In this video, I talk about how I got diagnosed with Younger Onset Alzheimer's disease. #alzheimer #alzheimers #dementia #vlog #terminal #healthcare #doctors
Hi Fraser, I’m not really one to comment on videos but I just want to say how immensely proud you should be of yourself. This video really pulled on my heartstrings because you seem like a really great asset to this world and I am so incredibly sorry that this is happening to you and your family. You are wearing your heart on your sleeve and you show great bravery and courage. You are very articulate in being able to describe your journey and this will help many people on their own journey. I truly hope your illness takes the slowest path possible, and I am wishing you and your family all the best and please keep sharing. You have gained a subscriber here from London 😊
Thank you so much for such a loving comment. You have made my day. Yes, a slow path would be a good path (although, I'm more than happy for the late stage to go quickly!). Your compassion shows what sort of person you are and the world is definitely a better place with people like you in it 🙏
Question. I am at high risk of dementia secondary to previous history of viral encephalitis. No current diagnosis of dementia and fully functioning. From your experience and visits to doctors, do you think that testing changes any therapy that you have been prescribed? My opinion is that symptoms can and should be managed regardless of the actual diagnosis. What do you think? Thank you.
I'm really in awe of people who have a devastating diagnosis but in the fog of shock and reality they are able to turn it around to help others. It's such a courageous and virtuous thing to do and what a legacy to leave. I have such admiration 🙏❤️
Thanks so much for your lovely comment. To be honest, I'm not experiencing bad symptoms, so it's probably easy for me to do it. At this stage, I just want people (who have been recently diagnosed) know that it's OK to question things and to have it "on your mind". I have a feeling we're all pretty similar to each other in what's going on in our heads.
I’m 73 yrs old. Im so sorry you are going thru this. I’m feeling some of the same issues you have with finding words. I have to shut my eyes and think of a picture of the word or what the word does. It’s hard to explain. Ppl say, “oh yes, I do that too” but I know what I’m experiencing is different. I do it quite often. I had Long Covid last year and had more problems then-not being able to do slightly complex tasks I’d done many times before. I couldn’t make sense of written instructions (I used to write SOPs so this really alarmed me). I’d head to the kitchen to get something (friends interrupt me and say, “ oh yeah, I forget what I’m going after”).I forgot I was even going to the kitchen! I’d don’t even remember later that I was going after something. It’s so frustrating bc everyone dismisses it but I can feel my cognition disappearing. There’s so many things throughout the day that happen-like I can’t remember that I took my pills 5 minutes ago-stuff like that. I’ve found myself even forgetting that I’m driving! I don’t even remember something I’ve done not too long ago. I play along with my family and say “oh yeah, I remember now” but I don’t remember! It’s so scary. I try not to be depressed about it but it’s hard not to be. I worked in a nursing home as a teenager and used to think “I want to go with dementia bc at least they are happy” but I now know to be careful what you wish for. I just want you to know I’m thinking of you and understand some of what you are going thru.
Thank you so much for reaching out. Im so sorry to hear about the struggles you have been going through. I think as you get older the more people dismiss it as being "not that bad" or "yah, I have that" which would be terribly upsetting (it's dismissive). My thoughts are with you mate. Please look after yourself and see a doctor for some advice.
Hi from Melbourne 🐨😊..I've been having problems for ten years (I'm 50).my doctors..tested me I went to a memory clinic and yes they found problems, but told me to come back every two years, I have Rheumatoid arthritis and I agree, we are not in a position to keep pushing...I'm alone house bound and overwhelmed..I get it. I have to write everything down..my doctors have cut me off because of my memory loss and not keeping appointments...they dont think! Im sorry about the way you found out....shocking. best wishes xx
Thanks so much for reaching out. I'm so sorry to hear about your struggles. We gotta stay strong, and I'm starting to learn how important it is to keep seeking the help you need. Keep fighting!!!
Hi Fraser. I’m so sorry you’re going through this. And I’m so glad you have people who love you who are fighting for you. I’ve subscribed and, along with others, will support you from afar as you bravely go on this journey. Sending strength and best wishes to you and your family
I just found you and am watching all of your stuff, so I'm glad to see you just uploaded. I think these videos are amazing and will continue to watch them for as long as you put them out. Very interesting and personal. Thank you for sharing.
Thanks so much for reaching out. Im so glad you are finding them interesting and enjoy watching them. It means so much to me that they are helping people. Hope you're having a good day 🙏
Thank you so much for reaching out to me. I'm so sorry to hear about your diagnosis. Are you doing ok? Obviously my experience will be different to yours, but I feel there's some comfort in knowing we're not alone 💪
I would like to leave a comment that expresses how I feel about your TH-cam channel but my words just can’t express how important and genuine I feel this is. Thanks 👍🏻
Thank you so very much!!! I am going thru the same. So very kind and thoughtful of you to share. You have helped me in a way because someone else understands how I feel and what I’m going thru. This disease makes me feel very alone.
You have no idea how grateful I am that you reached out to me. My experience will be different than yours, but I imagine there will always be some shared experience. It's incredible how helpful it is to know you are not alone. Stay strong 💪
The last few frames overwhelmed me with warmth. I lost my partner 13 years ago to a different condition which robbed him of cognitive abilities in the final months. I want to be very protective of you and it elates me to know you have people that fill that role. I am not a psychologist but I perceive that you have an attitude and sense of humor that will help carry you through whatever is to come. There might be dark times, but you are not ready to embrace darkness, as some people might be.
Thanks for reaching out. Im so sorry to hear about your partner. I can imagine its even more difficult for the loved ones. Yep, I'm doing my best to manage it. I'll be fine. Shit happens in life and you seem to always get through it one way or another.
Thank you for your candid heartfelt video presentation of your symptoms and diagnosis. This is very informative for those of us whose family members suffer from Alzheimer's or dementia. I wish my sister had access to a neuro psychologist, but there aren't any in her vicinity. I hope that in future videos you will let us know what professionals have been most helpful as you deal with this terrible disease. Sending love to you and your family and friends.
