Thank you Maggie. I'm glad we found this video. My 76 yr old mom is having problems accepting the idea that she can be as active as she used to be now that she has an ileostomy. Seeing a nice young lady such as yourself that is active made her realize that it is certainly possible to get the secure feeling she needs to be able to go back to her ballroom dancing, bowling, yard work, etc. We're gonna order one of those belts for sure!
I just wanted to let you know that since I've been recently diagnosed with crohn's watching your video's and and seeing how positive you are really helps me feel better about myself. You give me a big bit of hope!
@Travino With this belt its a little difficult to tuck your pants in, but with a seat belt it definitely protects you. Normally though without a belt, I don't have trouble with either.
@frankgallagherwasere Actually the belt doesn't touch the stoma because of the hole and the plastic guard is raised off of the belt, so it never touches the stoma either. I was worried about that too but it didn't hurt it at all :)
I was just operated on and now have a stoma. I am having mental issues with this. I am an outdoors type of person. This is a severe blow to me. I can get through most everything. The surgery was hard, but I am getting better. The Dr. said it is temporary depending on if he can reattach my bowels later. I have had this for 3 weeks. I dont even know what supplies are available. I like swimming and hiking and all sorts of outdoor stuff. I feel ugly.
I HAVE CROHN S DISEASE SINCE MY 20 S till last year i had surgery ileostomy i was 67 yrs old. i still not got used with ileostomy. plus i got hernia now that bummer
I want to share my expirience with colostomy. You have to eat at least two white eggs, Boiled a day, in soup, always cooked is good for the skin. And the white egg in it´s natural form used as a gel around the circle of the colostomy is good for the skin, you have to apply and wait until is dry and then you put the colostomy bag. You don´t need you use or to spend money in creams, it´s easy. I have the colostomy during 4 years and believe this tips helped me a lot.
Hi I am from Canada and have been trying to purchase this belt for work, but cannot find a site that will allow me to do that. I can only find the UK site. can someone help please.
Can we get something like this in Australia that's Gov. Funded? I've got a couple of belcrose belts but there's no holes in it for the stoma. They are useless
I am getting ready to have a colo/vaginal fistula repaired and I will have an ostomy bag for 2-3 months.Thank you for sharing! In the last little scene did you have the belt on? I am small like you and I am afraid of the bulkiness of the bag...
How this support function when your beg get fluid inside... if I put it on it will explode (I think) I got very liquid stoma . I don't know how to mange with normal life so i prefer to stay far from ppl. U got email for questions ?
Dear asaf....i have an illeostomy ...and yes it is very liquid......this is because i do not eat carbohydrates in any quantity....as this will bulk your output...making it thicker. Or if you don't want to eat carbs...then a few marshmellows may do the trick ( check ingredients for halal or not ) Don't stay away from people as it bad enough having what we have .......slowly learn about your new digestive system. I used to have many "accidents" in the first year of my stoma .....simply because i forgot that I was not the same as before. meaning eating "normally". So now I have learnt...that when i wake up ....i take no breakfast except two or so cups of tea....if i know I am going out say by midday..... then i go out ...and around 2pm I can take tea again and eat something like a mouse. ( yes exciting lol ) sit in a cafe read a paper etc.........after that i come home ....and by 5pm eat my main meal of the day........20 mins to 1 hr after this my stoma is active ....after being nice and quiet all day.........if i am lucky and don't stuff when i am home .....I will have to empty the bag maybe only once or twice at night.....and several times before bed. Yes it is a challenge ....but you can do it.....just take extra stuff with u when u are out ......and so what if u have an accident ...be brave just carry an item of clothing with you that will cover the liquid on your trouser....and make your way home . Dont' worry you will learn quick....and like me it will not in the end stop you going out ...or being near people. Bye the way this level 3 thing is ridiculous .....
Antoinette St Clair-Winston thanks for your encouragement. I got problem in this year eating solid. ... its stuck... and I usually find myself in hospital doping me with steroids and antibiotics. .. till the system start working again and try to convince me to do an operatiin to fix it... but I just had to mach of them and I try to delay the outcome. You say marshmallows can do the trick? Maby I will try it. P.s what did you mean level 3 ridiculous?
This is a really good idea but it makes you (anyone not specifically this woman) appear bigger around the waste, it looks bulky and not quite easily concealed, I guess I'm more looking for something similar to this but more hugged to my body as I already have enough hips to look wide let alone put a bulky belt on top of it.
