5 "Mistakes" Neurologists May Make Treating People with Multiple Sclerosis
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- เผยแพร่เมื่อ 28 พ.ค. 2024
- In this video, I may upset a few Neurologists...
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
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I am a healthcare provider, I watch your videos regularly and also ask my patients to watch them. I get practical advise from you to help them with their daily living.
@realpeaceofmind I just want to tell you 👏🏻 good for you! I think that you are taking time to increase your knowledge and, everyone can benefit from that!!
Amazing!
A true caring relationship when neurologist cares as if he was himself the patient
I’m tired of fighting for the basic care from providers. I’ve given up. If they don’t care, I don’t care. Just tired of chasing doctors and offices for the basics. 12 phone calls to get an MRI scheduled is ridiculous. Never did get scheduled. So forget it! Maybe next year.
@beckymoran321 Don’t give up on your concerns with your treatment, it is your life that you are living! Keep trying to get what you need done! You owe it to yourself!
Try searching some private mri scanners. I was sent to private one because hospitals are full almost all the time and it was a great idea. They are opened almost nonstop, so I could get it on a weekend or at 6pm for example
Important points that are clearly born of wisdom. I wish you would have pointed out the lack of humility and humanity that is so prevalent among your colleagues. I'm sure you read your comments and see how often your subscribers use the word "afraid" when talking about their neurologist. As in, "I'm afraid to ask my neurologist about..." "I'm afraid to tell my neurologist..." Educating people living with MS is super important. It's just a crying shame that so many doctors seem to feel that they have learned everything they need to know and are above needing any more education. So much of life is subjective- but feelings, fears, and frustrations don't seem to register on most doctors' radar. You would do MS patients a world of good by educating your colleagues about human interaction and the importance of LISTENING to and BELIEVING their patients. But I understand why that would be a tall order. The vast majority of them really don't care. People always advise that, as a patient, you have to be aggressive and fight to get doctors to do their job. Well, I taught elementary school for many years and no parent ever had to come to school and fight with me to get me to teach their kid to read. That would not be a thing. As with almost every other job in this world. But not doctors. Why? (As always, these comments do not describe you, Dr. Boster. You are a hero.)
My care partner once accompanied me to my follow up by the 'mean' neurologist, and commented afterwards that these people aren't coming to her because they're having an easy time, and that in the same amount of time and for the same price, at least she could have been nice. 😢
OmG all that's so true. I saw doctors privately here in Ireland. They were bullies and wouldn't treat me after hsct. I am 15 years in and only now I am on a hi tech dmt (just started)when I fought to see a compassionate doctor. My spasticity is progressing. HSCT really helped me but didnt past 3 years. Too late for me you people in US have it better by far as you are offered medication and choices and chances on tysabri with jcv baclofen pumps etc my husband having tests and biopsy so stress is huge which is impacting. Life is too hard. Dr Boster is great I told the neuro I was dealing with about him+😇
You really described a prominent and relevant problem and issue!! Your comparison to being a teacher was directly relatable! Why do we have be “afraid & fight” for what we deserve when we are being treated? This attitude of Neurologists who think that they already know all & everything that they need to know is antiquated!! I wish that all MD’s could look at this and possibly see if they fit into this picture or not. And if they do, make some changes to their selves.
Doctor Boster, thank you for this video!
Thank you for having enough humility and humanity to have risen to the level of being a fantastic MS Doctor! I think you taking the chance of “pissing off” other Neurologists shows that you are not only a caring Neurologist, but also by far a caring HUMAN! Thank you for putting this out there for others to see!
My Neurologist is pretty good. I do have a complaint though. At one visit I said something about your channel and that I thought you were very helpful and knowledgeable. I asked my Neurologist if he had ever heard about you before (I’m in Illinois) and he said no, I commented that he should look up your station because you are so knowledgeable and helpful. I am guessing that either he forgot what I said, or he didn’t find the need to even look you up. For whatever reason, he didn’t follow up on my suggestion, which made me sad to know that what I said did not (1)seem important enough for him to take my suggestion or (2) he didn’t feel the need to look outside of his own “box”. Either way I feel that way of thinking is selfish and/or self-centered.
To me, a person can never ever stop learning and there is always something out there new to learn about!
Thank you for your willingness to demonstrate that both things hold true, and showing your willingness to address all of the issues that go along with having a diagnosis of Multiple Sclerosis!
