Gastroparesis: The stuff no one really talks about
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- เผยแพร่เมื่อ 11 ก.ย. 2024
- Gastroparesis is an incurable illness that causes paralysis of the stomach. It affects an estimated 5 million people and theres countless others who are not diagnosed because theres not enough education out there about this illness. We need your help to get it out there. Please help us by sharing this video and let the world know how Gastroparesis affects YOU!!!!
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Just so you know, we are not thinking "why is she making a youtube video." We're glad to see you. We're glad to hear you. We're in this together. Just wanted you to know that
Thank you for sharing. My journey started 6 months ago with interment severe nausea. Then one night I started throwing up and could not stop, went to the er where they thought I had the stomach flu. After a week of still throwing up my PCP sent me to a GI doc. I am now in the stage where I sip liquids and on a good day I am able to keep down one scrambled egg and one slice of bread, but it takes all day to get that down. I can no longer work. I spend all my time in bed I am so exhausted due to malnutrition. Thank you for speaking the truth about this hell we are living in. I hate the videos where the professionals give you a list of "safe" foods. For me there are no safe foods.
OMG I am struggling with this. And I thank God it hasn’t gotten to the last stage. I am praying for a miracle. I can’t stay healthy. Thanks for sharing
My Gastroparesis made my stomach rupture and darn near killed me. I’m with you. Thank you for speaking up. All I have to give you is prayers.
Thank you so much.
How did that happen?
Was it a Bazar I have gp and this one of my fears
Thank you so much for posting this video. I have recently been diagnosed with GP. You're absolutely right! These are the very things that no one talks about. This video has also helped me to understand the severity of what I am going thru. Stay strong! Praying for you and all who are going thru this with us. 🙏
You're welcome. I'm sorry you were diagnosed with illness but it will be ok
YESSSSS! Thank you so much for being so real. People have no idea how badly we suffer. Our entire culture centers around food, especially at holidays. We have to buy groceries, cook food, smell food, & watch everyone else eat while we can't have any of it. Its literally torture every damn day😭
adrienne findley thank you. I'm so sorry you are also suffering. This is horrible
people don’t ever talk about mental health and gastroparesis but they definitely go hand in hand. i was diagnosed with mild gastroparesis about two years ago and i have seen a steady decline in my health. i wake up fatigued daily, i’m constantly worried about whatever it is im eating and if i’ll throw it all back up later, whether that be hours or DAYS. you are strong and thank you for making more people aware of this illness. you have made me feel more validated in my illness and myself and i’m forever grateful for that.
Ty so much
Thank you! Yours is the First gastroparesis video in which there is no fluffy stuff; you actually tell it like it is. I feel like I know a little better what's going on. I wish you such good health! Thanks again!
Ty so much
You deserve applause for this video Lady J, a very courageous effoft in my book, you actually schooled myself on some of the more intimate things I suffer from daily, balding alone is like a cruel joke, the pain is just stupid big at times and it's a hidden disease so no one cares because the don't see disfigurement or blood, I personally can't tolerate any medications for any of the illnesses I have as a result of Diabetic GP, so I self medicate, I go into rehab next week for alcohol abuse, beer is my friend though, it sedates - depresses the pain, and I do get some nutrition from it, but consuming no/little solid food takes a toll, and combined with major anxiety disorder, it's no fun on the toilet I can tell you, you have just become my go to ambassador for DGP, I'm sharing your video to everyone I think might have enough care to watch it, thank you so very much for this, I'm a guy btw, and you have me bawling my eyes out, I do alot of that lately, keep fighting the good fight Lady J, you're one of my hero's from this day until this insidious disease takes me home
Omg thank you so much for this. I'm here if you need to talk. This illness makes everyone feel so lonely and you are definitely not alone.
@@babypebs1135 I know that I'm not alone now, I've been battling this for many years now and only just getting to the bottom of it with a litteral Team of medical people, but it's people like you this world needs Lady J, you have a way with words so I plead for you to keep putting those words out there, you've really helped me understand, or solidify (pardon the pun ) in my mind that I am in fact very ill, but like you I'm a fighter, so we just need to excersize patience till it hurts, there is a going to be a cure one day, we just have to wait
You are not weak or pathetic honey. I feel your pain and have had fibromyalgia for over 20 years, I feel your pain and it’s completely life changing for the worst. I’ve suffered for 7 years and finally getting a diagnosis. It’s hell and I hate it. Big hugs and thank you so much for your brilliant video from the heart ❤️ xxxxxx
I'm really glad I found your video. I have such a hard time convincing drs that I have gastroparesis because I'm heavy. Even when I explain to them that I sat for 8 hrs going every 2hrs back for more xrays to see if those damn radioactive eggs moved yet. Well after 8 hrs they were still sitting in my stomach. Recently, my kidneys were not working and I had to go to the ER and when they asked me what I ate that day and I said nothing, I don't really get hungry. And my aide told them "she doesn't eat, she takes a few bites then gives it to her service dog". The Dr looked at the nurse and they just rolled their eyes. This is why I get tired of going for help. I totally understand where you are coming from. Thank you for sharing. You at least made me feel validated!
Kelley Hovenstine thank you so much. I'm sorry for what you've gone through. I'm always afraid to make videos but it's people like you that keep me making them.
+ Kelly Hovenstine - I have gained weight myself - a lot I think. I haven't been weighed lately. I live on yogurt and rice pudding, but not much. I find apple juice fills me too much, and I am more bloated if I do liquids. I drink a lot of water, but it doesn't always go through me. I am very uncomfortable most of the time. I can hardly eat, bc I had a tummy tuck years ago, and that made my skin tight, It is like my stomach doesn't stretch anymore. So a little food bloats me bigtime. I understand. My family hates me being overweight. How can I eat less than almost nothing?
I lost a lot of weight, and gt down to a size 8 after a tummy tuck. You shouldn't lose weight after a tummy tuck. I think something went wrong, perhaps with the Vegas nerve. You sign a contract - your life away - can't sue or anything. So, it is "Idiopathic," meaning they don't know why. I liked being thin, though. I had an abscess on my belly button, and I had to get that fixed. The new Dr talked me into some more work, to do a "better job," than the first guy - BUT he did not do a better job. After the abscess was gone, though I began gaining weight. Thing is I don't do anything different really to gain or lose. It is just nuts. I don't want to be too thin, but I have gained weight from bloat. I eat a lot of dairy, rice pudding and Chobani yogurt. I eat the same stuff everyday. My husband makes vegetables and pita bread sliced in half for dinner a lot. The veggies have to be cooked a lot. Hang in there!!! You probably had it longer than two weeks, and just was diagnosed, or did something happen?
