Howdy, Thank you for being such an inspiration! Since finding the Chronically Jacquie videos, I have gotten the courage up to drive to Disney world with my service dog Moses. Also, a golden retriever. Went on many rides and had a great time. You're doing a great job for all of us that need that extra nudge to keep going... and ya, the rollercoaster was worth the pain. Dont ever stop! Your family has become mine.
I loved this video. When I first became truly disabled, long before I was ever diagnosed, I really struggled with what to do for a while. I had all these things I wanted to do - many of which would make me feel bad due to dysautonomia as you mentioned or were possibly even outright dangerous to my health - some people were saying it was insane and denial to risk my health on thrill seeking/experiences/whatever, and I really didn't know what to think. After a long time I came to the conclusion that I will not let my illnesses and my disabilities tell me what I can and cannot do, only how hard I will have to work to do those things. I am still graduating from college. I am still working in a research lab, and I still go out to amusement parks and events. Even if it takes me a monumental amount of effort to do my homework, and even if a trip to a basketball game leaves me bed bound for 2 days. Because the experience is worth it, and it's an experience anyone else can have - why can't I? Yes, some things I've given up because the discomfort is not worth the experience, but anything truly important to you I say it is worth it to learn to breathe deep and live through. Even if the aftermath will not be fun, the experience will be and afterwards the pride, strength and confidence you get from knowing you did this, even though it was hard and painful, is empowering. I try to explain this to family :)
I love your videos Jacquie it's good to see you pushing behond your limits no one has the right to say you don't have this or that illness they don't know you or anything you deal with love you Jacquie
my 16 y/o daughter has POTs and we live close to disney also- she can handle all the roller coasters except Everest! something about the going backwards. She has passed out more than once on it! But Rockin, she is fine 💁♀️ everyone is so different.
Girl you have to do what's good for you. Please don't let the trolls get to you. You have to have some fun in your life. I'm so excited to hear about your house. Sweetie my problems are different from yours, but I know how you feel. I'm rooting for you girl.. Love ya girl! I've been sick for so long I just really don't care what others say. Give Harlow a hug and your hubby. I think he is a great guy and the fact he loves you and supports you is awesome. I really would love to know how you get a service dog. Anyways good luck on the house, can't wait to hear.
I've never fainted and my BP is fine, so riding rollercoasters is okay with my dysautonomia (I have hyperadrenergic POTS). However, there was one time before my dysautonomia developed where I nearly fainted. It was on Skyrush at Hershey Park. My vision completely blacked out for several seconds, and it scared me because I've never had that problem with a rollercoaster before (or since).
I'm not a coster girl but my kids and partner are and sometimes I want to join in with them even though I know the next day will be a rest and pain day. Thank you for to the video. Not all disabilities are the same and it's our lives to live.
I ask the staff for a bit of time so I can see how the restraints will affect my insulin pump and continuous glucose monitor. Sometimes I'll ask to open the restraints again so I can ajust the location of my insulin pump. It's great they are willing to be patient with me and give help whenever I need it.
Such a great way to explain how this works for you. It definitely varies from person to person. I like how you said that you may leave the roller coaster for the last thing to do before you leave, I was going to suggest that. You listen to your body very well. Love seeing Harlow playing she was having so much fun. Red pacman attacked her nose(hahaha) and she got revenge. Very cute.
In my late teens and early 20's my vertigo decided to get worse so I also have to be careful which rides I go on. Drops in hards a hard for me and if the drop is too big or the ride just has too many little drops I really cant ride the ride.
It's too bad that ANY amount of time spent explaining yourself and how you're able to do , say anything, is unfortunate. Judgy-people need to examine their own life and abilities. But, on the other hand, I appreciate your insight. Thank you for aleays taking the high-road. Glad you had fun at Disney.