I wish I had seen this 20 years ago when I was diagnosid. Now turning 50 I am dealing with my poor choice to not take medicines.
Nowadays it is great that we can share knowledge across the internet. Dont stop fighting, it is a long term thing. Modern neurology should treat you even after your 50s.
Absolutely! Brain damage 20 years down the line is a whole different animal than when it initially occurs. I love my MS specialist because she has always been very good about explaining the risks of NOT treating MS, and she always goes over my MRIs in detail with me.
Can I add another “ mistake” by neurologists? Saying, “I don’t think that has anything to do with your ms.” My neurologist just told me my bladder spasms are not ms related and that it is “ physiologically impossible.” So I asked him as ms affects the brain and spinal cord, can’t anything the brain and spine control be affected? He said no, that’s not how it works. Mind you, I have as he’s told me “ a ton of lesions and it uncountable at this point.” I then went to ms society page and bladder spasms are a common thing with ms. Yet my neuro refused to believe that and said my bladder issues have nothing to do with ms, even though my urologist said, after lots of testing, it is my ms. Grrrr!
Wow! Just Wow! Thank you so much. This so needed to be said - and heard and acted upon - by both patients and neurologists / nurse practitioners.
Any MS health practitioners feeling "p1ssed off" at what's said here: take a moment to think.
How much does your anger and defensiveness say about your approach to patient care? What if you were the patient or their family? What if it was you having your symptoms ignored? Or your partner, parent or, god forbid, your child whose treatment was failing only to be met by a sympathetic shrug or outright gaslighting "that's not MS, your MS is stable, look no new lesions".
I'm sharing the xxxx out of this video to those PwMS I know who are on the end of this kind of treatment, thank you so much Dr. Boster.
👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻
Saying that's not bad enough is for me one of worst thing doctor could do. I once said that I have problems with balance and doctor said if i can ride a bike it's fine?
Also what seems really important is asking questions, cause I forget some symptoms I have or don't even know it's problem related to ms. Even after years of having ms I'm not sure if some symptoms are due to ms 😅
Yes. After diagnosis in November 2021 my neurologist said "We aren't going to treat you. You could try CBD for symptoms." I have got to the point where I blame everything on my CIS (MS). I plan to keep a symptom diary in 2024 for what's left of my own sanity. Best wishes to you.
@@jannaolsen3557Best wishes to you! It sounds like you need to be more aggressive with your Neurologist or look for a new one!!
Good video Doc.👍👍
My first neurologist was so bad, it's too depressing to even try to describe.
Sorry to hear that
Mine aswell never explained anything to me :(O
Back in the day before PACS and other image archiving systems, some doctors would be treating purely based on MRI report. There were people misdiagnosed for years and decades who never had an MRI with any lesion characteristic for MS due to some dubious MRI report. You make a good point about the follow up after relapses. I think treating relapses has been seen as less important in the modern era (as fewer people have relapses due to the advent of highly effective disease modifying therapy). But I still see people newly diagnosed or sent for a second opinion who were not offered steroids for a recent flare.
I personally am so glad to see that you are a Doctor who isn’t afraid to watch these videos to improve patient care!👏🏻
Thank-you for another awesome Monday morning video Dr Aaron. On the subject of MRIS I've literally had to insist in the past that my neurologist go over them with me. Thank you again for the wonderful job that you do getting this information out to us each week😊
You are not alone with that issue, I have had the same experience!!
This is a great video. I live in NL, Canada and I have a fantastic neurologist who doesn't make any of these 5 mistakes :) He is so patient and really takes his time and actually listens to me when I describe what I'm experiencing and offers other follow-up testing to determine if it truly is MS related or he offers a possible way to deal with the symptom.
Thank you, Dr. Boster, for all the videos you put out there. I love following your channel.
You are so blessed! I live in Vancouver BC, Canada and our medical system out here is JUNK. The wait times! and good luck trying to find a new or good Dr. My Neurologist is a lovely older lady who keeps me completely out of the loop and when I talk to her once a year over the phone!!! She tells me nothing, just my MRI is fine and she writes me another years worth of prescriptions. I feel so alone in my journey. I know there are really great ones out there like Dr. Booster but they are super hard to find here.