Thank you for your kind reply! I also used to drink, but I felt like I had an ulcer when this began. Sometimes I still do. I don't know why they don't try antibiotics, but they don't. I don't have diabetes. It is odd. I do have back issues and I have to stop my medication. I have no choice. My doctor says, "What about your back pain?" Well, this has gotten worse than the back pain, and I had 3 surgeries, lol I bought stuff to do a parasite cleanse, but I never did it yet. I am not educated enough about that. Try not to eat fast food. They put weird stuff in the genetically modified food - that is an education in itself. It hurts when I eat, but it also hurts not eat. So it is hard, and then the bathroom problems too!!! I take Miralax, which helps for now. God Bless you also!
th-cam.com/video/-LAKFhDguuw/w-d-xo.html Top 10 GMO Foods to Avoid - This is pretty good info - God only knows what they put into food now days. We need to get educated. They mention some documentaries also...Monsanto is terrible! They have total control over our food. Even Whole Foods cannot promise everything is organic, but they try.
thank you for sharing. i am going through this now myself. I'm getting a feeding tube in about a week. Depression is a big part of this too. your video helps, so thank you.
basbous38 thank you for this
Lady J's life I hope you will be able to get ahold of me. I need to talk to someone that knows about this disease. No drs will listen to me and I need to know what you think and see if you have the same kinds of problems as when it comes to pain and what your pain feels like.
I'm going to leave my number which I would never do but I am so tired and tired of feeling like this and no one wants to listen to me. For some reason I don't get notifications when I write something on someone's video and they reply back it never tells me any more and I don't know why or how to fix it to work agajn. So giving you my phone number is.the only way. I will leave this comment up for aprox 2 weeks then I will delete it being it will have my phone number in it.
If I don't answer please leave a message with your phone number so I can call you back.
I hope and pray I hear from you.
Thank you in advance..Kim
614 949 9847.
Lady J's life you cam also look up my you tube page. You will know it is mine because I have a sweet little yorkie singing. It says help save merley moo.
basbous38 your right depression is a big part of it
I have this also....depression has affected me as well. But ALWAYS ALWAYS REMEMBER GOD IS WITH YOU. We have this for a reason, so we must be strong enough to handle. Talk to God as much as possible. 🙏🏻🙏🏻🙏🏻😇😇😇
I think I have this. I can’t eat; complete loss of appetite; vomiting; nauseous; pain; loss of weight, quickly. This has been going on for a month. Now I’m having issues keeping liquids down plus I don’t wanna drink bc it comes back up. I don’t know what to do. I have to wait another month to see a gastro. Thank you for your video.
Have this, fibro, bi polar, OCD, PTSD, anxiety plus a mom of 5. Ages 10,7,5,and twins that are 2. I work full time in pain and running back and fourth to the bathroom all day.
Thank you for being real!! I’ve had a feeding tube for the last few weeks and because I’m not skinny so therefore I don’t need a feeding tube.. I can eat.. “so just eat more”. You know the stupid things people say!! I don’t tell my friends and family much because I don’t want to hear the stupidity!! Thank you so much for your frankness!!
camogurll69 thank u so much for this. It's very hard for us who do deal with this. I'm down to 164 and disappearing everyday
Lady J's life are you still doing the tube feedings or are you eating now? How is that going?
camogurll69 not on tube feeds anymore but still struggling really bad. I am still on a liquid diet. I just put up a new video. Go check it oit
Amen sister I have this I’ve lost over 150 pounds I can tell you my gastropresis stroeies for sure . And the way some doctors talk to you it’s unbelievable
Exactly. They treat the patient badly sometimes. As if the patient is lying
I just found your video and girl, I feel you. I have Eosinophilic Esophagitis for sure and getting tests for possible Gastroparesis. I keep puking up food and cutting out so much from my diet that I am wondering if eating is still possible. I also have anxiety, depression, severe food allergies, possible Celiac disease and maybe blood disorders. My biggest problem is that people say "you are not sick" or "you are faking this" or the big one "you are puking for attention drama queen". I want to scream because people are such assholes.
I'm so sorry to hear everything you're going through. It is hard when people don't see our sickness. Just know I'm here if you need to talk
I love you, thank you for this. I'm just starting out as mild but have some bad symptoms. I being real with everyone I talk to about it. Show them the crazy ass rashes all over my arms. My hair that I can see isn't as healthy as it was. And the constant pain. I love your realness. Keep on going.
Angela Kling thank you so much. I'm sorry you have to deal with this
I’ve had symptoms for the past 3 years saw 4 different GI and none of them could tell what I have they were all saying it IBS -C until I found one GI who just diagnosed me GP last week . I’ve been so miserable I’m missing work so much cause I’m constantly fatigue , I’m on soups only I can barely drink water cause I have a huge discomfort on the side of my stomach, I can’t stand straight cause it bothers me so much . So thank you for this video I’m only 133 pounds so I’m scared that it might get worse .😞
I'm very sorry you're going through this.
Even liquids don't digest, and people cannot understand that. Yes, we eat out of guilt, like my husband cooks for me and always has. I finally had to say, "Don't cook for me anymore!" He's wonderful, and understands...I drink a lot of water, but my stomach gets hard and bloated. It is like the stomach doesn't stretch anymore. It fills up, and that's it. It does not stretch. I'm real also. Thanks for being real!
88msbugsy I definitely wish more people understood
That's how mine feels. I eat, the food sits, my stomach gets hard, bloated, feels like a can't take a deep breath because of the pressure. I don't have pain or throw up.
I have Gastroparisis and my hairs in a bun too.. 💚
Hi. I'm sorry you've been diagnosed
Lady J thank you for being so brave and telling it like it is ... you're a rare commodity in this day and age. I have seen a lot of videos of people who have it that are fully made up, hair done, make up, which leads to a false perception. This is a very debilitating illness, and I'm glad your representing it as such. I was recently diagnosed with GP and I don't like things candy coated , so again thank you for your honesty...
Ty so much. If you need to talk it's easier if you message me through fb. Jennifer diaz torres
I hardly eat now.. I cannot recoup from anything. I’m not losing weight either which astounds me.. I went by ambulance because I couldn’t stop vomiting . I had gastritis. Painful. Now my bowel issues are even worse if that’s possible! I’m 70 am recent diagnosed.. I keep a large garbage can by my bed and a bedside commode.. this is hell.
Was just diagnosed with this but not in severe state. Very painful, lost lots of weight & no appetite. My doctor put me on a drug I can only get in Canada. My friend’s daughter has GP & has had good results on this drug so praying I will too. Glad you are speaking out. I have Crohn’s too. My family is very supportive but not use to me giving up & going to bed. This pain is a bit much. Praying you u get some help soon. I’m blessed with a caring Gastroerologist.
I'm glad that you have a good dr. I'm here if you gave any questions
Thank you for sharing. I have gastroparesis, diabetes, lupus, fibormyalga, rehumitod arthritis,sleep abenia, IBS, depression and anxiety. My husband doesn't helps me, he gets mad cuz the house isn't clean and dinner isn't made when he gets home from work. Tells me I'm worthless no good for nothing
I am so sorry to hear this how are you
I was just diagnosed with this I have had sy.ptoms for many many years. I have seen numerous doctors. So by now it's really bad. Thank you for sharing your story.
