Junk food makes me feel like I'm on street drugs, health food makes me feel like a genius, lack of sleep makes me suicidal... I have been hit by a car twice while on foot at the ages 11 and 17 that were going 45 mph. Life is very hard when your brain feels inflamed half the time and can't concentrate. I'm glad I'm not alone.
We're members of a small club, unfortunately. I was hit by a car 2x in my life: age 10 and 24. The first time my TBI was such that I suffered no real cognitive / physiological / or psychological consequences. Huge physical injuries, but I healed. The second time, not so lucky - meaning life changing TBI. Unfortunately, people don't understand how hard it is to live without cognitive and emotional filters, much less attempt to use them after you've retrained your brain. This real-time brain self-management means we have to intentionally monitor (and try to control) our verbal and non-verbal responses. Which - for a brain injury survivor - is physically, emotionally and psychologically exhausting. Life is never the same after TBI. No matter how healed someone looks or appears to be operating.
Motorcycle accident. I asked my husband of 50 years " go slow don't this road" he went 45 which I don't feel was slow. I blame him and hate it. 10 years!! Alot more then tbi. Stomach blew up. Uggg
I know that feeling. I was in a roll over 360 car accident, no seat belt and i was not ejected. I also fell out of a moving car when i was 3. It drives me crazy when i get emotional. When im not even sure what I am actually feeling or thinking.
Dating a guy that had a brain aneurysm, i love him and its so hard...so difficult. Thank you for tjis as i am trying to understand him becuz i love him so much
I’ve got frontal lobe damage, I can’t control my emotions. When my mum, dad, step mum, step dad and espy my sister died I felt blank. Relationships are effected badly, I am so impulsive I know what I’m doing is the wrong thing to do yet I’ll still do it. If I feel someone is not resorting me how I want I’ll not let it settle in my brain, I won’t stop thinking about it, I’ll keep going on about it, bombarding them with messages. If someone has seen my message and not replied I’ll get so anxious that they’re annoyed with me. I risk take beyond belief, I’m impulsive, I cannot problem solve, I can’t look at situations logically, my brain gets overloaded with a problem I can’t stop thinking about it.
Got a head concussion 5 years ago. I have emotional disruptions. I can’t go into detail. I have a hard time picking up on social cues too. I lost someone I think I loved after the concussion. Hope you find a husband! And feel all the way better!
Having a brain injury and controlling our emotions is so difficult. I will start crying when I’m overstimulated and start apologizing bc I can’t stop the tears even though I don’t want to cry. 4 years in and very very difficult still.
I hope you're OK. I'm going through so much loneliness after my tbi because of my emotions. It helps knowing that you guys are out there . This injury has taken everything from me , even my friends and girlfriend...... so I feel pretty awesome all of the time lol. sarcasm intended . I've never been this alone before ..... the thing I want most in the world is someone who understands me and a hug .....
I experience this almost daily. Emotional highs and lows are crazy! Anger is terrible. I know I get out of control but struggle to bring myself down. I have learned to walk away but that takes several minutes to figure out. 4months into my journey.
Thank you for sharing. The fact you are able to figure it out, even after several minutes, is a great step! That self-awareness can be one of the hardest parts. Being 4 months into your journey, I can confidently assure you that it will continue to improve and get better! The first year is the hardest. But you will also see a lot of improvement over time. You are not alone! -Cristabelle
I feel so validated. I was in a car accident a month ago and my Stanley knock was full of water and slammed me in the face at 30 mph and nothing is the same. I recently lost an extremely good friend, we’d been friends since we were 12, over this. The anger and outbursts are unbelievable.
I was in a severe horseback riding back when I was 21 I'm now almost 40 even though I look normal in how I walk and move and for the most part in how I talk, it still feels like a constant struggle more often and and nobody seize the amount of effort it takes each day and if you try to talk about it people start looking at you like you're making excuses and looking for sympathy when all you want is some understanding that you have things that you're struggling with and it doesn't seem like you're ever able to explain what you're going through or how you're trying to be the best version of yourself in the midst of it's all
I cannot handle going into any stores and use Amazon for absolutely everything including groceries. Even when groceries are delivered directly to my door, I usually try to snag the delivery person and offer them an extra 20 bucks just so they will put them on the counter for me. it generally takes me 4 to 5 hours to put everything away with all of the breaks I have to take. It’s a very defeated feeling 🩷
After my car accident and I had a concussion, I was flooding. I couldn't handle anybody talking to me. I couldn't handle asnoises even in apartment anywhere. I hate it hearing people talk. I felt like running away like get me on here. Get me out of here and it was how and people thought I was crazy and I thought I was crazy and then I went to a stage where I would sit there and I wouldn't get any housework done nothing for weeks. I forgot how to days I forgot. I'll do that and I thought what the heck is wrong. Just it's not me. What I hated is people saying oh you should have more self control. There are times when you try so hard and it just doesn't work. But as time goes on it gets better and when you can see some changes that our positive you feel so happy that you have at least seen the light at the end of the tunnel. Once thing that happened to me I started learning a different language and I started liking a different culture and learning the music. One thing that is wonderful is that you're never at a stage where you're not changing or not getting better.It just takes time there is still hope. I hate the Trying as if I was some continental basket case. Once you have a concussion, you are never the same person.It's almost like you're Morf into a different person.
had a brain injury from a removal of a brain tumor 4 years ago. Before surgery I was working out at 4am, ran 3 different businesses and had sharp math and memory skills. After surgery I wasn't able to sleep, terrible math, short term memory loss and absolutely no energy. I stumbled upon low dose psychedelics and this has really helped regain control of my thoughts and helped me out with sleep. Do you have any studies on low dose psychedelics for brain health? I am researching all of this on my own and would like to get help from someone who knows.
Your video helped me more in 19 minutes than any of these doctors. I used to be animated in voice and speech but after someone I once called my best friend shoved me into my dresser I bashed my head on the corner of it and blacked out briefly never got a brain scan since I was too scared. Flat affect ever since, emotions 0 or 100 no in between and lowered empathy and impulsive decision making. Can relate to others here saying junk food makes them feel like they're on drugs. Swore off artificial sugar and wheat 2 years ago because they make me feel suicidal. I like your analogy about having a sprained ankle and expecting not feel pain or to walk perfectly. The more mindfulness and patience we apply to ourselves the better life can truly be. Eating high fat/high protein has helped me more than any medication. Really beautiful how you combine your personal experiences with your music. Keep it up you're really positively impacting people more than many doctors.