I'm glad your able to recognize when you can push yourself and enjoy, sometimes its worth it. Your right and I wish people understand that just because people have the same diagnosis doesn't mean they have the same journey and symptoms. I've had people say that they get backlash that they aren't sick because they leave the house. It's a shame really because people don't see the invisible part of these illnesses and because of that they don't get believed a lot. Just yesterday my Worship pastor told me that he has pain as well he just fights through it, after I told him I won't be playing violin with the praise Band anymore because it's too much for me right now with my health problems. People think we are fine that we don't have the pain we do or the symptoms we have with our illnesses because they can't see it. Me playing the violin in the praise band those are times I push myself but I can't keep doing that. I can't fully worship when I'm unwell. Also and I don't mean this in any kind of rude or disrespectful way but when you leave the house is Harlow's toys somewhere where she can't get them? I only say this because the ball you were playing with her in the beginning the way it goes over her nose and mouth can be a Suffocation hazard as I saw a video with something similar and the dog died because no one was home to help it. I'm not saying this because you don't know better or anyting you are a wonderful mom to Harlow I just felt like I should mention it. I hope you don't take it the wrong way. You look well but again these come with invisible symptoms. My new saying is, "Don't judge a book by its cover. You may be able to see the front, But you don't know the whole picture." Praying for you Jaquie and about the possible new house.
I love that you laugh at the haters trying to start stuff. It denies them their satisfaction. I have a roller coaster story that ended rather unfortunately. I hit my head (my own fault, not the coaster) received a TBI that went undiagnosed due to poor care. Had what I now know to be post concussion symptoms for over a year and have life long effects to memory and other functions. It didn't seem like a big deal when it happened, the brain in a funny thing. Morel of the story; don't turn to see where you are going when being pulled backwards up a hill. Always keep your head firmly on the head rest.
I’ve done coasters hooked up to tpn and tube feeds. As long as the bag and pump are a backpack and secure. As far as restraints go, I buy a couple of blow up kids kickboards at the dollar tree. I put it on my torso from neck to thighs and put the restraints on normally. Not only does it protect my line and tube, but it adds a bit of cushioning do rides aren’t so bumpy.
I remember that I went on Rock ‘n’ Roller Coaster for the first time since becoming chronically ill when my POTS was flaring (it was July lol) on our last trip and I came off thinking woah! It made me feel so weird after 😂 and I was just like “I need to sit down for a while now” ahahaha
I have dysautomnomia, HEDS, and many other chronic diseases. We go to only one specific theme park, even though we have a huge interest in other parks as well. I ride the roller coasters and other rides after considering how I feel, time of day, and current events. Some times we go, and no rides are ridden. Sometimes, we go and I will ride a ride. Never really know and the decision of to ride or not to ride becomes a spur of the moment thing. I ride the coasters and other rides; but, I pay for it. There are rides that I have marked off my list as time has seen the ride become too rickety for me. This specific themepark has seen me for over 20 years; so, not many shed tears when I have to mark off a specific ride. There are specific rides that I am awake, aware; but, feeling like crap after... There are also rides that see me passed out cold after. To me, it is what works for me. I do have people tell me that I should not ride something because of my health - these are people that are friends... But, everyone is different.
Wow, you go on Rockin' Roller Coaster? I've been in it and with Ehlers Danlos aren't you concerned about dislocating a joint? I am so glad that you are doing well in 2019, after all of your hospital visits in 2018! Take good care of yourself! I am so glad that you can ride these rides and enjoy yourself! 😊
She is really social so the biggest thing while training was ignoring people who are very persistent in trying to get her attention. But, this is also a good quality because she is friendly and tolerant to whatever the public may do... Pull her tail, random pets, one time a little kid completely body slammed her to the floor. But she loves people and handles it so well. Now that she is older and more mature she is great at ignoring people, but it was our biggest focus while she was training.
Jaquie , I am so glad that you always speak on P.O.T and dysautonomia. Without putting anyone on blast another “warrior “ is very discouraging to others even making their spouse “ feel P.o.t.s” I am so glad you can experience thrill rides! Even if mentally and physically i feel good it’s either one minor intense ride or none. If i do, someone needs to brace me.😕
My favorite rollercoaster in disneyland paris is not wheelchair friendly😣. You always have to go down and up 2 stairs and then wait in line without any place to sit. They have an accesible exit, but for some reason they don't ler people enter through there which absolutely sucks! So i can't even ride my favorite ride.
