BEYOND (Feature-length documentary film about severe autism)

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  • เผยแพร่เมื่อ 16 พ.ย. 2024

ความคิดเห็น • 95

  • @norastuart2216
    @norastuart2216 6 หลายเดือนก่อน +15

    I felt like looking our life in a mirror. The struggles , the pain, the emotions, the devastation hiding behind the mama's beautiful smile and jokes, the constant battle that goes on in our mind, body and soul when seeing our babies struggle all of their life, even after exhausting every avenue to bring them back .
    My son has no way of communication and goes through so much pain that we havent been able to pin point for so long, it is the worst feeling in the world not knowing how to take away his pain and we live like this every day.

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน

      Thank you for watching :) If you liked it, please share with your family and friends

    • @crismarieb6275
      @crismarieb6275 4 หลายเดือนก่อน +1

      @@norastuart2216 yes I understand my son communicates but it’s very limited he’s in another world a lot of times. I’m worried all the time about his health you’re not alone ❤️

  • @davidpetersen6694
    @davidpetersen6694 2 หลายเดือนก่อน +9

    Dear me, I am living this movie in our home in Texas with our 35 year old son with severe autism. I am so glad to find this film. I get up every 10 seconds and if I’m lucky a full minute. I get one to four hours of sleep a night and only when our son is also sleeping. If I dare to sleep any other time, I wake up to something broken like doors, a lamp or a hole in the wall. We are trying to get him in a state supported group home that can handle him. It’s going to be a miracle if we can do it!

  • @Cathy-kk6lo
    @Cathy-kk6lo 4 หลายเดือนก่อน +10

    This lady has the patience of a saint.

  • @crismarieb6275
    @crismarieb6275 4 หลายเดือนก่อน +24

    My son was diagnosed with level 3 autism at age 4. It’s hard to say the least. I try so hard to help him with speech therapy and ABA. But I always feel like I’m not doing enough. He really likes to be on his tablet and I get criticized for letting him I just feel like everyone wants to tell you what to do but it’s exhausting you have to work extra hard when you have a special needs child. There needs to be more support for the families.

    • @zaybxc1
      @zaybxc1 21 วันที่ผ่านมา

  • @faizamohammed3575
    @faizamohammed3575 6 หลายเดือนก่อน +15

    This was so emotional to watch as a mom who have 2 kids with autism and none verbal

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน +4

      We can imagine. If you liked it, please share with your family and friends so more people are aware of what mothers like you and Tamara go through every day. Thank you for watching :)

  • @donnamays24
    @donnamays24 6 หลายเดือนก่อน +10

    I have a relative with a 21 year old daughter who is low functioning autistic non verbal..I’ve watched her struggles through the years and I know that there needs to be more resources, more research and more understanding for the families. This lady and any one who has more than one adult child with ASD are saints! I don’t think I could do it…blessings and much prayer for all!🙏🏻. Excellent documentary! ❤

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน +2

      Thank you for watching :) If you liked it, please share with your family and friends

    • @acooksla
      @acooksla 6 หลายเดือนก่อน +1

      I couldn’t do it

    • @salamawitberhane9122
      @salamawitberhane9122 5 หลายเดือนก่อน +7

      When it's your children you will do anything. They motivate you to keep going

  • @veronikahellsnova7510
    @veronikahellsnova7510 6 หลายเดือนก่อน +14

    I am a mom of two girls with autism one verbal and the other non verbal with severe behavior disorder .it is a 24/7 job .

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน

      Thank you for watching :) If you liked it, please share with your family and friends

  • @futuretense6058
    @futuretense6058 6 หลายเดือนก่อน +22

    Maybe instead of funding WARS Fund this! These are our own Babies! Loved ones! How can our Gov. Not Care?😢

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน

      Thank you for watching :) If you liked it, please share with your family and friends

  • @Erin-w1d
    @Erin-w1d 2 หลายเดือนก่อน +9

    I live with my little brother who has servere autism 3 yrs ago my mom passed away and my world changed so fast never thought I would be taking care of my little brother it's so much work and patience so much regret of not helping my mom enough when she was alive that'll live with me for the rest of my my sad thing is it's been 3 years and he's still not over my mom's death

  • @Riddickisawesome101
    @Riddickisawesome101 3 หลายเดือนก่อน +8

    At first I felt a bit queasy because of some ableist language, but as it went on, I was very happy by how things turned out. I’m glad Tamara found a loving and supportive partner, and her sons started using AAC to communicate, which they really, really needed. I’m also glad there was no ABA involved and no ABA therapists, as those guys deserve better than that. Tamara sounds like a very loving mom, and I’m glad they have her

  • @meredithharman731
    @meredithharman731 หลายเดือนก่อน +5

    I love this!!! My son couldn't blow out a candle or handle us singing him "happy birthday" either but now he can and it's so beautiful to see the progression!

