Hun! I just came across your video and when it got to the confident part and I see you crying I just keep seeing myself! I feel the same way! I’ve been dealing with this disease since I was 19yrs old. I’m 34 yrs old and everything you just spoke about here…. I went through and still going through…. My hardest has been my diet and exercise…. I was never a “fitness” person…. But I always kept fit because I danced a LOT! Lol…. When I got sick…. I had no idea what lupus was about…. Fun fact is that I still test negative on my ANA. I’m what drs call a false negative lupus case…. I also have Fibromyalgia and Sjögren’s syndrome secondary to lupus! I’ve lost my job 3 times and told I could not have kids! Good has been great to me because I am blessed to be the mommy of 2 handsome healthy boys! My weight went crazy up and down… I got pushed sooooo much steroids I had the whole moon face and Buffalo hump my stomach grew bigger too…. I I’ve lost the weight now but I still struggle every single day to just be in this world…. I struggle mentally emotionally and most of all physically! I want to get fit but I feel so WEAK and often can’t do much! I’ve tried stretch yoga and it’s helped a lot but it’s still very difficult! My hair loss has been really bad but it comes and goes as well…. Lupus took a lot from me and it still not forgiving and still taking from me but I’ve learned to just live with it! 🤷🏽♀️ it’s so hard because we feel like NO ONE really understand what we go through on a daily basis how hard it is to just wake up in the mornings and was to the bathroom or get dressed or even get out of your beds some days! It’s changed my life and I’m on the quest of finding myself again and trying to advocate for those who do not have a good support system which Is SUCH AN IMPORTANT IF NOT THE MOST IMPORTANT… keep doing what you doing! You’re an inspiration to us all!!!! God bless you! 💜💜💜
Wow wow wow what a message! I love that you have to children! I haven’t filmed for a while but you make me want to do a two year SLE update! Thanks SO SO much for this message! I relate and I understand you! You are incredible and you don’t need me to tell you that!! Thank you again!!!
I'm so glad I came across your channel. My wife of 15 years was just diagnosed with lupus, I have been trying to gather as much information on this as possible! I have to say, I love your outlook on life, I always tell my children" IT'S ALL ABOUT PERSPECTIVE" I definitely got from you, that this DOES NOT DEFINE YOU! it may slow you down or delay you but NOT DEFINE YOU!!! ALSO, I have to say you are very BEAUTIFULL!!! SERIOUSLY! you definitely deserve someone to love, be close to, understand you, massage you, share with you in the good but especially the bad. When that day comes ... They will be luckier to have you!, Then you having them! But don't Rush it, don't pursue it, again... They will be blessed the day they find you. Thank you for sharing.
Leaving a thank you as I resonate with your journey. Diagnosed at 32 and feel it’s been present since youth. Love you’re realistic optimism. Thank you for sharing your experience with us!
Hey Lisa! It definitely takes practise and I do forget myself sometimes and feel sad but thats a human emotion and I will not chastise myself for it. thanks so much for watching and commenting! x STAY SAFE
@@SimplySybella I totally get that there can be dark days sometimes, but I still commend you for your strength And I'll definitely continue watching your videos
You are such an inspiration. It is so nice to see videos where people are sharing their vulnerabilities and how they cope with their problems. I love your videos. PS: I really like your makeup. :)
I've subscribed! I dont have Lupus, but I do have costochondritis. It sucks, but I've found NSAIDs dont actually work for costochondritis. Stretching, and posture correction have helped me the most. I am in a similar boat to you. I live in the US. Also, you are very pretty! Nobody would know you have Lupus before you tell them anyway. And if you get with someone and they really love you, having lupus is not gonna be a problem.
*Watch in HD* Hi everyone thanks so much for clicking this video! This video was emotional which you will see when you watch. I hope you found my story insightful and so I want to ask you to PLEASE SHARE if you know someone who could benefit or LIKE the video so TH-cam will suggest it to other people! Thank You! and STAY SAFE x
Seriously though 😮 you have lived an amazing life thus far! More than most experience their entire existence! And you have an even more meaningful and extraordinary life ahead Sis! Thank you for sharing your story with us l! Stay you!!! Light!
Oh my gosh you trying to bring me to tears!! thank you so much!!!! its been extraordinary! I will keep sharing! see you on Tuesday :) have a lovely weekend STAY SAFE!
Thank you so much for this video. I was wondering if you could say why you can't take ibuprofen? I recently had a reaction to it although I have been taking it for years. I am having some other symptoms and was wondering if it could all be related. I have a doctor's appointment coming up, but you are the first person that I've heard say that they can't take ibuprofen with lupus. Thanks.
I was diagnosed with when lupus on May 25th 2021 and my body's been going through this major transformation my chest will not stop hurting how did you get over your chest pains
It took over a year Hun. Just stay mobile, stretch and patience. It's all I can say. Sorry if that's not helpful for you. X Sending my love and well wishes. 💗
am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of kidney stone, Infections, Arthritis, Ovarian Cyst, Pcos, Lupus& Herpes Etc.,x
Hun! I just came across your video and when it got to the confident part and I see you crying I just keep seeing myself! I feel the same way! I’ve been dealing with this disease since I was 19yrs old. I’m 34 yrs old and everything you just spoke about here…. I went through and still going through…. My hardest has been my diet and exercise…. I was never a “fitness” person…. But I always kept fit because I danced a LOT! Lol…. When I got sick…. I had no idea what lupus was about…. Fun fact is that I still test negative on my ANA. I’m what drs call a false negative lupus case…. I also have Fibromyalgia and Sjögren’s syndrome secondary to lupus! I’ve lost my job 3 times and told I could not have kids! Good has been great to me because I am blessed to be the mommy of 2 handsome healthy boys! My weight went crazy up and down… I got pushed sooooo much steroids I had the whole moon face and Buffalo hump my stomach grew bigger too…. I I’ve lost the weight now but I still struggle every single day to just be in this world…. I struggle mentally emotionally and most of all physically! I want to get fit but I feel so WEAK and often can’t do much! I’ve tried stretch yoga and it’s helped a lot but it’s still very difficult! My hair loss has been really bad but it comes and goes as well…. Lupus took a lot from me and it still not forgiving and still taking from me but I’ve learned to just live with it! 🤷🏽♀️ it’s so hard because we feel like NO ONE really understand what we go through on a daily basis how hard it is to just wake up in the mornings and was to the bathroom or get dressed or even get out of your beds some days! It’s changed my life and I’m on the quest of finding myself again and trying to advocate for those who do not have a good support system which Is SUCH AN IMPORTANT IF NOT THE MOST IMPORTANT… keep doing what you doing! You’re an inspiration to us all!!!! God bless you! 💜💜💜
Wow wow wow what a message! I love that you have to children!
