First Effective Treatment for Long Covid | Stunning Data from Huge New Study
ฝัง
- เผยแพร่เมื่อ 24 พ.ค. 2024
- The long tail of Covid-19 has left hundreds of thousands suffering numerous and debilitating symptoms.
In this film I break down the results from my most recent study of 812 long haulers, on the efficacy of diet, supplements and medication in treating the condition and their effects on each of the symptoms.
Is there now a statistically proven regimen of treatment for the condition? Yes, I believe there is.
Huge thanks to Dr Tina Peers and Dr Ade Wentzel without whom none of this would have been possible.
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The Long Covid Handbook (Oct 2022), by Gez Medinger and Professor Danny Altmann and published by Penguin Books is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition since early 2020, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. The Long Covid Handbook is available from the following links:
US: a.co/d/0gvkJCU
UK: amzn.eu/d/9KjurGb
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IMPORTANT: It is ESSENTIAL to talk to your doctor before taking any supplements that you have not taken before, or begin taking them at a larger dose. This regimen is NOT appropriate for children so they should speak to their doctor before taking any of these.
Nicotinic acid / Niacin also has several strong counter-indications, they can be seen here:
www.nice.org.uk/donotdo/do-no...
en.wikipedia.org/wiki/Niacin
I have to be clear and say that I am not a doctor, nor am I personally advocating you take Niacin or any other supplement or medication mentioned in this film. This is a decision you must make yourself with the consultation of your GP if you have any concerns at all.
So, all that said - here is what I am currently taking.
Niacin: I started at a low dose (10-20mg)/ be careful of flushing
Selenium: 100mcg / day
Zinc: 15-30mg / day
Quercetin: 500mg 3x / day
Vitamin C: 500-1000mg 3x / day
Vitamin D: 3-5000iu / day
0:00 Introduction
0:49 The Treatment Plans
2:21 The Study
4:45 Treatment Efficacy
12:11 T and P Numbers
13:05 The Statistical Breakdown
16:36 Conclusion
Wondering who I am and why I'm making these films? I discuss it here:
• Beware Bad Science Wit...
REFERENCES:
MCAS and Long Covid - Dr Tina Peers:
static1.squarespace.com/stati...
Miller, Wentzel & Richards - NAD+ deficiency and Covid 19
www.ncbi.nlm.nih.gov/pmc/arti...
Nikita Alexandrov, NAD+ deficiency
/ the-team-of-front-line... - วิทยาศาสตร์และเทคโนโลยี
![[LIVE] : ONE ลุมพินี 64 วันนี้!! คู่เอก "พาร์แฮม vs จอร์แดน"](http://i.ytimg.com/vi/yg2mS5U2aB8/mqdefault.jpg)
I wouldn’t be getting better if I had never found your page. I had no clue where to start and you turned out to be my best friend throughout, including nutritionist and doctors. I just wanted to say that I’m so grateful, thank you. X
Thank you Joanna! Hope your recovery continues :)
Please guide me what was your treatment
dont rule out the placebo effect --- none of this video is upheld by peer reviewed papers, agreed protocol, etc
@@shobadb7578I did the stack of supplements thoroughly with Niacin and antihistamines. I tried the antihistamine diet but I was less good at that. Also, just letting my body rest and understanding it was part of the process was important for me because I used to fight it and be exhausted all the time and frustrated with myself. After a while resting usually I would swim in the sea all year so I stopped doing that and started walking with a free step counter on my phone. I started in the hundreds of steps and would get muscle aches but after some weeks, maybe months I could see a trend forward and now I can do ten thousand. Really thought it was just a way to be less defeated and outside for a little while plus it helped me with pacing because it isn’t how I operate usually and that was hard. I also did a little meditation app for ten minutes a day and it helped with my mood and breathing. Three years ago I felt like I would never get better honestly with pericarditis, a chest rattle, brain fog and lupus and a stinking headache but from watching the videos on this channel gave me a place to start, which helped me stay calm, give myself permission to slow down, trust the process, take notes and after a few slow months you realise you have moved forward, then you just have to keep going. That’s the very best way I can explain it and honestly I am hoping it works out for you! Best… Joanna X
@@user-sq9td8nu9iThat’s really the problem though because there is no agreed protocol yet and it’s hard to carry on with no end in sight and it’s comforting to find out what might have worked for other people because I felt like giving up and spending the rest of my life in bed and I needed a place to start. Also you can’t underestimate the incredibly high quality of guests, scientists and clinicians, if you need advice from somewhere, that wouldn’t be a bad place to start. Unusually with health advice on line, nobody is trying to sell you anything, which is honourable. You are right in that no definitive trials exist and it may have been a placebo but I’m still glad I did it.
Today I cried. After watching the last video, I have started taking Niacin and slowly increasing it. I was already taking some of the other supplements suggested. I also have cut out green tea as I was drinking a lot of it (trying to counter inflammation) and started taking a normal dose of antihistamine. Now 9 months into this journey, at last something has changed. I feel different. Today I walked far, far further than I have done since March (I could only manage a few hundred yards before) and the leg pains and muscle aches haven’t come on. This is truly amazing. After months of being dismissed by my GP and now on a waiting list for a LongCovid clinic, I am so grateful for the research you’ve done and shared. You really are onto something here and I can’t thank you enough!
So happy to hear this Al!
That’s so awesome!! Quick note on the tea front - if you crave a hot beverage try peppermint tea (check ingredients for no green or black teas.) Also fresh ginger root chop up about a cm roughly then place in boiling water reduce and simmer for 5 mins. Spicy hot drink and ginger helps to combat histamine. I add a bit of vanilla essence to round it out a bit :-)
@@gaelmclaughlin767 Strangely I have noticed that black tea is very helpful for me. Clears my head up quickly. The only theory I have on that is its the quercetin. I'm taking quercetin but it may have better uptake in the tea
Heck yeah, brother! Keep on keeping’ on!
