My Life Is About To Change Forever
ฝัง
- เผยแพร่เมื่อ 7 ต.ค. 2024
- After a lifelong battle with extreme constipation and dysmotility, my local GI has told me I have hit the end of the line and need to be seen urgently by Weil Cornell to be evaluated for the thing I've dreaded for years: An ileostomy with potential bowel resection. This means I will be using a bag connected to my intestines for bowel movements as I can no longer go on my own effectively, even with the plethora of medications and measures I take. I find out more information tomorrow on if potentially there is some clinical trial for medication through Weil Cornell, but it does not seem likely. This may be for the best as I am sick of my life revolving around my GI tract, but this is one of the hardest things I've ever had to consider. I don't want this to be the answer, but if it ends the pain I've dealt with rapidly getting worse I will do it. All I want is to function normally, but it is becoming clear that I never had a shot of that with the body I'm in. But that's okay, normal is boring anyways.
Thanks for all the love and support, more updates are soon to follow.
Link Tree To Socials:
linktr.ee/AutumnSkylar
#ostomy #ostomyawareness #ostomybag #ileostomy #eds #ehlersdanlos #ehlersdanlossyndrome
This is too much of suffering to this person, i'm following her the last 2 years and it's so painful to imagine to be in her place. She is undoubtedly a very strong person, no less than special forces or NASA scientist. Stay strong. I will pray for you.
Thank you for the kindness, it does help in this transition 💛
This is my first time commenting on your videos. My name is Max but I have to say that you’re such a good inspiration for all people with disabilities like me and I enjoy watching your videos and keep up the good work. 😊
Thank you very much that means a lot to me 💚
@@autumnskylardoeseverything you’re very welcome 😊
@@autumnskylardoeseverything it would be so fun and an honor to meet you someday just to tell you about my disability and my issues that I been having.
Autumn, You are a courageous person and you inspire more people than you will ever know. Know that prayers from South Carolina are going out to you today and we are thinking about you. Thank you for being who you are. You are truly a wonderful individual.
Sorry to hear about your struggles Autumn.
All the best from the United Kingdom. 🇬🇧
Thank you for the kindness 💜
@@autumnskylardoeseverything I have IBS and Muscular Atrophy. Not fun.
Stay strong, you lion! ❤
Usually, I have a very easy time watching your videos, and knowing what to say to try and bring things to a brighter place, because being caught with extremely difficult circumstances, is kind of par for the course for me as well. This time I have nothing happy to tell you. It's an unimaginable change that for ever manipulates how you handle life. What I can say is that almost every human being on this planet is given a beginning, middle end and an end. From the very little I knew about you the beginning, and all the diagnoses was planet suck for sure. The middle gave you the most amazing fiancé and numerous years of parental support as well as time supporting your passions. This is yet another weird section in your middle that reminds you of the constant change you face. The advantage you have about the section of your life that you're in is that it's massively hard but you're still in it. I'm not saying that as any form of gratefulness, I am saying that because navigating the world when you have multiple illnesses, constantly pressing your, will my life be good today or will it be unimaginably hard buttons makes it really hard to cope. Saying I'm sorry doesn't feel like enough. What I can tell you is that any given day that I see a post from you it reminds me of how you were more than enough and that you are always extraordinary and so are the people who are supporting you. This is one fight I know you didn't want to have to face and I know you're probably tired of feeling like the extraordinary one and then you probably just wanna be autumn but you have to remember the most perfect people come from the most imperfect situations, and you always know how to make a situation beautiful no matter how broken it makes you feel. The people in the comment section may not battle with you, but our hearts fight alongside you to make sure you make it through this OK.
Your words are beautiful and touch my heart, knowing I have this community along side me as well as my family, friends, and fiance, helps me to fight. I was once really really alone, and scared, but my world has changed a lot in 3 years with my fiance entering into my life and beginning this new channel. It's been eyeopening to how many people are fighting with me and rooting for me. It may not ease all the troubles of my mind, but it eases some. Thank you
Sending all our love from my family to you. xxx
Thanks for sharing your struggles Autumn. Its nice to see someone face challenges courageously. Its inspiring.
I don’t know how useful, freeing, enlightening or inspiring this is going to be, but first off let me just say, you are not alone
( emotion alert readers, be ready with a box of tissues, if not go out to the market and get some, also wall of text warning, deep feels ahead)
Autumn. Thank you for your heart. I believe God gifted you in a very unique and real way to spread authentic Joy in a seriously fouled up time in society.
It doesn’t matter that you’re disabled. At least it shouldn’t. Having dreams and desires yea, thier wonderful to have. There’s no reason to believe they won’t happen, I tend to believe God knows the answer ( I’m not forcing my beliefs to be clear, you believe what you believe)
I have a condition in my brain I’ve long since accepted won’t change and I’m content living that way and frankly comfortable with it. I’m a man in my mid 40s who still believes anything can happen even if it looks hopeless.