Yeah, I had a TBI at the age of 21. Lost my ability to read and took years to improve. All the while, struggled with emotional self control. Time does it's healing.
I needed these about 3 years ago. My s.o. had a stroke and I had never dealt with anything like it. A life saving surgery they weren't sure she was going to survive. Within 2 years everything described here came out and I had no idea how to deal. The relationship ended and not a word has been spoken in a couple months now. A jump in to another relationship on her part and now I am grieving a loss. I tried so hard to help her see things and it became frustrating to me. Felt robbed of the relationship we had. The person with the injury isn't the only survivor in these instances.
Going through this also myself... My so had a cardiac arrest, survived but has changed... No empathy, random decisions and left... Im heart broken on my own with our 2 young kids... How do i deal with this i dk
@kelliebarrett4793 it's been nearly 2 years now since this person and I split. Ran into each other at the gym and I quickly realized that person I once loved died that day. I would suggest getting yourself into therapy and doing things to love yourself. Go to the gym. Read. Meditation. Focus on you. That person you once knew is long gone now unfortunately and there will never be a way of getting them back. In doing the work on myself and focusing on me, I met an amazing person who is entirely better for me and I'm sure you will as well. There will still be anger at times and that's normal but this too will lessen in time
Well, if feels ODD to hear someone talk like she understands me. Thats never happened. Ive been dealing with these things since I was 16... & Im 45 !!! I had a Huge Hematoma with NO HELP from Dr’s. I went into my shell, as I’ve always called it. Lucky I had Great Friends that I could just give a look & they knew we needed to Leave NOW. I didn’t even put 2 & 2 together until a few years ago when I heard someone talking about the effects of a TBI. I Always knew something was wrong but there was No Name. It feels good, Thank You.......
It is so helpful to hear the experiences of others with an ABI. Both of my daughters married within 10 years of my ABI in 2003 and although I was proud and happy, I could not cry at their weddings. I no longer cry at sad movies but I still 'know' it's sad. Thankfully, I also don't have the opposite - emotional outbursts or anger. 20 years later, it can still take days to realize that someone was rude to me while I just sat there smiling and completely unaware of the rudeness or sarcasm. During covid, like most, I became much more reclusive. However in the past 6 months I have purposely become involved with my church as much as I'm able and find social activity does help. Still have some embarrassing moments in conversation or just greeting an acquaintance but am trying to gently inform. ABIs are a perplexity for sure!
From my experience, where other people interpret my reactions as frustration or anger, it's actually distress because I have lost control or can't express myself in ways other people accept as being "normal". I'm so sorry you're going through this too. Good luck with your continued progress ❤
So true.... you can't really put into words 😫.... it's crazy... early on, I was irritable with my family... me not wanting my family to deal with this.... I've been irritable outside my family at work and other family that don't live with me.... it's like I'm channeling it to others at work, etc... It's like I'm protecting my kids and wife but now target outside my house....
I’m glad you said that, I don’t want to upset people I want to be on my own but everyone keeps coming round. I feel like screaming at them. I don’t want to up set everyone. It’s only been 4 months since my fall . I get burnt out really fast and don’t like listening to small talk it’s so unimportant.
This is so true I have been suffering a traumatic brain injury since May 27, 2021 since my car accident not only do I have a traumatic brain injury, but my vision is knocked off because of the impact of how he hit me on my driver side I had to learn how to walk talk even just so much but traumatic brain injury. Life is so different. I’m grateful for the dramatic brain injury fun that helps Everyone with things that your insurance company don’t cover. I am also grateful for the Love Your Brain 💜 organization that helps what keeping us motivated inspire doing yoga they have camps that you go to the camps are fundraisers not you know it’s just they make life so much better I like to BIAA which also Helps keep us engaged help. Keep us functionable with events with tickets to baseball games just cause with a traumatic brain injury, you’re isolated. I’m always home. You don’t know how your day is gonna go from a moment to moment everything she’s saying is absolutely 100% accurate and I suffer with the pressure in my head, but they called migraines daily the funnel rebel all of them all of them everything she’s saying is absolutely true Thank you for explaining
I had a traumatic brain injury called a subdiral hematoma at age 12 and now Im 47. The other day, my psychiatrist told me he believes that my panic disorder, issues with ADD, depression, emotional sensetivity, all of it stems from that traumatic brain injury. Im opposite from you, I get very emotional sometimes. Its so frustrating trying to find "why" you are the way you are. Also, my brain injury was to the back of my head to the left of my brain stem.
I'm a survivor too. I had a tbi when I was four to the left frontal and parietal lobes. Emotions have been an issue. Sometimes I don't feel much, but then at other times I'll cry and cry. They say I have pseudobulbar still, after 35 years of learning ways to cope, it can be an issue. I've always wanted to meet other survivors. I've been more impulsive lately, wanting tobacco even though I've realized it doesn't help, or buying too many sodas.
I received mine in 2020 I was involved in a motor vehicle accident. It punctured through my brain wall on my frontal low and I lost my orbital socket and temporal bone. I’m still trying to figure it out thank you for putting this content out there. I’m currently going through a divorce now I think she was not strong enough for me to recover and I find out the rest of society is in either we have to fight to stay with people
I just found out yesterday that I have a TBI from a car accident 2 months ago today. Your video encompasses everything I have been experiencing since the impact. Thank you very much for this insightful and honest feedback, you have helped me understand I’m not alone ❤ I’m struggling to learn who this new person is that I’ve become 😢
Same, but only 3 weeks ago, I've been overwhelmed by emotions, excessive uncontrollable crying, I feel burnt out. I've been lying to co workers saying I had allergies as my face is so puffy from crying, whenever I'm alone I just cry.
Thank you for creating and sharing. ❤I’m on my 10th concussion, and I’m feeling so irritated and more depressed. This is really helpful. I can relate to a lot of this.