I am just about to relocate from Ontario to NL. My family and home are there. My neurologist retired here. She did these 5 items so hearing being back home might be better
Thank you for this ❤️ I am a patient of one of the best neurologist in my state. But whenever I leave their office, I cry in the car. Not bc I am sad that I have MS but because my doctor has never given me the time to answer my questions or educate me on vitamins, exercises, etc. that could help improve my life. It just feels very much like this is a business meeting and I’m not a priority patient (constantly checking their phone/pager). Thank you for these videos, I feel heard through you and I am always taking notes. You are a blessing to us all ❤️
I am thankful that I found you Sir. My MS takes more damage the last year and the treatment in Germany is there but I see the difference of the knowledge how to handle all the circumstances. Best wishes to you Aaron
❤
Thank God you’re my neurologist and you make none of those IMO.
Rock on 🤘🏻
Treat on ⚕️
Great video
#Sharingiscaring
I read an article recently about a patient suffering with an autoimmune neurological disorder relating to the gut, and so many times the doctors downplayed their symptoms, did not take seriously when the drug prescribed didn't help much or caused serious side effects, and took a very long time to figure out what was really happening. So much suffering that could have been avoided if patient with multiple symptoms and serious drug side effects were taken seriously as you do!
Just diagnosed.. but i got a great neurologist.. discussed everything you mentioned and actually listened. Thankfull for free proffesional healthcare in my country.
I’ve been extremely blessed with my neurologist. She is always on top of the very latest research. She makes recommendations to me for treatment but she is respectful and supportive of my decisions. I trust her.
A neurologist I hired in Kyle Texas to review my MRI stood at our appointment, He reviewed my MRI and said its not MS. In response to my question, what could it be? He stood, Held his hand to his neck and said, I only work from here up, and walked out. I hate your profession
I’ve not taken my Ocrevus since May 2023 because I called my neurologist incompetent because he kept canceling my appointments in November. But don’t worry Dr. B. I’m going back to my Arizona doc to receive care. 😂🤣😂
I’ve learned more about my MS, and what I should expect from my neurologist, in the first three videos of yours that I’ve watched, than I have in the past ten years. I feel like I’ve been failed, but that I also need to take better control of my own health.
Hey Doc! I was wondering if you’d be able to make something on cognitive ability. A lot of people including myself lost intellectual abilities over the years with MS. Retention issues etc. wondering what to do about it. But hard to find much info. If you could cover this it’d be super helpful. Happy new years and thank you for all your amazing work. You’re a hero to us MSers
Thank you Doc for your Godly guidance and genuine concern
Be 🙏 well.
👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻
I love this video adds clarity to how I feel . Diagnosed RRMS july this year asked my nurologist how many lesions I have twice and he won’t tell me just waits not the most he’s seen and certainly not the least very unhelpful, I don’t think he’d be happy if I asked to see my mri scans but I will ask him now for sure Thankyou Dr Boster x
Neurologist asked me if I wanted to see MRI. I said no. The mind/body connection is powerful. For me personally I know it wouldn't do me any good, possibly harm. Still this is just another way of thinking. Everyone has their own opinion and if people want to see scan then yes they should of course be able to see it.
I am 60 have not had a MRI in 3 years,have kidney disease and no ms therapy
I feel it may be to late for most of my symptoms for not not getting treatment sooner 😢
Only 5?
My Neuro kept saying for 5years that she will keep observing me. I don't see her anymore
So THAT'S the problem: Where do you escalate to from Ocravus? One slug of steroids didn't do much to help cover the Crap Gap, and I wasn't interested in going back to Hadassah for another three. So I held out till the treatment on Chanuka, and now I'm STILL suffering unbearable (pun unintended 🐻) MS Hug daily, as well as the jumpy leg. And concerned as to whether this signals possible further damage down the line. Glad that the MRI is stable, but concerned that it's not gonna stay that way if I keep popping pills to shut off the pain! Hope you had a happy Chanuka, I sent the guys with the candles in hope that you'd light for the success of my treatment! Best regards from Jerusalem! 🕎
Since after brain tumour surgery, my MS neurologist decided I only need to come in once a year, and I've been seeing the assistant. Was diagnosed same-day with both brain tumour and MS in 2021.
My neurologist I am not even sure about him and he's also really well known in Canada, world renowned because of his work with MS, but I don't see him, so Inhave no clue. His assistant answers all my questions but alot of my questions do get down played and said well with you we have no clue of it's the MS or the brain tumour damages. I am often lost in what to say, and I do have fatigue and brain fog, but what should I do, get anxiety attacks, which I never thought was even that
I also don't see my brain tumour neurologist who did my surgery (see his residence students) but this I understand as he's doing brain surgeries.