@@philweaver457 ah ok..yes tea experiments are taking place. It all seems so individual. I have a relative who had horrendous histamine intolerance for several years and he noted that many of my symptoms with long covid were very much like that and it seems from all we’ve learned here that the histamine connection is very significant. I have started to add the probiotic he takes which has basically reversed the condition (although he still takes care around certain foods and alcohol as he has learned his personal limits.) It’s all so interesting.I was already investigating MCAS / low histamine diets in relation to hypermobility as it plays a big role in that condition too. And this very potentially predisposed me to end up with long covid also. Connections everywhere...
A month ago I was in the hospital unable to walk, and a week ago I was so sick I was in bed for 20 hrs a day. Started the supplement stack a week ago and today I am at 95 percent, huge recovery (250 mg Niacin, only amount I could find). Prayed like a scene from stained glass. 33 yrs old; Covid in early October.
Amazing to hear that Justin
@@RUNDMC1 Thank you so much for this channel. Who knows how I would feel today without it.
That's great that you are feeling so much better!
@@scripturethroughancienteye1509 what type of niacin did you use niacin inositol hexanicotinate flush free?
@@rodrigovega9193 250 mg time released Niacin from Nature's Bounty. The ingredients label simply says Niacin. Also note that the time-released version is not what Gez and friends recommend.
No one else has answers, so right now you are the leading expert in my book. I hope you’re proven right in time. Thanks for your diligence chasing down help and sharing it!
Thank you Daniel!
long covid is a leaky gut syndrome. A doctor in pakistan is treating people long covid by prescribing them proton pump inhobitor like pantaprazole, eatung honey and yougurt in morning, eating raw onion and garlic with rice veggies, avoiding gluten, sugar, fast food, using olive oil etc. And people are healing in about 1 month of doing this
@@truthseeker6688 Could you please kindly tell me the name of doctor and all other particulars, please?
I'm sure you would have never guessed your life would take the odd turn that it has in 2020. Yet, I'm almost certain that whatever you _would have been doing_ is not nearly as important as what you _are_ doing now.
I've never had Covid-19, but I've watched all your videos, and it is clear to me that you are performing a great service to those who suffer, and you are a source of reliable, level-headed information (good or bad!).
Honestly, no - you’re quite right. I would never have guessed this. In February this year I was in LA chasing my movie career. Now I’m trying to recover from chronic illness and working most frequently as a medical researcher.
2020 has been mad! Thanks for your support on this journey :)
I agree and I’m grateful for him and his videos 💕💕
@@RUNDMC1 Is it my imagination, or are you looking much stronger? Your energy also seems more vital and powerful.
Grover Martin haha, well I just had a massive relapse yesterday so whatever it was was short lived!
@@RUNDMC1 Oh, curses! Foiled again! Sorry to hear that. Good to know you CAN build up to that dynamic level, at least. Hard to figure out how much energy is available once you do start improving... Back we go.
I've been waiting all week long for this video! I can't wait, so excited!
This guy is ray of hope
Thanks Santosh :)
Yes he is!
Agreed.
He sure is, so grateful for his research and videos! 💕
His findings have been a huge discovery for me, and have helped me find a solution to an almost immediate result.
Thank you so much Gez for all your hard work to find answers for us, the videos are all very comforting and offer hope (something which does not come from the majority of health authorities around the world), keep up the good work we need you!
Thanks Caroline!
Thank you for all of your work and excellent videos, Gez. As a long hauler myself, I can't imagine how you have the energy to put these together! Wishing you a very merry Christmas - here's to a better 2021 for everyone.
Grand comment!!!
Me either! Omg!
Tremendous news! Your persistence and determination has paid off. You are helping so many people, thank you!
Thanks Catherine!
Well done, yet again, Gez.
I completed your survey as one of the supplements group and had seen some good improvements. I added Niacin 4 days ago and it has already made a significant difference to my energy levels.
Thanks for all of your efforts and I hope you're also improving!
Thanks Michelle! Yes I am improving but it’s steady rather than wondrous :)
How comes it helps people do quick . I thought because it tacks 6 months to make new mask cells .
I just came across your channel and what a blessing. I had a very light case of Covid and I’ve been dealing with long Covid for 6 months. In all I’ve seen or read your videos have given me hope and understanding about what I’m going through. I’m going to start the supplement regimen and the diet restrictions and hope they work. Thank you for your work in making all this information available.
It’s a pleasure - best of luck with your recovery Joanne!
Have you had dizziness and vagus nerve irritation - a feeling of your heart racing throughout your body?
Good work! You have every right to feel proud of yourself.
Thank you Debra :)
Thanks so much for all your hard work Gez. You deserve a wonderful Christmas 🎄
Thank you Mira!
Thank you again for all of your hard work, hope you have a merry Christmas!
You too Colin!
I’m really impressed by this. No questions this round for me, only a big thank you!
Cheers Ruud!
God bless you!! You are am angel! You gave us the most wonderful news for Christmas! We cannot be grateful enough for sharing your findings! We are happy to see you're looking better and we hope all be better soon, because of your findings! Thank you very much!
Every Long Haulers best Christmas present!
You've certainly been very busy compiling, collating and crunching data to produce very convincing but a ' bit dirty' ( l love it!) empirical research findings. Excellent work to the benefit of so many .......hopefully , that includes some big improvements in your own health in the near future. Cx
Thank you Carol! :)
@@RUNDMC1 how are you doing now
Thank you so much for your work and your tenacity approaching this subject. You are helping many people. Respect!
Thank you Carlos!
Thank you for all your amazing work, battling through long covid fatigue to deliver your amazing videos to us, fellow sufferers. Merry Christmas and let's hope for a better 2021 :)
It’s a pleasure, thanks Edyta!
Hi how are you doing now?
Happy christmas to you too, thanks for all you do
Thanks Alp!
You’re amazing. Thank you for the work you’re doing. I started “the stack” a couple weeks ago, and things are improving (though it hasn’t “cured” me.) It definitely feels like symptoms are reduced in frequency and severity.