I’m 18 years old now but I’ve had gastroparesis since I was 12 years old. It has taken everything from me. I can’t be a nurse like I always dreamed of because I’m so sick. I wish there was a cure so badly.
I dont know if you will see this or not... but i was just diagnosed with gastroparesis at the end of August, 5 days after my 17th birthday, after suffering with symptoms for 5 years and no one listened to me before. I cry a lot because of all of the symptoms i have... I am glad i found your channel
Hi. I'm sorry that you were diagnosed with this horrible illness. I'm here if you ever need to talk.
U are absolutelly right. I agree with everything what u said. People like u give me a hope because I'm not alone and I see u struggle with same problems as me. Stay strong I know what it is.
Thank you so much
I just had my stomach tattooed this week in preparation for a pyloromyotomy to help with gastroparesis and pyloric stenosis. I am preparing for a pancreas transplant and had a power port placed for nutrient replacement, which i pray helps in further controlling symptoms enough to return to work while taking me off around 6-8 g.i. medications. I will pray for you.
I haven’t heard of the procedure you’re having but I hope it truly helps you. I will also be praying for you
Thank you for this video, i hate that anyone has this but in a way glad someone understanss. I was wondering if anyone else besides me, can actually feel their food digesting? 😭F this disease. Praying for everyone who has this.
Lori Harding good morning. Yes this illness suvks
I started with nausea and vomiting less than 24 hrs after my 2nd vax. I already had lupus and pots, but nothing like this. And the nausea & vomiting never stopped. I lost 40# in 4 months and my hair is so thin, so much scalp is visible. Just had massive dental work. I honestly feel like I'm dying and I'm immunocompromised. I just feel like I'm walking on eggshells to keep my body going. I'm scared. Thank you for this video.
Girl i know what u going thru i got gasteroperisis people have no clue thank you for keeping it real.
Ty
Thank you for sharing. My 21 year old daughter was finally diagnosed after many week long hospital stays. She is also type 1 diabetic. The treatment she got by most nurses and doctors was that she was lying and making it all up. So many times they would send in the psychiatrist because they thought she was mentally ill! She is in the hospital puking as I write this. Thank you for sharing your story. We are new to this.
pramor787 good morning. I'm very sorry that she has to go through this. What is their plan for her???
THANK YOU!!! I've been watching video after video of people's stories who are struggling and surviving gastroparesis. My bf just doesn't seem to get it. Every other video is loaded with pitty and poor mes but it doesn't get across the true reality yours did. It's not just oh I'm sick and have to go to the hospital often or be fed from a machine.... It is LIFE CHANGING. Also, the whole comparison to cancer "oh it's not as bad as cancer" lol okay, you say that till you have it and your mind will change so fast. Educating ourselves about this disease is the best way to support someone going thru it! It's the closest they'll ever get to understanding what it's like to actually live with it.
You made me bawl like a baby around 10 min in when you admitted your anger. I felt that on a deep level. I'm angry too. Heartbroken. Feel defective and broken. Wish I could hug you tight and I don't even know you. ❤️
Sydney Pryor thank you so much. I wish I could hug you too. This illness is disgusting and the people who treat us badly are just uneducated on the severity of it.
Lady J's life are you on Facebook? I'd love to get to know you and relate ❤️
Sydney Pryor Jennifer gp Torres. This is my fb
I'm going to be tested for autonomic neuropathy sometime soon. Got the referral two days ago, so currently waiting for an appointment. It's because I have resting tachycardia (regular heartbeat, but too fast), weird sweating spells and I've started throwing my food up on occasion that was eaten maybe 10 to 12 hours before (maybe once a month), as well as belching and gastric reflux which has never been a problem for me before. I've had type 1 diabetes for 15 years - over half my life, so it's pretty common to have at least mild autonomic neuropathy.
I'm the most nervous of the gastroparesis, especially if it's progressive - it sounds awful... :(
I used to throw up my food undigested every single day of my life and had all the symptoms you mentioned in the mild stage. I refuse to go to a doctor or take any fda approved meds after my experience. Have you ever tried any natural remedies? I'm trying to learn how to heal myself naturally. I have been diagnosed and misdiagnosed so many times by gi doctors, I don't trust them at all.
I went to see a med doc that specializes in natural meds and herbs. He said he would not take my money because there was nothing he could do to reverse the effects of this illness. Although he was able to suggest some liquid vitamins and probiotics to help with the malnutrition.
Such a powerful video! I have never herd about this condition until five months ago when my doctor brought it to my attention. I am in the process of doing tests to see if I am diagnosed with this terrible condition. I have constant bloating, sulfur burps, abdominal pain, gas, diarrhea, nausea, and now vomiting. It is ruining my everyday life. It is a living HELL..Thank you so much for this video! I am definitely going to share this with all my friends and loved ones.
SRod Vids hi. I am so sorry that this might be a possibility in your life. I hope the testing gives you answers. Please keep me updated on your testing. Please remember you are not alone.
Lady J's life I will be back and keep you posted. I do a gastro emptying on feb 13th. Thank you for the support!!!
SRod Vids you're very welcome.
This video made me a better person. And this video was amazing. You shouldn't need to be funny to be amazing. You should be yourself! Thankyou for everything you taught me today!
Thank you so much. This really made my day.
I just love you, you are so honest. I have been diagnosed with gastropersis, i can still eat. But i am havin a bad week, hamburger is a big no, no for me. I only ate the smallest amount and i feel stupid for it and paying dearly just because i was hungry.
Thank you. I hope you feel better
Thank you for sharing!! I'm dealing with my doctors thinking oh I'm fat I'm fine. I hate this! You sound just like me I want to eat but don't want to suffer from it.
I know this was years ago but you're a great speaker!! I'm so sorry this is happening to you. I had 1 bout of gastroparesis because I have Multiple Sclerosis and for that 12 days, I thought I was going to die😢you're strong as hell!! I'm praying for you, I don't know what else to do but suggest you go on Ted Talks because people need to hear this!
@@brielleanyez7113 thank you so much. I was so nervous making these videos
I know its January 2020 but I just came across this video and its the first of many videos that I have watched that has gave me insight about gastroparesis that I relate to. I am 35 and just found out that I have it the server type . I found out that I am a type 1 diabetic when I was 23 and most likely I was born with it … I grew up always sick after eating. I have had many trips to the er no answers ever finally my stomach dr did the stomach emptying test. Monday I go in for a scope to see what we are going to do next.. everything I eat comes up and im in so much pain. I have a 7 year old and I feel shitty that I cant do stuff with her like everyone else because im always sick....sorry to ramble I just wanted to let you know that your video gave me some clarity and I wish you the best
Thank you so much. I'm very sorry you have this. This illness is ugly and confusing. Not evey patient is the same
I have it too. Stay brave.. thank you for your video smh.. I’m in tears
I understand I think the not eating will be so hard, with our minds overcoming wanting to eat. It's such a part of our social part and e joying tasting.