Figuring out how to navigate for myself, is a huge challenge because of both what I have.
So I thank you for your videos as it helps me know what I should be having with my MS side of things.
MS rx 96 so been thru a lot. My neuro is great and works well with my PCP. Symptoms you described may come from MS but not always. This needs to be addressed as well.
I have NEVER seen my MRI Scans (of which I have had many) even though I’ve asked to see them. I was diagnosed in 1997
Thank you!!! I’ve shared your videos to a recent friend who was just diagnosed with MS, given only a course of steroid, can’t walk and pain being managed with dilaudid!!! Admitted for over 2 weeks and only saw neuro twice!!! Oh and doctor reported in his notes that she was safe to go home…so she was denied to go to rehab!!!! It’s truly so disheartening!
I wish you clapped your hands on the intro video on the ‘HEY!’
(Diag Nov 2021) I could never understand why my Neurologist wouldn't show me and desc my MRIs. I did get them mailed to me on a DVD.... Images make no MS sense to me.
Also, When I asked about investigating for brain shrinkage (2 MRIs), he said that only occurs at research facilities... I am out looking for a new neurologist now. Wierd... Younger guy. Thx Dr B
They don't show us the MRI or the report as they say that we wouldn't understand it. Which I think is ridiculous. It just makes 8s feel worse as it's though they are hiding something. I suffer from RRMS and have recently started on Kisempta. Thank you Dr Boster xx
Around 12 years ago, I had an mri to investigate possible MS. The neuro didn't discuss my results at all, and didn't advise me to come back at any stage. Here I am now with the high chance I will be diagnosed. I'm now having difficulty walking as well a long list of other symptoms. I wish I was able to be treated by you. You have utmost compassion for your patients. You truly care and also give 100% care. I'm in Australia 🇦🇺
My neurologist is 4 hrs away so I don’t get to c him as much as I would like to, so your videos are a huge help to me, I’m learning more & more watching your videos. Bless you Dr Boster keep them coming ❤️
Hello, I was diagnosed last July and am currently receiving care from Indian Healthcare and a major hospital (St. John).
I am specialized in ultrasound servicing and repair so I have the flexibility to potentially relocate to where I will receive the best care. I follow your YT channel and have considered it a necessity for navigating this journey during such seemingly mysterious circumstances.
I am really reaching out to possibly gain further information as far as establishing life/care in Ohio. I understand how crucial creating a healthy existence is in regards to improving quality of life and the sporadic climate changes in OK I feel are exacerbating spasticity and just the overall symptoms in general.
I previously lived in Tampa, FL but the heat made it to where I had no energy a lot of the time.
Thank you Dr Boster, awesome video - so informative and empowering! I look through my own MRI. My neurologist only spends a few minutes on it and only if I ask. Love your dragon 🐉 🥚 😁🔥🔥💖🔥🔥
Glad it was helpful!
I feel your preaching to the wrong people. I have had MS for 41 years & am struggling with all of it. A quick office visit, I can't can't even explain how I feel ,it is everywhere inside ,I can still walk but the kind of life I have is not good
Great vid Dr. Boster. Can something be done about anorgasmia?
Great video! In the 9 years I've known about my MS, I have never seen an MRI, I'd just get told everything's stable or not, I thought not being shown the MRI was normal 😮 I have a new neurologist now so maybe that will change.
Feel free to ask to see it and any other questions you have. Take someone with you if you are prone to forget in the moment.
I wish someone would have had these hard conversations with me when I was first diagnosed with MS. Thank you for providing these informational videos.
I like my doctor.,.. but when I finally found an MS specialist and was referred and met him initiallly... he acted as though I already knew everything I needed to know... I told him my symptoms, chronic symptoms... and they try to treat them but ive hit a roadblock... No one really ever explained to me what to expect from the medications (all of them) how the disease would effect my body and daily life... not what to expect years down the road... And im still at a loss. Most of the info I find is online in MS groups and sharing what Im experiencing and if it is indeed an MS symptom OR something else... I live in Central Indiana and I love your videos ... I wish you were my doc! :) Keep up the good work!!