Thanks for reaching out and I'm sorry to hear of your family member with dementia (and for the challenges that has placed on your family). Yes, I feel very fortunate to have been given access to relevant people. Yep, I'll keep you posted.
Christ, that was hard to watch. I can only imagine what you went through but the way you presented this video was amazing. You really wanted to get the facts across so that it would be helpful to someone else who may be going through the same issues. That says a lot about you as a person. Are you on any medication? Can they slow the disease down? I will be definitely following your story.
Thank you so much for your lovely comment, it means a lot. I think your comment also says a lot about you!!! Yep, I'm on medication, it's to help slow the progression of the symptoms.
This was incredibly powerful to me. I have an aunt who has been diagnosed with alzheimers last year, and this helped me understand what she's going through. We live far apart so I have only seen her once since her diagnoses, and while I know logically what she's going through, I didn't truly understand what she's going through. I still don't really. But this video has definitely helped me. I think I'll tell my uncle about this video and this channel. I think it would help him too, and he would know better than I if it would be good for my aunt as well. Thank you, and I hope you find strength and peace to help you on your journey.
Hi, Fraser! You are an amazingly brave person to share this. It is so helpful. Thank you very much. I pray it will progress slowly and that God will help you throughout this journey.
Thank you for this video, I appreciate the effort you went to with this video, both due to your memory issues and noisy environment meaning you had to refilm it so many times!! I'm so sorry for how you found out the results of your scans, and how you didn't hear it from your doctor. I actually found out about my own terminal diagnosis the same way! My neurologist sent me to a specialist, to get the specialists opinion on the condition my neurologist thought I had. Though the neuro didn't tell me that, he just said its for a 2nd opinion. Then I got sent the letter from the specialist, which was supposed to be sent to my neurologist, which confirmed my diagnosis. I googled it, and the first sentence in Google said that it's a terminal disease, and one that shuts down your muscles, organs and brain with no known treatment. Only symptom relief... I knew something serious was going on, but I was kidding myself that they'd find out what it was, give me a tablet and I'd be fine! But sadly not. I say all that not to overshadow your video and diagnosis but to tell you that I've been through the same thing, and I completely understand the feeling of first reading something like that and your body and mind just goes into a meltdown I'm glad you have your partner's support, and I saw in another comment that you're on meds to slow progress. I'm interested in following your journey, as someone with their own terminal disease which is now affecting my brain and how it functions (though for me, uncontrollable seizures are what is causing the most damage unfortunately)
Your ability to recall details of what happened are far better than mine. I'm a couple of years older than you & I haven't been diagnosed with anything like that, not that I haven't tried for years, I just haven't got anywhere. There basically aren't any details in any of my memories.
I'm so sorry to hear about your memory issues. Yes, I'm surprised with what I can remember. Although, I'm also surprised with what I forget. For me, it tends to be more around short term memory. I hope you get the help you desire 🙏
Hi Fraser, you showed great courage while making this video. And documenting as much as you can will help you in the future, as you said. Blessings to you and your family sir. ❤✌🙏
Thank you for sharing your story, I am sure it will help many others who are in the same situation! I am sending you and your family lots of thoughts and prayers 🌸
I came upon your videos completely randomly and I have to say that your videos are really helpful even for people like me who don't have young onset dementia, or currently anyone in their life with dementia. because it's a scary diagnosis and I think sharing your experience with it takes some of the fear away
I understand your anxiety. I underwent all the cognitive testing and was diagnosed with mild cognitive impairment. The testing is brutal. The waiting period for results was more brutal. I was told my memory may worsen over time. I was told to return in 1year to repeat tests. They couldn't understand why I turned it l down. Whatever happens is gonna happen. I am 77. You are a young man. May you find peace somehow through the fog...God Bless us all ❤
May God bless you and your family on this journey. It is a wonderful thing to be loved and to know that you have family that will embrace you through this difficult time.
You're a very pleasant and engaging young man. I'm sorry you have this struggle to go through and I hope your journey is filled with all manner of light, love and laughter! Be well!
Hi Fraser! Thank you so much for sharing your experience and I am so sorry you are going through this. I am a medical student and your perspective on the process of getting diagnosed & feelings about it have been truly insightful! Thank you and sending you lots of strength!
This video just popped up on on my feed, what a wonderful coincidence. Such a casual and warm conversation over such a harsh diagnosis. I already 😮know this is going to help many 👏
The medical system in the US is difficult to navigate also. Patients just get shuffled around and often get lost in the system unless they are able to advocate for themselves or have someone to assist them. It’s unfortunate.
I'm sorry to hear that. It's hard to complain when we are so much better off than people in developing countries (just seems like a waste for us to be dropping the ball, when we have so much)
While dealing with long haul COVID-19, I had dementia like symptoms for almost a year. The frustration of dealing with a brain that's taken a hike is hard to describe, because you are aware that your recall is out the window. I've learned to laugh at it, and to just take it in stride. Not every day was a bad day, and there were days when I just stayed home. Two years later, I'm experiencing recall that seems quite normal.
Your speech was great! I hope you can be the best you can for as long as you can. Your family will be there for you, and that should bring you so comfort
Thank you for your candidness openness, and most of all, courage to make this video. My prayers that you find treatment to delay or help your condition for many years. My heart and prayers go out to you and your family❤.
Fraser, I’m really enjoying your videos as strange as that may seem. You are living something many of us fear. And you’re sharing in a way that is incredibly helpful. I appreciate your ability to make us laugh as well. I’d be interested to know, if you can and want to, how you go about telling your children, colleagues, etc. That feels scary to me. I’m so glad you have your people around you. Wishing you strength and peace.
Hi! Your videos are very inspiring! I’ve been sick since I’ve been a teenager and I greatly declined after the covid pandemic. I don’t have dementia but It’s very nice to see other people share their stories and experiences with how they deal with their illnesses. My grandparents have dementia as well and it’s hard to understand so your perspective is nice!
Fraser, thank you so much for deciding to selflessly share your experience. This will certainly be helpful for many people. Best wishes to you and your family.
Hello from the U.S.A. Thank you for sharing your experiences. You are a very courageous man. Your candor and insight are truly inspirational. Stay strong. You are not alone.