I am in tears! My heart is broken! Just dx on my 51st birthday. Have not had a meal since Christmas Eve with my family.
Im very sorry to be reading this. It is a very hard disease to live with
@@babypebs1135 yes ma'am I had no idea... In fact since this is all brand new I still have no idea.. I meet with a gastro on Tuesday and hopefully will get some guidance. It's been a bad week.. I haven't been able to hold anything down I'm exhausted yet I can't sleep. Help... I plan on going in ready to be honest about everything but what else...
@@egtw98 They will probably recommend medicine first. There is Reglan and Domperidone
@@babypebs1135 please don't stop .. I just found you and need to trust someone. Please feel free to email me at egtw98@yahoo.com I'd be happy to give you my cell number I would love to become friends.
I am loving you for this video! I've got diagnose for Gastroparesis in March, 2019. This has got to be the realest on this illness I've seen and I thank you for it. Stay strong.
I'm very sorry you for diagnosed. Just know you are not alone. Thank you so much for the kind words
@@babypebs1135 Thank you. Still struggling on finding what will work and what won't. It's a process and I refuse to give up or give in.
@@jayjones9589 definitely don't give up. You will find what works for you. Just remember everyone with gp is different in how it effects their body. So don't think just because it's working for someone else it will work for you.
I was just diagnosed. In October 2019. I was in ICU. I don't have a feeding tube yet. But I can't barely eat or go to the bathroom. I'm nauseated in pain I eat mainly cream of wheat. I'm so weak I'm in bed all the time. I went to the ER the other day and they sent me home even though I was in severe pain and had severe nausea. I do have shortness of breath which is new along with the dizziness. I'm in bed all the time. I'm so bloated I look 5 months pregnant. Good Luck and I'm praying for all of you. I also have Lupus, Crohn's disease, Type 2 Diabetes, depression, anxiety. It's really hard.😢😢😢
Hi. My name Mitzi and I'm 47. Thank you for sharing. Yes, this disease is very lonely and very isolating to say the least. Yes, I am one of those people that you were talking to; because I'm usually the one with a smile on my face and going through my life like there's nothing wrong, yet inside I just want to scream and yell because I really don't feel well.
About 1997, I started having some health issues and doctors were thinking that I might have Lupis. Some of the reasons why they were thinking that, was; immune system was in poor condition, the muscles that help push my food through my body (peristalsis) in my gut wasn't working right and I wasn't able to eat without sever abdominal pain, and I was havingheart problems as well. They put me on some meds and it got better.
Then in 2006, I had another flair up, but this time they diagnosed me with Mixed Connective Tissue Disease and a sick gallbladder. I had my gallbladder removed in 2007, and then from there everything went down hill fast (it was like I was going 100 mph and I had a blowout).
In 2009, I had to go on disability, which was the most humiliating thing I had ever done (I worked as an RN in a nursing home for 15yrs, then as social services for 7yrs.) it wasn't my pride that made me feel humiliated, but that feeling that I was sicker then I wanted to admit and having to surrender in defeat to it. I was also diagnosed with POT's (meaning my blood pressure would drop when I stood up to fast and I would pass out).
In 2010 and 2012, I was diagnosed with Early onset Parkinson's Disease. (What is funny in a way, in 2008, a doctor stood in front of me and said that I was health as a horse, and the heart issues, abdominal pain, nausea, bloating, were all signs that I had anxiety. Anxiety?!? I have my Masters in Health and Science and the root of my complains wasn't from anxiety, but what ever was going on was causing the anxiety. That doctor made me feel like I didn't know what I was talking about, I truly felt that I was going nuts, because I knew what my body was saying, and I wasn't faking it for attention seeking. Some doctors like that make my blood boil. Venting done and off my soap box).
In 2015 and 2016, I was hospitalized 15x's, for: dehydration, uncontrollable vomiting, abdominal pain, severe heartburn, and inhalation pneumonia (from throwing up while I was asleep).
In January of 2017, my GI did a stomach empting test, which after 4hrs I still had 68% of my stomach contents still in my stomach.
Since July of 2017 I have been on a liquid diet. Trust I know what you are talking about, when you say it sucks. And to have people say, that I'm attention seeking, or I'm just eating this way to loss weight, or that I always eat on Saturday night so I don't have to go to church the next morning. And all I want to do is to yell at those people and you don't even know what you're talking about. You don't know what it's like to go in town with your husband every Saturday for date night, then slowly not being able to. Or to have your favorite food with all of the family over at your home, and knowing that if you eat you will pay for it dearly, so you sneak a little bit and 2 hours later family is leaving because they can hear you getting sick. It sucks, it REALLY suck. I can't control myself around food, so I don't go around it, which means I have no social life because everything is usually centered around food. Not to mention your "friends" from church that say "Don't you believe that God can heal you, because HE would if you had more faith in HIM to". Yes, I am a Christian, and Yes I believe God can do some awesome things,. However, I'm also a realist and I know that some times bad things happen to good people, that's life, you just roll with the punches.
Thank you again for your video and being really about GP. It was inspiring and motiving, to say it okay to pull back the curtain and let people see what we are really going through. It's time to take off the mask that I have been hiding behind and show people what is really going on. My poor husband is a saint. Because I know that on my good days I push myself beyond my tolerance point, then I'm days trying to recover. But, I couldn't do this without him.
Thanks again.
Respectfully yours,
Mitzi
Mitzi Hultz I wish I was able to talk with you. I believe I have this and was hospitalized due to the extremely major pain I was in. I can't even pit into words the pain I was in, all I can say is that it felt as if I had an inner tube under rib cage and it was being inflated with air and wasn't stopping and I was going to split open. It honestly felt that way. They let me sit in that kind of pain for 6 hours before the ER Dr came in to even see me. When he finally did he wanted to do a CT scan with dye and that is when they found in had ileus in several parts of my intestines. He told me he was going to have to admit me and I wasn't aloud to eat or drink anything. They gave me Dilaudid for pain and will say that pain med was a god send..
He asked me I had been in any car accidents or if I had surgery recently and I said no, the only surgery I have ever had was in 1993 when I had a C-section to have my daughter and he even asked me if i was sure. Which I thought was weird but he told.me that people just don't get ileus. It usually happens when one has surgery or a bad car accident and I assume because of the seat belt. But he told me.he would have to keep me for a couple of days and that if my stomach wouldn't go down on its own that they would have to put a tube down my throat and suck out all the extra air and fluid to help me breath and to hopefully get my intestines to start to work again or else they would have to cut the bad parts out because they would die and I would be in some major serious problems including death. He told me I had to make an appointment with a GI dr asap when I got out of the hospital. The GI dr that I was told to get ahold of could not see me for close to 3 months. When I did finally get to see him I don't believe he actually did anything even not reading anything when it came to what the ER dr found or that when I got on the scale it showed that I gained 10 pounds in aprox 2 weeks. He told me I was healthy as a horse and anyone would be glad to have my blood work because it was that good. He told me my problem was anxiety even though I gained 10 pounds, even though I don't go to the bathroom to take a poop but once every 4 days. Sometimes it might be little less and other times it might be longer then 4 days. Actually one time I ate corn (sorry for the tmi) because most people it just goes right through them and it looks as if it did when you ate it. Well let's just say it took 3 weeks to see any evidence of corn. But no one cared to listen to me. I never went back to that GI dr. I can say that anxiety can make it worse but is not the problem.