Because others kept trying to tell me there is nothing wrong with me I started to belive it too. I hid and tried to overcompensate with evrything. Until I went back to school and realized what I used to do isn't working I HAD to face the truth. Your channel helped me see that it's OK to have a new normal and I need to find new ways of doing things. Thank you.
I just recently got my first brain injury a couple months ago and it’s been horrible. I feel so alone and like no one understands me. I used to be so chill and happy and I had a full time job/ social life that I loved, but now it feels like my whole world has been stripped from me. I’m supposed to get married in august but my Ingury has been so hard on everyone around me, it scared everyone, even my Fiance will leave before then.
Thank you, I use videos like this to help me recognize and express to other what is happening. Will have have family member watch the video you/other person explain what is happening to me. Because I can not find the words.
Thank you so much for your help, you are an angel on earth for doing this for so many. We do feel alone, we have god, who keeps us going, but to have humans be with us,helps to
I really wish there was more help for families. I don’t know how to get my child’s father to understand that even though he can’t help a lot of these behaviors, his reactions due to his ABI are really hurting our daughter who is little and can’t understand. I try so hard to do the right thing by both of them but sometimes I have to put our daughter first, otherwise she grows up thinking that it is ok to be treated this way, and her feelings are hurt all the time. I feel like I am the enemy and I hate it so so much. I don’t know what to do anymore. I don’t know how to help someone who doesn’t realize what they’re doing is hurting the people they love and who love them, who won’t recognize that this is an issue enough to try and get help for it. I cry so much about this.
That’s where I’m at too. It’s gotten to the point where all I can do is harm reduction. Which option is gonna make him less angry. But he’s always angry.
Same. I found out yesterday , it explains everything that has happened since my accident 2 months ago. I have to learn who the new person I have become is, and how to handle everything as a single mom. I don’t like that you all feel the same way; however, it gives me hope that I’m not alone in this uncharted territory ❤️
Yes... I've had times where I feel like I can't control my emotions..... I've had times where I got lost coming to work.... I had a moment of feeling blank like I didn't know where I was... it feels like it lasted 1 or 2 minutes. I was driving, I knew I was in my city but I didn't recognize my location. This was my daily route to work..... but I got lost for a moment. My location became recognizable after me trying to figure it out....
Mindfulness is really important to track how you’re actually feeling and then having some core people that can be safe and supportive. Unfortunately not everyone has that support but there is endless mindfulness videos and breath work can help too, helps interrupt the fight or flight many get into when they’re overwhelmed. Good sleep and a lot of hydration is also really important along with a healthy diet, healthy fats, no sugar etc.
I had documented tbi in 97, 99, and 2008 following car wrecks and several undocumented concussions My life has been nothing but a mess and I’ve sought treatment and always told the same thing My emotions are extreme and unpredictable I’ve felt im going crazy and not sure how to fix it
Frontal lobe damage from accident from 2004 and still trying to figure it out. Flat affect when I need to show more and outburst when I should have not shown more. Not crying at funerals but crying when in isn’t a normal crying moment. Once in a while for a moment it’s like the old way of thinking becomes at least observable and just as quick as it observed it is lost.
I’m not certain but I have had extreme issues with emotional regulation. Extremely forgetful, I’ll misplace legal documents, or earbuds, or jewelry. This usually sends me into an adult temper tantrum. I’ve been diagnosed with ASD but never really identified with any element other than the rigid thinking. My father was very disregulated himself, and maybe 3 weeks to a month ago I found out he would beat me in my crib as a baby for crying. I would come home from his house covered in bruises. Very young, no memory. I do remember being over at his house for visits and him getting frustrated either at me, my brother, or his game and throwing us in the direction of his bed. Sometimes we’d land on the mattress, other times the backboard. I had to be told by my Brother who remembers it vividly, as I had blocked it out. My disregulation is dangerous to myself and others, and trying to keep a lid on it is my hardest battle, but one I fight for the people I love, and who are positive forces in my life. Between throwing things, screaming until I get these “swirlies” in my vision, and self cutting, it leaves me feeling so disgusted because I never even began to consider that my brain might have actually been damaged through it all. I refused to. I wanted to know I had full control but the truth is I don’t. I have yet to even begin to understand what’s actually happening chemically in my brain. I can’t be certain, as I’m unable to afford a brain scan, but this sounds a LOT like what’s happening. I can’t stop crying I don’t know If I feel relieved or afraid. It feels like hopelessness has taken the place of my shame.
I am so sorry that happened to you. None of it is your fault. I am living with ABI, and late ASD diagnosis. TH-cam has been my major resource. Lived experiences such as Christabelle’s are essential to understanding you are not alone. I have found yoga nidra 2x a day, and vagus nerve exercises as needed v helpful w emotional regulation. Also eating healthy diet, lots of water, and much more sleep than I think I need! Limiting social interaction, to 2 hours max, even if I’m enjoying myself. Maybe some of these will help you also. Stay safe❤
I deal with repeating myself,poor temper,dysregulation,poor multitasking skills,poor short term memory etc... sad😢... I have given up in love because I do not believe any woman could cope with my TBI -"quirks"... Sad...
Feeling flat thats me 1 year after tbi and anger too those are my only two emotions after that car accident, im glad you touch the subject, and also gives me hope when you say its going to get better, im into bicycling just to keep myself into something that helps, thank you for your efforts to help.
I’m so glad I stumbled on your channel. I see this in my son (TBI) and often feel helpless how to help him or respond. Writing music is a great outlet for him, too. Thanks for sharing your journey.
Christine, Thank you so much for sharing this. It is wonderful that you are there as a support for your son, and just being there is more of a help than you may realize. I love that writing music is part of your son's journey too! I would love to hear it sometime! Hugs! -Cristabelle
@@hopeafterheadinjury it’s amazing! After his car accident, he picked up the guitar and started playing very naturally! Well enough to be invited to play with my worship team (I’m praying he’ll have the confidence to do that some day)! And you know, guys don’t really express themselves often-you are giving me great insight! Bless you 🤍
@@ChristineTrimpe Wow, that happened to me too! I started playing guitar not long after the injury! My other channel is th-cam.com/users/cristabellebraden - I write and record Christian music now, and songs about going through brain injury. So glad this has helped and I would love to invite you and your son to my zoom Brain Injury Bible Study group and our zoom Hope After Head Injury groups!