Same experience I’m having with it
so glad to hear your better! I just started the stack 4 days ago and I felt really good on day 1 and 2 and yesterday and today I feel almost like I have flu like symptoms. Was this your experience in the beginning? Was there a worsening of symptoms as the immune system came back online?
@@ryanlarsen8083 It's taken time. I can definitely say things are improving, but it's slow. There are "fits and starts." I still have bad days. But the frequency and severity are slowly going down. I use a mobile app called Bearable to journal my symptoms every day. It tallies them up into a daily "symptom score" that I track over time. It looks like a roller coaster! But the humps are shrinking over time. I'm guessing it'll be weeks or months before I reach a level of things being truly managed.
@@bellaa5576 I was getting better until about March, then my symptoms began rising again. :-\
@@sluggobear this could have to do with re-infection or spike protein shedding. Are you surrounded by people at all times?
WELL DONE!!! Came back and took pics of all the charts. Thank you so much! From North Carolina, USA. KEEP GOING!!!
Thanks Kelly!
Thanks for putting these together dude, very much appreciated
Thanks Merrick!
Thank you for all your great videos this year they do give hope 😎
Thanks David!
Agreed!
Thank you so much for this!! Happy Christmas indeed! 🎄
Thank you, and happy Christmas to you to Joanna!
Thanks again for this update Gez -finally seems there's a light at the end of the tunnel that's actually backed up by the science 😊
Wishing you & yours a very Merry Christmas & all the health & happiness in 2021! 🥳
Thanks Laura, best wishes to you too!
Happy Christmas, Gez, and a big cyber-hug of thanks for your amazing work! XOX
No worries, Happy Christmas to you too! X
Brilliant video, I love a bit of Minitab!! Really encouraging results. Merry Christmas! 🎄
Cheers Tim!
Thanks as ever Gez. Have a nice Xmas and New Year. Heres to ongoing recovery
Same to you Edward!
Same to you Edward!
Amen!🎄
Wonderful analysis. Keep up the great job.
Thank you!
Thank you Gezza. Amazing work.
Thanks Cass! No-ones called me Gezza in years 🤣
I don't have long covid, but I appreciate your practical and scientifical efforts to battle this disease. Thanks mate!
Thanks!
I've been advocating the MCAS/low histamine theory since early summer when I noticed a GP mentioned it in a Long Haul support group. But just a low histamine/anti-inflammatory diet plus supplements and antihistamine only curbed symptoms. I started the flushing version of niacin (along with my long hauler teen soon doing the same) two weeks ago - I think I am seeing improvements in both of us but esp in fatigue. I would LOVE to see a follow-up study even in 6 weeks for those of us who have been doing this since the NAD video came out.
Hi Jeannie. You’re in luck - that’s exactly what I’m proposing to do! Really happy to hear you’re doing a bit better too 😊
This lady in my long haul group and another from Instagram both recovered even tho they mentioned they're vitamin intake were different but both took NiacinB3 and both mentioned they recovered within 4-5 months. But rest and pacing and eating healthy was part of the recovery as well. 5 months later and they haven't had relapse.
So we should use the regular NAC not the No flush?
@@browneyedgirlFL67 no flush version will not help like the flush version.
Good News! Awesome Work as Usual... Thanks Very Much Once Again! Happy Christmas!
Good stuff Wolf Prods!
Thank you so much for all your research on this. I've another appointment with my GP tomorrow but not holding out a lot of hope in being taken seriously.
I really hope people put the same resources and energy into helping us long haulers who never recovered after contracting a tick Bourne illness...
6 days of the stack and feeling 90% there! Just waiting a while until I feel confident enough for a workout. Lifesaver Gez, merry christmas!
How much niacin per day and which were your symptoms?
@@frankttom4990 i went straight in at 500mg, just out of sheer ignorance! Had flushing for the first 2 days and grand since. Main symptoms are Fatigue, Brain fog and Muscle aches. The Fatigue is almost unnoticeable the last 2 days, the brain fog seems to be there in the morning and after large meals, so looking at adding an antihistamine for that.
Punchy dose that Chris! It’s worth coming down a bit if you can, you might put a touch of load on your liver processing it all over a long timeframe.
And take your time before doing that workout too! 🤣
@@RUNDMC1 i blame Holland & Barretts for only stocking 500mg 😁 will grab a lower dose! Interestingly, I used Tryptophan last year to help with a bout of Anxiety (successfully so), so am interested how Niacin interacts with that side too! Thanks again Gez, will spread the word here in Ireland!
@@chrisrea-thehappyfecker6205 You have the same symptoms as I do. I’m just about 3 months in. How long into your journey are you?
Genius. God bless you so much, Gez!!!!
Thanks Daniel!
Thanks for giving us these great early-christmas presents Gez!🌲 Keep up the good work and Happy Christmas ✌
Thanks Riccardo!
Aw heck yeah, Dr. Rambo is back with some hard facts! 🤘😁🤘
Haha!! Closer to Rambo than the Doctor though, doncha know 💪🤣
Thank you very much for your research. I had tried many other protocols before. This is the one with the best results so far. I’m only 5 days on it, and feel recovered after 9 months of long covid. Thank you.
Fantastic to hear 👍
Thank you Kadu...I have hope now!
so glad to hear your better! I just started the stack 4 days ago and I felt really good on day 1 and 2 and yesterday and today I feel almost like I have flu like symptoms. Was this your experience in the beginning? Was there a worsening of symptoms as the immune system came back online?
Its been 7 months since your comment. I would like to know what happened when you came off the drugs. Did your symptoms return ?
@@CaLDwELLGoD I thought I was cured. Stopped all drugs. Then on August I restarted my keto diet. For some reason I fell ill again. Maybe my immunity fell because of the lack of carbs and I caught a cold. I had to restart the whole protocol with all drugs, supplements and pacing. Now I'm 70% recovered. Anyway, I'll have to adapt my life around covid. At least I know I will be 100% functional. But the diet changes, and the immunity care are forever.
It is a blessing and sadness that we with LC have to find out information and self treatment through multiple TH-cam Channels and research that our Drs simply aren't doing
Its M.E. / CFIDS --- millions have it world-wide
You are looking much better yourself @run-dmc, That has to count for something. Thank you again for what you are doing.