I'm currently trying to do a series of videos on cooking food that's safe for ileostomies. They would probably be helpful for anyone having a flare up. I'm hoping that it will help some people like me, who struggled to have an interesting diet in the beginning. Please check it out UCMe Cook - Chicken Satay
Jimmy in Mexico. I just saw your comment. Hope things are better now. I have been down that road. Please feel free to contact me if you get this message. I had a two year struggle with the same issues. There is another option.
Well if you have ever seen any images of the 1930 &40's"pouching system " you will see ....that this is more or less in the same league !!.......meaning visually horrendous . Genuinely I would prefer to take my life in my own hands rather than wear this ridiculous contraption . We need more advances in our medical equipment . One day the "sticky on bag "will be a thing of the past...... replaced possibly by a valve system....but unfortunately not in my life time .
Thank you Maggie. I'm glad we found this video. My 76 yr old mom is having problems accepting the idea that she can be as active as she used to be now that she has an ileostomy. Seeing a nice young lady such as yourself that is active made her realize that it is certainly possible to get the secure feeling she needs to be able to go back to her ballroom dancing, bowling, yard work, etc. We're gonna order one of those belts for sure!
Your work is so extraordinary!! I know how hard it can be… Looking forward to see more work :)
I just wanted to let you know that since I've been recently diagnosed with crohn's watching your video's and and seeing how positive you are really helps me feel better about myself. You give me a big bit of hope!
@Travino With this belt its a little difficult to tuck your pants in, but with a seat belt it definitely protects you. Normally though without a belt, I don't have trouble with either.
@frankgallagherwasere Actually the belt doesn't touch the stoma because of the hole and the plastic guard is raised off of the belt, so it never touches the stoma either. I was worried about that too but it didn't hurt it at all :)
I am so glad! Thank you :) Don't be scared though, just take everything one day at a time!
Hello ma'am,
Can you tell me which brand of Stoma Belt is that you're using in your demonstration video?
What happens when you've thick output like in colostomy and you are wearing this belt. Does it cause blockage?
I was just operated on and now have a stoma. I am having mental issues with this. I am an outdoors type of person. This is a severe blow to me. I can get through most everything. The surgery was hard, but I am getting better. The Dr. said it is temporary depending on if he can reattach my bowels later. I have had this for 3 weeks. I dont even know what supplies are available. I like swimming and hiking and all sorts of outdoor stuff. I feel ugly.
I understand how you feel. I am going through the same.
Your videos are such a good help, I'm about to start the journey after 25 years of avoiding it. Thank you your a beautiful brave young lady. X
Do they make one for double ostomy? I’ve got an illiostommy (sp). And a colostomy.
I HAVE CROHN S DISEASE SINCE MY 20 S till last year i had surgery ileostomy i was 67 yrs old. i still not got used with ileostomy. plus i got hernia now that bummer
I want to share my expirience with colostomy. You have to eat at least two white eggs, Boiled a day, in soup, always cooked is good for the skin. And the white egg in it´s natural form used as a gel around the circle of the colostomy is good for the skin, you have to apply and wait until is dry and then you put the colostomy bag. You don´t need you use or to spend money in creams, it´s easy. I have the colostomy during 4 years and believe this tips helped me a lot.
Where can you buy that system 😌
Omg Maggie... you were soooo young🥰
Agree, I had no idea she has been doing this for 9 years. What a trooper
This is great one. I just have like an elasticated band that you wear round. This is very useful for some activities and generally. Thanks.
Hi
I am from Canada and have been trying to purchase this belt for work, but cannot find a site that will allow me to do that. I can only find the UK site. can someone help please.
Can we get something like this in Australia that's Gov. Funded? I've got a couple of belcrose belts but there's no holes in it for the stoma. They are useless
Where can I order this belt?
Can you share links for this product
i need this belt, where i can buy it?
Could that be used to sleep in, how comfy is it?
Why doesn't any one have something like this for urostomy pouches & supplies???
I am from Pakistan Bahawalpur city. Plz guide me how I can purchase
This is so beautiful
Thank you
♥️♥️
I am getting ready to have a colo/vaginal fistula repaired and I will have an ostomy bag for 2-3 months.Thank you for sharing! In the last little scene did you have the belt on? I am small like you and I am afraid of the bulkiness of the bag...