@@hopeafterheadinjury Oh my goodness, that is so sweet of you. I would love to check out the details. I'm going to look on your channel and see if you have a contact email and I'll send you an email. Thank you!
just today i went from feeling about 60% normal, to suicidal and angry, to hyper sensitive, brain dead to empty in about 3 hours. it is like this mostly because I ate mostly bread yesterday. but I don;t have any supports and its been 18 months since I was tortured and knocked out over 200 times over 8 months and shaken with a jackhammer till i puked and passed out. Havn;t seen a doctor since i was threatened to be stabbed and even if i did, i couldn't make words or even make sense until 9 months later. having ptsd and this is making my life a nothing, have no money, just sold the last i had for 4$. the food i get form the food bank makes my symptoms worse, but i can't afford to eat properly. my brain needs protein, seem red meats can help, but that is a item i could only consume for about 2 weeks over the last 18 months. About 6 weeks ago (can't keep track these days) I was able to see a video about anger managment then that is when I was able to identify the emotion. I went to a Elvis concert and he started to sing and tears rolled down my eyes. no facial expressions mostly. I did have a small short small grin happen, so I know I have emotions and can express them, but with no support from my country (Canada) I'm having difficulty to keep going and might just let the anger take over and take the law into my own hand before ending it.
My girlfriend 2 nights ago collapsed in the kitchen into a seizure that ended with me giving her CPR for 3 minutes until the paramedics showed up, the paramedics took 30 minutes of CPR to get her out of flatlining. Its day 2, she is breathing through a tube. This is so hard for me, whenever something bad happens she is there for me always, but she can't be here for this. I have to be strong for her and keep hope high but its so hard. I just hope she can get through this, her pupils respond to light and 2 days from now she will have her MRI
I also act much more introverted than I am. I love meeting new people. I do sales for a living, and I attend a lot of big industry conferences. I often have to leave and go somewhere quiet so my brain can digest all the stimuli. People think I'm shy....but I'm just trying to process things. I also yell at people a lot when I'm frustrated and/or tired.
Thank you for sharing💞 its nice to know someone else is going thru the same things I have also experienced. You are describing sooooo much of my feelings and struggles 💞
Spot on every thing you have said are we same person lol keep strong keep positive keep going dont give up giving up isn't a option proud of you very x
Stay strong stay positive stay safe everyone takecare sending luck hugs love from headway Nottingham UK you got this proud of you all well done keep going doing amazing things we are survivors xxx
After my car accident back in 9/11/23 I have had a hard time processing daily task. I have had a hard time dealing with depression. I have had thoughts of suicide
Does anyone know of an online support group for brain injured people? I would love to feel I'm not the only one with my problems but yet, get tips and advice how to deal with the problems! 😃 thank you!!
They have almost no support groups for us. The Mets community is made up of a bunch if dumbass not brain injured civvies. Let’s make some kind of superhero academy for tbi thrivers like us!
🫣 depends on the situation at hand. And past trauma and relearning what you use to know and overcame! When im tired you can tell more. My brain needs rest inorder to function.
Junk food makes me feel like I'm on street drugs, health food makes me feel like a genius, lack of sleep makes me suicidal... I have been hit by a car twice while on foot at the ages 11 and 17 that were going 45 mph. Life is very hard when your brain feels inflamed half the time and can't concentrate. I'm glad I'm not alone.
We're members of a small club, unfortunately. I was hit by a car 2x in my life: age 10 and 24. The first time my TBI was such that I suffered no real cognitive / physiological / or psychological consequences. Huge physical injuries, but I healed. The second time, not so lucky - meaning life changing TBI. Unfortunately, people don't understand how hard it is to live without cognitive and emotional filters, much less attempt to use them after you've retrained your brain. This real-time brain self-management means we have to intentionally monitor (and try to control) our verbal and non-verbal responses. Which - for a brain injury survivor - is physically, emotionally and psychologically exhausting. Life is never the same after TBI. No matter how healed someone looks or appears to be operating.
Motorcycle accident. I asked my husband of 50 years " go slow don't this road" he went 45 which I don't feel was slow. I blame him and hate it. 10 years!! Alot more then tbi. Stomach blew up. Uggg
Dude you are soooo on point jesus
Same here...
I know that feeling. I was in a roll over 360 car accident, no seat belt and i was not ejected. I also fell out of a moving car when i was 3. It drives me crazy when i get emotional. When im not even sure what I am actually feeling or thinking.
I have struggled so much with all this and the lack of compassion from people towards my recovery
I live this every day .. sad😢..
@@RoadRunnergarage8570ya they cannot understand us
Me too, that's why I have isolated myself out in nature. No one understands me but Mother Earth....😢🪶
@@brianrochman1443 I relate to you
@@brianrochman1443 I see you
Dating a guy that had a brain aneurysm, i love him and its so hard...so difficult. Thank you for tjis as i am trying to understand him becuz i love him so much
I'm proud of you for reaching out. Hope it's going well with your boyfriend.
Please don't forget to love yourself as well ❤
I’ve got frontal lobe damage, I can’t control my emotions. When my mum, dad, step mum, step dad and espy my sister died I felt blank. Relationships are effected badly, I am so impulsive I know what I’m doing is the wrong thing to do yet I’ll still do it. If I feel someone is not resorting me how I want I’ll not let it settle in my brain, I won’t stop thinking about it, I’ll keep going on about it, bombarding them with messages. If someone has seen my message and not replied I’ll get so anxious that they’re annoyed with me. I risk take beyond belief, I’m impulsive, I cannot problem solve, I can’t look at situations logically, my brain gets overloaded with a problem I can’t stop thinking about it.
Got a head concussion 5 years ago. I have emotional disruptions. I can’t go into detail. I have a hard time picking up on social cues too. I lost someone I think I loved after the concussion. Hope you find a husband! And feel all the way better!
🪖☹️🍦🃏
@@maynardglam how do you work? I have some of the same issues!!! But need to find a job.
Having a brain injury and controlling our emotions is so difficult. I will start crying when I’m overstimulated and start apologizing bc I can’t stop the tears even though I don’t want to cry. 4 years in and very very difficult still.