My dad passed away from Alzheimer’s. My brother 60 years old was recently diagnosed with early onset. He’s probably been suffering for at least five years. Thank you for sharing your experience. It’s really difficult for my brother because he doesn’t remember that he doesn’t remember so he is in complete denial that his daily life is even affected because he doesn’t remember that he doesn’t remember.
Thanks so much for reaching out. Im so sorry to hear that your family has been affected so much by dementia. It must be difficult with him not remembering that, especially for everyone else in his life.
Thanks for sharing your journey to your diagnosis ❤ Honestly… it seems like the medical staff really messed up along the way… do hope they can iron out the bumps and make it easier for the patient. Wishing you all the best 🥰🇨🇦
Hi Fraser, I've just discovered you and I want to say it's a beautiful thing you're doing with these videos. I'm so sorry you have this condition, but you're helping sooo many people by sharing your story. You're a beautiful person. 🙌
This video popped up in my feed. Thank you for sharing your experience. I’m glad you have support from loved ones. I have to say you seem to look after yourself very well because you only look early 30s 😊 . I hope you can get all the help you need. Best wishes!
@carissafisher7514 thanks for reaching out. Im sorry to hear you are also going through it. I totally agree, it's the feeling alone aspect that makes it hard. Hope you're doing OK, stay strong 💪
I just came across your channel main reason i clicked on was your heading I (dont )have dementia the (dont) really caught my attention due to my journey over the last couple of year's my dad had vascular dementia my mum was diagnosed with alzheimer's they both have passed away within 5 month's of each other which was a blessing mum was 91 dad 81 over the past year's i found out that i have adhd @ 60 i was soooo relieved to finally have a name/reason to who i actually am anyway lately over maybe 2/3 years i had started to see many similarities between myself & mum so i went down the road to Alzheimer red flags so got booked into a geriatrician did family background ect plus some memory tests ect plus booked in for ctc scans ect anyway long journey short version no real big flag's showed up for Alzheimer's over time its looking more like ageing with adhd forgetfulness overwhelmed especially afternoons dinner time driving which ive stopped as ihad moments where i have like blackouts/time gaps /so i knew that it was time to accept i shouldn't drive anymore i couldn't live with myself if/when i actually would caused an accident just thought if i posted on your channel about my journey so far that hopefully it will help someone on the journey on Alzheimer's or possibly ageing with adhd please take care
Thanks so much for sharing!!! ADHD, is common in my family and loved ones, I know of the challenges (and each person is different) so I can definitely empathise with your concerns. Stay strong 💪
thank you for sharing this. i dont have any issues like you are decribing but i have a general bad memory, and its very interesting to learn this process. my grandma had alshimers-like symptoms so it is informative to learn what the testing process would have been like
Best wishes to you! your candid thoughts awesome!! 🌿🎯🦋🗾 I will not be embarking on dementia journey via healthcare. Here in USA it’s chaos. I am 68 and knew from a relatively young adult age I was at increased risk for dementia . An undisclosed head trauma I sustained as a two year old..landed me on a different path through life. I faced early on the possibilities. My grandmother who I took on two long trips as she was descending into Alzheimer’s made me aware by age 20. My mother developed a form of dementia in her 70’s. I am grateful that health issues that I have had for decades led me to benefit from Vitamin D. I have since added magnesium. Years on lithium for my head trauma is turning out to also be a benefit. All this to say..self awareness and lack of apprehension about my destiny have really helped. To date my health issues do not include cognitive impairment. But I am knowing the world of cognitive decline could be mine. So every day I value! ✅
Thank you so much for reaching out and sharing your story. I'm so sorry to hear about the challenges you and your loved ones have endured. Stay strong 💪
Hi mate, highly recommend you look into the research of Dale Bresden. 80%+ of dementia is related to diabetes, if you optimise your diet and practice things like fasting & IF you'll probably find improvement, also lots of eggs & cholesterol for your brain tissue & myelin. Also don't take any state recommended injectables they certainly don't help.
Ive just watched your video and i can definitely understand what you are going through i don't have Dementia but i do have Degenerative disc disease L4-L5 (arthritis in two discs in my lower back) lateral tear, bulging disc amd arthritis in my hands, feet and possibly other parts im 40 it took me a long time to get a diagnosis when i got diagnosed and the pain started to happen i went through a bit of a tough time i had my daughter who was i think 3 or 4 at the time my ex the kids mum and i started to drift a part i was thinking about myself and how it was affecting me rather than how important those around me were the kids mum was pregnant with our second child i just was in pain a lot but just plodded a long things got worse fast forward to now and and im in control of my disability i co parent my two kids i still have bad days but i have realised that life will test you it took me a long time to get a diagnosis and the doctors here in the uk are still clueless to people like me all i get is im to young to have an operation so i have had to do my research of TH-cam and ive got more information from that than the so called health professionals its dam right discusting good luck with your future.
Hey mate, I'm so sorry to hear about your challenges and the impact your condition has had. You have raised so really good points and thanks for sharing so we can all benefit from your experience.
@YoungerOnsetDementia dude you are a warrior thank you for the reply and a great video i am on amitriptyline ive been on it for 6 years now and one of the conditions is slight memory loss i did have it in the beginning but after 6 years it's not as bad it's more like brain fog now.
My mother has vascular dementia and long-term untreated sleep apnoea (also a major contributor). She is much worse than you, but you still have time and medical research on your side. With A.I and supercomputers, things are looking good for the future.
Thanks for reaching out. Im sorry to hear that you have been struggling. I'm not really in a position to give advice, but it might help to see a doctor if you haven't already. There are many things that can cause memory and other cognitive issues.
I don’t know what to say man… it’s terrible it happened to you, but at least you got people that will help and care for you… and not to mention you have kids that you love and they love you. This sure puts life into perspective doesn’t it?
Hi Frazer, please get your family and doctors to look in to metformin, just remember it goes with with food. Taking it can affect b12 levels .. so get the levels checked every 6 months if you take it. You can get b12 injection if the b12 is low.