I guess he believes that because I had the test where you drink the white chalky stuff and then they would do exrays after so much time has passed and being I did go to.the bathroom and passed it I was fine and had nothing wrong with me.
I then went to another GI dr and he had an ultrasound of my galbladder which showed NO gallstones NO sludge and he still believed my gallbladder is bad and wanted to do a hidascan which I refused to do.
I am so tired of no one listening to me and I have been going through this since 2015 and Jan 1st is when I was hospitalized. I'm scared to eat. When I do eat I bloat and distend so bad I look 12 months pregnant and it never goes away just some days I look 12 months and others 8 months pregnant but I never look normal. And being a diabetic and being over weight people look at me like I'm crazy when u tell them what I eat in a day because they are like the you would lose weight.
You know what I agree, I would think I would be losing a lot of weight but it is the opposite and what really ticks me off I lost close to 50 pounds and was very proud of my self and actually started to believe I was beautiful and now I have gain over 30 pounds of that back and feel so ugly. And look disgusting. I can't fit into any of my clothes and nonman wants to be with someone that looks 12 months pregnant so I stay in my apartment as much as I can. I hurt to bad all over to even do anything and I could go on for hours but I'm not going to put anyone through that.
I use to be able to go to a buffet but now it would be a waste of money because I'm lucky to be able to eat a little plate of food and just eating something small messes with me and I bloat and distend till there is no end. Just massive pain.
I hope you will talk with me and anyone else that is going through this. Maybe through someone else's help can help me educate.a dr here where I'm at so maybe they will listen to me and believe what I say to them.
I'm sorry this was so long but this is only a fraction of what I have been through. Hope.to hear.from you. God bless.💕
Mitzi Hultz I just wrote you a long message that didn't even go through. I am do aggregated that this happened. I can't write all of that over again. Would you please contact me, I have a lot to ask you about your symptoms and how the dr told you it was anxiety. My gindr told me it was anxiety also. I am so aggravated and sad that it didn't go through. 😢
I guess it did.go through. It showed that it didn't. Im.not much of a computer person .
Thank you in advanced for reading. God bless.💕
Are you on FB...I will try to find you there...I will keep you in my prayers...God bless...
Kim, I tried to find you on FB and there is a lot of people with you name...just friend me and we can talk...
Thanks for sharing this. I was diagnosied SMA syndrom about 4 years ago. I have to head back to chicago for more testing in a week. I have a problem now keeping solids and liquids down. I wasnt comfortable comfronting witj my illnesses for a long time till i saw some of your videos and i thank yoy for that.
Allison Kosloski thank you so much. Please keep me updated on your appt
Thank you so much for this video. You state everything in a very easy-to-understand way. I'm so sorry you're suffering with this. I am currently in the process of getting an appointment for a gastric emptying scan to rule out gastroparesis. Been having stomach pain for years and nothing shows up and bc I have severe anxiety disorders, doctors just dismissed me as crazy. Finally found one that is taking me seriously. This video was definitely needed and very validating for me. Thank you, and wishing you the best!
Thank you so much. Hope your test comes out normal. If it doesn't just remember you're not alone
I have fibromyalgia and chronic fatigue. I feel you love
I’m being tested soon for this and I have the stage 1 you was talking about. Too be honest I’m scared but staying prayed up. Ty telling your story. May god be with us all and I will spread the word 💯💯🙏🏽🙏🏽
MzZ Jody I'm here if you ever need to talk
Ty so much god knows I need it. They going too make me a appointment too take the egg test with a GI Dr. where I eat eggs toast juice and they take pictures too see how my stomach take food . Right now I eat a little and feel like I ate for a party of 10 and I’m so full and the pain and always sick in the stomach I have not vomit but feel like it’s getting too that part . So I pray this test answers my worries and take it from there. But again ty and I pray your holding in there. Be bless 💞🌸💞🙏🏽
Your video helped me tremendously. For approx. 20 years I've reported to numerous doctors stomach cramps, diarrhea and vomiting after eating. All of them would give me fiber supplements and laxatives, claiming all my problems were due to constipation. When these treatments did not help, they said to reduce fat intake, and eat more carbs. When this did not work, the doctor literally said, I don't know what the problem is, but take these pills. Really, the doctor would find a bottle of pills and give them to me as a maybe treatment. I switched doctors for obvious reasons. Currently, I am with my 5th gastro specialist. I am exhausted and upset with the medical run around and lazy doctors who want their patients to remain sick to use them as test animals for new drugs.
I'm so sorry. Drs are so UNEDUCATED on this illness. Have u had a gastric emptying study
@@babypebs1135 After I viewed your video, I told my new doctor to order a gastric emptying study. She is the only doctor that said, my vomiting food was not related to IBS. She ordered an ultrasound, which came back normal. I am scheduled to have a SIBO breath test and endoscopy. The colonoscopy test is normal. Nonfasting Blood glucose is 95, and A1C is 6.1. I am 80 pounds overweight but steadily losing weight. Previous doctors told me that only problems were being fat and constipated. I had horrible incontinence for five years and three different doctors never tested my bladder function. When I finally got a better doctor, I had bladder dysfunction and a URI. Imagine going five years with a UTI and using ten incontinence pads per day. Last year, surgery with Botox injections, stopped the bladder urgency and antibiotics resolved the URI. My body is a mess, taking injections once per month for migraines and Cymbalta for Shogrens and fibromyalgia. I don't know what caused me to develop all these diseases. There is a new drug out for gastroparesis; last week I enrolled in the trial study.
@@MilliePat wow that's so much. I'm glad your drs listening
Most real video I've seen! thank you
Ty so much
This is no joke and I just had surgery with enterra device. I hope they find a cure soon. Thanks for being real about it.
Thank you so much. How is the gastric stimulator working so far
@@babypebs1135 I just had surgery on Tuesday morning. So far I am doing good. I pray that it continues to do good and be successful. I hope everything is going well with you.
@@kindladyw.7466 I too hope it works for you.
@@kindladyw.7466How is the stimulator working?
Magnesium deficiency is linked to gastroperisis/GERD you should try and supplement with magnesium glycinate liquid and magnesium oil on body. Magnesium is responsible for proper nerve function and muscle function. Magnesium is crucial and many people are lacking in it. You definitely should check it out and try it.
