Some musts to surviving copd
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- เผยแพร่เมื่อ 12 ก.ย. 2024
- I was asked. How have you survived copd for more than 30 years. Many of us have, And even though its not easy at times. We keep on going. Can I manage the next 7 years to make it 40 years?
There are musts if we are to ride this beast as I sometimes call this. But with care, although in the later stages disabling, we can survive. I explain some of what I believe has helped me. Comments welcome.
I can be found at We strive to breathe easier on facebook. It's a self help awareness group I formed. You are of course welcome to join us.
Bless you Derek! A recent CT scan because I smoked twenty years ago created a startling call from a nurse. She said I had severe emphysema. This surprised me because I am very active at 66. A PFT was done and scored me as moderate with 61% and I went 600 meters in my walk test. But I still thought I was dying until I watched your videos. I was depressed for about a month and lost 8 pounds, a lot of sleep, and developed gerd from stress. Your videos helped me recover from that and resume my normal life. I have also decided to start singing and ordered the CD your recommended. I just wanted you to know what a difference your videos have made for me. Thank you from Montana, USA!
I'm new to copd can't breath freaked me out. It's good for the soul to hear positive people talk and they have the same problem as me steve from oregon usa
I was so excited to see a vlog from you. Lots of great advice. I love hearing from you. It is so hard to explain to family members and friends how having COPD feels. They don't get it because I'm not on Oxygen. My twin is on Oxygen but it is still like people don't get it. I'm going to share this vlog. Maybe if they hear these things from someone else they will be more understanding in the future. Thank you. Until next time be well and have a great holiday. Sincerely, Pat from across the pond. US
Yes family can be the hardest can't they. Not understanding. Most my friends have been wonderful, although there was one exception. You don't have to be on oxygen to get very out of breath and not need it. Amazing. Maybe one day I will talk about that too. I always say though, with this illness, when I am dealing with it, I am number one. The way we have to be when it comes to family. Hopefully in time they will accept it more although even in my birth family that is not the case. Stay positive. Stay strong.
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i am using carbocisteine at the moment to help clear my chest.its doing a good job ,you have to drink plenty of water with it though.been in hospital 9 days over christmas and newyear,lucky to get out.knocked my health right down your videos help to motivate me,and another youtuber thanks
The carbocisteine has helped me a lot. They started me off on 6 a day. Now I’m on 3. Unfortunately I might be going on oxygen very soon.
it is fortunate because its helped me and will help you@@knightsway100
Than you so much. America, Wisconsin here.
This is such a great channel. The positivity and education is invaluable. Thank you for your experience and taking the time to do these videos. Many thanks.
Wow, thank you!
Derek - long may you run.
Many thanks Kevin old friend.
Very many thanks for another brilliant video Derek. I agree wholeheartedly with you in staying positive, where's the point in being otherwise. I've joined your FB page and have found it so friendly and helpful, wonderful. I'm still waiting to be tested (I had to postpone my spirectomy on Wednesday due to a very bad cold) and had found it difficult to get back to my language learning after the shock from my Dr in October of possibly having copd. However, after listening to you today I'm going to push myself to get back to my French & German as I love the achievement in reading and speaking both. You've given me the necessary push, very many thanks indeed. BTW, at the moment I take Fostair and Ventolin for Ashma, both are very good, though I needed Prednisolone the week before last as my lungs were "very tight", my word what a difference now!
Many thanks for your comment Sue. And glad to have welcomed you to 'We strive to Breathe easier', on FB. Hard as it is at times being positive is the only way forward. You will be amazed how many times having forced yourself to do something you really did not want to do, makes you feel a whole lot better. Good luck with the French and German. And great to see you have a positive frame of mind.
I really enjoy watching your channel. You are so up lifting and joyful. Thank you for sharing your views and insight. Blessings to you my friend.
You are so welcome :)
Thanks mate, an aussie here that has watched a lot of your good pics .. you have a lot of great advise for people that are starting out with this prick of a disease... I have been battling copd for many years..... not on oxygen yet.. about 14 months ago the spirometer test said I have only 29 % now... getting out of puff pretty easy these days and getting very irritable as well.. keep on getting infections that clear up for a few days then back on full strength antibiotics... just want to say your doing a great job mate .. keep smiling .. god bless
Many thanks from one old fart to another. laughs. I tell it like it is as you and others have noticed. I don't pretty it up but there is lots of things we can do. I look after myself better now than when I was younger. Maybe I am living longer because I have copd. Food for thought. :)
I am so glad I found your videos, I have learned more from you than the 4 lung specialist i have seen over the past years Thanks.
Thank you for your comment Edward.I am pleased my video blogs are helping you understand aspects of this beast..
I shared your vlog with some family. I hope they watch. You explain so eloquently how it feels and maybe they will get a better clue how me and my twin feel. I do want to tell you I have 15% more lung function than you and my twin has 10% more according to our last PFT. Our Dr doesn't order them anymore. I only get one if I ask. Thank you again Derek. Hope to hear from you soon again. Would love to see your photos from your holiday. I am going to plan a trip to Florida. I love the Ocean. Stay well. 😊🤗
Derek, I love and appreciate your informative videos and mellow personality. Thank you! I do a little better going out now that I have a portable oxygen concentrator and don't need the big heavy tanks. My insurance covered it, I was so lucky.
Good that you are getting out Donna. Using oxygen never stops me going anywhere. Great you have the lighter option. Stay strong keep positive.
as always all good advise.. your positive attitude helps more than you would think... keep well from one old fart to ... lol.
Thanks Derek!
your welcome
Thank you so much for your advice. I take NAC and it smells terrible. Is that normal?
You made me laugh when I read your comment about the smell of NAC. Rotten eggs comes to mind. Sadly yes, it stinks. But is good for us. Good job they are capsules. But hey they keep my chest clear. Hope they work well for you too.
@@derekcummings5155 HI Derek I just found your channel and have enjoyed it immensely, what is NAC? I am trying to take care of myself and if there's something else to use in my arsenal I will be grateful! Thanks in advance.
@@sandydallas9877 hi Sandy. The easiest thing to do is google NAC. Lots of information there. It thins mucus making it easier to shift. Both Ebay and Amazon sell it.
@@derekcummings5155 Thankyou so much for your timely response, I'll get right on that. I've been in the hospital 2 times in the last 2 months and can't seem to find anything to help clear this gack! Have a great day!
My dad refuses to wear his oxygen in his nose. Does it make a difference? What can I tell him to make him see?
As long as he gets the o2. Why doesn't he wear it on his nose?
Ty you keep me going....can I talk to you,personally
you could join ‘we strive to breathe easier’ on Facebook. Thats were you will find me.
Hey hun how you doing
Still rolling along :)