Ugh that is terrible! From what I have heard from other people, Disney in Orlando is the most accessible. Have you talked to guest relations about that? It seems really dumb to do it that way.
@@ChronicallyJaquie yeah, they never give a clear explanation for why they do it like that, they just say it's the rules so they can't do anything about it.
Are you talking about crushes coaster by any chance? Really stupid how you have to go down stairs then upstairs again through that weird creepy corridor!!
Roller coasters can be rough for anyone, even for people without Ehlers Danlos Syndrome or dysautonomia. I'm 60 years old, no chronic illnesses other than back issues, but roller coasters have never been my cup of tea. I avoid them at all cost. I give you a lot of credit for attempting those scary rides. Space Mountain was even too much for me.
Awww hippo is so cute xx such a happy service dog 🐶 and thank you for breaking the myth that service dogs don't get time to play xx SERVICE DOGS ARE NOT ROBOTS😂
This was good information. My sister was diagnosed with fibromyalgia recently (we're still looking into if it might be something else) and we have plans to go to universal studios later this year. My family is very into rollercoasters and are very active at amusement parks so it'll be interesting with her new health issues.
This is a very inspiring video. I miss being able to ride rides. This summer, I was put into severe pain just riding a merry go round. Is there anything I can do this winter to ride rides in the summer. I was thinking exercise would help, but the question is what kind of exercise? I have fibromyalgia.
Hi Jaquie. @colorado_cords_4_paws is trying to get you a leash she made for you thats her instagram. She has a youtube channel too but anyways shes been trying to reach out to you for a while now figured id try and help her!
I have considered doing something like this, if I were ever asked to speak somewhere. I have done a couple small scale things in the past and enjoyed it!
My brother took me to universal almost 2 years ago. Had fun walking around but the rides I could do were pretty limited because I have hypoplastic left heart syndrome meaning I'm missing my left side of my heart and so there's a lot of metal pieces inside my body that can me dangerously affectected my electro mangnets used to control most roller coasters. And so we didn't ride any coaster and my brother became a guinia pig and went on rides before me to see if I could do them because every sinlge one said people with heart conditions shouldn't ride it just to legally cover themselves. Wound up not having as much fun because couldn't do all the rides but it was nice otherwise
@@ChronicallyJaquie The ones I did were fun, though. Did one that was like you sat in this big inner tube with a bunch of people and went down a bunch of waterfall like things. Was a lot of fun. We planned for the trip but didn't take the rides into consideriation until the first day we were at the park so like 2 days into our vacation we realized it was gonna be a problem. Still got a lot of candy and got see my brother get stuck on a coaster. So like was still a fun trip
Hau jaquie i was wondering how you know whith cough variant asthma your haveing am attack when your sick with a cough love your videos been bimge watching videos cause im bored and sick :have a good day
No, a few weeks (or maybe months) ago I showed my ring finger all raw and irritated. I developed an allergy. We were going to get a nicer ring but I would likely react as well so I just went with silicone. It works for what I need.
You might be able to do metals from Italy or other European countries. Most people are allergic to nickel, which American medals are commonly mixed with, but metals from overseas are not usually. That’s how I was able to find a wedding ring that I could wear! Not sure what part you are allergic to, but if it is nickel, it might be worth looking into.
Hey Jaquie! As u may know... I just love the snot out of Harlow... are there times that u do let the public pet her? No worries I do respect the owners of service dogs and would not do anything without the owners permission! I have CP and always found doggies non judgemental guess that’s why I love them so much! Please give her a hug for me!!. Love to u and ur family!!😆✌️
my 16 y/o daughter has POTs and we live close to disney also- she can handle all the roller coasters except Everest! something about the going backwards. She has passed out more than once on it! But Rockin, she is fine 💁♀️ everyone is so different.