OMG I love you. you keep it real and no sugar coating this HELL. I to am losing teeth with a huge hole in 1 tooth, I have a jaw issues where my jaw sounds like its cracking. its a very hard thing to deal with. I just got my tube a week ago I have to go back because they forgot to place the J tube they only placed the G tube now I have to go back to surgey for the J tube and the surgey hurts like hell I'm still hurting bad. the first 5 days was hell I couldn't even get up. and on top of this Hell I also have terminal cancer. so this gastroparesis makes fighting this terminal cancer worse it will likely shorten my life more then the normal people that don't have this. it isn't fair. thank you for posting this. I love people who keeps shit real. I love real people all together, I have loads of respect for you. oh we have the same feeding pump....
cindy shaw thank u so much and I'm sorry you're going through this. I will keep you in my prayers
how long does the pain usually linger on for after getting the surgrey tubes I'm sure the G tube surgrey pain is the same as the J tube how long did it take you to fully recover from your tube surgrey. its been 2 weeks wensday. i lose track of time lol I'm in bed 24/7. and I'm sit still hurts its not as bad as it was the first like 4 days. its just more like maybe muscle pain in the abdomal area. and when changing my gauze it hurts like a bitch. and sometime the dried up bood and whatever that other shit is like a yellowish color my hospice nurse was here Monday and said it was fine i thought it was infected. but my only real question is when did you feel normal like before surgrey. I'm wanting to do shit with my family cause i have any where from 6 months to 2 yrs cause my cancer usually is slow growing but it can speed up. but i was wondering when ill stop hurting.
cindy shaw my pain lasted months. It was horrible. I couldn't move, laugh, cough, nothing
I will pray for you.The love of my life is going through this now
GabrealCollins I'm sorry both of you have to go through this. I will also pray for you
Is there a support group for gastorpersis
Thank you so much...i am in tears no one understand..i am miserable everyday of my life
I'm so sorry you're miserable. May I ask what plan do you have in place??
I am currently on no medication ..i am moderate not all the time I can eat food..i am drained i have diabetes and neuropathy ..and in the past had some horrible gastro doctors I'm in MA
This is the realest GP video i have ever seen... idk how can ppl make a happy video ...feeling like this on a daily basis..not eating
@@ProppahYisrael first line of business should be to find a motility specialist. What kind of diet are u on
@@babypebs1135 im on my oen diet ..i eat things that agree with me and a lot of liquid...i google everything i know because these Dr's can not help me
I was just diagnosed with gastroparesis last month. I am 37 over weight but not diabetic. Dr said they don't know why this has happened and there is nothing they can do for it. They told me to only eat chicken noodle soup and water for 2 weeks to see if that helped but it didn't they didn't offer any other advice. He told me this is nothing too serious to worry about! They didn't tell me there are stages as you mentioned so now I'm even more scared. I suffer from anxiety but none of the meds I tried helped so I'm not taking any for the anxiety. The Dr. didn't help at all for this diagnosis of gastroparesis just said it might go away at some point. I'm frustrated. I am bloated alot even just from drinking a sip of water! I don't have an appetite much but I still try to eat some in the day. I have always had thick hair and I have noticed it is thinning alot and a few weeks ago my daughter noticed a bald spot in the back so she showed me in the mirror. I didn't connect the dots til now that this gastroparisis could be causing my hair to fall out. They want me to go back in 3 weeks but I don't see the point. Between the visits xrays and endoscope I'm owing over $2000 and each visit is about $200 so can't really afford it for no reason. I have been trying to research everything about it that's how I landed on your video. I hope there is some way out there for all of us to overcome this. I feel I am in the mild stage right now and praying it can be healed or something to prevent it from getting worse.
mandy1927 here is my email. Babypebs1135@gmail.com please email me so we could talk. You are not alone and I will help in any way I can.
I can not eat meat because of this problem and sometimes have to blend my food so can can relate to you In so many ways ! I'll be 37 this Jan.
I am so sorry you have to go through this. This illness can be horrible.
Thank u for sharing ... I really appreciate it ... me and my sisters r trying to help our mother through this
Ty for watching. I'm here if you ha e any questions.
Drinking water not pure, additives in food. Pesticides used on crops. Side effects of medications. Just a few ideas of mine. Stress and anxiety. Best wishes to all for coping with this disease. Environmental pollutants.
So will my gastroparesis get worse? Been 1 year for me and it's the same the entire time.
Thank you for making this video btw
thank you for sharing this .
as a diabetic with gastroparesis . I am at th moderate to severe stages of this illness .
Tiggy hi nice to meet you. I'm sorry you're battling this illness
Hey, I know this video was put up awhile ago, but I wanted to say something. Im a larger looking girl trying to be diagnosed with gastropareisis believed to be caused by another chronic illness, but I have to say thank you for this video. I thought it was almost uncommon for people to lose their hair to GP, I thought that you had to be on the brink of death thin to be diagnosed, and I thought that I had to tiptoe around the fact I can eat very small and not nutritionally beneficial amounts of food still. So really, thank you for that. I appreciate you.
Emily Fortin Omg I can't believe I didn't see this comment. Thank you so much for this. Honestly it's you guts that inspire me to continue making these videos
I keep watching this video to remind myself that I am not a fraud. When I drive my son to the library or grocery store with a cane or walker. Of course, you see someone that says oh you must be doing better, I just smile as I dream of ripping their heads off. I made a decision to divorce my husband last year. I forgot about all of the wonderful things he did. When I was incontinent of bowel he was right on it. Stripped the California King bed, bathed me, cleaned the mattress, fresh sheets, etc. Now I cry for an hour, get my brain in stealth mode do it myself, ugly crying in the shower where my son can't here me, going down stairs to start the stinky load and try find sheets for my twin bed. I knew I couldn't manage a king...so I feel like a kid, while my teenager is in a Queen size. This is my hidden truth. No one knows about this. It is a major struggle and thankfully only a few times monthly.
Girl, you hit all the tough points, except my next one. I finally had the stomach removed and have a GJ tube. They encourage me to eat, but only soft foods go down. Today I had yet another EGD and most likely have Barrets Esophagus. All because my esopvagus has peripheral neurology. I was able to feel the years of horrid burns floating up and down, and into my lungs - add COPD to my list now too. I could go on for hours. This disease has taken away from a job that I was so passionate about. I was making six figures a year with Incredible bonuses and trips. I am now living off of a partial social security benefit that I had to agree to not living off of my complete Social Security that I would be entitled to at the age of 65 or 70. That's a hard pill to swallow when your 43 years old. I am now 48 I am on Medicare and have Part B I have to act like a normal mom and a normal daughter and come home barely being able to get up the stairs and hopefully make it to the bed. Before I asked for divorce I could rest for several periods through the day I could not and still can't do housework very well I get too tired and I've had the fibromyalgia diagnosis since 2004 and it's interesting that many people with gastroparesis have that as an add-on diagnosis also the autoimmune system is not checked frequently by all Physicians and there are a hundred test that could be checked but my pulmonologist checked one that the number should be in the thousands and mine was seven hundred so I was lucky enough to get put on hizentra which is an IVIG human plasma replacement program it worked the first year but I don't feel it working this year and I may just have to stop because it's incredibly incredibly expensive my co-pay is almost as much as the company gets paid by Medicare. So I'm off topic now but I love your videos so much that when I'm down and out I just pull you up and you let me know that I am not alone. GP Warriors for life!