Let me take a wild guess. Are you a woman?
Maybe you have pseudobulbar affect
I hope you're OK. I'm going through so much loneliness after my tbi because of my emotions. It helps knowing that you guys are out there . This injury has taken everything from me , even my friends and girlfriend...... so I feel pretty awesome all of the time lol. sarcasm intended . I've never been this alone before ..... the thing I want most in the world is someone who understands me and a hug .....
Getting angry just at the fact of trying
Hi how are you please reply me. Have you recovered?
I experience this almost daily. Emotional highs and lows are crazy! Anger is terrible. I know I get out of control but struggle to bring myself down. I have learned to walk away but that takes several minutes to figure out. 4months into my journey.
Thank you for sharing. The fact you are able to figure it out, even after several minutes, is a great step! That self-awareness can be one of the hardest parts. Being 4 months into your journey, I can confidently assure you that it will continue to improve and get better! The first year is the hardest. But you will also see a lot of improvement over time. You are not alone! -Cristabelle
@@hopeafterheadinjury 3rd concussion in 6 years. Last one being a TBI. Improvement will happen
You’re not alone. Much love 💜
My Jesus bless You. I help a person with a TBI whose in a wheelchair he gets overwhelmed easily.
I feel so validated. I was in a car accident a month ago and my Stanley knock was full of water and slammed me in the face at 30 mph and nothing is the same. I recently lost an extremely good friend, we’d been friends since we were 12, over this. The anger and outbursts are unbelievable.
I definitely understood 3 years I’m coming up on. It’s like being a new person trying to figure out who you are
I was in a severe horseback riding back when I was 21 I'm now almost 40 even though I look normal in how I walk and move and for the most part in how I talk, it still feels like a constant struggle more often and and nobody seize the amount of effort it takes each day and if you try to talk about it people start looking at you like you're making excuses and looking for sympathy when all you want is some understanding that you have things that you're struggling with and it doesn't seem like you're ever able to explain what you're going through or how you're trying to be the best version of yourself in the midst of it's all
I have had two major brain injuries within months of each other. I have had so many issues that you describe. 😢 it is the worst experience ever. 2:00
I'm just exhausted all the time, everything takes 3 times longer to complete.
I cannot handle going into any stores and use Amazon for absolutely everything including groceries. Even when groceries are delivered directly to my door, I usually try to snag the delivery person and offer them an extra 20 bucks just so they will put them on the counter for me. it generally takes me 4 to 5 hours to put everything away with all of the breaks I have to take. It’s a very defeated feeling 🩷
After my car accident and I had a concussion, I was flooding. I couldn't handle anybody talking to me. I couldn't handle asnoises even in apartment anywhere. I hate it hearing people talk. I felt like running away like get me on here. Get me out of here and it was how and people thought I was crazy and I thought I was crazy and then I went to a stage where I would sit there and I wouldn't get any housework done nothing for weeks. I forgot how to days I forgot. I'll do that and I thought what the heck is wrong. Just it's not me. What I hated is people saying oh you should have more self control. There are times when you try so hard and it just doesn't work. But as time goes on it gets better and when you can see some changes that our positive you feel so happy that you have at least seen the light at the end of the tunnel.
Once thing that happened to me I started learning a different language and I started liking a different culture and learning the music.
One thing that is wonderful is that you're never at a stage where you're not changing or not getting better.It just takes time there is still hope.
I hate the Trying as if I was some continental basket case.
Once you have a concussion, you are never the same person.It's almost like you're Morf into a different person.
had a brain injury from a removal of a brain tumor 4 years ago. Before surgery I was working out at 4am, ran 3 different businesses and had sharp math and memory skills. After surgery I wasn't able to sleep, terrible math, short term memory loss and absolutely no energy.
I stumbled upon low dose psychedelics and this has really helped regain control of my thoughts and helped me out with sleep. Do you have any studies on low dose psychedelics for brain health?
I am researching all of this on my own and would like to get help from someone who knows.
Your video helped me more in 19 minutes than any of these doctors. I used to be animated in voice and speech but after someone I once called my best friend shoved me into my dresser I bashed my head on the corner of it and blacked out briefly never got a brain scan since I was too scared. Flat affect ever since, emotions 0 or 100 no in between and lowered empathy and impulsive decision making. Can relate to others here saying junk food makes them feel like they're on drugs. Swore off artificial sugar and wheat 2 years ago because they make me feel suicidal. I like your analogy about having a sprained ankle and expecting not feel pain or to walk perfectly. The more mindfulness and patience we apply to ourselves the better life can truly be. Eating high fat/high protein has helped me more than any medication. Really beautiful how you combine your personal experiences with your music. Keep it up you're really positively impacting people more than many doctors.
When this video started I thought to myself I wish someone with a tbi was the one speaking and then I related to almost everything you said
Yeah, I had a TBI at the age of 21. Lost my ability to read and took years to improve. All the while, struggled with emotional self control.
Time does it's healing.
It’s absolutely crazy, tbi emotions , almost 20 years for me
I needed these about 3 years ago. My s.o. had a stroke and I had never dealt with anything like it. A life saving surgery they weren't sure she was going to survive. Within 2 years everything described here came out and I had no idea how to deal. The relationship ended and not a word has been spoken in a couple months now. A jump in to another relationship on her part and now I am grieving a loss. I tried so hard to help her see things and it became frustrating to me. Felt robbed of the relationship we had. The person with the injury isn't the only survivor in these instances.
Going through this also myself... My so had a cardiac arrest, survived but has changed... No empathy, random decisions and left... Im heart broken on my own with our 2 young kids... How do i deal with this i dk
@kelliebarrett4793 it's been nearly 2 years now since this person and I split. Ran into each other at the gym and I quickly realized that person I once loved died that day. I would suggest getting yourself into therapy and doing things to love yourself. Go to the gym. Read. Meditation. Focus on you. That person you once knew is long gone now unfortunately and there will never be a way of getting them back. In doing the work on myself and focusing on me, I met an amazing person who is entirely better for me and I'm sure you will as well. There will still be anger at times and that's normal but this too will lessen in time
Well, if feels ODD to hear someone talk like she understands me. Thats never happened. Ive been dealing with these things since I was 16... & Im 45 !!! I had a Huge Hematoma with NO HELP from Dr’s. I went into my shell, as I’ve always called it. Lucky I had Great Friends that I could just give a look & they knew we needed to Leave NOW. I didn’t even put 2 & 2 together until a few years ago when I heard someone talking about the effects of a TBI. I Always knew something was wrong but there was No Name. It feels good, Thank You.......
