How Long Will I Live with Multiple Myeloma and is There a Cure?
ฝัง
- เผยแพร่เมื่อ 12 มิ.ย. 2024
- 00:00 Intro
00:07 How long will I live with multiple myeloma?
01:44 Is there a cure for multiple myeloma?
How long will I live with multiple myeloma? Is there a cure for multiple myeloma?
It's a very important question and one doctors usually answer during their first encounter with a patient. Based on what doctors know today, myeloma is a disease that usually will run its course over many years.
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My mom died from multiple Myeloma 2 years ago when I was 17. She had it for around 7 years.Praying for everyone fighting this disease y’all are strong🙏
I'm sorry to hear you lost your mother at such a young age. My Mother also had MM for 7 years before passing away. We just lost her 3 weeks ago :(
My mom has it
Sorry for your loss 😢
@@vuthymao403 Hope you’re beginning to feel better so sorry to hear about that 😔
@@doralmorant Hope she’s doin good
I have multiple myeloma that was detected while I was in cardio rehab after open heart surgery and triple bypass surgery. I have been in treatment for 5 years for the Multiple Myeloma, i am also getting ready for skin cancer treatment, I guess that I brought home unwanted souvenirs from three years in Vietnam. Not only do I have a great Oncologist and nurses taking care of my wife and Myself I have many people praying for me, and I truly believe Prayer is a great medicine.
Prayer is the medicine, and Jesus is the cure! Amen.
Amen
@@Tryagain563 who are you to use science and technology to reap its benefits and then thank an imaginary friend that according to this bronze age mythology caused the cancer in the first place? Why would you change something that supposedly your imaginary friend caused? hypocritical much
My dad just started treatment today… hoping for the best.
How is your dad?
I was diagnosed in November im only 50. So far just the chemo without the transplant has eliminated 90% of the myloma protein. I guess we caught this early i guess Praying for those involved
Diagnosed 2018. Transplant oct 19 in india. I am from mauritius.
Please tell us about your diet and other care .
@@michelsooriah692 where in india
@@ankitwaliwala3838 fortis memorial delhi
Did you have the body pain symptoms before you were diagnosed?
I am A 41 years Survival of CML (chronic c myeloma Leukemia ) 73 now. 🙏🏻
Nice to hear that!
I was diagnosed with multiple myeloma bone cancer. I’m 70 yrs old. More tests and treatments on the way. I am not afraid to die. I may even welcome it before it’s all over with.
Multiple myeloma isn't bone cancer it's a blood cancer
@@normabye4167 It doesn't matter. I still affect your bones
Don't give up x
Treatments were not as bad as i thought it would be. Don't give up.
I was told I had multiple myeloma at 70 also
I was diagnosed in 2017 when i was 27 .. now i am 31 and everything is normal.
What did you take for treat and how long did you take it ??
@@ghadasokkar5274
I took Velcade for 12 weeks (one each week) + 10 sessions of radiotherapy before the Velcade.
My husband at 37 was just diagnosed. I’m happy you’re ok, but why was your treatment so short?
How are you? Hope you doing good
@@CC-pu6qn after the 12th week my doctor did checkups and scans and my doctor said no need for more.
My husband died March 4, 2020. He was 3 days shy of 80. He started having complications that interrupted his chemo cycles. I don’t think they were related to his multiple myeloma. He had two ERCP procedures a stent was placed and then he had his gallbladder taken out. He got an infection. There were the occasional times he could not take chemo because of his liver numbers. He never gave up hope and his attitude was always good.
I M so sorry for your loss.
I lost my father due to myeloma in 18 sept 2020, his kidney didn't work, dialyses was going on, his heart became weak, he lost 20+ kg weight, his liver were damages, the kemo was also given, nothing helped nothing! I am still in delima what happened to him his condition became sensitive in 2months! He was diagnosed with myelomma in 2018 was doing fine but everything went abnormal in last 2 months! :)
@@Kusumbaheti Hello, I am sorry for your loss also. It has been a year for me now since my husband passed away. I am doing well after this much time. I hope you are doing well.
@@gingerp6478 eventually we all have to do well, even if we don't feel like.
Anyways thanks for your response.
If you ever feel like talking to someone, you can dm me on twitter.
I hope everything remains good to your end.