Howdy,
Thank you for being such an inspiration! Since finding the Chronically Jacquie videos, I have gotten the courage up to drive to Disney world with my service dog Moses. Also, a golden retriever. Went on many rides and had a great time. You're doing a great job for all of us that need that extra nudge to keep going... and ya, the rollercoaster was worth the pain. Dont ever stop! Your family has become mine.
Awww hippo is so cute xx such a happy service dog 🐶 and thank you for breaking the myth that service dogs don't get time to play xx
Jaquie Im repeating myself but for the last month or so, you’ve been glowing with happiness.
I liked when you and Harlow were playing with the music in the background. I think you're amazing. You know your body better than anyone.
I loved this video. When I first became truly disabled, long before I was ever diagnosed, I really struggled with what to do for a while. I had all these things I wanted to do - many of which would make me feel bad due to dysautonomia as you mentioned or were possibly even outright dangerous to my health - some people were saying it was insane and denial to risk my health on thrill seeking/experiences/whatever, and I really didn't know what to think. After a long time I came to the conclusion that I will not let my illnesses and my disabilities tell me what I can and cannot do, only how hard I will have to work to do those things. I am still graduating from college. I am still working in a research lab, and I still go out to amusement parks and events. Even if it takes me a monumental amount of effort to do my homework, and even if a trip to a basketball game leaves me bed bound for 2 days. Because the experience is worth it, and it's an experience anyone else can have - why can't I? Yes, some things I've given up because the discomfort is not worth the experience, but anything truly important to you I say it is worth it to learn to breathe deep and live through. Even if the aftermath will not be fun, the experience will be and afterwards the pride, strength and confidence you get from knowing you did this, even though it was hard and painful, is empowering. I try to explain this to family :)
I love your videos Jacquie it's good to see you pushing behond your limits no one has the right to say you don't have this or that illness they don't know you or anything you deal with love you Jacquie
I hate how people can be so judgemental! Im so glad you get to enjoy those things! ^_^
Thanks for sharing Jaquie! I love how informative your videos are.
my 16 y/o daughter has POTs and we live close to disney also- she can handle all the roller coasters except Everest! something about the going backwards. She has passed out more than once on it! But Rockin, she is fine 💁♀️ everyone is so different.
My mom rode tower of terror once with a central line in. I was so worried something would happen. She was fine though
Girl you have to do what's good for you. Please don't let the trolls get to you. You have to have some fun in your life. I'm so excited to hear about your house. Sweetie my problems are different from yours, but I know how you feel. I'm rooting for you girl.. Love ya girl! I've been sick for so long I just really don't care what others say. Give Harlow a hug and your hubby. I think he is a great guy and the fact he loves you and supports you is awesome. I really would love to know how you get a service dog. Anyways good luck on the house, can't wait to hear.
I've never fainted and my BP is fine, so riding rollercoasters is okay with my dysautonomia (I have hyperadrenergic POTS). However, there was one time before my dysautonomia developed where I nearly fainted. It was on Skyrush at Hershey Park. My vision completely blacked out for several seconds, and it scared me because I've never had that problem with a rollercoaster before (or since).
I'm not a coster girl but my kids and partner are and sometimes I want to join in with them even though I know the next day will be a rest and pain day. Thank you for to the video. Not all disabilities are the same and it's our lives to live.
I ask the staff for a bit of time so I can see how the restraints will affect my insulin pump and continuous glucose monitor. Sometimes I'll ask to open the restraints again so I can ajust the location of my insulin pump. It's great they are willing to be patient with me and give help whenever I need it.
Harlow is so CUTE, especially when that ball got stuck on her nose!! Lol!!!
Such a great way to explain how this works for you. It definitely varies from person to person. I like how you said that you may leave the roller coaster for the last thing to do before you leave, I was going to suggest that. You listen to your body very well. Love seeing Harlow playing she was having so much fun. Red pacman attacked her nose(hahaha) and she got revenge. Very cute.
In my late teens and early 20's my vertigo decided to get worse so I also have to be careful which rides I go on. Drops in hards a hard for me and if the drop is too big or the ride just has too many little drops I really cant ride the ride.