My MIL who's 67 has been having dementia symptoms for 3-4 years now. But she won't get tested she won't even go if she thinks that you're taking her to get tested for dementia. We've tried everything because it's getting dangerous for her to be driving and she can barely walk anymore because that's one of the things that started happening to her 3 years ago. If anyone has any advice on how to get her to the doctors office without any problems please let us know... Thank you
@jsquire5pa I just thought it was a beautiful song choice with only 339 Shazams. So maybe somebody would want to know. It was hard to find. But I totally understand what you mean❤️
A lot of these symptoms come from either covid or vaccine complications, both cause circulatory problems, and that can be especially noticeable in a brain or other organs with moderate blood supply (like kidneys or heart). As a nurse of 40 years I am noticing similar issues with majority of my patients of all ages. I would focus on natural vitamins and supplements increasing blood circulation in the body while also hydrating adequately. Cardio exercises as well. We all need to pay more attention to these new problems for sure.
Hi Frazer where is the geriontologist? What is her name? What are they called? Thank you this is fascinating and very helpful. I'm sure this will help people.
Thanks for reaching out ☺️ I'm so sorry, but I'm keeping all identifying information confidential. I'm hoping that people can still find value in the general experience. 🙏
How did you get your dr to listen to you in the first place? I have some severe memory issues going on, but my dr poopoos my worries. I do have cptsd, general anxiety and adhd. She chalks it up to that. How did you approach your dr, initially? I'm 47 so most dr ppl assume I'm a hypochondriac. "Your top young to have xyz!". Thank you for sharing your experience. Biggest hugs from NY!
Hum, I just said I've been having some memory issues and that it's been having an impact on certain aspects of my life. Then they did a short memory/cognition test. I'm sorry to hear that you have been having troubles with people taking it serious. I'm not in a position to give advice, but maybe see a different doctor, if possible.
I would strongly recommend the carnivore diet. Many people have benefited. There is an owner of 3 or 4 long term care facilities in Arizona that he treats his dementia patients with carnivore diet.
I commented on one of your other videos but, try KETO. You have nothing to lose. Ketones have been shown to help with Alzheimer’s and dementia. Bro, I hope to God you don’t decline, but if you do, I hope it’s very slow. Love you, brother!
Yes! Ketone . Dr. Bredesen in the US is having high percentage success reversing Alzheimers with diet and other natural things. He has written several books. You can search his name here on YT and watch a lot of very promising info.
I'm sorry to hear that you have also had symptoms. Nope (although dad jokes about dropping me on my head as a child - it's OK, he didn't, he's just pulling my leg)
Hi Fraser, I’m not really one to comment on videos but I just want to say how immensely proud you should be of yourself. This video really pulled on my heartstrings because you seem like a really great asset to this world and I am so incredibly sorry that this is happening to you and your family. You are wearing your heart on your sleeve and you show great bravery and courage. You are very articulate in being able to describe your journey and this will help many people on their own journey. I truly hope your illness takes the slowest path possible, and I am wishing you and your family all the best and please keep sharing. You have gained a subscriber here from London 😊
So much kindness in your words
Thank you so much for such a loving comment. You have made my day. Yes, a slow path would be a good path (although, I'm more than happy for the late stage to go quickly!). Your compassion shows what sort of person you are and the world is definitely a better place with people like you in it 🙏
Question. I am at high risk of dementia secondary to previous history of viral encephalitis. No current diagnosis of dementia and fully functioning. From your experience and visits to doctors, do you think that testing changes any therapy that you have been prescribed? My opinion is that symptoms can and should be managed regardless of the actual diagnosis. What do you think? Thank you.
I agree with you 100% 💕
I'm really in awe of people who have a devastating diagnosis but in the fog of shock and reality they are able to turn it around to help others. It's such a courageous and virtuous thing to do and what a legacy to leave. I have such admiration 🙏❤️
Thanks so much for your lovely comment. To be honest, I'm not experiencing bad symptoms, so it's probably easy for me to do it. At this stage, I just want people (who have been recently diagnosed) know that it's OK to question things and to have it "on your mind". I have a feeling we're all pretty similar to each other in what's going on in our heads.
I’m 73 yrs old. Im so sorry you are going thru this. I’m feeling some of the same issues you have with finding words. I have to shut my eyes and think of a picture of the word or what the word does. It’s hard to explain. Ppl say, “oh yes, I do that too” but I know what I’m experiencing is different. I do it quite often. I had Long Covid last year and had more problems then-not being able to do slightly complex tasks I’d done many times before. I couldn’t make sense of written instructions (I used to write SOPs so this really alarmed me). I’d head to the kitchen to get something (friends interrupt me and say, “ oh yeah, I forget what I’m going after”).I forgot I was even going to the kitchen! I’d don’t even remember later that I was going after something. It’s so frustrating bc everyone dismisses it but I can feel my cognition disappearing. There’s so many things throughout the day that happen-like I can’t remember that I took my pills 5 minutes ago-stuff like that. I’ve found myself even forgetting that I’m driving! I don’t even remember something I’ve done not too long ago. I play along with my family and say “oh yeah, I remember now” but I don’t remember! It’s so scary. I try not to be depressed about it but it’s hard not to be. I worked in a nursing home as a teenager and used to think “I want to go with dementia bc at least they are happy” but I now know to be careful what you wish for. I just want you to know I’m thinking of you and understand some of what you are going thru.
Thank you so much for reaching out. Im so sorry to hear about the struggles you have been going through. I think as you get older the more people dismiss it as being "not that bad" or "yah, I have that" which would be terribly upsetting (it's dismissive). My thoughts are with you mate. Please look after yourself and see a doctor for some advice.
Hi from Melbourne 🐨😊..I've been having problems for ten years (I'm 50).my doctors..tested me I went to a memory clinic and yes they found problems, but told me to come back every two years, I have Rheumatoid arthritis and I agree, we are not in a position to keep pushing...I'm alone house bound and overwhelmed..I get it. I have to write everything down..my doctors have cut me off because of my memory loss and not keeping appointments...they dont think!