I haven’t filmed for a while but you make me want to do a two year SLE update!
Thanks SO SO much for this message!
I relate and I understand you! You are incredible and you don’t need me to tell you that!! Thank you again!!!
I'm so glad I came across your channel. My wife of 15 years was just diagnosed with lupus, I have been trying to gather as much information on this as possible! I have to say, I love your outlook on life, I always tell my children" IT'S ALL ABOUT PERSPECTIVE" I definitely got from you, that this DOES NOT DEFINE YOU! it may slow you down or delay you but NOT DEFINE YOU!!! ALSO, I have to say you are very BEAUTIFULL!!! SERIOUSLY! you definitely deserve someone to love, be close to, understand you, massage you, share with you in the good but especially the bad. When that day comes ... They will be luckier to have you!, Then you having them! But don't Rush it, don't pursue it, again... They will be blessed the day they find you. Thank you for sharing.
This is a truly wonderful kind message! I’m still praying for that person. Thanks for your words !!
@@SimplySybella of course! I will be praying for you ❣️🙏. Where are you from anyway? We are in California.
LOL such a longgggg relayed response too 😂😆
Leaving a thank you as I resonate with your journey. Diagnosed at 32 and feel it’s been present since youth. Love you’re realistic optimism. Thank you for sharing your experience with us!
You have such a beautiful spirit. 💜 Thank you for sharing.
...and thank YOU! for watching!
Such a great video
And I'm glad you don't let your diagnosis define you
That's bravery and strength right there
Hey Lisa! It definitely takes practise and I do forget myself sometimes and feel sad but thats a human emotion and I will not chastise myself for it. thanks so much for watching and commenting! x STAY SAFE
@@SimplySybella I totally get that there can be dark days sometimes, but I still commend you for your strength
And I'll definitely continue watching your videos
@@LisaNoche thank you so much for your kind words! :)
@@SimplySybella ❤️
You are such an inspiration. It is so nice to see videos where people are sharing their vulnerabilities and how they cope with their problems. I love your videos.
PS: I really like your makeup. :)
Iulia. Thank you so much! You are trying to make me cry! I see what you are up to!! Haha 🤣 X 💜
I've subscribed! I dont have Lupus, but I do have costochondritis. It sucks, but I've found NSAIDs dont actually work for costochondritis. Stretching, and posture correction have helped me the most. I am in a similar boat to you. I live in the US. Also, you are very pretty! Nobody would know you have Lupus before you tell them anyway. And if you get with someone and they really love you, having lupus is not gonna be a problem.
Hey! Thanks for commenting and subscribing! and your kind words! Stretching and posture correction are an absolute must! ☺️
Thanks for sharing! It’s so important to raise awareness!❤️
It really is! I'm glad you enjoyed !!
*Watch in HD*
Hi everyone thanks so much for clicking this video! This video was emotional which you will see when you watch. I hope you found my story insightful and so I want to ask you to PLEASE SHARE if you know someone who could benefit or LIKE the video so TH-cam will suggest it to other people!
Thank You! and STAY SAFE x
You are a Ray of Sunshine 🌞
Thank you !!
Loved it! you're a whole mood!!!!!❤️❤️
Haha yes sis!! Thank you !!!
Thank you for sharing, this made me feel less alone!
You cannot be alone with me in your life! 💕
Seriously though 😮 you have lived an amazing life thus far! More than most experience their entire existence! And you have an even more meaningful and extraordinary life ahead Sis! Thank you for sharing your story with us l! Stay you!!! Light!
Oh my gosh you trying to bring me to tears!! thank you so much!!!! its been extraordinary! I will keep sharing! see you on Tuesday :) have a lovely weekend STAY SAFE!
Thank you so much for this video. I was wondering if you could say why you can't take ibuprofen? I recently had a reaction to it although I have been taking it for years. I am having some other symptoms and was wondering if it could all be related. I have a doctor's appointment coming up, but you are the first person that I've heard say that they can't take ibuprofen with lupus. Thanks.
Hey Kenna! Reason being is because it can’t be mixed with my medication that’s all.
Thanks so much for watching and commenting x
You are a goddess! 😍 your voice and general vibe is just on another level.
Oh wow thanks so much !!
You are very welcome. Keep doing what you do, I'll keep on following 😉
💜
You are beautiful!
I was diagnosed with when lupus on May 25th 2021 and my body's been going through this major transformation my chest will not stop hurting how did you get over your chest pains
It took over a year Hun.
Just stay mobile, stretch and patience. It's all I can say. Sorry if that's not helpful for you. X
Sending my love and well wishes. 💗
am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of kidney stone, Infections, Arthritis, Ovarian Cyst, Pcos, Lupus& Herpes Etc.,x
💜💜💜
Much love to you too !
Bd