Cheers Phil!
If i listened to my GP i would be dead by now.
Same, here! We MUST research and advocate for ourselves.
I'm on month 5. I've just ordered niacin. I already take the other vitamins. Going to be strict with diet. But there's no way I can get any meds from the dismissive doctors. So I'm taking over the counter antihistamines...
@@metanoiabooks3729 Are you taking ascorbic acid to bowel tolerance and including melatonin at night? This is foundational and should pair most helpfully with the niacin. Healing blessings to you!
Me too since they don’t believe in long covid
yup exactly
I started on The Niacin 5 days ago after watching your videos. I'm taking about 300mg a day, half a tablet at a time through the day and really starting to feel so much better. I'm still tired but I feel like a normal person again. All the inflammation pains internally are fading away, for the first time since it went bad in April. Thank you SO much!! I see light at the end of the tunnel!
Great news Wendy!
How are you feeling now Wendy?
@@ryanlarsen8083 Hiya, much better thanks! That is 2 weeks of taking the Niacin, and taking the vitamin D etc most days. I haven't managed to follow the low histamine diet much but even with all that the results are good. I haven't had any internal pain (kidneys etc) except very mild once, it used to be constant. I have slept massively but it feels like my body is taking time out and healing itself. Totally helped by these videos!!!!!
Hi Wendy! Did you take the flush or no flush Niacine?
Hi has your fatigue improved?
Thanks for the update. Good job
Thank you Peter!
So this plan basically mirrors what I have been doing since the late 90s to manage by CFS following Epstein Barr in the early 90s. Diet is crucial, and I found also that the diet should be low sugar and carb. The low Fodmap diet normally used for IBS is a decent ready made diet but it is hard to stick to. Also supplements made a huge difference and over the years, through trial one error, I came broadly to this group of supplements. I should mention my early symptoms mirrored those of Long Covid.
I have cfs and my diet is clean but I still battle fatigue pain and gut issues. What diet plan do you follow?
This works! I'm back to normal in every way. Gone is the muscle pain, leg pain, and symptoms that come and go.
A long hauler COVID-19 survivor, removing histamine triggering foods and beverages from my diet. It took anaphylaxis, an extremely severe allergic reaction, where the immune system releases histamine, basophils, mast cells, and other substances. The excessive reaction of the immune system to an allergen causes tightening of airways and difficulty breathing. Niacin 500mg (w/ 2 aspirins), Benadryl, Quercitine, Selenium, Zinc, Vitamins C and D3, NAC 1200 mg taken daily.
Did you use niacin inositol hexanicotinate flush free ?
Well done...you give us all hope!❤❤❤❤❤❤❤❤❤❤❤
Did you suffer from SOB yourself?
Why w/ 2 asprins? Thank you...I found that a baby asprin a day (82mg) helped me breath. Just wondering why the asprin and if you have any feedback on this. Thanks
Was the NAC 1200 mg prescribed?
Great to see a new video Gez! Hope you're doing well! I was wondering if you could perhaps do a video on diabetes and (long) covid? I'm pre-diabetic, and I've noticed my blood sugar levels have seemingly become way more sensitive since getting covid, especially after eating. Not sure if that's also due to increased water intake. Anyway, if you have the time. Thanks.
Hey Michael, I don’t know very much about diabetes and long covid, nor is there much data on it (yet!) but if I find some I’ll look into it!
I was pre-diabetic about 3 years ago and switched to ketogenic diet for a bit more than a year. Blood-sugar levels were always fine after some time. I lost some weight, but not much. After that i switched back to normal healthy diet without sugar and fastfood, a bit exercise and everything stayed fine.
I changed back to kegogenic diet for long-covid which helped with my brain fog but not really with other symptoms.
Switch your diet, do not become a full diabetic!
Have a nice day e1.
I have Type 1 diabetes and have had a trickier time keeping my blood sugars normal since catching covid. Normally I'm very insulin sensitive, but less so over the past months.
@@earlhickey1557 yea, I'm in the process of switching to a keto/mediterranean diet.
See drbeenmedical’s recent video on diabetes after COVID‼️ I hope it is helpful🙏🏻
I hope you see this QUESTION: What do you know about reinfections among long haulers?
Lots of self-reported ‘reinfections’ amongst long haulers but no hard data on this yet. My own personal feeling is that most cases are a flare of the original infection.
@@RUNDMC1 I hope you're right. I have had two episodes of more intense chill and low fever after a have had covid Those two episodes were very mild and even milder than covid itself. I think I had the last one in July.
As a long hauler I could listen to this 8 hours straight
You over estimate my ability to be interesting!
@@RUNDMC1 Sorry but Frank is right! Well done!
The findings you have done @RUN_DMC have had a huge effect on my recovery. I really really want to thank you for that. After 3-4 weeks of taking these vitamins and the antihistamines I have been feeling so much better, it is hard to see that anything else has made this drastic effect. 9 months of despair and a complete collapse in September where both my brain and body was out of order. During the last 3 weeks I now have significantly less brain fog and I can actually do a 15 minute bike exercise at 60% of my healthy level. This is huge - previously I could slowly walk max 10 min and still get symptoms. This improvement is much different than the normal fluctuations of long covid. Thank you so much for the last series of videos about MCAS and Niacin. Also for your previous videos describing long covid and latest research!
So glad to hear this Micke! Keep taking it easy though - it can take a while before exercise intolerance is totally conquered :)
How long before you saw a difference. I’ve been taking it nearly two weeks seemed better in the beginning .
@@tessgirl383 I didn't see a huge change from one day to the next, but over time I seem to have more energy and less severe symptoms. I started in the beginning of December an I have been able to increase my biking from 3 km to a 7 km mtb ride. Still taking it slow, I don't work and I rest mid day. Brain fog seems more connected to how much TV I watch.