It's too bad that ANY amount of time spent explaining yourself and how you're able to do , say anything, is unfortunate. Judgy-people need to examine their own life and abilities. But, on the other hand, I appreciate your insight. Thank you for aleays taking the high-road. Glad you had fun at Disney.
I'm glad your able to recognize when you can push yourself and enjoy, sometimes its worth it. Your right and I wish people understand that just because people have the same diagnosis doesn't mean they have the same journey and symptoms. I've had people say that they get backlash that they aren't sick because they leave the house. It's a shame really because people don't see the invisible part of these illnesses and because of that they don't get believed a lot. Just yesterday my Worship pastor told me that he has pain as well he just fights through it, after I told him I won't be playing violin with the praise Band anymore because it's too much for me right now with my health problems. People think we are fine that we don't have the pain we do or the symptoms we have with our illnesses because they can't see it. Me playing the violin in the praise band those are times I push myself but I can't keep doing that. I can't fully worship when I'm unwell. Also and I don't mean this in any kind of rude or disrespectful way but when you leave the house is Harlow's toys somewhere where she can't get them? I only say this because the ball you were playing with her in the beginning the way it goes over her nose and mouth can be a Suffocation hazard as I saw a video with something similar and the dog died because no one was home to help it. I'm not saying this because you don't know better or anyting you are a wonderful mom to Harlow I just felt like I should mention it. I hope you don't take it the wrong way. You look well but again these come with invisible symptoms. My new saying is, "Don't judge a book by its cover. You may be able to see the front, But you don't know the whole picture." Praying for you Jaquie and about the possible new house.
I love big thunder railroad but the last time I rode it I got slammed into the side so hard that I broke a rib!
I love that you laugh at the haters trying to start stuff. It denies them their satisfaction. I have a roller coaster story that ended rather unfortunately. I hit my head (my own fault, not the coaster) received a TBI that went undiagnosed due to poor care. Had what I now know to be post concussion symptoms for over a year and have life long effects to memory and other functions. It didn't seem like a big deal when it happened, the brain in a funny thing. Morel of the story; don't turn to see where you are going when being pulled backwards up a hill. Always keep your head firmly on the head rest.
Slinky Dog Dash is most likely something you can do. I call it a "kiddie" coaster, it's smooth. The queue is also adorable (it is outside though).
I’ve done coasters hooked up to tpn and tube feeds. As long as the bag and pump are a backpack and secure. As far as restraints go, I buy a couple of blow up kids kickboards at the dollar tree. I put it on my torso from neck to thighs and put the restraints on normally. Not only does it protect my line and tube, but it adds a bit of cushioning do rides aren’t so bumpy.
I remember that I went on Rock ‘n’ Roller Coaster for the first time since becoming chronically ill when my POTS was flaring (it was July lol) on our last trip and I came off thinking woah! It made me feel so weird after 😂 and I was just like “I need to sit down for a while now” ahahaha
I’ve been on a lot of rollercoasters in many different parks and I have to agree, rockin roller coaster and Everest are probably my favourites!
I have dysautomnomia, HEDS, and many other chronic diseases. We go to only one specific theme park, even though we have a huge interest in other parks as well. I ride the roller coasters and other rides after considering how I feel, time of day, and current events. Some times we go, and no rides are ridden. Sometimes, we go and I will ride a ride. Never really know and the decision of to ride or not to ride becomes a spur of the moment thing. I ride the coasters and other rides; but, I pay for it. There are rides that I have marked off my list as time has seen the ride become too rickety for me. This specific themepark has seen me for over 20 years; so, not many shed tears when I have to mark off a specific ride. There are specific rides that I am awake, aware; but, feeling like crap after... There are also rides that see me passed out cold after. To me, it is what works for me. I do have people tell me that I should not ride something because of my health - these are people that are friends... But, everyone is different.