I struggle with intestinal problems too. They’re ofc but nearly as what you described your condition ( which i don’t fully understand yet) but I none the less share the food concern. It’s scary knowing what we eat just has bizarre effects.
I don’t know entirely what you have, the operation you are in today or how it’s supposed to help on your bathroom conditions I’m sure dedicated community members can help clarify that for me or yourself if you’re paths bring you back to your channel again. So forgive me if I’ve misunderstood, but it sounds like this operation you’re in from what you described will have an impact on your life span. With it ending too early in your life, I hope I’m wrong, I again don’t understand entirely what’s going on.
But it sounds as you believe your life will be ending and that breaks your heart. If that’s the case, I understand how that can be. Too many people give up on their lives. We don’t need to add 2 more to the list ( me and you)
The fact you are alive this very moment is a blessing, it let you make this video, it’s brought you to a piano a few times. And from the looks of it a very joyous time with your fiance where I couldn’t be more joyed how you felt in that moment. And it sure does sound like you’ve family and friends being there throught this whole thing. I can only imagine they all toss ya real hugs each and every day. Though we’ve never met, I’d like you to consider me among them, bc I can promise you, you’re not in the least alone. ❤
I mentioned before I’m in my mid 40s and I feel like it’s impossible to resume my life as a streamer due to behind emotionally wounded of past circumstances, I don’t acknowledge it nearly enough, but in this sespool of negativity that surrounds us day in and out. I do have some new friends I’ve met over the last couple of years who want to help and encourage me to get back into streaming ( despite the odds) but it seems we both share a similar struggle “ is it gone, dreams dashed, has all hope truly been lost? It’s hard for me to admit like you should that it’s 100% not lost, we’re both here with a desire to keep sharing our hearts as God intended. And really neither of us know when we will die. What is so important is being to embrace our lives as fully and non toxically positive as possible. Every Breath, step, sound, touch, feeling, counts and very much matters
Thank you for sharing your story
I am praying for you to get well soon! there is nothing impossible to God!! you are a beautiful amazing girl! and it's hard to watch you crying like this!...
That really sucks but sometimes we just have to go with this "shit" pardon the pun! Hopefully it does help. It sucks to have so little control over our bodies. I went to the dentist last week fir first time in years and was half expecting them to tell me I needed a load of teeth out or something but my teeth are fine but my gums not so much, gum disease so am back on vitamin cm regular and got the cordosyl mouthwash and the sensodyne toothpase and the probiotibs and avoiding sugar and scrubbing my teeth like am scrubbing a dirty pot which is definitely not helping I reckon.
I don't want false teeth, my teeth are probably the least messed up thing in my body so I dont want to lose them. I only really just finally started singing and recording myself after pushing myself for 3 years to do it and I don't want to lose my teeth, am worried that will stop me from being able to sing properly, its bad enough as it is lol
Hope you are doing ok and getting married soon? Not watched all your video yet. All the best!
Thank you for the empathy. We aren't sure when the marriage will be due to finances, but either Fall 2024 or 2025 ^_^
I have seen your video full of emotion, I know that it is not easy to make the decision to live with an ostomy, but I can assure you that without the ostomy device or with it, you are a wonderful person, who deserves to be happy, remember that those who They love you, they will be by your side, greetings from Spain, a country worth visiting... you have a new follower
Thank you for that kindness. It is a hard hard decision but all that keeps me going is the hope it'll mean a new lease on life 💜
Prayers
New sub-cat bed on the headboard,bee tattoo and No face shirt-Already like you! Keep your chin up! -luv an old crazy cat guy
Thank you thank you ❤️
Constipation sucks
I been dealing with IBS from last 20 years
Multiple treatments medicine
No Recovery
So I change my diet
Left Fast/Junk Food
Processed and Spicy Food,beef,minimized dairy products
Just eat fruits,vegetables and brown wheat flour
Drink excess of water
Get Well Soon Autumn
Sadly the condition I have has nothing to do with diet. I've tried changing and it does not help. I will be getting my ostomy next month which will change my life, but for me it'll be worth it
Love from india 🇮🇳 mam ❤
May God heal you and protect you❤
❤❤❤❤
❤❤❤❤❤❤
Do you have any way of communication skylar ....❤❤??
GOD bless you. You're beautiful.
🥰🥰🙏🙏🤗🤗🙏🙏🥰🥰
Please please get a second and a third opinion!!
This is my third opinion and I have been told for years one day I would need an ostomy bag due to my condition.
@@autumnskylardoeseverything Sweet young lady. One day you will wake up and you'll be OK with it. You will become at peace with it. Bless you, angel!
if life costs this price, I am ready to pay it, may this channel bring you courage, from France 🫡