I can't catch a live (thus far) but A) thank you! I "knew" had MS 5 months before I could be diagnosed thanks in part to you and you made that process so much less awful than it was bc it was miserable. B) I'm a public defender in the largest city in state. I am scared a bit of B cell depletes bc of the population of clients I work with. My neurologist rocks but has concerns about Tysabri - sounds to me like she's worried it just isn't convenient and once a month is scary because I have trials regularly and family that is aging out of state. What ate your thoughts about being in a jail regularly in a B cell depleter and Tysabri and fitting it into a busy life. Thank you again!
I feel that as I live in Northern England, we are totally just left to get on with it. Thankfully I learn so much from yourself and exercise specialists to improve my own life ❤️ forever grateful! It is a shame that fhe neurologists and MS nurses at my UK trust aren't great.
Currently in an argument about breastfeeding on Tysabri - have you done a recent video on this at all? I'd be very interested to see! I know that the RVI in Newcastle would allow it, and encourage it, but I've been told it's a definite no no and infusions won't be allowed if I choose to breastfeed, so I'm in a pickle!
Sorry for the waffling hah 🤭
Im new to this, a doctor recommended to my husband and I that I get checked for MS. We live in Florida and r in the middle of moving to northern Florida so we just picked a primary doctor and gave him the letter of recommendation for MS. I have no other health issues besides Fibromyalgia and the typical getting old stuff. Not knowing anything about MS we did some research and noticed that many symptoms/signs are very similar to each other. The big issue in Florida is finding an honest doctor who WILL treat u for what u came for and not a source for just easy cash. Am i right about the similarities between Fibromyalgia and MS? Thank u for what u do and how much u r helping those who need ur help, u r very sincere 💖
i get light headed everytime i walk. j been told its due to ms. 4 years now
I'm 5 and a half months on Ocrevus, and now I am having a new attack. According to my neurologist, it's too early to decide that it isn't working and that I should try it for at least a year. What is your opinion?
Doc, since I was in my twenties I thought I had this. I struggled with a lot I don’t want to go into without paying someone to listen😅. I had a doctor tell me that there is no way to test, another flat out say no (without looking),recently had an MRI and the tech say there are lesions and the neurologist saying there aren’t any. My PC doesn’t know what to do with me. Is it possible none of these people wanted to reveal they have no clue what they are doing and by referring me to someone who does would “make them look bad”. I am being pushed off not pushed along. If i am willing to pay why is it a problem?
During covid i started taking vitamin D finally felt normal
Once in my life! No one will even check my hormones. Maybe if I was a man it’d be different…I dunno…but this is not my field of work and ppl whose field it is isn’t doing any job towards guidance
Thank you Dr B. All too often there is no time made to help with QOL, its a constant battle. Stable MRIs and no relapses is great to know but an MS person needs more treatment and recommendations as you mentioned.
I truly wish most doctors were like more like Dr. Boster.
Thank you ❤
Great video! you actually give us MS patient hope!!
Great video, thanks Dr. Boster.
Thank you Dr B for all of your videos and insights
Love you brother
Thank you for sharing. I look forward to your videos every week.They really help me.
Dr.Boster, as a person with MS I just want to say thank you so much. You are such an advocate for us. Would you ever consider giving away “1on1 talk sessions”? I know you can’t be my neurologist since I live in GA. But it would be wonderful to have a chance to chat with you for 10 minutes and discuss if you think my treatment plan and life changes are the best options. I know you already offer so much of your time and thank you again!
Good morning Dr. B, from Pittsburgh Pa.!
I really don't know what to say to my new doctor...😢
Thank you for this info, Aaron. I do have a great neuro now who seems a lot like you; he’s interested and on the ball. Your video has shown me I can speak up and ask to assistance even though my previous neuro didn’t make me feel entitled to. So relieved to have been assigned to a new neuro. I really like this one
Makes one wonder if MS is the damage and not the root cause of the symptoms. Misdiagnosis of MS is still very high and introduction of pharmaceuticals may mask the true problems.
Great video 😊
Thanks for watching
Thank you, I was dignosed with relapsing remiting MS last week and your videos help so much.
there finally trying to tell if I have ms I have these abnormal hesdachs alot of the day and they found alot of lesions so hoping my new nerolgist starts to handle things but here in LA people work alot slower so its stressful hopefully ill find out more , this is a great channel ❤ ty and happy new years .
Thank you for sharing this invaluable information.