@@vinnaren2086 yes I got screen sensitive. No brain fog or joint & muscle pain . It’s the fatigue I can’t stand . I was quite well in September but over did it & had stress . Then got the new strain nov . I’m so down I’m praying this works . The thing is on jan 1st I felt amazing! I stated on 24th December . Then it’s kinda not so great . My HR is better . I’ve up my niacin 400mg . Others said that helped them better . Maybe I just need longer
@@tessgirl383 Sorry to hear you are worse. I really hope it gets better soon. I did not have fatigue for the last 3 months (fatigue=bedridden). I was fatigued all august and got better through september and oktober. I just rested and did nothing (no tv, no books no phone). Very boring but it helped a lot. Since then I have increased my cocoon by trying out new activities, this slowly got me to where I am now. Now I am almost back to normal so I can start working 2 hours per day from next week. Niacin helped and speeded up this progress, but I think the mindset and strategy lay the foundation. You probably already know this. We get better, its just so slow
9 months in. I have been taking these combination vitamins for a month, my SOB has gone, and energy level have improved greatly! It worked for me!
Great to hear it!
Are you only taking the vitamins or are you also taking a prescription medicine?
Help us! Because my SOB doesn't want to leave
@@orvimali6024 Have you been taking niacin?
@@healing-vibe-tribe I just bought it today, I will try it with the rest of the supplements and I will let you know what happens.
Really super data. Fascinating to see the difference that niacin makes with our without other concomitant changes. Liking the t-tests as well :). If it can start to make people better, it has to be worth trying!
Very much so!
Hi did you end you end up trying niacin after all?
This is really great and encouraging news!!! Thanks a bunch for putting all this together, being a long hauler myself (got covid mid march), it gives me hope! Without knowing ive been doing somewhat of a similar protocol w/o niacin (supplements and low histamine diet) and seen my symptoms improve a lot (still have peripheral nerve inflammation which can be very uncomfortable at a times) but recently ive added ivermectin (similar to the math+ protocol prophylaxis) and experienced another step towards recovery!! I’ll be talking with my GP about Niacin and an overall review of my supplement stack to see if another step can be achieved! Again, much thanks for this video and merry christmas as well!!!
P.D. I have to add, that i have been able to do 3k and 5k run from a couple of months now and in my case has helped tremendously, obviously taking care of supplementation + correct diet
Fantastic to hear Luis!
Luis Valeiron, what dose of Ivermectin do you take and for how long?
@@frankttom4990 ive been doing the 0.2 mg per kg of body weight once a month, started with a dose day 1, another day 3 then monthly (same dose).
@@RUNDMC1 thank you! Also, you can review the work being done by Dr. Bruce Patterson and Dr. Yo from IncellDx which have even come up with a long hauler index and are undergoing trials of treatment with good results so far! The best is yet to come :)
@@lvaleiron I heard that ivermectine should be taken with doxycicline..
Very interesting. I have introduced this into my daily supplement intake. What is different is the Niacin and the antihistamine. I do feel better but I have been getting better for the last 5 months. First 5 were a living hell . Thanks again for taking the time to support us!
Good to hear that Andrew :)
Hi how are you doing now?
@@vl2663 Hi, about 98% back to base. I had a 4 week relapse in January which scared me however from then things have been pretty good.
Hi, doing ok but still not right. It changes from day to day. Some days I I feel 95% back to base and some around 90%.
I got my Vacation today after weeks of personal debate and I have felt eurphoric all day, about 105% of base. I hope I fall into the 50 odd percent of people who get better from the vaccine. Best way to sum it up is I have learnt to live with this disease, a bit like breaking a leg and living with a limp for the rest of your life. I am glad to be here and glad to be alive so if it's 95%, so be it. Take care
@@andrewbennett8510 how are you feeling now? and did you get a second shot of the vaccine? im a bit unsure, didnt have a reaction with the first shot two months ago but i dont want a long covid releapse
This is totally, totally legit. Thank you Gez!
I'm 9 months from acute illness. I felt better about 2-3 months after getting sick and started working out again (cycling/running). After working out for a few weeks I just kept feeling worse and worse. This trend continued until pretty much any level of activity left me utterly fatigued with awful post exertional malaise. It was difficult to get out of bed some mornings.
I started a low(er) histamine diet about 3-4 weeks ago (not exceedingly strict but with a focus on avoiding the worst foods and eating minimal amounts of medium histamine foods). I maybe felt a little better but it wasn't a massive improvement. I think it helped most with my intermittent nausea. I added in the supplement regime about 2.5 weeks ago. I was a little skeptical after trying so many things for so many months but WOW. I am SHOCKED at how much difference it's made. I've had a steady marked improvement over the last couple weeks. There's been a massive improvement in the fatigue issue. Shortness of breath and headaches have improved or disappeared entirely. I've tried light cycling a couple times with very promising results.
I would add limiting or avoiding sugar seems to have an additional impact as well as intermittent fasting. I think there is a blood sugar component to this whole thing for me even though I'm in decent shape and have had no issues in the past. One odd thing I've noticed... I seem to be craving salt since starting this regimen. Anyone else notice that?
So glad to hear it’s making a difference for you Mike!
Yes. Salt craving here too. Potato chips f.e.
Mike, happen to know your A1C, before and after covid? SO glad for your heading a good direction now!
so glad to hear your better! I just started the stack 4 days ago and I felt really good on day 1 and 2 and yesterday and today I feel almost like I have flu like symptoms. Was this your experience in the beginning? Was there a worsening of symptoms as the immune system came back online?
@@healing-vibe-tribe Ann, I do not but good question. I think that would be a useful test to get. I'll see what my GP says.
Great video and very informative. I've been having acid reflux for 11 months now post covid. Gp wouldn't put me on a h2 blocker amd ppi's have had no impact. But low histamine has had a slight effect. Maybe I should try the works although I'm not sure if this is related to the more typical long haul symptoms like fatigue.
Thank you SO MUCH for your amazing work!!!!
Thanks so much for all the valuable work you are doing! What kind of antihistamines should I ask for? Are they all the same?
