What are precursor conditions of multiple myeloma?
ฝัง
- เผยแพร่เมื่อ 17 ก.พ. 2022
- HealthTree University, provided by the Myeloma Crowd, offers a comprehensive online multiple myeloma curriculum with lessons, quizzes and course discussion. Learn for free at www.healthtree.org. Topics covered include: myeloma basics, testing and blood markers, stem cell transplant, financial resources, immunotherapies, myeloma genetics and much more. We've partnered with over 100 myeloma experts to help you learn quickly. Improve the way you navigate your disease and obtain better outcomes with HealthTree University.
Follow HealthTree:
Twitter: myelomacrowd
Facebook: myelomacrowd
Instagram: myelomacrowd
Diagnosed with MGUS 16 years ago. Health issues all of the time. Polymyalgia Rheumatica/Giant Cell Arteritis. Age 68, non- smoker, no alcohol. Not obese. Not diabetic. CKD, with MGRS, a new and distinct diagnosis for MGUS/MM. MGRS (Monoclonal Gammopathy of Renal Significance). Just on the edge of having MM. Diagnosed with kidney and bone biopsy. Chemotherapy begins as soon as blood test for cryoglobulin comes back. MGUS can be harmless with no symptoms. For me, it has been a nightmare for 16 years. Can't begin to tell you how many doctors told me I was just "deconditioned", and needed more exercise. Have Anemia of Chronic Disease for at least 10 years. MGUS is not always a simple blood "quirk". MGUS is a serious medical condition and like the doctor states, deserves more preventative attention.
Like me. IgG Kappa discovered in 2018. I had it almost certainly 6 years before. It's progressing very slowly from Kappa 37 mg/l to 84 mg/l today. Diabetes will kill me first, probably
Recently diagnosed with mgus. This is one of the best videos I've seen 👏
I have MGUS, I’m excited that they are looking at treating before it progresses. I believe some types have poor prognosis so it would be nice to start with those.
I have smoldering MM. I have had a fracture and have anemia.
I suppose it'd help if I understood what the big names meant, but one thing that listening to all this has done for me, is increase in me a trust that most doctors really *do want us well!
I'm waiting on my myeloma scan result and thought I'd check out things related, whilst waiting.
If you want to understand all of the complicated terms we have a course on the basics of myeloma that will help you to get a better grasp. healthtree.org/myeloma/university/courses
I have low protein MGUS but slightly elevated Kappa FLC and K/L ratio & B2M, neutrophils, monocytes & WBC. I am a member of the PROMISE study. A brother had MM, a sister had ALL mutated to AML.
I am trying to find out when a bone marrow biopsy is indicated, but my general oncologist says not until its become full blown MM according to serum values! I want to know my baseline at least. Should I get a 2nd opinion?
I would most definitely get a second opinion.
My husband has MGUS and I am watching him wasting aware he has so much bone pain and other health problems prostrate problems incontinence and heart problems
We are here for you!