IM 2 MONTHS BEHIND ON YOUR VIDEOS AHHHHHHHHH!!!! time for a Chronically Jaquie marathon😂
Harlow is so cute. And all that butt floof omg
Wow, you go on Rockin' Roller Coaster? I've been in it and with Ehlers Danlos aren't you concerned about dislocating a joint? I am so glad that you are doing well in 2019, after all of your hospital visits in 2018! Take good care of yourself! I am so glad that you can ride these rides and enjoy yourself! 😊
I’m planning on going to Disney world for two days for spring break. Any suggestions for what two parks I should go to?
So this might come off as out of place here, but does anyone have experience riding rollercoasters with a NJ tube?
Hi Jaquie! What was the hardest thing to teach Harlow? Love you so much!❤
She is really social so the biggest thing while training was ignoring people who are very persistent in trying to get her attention. But, this is also a good quality because she is friendly and tolerant to whatever the public may do... Pull her tail, random pets, one time a little kid completely body slammed her to the floor. But she loves people and handles it so well. Now that she is older and more mature she is great at ignoring people, but it was our biggest focus while she was training.
Why do you guys don't do Busch Gardens annual passes?
Can you swim in the public swimming pool with a feeding tube?
Hey jaquie
Thanks for sharing Jauqie. Have you ever been to the wizardering world in Universal Studios.
I love roller coasters so much for me they are worth it even though I know I'll be hurting later
AMEN
Okay, seeing Harlow just made my day better. Suffering from Chronic pain flare up today. I needed that yellow ball of fluff. 🐶
Feel better! Glad Harlow can give you some joy in the meantime (:
Aww Harlow
For someone so young, you are very wise. I love seeing how much joy Harlow brings to your life! 🤗❤️
Jaquie , I am so glad that you always speak on P.O.T and dysautonomia. Without putting anyone on blast another “warrior “ is very discouraging to others even making their spouse “ feel P.o.t.s” I am so glad you can experience thrill rides! Even if mentally and physically i feel good it’s either one minor intense ride or none. If i do, someone needs to brace me.😕
I know who you mean and I agree completely. Glad there are other chronic illness TH-camrs who put out a much more informed message!
Shawna Johnson 🙂 i was worried others would figure it out and bash me.. Thankyou . Yes, and others are very welcoming and accepting .
Can you go on racetrack? The outside portion makes me dizzy.
I got my chronically jaquie t-shirt the other day! Gonna wear it today!
Yay! :D
Thank you for living your life to the most you possibly can and how you medically prepare. You are an inspiration!
🌹🌹
What about tower of terror????
are you looking at ADA type houses
My favorite rollercoaster in disneyland paris is not wheelchair friendly😣. You always have to go down and up 2 stairs and then wait in line without any place to sit. They have an accesible exit, but for some reason they don't ler people enter through there which absolutely sucks! So i can't even ride my favorite ride.
Ugh that is terrible! From what I have heard from other people, Disney in Orlando is the most accessible. Have you talked to guest relations about that? It seems really dumb to do it that way.
@@ChronicallyJaquie yeah, they never give a clear explanation for why they do it like that, they just say it's the rules so they can't do anything about it.
I've heard Disneyland Paris is not good for food allergies either.
Are you talking about crushes coaster by any chance? Really stupid how you have to go down stairs then upstairs again through that weird creepy corridor!!
That seems insane! Its obviously a safe place to walk through to be an exit. Entrance should be no different. Sorry you have to miss out.
Roller coasters can be rough for anyone, even for people without Ehlers Danlos Syndrome or dysautonomia. I'm 60 years old, no chronic illnesses other than back issues, but roller coasters have never been my cup of tea. I avoid them at all cost. I give you a lot of credit for attempting those scary rides. Space Mountain was even too much for me.
You should go to Disney at the end of the month😉
This is a really good video. I found d this video interesting and educational.
Thank you, glad you liked it!
Awww hippo is so cute xx such a happy service dog 🐶 and thank you for breaking the myth that service dogs don't get time to play xx SERVICE DOGS ARE NOT ROBOTS😂
Did you get Harlow from a breeder if so what is the name of your breeder
This was good information. My sister was diagnosed with fibromyalgia recently (we're still looking into if it might be something else) and we have plans to go to universal studios later this year. My family is very into rollercoasters and are very active at amusement parks so it'll be interesting with her new health issues.
