I've had MS since 2017. It's really hard to try to explain to people what I go through. Including those I'm closest to... It sucks to have to explain why after working a 10 hour day, I need to rest.... to be able to keep doing that every day to provide for my family. I feel very alone and I feel like I'm fighting everyone's opinions of what they think I'm going through or dealing with.
Christina, I totally understand what you mean when you say "they don't want to really know how I'm doing". I've struggled with depression most of my life and I went thru a very severe depression over 10 years ago and the responses I got when I told them the truth made me spiral even further into the pit of depression. I wish it wasn't like this. I wrote a poem as I was healing from the depression... The Secrets in the Shell I so want to tell you all is perfect, all is well but at the same time I want to show you all the secrets hidden in my shell I know that if I open my shell and expose the secrets inside that will be the beginning of freedom, but something keeps them locked inside I think we all have shell secrets we’re afraid to expose and it makes me sad that there’s a “real me” inside everyone that nobody, on this earth, really knows Is this really how God meant it to be? A world full of people living in shells, afraid to be free? I wonder, just wonder, what it would be like, if just for one day we could come out of hiding and set the shells aside Reveal the “real me(s)” we thought nobody could love Free from judgment, or hatred, or shame...resting in unconditional love Would the world break from the weight of those shells? Or would it heal? Christina Marie Hernandez
As a chronic migraine and fibromyalgia sufferer I have found solace and hope in this podcast. I understand it is not quite the same but the issues I endure have rendered me disabled at this point of my life. I studied at a theater conservatory in NYC before my fibromyalgia diagnosis and have looked up to you both as inspiration from an artist/actor point of view. This is really important and special so thanks for sharing with us.
I have Cirs and mold illness, can relate. I hate how no one questions why so many of us have crippling autoimmune issues? I’m 58. So many friends my age range on disability for autoimmune issues.
14 years in. I can relate to both of you and to be honest, there were some parts that hit close to home. But I'm still working and am successful. Does the grieving process ever end? Maybe not, with all the constant changes. But I get better at dealing with the shit that comes along and tell people about it. Making music helps a lot to not go crazy. I wouldn't do anything without my office guitar. I'm looking forward to more of you. It took me almost ten years to complete open up about my MS at work and it was the best thing I've done.
My husband just got a diagnosed with MS. Thank you ladies for putting this out here for people to get to understand this and also get a laugh. You are showing that you can still live and laugh even with this shitty diagnoses.
I don't have MS. I have Mitochondrial Brain disease. There is no cure or treatment. There's not much info on the disease yet. Listening to you girls experiences comforts me. I have many of the same symptoms. Thank you for doing this.
I suffer from MS, chronic migraine, and fibromyalgia among other things. I used to tell my children I had only so many pennies in the morning and some days those pennies were spent a lot more quickly. It was a way for them to understand without really giving them the ugly side of things. This is going to be an amazing community you girls are creating. Thank you from the bottom of my heart ❤
Have been diagnosed with MS 2 years ago. Have been sick probably since 2015. This podcast is the best thing that happened to MS community out there. Greets from 🇫🇷
I was diagnosed with MS back in October 2023 at 47 it’s been a crazy ride to say the least. Full of life and gratitude every day. I was told to check Messy podcast out that it was incredible and it would resonate with me hole heartily. I can say I needed this and it has been incredible to hear is it a Gen- X thing maybe the realness of just being able to say f*** this S*** has made it much clearer to not stop and keep fighting this. not to mention laughter and being able to joke about it . to everyone that is going through this. Much love and light.
Well, this was refreshing as hell! Fellow MS-noob here diagnosed through a phone call at the beginning of the pandemic. The personal grieving process of MS has been pretty wild. This disease has taught me that we are so much stronger than we ever could have possibly imagined, and MS tests that strength regularly. Also, the stomach issues stuff is way too damn real. 😭 You two are awesome! Thank you both for sharing your individual experiences. ❤️
This is fantastic. THANK YOU for your strength, honesty, intelligence and humor. I admire and relate to you both and look forward to witnessing your unfolding truth. And by all means, keep it messy!! XO
Love you ladies, just found this podcast. I just last week started ketamine infusions for ms induced depression. It's good to hear honest real discussion about ms (autoimmune disease), thanks for doing this.
I'm so happy you two have created this podcast. I have Hypermobile Ehlers-Danlos syndrome which causes a lot of similar symptoms as MS so a lot of what was said here is very relatable. I was quick to share this with my sister who was diagnosed with MS over a decade ago.
Thank you for sharing your lives with us. I love the podcast and honesty you both have about this ugly disease. I found out 6 years ago this October and I am still angry with the world, I dont know I will ever come to terms with this. It helps to listen to you ladies and gives me hope. Thank you.