Fexofenadine is most commonly prescribed - for the OTC options you’ll need to try a few and see which works best for you
Wishing you a Happy Christmas, Dez. Thanks for gathering all of this info on our behalf, I agree that this method works (I have seen the most improvement in kidney function after dropping animal proteins, etc) & also take some herbs to inhibit virus replication. No more co infections bothering me or strange allergy symptoms, however it's a bit more challenging to get brain function (like memory) back on track, still need some improvement there. Thanks again & have a beautiful holiday!
Thank you Victoria! Best of luck with your recovery.
At the 3-month mark since getting COVID (May 2022), which wiped me out. I started taking Niacin 2 weeks ago, and already feel a difference! Had more energy to repaint my place, although I took it easy. I'm even able to eat fermented foods and gluten again (even coffee)! I've always been allergic to cats, but noticed taking a basic anti-histamine (loradatine, the drugstore equivalent of Claratadine) made my post-COVID symptoms (headache, pounding head & heart) disappear within a few HOURS! Been watching Gez's videos ever since. Thanks a MILLION to you Gez, I'm slowly but surely getting my life back!🙏 Much love from Vancouver, BC.
What dose of Niacin do you take?
@@jrman413 when I started, it was 25mg three times a day. Any more than that caused a flush. I slowly built it up to 50mg, 3x/day. Make sure it's the "flushing" kind or it'll be a wasted effort. The pills come as 100mg so I had to cut them into quarters.
@@PriscillaThen I see, thanks. Did you take it with food?
Thanks a lot Gez! Niacin has been a life saver. It didn’t help with heart rate issues yet but definitely made a difference with fatigue. For the first time in 9 months I felt alive. Fatigue was one of the worse symptoms. I couldn’t even do more than single chore without feeling like dying. Now I don’t have Pem relapses post chores as I did earlier. Will add exercise to my regime and see if I get Pem.
Smita Kamath, do you take the niacin with food or with empty stomach?
Be very careful with the exercise - it’s going to take a while before you can manage what you could before.
Doesn’t matter in terms of efficacy - only in terms of managing flush (after food better for that)
@@frankttom4990 I feel horrible flush effects if I take niacin on an empty stomach. I am supplementing only after a meal and it is quite effective. It’s a win win situation for me.
@@RUNDMC1 I agree. You have been such a helpful source of information through this shitty illness. If you ever come to the Usa I’ll buy you beer! Hope you are recovering too. Cheers!
“Quick and dirty times.” XGreat quote.
If only they were quicker.
Great data! And agreed. I’m doing the works since 14 December and I feel so much better. Have been on my knees with covid / long covid since May. Thank you - you, Dr Peers and the NAD+ guys are bloomin’ heroes!!
Great to hear it Gael!
Sorry for this silly question but I am new on this channel. What is it NAD? Google gave me only the name Nadia.
@@elenalepotova6623 it is a concept set out in the two videos on the biology of long covid on this channel
@@gaelmclaughlin767 Thanks for your answer. I will start watching all the video.
@@elenalepotova6623 the underlying article is this one link.medium.com/kaAXpjOMwcb which tells the whole story of all the research. It also details the stack of supplements to use. I hope this helps there is a lot to take in but it’s worth it. And the main thing is to understand the niacin use. :-) the rest of the science I admit is rather over my head!
Truly appreciate your work, time and dedication...you've been a help to so many. Just began recently on the works. I've been so sensitive to foods lately, that I started out on 5mg of Niacin and felt the flushing but also slight numbness in throat. Other stack supplements are good. Is there any benefit whatsoever taking the other forms of niacin?
Yes there is some, but nicotinic acid deals with a particular metabolic imbalance that’s often seen with LC
@@RUNDMC1 Ok, thanks.
Nutritional yeast! It's cheap and has a huge %per tbsp.
@@Nicoclimbs Thanks!
Put a red hat on Gez and I'll call you Santa this Christmas. Thanks for all your hard work this year.
Haha, thank you!
long covid is a leaky gut syndrome. A doctor in pakistan is treating people long covid by prescribing them proton pump inhobitor like pantaprazole, eatung honey and yougurt in morning, eating raw onion and garlic with rice veggies, avoiding gluten, sugar, fast food, using olive oil etc. And people are healing in about 1 month of doing this
Your work is so important! It's helped me tremendously, thank you so much! I'm on a lot of different supplements, some of which I worked out myself, some of which (the niacin in particular) was guided by you. Last night there were several moments where I forgot I was in recovery and felt normal again. I still have some issues like fatigue and shortness of breath upon exertion, but I am much improved.
Whilst I can't say that I was a long hauler per se, it's been nearly 8 weeks since I had covid and my symptoms after recovery were getting much worse. I truly believe that if I hadn't started searching for answers, I would still be ill. It wasn't until I changed my diet and started supplements that I began to see improvements. Maybe it was just a coincidence? Maybe. However, if I have an inflammatory meal, like a takeaway for example, my nerve pain and chest pains return along with the worsening of other symptoms. I've tried eating highly unhealthy food 5 times (all for experimental reasons of course lol!) and each time it's the same result. I don't think this can be chalked up to a coincidence.
How are doing now? What diet did you follow and where can I find it?
@@doritad3637 Hi, I am completely better thanks for asking. I was scared for a while because I was just getting worse and thought I might be semi bed ridden forever! I followed Dr Brooke Goldners protocol. It's simple and her info is all available for free, she isn't selling anything. Her protocol works for all sorts of conditions because it targets inflammation and encourages cells to repair themselves. Look her up, listen to her story and all the testimonies on her site and around the internet. I also have an auto immune condition which is currently in remission for the first time ever! I believe her protocol is also responsible for this.
I didn't completely cut out processed foods because I was too ill to stand and cook in the beginning, but I did the smoothies every day without fail. If you don't have a high speed blender then chia seeds are more bioavailable. Flax seeds need to be ground to be absorbed, but don't buy pre ground as their properties diminish fast. If you look her up, this will make sense to you. I truly believe this woman saved me! Please comment back if you have any questions you can't find the answer for and I'll answer if I know! Good luck!