So sorry for your loss x
My sister needs a miracle... she is diabetic, 1 year ago she had triple bypass. She is 69 years old. 🙏🙏🙏. Ephesians 3:20
I’ve been diagnosed with multiple myeloma after having problems with my 32 year old heart bypass. I also had large B cell lymphoma 9 years ago. I’m 70 and have 18 year old son with Aspburgers in college. My goal is to get him through college. Anything after that is gravy.
God Bless you & I pray you get your son through college 🙏❤️
Hallelujah 🎉 It is still curable for few patients✝️🙏
Amen
Amen Amen Amen😭😭😭🙏🙏🙏
I'm 44 and was diagnosed in mid-September 2022, here in Ottawa, Canada. It is a high-risk Myeloma according to the doc.
The Myeloma went into deep remission after my first round of Chemo.
My kidneys also needed help as my creatinine levels had reached 992 umol/L.
I did 6 to 7 weeks of dialysis until the creatine numbers went below 225. Stil currently high at 112.
Planning to have tandem stem cell transplants at the beginning of Feb.
Best of luck! If you want more information on stem cell transplants you can learn for free in a more organized approach on our site healthtree.org/myeloma/university/courses .
Good luck with your treatment X
@@valcollins4943 Thanks, checking in for my first transplant on Saturday.
Thinking of you and hopeful of a good recovery
Hold strong brother. Much love and support!
My aunt just got diagnosed, while my nan just passed away from sudden brain cancer after 7 months of diagnosis. Its been a rough year for sure
I am so sorry for your loss x
I got diagnosed yesterday with non secretory mm. I’m only 32! The oncologist was shocked. I’m happy I get to help with research on younger patients because there’s not a lot since it’s so rare.
You'll be alright
Me too and im 52
I also was diagnosed non secretory in 2017 last stages, so many fractures totally unable to walk or care for myself, had two stem cell transplant and lot of other procedures , able to stand and do small amounts of walking, thanking god every day..I am 62 now.hang in there
I’m 31 & having severe lower back pain on & off for 2 years. I was hospitalized last year for kidney failure. My creatine has gone up a few times more since last year. Went to therapy thinking it was a back injury. It never got better. Left SI joint breakdown and inflammation. Now that you Iv heard of this condition? I’m convinced this is what I have. FINALLY better days are ahead!!! This pain occurred a year after having my daughter in 2019
@@lenoragardner4947 so sad for you x
i stoped smoke 16 month ago & alcohol 8 years ago . & no to much sugar & no fast food . my next blood test is after 6 month . every day i go for walk at the beach . is very good . i hope god help us .
Prayjnc for a mircle please god heak my sister please don't understand why
The most beautiful
Line for the patient
If you live more than 7-8 years from now
Then you will have many options at that time
Because many drugs are in under discovery...............
Diagnosed in mid 2016 then was on chemo for about half of the last six years. Only moderate remission. Now I'm on Daratumumab, a monoclonal antibody immunotherapy, and what a difference! PP went down to 7 in just weeks. The hardest part was a long tedious journey, which was more difficult as I had not had much exercise for over two years, because of lockdown. But now my co-morbidities are showing up. Being tested for heart failure, possible venous insufficiency, but I think I may have amyloidosis too.
My Mother was also on this same therapy. How are you doing now?
2019 diagnosed. Chemo helps and hope to be out in clear.
@brennaduckenson3562
I hope you are doing well.
Diagnosed in october passed in november 20th of 2020. I wish i lived longer. Born 1960. Written by her son
Wow, im so sorry.
She had no treatment?
@@WorldOfARandomVegan praying for a mircle my sister has this
@@WorldOfARandomVegan no working she we need a mircle
@@veronicachristopher-fellow5866 I hope everything gets better.
I was diagnosed with Multiple Myeloma on Jan 16, 2023 after my collarbone bone broke on Dec 12, 2022 (the day after my 52nd birthday) - I was standing completely still at work, and it snapped.
My mom was diagnosed at 47 in the last stage 3a ( 3 months before she turned 48) died 4 weeks after she turned 51(2014), she had it well into her 30's. My grandfather, my moms dad, died with multiple myeloma at 61(2006), he had it well into his late 40's early 50's. Im seeing an pncologist May 8th for testing for it yself because Ive had signs of it muself, im 42, I showed my first bone marrow production issue in 2015 when i was 35 and dr's back then didnt care, my dr new dr now cares very much!! Im terrified.
Don't worry
Now this is becoming common
& Now a days patients have many options..........