I’m very grateful you both have cons out with this podcast. I was misdiagnosed in 2010 when I woke up without sight in my right eye. The whole story is nuts BUT I’m so happy you’re doing this. It helps so much to hear we aren’t alone.
I was a leasing agent for 20 years. Always moving around, using the stairs. I loved my job and loved helping people. But I couldn’t anymore. As soon as I started limping. I didn’t give up. 6 months later my legs were giving up on me. I couldn’t anymore. My manager was so understanding. She told me don’t give anymore tours. Just stay behind the desk and work on files. But I couldn’t anymore. I always had fatigue. I had to file for disability. Now I’m home I have my awesome husband and 3 sons that help me a lot.
So excited for this. Two of my favorite ppl. I've seen so much from both u gals. Pod casts included. Pajama pants. Not today pal. Sopranos ,plays. Married with children, babysitter ,anchorman all the shows that lasted couple seasons and on it goes from u guys love it
I'm really enjoying the podcast. I don't have MS but have a chronic vestibular/vertigo/balance problem daily for over 17 years now so I can relate in many ways. Thank you ladies.
Apple and Jammy I love love love your brutal raw honesty. Thank you for no bshit and thank you for talking with no sugar coating bs. I am not missing 1 episode. Love from Sunny SA
I was diagnosed with multiple sclerosis in 2016, on my TH-cam I have my only revision so far of my Ms diagnosis story, I want to put something better together but that's what I've got so far to kind of tell you who I am and what I got.
Ladies, you are wonderful. I don’t have MS, but have Fibromyalgia, controlled by medication. I am blessed that I found a doctor who helped me find the right medication. I ended up in a psych ward.
When I was diagnosed in 2007 we refrained from calling MS a 'Disease', because there's a connotation that it's contagious--IT'S NOT! Something to think of. Call it an illness. Thank you for being honest. Great show. 🇮🇱❤
Hello I just listened to you podcast. I have been struggle with alot the past two years. Seen tons of Dr's. And I have so many surgery on my spine. In the past ten years. I have began to look into MS. I have not been diagnosed yet but I'm preparing for diagnoses. So thank you inadvance. I will be in touch!!!Angela
This podcast is amazing. I listened to Jamie on pajama pants prior to this podcast. Of course I love the sopranos as well. Also I have always loved Christina watched many of her movies and shows she's been on. So getting to know them as the women they are on a day to day basis is amazing. I will be listening religiously.
I was diagnosed in 2021 with MS just like Christina, and just like her I'm just not there yet. I'm dealings with it. My goodness, Christina got me when she said.. "i can't be an advocate right now, i can bairly advocate for myself." GIRL, you are advocating for people like me that aren't there yet too. I see plenty of people talk about being above it and accepting it but NEVER the shitty side of MS and thats what Christina has been advocating loudly since she was diagnosed. Love you Christina! **FU MS**
Dr. GEORGE Jelinek has a program where he overcame the disease. I listened to a podcast by him and he has a book. I was interested because I have another autoimmune disease and am wanting to improve my health.
My girlfriend and I both have a ms I'm Darrin Burnette my girlfriend is Jen Carrino we've been together for 15 years. I was diagnosed with MS IN 1995 iwas 17 at the time. Jen was diagnosed in 03.
28:53 Oh my..fuck?! My mother told me about the FINE ...25 years ago, maybe more? And I use it often, but not out loud. Where did you learn this? Also, I was looking for a new podcast and I was instantly excited to see your name Christina. And I'm not sure if you read this shit, but I'm now to the point where you said that you're not an inspiration... Whelp, I don't hate to tell you, but you are. I don't want to speak for everyone else, but for those that are listening to this podcast... I bet they're listening to it so that they can hear honest vulgarity from someone that has been successful and it doesn't really have a whole lot to do with MS. I've always been a fan and I may have cried a lot when I heard that your body hates you. I have a neurological disorder, it's fucked up but not important, however... I know a bit about how much it sucks for you. My mom and grandpa used to call me Kelly. Hearing your voice is so fucking awesome and I can perfectly imagine every single facial expression you make while talking, But the best part of it is, total assumption, you probably don't hold back as much as you do when you're acting.
I've had MS since 2017. It's really hard to try to explain to people what I go through. Including those I'm closest to... It sucks to have to explain why after working a 10 hour day, I need to rest.... to be able to keep doing that every day to provide for my family. I feel very alone and I feel like I'm fighting everyone's opinions of what they think I'm going through or dealing with.
You don't owe people your business, anymore than they owe you.
Christina, I totally understand what you mean when you say "they don't want to really know how I'm doing". I've struggled with depression most of my life and I went thru a very severe depression over 10 years ago and the responses I got when I told them the truth made me spiral even further into the pit of depression. I wish it wasn't like this. I wrote a poem as I was healing from the depression...