Yours is the best video on gastroparisis i've seen so far, i can tell nobody seems to beleive me, even my Dr. , and you are seen as a complainer, I have to take laxatives after every meal or i will vomit from the food just sitting there, even liquid just sits there. My Dr must think i just like wasting money on laxatives, Then they judge you because you dont seem so active, or they seen you eat like a normal person. This really affects you emotionally as much as physically. I think my Dr doesnt beleive me because i dont have diabetis, Thanks for making this video. I hope your health improves.
Thank you so much
@@babypebs1135 , your welcome
Somethings cantbefixed hey beautiful and you are beautiful. I’m 39 and have had Gastroparesis since I was young. I to am a spoonie . I also have severe Gastroparesis. I am losing my teeth and hair and hear ya it sucks. I also have chronic Pancreatitis and MS. So like you say flares blow this disease is a nightmare. I’m with ya we need a cure.
@@jenwhite-holmes393 I'm sorry you going through this
Thank you for sharing this heartfelt video! Blessings to you my dear!! continue to Speak!!😇🙏🏽👸🏽❤️
Ty so much. I truly appreciate it
TY FOR EDUCATING ME IN THIS ILNESS. MY HUSBAND MIGHT BE GOING THROUGH THIS.
You're very welcome. I'm sorry he's going through this
I'm suffering from GP as well as other comorbidities & I'm at my all time low. These doctors don't have a clue on how bad I feel on a day to day basis. My pain is out if control. Vomiting out of control. I have no energy to do anything because I'm not eating anything to give me energy. This year alone I've been in the ICU over 13 times ER I can't even count how many times. But I get treated as though I'm seeking even though I show them a whole bottle of pain meds that I can't take because I keep vomiting. It's horrible girl. I will pray for you & hope that you have more good days then bad & if you'd like to contact me let me know because the support from someone who understands would be great. Have a nice day!!
Dyanna Duran hi. I'm so sorry you've been treated badly. This illness is horrible. My fb is Jennifer Torres
I tried to look you up there's ton of Jennifer Torres lol.
Dyanna Duran lol. May I look you up??
Maybe look me up Dee Ice
My gastro doctor thinks I may have this because I had an endoscopy and after 15 hours my stomach still had a lot of food left. I feel fullness in my upper abdomen, I am always bloated, and i feel nauseous. I am only 21 and it scares me that it will progress. I am going to have a CT scan and gastric emptying study to verify that it is in fact gastroparesis.
I'm very sorry that this might be a diagnosis for you. This illness truly sucks. The Gastric emptying study will definitely give you an answer
Thank-you for making this video to tell what we go through daily :)
Hope Dolphin thank u so much
I shared it on my FB page for you :)
Thank you so much. It me means so much to me
No problem. I also suffer from it severly. Jut too shy to do vlogs. No feeding tube yet or anything though. I am on a mostly liquid diet and have been in a very bad flare for 18 days going on 19
Im glad my videos can help you. We definitely need to continue to raise awareness
Thank you for making this viedo I agree with you that other TH-cam viedos on here don’t explain the real thing
Thank you for making this video, you explained a lot of things that I am going through, thank you for sharing.
Bitchie Canine thank you for watching
I have the same thing 51 years old. Just recently diagnosed. Have stomach issues my whole life take two bites stomach hurts feel nauseous literally with everything I put in my mouth can’t drink anything hot like coffee everything I drink Has to be ice cold like ice cold I also have been diagnosed with Ehlers-Danlos syndrome, mast, cell activation, dystonia. but everybody looks at me and thinks I have nothing wrong because I don’t look like it that’s just some of the things I have I do have hypothyroidism and Hashimoto’s three bulging disc herniated disc in the neck Tarlov cyst, high blood pressure kidneys are only functioning at 40%. The list goes on. No one fucking cares I don’t go to doctors except thyroid doc to get my medication. for my thyroid, which she also gives me my blood pressure medicine I am terrified of doctors as all the ones I’ve seen here in Florida suck I’m not originally from here, but been here about eight years and out of those eight years every doctor has been a complete fucking moron. I have been gaslighted by doctors and family members. IT SUCKS!
I’m so sorry you’re going through all of this. I also live in Florida also and it’s hard to find drs out here.
Yeah! 500 likes. Your keeping it real. Thankyou so much.
Thank you for this. It means alot
Here a little stuff about
Gastroparesis you can get it from lot of stuff even surgery
You are an inspiration . This is actually how a TH-cam video should looks like . Thank you for sharing this . I hope u get better. Did u consider organic way for healing ?
Thank you so much. It's very hard to nail down one thing that will help so I've been trying a plant based diet, raw diet, keto diet.
Hi from Italy... I too am amazed at vlogs depicting young girls joking about cronic illness but they do show the down-sides sometimes and help for fellow-sufferers; advertising their outfits and hair products must be profitable and much as it irritates me I can understand as cronic illnesses must generate so many expenses; best wishes
Thank you so much for this, I've been DX with GP in in UK. However I was so worried about talking to a new GI Dr who specialises in Ehlers Danlos too cos my GP is caused by that because I'm bigger boned and weigh more than I should but I eat crackers cos it's all I can tolerate right now food wise despite at times forcing myself to eat more normal foods which cause severe pain and sickness I can't drink more than 250mls a day and never have been big on fluids since a child cos I've never ever been able to tolerate more with fluids. My stomach is gradually getting worse my dietician who works with my current GI Dr has said I need an NJ tube but he wants me to speak to the EDS GI specialist Dr first my appointment is on 22nd of march, my hair is falling out been like that for past 4 years if not longer but I'm now losing more and more each day. I'm on alot of medication that causes fluid retention but due to only eating once a day and not drinking enough my weight is what drs call stable despite its fluctuations, they say I must be getting some nutrients to be weight I am but I don't see how. I've been hospitalised recently due to dehydration so I know I need the feeding tube esp for regular fluids but I'm not sure this new Dr will listen. I can only hope this condition is horrendous & feel guilty not being able to eat with my family so force myself to regret it instantly due to pain, bloat and nausea that keeps me up all night. You have helped me realise it doesn't and shouldn't matter if your bigger in weight or build for this illness to take a firm hold on u so thank you for being so real and honest. Xx
Thank you for watching and I'm so sorry you're going through this.
I really appreciate you posting this. I am 17 and I have had Gastroparises for almost 2 years and am in the Moderate going into the servere mode . I have had to quit going to school and now am homeschooling. I can't even keep down water and I keep passing out while throwing up all night. Do you have any suggestions on water to eat or drink? Thank you and I will be praying for you.
