3 Things I Wish I Knew before GJ Tube Surgery - Feeding Tube Awareness Week
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- เผยแพร่เมื่อ 16 ต.ค. 2024
- Hello! Welcome to my channel! I decided to create this video to spread awareness surrounding my chronic illnesses. I was diagnosed with Gastroparesis, Postrual Orthostatic Tachycardia Syndrome, & Mast Cell Activation Syndrome about two years ago. I have the choice to be hidden throughout this season of life or I can be Transparent about my struggles. If by sharing my journey & experience helps another individual, I will gladly share parts of my journey.
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💜 tmsforacure.org/
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So ive also had a GJ tube, i never knew what the tube spasms were called. I always just called them spasms. I was prescribed a muscle relaxers to take to prevent it or minimize it because it became esepcially painful. I dont remeber how long i stayed in the hospital, but i remeber recovery being absolutely brutal.
Im now getting my 2nd stomach GJ tube. And now that im older (almost 25) and working im really sturggling to comprehend how im suposed to maoe this work
Getting mine in a couple of weeks...
Hayley! Can you eat at all? Drink water? If so/ if not, what was the transition like?
I’m going in for my second one!! My Dr took the first one out too soon and i dropped an extreme amount of weight. I’m really frustrated with medical professionals saying procedures are painless when they AREN’T 😢
Hi Hayley! My name is Chloe and I wanted to thank you for creating this video. I have multiple chronic illnesses and I am getting my GJ tube in a few weeks. I would love to hear more about your experience and if you have any other tips for pre and post op! Thanks!
How did the surgery go? I’m unfortunately heading down that path. The doctors are pushing for a GJ tube. Hope you’re well! 💖
@@randomthatsme1 I’m so sorry to hear that you need a GJ tube. I know the thought of it is really overwhelming, but I want you to know that it has changed my life for the better and it has helped me manage my illnesses and symptoms better. It has saved me countless times from needing to go to the hospital. Overall the surgery went well. It took me about 10 days before I turned a corner, and by the second week I was feeling almost back to myself. Please let me know if you need anything or if you have any questions!
This Tuesday
My gj tube placement was also extremely painful!
how is life with a tube? gain weight back ? feel energy and can hydrate?
im just curious have you been checked for EDS? I have all the same comorbid disorders as you and they are all highly associated with EDS!
I actually do have Ehlers-Danlos Syndrome! Right now I am diagnosed with Hypermobile type & waiting to be seen by a geneticist to rule out the other types of EDS 💕