in the comments 🙂