The Secrets in the Shell
I so want to tell you all is perfect, all is well
but at the same time I want to show you all the secrets hidden in my shell
I know that if I open my shell and expose the secrets inside
that will be the beginning of freedom,
but something keeps them locked inside
I think we all have shell secrets we’re afraid to expose
and it makes me sad that there’s a “real me” inside everyone
that nobody, on this earth, really knows
Is this really how God meant it to be?
A world full of people living in shells, afraid to be free?
I wonder, just wonder, what it would be like, if just for one day we could come out of hiding and set the shells aside
Reveal the “real me(s)” we thought nobody could love
Free from judgment, or hatred, or shame...resting in unconditional love
Would the world break from the weight of those shells? Or would it heal?
Christina Marie Hernandez
Beautiful poem
Just wanted to say thank you both, I'm a veteran of 13 years an have M.S. since 2015. I go ups an downs an glad to hear yall stories.
As a chronic migraine and fibromyalgia sufferer I have found solace and hope in this podcast. I understand it is not quite the same but the issues I endure have rendered me disabled at this point of my life. I studied at a theater conservatory in NYC before my fibromyalgia diagnosis and have looked up to you both as inspiration from an artist/actor point of view. This is really important and special so thanks for sharing with us.
I have Cirs and mold illness, can relate. I hate how no one questions why so many of us have crippling autoimmune issues? I’m 58. So many friends my age range on disability for autoimmune issues.
14 years in. I can relate to both of you and to be honest, there were some parts that hit close to home. But I'm still working and am successful. Does the grieving process ever end? Maybe not, with all the constant changes. But I get better at dealing with the shit that comes along and tell people about it. Making music helps a lot to not go crazy. I wouldn't do anything without my office guitar. I'm looking forward to more of you. It took me almost ten years to complete open up about my MS at work and it was the best thing I've done.
My husband just got a diagnosed with MS. Thank you ladies for putting this out here for people to get to understand this and also get a laugh. You are showing that you can still live and laugh even with this shitty diagnoses.
This episode saved me from a dark night of isolation. ❤
Keeping you in my prayers
I don't have MS. I have Mitochondrial Brain disease. There is no cure or treatment. There's not much info on the disease yet. Listening to you girls experiences comforts me. I have many of the same symptoms. Thank you for doing this.
I suffer from MS, chronic migraine, and fibromyalgia among other things. I used to tell my children I had only so many pennies in the morning and some days those pennies were spent a lot more quickly. It was a way for them to understand without really giving them the ugly side of things. This is going to be an amazing community you girls are creating. Thank you from the bottom of my heart ❤
Have been diagnosed with MS 2 years ago. Have been sick probably since 2015. This podcast is the best thing that happened to MS community out there. Greets from 🇫🇷
I was diagnosed with MS back in October 2023 at 47 it’s been a crazy ride to say the least. Full of life and gratitude every day. I was told to check Messy podcast out that it was incredible and it would resonate with me hole heartily. I can say I needed this and it has been incredible to hear is it a Gen- X thing maybe the realness of just being able to say f*** this S*** has made it much clearer to not stop and keep fighting this. not to mention laughter and being able to joke about it .
to everyone that is going through this.
Much love and light.
Well, this was refreshing as hell! Fellow MS-noob here diagnosed through a phone call at the beginning of the pandemic.
The personal grieving process of MS has been pretty wild. This disease has taught me that we are so much stronger than we ever could have possibly imagined, and MS tests that strength regularly.
Also, the stomach issues stuff is way too damn real. 😭 You two are awesome! Thank you both for sharing your individual experiences. ❤️
This is fantastic. THANK YOU for your strength, honesty, intelligence and humor. I admire and relate to you both and look forward to witnessing your unfolding truth. And by all means, keep it messy!! XO
Love you ladies, just found this podcast. I just last week started ketamine infusions for ms induced depression. It's good to hear honest real discussion about ms (autoimmune disease), thanks for doing this.
I'm so happy you two have created this podcast. I have Hypermobile Ehlers-Danlos syndrome which causes a lot of similar symptoms as MS so a lot of what was said here is very relatable. I was quick to share this with my sister who was diagnosed with MS over a decade ago.
So great you did this, I loved it!!! I've had MS for 11 years, Im 37 now and I think this is so so valuable 💓 Thank youuuuu for doing it!!!
Thank you for sharing your lives with us. I love the podcast and honesty you both have about this ugly disease. I found out 6 years ago this October and I am still angry with the world, I dont know I will ever come to terms with this. It helps to listen to you ladies and gives me hope. Thank you.
I’m very grateful you both have cons out with this podcast. I was misdiagnosed in 2010 when I woke up without sight in my right eye. The whole story is nuts BUT I’m so happy you’re doing this. It helps so much to hear we aren’t alone.