My mom has it......
Prayers and good vibes to you!🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🫶🫶🫶🫶🫶🫶🫶🫶💞💞💞💞💞💞💞💞 You are so young to be going through this! So sorry for your losses.😢💐🌷🌻🕯
Thank you for this video. My husband has Multiple Myeloma. He is 79, diagnosed Oct.2018. No other medical issues. I will show him this video.
You're welcome Ginger! Make sure he signs up for HealthTree as well, all these videos about the basics of myeloma will be on the site soon :)
HealthTree University Myeloma
Ianmottershead@btinternet.com
@@tshioejeremy257 9
@@bevbaird1650 hi
What about your husband. Any medical treatments? Nice to hear from him. I am from mauritius.
My husband got diagnosed when he was 41. That was 3 years ago.
I was diagnosed last year with aggressive multiple myeloma and I did 6 months of chemo and now I’m going thru evaluations and preparing for a bone marrow transplant next month .
Best of luck! Hope it goes well!
Good luck with your treatment x
I’m having my bone marrow transplant march 15 please keep me in your prayers
@@susanhinson5154 I will be thinking about you , wishing you well x ♥
DX in 2004 at age 37 I am now 56 still on chemo but still here Treated at mass general hospital in Mass. Thanks to the Good God for the gift of time!
I dont know what DX is but im guessing its a type of multiple myeloma and if it is thats a very long time to live with it! Good luck to you
@@TofkdkrSisoeks DX is medical abrogation for Diagnoses
I was diagnosed in April of 2020. I am 67 years old and when diagnosed I was told that I was stage 3. The doctor hasn't discussed transplant with me and I'm currently feeling decent. I'm not sure what to make of the discussion in this video. I trust that my doctor is doing what is best for me.
My sister has this I feel sick sound daft but prayjnc for a mircle please God please
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@@florencedonald6419 who
Trust the doctor. 67 yrs very good treatments. I am 59. Transplant 57 in india.
@@michelsooriah692 Thanks. I'm currently receiving chemotherapy in the form of a shot and an oral medication. The doctor says my blood work is stable and I could possibly be looking at remission, should everything remain sready.
I have cutaneous multiple myeloma and my symptoms were missed time and time and time again and it was an allergy Dr that found it by doing a protein electrophoresis blood serum. I’m female and 62.
My uncle diagnosed with MM 2 months back at apollo hospital and passed away day before yesterday... It was painful he had to under go lots of medications processes he gave up knowingly after lots of stress and difficulties....
So sorry for your loss x
@Time - 1:02 did he state “We don’t want to get to the cure”?
I got diagnosed in march 2022 with myeloma and the chemotherapy has left me with neuropathy in both my hands and legs. Please do alternate treatments and very limited chemotherapy. Keep your nutrients up BUT also go to a good naturopath.
Brian, if you have neuropathy it may be because of Velcade or thalidomide. The subcutaneous version of Velcade has less neuropathy compared to the IV version. You should ALWAYS tell your doctor about neuropathy symptoms because they can lower dose or change treatments to prevent long-term damage. I am not aware of any alternative naturopathic therapies that kill myeloma cells.
I am the same as you have dreadful peripheral neuropathy, Valcade injections
He had the car t cell treatment. No meds for 2 years. Blood work now showing bld is changes not for the good.
I still dont understand how i lost my father last year. They caught his really early and he did the bone marrow transplant and was on the chemo he had more bone marrow frozen. They said it was gone it was not in his system just to pass away in the middle of the night about a year after the transplant. Im a only child that just lost my last parent. My mother passed when i was 12 from another ugly illness! Smdh my mom was 31 my dad was 56 im 39 now i have no hope for the future. I figure i have sickle cell really bad im in heart and liver failure so.. I will probably go in between their ages. Im not sad tho i cant wait to see them again. I do have children i didn't want my daughter to be a only child like me. I wanted her to have a support system when im gone. And she does.
I wish I had read this earlier.
Please don't lose heart.
Alfred Lord Tennyson rightly said .
" More things are wrought by prayer than the world dreams of "
I am in my late seventies and have been a Multiple Myeloma patient for the last three years.
I am feeling fine mentally and physically.
Whichever religion you belong to , find sustenance in your faith.
There are millions doing much better than us and also millions who are doing much worse than us.
Stay cheerful and welcome each day with hope in your heart.
God bless you.