@@doritad3637 I'm just replying again as I know youtube can selective about alerting you to replies. Thought I'd double your chances!
Can you do a small video on the Niacin flush and your personal experience with it? Did you get flushing? Was it uncomfortable? Did you get shortness of breath or feeling like your throat is closing in? Or does the flush only involve the skin? It might make it less scary for first timers 🤔 More importantly I hope you are feeling much better now! 😊
Finally someone who understands thank you x
It’s a pleasure Holly
Hi Gez, thanks again for all your work. I commented on the NAD+ video with what I found about non-flush niacine: that it isn’t bioavailable so it makes no sense to take it. It probably affects the results of this analysis in a positive way for nicotinic acid! And also, when people remember what they took (and wanting to share) it you also can get an idea of a possible placebo effect…
I took multivitamin. I also ate more garlic powder, and italion herbs-spices such as in delicious tomato soup. Supplements are needed because of the depletion of the reserves of nutrients in the body trying to repair itself. Stress also depletes vitamins. Many have gained stress weight and inactivity weight and are in danger, and need to diet (fasting) as soon as possible.
I have been playing with various and sundry supplements for months and decided to take a break a few weeks ago. I was considering adding NAD+. Quite a few videos and papers mention a potential link to bran and pancreatic cancer, so I decided to hold off. I was taking Tru Niagen for a month and did not notice any difference. Yesterday II tried to add back my NAC and took an antihistamine a few hours later. That did not go well.
Great seeing more people sharing information about long covid
Thanks!
Hey there, wonderful video as always. I absolutely echo all the commenters who have stated how important your work has been. My question: do you know why Dr. Peers includes niacin in her MCAS regimen? Does she think NAD+ deficiency might be an integral part of MCAS? Thanks so much.
She’s on board with NAD+ deficiency
@@RUNDMC1 Thanks so much, Gez. When you say she's on board with NAD+ deficiency does that mean she thinks it's a contributor to MCAS regardless of whether the MCAS was triggered by covid? Hope it doesn't seem like I'm pestering. I'm just curious because I believe I have MCAS, but I think it may have been triggered by an infection other than covid.
Eric Rorer I can’t comment for Dr Peers on that distinction, sorry!
@@RUNDMC1 Hey Gez, that totally makes sense. Thanks again for all your great work.
Has anyone else noticed that their symptoms fluctuate in intensity and that some day they're doing okay.
Very common, in so far as to say this is the norm for Long Covid
Im doing 3-4 days ok, then 3-4 days feel like sh...
I started the diet and yes today after 4 day of peace it hit me a lil hard but I’m still following the plan , I added oregano oil too
Happy Christmas 🎄
Run-DMC thank you for putting these videos together. A question, how long do you see yourself being on the various parts of this treatment? And do you think you will stop the treatments or diet first? I ask because before covid I never really had any food intolerances, with no evidence of mast cell aberrance aside from mild adolescent hayfever- and very much looking forward to enjoying coffee, tomatoes, wine, chocolate, beer etc.
I’ll be on this treatment in its various forms until I’m better - and I’m expecting that to take 3-6 months. Like you, life is no fun with all the good stuff taken out.
Hey mate! Appreciate all your efforts with this. You're really a life saver! Would you be so kind as to link the correct niacin in the description?
Hey Adam, I don’t really feel comfortable linking directly to a product, but Amazon and Ébay are your friend 👍
did you find one @adam shomer? I see to be careful of flushing but not sure if I should buy no flush or one not labelled as no flush
I'm a long hauler in month 8 - was just about despairing over the last few days because I'd been on the supplements stack including niacin and felt no better. But I'd been taking the no flush version (Nicotinamide). Just ordered nicotinic acid version after watching this and reading through the comments - fingers crossed! Going to try the low hist diet too. Thanks for the research Gez!
Hope you feel better on it Ed!
Where are you ordering Niacin flush from? Thank you
Any updates?
@@joshuanegrete3633 hard to say. Had a mild relapse around the time I started on the niacin. About a week of light sob and myalgia. Then got a lot better. Felt about 90% recovered for a few days (which is the best I've felt for months) and then a couple of days ago got myalgia and shoulder joint pains again. Two steps forward, one back as always - an incremental net positive overall but obviously no way of knowing whether it's the niacin. Also started on an inhaler about same time as niacin so that's also a factor.
@@edrooksby9097 I ended up using a non flush version of niacin and I think it's helped clear the brain fog substantially on the same day. Or if not at least the placebo. I don't have as much anxiety as I've been feeling, I kinda feel like myself. I was able to tolerate videos and games, I'm gonna try the flush version eventually when it comes but it seems like its doing something. I'm using the cvs brand
Great thing to find on Xmas morning! I'm in the supplements including Niacin group and noticed steady improvements almost from the get go. One caveat to that is that I'm still not too resilient to stress.
I'd be interested to understand a bit more about Niacin dosage above the 500mg level and whether there is any way to gauge the wisdom of going higher, or otherwise...!
I’d avoid even going that high if possible - can start to get side effects and it’s a lot for the liver to habdle
@@RUNDMC1 I'd def find someone to guide with that! Someone like www.RealResults4Health.com
Magnesium is best for stress response, I use a liquid version that I add to my bottled water.... around 400mg per day is good and makes a real difference.
@RUN-DMC -- does this supplement regimen still count for us Covid long haulers who have developed autoimmune issues (thyroiditis, for example)? Or do we think it could be autoimmune issues that are causing the NAD+ deficiency in the first place? At any rate, thank you so much for all you're doing for us struggling to find hope and answers in the dark.
Yes, still counts - give it a go!
Excellent Analysis.
The Low- histamine diet helped me with the inflammation in my body with the supplements.. 4 months in🙏
I pretty much eat the same thing.. Sweet potato Brown rice ,white rice and all the vegetables.. Applesauce Apple's carrots zucchini bell pepper.