  • @salamawitberhane9122
    @salamawitberhane9122 5 หลายเดือนก่อน +10

    Thanks for doing this. Many have a misunderstanding of autism. Many don't know its a spectrum which means some will have speech and some don't. I hope this helps people understand the amazing work parents do for their kids with autism.

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  5 หลายเดือนก่อน +1

      Thank you for watching :) If you liked it, please share with your family and friends

  • @ayeasten
    @ayeasten หลายเดือนก่อน +6

    she is beautiful and a great mom. i love her voice and accent. praying for her and her baby boys. u got this love!

  • @Jawknee68
    @Jawknee68 6 หลายเดือนก่อน +9

    Thank you for making this. I can so relate with my 14 yr old non speaking twins.

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน +3

      Thank you for watching :) If you liked it, please share with your family and friends so more people are aware of what mothers like you and Tamara go through every day.

    • @7777Noris
      @7777Noris 6 หลายเดือนก่อน +4

      Very moving and real documentary. My son is 16, non verbal. I can relate to a lot of things presented here. God hope and less the mothers and caregivers of young adults with autism.

  • @KatjaTheAutiArtist
    @KatjaTheAutiArtist 6 หลายเดือนก่อน +6

    Thank you so much for sharing your story. I have shared this with others in the community and I hope that your vision spreads and becomes a reality.

  • @Ellenslife851
    @Ellenslife851 5 หลายเดือนก่อน +7

    I am so proud of you girlie for doing what you do. I have high functioning autism, but not to this point where I’m nonverbal and I’m very aware of my surroundings and try to be a very good person. I have my few moments, but never to this extreme, and I really love your idea of creating a place where people can live as a community to help each other out😊❤

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  5 หลายเดือนก่อน +1

      Thank you for watching, if you liked, please share with family and friends :)

    • @Ellenslife851
      @Ellenslife851 5 หลายเดือนก่อน +1

      @@DEllenMillerProductionsLLC yes I definitely will. I loved it. I thought it was a really good documentary.

  • @bananie2383
    @bananie2383 6 หลายเดือนก่อน +6

    What an amazing mother! God bless this family.

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน

      Thank you for watching :) If you liked it, please share with your family and friends

    • @deirdrecurran1780
      @deirdrecurran1780 6 หลายเดือนก่อน +1

      I really hopes this works outs, if I had the money I would give it to you.💞

  • @GatorTing13
    @GatorTing13 5 หลายเดือนก่อน +5

    Thank you for sharing your incredible story with us!
    To view such an intimate telling of severe autism delivered through this documentary penetrated my mind, heart, and soul.
    You and your family are absolutely an inspiration to me... what love and compassion were conveyed in this film.
    I extend to you all infinite love and respect.

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  5 หลายเดือนก่อน +1

      Thank you for watching :) If you liked it, please share with your family and friends

  • @moms9457
    @moms9457 6 หลายเดือนก่อน +8

    I'm so happy you shared this story. From the comments it seems clear that many people have no idea that this is a lifestyle mirrored in thousands of homes. (I believe the autism rate is now 1 in 44.) For those of us that do know, we are grateful to see real autism on screen. It's not all Atypical. Sometimes its nonverbal and violent, and we need to address this massive pandemic and create housing and programs for this quickly growing population.

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  5 หลายเดือนก่อน +1

      Thank you for watching :) If you liked it, please share with your family and friends

    • @MelissaThompson432
      @MelissaThompson432 2 หลายเดือนก่อน +1

      I think you're going to find that there's not a rise in the proportion of nonverbal autistics. The fact that there appear to be many more now is due to the fact that diagnosing autism is getting better. A lot of "new" autistics, in fact, are adults who have been autistic and undiagnosed for decades.
      It isn't a minor thing, but if you were trapped in an uncooperative body among people who can't and seemingly won't interpret your needs in any other way than verbally, I suppose you'd want to scream and throw things, too.
      (I, personally, am not a meltdowner; I'm a shutdowner. Plus I'm vocal-verbal. But I do understand the desperation.) I assure you, no one bites the skin off their (or anyone else's) body if they haven't already tried everything else they can think of. I'm just happy for the boys that they can type it out, now. They're demonstrably smart and have the word skills they need. The ability to "speak" is huge.
      Huge.