Im sorry about the way you found out....shocking.
best wishes xx
Thanks so much for reaching out. I'm so sorry to hear about your struggles. We gotta stay strong, and I'm starting to learn how important it is to keep seeking the help you need. Keep fighting!!!
Hi Fraser. I’m so sorry you’re going through this. And I’m so glad you have people who love you who are fighting for you.
I’ve subscribed and, along with others, will support you from afar as you bravely go on this journey. Sending strength and best wishes to you and your family
Thank you so much for your lovely comment. I hope you're having a great day 🙏
I just found you and am watching all of your stuff, so I'm glad to see you just uploaded. I think these videos are amazing and will continue to watch them for as long as you put them out. Very interesting and personal. Thank you for sharing.
Thanks so much for reaching out. Im so glad you are finding them interesting and enjoy watching them. It means so much to me that they are helping people. Hope you're having a good day 🙏
Fraser, I was diagnosed with Alzheimer’s the end of 2024 , thank you for sharing !
Thank you so much for reaching out to me. I'm so sorry to hear about your diagnosis. Are you doing ok? Obviously my experience will be different to yours, but I feel there's some comfort in knowing we're not alone 💪
I would like to leave a comment that expresses how I feel about your TH-cam channel but my words just can’t express how important and genuine I feel this is.
Thanks 👍🏻
Thank you so much for your kind words (and I think you said it perfectly). Hope you're having an awesome day 🙏
Thank you so very much!!! I am going thru the same. So very kind and thoughtful of you to share. You have helped me in a way because someone else understands how I feel and what I’m going thru. This disease makes me feel very alone.
You have no idea how grateful I am that you reached out to me. My experience will be different than yours, but I imagine there will always be some shared experience. It's incredible how helpful it is to know you are not alone. Stay strong 💪
The last few frames overwhelmed me with warmth. I lost my partner 13 years ago to a different condition which robbed him of cognitive abilities in the final months. I want to be very protective of you and it elates me to know you have people that fill that role. I am not a psychologist but I perceive that you have an attitude and sense of humor that will help carry you through whatever is to come. There might be dark times, but you are not ready to embrace darkness, as some people might be.
Thanks for reaching out. Im so sorry to hear about your partner. I can imagine its even more difficult for the loved ones. Yep, I'm doing my best to manage it. I'll be fine. Shit happens in life and you seem to always get through it one way or another.
Thank you for sharing your experiences. It's not whinging to share both positive and negative experiences, and very valuable.
You are so welcome! And good point 👍
You have great videography skills. Loving the content, you're an inspiration. Thank you for sharing.
Thank you so much. I will try to sneak some more videograpgy skills in some future videos 👍
Thank you for your openness. I will be following your journey and wish you the utmost best wishes going forward.
Thank you for your candid heartfelt video presentation of your symptoms and diagnosis. This is very informative for those of us whose family members suffer from Alzheimer's or dementia. I wish my sister had access to a neuro psychologist, but there aren't any in her vicinity. I hope that in future videos you will let us know what professionals have been most helpful as you deal with this terrible disease. Sending love to you and your family and friends.
Thanks for reaching out and I'm sorry to hear of your family member with dementia (and for the challenges that has placed on your family). Yes, I feel very fortunate to have been given access to relevant people. Yep, I'll keep you posted.
Pause away! We’re quite happy to wait for you!
That was such a lovely and thoughtful comment. 🙏🙏🙏
Christ, that was hard to watch. I can only imagine what you went through but the way you presented this video was amazing. You really wanted to get the facts across so that it would be helpful to someone else who may be going through the same issues. That says a lot about you as a person. Are you on any medication? Can they slow the disease down? I will be definitely following your story.
Thank you so much for your lovely comment, it means a lot. I think your comment also says a lot about you!!! Yep, I'm on medication, it's to help slow the progression of the symptoms.
Yes you are and will be loved throughout!! Never forget your partner and brother fighting for you. You are always loved deeply.
Well said!
@@YoungerOnsetDementia Thank you!
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Fraser
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Whole.🙏
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so
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❤@@YoungerOnsetDementia
This was incredibly powerful to me. I have an aunt who has been diagnosed with alzheimers last year, and this helped me understand what she's going through. We live far apart so I have only seen her once since her diagnoses, and while I know logically what she's going through, I didn't truly understand what she's going through. I still don't really. But this video has definitely helped me. I think I'll tell my uncle about this video and this channel. I think it would help him too, and he would know better than I if it would be good for my aunt as well. Thank you, and I hope you find strength and peace to help you on your journey.
I'm so sorry to hear about your aunt. Thank you very much for sharing how this video can be of some help. You have made my day 🙏
Support and appreciation for your videos from Texas.
Awesome! Thank you!
Fascinating story, thank your for sharing this.
Thanks for listening
Morning Fraser, loving the background c:
Thanks Mira, yes, it's a lovely little creek in a beautiful park 🙏
I'm wishing all the best for you. Always a pleasure seeing that you posted
Thanks again!!!!
Such a good and thoughtful description of your feelings. Thank you.❤
You are so welcome
Thank you so much for sharing! Stay strong !
Thank you! You too!
I love your videos! Love and support from the US.
Thank you so much!
Hi, Fraser! You are an amazingly brave person to share this. It is so helpful. Thank you very much. I pray it will progress slowly and that God will help you throughout this journey.
Thank you so much for your kind words 🙏
you are a great peson to listen to with an amazing sense of humor
Wow, thank you!
Thank you for this video, I appreciate the effort you went to with this video, both due to your memory issues and noisy environment meaning you had to refilm it so many times!!
