Excellent preparation for the potential of independence while managing a difficult life changing condition. I appreciate the information and insight. Thank you.
Thanks for the video. I am expecting to have a port installed very soon. My Mother was on PD for a few years, but I never drilled down into the processes. This video was one of the best I have seen regarding everything that has to be done to successfully exist on PD.
Thank you so much for making this video and sharing your experience so openly. This is incredibly helpful in answering so many of my questions and fears.
Thank you so much for taking the time to demonstrate this and explain the various nuances that you deal with/prepare for. I'm going to show my 85 year old mom. She's struggling with in-person dialysis, so maybe this is an opportunity for us.
Thankyou for the great video, I am just starting this journey. I appreciate all the people that do these videos of their own experiences! Thanks again. Much appreciated.
just stumbled upon your video. this form of dialysis was recommended to me recently, so I am doing research on it. you made this look like something manageable. thanks for sharing. hope I could come back to ask questions when I am ready.
I have basically the same pd machine however i find the patient line very short . Does anyone have a remedy for this orher than dragging the cart around ??
I just got my pd access placed last week. I now must go for training. I like to be prepared, so I'm looking for any additional help. Your video has been a great help to me. I learned a lot. My problem is that I don't produce any urine and I therefore must stay on the machine for 14 hours. But since I can walk around, maybe it'll work out. Fingers crossed. I'd like to see how it works using an IV poll instead of the machine. Thank you for your help.
Hi there, so sorry for the delayed response. You would need to be prescribed peritoneal dialysis by your nephrologist and your dialysis clinic would provide the machine and supplies after training.
So are you loading the bags and tubes on the machine earlier in the day and leaving it all to sit a few hours until bedtime? Is that allowed? Or are all these steps performed each night at bedtime?
Also, is the catheter a nuisance? I’m trending toward all of this and I am really anxious. Where does the loose end go when not hooked up? Tuck into your pants? Tape to your side? How do you keep from snagging and pulling it out?
You prepare everything right before bed. You may get your wrapped supplies ready maybe but everything must be sterile while hooking up. There are a few options to what to do with your catheter site. Some use tape to hold in place with high waisted pants like leggings or yoga/exercise pants. Also there is a belt and a catheter lanyard type thing. Actually let me try and find the video I watched and add it to the comment.
I never had it but maybe once. I suppose if you were still asleep in the machine it could be bad enough to wake you up. It wouldn’t happen with manuals because, it happens when you’re draining the fluid out.
YOu can join our online support group to talk to people who have been there and can offer advice. We also have a peer-to-peer phone number you can call. The number is (800) 579-1970 (toll-free) and you can call Monday through Friday from 10am to 6pm (Pacific Time).
My wife just started PD after our training 8 days and she’s already overwhelmed with it all to the point she’s talking of quitting and returning to the NEEDLE!
Hi Steven, You might try to trouble shoot with your wife's nurse and maybe ask for additional training. If she chooses to change to hemo, maybe consider doing it at home.
Excellent preparation for the potential of independence while managing a difficult life changing condition. I appreciate the information and insight. Thank you.
Helpful video, thanks, makes my decision easier to go with PT.
Thank you ❤
Thanks for the video. I am expecting to have a port installed very soon. My Mother was on PD for a few years, but I never drilled down into the processes. This video was one of the best I have seen regarding everything that has to be done to successfully exist on PD.
Thank you so much for making this video and sharing your experience so openly. This is incredibly helpful in answering so many of my questions and fears.
This is such a helpful video. Thank you so much. To say this is an overwhelming process is an understatement. You definitely have helped ❤
Thank you so much for taking the time to demonstrate this and explain the various nuances that you deal with/prepare for. I'm going to show my 85 year old mom. She's struggling with in-person dialysis, so maybe this is an opportunity for us.
Thanks for the excellent information.
Thankyou for the great video, I am just starting this journey. I appreciate all the people that do these videos of their own experiences! Thanks again. Much appreciated.
Thank you for doing this video. I will be starting dialysis soon and was a bit anxious. You have shown me that I can do it Thank you !!
Awesome video. I’m two months into my treatment. I will make a video as well to share my experience.
Great video! Thank you so much. My husband is brand new to pd and so far we’re doing fine.
Excellent and detailed.
just stumbled upon your video. this form of dialysis was recommended to me recently, so I am doing research on it. you made this look like something manageable. thanks for sharing. hope I could come back to ask questions when I am ready.
Thanks for sharing ❤️
Thank you
I have basically the same pd machine however i find the patient line very short . Does anyone have a remedy for this orher than dragging the cart around ??
I just got my pd access placed last week. I now must go for training. I like to be prepared, so I'm looking for any additional help. Your video has been a great help to me. I learned a lot. My problem is that I don't produce any urine and I therefore must stay on the machine for 14 hours. But since I can walk around, maybe it'll work out. Fingers crossed.
I'd like to see how it works using an IV poll instead of the machine.
Thank you for your help.
Could you give me information where i can buy the machine? And how much it cost?
Hi there, so sorry for the delayed response. You would need to be prescribed peritoneal dialysis by your nephrologist and your dialysis clinic would provide the machine and supplies after training.
I like to drink occasionally! Is 6 beers too much to have every once in a while? While on dialysis if so any suggestions on other alcoholic beverages
You should always check with your doctor and renal dietitian about anything you eat or drink.
@@Lorihartwell thank you for that information
Sure who needs a kidney
So are you loading the bags and tubes on the machine earlier in the day and leaving it all to sit a few hours until bedtime? Is that allowed? Or are all these steps performed each night at bedtime?
Also, is the catheter a nuisance? I’m trending toward all of this and I am really anxious. Where does the loose end go when not hooked up? Tuck into your pants? Tape to your side? How do you keep from snagging and pulling it out?
You prepare everything right before bed. You may get your wrapped supplies ready maybe but everything must be sterile while hooking up.
There are a few options to what to do with your catheter site. Some use tape to hold in place with high waisted pants like leggings or yoga/exercise pants. Also there is a belt and a catheter lanyard type thing. Actually let me try and find the video I watched and add it to the comment.
@pim5490 Excellent answer, thank you!
Does the drain pain ever wake you up?
I never had it but maybe once. I suppose if you were still asleep in the machine it could be bad enough to wake you up. It wouldn’t happen with manuals because, it happens when you’re draining the fluid out.
Im just starting...afraid and confused. 😢
YOu can join our online support group to talk to people who have been there and can offer advice. We also have a peer-to-peer phone number you can call. The number is (800) 579-1970 (toll-free) and you can call Monday through Friday from 10am to 6pm (Pacific Time).
My wife just started PD after our training 8 days and she’s already overwhelmed with it all to the point she’s talking of quitting and returning to the NEEDLE!
Hi Steven, You might try to trouble shoot with your wife's nurse and maybe ask for additional training. If she chooses to change to hemo, maybe consider doing it at home.
@@Lorihartwell I can’t reply back to you
@@Lorihartwell hemo at home? No we’re doing PD at home and it’s bringing on depression and she’s not the type for depression! PET testing today
@@stevencohn922
Prayers for her. It's definitely a experience and to say it's overwhelming is an understatement 🙏🏽
@ she’s already back to Hemodialysis! She didn’t even last one week after PD training!
Thank you for sharing 💕