Had to call mine to get follow up this month and ask insurance
I can hear your passion! You must be taking care of a lot of patients that treatment was lacking. I have had MRI's for many years and not one of the neurologist I have been to have ever shown me one.
Thank you! I have seen my brain MRI but it has been a few years. Now, I haven't had a relapse since 2015 so I am not too concerned about seeing the MRI photos as they are not showing any changes. I struggle with the down there, as you call them, and my neurologist nor my urologist seem to be any help. Some day I will find the doctor to help. In the meantime, I keep Poise in business, pay attention to when I need to stop drinking if leaving my house, and just do the best I can.
My neurologist ignored my ongoing symptoms after prescribing DMT. I went back to follow up about ongoing symptoms. She prescribed pain pills but that does not address my specific symptom. I am getting a second opinion because she made all 5 mistakes.
I would say 1-3 have not been followed by my neurologist. She has been really good with 4 and 5. So we’re slowly getting there. Thank you for the advice!
Dr. Boster I have learned sooo much from you! From your tips, ideas and discussions, I require more from my neurologist. Just as he was moving his practice, I came to the realization that he was not the neurologist for me. Good guy, good neurologist, but not right for me. Thank you for all that you do to educate the MS Community
Thank you so much Dr. Boster, you are the absolute best! Following what you mentioned about new attacks under a certain treatment, does the appearance of new lesions in MRI tell doctors that the actual medicine the patient is taking is not working and it needs to be changed? Greetings from Argentina!
Thanks for explaining this. My MS neurologist will always discuss my MRI, showing the images while talking about it. She's always open to Q&A. Whenever I have relapses, she'd go over the MRI with me to discuss whether it is pseudo relapse or a major relapse, taking into account the findings and what I've been doing (maybe too much exercise, etc.). If it's my EDSS increasing with my SPMS as well. We're doing a lot more together and she's giving a break while pregnant so I don't get breakthrough activity from really bad fatigue (she's aware and shared how mine is highly active).
Always for get to "like" until you remind me. Thanks!
I need a different neurologist too btw.
a mistake is something done once ,, but when a 'mistake" is repeated, then it is intentional. why? lol doesn't matter why, because you can only change people when they want to change themselves! this gaslighting mode has crippled healthcare system in canada. good vlog A!
I’m stunned. With the exception of the second item on the list you are the first doctor I have heard or experienced from or with anything you have mentioned in this video. My neurologist does show me my annual MRI at my next appointment with them 3-6 months later. When they do show it they have it on the screen next to the previous one and they compare the two pointing out any changes. No words are spoken about shrinking brains or anything else you just mentioned. I didn’t even know that it is possible for a brain to shrink. I just last week discovered that Gabapentin is known to cause dementia. Until 6 months ago it was one of my main medications. The only reason for the change 6 months ago is that for the past 10 years I have spent most of my time stuck in bed hurting and unable to do much more than go to the bathroom or feed myself. I had a bad attack in June and out of desperation to find a way the change things for myself started to actively do research. I spend most of my days researching now. I am almost positive that there is not a doctor even half as good as you are within a days drive. I’m not really able to move from where I am so I am at a loss for how to find a solution.
Check out Dr Wahl's videos. Have you tried radically altering your diet?
My Nuerologist won’t even prescribe steroids, heck, he didn’t even remember he prescribed me a new MS medication! 🤦🏻♀️🤦🏻♀️
Hey Aaron, thanks for all your amazing content which has been incredible help since my MS diagnosis. Your advice has been invaluable. I wanted to know if you had a view on supplementation with NAD and BPC-157 peptides? I've seen/heard that they can help with MS. Thanks!
You make so much sense. My MRI is normal. So does that mean I don’t have MS even though I have spacitity. How do you know where to have the steroid injection? I have an appointment for one in my neck as I have cervical spondalothisis and straight neck.My chiropractor and neurosurgeon said it hasn’t reached my brain. I am trying to avoid neurosurgery. Doctors just don’t address my problems, they don’t have any answers. I am frustrated.
My Neurologist (the best MS Dr in town!) is very failing on keeping any kind of patient/Dr relationship. 😥
Thank you so much for another informative video. May I ask a question for a future live stream. I have weakness in my left arm which gets much worse in the heat. Would exercises to strengthen the muscles help ? I am guessing its permanent damage and if nerve related that strength training wouldn't work anyway? Thank you so much.