I'm so sorry for how you found out the results of your scans, and how you didn't hear it from your doctor. I actually found out about my own terminal diagnosis the same way! My neurologist sent me to a specialist, to get the specialists opinion on the condition my neurologist thought I had. Though the neuro didn't tell me that, he just said its for a 2nd opinion. Then I got sent the letter from the specialist, which was supposed to be sent to my neurologist, which confirmed my diagnosis. I googled it, and the first sentence in Google said that it's a terminal disease, and one that shuts down your muscles, organs and brain with no known treatment. Only symptom relief... I knew something serious was going on, but I was kidding myself that they'd find out what it was, give me a tablet and I'd be fine! But sadly not. I say all that not to overshadow your video and diagnosis but to tell you that I've been through the same thing, and I completely understand the feeling of first reading something like that and your body and mind just goes into a meltdown
I'm glad you have your partner's support, and I saw in another comment that you're on meds to slow progress. I'm interested in following your journey, as someone with their own terminal disease which is now affecting my brain and how it functions (though for me, uncontrollable seizures are what is causing the most damage unfortunately)
Hi Fraser, thank you so much for sharing your story.
Sending you and your family my very best wishes..
🙏🌷💚
Thank you so much!
You’re a brave soul. Thank you for this.
Your ability to recall details of what happened are far better than mine. I'm a couple of years older than you & I haven't been diagnosed with anything like that, not that I haven't tried for years, I just haven't got anywhere. There basically aren't any details in any of my memories.
I'm so sorry to hear about your memory issues. Yes, I'm surprised with what I can remember. Although, I'm also surprised with what I forget. For me, it tends to be more around short term memory. I hope you get the help you desire 🙏
Well told. Very helpful.
Glad it was helpful!
Hi Fraser, you showed great courage while making this video. And documenting as much as you can will help you in the future, as you said. Blessings to you and your family sir. ❤✌🙏
Thank you so much!
Thank you for sharing your story, I am sure it will help many others who are in the same situation! I am sending you and your family lots of thoughts and prayers 🌸
Thank you so much! 🙏🙏🙏
Hi Fraser, I admire your courage to disclose all the info about yourself. Will pray for you and your family.
Thank you so much. I appreciate it 🙏
Fraser, you are amazing. I just love you. Your heart and spirit define you. You are important. You matter!
Ahh, that was lovely, thank you so much!
I came upon your videos completely randomly and I have to say that your videos are really helpful even for people like me who don't have young onset dementia, or currently anyone in their life with dementia. because it's a scary diagnosis and I think sharing your experience with it takes some of the fear away
That is so cool. Thanks for reaching out and letting me know 🙏
I understand your anxiety. I underwent all the cognitive testing and was diagnosed with mild cognitive impairment. The testing is brutal. The waiting period for results was more brutal. I was told my memory may worsen over time. I was told to return in 1year to repeat tests. They couldn't understand why I turned it l down. Whatever happens is gonna happen. I am 77. You are a young man. May you find peace somehow through the fog...God Bless us all ❤
Thank you so much for sharing and I'm sorry to hear about your challenges. I can understand why you would turn it down, no judgement here 🙏
May God bless you and your family on this journey. It is a wonderful thing to be loved and to know that you have family that will embrace you through this difficult time.
Thank you so much! Yes, in the end, that's all that matters for all of us 🙏
Thank you so much for sharing your experience.
Glad it was helpful!
You're a very pleasant and engaging young man. I'm sorry you have this struggle to go through and I hope your journey is filled with all manner of light, love and laughter! Be well!
I appreciate that 🙏🙏🙏
Hi Fraser! Thank you so much for sharing your experience and I am so sorry you are going through this. I am a medical student and your perspective on the process of getting diagnosed & feelings about it have been truly insightful! Thank you and sending you lots of strength!
So glad you found it useful 🙌
This video just popped up on on my feed, what a wonderful coincidence. Such a casual and warm conversation over such a harsh diagnosis. I already 😮know this is going to help many 👏
Oh, that was lovely, thank you so much 🙏
The medical system in the US is difficult to navigate also. Patients just get shuffled around and often get lost in the system unless they are able to advocate for themselves or have someone to assist them. It’s unfortunate.
I'm sorry to hear that. It's hard to complain when we are so much better off than people in developing countries (just seems like a waste for us to be dropping the ball, when we have so much)
While dealing with long haul COVID-19, I had dementia like symptoms for almost a year. The frustration of dealing with a brain that's taken a hike is hard to describe, because you are aware that your recall is out the window. I've learned to laugh at it, and to just take it in stride. Not every day was a bad day, and there were days when I just stayed home.
Two years later, I'm experiencing recall that seems quite normal.
I'm sorry to hear about your memory issues, but it's awesome that things have turned around. 💪
Your speech was great! I hope you can be the best you can for as long as you can. Your family will be there for you, and that should bring you so comfort
Thank you so much!
Thank you for your candidness openness, and most of all, courage to make this video. My prayers that you find treatment to delay or help your condition for many years. My heart and prayers go out to you and your family❤.
Thank you kindly 🙏 ☺️
Fraser, I’m really enjoying your videos as strange as that may seem. You are living something many of us fear. And you’re sharing in a way that is incredibly helpful. I appreciate your ability to make us laugh as well. I’d be interested to know, if you can and want to, how you go about telling your children, colleagues, etc. That feels scary to me. I’m so glad you have your people around you. Wishing you strength and peace.
Thanks so much for reaching out. Yep, I've got that down as a topic for a video so, will definitely share as much as I can in that 🙏
It’a very interesting. The story itself, but more so the way dementia unflods in front of our eyes, as you speak.
Thanks very much. Yah, I cut some pauses out, but make sure I leave some in (so I stay true to my experience). Have a great day.
Hi! Your videos are very inspiring! I’ve been sick since I’ve been a teenager and I greatly declined after the covid pandemic. I don’t have dementia but It’s very nice to see other people share their stories and experiences with how they deal with their illnesses. My grandparents have dementia as well and it’s hard to understand so your perspective is nice!
Thanks for reaching out. Im sorry to hear that you have had challenges. I'm glad my videos were able to help in some way 🙏
Fraser, thank you so much for deciding to selflessly share your experience.
This will certainly be helpful for many people.
Best wishes to you and your family.
Thank you very much for reaching out and showing your support. I appreciate it 🙏
@
Thank YOU!🙏
Truly inspiring and fills me with hope. Thank you.
You are so welcome!
Hello from the U.S.A. Thank you for sharing your experiences. You are a very courageous man. Your candor and insight are truly inspirational. Stay strong. You are not alone.