    • @moms9457
      @moms9457 2 หลายเดือนก่อน

      @@MelissaThompson432 As a teacher in a school that specializes in the most severe cases of Non-verbal autism in my region , our exponentially growing waitlist disagrees. We've had to set up satellite rooms in about half of our district schools for nonverbal autism. When I began teaching 20 years ago the cases we saw were far less severe, even in therapeutic day schools. In local public schools, there were maybe 5 or 6 kids diagnosed and 1 paraprofessional/teachers aide per building. Go to your local public elementary school's website and count how many para's there are on the staff list now. It's bigger than many people realize.

  • @Yoongiwifie
    @Yoongiwifie 4 หลายเดือนก่อน +6

    Your such a sweet and good mom you remind me of my mom, which makes me love you even more ! Your sons are lucky to have you as a mom❤

  • @pianoman2276
    @pianoman2276 3 หลายเดือนก่อน +4

    What an incredible story! This practically brings tears to my eyes.

  • @anglingrant8648
    @anglingrant8648 3 หลายเดือนก่อน +2

    Thank you so much for making this video, i related with everything the mom has gone through, my son is non verbal as well and i worry all the time about him when i wont be around, the struggle with getting support and services is extremely exhausting and makes me so angry with the government, we live in Canada, Toronto and my son is on a waitlist for funding that wiill take 5 to 7 years, its so expensive to pay for his services, u feel like your always on fight mode for your kids but he has changed my life , he has shown me me what real, pure love is and im such a different person cause of him, to all the parents out there stay strong and u are loved❤❤❤ love Diane and kingston❤❤❤❤

  • @dibbe214
    @dibbe214 6 หลายเดือนก่อน +13

    When my child was diagnosed back in 1999, I thought I was the only one in the world dealing with this. What spiked the increase in cases of profound autism? Children's Health Defense has been very helpful in figuring it out for me. If you don't know Rolf Hazlehurst, Mark Blaxil, JB Handley or Brian Hooker, I would recommend you research what's going on. This is preventable.
    Reply

    • @melindalemmon2149
      @melindalemmon2149 6 หลายเดือนก่อน +1

      Standard American Diet, glyphosates, pesticides

  • @yeseniasantana6036
    @yeseniasantana6036 4 หลายเดือนก่อน +3

    Thank you for this Amazing Documentary, I couldn’t stop Crying 😭😭 I also have 2 boys with Autism 🧩💙 4 yr old & 13 💙🧩 year old , thank you for allowing us your side and that we are definitely Not Alone 🙏😭

  • @sofie139
    @sofie139 3 หลายเดือนก่อน +10

    I hope they get the funding they need…it saddens me to know that their wishes would be fulfilled if a person like Jeff Bezos could donate one day’s salary and could fund to build several of these communities 💔💔

  • @MelissaThompson432
    @MelissaThompson432 2 หลายเดือนก่อน +4

    36:04 When he was slapping the wall or table and then holding his ears, I thought, looks like he has a headache. Since he types, it should be, if not easy, at least possible to help accommodate his need for comfort in that sense.

  • @Renee-b2y
    @Renee-b2y 4 หลายเดือนก่อน +2

    I have only watched 5 mins and you are the most patient and beautiful mum❤❤❤❤ oh I wish I could help you and give you huge hugs!!! Sadly I'm in Australia 🇦🇺 my son has high functioning Asperges and I get tired and stressed with him. I have learned so much from you. Thank you. Sending you and your gorgeous boys huge hugs and so much love!!!❤❤❤

  • @joannehandley6250
    @joannehandley6250 28 วันที่ผ่านมา +2

    What an amazing woman ❤

  • @Bless-k8x
    @Bless-k8x 6 หลายเดือนก่อน +4

    Absolutely beautifully and real what a woman amazing sons thank you for showing the world all sides of your most incredible lives. Carers blessings to you all the real man god bought you all together. With true love ❤🎉

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  5 หลายเดือนก่อน

      Thank you for watching, if you liked, please share with family and friends :)

  • @chantelcuddemi7646
    @chantelcuddemi7646 6 หลายเดือนก่อน +2

    Thanks for posting this!