Raquel Rios hi. I wish you didn't have to go through this. What helps me get fluids in is that my husband buys me electrolyte water and he makes me tea with it. Plus I sip throughout the day. I also sip broth and Kate farms oral formula.
Good for you showing what this horrible illness is like. I am heavy and family don't get it. That a feeding tube could be a possibility.
Thank you so much. I'm so sorry you're going through this
You are a wonderful person, thank you so much for being so real and sharing your video and yes it is as bad as cancer.
You're very welcome. This illness is ugly and people need to see all sides. We deserve to be acknowledged and respected for being strong enough to fight this illness
@@babypebs1135 I just shared your video it is very informative and so down to earth, people need to understand the reality of this disease!!!.
@@jmo2820 wow. Ty so much
I have it I was just diagnosed with it I got the test done and they gave me results and said I have Gastroparesis
Alyssa Williams singingchannel hi. I'm sorry you were diagnosed. This illness is horrible
Lady J's life yes it really sucks
Hello , Did you ever get the G-Poem procedure ? If so I’d love to know if that helped ? I hope your feeling well and stronger all the time .
#me too.
i totaly relate to you. and its frustrating to have to explain to people about our struggles..they just dont understand..
J J exactly
God Bless you dear. I pray for your health. Uninsured and think I might have what you describe -although not to your severity. Thank you for this video that helped me learn about this disease. Mission accomplished for you. Excellent video.
Thank u. I'm sorry you might have this
My hair been falling out figured from my 2 major operations last one was wipple surgery now got diagnosed with severe gastroparesis from the surgery cause Surgent cut my vagus nerves. Now suffering badly now know why my hair falling out. All my muscles lock up get charle horses any time I move from my body not ubsorb fluids. From this. I’m in pain 24/7. Debating to eat or drink. Nausea 24/7 throwing up. It’s horrible. Yes girl tell them
I’m so sorry you’re going through this. This illness is horrible and can take everything from you if you let it.
Thank you! I didn't really understand this! Thank you for you're honesty! Learned more!
Np. Ty for watching
I like real. Right on sister ! I have this too and I am 65.
I was just told I probably a mild case of this based on symptoms and swallowing a smart pill. Sat in my stomach for over 6 hours. This is in addition to chronic gastritis and a hypersensitive esophagus. My symptoms come and go but seems to be better without eating gluten. I have some weeks where I have severe night time pain with wrenching and spitting up frothy stuff. Other times I just have a lot of pressure in my stomach. Overall I find it hard to figure out exactly what I need to eat for all 3 of my GI conditions. (I also have psoriatic arthritis, anemia, and insulin resistance). I’m just confused and each doctor only looks at their individual part.
I had the same problem with the smart pill
Lady J's life Thanks for responding. I am fearful that I do actually have GP and will end up getting worse one day. I was pretty healthy until just a few years back except undiagnosed psoriatic arthritis. (Doctors kept telling me it was eczema and they weren’t putting skin issues together with joint pain and high inflammatory markers).
@@PinkieJoJo oh. Having a gastric emptying study will answer if you do
Lady J's life Yes. My doc wants to do one but I’m a few months.
@@PinkieJoJo ok. I hope you don't have it but if you do I am here for you
Thank you for this video.
I’m dealing with this to actually gaining and boating I still need to get tested I also had a question tho if your stomach stops growling when you have this condition ?i feel very bloated like I ate 2 large pizzas and I can go for a day or two without eating I’m sleepy and stomach feels like I have acid in it all the time
Yes your stomach may stop growling. Mine did
Thank you so much for being so real
Carla Botelho thank you so much for watching and joining me on this journey. I hope all is well on your end
Thanks for sharing! You're on point of how I feel. I have this horrible disease plus manic depression anxiety hogh blood pressure diabetes type 1 plus I'm a recovering meth addict. I'm 23 and have had this about 4 years now. My teeth are rotting and breaking had 6 teeth pulled and I have holes in all the rest. Nothing helping so far and it gets to the point I contemplate suicide a few times. I can't take this anymore I'm down to 110 n I used to be 160 or more n haven't been in years
Melissa Hinckley hi. Let me start by saying thank you and I'm so sorry you're going through so much especially at a young age. You are so strong and brave just speaking about that here. You are not alone in this journey and I am blessed to know that this video helped you in some way.
GpWarrior Princess it did much love and respect ur in my prayers sweetheart!
Melissa Hinckley Ty so much. You are also in mine
GpWarrior Princess also I don't know how u are or where u stand with cannibis but my mother and I smoke and it helps with pain I also have a number to a woman who sends legal cbd oil 70 bucks a bottle and u put it under your tounge I used it it doesn't get u high but it eases pain and nausea. I would recommend cannabis and CBD oil.... It's the only thing that works. Best of luck. Looking forward to seeing u feeling better in future videos...
Melissa Hinckley I definitely use medical marijuana for my fibromyalgia
Is the severe stage inevitable if you have GP and is the feeding tube inevitable if you have GP or do you think if you manage GP properly you can drink ensures enlive plus the right diet and manage it?
Gp can be managed. Unfortunately not everyone can manage it. But yes if you manage your diet and stress levels it can be controlled
God bless you for you honesty. 🙏🏻❤️😢
Jean Faciane thank you so much
Omg!!!!! Everything you are saying is me.... I was 300lbs.i am now 170
at a cross-Rhoads hi. I'm so sorry you to have to face this battle
Hello I pray your doing well as can be. I just wanted too let you know I took the emptying test. And sadly too say I found out too day I have it and I’m so confused idk where I start from here. 😏
MzZ Jody hi. Here's my fb (Jennifer gp Torres). Message me so we could talk
Lady J's life ok I found you on Facebook and sent a friend request. I just want too say ty 💞
I’m skinny and the skinny comments from people I hate . I always feel the need to explain the whole Gastroparisis thing but then I stop and look at them looking at me like I’m skinny and done lost my mind. The way people treat us without knowing is eff’d up just bc we are either too skinny or too big... ugg I’m tired of defending myself from ignorant people including my own family. Sorry I’m venting too... 🤬
You don't worry about venting. It is fine. I know how hard it is. Now that I'm skinnier people treat me like I should be grateful for having so many surgeries and losing all the weight. It sickens me
Lady J's life how have you been. I know it’s been a couple years since you made this video. I just got out of the hospital on Monday bc when I start to vomit it becomes uncontrollable and violent. When The ambulances came to get me they thought I was a drug addict going thru withdraw. They kept asking and asking.🤦♀️ People don’t understand and choose not to understand. We found that if the doctors sedated me for at least 24 hours my vomiting stops so that’s how me and the doctors been dealing with the flare ups. Girlll it’s been a rollercoster of symptoms. I hope your feeling better....💚💚
@@AsktheSpirits I'm so sorry. Yes I'm doing better. I have an updated video on it. I still struggle with eating but I am getting better day by day.