It is so helpful to hear the experiences of others with an ABI. Both of my daughters married within 10 years of my ABI in 2003 and although I was proud and happy, I could not cry at their weddings. I no longer cry at sad movies but I still 'know' it's sad. Thankfully, I also don't have the opposite - emotional outbursts or anger. 20 years later, it can still take days to realize that someone was rude to me while I just sat there smiling and completely unaware of the rudeness or sarcasm. During covid, like most, I became much more reclusive. However in the past 6 months I have purposely become involved with my church as much as I'm able and find social activity does help. Still have some embarrassing moments in conversation or just greeting an acquaintance but am trying to gently inform. ABIs are a perplexity for sure!
From my experience, where other people interpret my reactions as frustration or anger, it's actually distress because I have lost control or can't express myself in ways other people accept as being "normal". I'm so sorry you're going through this too. Good luck with your continued progress ❤
So true.... you can't really put into words 😫.... it's crazy... early on, I was irritable with my family... me not wanting my family to deal with this.... I've been irritable outside my family at work and other family that don't live with me.... it's like I'm channeling it to others at work, etc... It's like I'm protecting my kids and wife but now target outside my house....
I’m glad you said that, I don’t want to upset people I want to be on my own but everyone keeps coming round. I feel like screaming at them. I don’t want to up set everyone. It’s only been 4 months since my fall . I get burnt out really fast and don’t like listening to small talk it’s so unimportant.
This is so true I have been suffering a traumatic brain injury since May 27, 2021 since my car accident not only do I have a traumatic brain injury, but my vision is knocked off because of the impact of how he hit me on my driver side I had to learn how to walk talk even just so much but traumatic brain injury. Life is so different. I’m grateful for the dramatic brain injury fun that helps Everyone with things that your insurance company don’t cover. I am also grateful for the Love Your Brain 💜 organization that helps what keeping us motivated inspire doing yoga they have camps that you go to the camps are fundraisers not you know it’s just they make life so much better I like to BIAA which also Helps keep us engaged help. Keep us functionable with events with tickets to baseball games just cause with a traumatic brain injury, you’re isolated. I’m always home. You don’t know how your day is gonna go from a moment to moment everything she’s saying is absolutely 100% accurate and I suffer with the pressure in my head, but they called migraines daily the funnel rebel all of them all of them everything she’s saying is absolutely true Thank you for explaining
I have horrible outbursts ..makes me so upset that I can't control it
Same here ... I storm out a lot ...
@@RoadRunnergarage8570ya totally get u guys
Felt like you were speaking directly to me. My situation has been exactly the same for decades. Thank you for sharing, Cristabelle.
Ryan, thank you for sharing this. It can definitely be a challenge when dealing with emotions.💙 -Cristabelle
I had a traumatic brain injury called a subdiral hematoma at age 12 and now Im 47. The other day, my psychiatrist told me he believes that my panic disorder, issues with ADD, depression, emotional sensetivity, all of it stems from that traumatic brain injury. Im opposite from you, I get very emotional sometimes. Its so frustrating trying to find "why" you are the way you are. Also, my brain injury was to the back of my head to the left of my brain stem.
I'm a survivor too. I had a tbi when I was four to the left frontal and parietal lobes. Emotions have been an issue. Sometimes I don't feel much, but then at other times I'll cry and cry. They say I have pseudobulbar still, after 35 years of learning ways to cope, it can be an issue. I've always wanted to meet other survivors. I've been more impulsive lately, wanting tobacco even though I've realized it doesn't help, or buying too many sodas.
I have a brain injury since 2016 & you are spot on l feel the same way & act like this & l cant explain myself.
I received mine in 2020 I was involved in a motor vehicle accident. It punctured through my brain wall on my frontal low and I lost my orbital socket and temporal bone. I’m still trying to figure it out thank you for putting this content out there. I’m currently going through a divorce now I think she was not strong enough for me to recover and I find out the rest of society is in either we have to fight to stay with people
I deal with very intense anger and sometimes don't want to leave my apartment....
my brain injury may feel like a headache to a migraine headache that seems it never goes away.
I just found out yesterday that I have a TBI from a car accident 2 months ago today. Your video encompasses everything I have been experiencing since the impact. Thank you very much for this insightful and honest feedback, you have helped me understand I’m not alone ❤ I’m struggling to learn who this new person is that I’ve become 😢
Same, but 4 months now
Same, but only 3 weeks ago, I've been overwhelmed by emotions, excessive uncontrollable crying, I feel burnt out. I've been lying to co workers saying I had allergies as my face is so puffy from crying, whenever I'm alone I just cry.
I sent a message to my mother after this with a link.
So thank you
Thank you for creating and sharing. ❤I’m on my 10th concussion, and I’m feeling so irritated and more depressed. This is really helpful. I can relate to a lot of this.
Because others kept trying to tell me there is nothing wrong with me I started to belive it too. I hid and tried to overcompensate with evrything. Until I went back to school and realized what I used to do isn't working I HAD to face the truth. Your channel helped me see that it's OK to have a new normal and I need to find new ways of doing things. Thank you.
You overreact from anything that even slightly would be difficult. It's just so wild
Same.😢
@@ashleytunget8457same
I just recently got my first brain injury a couple months ago and it’s been horrible. I feel so alone and like no one understands me. I used to be so chill and happy and I had a full time job/ social life that I loved, but now it feels like my whole world has been stripped from me. I’m supposed to get married in august but my Ingury has been so hard on everyone around me, it scared everyone, even my Fiance will leave before then.
Ty for this from a TBI survivor learning to live with this
Thanks for the information. I had my TBI in 2019 and it made my gf not want to be with me because of my constant mood changes and how I can’t run yet.
I finally understand "friendship" or "love'is now.