I have dysautonomia and I go on rollercoasters ¯\_(ツ)_/¯ I get you girl, it's all give and take
With big thunder mountain what I found was sitting in the front was easier on my body. Less movement.
Oh, I may have to try that!
This is a very inspiring video. I miss being able to ride rides. This summer, I was put into severe pain just riding a merry go round. Is there anything I can do this winter to ride rides in the summer. I was thinking exercise would help, but the question is what kind of exercise? I have fibromyalgia.
Hi Jaquie. @colorado_cords_4_paws is trying to get you a leash she made for you thats her instagram. She has a youtube channel too but anyways shes been trying to reach out to you for a while now figured id try and help her!
Way to be strong and brave Jaquie 💚 keep living your life as you see fit 💚
You would be an awesome motivational speaker. Just thought I'd tell you!
I have considered doing something like this, if I were ever asked to speak somewhere. I have done a couple small scale things in the past and enjoyed it!
It suits you!
Best recommended video lead me to discover some great content educational and fun. Plus do you know Micky of life with strips .
i don,t do rollercoasters!!! i,m afraid of them!
omg i accidently clicked on the thumps down button first :'D rlly nice video jaquie!! you look so happy these days ♥
My service dog is awesome because of your tutorial!
Awe that makes me so happy to hear, good job!
So no wooden roller coasters for you me either since vibrations started to set off my MCAD.
My brother took me to universal almost 2 years ago. Had fun walking around but the rides I could do were pretty limited because I have hypoplastic left heart syndrome meaning I'm missing my left side of my heart and so there's a lot of metal pieces inside my body that can me dangerously affectected my electro mangnets used to control most roller coasters. And so we didn't ride any coaster and my brother became a guinia pig and went on rides before me to see if I could do them because every sinlge one said people with heart conditions shouldn't ride it just to legally cover themselves. Wound up not having as much fun because couldn't do all the rides but it was nice otherwise
Yeah the rides at universal are intense. You may find Disney more accessible for you! Lots of fun rides that are not coasters.
@@ChronicallyJaquie The ones I did were fun, though. Did one that was like you sat in this big inner tube with a bunch of people and went down a bunch of waterfall like things. Was a lot of fun.
We planned for the trip but didn't take the rides into consideriation until the first day we were at the park so like 2 days into our vacation we realized it was gonna be a problem. Still got a lot of candy and got see my brother get stuck on a coaster. So like was still a fun trip
Hau jaquie i was wondering how you know whith cough variant asthma your haveing am attack when your sick with a cough love your videos been bimge watching videos cause im bored and sick :have a good day
I was dx by a plumonologist. Sorry you are not well, feel better!
Why the pink band not your wedding rings?did you lose too much weight?
No, a few weeks (or maybe months) ago I showed my ring finger all raw and irritated. I developed an allergy. We were going to get a nicer ring but I would likely react as well so I just went with silicone. It works for what I need.
Chronically Jaquie it looks cool and it’s your fav color, thanks for responding ❤️
You might be able to do metals from Italy or other European countries. Most people are allergic to nickel, which American medals are commonly mixed with, but metals from overseas are not usually. That’s how I was able to find a wedding ring that I could wear! Not sure what part you are allergic to, but if it is nickel, it might be worth looking into.
Hello
Hey Jaquie! As u may know... I just love the snot out of Harlow... are there times that u do let the public pet her? No worries I do respect the owners of service dogs and would not do anything without the owners permission! I have CP and always found doggies non judgemental guess that’s why I love them so much! Please give her a hug for me!!. Love to u and ur family!!😆✌️
my 16 y/o daughter has POTs and we live close to disney also- she can handle all the roller coasters except Everest! something about the going backwards. She has passed out more than once on it! But Rockin, she is fine 💁♀️ everyone is so different.