ฝัง
- เผยแพร่เมื่อ 27 ก.ค. 2024
- Bringing community stories to you! This month’s edition of HDYou Community Stories features Luis from Spain. Luis comes from a #huntingtonsdisease family and like many young people, found the burden and fears of being at-risk challenging. He turned his experiences into a book to help others and tell his story.
“I am another human being with a backpack on my shoulders. My backpack, as everyone’s, is full of many different things. But there is one thing that is heavier for me than the rest, to the point that no matter how much I remove the backpack, it still weighs the same. In the Chronicle of a Fortune Foretold, I tell how I walk with this burden so that, even if it does not take the weight off others who also carry it on their backs, at least we can walk together.”
Thank you to our sponsors: Sage Therapeutics, Roche Teva Pharmaceutical, uniQure, Wave Life Sciences, Griffin Foundation and Neurocrine Biosciences.
I have never met someone as brave as Luís. He is such an inspiration for other human beings. Thank you for sharing your story, I don't know how painful this must have been , but it will remain as a gift for others. ❤