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน +1

      Thank you for watching :) If you liked it, please share with your family and friends

  • @JP-qr2jw
    @JP-qr2jw 4 หลายเดือนก่อน +4

    Respect 🙏, you are 1 in a million
    I have also such a ling and hard to Belive story,
    What you doing is very inspiring

  • @tonorodales3486
    @tonorodales3486 9 วันที่ผ่านมา

    Ms Tamara , your a strong women 🙏🏽 God bless you an the boys Harry & Ian 🙏🏽

  • @ZacharyleeHunter
    @ZacharyleeHunter 2 หลายเดือนก่อน +2

    Aww your boys so sweet

  • @pc2080
    @pc2080 หลายเดือนก่อน

    His headaches are sooooo painful. No one acknowledged them!! I wonder what would happen if he didn’t takes pain medication. He’s in sooooo much pain!!

  • @5p674
    @5p674 2 วันที่ผ่านมา

    It's like an endless game of charades.

  • @MelissaThompson432
    @MelissaThompson432 2 หลายเดือนก่อน +4

    There are a lot more of us being diagnosed who were autistic all along, but because we speak vocally and don't have significant executive deficits, we slipped through the cracks.
    When I say, "significant executive deficits," I mean, if you didn't call us for a week, we would probably still be alive and more or less healthy. We might not bathe daily, or eat nutritiously, or keep a job, or have friends, or pay our bills, but historically, before diagnosis, we were merely perceived to be screwups, not people with genetic brain issues.
    I think, as more vocal-verbal autistics go into the science and sociology of autism, with an insider's perspective, it will be easier to create solutions.
    Here's hoping....

  • @myaweety
    @myaweety 25 วันที่ผ่านมา

    Unbelievable every day struggle,

  • @zaybxc1
    @zaybxc1 21 วันที่ผ่านมา

    For parents - what would help you? ❤ please let me know

  • @seth.4
    @seth.4 6 หลายเดือนก่อน +4

    • @DEllenMillerProductionsLLC
      @DEllenMillerProductionsLLC  6 หลายเดือนก่อน

      Thank you for watching :) If you liked it, please share with your family and friends

  • @echofoxtrot2.051
    @echofoxtrot2.051 5 หลายเดือนก่อน +3

    Trigeminal neuralgia?

  • @bevs9995
    @bevs9995 6 หลายเดือนก่อน +2

    guess the father isnt going to make an appearance

    • @debcoulombe9933
      @debcoulombe9933 4 หลายเดือนก่อน +1

      She said he couldn't handle it and left them.

    • @Riddickisawesome101
      @Riddickisawesome101 3 หลายเดือนก่อน +5

      @@debcoulombe9933what a coward, leaving her alone like that

    • @debcoulombe9933
      @debcoulombe9933 3 หลายเดือนก่อน +1

      ​@@Riddickisawesome101, more than a coward. Anyone can be forgiven for being afraid, but to abandon your family is more selfish and evil than cowardly 😢

  • @angeliaokeefe1176
    @angeliaokeefe1176 22 วันที่ผ่านมา

    ❤❤❤

  • @melindalemmon2149
    @melindalemmon2149 6 หลายเดือนก่อน +3

    Wish I cud have tried carnivore with them at first signs.

  • @lizannezisa436
    @lizannezisa436 6 หลายเดือนก่อน +5

    I'm sorry but I could never keep a child with that, cause I'm bipolar. Can't even watch this. So sorry for them n parents. Not fair

    • @agnieszkaIzabela597
      @agnieszkaIzabela597 2 หลายเดือนก่อน +5

      How about putting u in the institution for your bipolar? How would u feel if ur family got rid of u and put u away?
      Think twice next time , find some love in ur heart

  • @lizannezisa436
    @lizannezisa436 6 หลายเดือนก่อน +4

    How the hell does a parent deal w this craziness

    • @JunaidWolf3
      @JunaidWolf3 6 หลายเดือนก่อน +6

      Guessing you weren’t loved as a kid

    • @lizannezisa436
      @lizannezisa436 6 หลายเดือนก่อน

      @@JunaidWolf3 of course I was. Very much. What's that got to do w my comment?

    • @salamawitberhane9122
      @salamawitberhane9122 5 หลายเดือนก่อน +2

      She is an amazing mom

    • @JunaidWolf3
      @JunaidWolf3 5 หลายเดือนก่อน +4

      @@lizannezisa436 well when you have kids with disabilities like that you can’t just send them away especially if you don’t know or have the money to and some country’s don’t have support for people with disabilities like that

    • @agnieszkaIzabela597
      @agnieszkaIzabela597 2 หลายเดือนก่อน +3

      This is called motherly love. Unconditional never ending love

  • @lindasharp8523
    @lindasharp8523 6 หลายเดือนก่อน +5

    The boys looked okay at first. Have they had lots of injections? My friends son was normal for his age before he had the measles jab. Now he's 6 and cant even write his name or speak properly.