My main concern now is brain shrinkage. I’m trying to understand which medicines are best to prevent that outcome. Ibudilast seems to have great potential, however it is not yet available(as I understand it) so that takes us to Ocrevus I believe. Could you do an updated video dedicated to preventing brain volume loss ? ➡️ 🧠 ⬅️ Thank you!
I have symptoms but so far I haven’t been able to get the appropriate MRI s . Only have order for lumbar and cervical spine w/ no contrast.
And when your locked into a system that won't let you change things up. My neurologist is good but the system I'm in won't approve things he want to do. It seems to work the same for cardiac surgeon he placed a stint in heart 6 months ago. Still no cardiac rehab that was supposed to be complete before vascular bypass and replacement in both legs. Now only weeks from the surgery. General practitioner questioning surgery without rehab prior ,surgeon saying to late could lead to emergency surgery or loss of limb to delay . Same with neurologist he wants cognitive function and memory test done . System says no one available to schedule it with my neurologist office is capable of doing and can schedule, but it's bouncing around the system like a pinball. It gets fun and fearful at the same time sometimes.
My MS neurologist wants me to exercise for fatigue and exercise for cog fog. I mentioned more urinary problems- he thinks that isn’t related to MS cause I have children- although it wasn’t a problem until 6 years after having my last child. I only go there to get my Ocrevus ordered, which I’ve been on since my diagnosis in 2019. 😐
I have secondary progressive MS through the years its been dollar coaster over 20 yr. I've never seen you speak of Cad or MSa I do have lupus srogens a long listen autoimmune desease. Lesions are located in the areas that can cause this CAD. But expirencing many others. I would truly like to hear your thoughts on this issue. Sincerely Dawn.
❤❤❤❤❤Awesome
Sir can u explain about hsct
I’ve asked to see pictures of my brain ever since I was diagnosed with ms one year ago, but my neurologist doesn’t seem interested in showing them to me. Don’t know why. The nurse said it won’t make any difference if I see them. But I’m I would like to see where in my brain those more than 40 lesions are located. I’m thinking that would be valuable information, thinking I would understand myself better regarding my cognitive functions. Because I’m always frustrated and blaming myself for not being enough.
I wish you were my neurologist. Mine's useless.
Question: what do you think about "leaky gut" ?
Any advise how to heal or slow brain shrink and other symptoms via diet? Not the weight loss kind but nutrition kind to heal? I hear some people have healed their MS after being in a wheelchair. I was told I have aggressive MS but currently pretty much in remission, kinda, with Ocrevus. $170,000 a year. We thank God for my husband’s company insurance or I would be incapacitated by now. I must admit, I eat horribly.
Hi Dr. Boster!
Thanks for sharing your knowledge, I like your channel a lot and brings me peace of mind! I am 34 yr male and got diagnosed with RRMS a couple of months ago and had my two infusions with Ocrevus recently. Walking with a cane temporarily.
What is the probability with Ocrevus to develop PML if this is my first time using DMT?
Thank you kindly, Allah bless you
My GP is doing this on Monday I don’t trust many Dr’s and this is out of the blue I have to see endocrinologist as well this started with extreme vision decreased awful migraine headaches only it felt worse and apparently my eyes not working together but working separately I have been rejected by the neurologist before I got this MRI personally if they reject you before your seen I go elsewhere I ask to go to my brothers hospital not sure what endocrinologist will do ?Other than it appears my entire body has gone capote all at once Sodium going up /down Hormones out of whack then in whack I have developed lots of cysts a tremor it’s not Thyroid as far as I know and it’s definitely not Cancer had a PET scan with the contrast the MRI seemed very long I fell asleep in it I thought let’s just sort this I am so exhausted then when I got out I tried stand up to fast and thankfully they caught me but this is one heck of a nightmare especially if you have a child that you don’t want to terrify or them to catch on
I wish that the doctors would have told me that the steroids would ruin every teeth in my mouth and make it impossible for me to eat with my dentures. Because I have a bad pincher grasp. And when I pull my teeth out I puke.
I have learned more about my disease from watching you doing my own research and getting into a Facebook support group then I ever have from my neurologist. I have never seen my MRI my neurologist I only saw her twice in a year and a half after I got diagnosed, I was scared she didn’t listen to me. She didn’t explain anything to me and I have to see her in March because I can’t find another neurologist because she will not release me as a patient. I apologize I do not like this woman at all