Weeping may endure for a knight but joy commet in the morning, repent and be baptized everyone of you in the name of Jesus Christ for the remission of your sin
My prayers are with you truly, and your daughter, I pray that god have already put a good support around you and your daughter,
I know how hard it is, it 5in the morning and I am up praying.
But in the name of Jesus Christ I pray for everyone one that is reading this that he touches each one in the way we. Needs now
I was diagnosed in 2014 but had symptoms earlier than. Relapsed in 2018 and three months later I was back in remission. It’s so hard on me. I feel like I’m dying.
I'm so sorry 😞 ❤
How are you doing now ❤? Please respond to me
You aren't dying. Don't give up. Please.
Don't never ever give up💪.. My father is also suffering from this mm he is 64...
@@arunajay7096
Aap kaha se h bhaiya ji
Meri mummy ko bhi last month multiple myeloma bataya h
Do a lot of people with myeloma have MGUS first?
I’m 58 and have MGUS nearly 20 yrs now and a lot of people with MGUS will go on to get myeloma
Give Saint Peregrine a prayer ;-) God Bless ...
How much does transplant cost?
I was diagnosed with multiple myeloma in May of 2020. I am 54 years old and am now in recovery from my bone marrow transplant. I was stage 3 and could no longer stand up bacause of this cancer attacking my bones.
@ClayTon TV yes after I had my stem cell transplant they loaded me up on pain killers and did a lot of bone hardening for my spine and ribs. I am now able to walk on my own without a walker or anything. I still have quite a bit of pain but I am workjng with the pain clinic at Mayo to figure out what works best.
Getting myeloma treatment will significantly help with the bone pain. It all depends on the extent of the damage.
@Demon I'm in the boat. I need to a new doctor. I have been battling MM since2019 my chemotherapy was working but took a toll on my body. I started getting lots tumors or lesions as they were causing lots pain until it got almost completely disabled. Not once did my info tell me I need radiation, let after a solid eights with different chemos. I live in a rural city. Now I'm afraid it's to late. I stop my treatments because of going from waking to a walker and then a wheel chair. Don't give up any of you. I'm hopefully trying find transportation to a newDr. That only works with MM patients. I pray all the time hoping it's not to late for me.
@@carolynbraswell4359 it is a long road. Hope You have Love in Your life. Stage 3 MM 6 years for me, breaking down from very high fitness. Has been a heartbreaker.
I have lot pain from standing and walking,pray the best for you
i am 61 years old from australia country
two month ago i had toes pain and shoulder pain but no to much . i gave blood test and hematologist said my sickness is mgus or myeloma . after biopsy . from my spine . he said no blood cancer . only i got mgus
and he didnt give me any medication
please help me about diet food
i am taking tablet for ( prostate ) & (sotalol 80mg twice day ) & ( asprin ) too
thank you
Hi, I'm sorry to hear about your diagnosis. We have a few videos on diet right now and a whole lot more information on myeloma on our site. Here's a vide lesson we have on a plant-based diet: healthtree.org/myeloma/university/courses/z8YMAaM2BIXWfc3KCxkb
My friend died after battling for only 3yrs. It's a bad bad cancer that needs a real cure!
Sorry for your loss!
So sorry for your loss! I lost my freind not too long ago from MM and she was in palliative care for only 6 months. Prayers going out to you. 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🕯🕯🕯🕯🕯🕯🕯💐💐💐💐💐💐💐💐
My girlfriend is 20 and her doctors called saying she has multiple myeloma. I’m shocked cuz it says less than 2% of people under 30 or 40. What should I be doing and what should I expect
I'm sorry to hear that, that is shocking. You can look at the resources we have on healthtree.org/ to help her keep track of her labs and find a specialist near her. You personally can help her and know what to expect through the courses we provide on HealthTree University healthtree.org/myeloma/university/courses - I recommend you start with the basic classes and "Building Your Healthcare Team" and "Becoming an Empowered Patient". All of our resources are free!