Sinto muito não entendo este idioma. Uma pena!
where do i get a belt that fits well ?
india me suply hai kya iska?
i`ve oredered this from comfiz just awaiting its delivery
How this support function when your beg get fluid inside... if I put it on it will explode (I think)
I got very liquid stoma . I don't know how to mange with normal life so i prefer to stay far from ppl.
U got email for questions ?
Dear asaf....i have an illeostomy ...and yes it is very liquid......this is because i do not eat carbohydrates in any quantity....as this will bulk your output...making it thicker.
Or if you don't want to eat carbs...then a few marshmellows may do the trick ( check ingredients for halal or not )
Don't stay away from people as it bad enough having what we have .......slowly learn about your new digestive system.
I used to have many "accidents" in the first year of my stoma .....simply because i forgot that I was not the same as before.
meaning eating "normally".
So now I have learnt...that when i wake up ....i take no breakfast except two or so cups of tea....if i know I am going out say by midday.....
then i go out ...and around 2pm I can take tea again and eat something like a mouse. ( yes exciting lol ) sit in a cafe read a paper etc.........after that i come home ....and by 5pm eat my main meal of the day........20 mins to 1 hr after this my stoma is active ....after being nice and quiet all day.........if i am lucky and don't stuff when i am home .....I will have to empty the bag maybe only once or twice at night.....and several times before bed.
Yes it is a challenge ....but you can do it.....just take extra stuff with u when u are out ......and so what if u have an accident ...be brave just carry an item of clothing with you that will cover the liquid on your trouser....and make your way home .
Dont' worry you will learn quick....and like me it will not in the end stop you going out ...or being near people.
Bye the way this level 3 thing is ridiculous .....
Antoinette St Clair-Winston thanks for your encouragement. I got problem in this year eating solid. ... its stuck... and I usually find myself in hospital doping me with steroids and antibiotics. .. till the system start working again and try to convince me to do an operatiin to fix it... but I just had to mach of them and I try to delay the outcome. You say marshmallows can do the trick? Maby I will try it.
P.s what did you mean level 3 ridiculous?
thank you for your information --it is a great Idea. I like to tuck in my shirt but it would not leave room this should be just what I need.
Hello I need size 60 is no in my country of Iraq
This is a really good idea but it makes you (anyone not specifically this woman) appear bigger around the waste, it looks bulky and not quite easily concealed, I guess I'm more looking for something similar to this but more hugged to my body as I already have enough hips to look wide let alone put a bulky belt on top of it.
I use a Comfizz elasticated band. If you look it up, it may be closer to what you're looking for
why didnt u go for a j pouch?
Well done.
I love this belt! Where can you order one?
Where can I get that belt?
Would like to know where to order
I'm currently trying to do a series of videos on cooking food that's safe for ileostomies. They would probably be helpful for anyone having a flare up. I'm hoping that it will help some people like me, who struggled to have an interesting diet in the beginning. Please check it out UCMe Cook - Chicken Satay
Can you send us an address?
I want this belt, where to sale?
here in USA?
do you have any problems tucking a shirt into your pants or putting a seatbelt on without interfearence/
I need a belt
On ebay
Stoma belt
@@عنان-ذ5ث شو هاد المراض
Well Done! FR
depending on your op 6to8 weeks swimming no probs inbox me or anyone else with stoma (ENGLAND)
Does this belt work on a left, horizontal bag?
tnx helpfull instruction.
Jimmy in Mexico. I just saw your comment. Hope things are better now. I have been down that road. Please feel free to contact me if you get this message. I had a two year struggle with the same issues. There is another option.
بِسْمِ اللَّهِ الرَّحْمَنِ الرَّحِيمِ
شو هلا مراض هذا اخي
you're such a sweet girl and an absolute saint.
That looks way too bulky vs products like what stomaplex sells.
This belt required, I am stoma hernia patient
You or so young
I fiddle my Stoma 4 years and crohn's disease patient and its process of wakiso 14 cm from msarni: |Fady Gannim
facebook
Well if you have ever seen any images of the 1930 &40's"pouching system " you will see ....that this is more or less in the same league !!.......meaning visually horrendous .
Genuinely I would prefer to take my life in my own hands rather than wear this ridiculous contraption .
We need more advances in our medical equipment .
One day the "sticky on bag "will be a thing of the past...... replaced possibly by a valve system....but unfortunately not in my life time .
Way to bulky...!
i dont speek enjlish :)facebook for me Fady Gannim
انت من وين؟