    • @shawnafsworld7431
      @shawnafsworld7431 6 หลายเดือนก่อน +15

      Stop Blaming Autism on Vaccines look , IF it wasn’t for vaccines Thousands wouldn’t even be alive
      & Diseases would be Rampant
      WE Autistic ARENT Born normal & WE Will Never be normal, we are different but we are All people deserving of Kindness, Love and appropriate Treatment and Care. Without abuse From Those Abusive People Who Go to Work with
      The Disabled Population Only to end up Abusing The most Vulnerable People WHO CANT talk or defend themselves sadly.
      It’s not bad to be autistic. People need to stop Forcing Us to be Normal they need to
      Understand That !
      It’s narrow minded ableist thinking. Autism is apart of who I am and I don’t want to change it. It’s apart of me.

    • @NickanM
      @NickanM 4 หลายเดือนก่อน

      They all look & behave "normal" in the beginning. 😢

    • @sarahtrogdon3139
      @sarahtrogdon3139 3 หลายเดือนก่อน +8

      Let’s stop using discredited and disproven studies to parent shame..

    • @MelissaThompson432
      @MelissaThompson432 2 หลายเดือนก่อน

      I'm 66 years old. I had 6 vaccines before starting school, none of which contained thimerosal. It is true that there is a lore of a "precipitating event" before which kids were "normal," but I think we believe this because of two things that happen in combination.
      >> There is a residual protection infants and toddlers have from the mother, which gradually wears off; faster if the child is not breastfed, but, inevitably, for us all. Not just immunity, but nutrient absorption, as well. We become depleted over time.
      >> After a significant health event, parents are more vigilant about children's failed milestones and developmental losses, so they think the event was the cause. Because that's when they noticed.
      I follow an autism mom who had one child on the spectrum and then after 8 years or so had another. I could tell the second child was also on the spectrum before their first birthday, and I'm sure the parents were thinking about it, too. But the child was very sociable, calm, and adaptable, beginning to use speech to communicate, and we're told that's not autism. It can be. I was much like that as a child, according to my family.
      The second child is now diagnosed, but it was there all along.

  • @blakeharvard5841
    @blakeharvard5841 4 หลายเดือนก่อน +2

    Meds might help.

    • @Oakleaf700
      @Oakleaf700 2 หลายเดือนก่อน +1

      Cannabis?

    • @MelissaThompson432
      @MelissaThompson432 2 หลายเดือนก่อน +1

      For symptoms, sure. His challenges come from the physical structure of his brain and the way his neurons communicate with each other, and nothing's going to change that. Coping skills are what's needed and it appears that he's getting those. That and dietary support for his neurological needs. Digestible B vitamins, maybe. Vitamin D supplementation, if it's low. But I think Tamara's on top of that, too, at a guess.

    • @Allergictocatstoo
      @Allergictocatstoo 4 วันที่ผ่านมา

      There are protocols that include diet and supplements that have been known to reduce or eliminate Autism symptoms at these higher levels.
      I wish more people would explore these alternatives.

    • @MelissaThompson432
      @MelissaThompson432 3 วันที่ผ่านมา

      @@Allergictocatstoo diet is problematic for people with severe sensory issues. My sensory issues are fairly manageable, but there are some foods I can eat in spite of the revulsion or outright terror they induce, and there are some I cannot, will not. Mushrooms, for instance, taste nasty, have an unpleasant squidge whether raw or cooked (differently squidgy, but equally unpleasant,) and some survival urge in the back of my brain whispers, "poison" when I am offered them to eat. However, I used to be quite fond of mushroom gravy, dirt-rust flavor and all, and if they're in a dish, I can move them to one side and eat the other things in the dish that they were cooked with.
      On the other hand, no kind of organ meat or anything that grew in the ocean is even slightly permissible to me. Same for asparagus.
      My point is, he seems to have a very restrictive list of foods that are possible to him, and, unfortunately, they aren't necessarily very healthy. I'm noticing that about food sensory issues.
      So, dietary changes are a lovely idea.
      In theory.
      Supplements have a marginal chance of being more possible.