Try to sleep 8 hours.. Pace myself when I'm outside the house.. Rest a lot when I'm at home... My Gut is still messed up
Great video. It looks like a regime to combat Chronic Fatigue Syndrome. Not sure why you didn’t recommend trying a low gluten diet as well, in case this is linked to leaky gut problems adding to the symptoms of chronic fatigue syndrome. Gut Health is essential for the immune system. A healthy gut will also improve the amount of nutrients that your body gets from your diet.
The low histamine diet cuts out gluten and all grains
Awesome work as usual Gez - you feeling better on this treatment approach?
I am, yes - thank you!
Hi Gez, First of all- a big big thank you for all your hard work and for all the valuable information, research and treatment advise. I have been watching your videos since day one, and I have not found any other channel/website as good as yours. How do you manage all this work while suffering from LC?
After the post on MCAS I immediately made an appointment with my GP - in the coming months I have an appointment with a specialist (after the hospitals in the Netherlands are less crowded).
In the meantime I already take the supplements and I started with a low histamine diet.
How much MG of the Niacin do you recommend? I take 500 MG together with my lunch, without any side effect. But I am not sure if this is the right amount of MG’s. Sometimes I think it said 500 MG in the videos and in some comments I read 50MG.
How long did it take for you to notice improvement?
Thanks again, I can not stress enough how important your work is for all of us!
Thanks Heleen! It’s a bit of a struggle sometimes getting the content out (especially as I have to earn a living at the same time as also having LC) but it’s worth it.
Re the niacin - you should notice the difference in a few days. You don’t need a dose as large as 500mg - smaller 50mg caps taken a few times a day is probably better for absorption.
Is just ordinary Niacine or is it non-flush Niacine that one should buy? The one I am taking is a B-Complex that contains 35 mg of vitamin B3 (nikotinamid). Or should I look for another?
@@DaimonosUlv at some point in the video he said that it MUST be the FLUSH type niacin (plain B3). The non-flush type (Nicotinic Acid) is good for your skin, but doesn't do much for long covid.
So glad to hear the news!! If this works for C19 LH it probably works for other things too. thank you.
I was taking niacinamide, along with the other supplements, and will switch back to straight niacin. I'm not on a low histamine diet, and will now check that out too. Thank you for this amazing, valuable information! ❤
No worries Barbara - I hope it helps! Go easy on the starting dose of Niacin :)
@@RUNDMC1 I have seen niacin as nicotinic acid, nicotinamide, and inositol hexanicotinate. Which one should we be taking? Thank you so much for all of your amazing work. After 9 months, I am finally hopeful!
Longevity Raw Pet Food Nicotinic acid is the one you want, start off with 25mg after a meal and see how you tolerate it. Then build up 👍
@@RUNDMC1 Thank you so much!
@RUN-DMC - Thank you beyond measure! ❤
Hey I'm just trying to clarify something because it's a bit confusing. In the video where you talk to Tina Peers she says to buy the no flush variety of niacin which is inositol hexanicotinate (nicotinamide), but in this video the study you refer to clearly indicates that we should only be taking nicotinic acid which is the flush variety of niacin.
A friend of mine went through a stage of taking the flush variety and is now upping the dosage of no flush beyond 1500mg. Should I stick with the flush niacin (nicotinic acid) around 100mg once I have gradually increased?
Thank you for your help!
Stick with the flush and the dosage sounds good if you tolerate it. I wouldn’t go as high as 1500mg even on nicotinamide!
Picnic, how are you doing now?
I have coeliac disease and already on a restricted diet. I would find it very hard to restrict it even more. Have you any advice and any comments in general about coeliac disease and Long Covid?
Thank you for all your work; I'm also (since March) a 'long hauler'. A couple of points:
(1) By 'niacin' do you mean specifically nicotinic acid? I have been taking Vitamin B supplements, but the labelling and descriptions are very unclear.
(2) Please note that the P-value is very different from the probability that the difference is due to chance! It's the probability, assuming there is in reality no difference, of observing such an apparent difference by chance. This might seem a subtle distinction to non-statisticians, but it makes a huge difference to interpretation. However, self-selection etc. is perhaps more of a problem here.
Hi Ewart, I did say ‘broadly speaking’! Think I’d lose the rest of the viewers altogether if I tried to explain the distinction!
And yes - by niacin this is specifically nicotinic acid, not nicotinamide.
@@RUNDMC1 Thank you! I've now ordered more specific B3 supplements, and am hoping for the best.
i found Magmin high dose magnesium to work extremely well. The doctor recommended it to me for my muscle aches and nerve pain which i believe to be long covid, also get headaches and used to be extremely fatigued and the doctors kept telling me i was imagining it.
Magnesium aspartate dihydrate (Magnesium 37.4mg)
500 mg
Very interesting, thank you
Really amazing work! Gives hope that you can do anything to get better!!
Can you get enough niacin through diet eating food with tryptofane, or is it more effective to take vitamin B3?
If it was the right kind of b3 then yes you can get it through diet but easier to take with supplements
RUN-DMC I live in the states. How do I know what the proper kind of niacin is?
Unkle Corky Make sure it’s nicotinic acid not nicontinamide and the flushing variety is preferable if you can tolerate it
Happy Christmas to all!
.....and to you also...☃️
Thank you so, so much. After your last video, I went out and bought all the Vitamins, including Niacin. I started slowly and on day three started glowing like a glow-worm in the dark. I was also very itchy. I have started taking an anti-histamine with the Niacin and this seems to help.
Hi Wendy. Try backing off the niacin dose a bit if you can!
What antihistamine do you like or does it matter thanks
@@billfox1439 I use Loratidine during the day and Allergex at night. The Allergex helps with sleep. I have had a relapse recently but I think it was due to witnessing a very traumatic event. .
bill fox you generally need to try a few and see which works best for you
@@wendyhay1302 thankyou wendy for your reply, hope you are doing better
Thank you so much!!!! Your videos helped me out of this Nightmare 😀👍👍💚 Nothing is known about this in Germany.
The clinic in Mulheim knows a fair bit, as do the Berlin Cures team!
Thank you very much!
Thanks Elisabeth!