I was a leasing agent for 20 years. Always moving around, using the stairs. I loved my job and loved helping people. But I couldn’t anymore. As soon as I started limping. I didn’t give up. 6 months later my legs were giving up on me. I couldn’t anymore. My manager was so understanding. She told me don’t give anymore tours. Just stay behind the desk and work on files. But I couldn’t anymore. I always had fatigue. I had to file for disability. Now I’m home I have my awesome husband and 3 sons that help me a lot.
life has diff plans for us 💞
So excited for this. Two of my favorite ppl. I've seen so much from both u gals. Pod casts included. Pajama pants. Not today pal. Sopranos ,plays. Married with children, babysitter ,anchorman all the shows that lasted couple seasons and on it goes from u guys love it
I'm really enjoying the podcast. I don't have MS but have a chronic vestibular/vertigo/balance problem daily for over 17 years now so I can relate in many ways. Thank you ladies.
Apple and Jammy I love love love your brutal raw honesty. Thank you for no bshit and thank you for talking with no sugar coating bs.
I am not missing 1 episode.
Love from Sunny SA
Thanks for starting this podcast, ladies! God bless !
(Autoimmune disorders are hard to comprehend unless you’re dealing with them. )
I was diagnosed with multiple sclerosis in 2016, on my TH-cam I have my only revision so far of my Ms diagnosis story, I want to put something better together but that's what I've got so far to kind of tell you who I am and what I got.
Ladies, you are wonderful. I don’t have MS, but have Fibromyalgia, controlled by medication. I am blessed that I found a doctor who helped me find the right medication. I ended up in a psych ward.
What medication? Same diagnosis wow congratulations! ❤
Here to support
Great podcast
This is for all chronic illness and chronic pain!
Especially those of us with permanent conditions
Shwetty Balls. Love it, love you ladies. Thank you for this. 🩷🩷🩷
When I was diagnosed in 2007 we refrained from calling MS a 'Disease', because there's a connotation that it's contagious--IT'S NOT! Something to think of. Call it an illness. Thank you for being honest. Great show. 🇮🇱❤
Loving this. You are both so real. ❤️🇨🇦❤️
Hello I just listened to you podcast. I have been struggle with alot the past two years. Seen tons of Dr's. And I have so many surgery on my spine. In the past ten years. I have began to look into MS. I have not been diagnosed yet but I'm preparing for diagnoses. So thank you inadvance. I will be in touch!!!Angela
Thank you both for your transparency. What a relief to know how I feel is normal. ❤
Very good show and stay strong. We all support you.
This podcast is amazing. I listened to Jamie on pajama pants prior to this podcast. Of course I love the sopranos as well. Also I have always loved Christina watched many of her movies and shows she's been on. So getting to know them as the women they are on a day to day basis is amazing. I will be listening religiously.
I was diagnosed in 2021 with MS just like Christina, and just like her I'm just not there yet. I'm dealings with it.
My goodness, Christina got me when she said.. "i can't be an advocate right now, i can bairly advocate for myself."
GIRL, you are advocating for people like me that aren't there yet too. I see plenty of people talk about being above it and accepting it but NEVER the shitty side of MS and thats what Christina has been advocating loudly since she was diagnosed.
Love you Christina! **FU MS**
Dr. GEORGE Jelinek has a program where he overcame the disease. I listened to a podcast by him and he has a book. I was interested because I have another autoimmune disease and am wanting to improve my health.
Great episode
My girlfriend and I both have a ms I'm Darrin Burnette my girlfriend is Jen Carrino we've been together for 15 years.
I was diagnosed with MS IN 1995 iwas 17 at the time. Jen was diagnosed in 03.
I have NEVER been able to be comfortable in heat, even as a child. Being half irish I'm ok staying out of the sun
Christina l massage my neck anytime i think about it. Keeps the lymph fluid flowing. Been doing it for YEARS
Wahls 🤣🤣🤣
28:53
Oh my..fuck?! My mother told me about the FINE ...25 years ago, maybe more? And I use it often, but not out loud.
Where did you learn this?
Also,
I was looking for a new podcast and I was instantly excited to see your name Christina. And I'm not sure if you read this shit, but I'm now to the point where you said that you're not an inspiration... Whelp, I don't hate to tell you, but you are. I don't want to speak for everyone else, but for those that are listening to this podcast... I bet they're listening to it so that they can hear honest vulgarity from someone that has been successful and it doesn't really have a whole lot to do with MS. I've always been a fan and I may have cried a lot when I heard that your body hates you. I have a neurological disorder, it's fucked up but not important, however... I know a bit about how much it sucks for you.
My mom and grandpa used to call me Kelly.
Hearing your voice is so fucking awesome and I can perfectly imagine every single facial expression you make while talking, But the best part of it is, total assumption, you probably don't hold back as much as you do when you're acting.
Two thumbs up ladies.😀 I've subscribed and am looking forward to hanging out with you guys!