Thank you, I use videos like this to help me recognize and express to other what is happening. Will have have family member watch the video you/other person explain what is happening to me. Because I can not find the words.
Thank you so much for your help, you are an angel on earth for doing this for so many. We do feel alone, we have god, who keeps us going, but to have humans be with us,helps to
Thanks. I have a tbi and everything you said is very relatable.
I really wish there was more help for families. I don’t know how to get my child’s father to understand that even though he can’t help a lot of these behaviors, his reactions due to his ABI are really hurting our daughter who is little and can’t understand.
I try so hard to do the right thing by both of them but sometimes I have to put our daughter first, otherwise she grows up thinking that it is ok to be treated this way, and her feelings are hurt all the time. I feel like I am the enemy and I hate it so so much. I don’t know what to do anymore. I don’t know how to help someone who doesn’t realize what they’re doing is hurting the people they love and who love them, who won’t recognize that this is an issue enough to try and get help for it. I cry so much about this.
That’s where I’m at too. It’s gotten to the point where all I can do is harm reduction. Which option is gonna make him less angry. But he’s always angry.
Try explaining on paper what goes on with the person who has the tbi. It's amazing how much children understand when you truly show them. ❤
After 28 years of dealing with my husband's tbi, it doesn't seem to get any easier. His anger is on a trigger. It's hard on everyone.
Lonely that’s how I feel
Same
Same here. Noone understands.
Same here . Just feel like staying in my apartment all day sometimes ...
Same but I am here for you all hoping I can also move on from my injury and I'm learning now it's only been 4 months since my accident.
Same. I found out yesterday , it explains everything that has happened since my accident 2 months ago. I have to learn who the new person I have become is, and how to handle everything as a single mom. I don’t like that you all feel the same way; however, it gives me hope that I’m not alone in this uncharted territory ❤️
Very much what I experience daily. Well done for putting into words.
Gurl I had a tbi in 2021 and my emotion is very strong and let me say it has great size and still works post brain injury
Thanks you soo much!!! Felt loss for a little my wife is going through this after our accident 3 months ago 😢
Thanks you❤
Yes... I've had times where I feel like I can't control my emotions..... I've had times where I got lost coming to work.... I had a moment of feeling blank like I didn't know where I was... it feels like it lasted 1 or 2 minutes. I was driving, I knew I was in my city but I didn't recognize my location. This was my daily route to work..... but I got lost for a moment. My location became recognizable after me trying to figure it out....
Wow, I needed to hear this today. Thank you!
exactly my experience. thank you for articulating every detail so well!
Since my fall (tbi) relations are impossible, people generally seem to think I'm just another asshole and I'm at the point that maybe they are right
You are doing the best you can. Practice self compassion, esp when the outside world often doesn’t. You are enough 🙏🌼
@@frankshandyman5224 stay strong and positive you got this ignore negative people you got this wishing you luck keep going doing amazing things 👍
Mindfulness is really important to track how you’re actually feeling and then having some core people that can be safe and supportive. Unfortunately not everyone has that support but there is endless mindfulness videos and breath work can help too, helps interrupt the fight or flight many get into when they’re overwhelmed. Good sleep and a lot of hydration is also really important along with a healthy diet, healthy fats, no sugar etc.
I had documented tbi in 97, 99, and 2008 following car wrecks and several undocumented concussions
My life has been nothing but a mess and I’ve sought treatment and always told the same thing
My emotions are extreme and unpredictable I’ve felt im going crazy and not sure how to fix it
Thank you for this. I’ve suffered from that for 24 years now front right lobe brain injury knowledge is power.
Frontal lobe damage from accident from 2004 and still trying to figure it out. Flat affect when I need to show more and outburst when I should have not shown more. Not crying at funerals but crying when in isn’t a normal crying moment. Once in a while for a moment it’s like the old way of thinking becomes at least observable and just as quick as it observed it is lost.
Yo I had tbi june 16 2004, still tryna figure it out to!
This video was literally a blessing thankyou so much
I recently met someone who has TBI. This video really helps.
I’m not certain but I have had extreme issues with emotional regulation. Extremely forgetful, I’ll misplace legal documents, or earbuds, or jewelry. This usually sends me into an adult temper tantrum. I’ve been diagnosed with ASD but never really identified with any element other than the rigid thinking. My father was very disregulated himself, and maybe 3 weeks to a month ago I found out he would beat me in my crib as a baby for crying. I would come home from his house covered in bruises. Very young, no memory. I do remember being over at his house for visits and him getting frustrated either at me, my brother, or his game and throwing us in the direction of his bed. Sometimes we’d land on the mattress, other times the backboard. I had to be told by my Brother who remembers it vividly, as I had blocked it out. My disregulation is dangerous to myself and others, and trying to keep a lid on it is my hardest battle, but one I fight for the people I love, and who are positive forces in my life. Between throwing things, screaming until I get these “swirlies” in my vision, and self cutting, it leaves me feeling so disgusted because I never even began to consider that my brain might have actually been damaged through it all. I refused to. I wanted to know I had full control but the truth is I don’t. I have yet to even begin to understand what’s actually happening chemically in my brain. I can’t be certain, as I’m unable to afford a brain scan, but this sounds a LOT like what’s happening. I can’t stop crying I don’t know If I feel relieved or afraid. It feels like hopelessness has taken the place of my shame.
I am so sorry that happened to you. None of it is your fault. I am living with ABI, and late ASD diagnosis. TH-cam has been my major resource. Lived experiences such as Christabelle’s are essential to understanding you are not alone. I have found yoga nidra 2x a day, and vagus nerve exercises as needed v helpful w emotional regulation. Also eating healthy diet, lots of water, and much more sleep than I think I need! Limiting social interaction, to 2 hours max, even if I’m enjoying myself. Maybe some of these will help you also. Stay safe❤
Thank you for the information. Bless you
Back to work last week sometimes i get to feeling like a crazy person thanks for your work
You make me happy, thank you for this video. 👍🏽❤️
You have no idea how this helped me. Thank you!
i love you- thank you.. also awareness on abuse for people suffering recovery tbi :(
a real good topic about brain injury emotions. i believe high blood pressure might impact brain injuries, might feel vulnerable to pain.
The best thing I have heard in years. Thank you so much.