Thanks so much for your lovely comment 🙏
I'm glad you remembered to upload this bud
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My dad passed away from Alzheimer’s. My brother 60 years old was recently diagnosed with early onset. He’s probably been suffering for at least five years. Thank you for sharing your experience. It’s really difficult for my brother because he doesn’t remember that he doesn’t remember so he is in complete denial that his daily life is even affected because he doesn’t remember that he doesn’t remember.
Thanks so much for reaching out. Im so sorry to hear that your family has been affected so much by dementia. It must be difficult with him not remembering that, especially for everyone else in his life.
Thanks for sharing your journey to your diagnosis ❤ Honestly… it seems like the medical staff really messed up along the way… do hope they can iron out the bumps and make it easier for the patient. Wishing you all the best 🥰🇨🇦
Thanks for reaching out. Yes, communication issues have not been so great
Hi Fraser, I've just discovered you and I want to say it's a beautiful thing you're doing with these videos. I'm so sorry you have this condition, but you're helping sooo many people by sharing your story. You're a beautiful person. 🙌
Thank you so much. I really really appreciate that comment 🙏🙏🙏
You seem like a really lovely person, I'm subbing and want to support you in your process. God Bless!
Thank you so much!
It is a beautiful background!!!!❤❤❤❤❤
@@CoolInOlympia yes, it was nice having the sound of the running water as well 👍
Thank you for sharing, your videos are very well made!
Glad you like them!
This video popped up in my feed. Thank you for sharing your experience. I’m glad you have support from loved ones. I have to say you seem to look after yourself very well because you only look early 30s 😊 . I hope you can get all the help you need. Best wishes!
Thanks for reaching out. And anytime someone can shave off some years I'm very much greatful 🙏
Thanks so much ❤ I am 48, and it is nice not to feel alone going through this!
@carissafisher7514 thanks for reaching out. Im sorry to hear you are also going through it. I totally agree, it's the feeling alone aspect that makes it hard. Hope you're doing OK, stay strong 💪
Thank you so much for sharing your story.
Thank you 🙏
Very helpful. Very genuine re telling of events.
Thank you for making this video.
Best of luck.
😊
Most welcome 😊
I just came across your channel main reason i clicked on was your heading I (dont
)have dementia the (dont) really caught my attention due to my journey over the last couple of year's my dad had vascular dementia my mum was diagnosed with alzheimer's they both have passed away within 5 month's of each other which was a blessing mum was 91 dad 81 over the past year's i found out that i have adhd @ 60 i was soooo relieved to finally have a name/reason to who i actually am anyway lately over maybe 2/3 years i had started to see many similarities between myself & mum so i went down the road to Alzheimer red flags so got booked into a geriatrician did family background ect plus some memory tests ect plus booked in for ctc scans ect anyway long journey short version no real big flag's showed up for Alzheimer's over time its looking more like ageing with adhd forgetfulness overwhelmed especially afternoons dinner time driving which ive stopped as ihad moments where i have like blackouts/time gaps /so i knew that it was time to accept i shouldn't drive anymore i couldn't live with myself if/when i actually would caused an accident just thought if i posted on your channel about my journey so far that hopefully it will help someone on the journey on Alzheimer's or possibly ageing with adhd please take care
Thanks so much for sharing!!! ADHD, is common in my family and loved ones, I know of the challenges (and each person is different) so I can definitely empathise with your concerns. Stay strong 💪
You are a pleasure to meet. The difficulties in getting medical diagnosis assistance is familiar to usa
Thanks for reaching out and sharing what it's like in your part of the world
thank you for sharing this. i dont have any issues like you are decribing but i have a general bad memory, and its very interesting to learn this process. my grandma had alshimers-like symptoms so it is informative to learn what the testing process would have been like
I'm so glad you got something out of it. I hope your memory issues aren't causing too much of a concern 🙏
Best wishes to you! your candid thoughts awesome!! 🌿🎯🦋🗾
I will not be embarking on dementia journey via healthcare. Here in USA it’s chaos.
I am 68 and knew from a relatively young adult age I was at increased risk for dementia . An undisclosed head trauma I sustained as a two year old..landed me on a different path through life. I faced early on the possibilities. My grandmother who I took on two long trips as she was descending into Alzheimer’s made me aware by age 20. My mother developed a form of dementia in her 70’s.
I am grateful that health issues that I have had for decades led me to benefit from Vitamin D. I have since added magnesium. Years on lithium for my head trauma is turning out to also be a benefit.
All this to say..self awareness and lack of apprehension about my destiny have really helped. To date my health issues do not include cognitive impairment. But I am knowing the world of cognitive decline could be mine. So every day I value! ✅
Thank you so much for reaching out and sharing your story. I'm so sorry to hear about the challenges you and your loved ones have endured. Stay strong 💪
That’s wonderful you have a loving family ❤ I think your great I talk like you and I’m convinced I don’t have it 😂
🤣🤣🤣 ha ha, and yes, it's helpful to have a loving family.
Hi mate, highly recommend you look into the research of Dale Bresden. 80%+ of dementia is related to diabetes, if you optimise your diet and practice things like fasting & IF you'll probably find improvement, also lots of eggs & cholesterol for your brain tissue & myelin. Also don't take any state recommended injectables they certainly don't help.
Thanks for the advice!
Sending you loving kindness.
Thanks so much 🙏
Hey Fraser, know that there are people you have never met who are concerned for your welfare and who are sending you love through the TH-cam portal.
That's awesome, thank you so much. Hope you're having a great day 🙏
I agree about the follow up, nobody does their job anymore, it’s unbelievable
It's been surprisingly common.
Ive just watched your video and i can definitely understand what you are going through i don't have Dementia but i do have Degenerative disc disease L4-L5 (arthritis in two discs in my lower back) lateral tear, bulging disc amd arthritis in my hands, feet and possibly other parts im 40 it took me a long time to get a diagnosis when i got diagnosed and the pain started to happen i went through a bit of a tough time i had my daughter who was i think 3 or 4 at the time my ex the kids mum and i started to drift a part i was thinking about myself and how it was affecting me rather than how important those around me were the kids mum was pregnant with our second child i just was in pain a lot but just plodded a long things got worse fast forward to now and and im in control of my disability i co parent my two kids i still have bad days but i have realised that life will test you it took me a long time to get a diagnosis and the doctors here in the uk are still clueless to people like me all i get is im to young to have an operation so i have had to do my research of TH-cam and ive got more information from that than the so called health professionals its dam right discusting good luck with your future.