Diet and patience are key
I feel so helpless for my Son has this cancer and he is so much pain his ribs .. knee s and now his shoulder some time he can't walk ..as his Mother I wish I could take his pain myself
I also have MM with severe bone involvement. Please read/research on holistic protocols that can compliment conventional treatments, like chemo. Read on the benefits of fasting, clean diet (like the Mediterranean or Alkaline diets, supplementations like a good source of vitamin D with K, Soursop (Graviola) tea, nettle tea, curcumin/turmeric is very good for MM, sauna to detox...Check out Dr. Thomas Lodi's TH-cam channel and Fasting Escape's channel. May the Lord Jesus grant your son healing 🙏
My gram lost her battle in 2001. So few understand this cancer :(
😞 Very sorry. Before I was diagnosed I didnt know about this type of cancer most people hear about leukemia, lymphoma, king, prostate just to name a few. I was floored, I thought I had another mini stroke. The growth is pushing on my blood vessels & causing stroke like symptoms that eventually lead to another mini stroke.
@@RRobinson-ct5cj how you feeling now, are you okay?
My dad had multiple myeloma , he did Chemo ( was a shot ) and started to take a really expensive drug may only had two doses before then kidney failure started to happen and a stint or shunt ( not sure if that correct term) in anticipation for dialysis ( was going to take a few weeks to be ok to use however he developed a leg infection and was sent to er and developed septis they did a emergence dialysis through his neck but got worse and died 4maybe 5 days later. I sure multiple myeloma was the main illness then other organs started failing A snowball rolling down a hill getting bigger and bigger
We are sorry for your loss and thank you very much for sharing!
My brother in law had it. He had chemo and transplant. He lived two years and died at 48. He got GVH which I believe took his life. Was a horrible death and disease. He got the flue then was diagnosed. Very sad. That was in 1995. I’m sure things have improved since then. Thank goodness.
I'm sorry to hear about your brother in law, we still have a long way to go in ultimately finding a cure. Thank you for watching and sharing your story.
What is GVH?
@@michaelcoletta4547 graft versus host disease. It’s where the donor marrow rejected his body and took over. Dreadful disease.
im so scared i have it, back pain for years pain in my hands and toes now pain in my upper right side of the back. ive had hip pain groin pain tinglling sensations not feeling well or look it lost weight the last few months. i have protein in my urine just dont another urine test today they checking for a certain protein and lots of blood work to be done in 2 days time. ive been going on to my doctors now for nearly 8 years about this pains but only now seems am being listened to.. im only 32 so scared but have to stay strong for my boy hes 6 in 2 weeks may god give me time for him. any one can tell me any foods i should be eating or anything to help please do ❤🙏
Hi! Please send us an email to support@healthtree.org and our team will help you!
What happened brother ? Were you diagnosed with this ?
My wife who is just 34yrs old was diagnosed with multiple myeloma on december 2020.shes still undergoing medication eg vtd. Can she be cured after stem cell transplant which we expect to perform this coming December 2021.
Stem cell transplant is a very effective treatment in myeloma. She is very young to be diagnosed. If you want more info, please email us at info@healthtree.org and we can share other resources that will help you and your wife.
Please provide mob.no
My sis diagnosed with myeloma and she is only 30 she started to take velcade with steroids but her kidneys is fail and she is now so week
How long should she take velcade and is that effective or she should make stem transplant
U r never cured of myeloma. If ur blood work is good, that is what doctors look at. 75 years old, diagnosed in 2020, lots of meds and chemo for five months. Blood was clear so off meds and taking a 2.5 revlimid pill every day. Side effect of chemo....neuropathy. however, I still push through. Even checked out stem cell but with all that one goes through with that surgery, u still have to do some form of chemo. Sorry for all those young people afflicted. I thought only age 70 and up may be affected. Blessings!❤
2019 VIDEO !!
My great uncle has multiple myeloma and im not sure how long hes had it. Today i got news that they cant do anything else and i really want to know how long he has 😭
Watch Joe tippens cancer story and panacure or fenben for 3 months... God speed. Btw. I have it, did a transplant and am using his protocol. Working for so far.
May god bless u bro👍live strong 💪
FIND TO CURE PLEASE
😦
That is the goal! Join HealthTree and help us to find a cure faster. All of our programs like news and important updates, tracking your labs, and more are all free on our website healthtree.org/myeloma
IM CHOSING NO TREATMENT AT ALL.
Go for any treatment you can get...I have had MM for 7 yrs am now 79 been doing everything my DR. said every month & am very happy to be alive good days & some not so good but I love life!!!!
I don’t judge you,but I pray you check out all your options,
My prayers are with you,at the end of the day’s journeys our maker is always with you and he will show you are he may have already done that for you. God bless.
My journey has been hard and many good times been spent with my family and friends and I am grateful for every step.
Crap! Im fu*ked.