I deal with repeating myself,poor temper,dysregulation,poor multitasking skills,poor short term memory etc... sad😢... I have given up in love because I do not believe any woman could cope with my TBI -"quirks"... Sad...
I have a tbi when I was 10 then a concussion from back in June I have always had emotional issues.
My tears are flowing. Mostly joyful. Thank you so so much for doing this! Much love 💜🤙🏼
TH-cam TH-cam I
Victor
Changes is hard.
Feeling flat thats me 1 year after tbi and anger too those are my only two emotions after that car accident, im glad you touch the subject, and also gives me hope when you say its going to get better, im into bicycling just to keep myself into something that helps, thank you for your efforts to help.
Hi how are you doing? Please reply
It’s absolutely crazy, tbi emotions
I’m so glad I stumbled on your channel. I see this in my son (TBI) and often feel helpless how to help him or respond. Writing music is a great outlet for him, too. Thanks for sharing your journey.
Christine, Thank you so much for sharing this. It is wonderful that you are there as a support for your son, and just being there is more of a help than you may realize. I love that writing music is part of your son's journey too! I would love to hear it sometime! Hugs! -Cristabelle
@@hopeafterheadinjury it’s amazing! After his car accident, he picked up the guitar and started playing very naturally! Well enough to be invited to play with my worship team (I’m praying he’ll have the confidence to do that some day)! And you know, guys don’t really express themselves often-you are giving me great insight! Bless you 🤍
@@ChristineTrimpe Wow, that happened to me too! I started playing guitar not long after the injury! My other channel is th-cam.com/users/cristabellebraden - I write and record Christian music now, and songs about going through brain injury. So glad this has helped and I would love to invite you and your son to my zoom Brain Injury Bible Study group and our zoom Hope After Head Injury groups!
@@hopeafterheadinjury Oh my goodness, that is so sweet of you. I would love to check out the details. I'm going to look on your channel and see if you have a contact email and I'll send you an email. Thank you!
@@hopeafterheadinjury0
Thank you again. It's so good to hear advice from a survivor!
Evan, Thank you for watching! So glad it could help! -Cristabelle
Thank u for this!! It helped me understand my partner
Counselors or therapists just make u crazy
Yes it's great you made this vid. It's all about me daily. It's hard but I do my best to making myself better.. it little victories.
Yo yo we got this
My emotions are all over the place.
just today i went from feeling about 60% normal, to suicidal and angry, to hyper sensitive, brain dead to empty in about 3 hours. it is like this mostly because I ate mostly bread yesterday. but I don;t have any supports and its been 18 months since I was tortured and knocked out over 200 times over 8 months and shaken with a jackhammer till i puked and passed out. Havn;t seen a doctor since i was threatened to be stabbed and even if i did, i couldn't make words or even make sense until 9 months later. having ptsd and this is making my life a nothing, have no money, just sold the last i had for 4$. the food i get form the food bank makes my symptoms worse, but i can't afford to eat properly. my brain needs protein, seem red meats can help, but that is a item i could only consume for about 2 weeks over the last 18 months.
About 6 weeks ago (can't keep track these days) I was able to see a video about anger managment then that is when I was able to identify the emotion.
I went to a Elvis concert and he started to sing and tears rolled down my eyes.
no facial expressions mostly. I did have a small short small grin happen, so I know I have emotions and can express them, but with no support from my country (Canada) I'm having difficulty to keep going and might just let the anger take over and take the law into my own hand before ending it.
I feel like this lady knows me. Everything she says here describes me.
I know firsthand how difficult emotions are to deal with firsthand wirh TBI..
Exactly spot freaking on
I'm not alone 😢
Lets gooooooo
This is so hard😢
Thank you so much for the insight. This means so much to me in dealing with my son and the TBI he has to deal with.
I cry to much sometimes more than i use too. Pba
Since my brain injury people don't give a shit but I'm all good with that I know I can only depend on myself proud of you x
Iknow you see it Chrissy baby
Ppl don’t give a shit lololol I feel it too, almost 20 years post tbi. F the civvies
Yes. People don’t.
My girlfriend 2 nights ago collapsed in the kitchen into a seizure that ended with me giving her CPR for 3 minutes until the paramedics showed up, the paramedics took 30 minutes of CPR to get her out of flatlining. Its day 2, she is breathing through a tube. This is so hard for me, whenever something bad happens she is there for me always, but she can't be here for this. I have to be strong for her and keep hope high but its so hard. I just hope she can get through this, her pupils respond to light and 2 days from now she will have her MRI
That's really scary. I'm praying for everyone involved in the situation.
I also act much more introverted than I am. I love meeting new people. I do sales for a living, and I attend a lot of big industry conferences. I often have to leave and go somewhere quiet so my brain can digest all the stimuli. People think I'm shy....but I'm just trying to process things. I also yell at people a lot when I'm frustrated and/or tired.
Thank you for sharing💞 its nice to know someone else is going thru the same things I have also experienced. You are describing sooooo much of my feelings and struggles 💞
Hi how you doing? I think we all in same situation
thank you this is so helpful🙏
Thank you, so glad that it is helpful! You are not alone!
Absolutely
This has helped so much thank yurrrr
Spot on every thing you have said are we same person lol keep strong keep positive keep going dont give up giving up isn't a option proud of you very x
Stay strong stay positive stay safe everyone takecare sending luck hugs love from headway Nottingham UK you got this proud of you all well done keep going doing amazing things we are survivors xxx
Can anyone link a research paper about this topic of TBI and emotional outbursts
After my car accident back in 9/11/23 I have had a hard time processing daily task. I have had a hard time dealing with depression. I have had thoughts of suicide
Reading my Bible daily has helped me alot. Don't know what I would do without it. Suffered greatly from t.b.i.
God has seen me through
Does anyone know of an online support group for brain injured people? I would love to feel I'm not the only one with my problems but yet, get tips and advice how to deal with the problems! 😃 thank you!!
They have almost no support groups for us. The Mets community is made up of a bunch if dumbass not brain injured civvies. Let’s make some kind of superhero academy for tbi thrivers like us!
🫣 depends on the situation at hand. And past trauma and relearning what you use to know and overcame! When im tired you can tell more. My brain needs rest inorder to function.