Hey mate, I'm so sorry to hear about your challenges and the impact your condition has had. You have raised so really good points and thanks for sharing so we can all benefit from your experience.
@YoungerOnsetDementia dude you are a warrior thank you for the reply and a great video i am on amitriptyline ive been on it for 6 years now and one of the conditions is slight memory loss i did have it in the beginning but after 6 years it's not as bad it's more like brain fog now.
Not in our catchment area! And having to call and nudge for answers! Dang.
Yah, I've been surprised. It's happened at every stage. I guess there's a lot of demand!
My mother has vascular dementia and long-term untreated sleep apnoea (also a major contributor).
She is much worse than you, but you still have time and medical research on your side.
With A.I and supercomputers, things are looking good for the future.
So sorry to hear about your mum, and thanks for the kind words 🙏
Sometimes I feel like I have dementia . I’m 38. I forget so much .
Thanks for reaching out. Im sorry to hear that you have been struggling. I'm not really in a position to give advice, but it might help to see a doctor if you haven't already. There are many things that can cause memory and other cognitive issues.
Sorry to hear this, life truly sucks.
Thanks for reaching out. Some aspects of life suck. There are definitely many more people who are much worse off!
Please look into the Keto Diet. Ketones can feed the brain where glucose may not be able to get in. God bless you. Lots of hope!!
Thanks for the advice
I don’t know what to say man… it’s terrible it happened to you, but at least you got people that will help and care for you… and not to mention you have kids that you love and they love you. This sure puts life into perspective doesn’t it?
Thanks for reaching out. Yah, in the end all we have is the present and if we're lucky, good people around us 🙌
Hi Frazer, please get your family and doctors to look in to metformin, just remember it goes with with food. Taking it can affect b12 levels .. so get the levels checked every 6 months if you take it. You can get b12 injection if the b12 is low.
Thanks for the advice 👍
Thank you for sharing. I’m wondering if anyone else in your family tree was diagnosed as well? Is there a genetic component?
Nope. And the doctors weren't concerned for my children 👍
Research does sadly show a genetic link with young onset Alzheimer's and it can run in families yes.
My MIL who's 67 has been having dementia symptoms for 3-4 years now. But she won't get tested she won't even go if she thinks that you're taking her to get tested for dementia. We've tried everything because it's getting dangerous for her to be driving and she can barely walk anymore because that's one of the things that started happening to her 3 years ago. If anyone has any advice on how to get her to the doctors office without any problems please let us know... Thank you
For anybody who loved the outro song choice - For the Road by Meiko
Yep .. thats the most important thing to take out if this video
@jsquire5pa I just thought it was a beautiful song choice with only 339 Shazams. So maybe somebody would want to know. It was hard to find.
But I totally understand what you mean❤️
@ fair dos .. but if an overreaction by me but some of the other comments under these vids are bizarre ..
I'm really glad you liked the song choice 🙏
Please also get your iron. B12 and thyroid levels tested. Also if other minerals or vitamins are low, this can affect things.
Thanks for the heads up, yep, they tested those things 👍
A lot of these symptoms come from either covid or vaccine complications, both cause circulatory problems, and that can be especially noticeable in a brain or other organs with moderate blood supply (like kidneys or heart). As a nurse of 40 years I am noticing similar issues with majority of my patients of all ages. I would focus on natural vitamins and supplements increasing blood circulation in the body while also hydrating adequately. Cardio exercises as well. We all need to pay more attention to these new problems for sure.
Thanks so much for the advice 👍
Hi Frazer where is the geriontologist? What is her name? What are they called? Thank you this is fascinating and very helpful. I'm sure this will help people.
Thanks for reaching out ☺️ I'm so sorry, but I'm keeping all identifying information confidential. I'm hoping that people can still find value in the general experience. 🙏
Did you have a lumbar puncture (spinal tap) showing evidence of Alzheimer's? Did they also do an amyloid-PET scan?
Hey there, no spinal tap. Yep, they did a pet scan (I assume it's the one you're talking about....)
💕💕💕
So many natural supplements and alternative treatments ...
Thanks for the advice
How did you get your dr to listen to you in the first place? I have some severe memory issues going on, but my dr poopoos my worries. I do have cptsd, general anxiety and adhd. She chalks it up to that. How did you approach your dr, initially? I'm 47 so most dr ppl assume I'm a hypochondriac. "Your top young to have xyz!". Thank you for sharing your experience. Biggest hugs from NY!
Hum, I just said I've been having some memory issues and that it's been having an impact on certain aspects of my life. Then they did a short memory/cognition test. I'm sorry to hear that you have been having troubles with people taking it serious. I'm not in a position to give advice, but maybe see a different doctor, if possible.
I would strongly recommend the carnivore diet. Many people have benefited. There is an owner of 3 or 4 long term care facilities in Arizona that he treats his dementia patients with carnivore diet.
Thanks for the advice
🙏🙏🙏
I commented on one of your other videos but, try KETO. You have nothing to lose. Ketones have been shown to help with Alzheimer’s and dementia. Bro, I hope to God you don’t decline, but if you do, I hope it’s very slow. Love you, brother!
Yes! Ketone . Dr. Bredesen in the US is having high percentage success reversing Alzheimers with diet and other natural things. He has written several books. You can search his name here on YT and watch a lot of very promising info.
Thanks very much for the advice! And yes, I also hope it's a slow progression. Hope you're having a great day 🙏
I have many of the same symptoms, don’t remember movies, etc. But I have an old head injury, did you ever have a head injury or head trauma?
I'm sorry to hear that you have also had symptoms. Nope (although dad jokes about dropping me on my head as a child - it's OK, he didn't, he's just pulling my leg)
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