It's 1am here where I am. I have no one to talk to about this and it is eating me alive. I left voicemails on my doctor's phone lines. This unknown illness has (obviously) effected my mental health not knowing and living my life in a bed. I dont care at this point if it cannot be fixed. Just knowing what it is restores more hope than anyone could ever imagine!
Dear Dr. Ebraheim, thank you very much for your clear and straight-to-the-point explanation. Being a patient, this is truly appreciated. Greetings from Italy
I had PTS. Woke up to excruciating pain one morning and was unable to move my arm. In the ER no pain medicine helped, but prednisone did. After the pain subsided-about 2 weeks-my arm remained paralyzed for an additional month. I could grab things with my hand but couldn’t lift it. I developed muscle atrophy too. It’s been several years and I’m fully recovered. PTS is a mysterious syndrome.
@@heddap1787 yep me too , got it after a vaccine 4 weeks ago , unbelievable pain and still only getting 1 to 2 hours sleep with limited arm function , any advise for me ?
@@marts5555 believe in it, hope it, work on it everyday for 30 mins if you can ... I have had 10 days of anti-inflammatory drugs and I am in 40 sessions of physiotherapy. I now raise my arm. and I can carry ... 500 grams by lifting it ... only. it is a long journey. nobody knows in fact, because after the neurological reconnection at 80%, it is now necessary to do an immense work to re-muscle again and again ... They told me in 18 months you will be able to raise your arm, in 4 months, I'm there. the course is long and with stages. courage!
@@marts5555 I got it after my 2nd moderne dose. I went to the chiropractor for the acute nightly pain and slept with a hot pad under my shoulder. I think that helped. Acute lasted 2-4 weeks than did physical therapy
I got this in both arms, about a month ago... The pain was literally (no exaggeration) like my arms were being ripped off at the shoulder. The only relief was opiates, but the hospital is so stingy with them, now, I was only able to get enough for 1 day. Finally, after 2 1/2 weeks, the pain subsided, and now I cannot use my biceps, for anything. It's a pretty bizarre and random condition, and still not understood or respected by many medical professionals.
Okay hopefully this gets read by everybody here. Let me tell you from experience. This is under rare diseases 1.64 in 100,000 people. It does not get much attention. You guys all need a very very very well known Sports Physiotherapist with IMS certification, and who has axcess to Platelet Rich Plasma treatment plus actue knowlege of your own individual specific presentations. There are 50 muscles the Brachial Plexus supplies or some shit like that. Confusing for the layman. Stop wasting your time in the gym anymore. It will only produce intense frustration and get pracrically zero results. Here's why. If there are 50 or so nerves roots, branches, and connectors that run down the c5 to t1 which are inflammed in PTS ( Parsonage Turner Syndrome,) I have to ask: Are any of us qualified to know how each of our 50 or muscles have been affected by this disease? Given the unique presentation each of us have? Not a chance. That requires a Sports Physiotherapist who has more knowlege than the other hacks out there treating geriatrics or whatnot. No disrespect. My reasoning is I wasted 7 years dealing with unqualified Physios who did not Professionally say so. Or refer me to someone who could help. I will save you each the headache and tell you. Your MD cannot help, your Neurologist can only help so much. But a qualified Sports Physiotherapist with IMS can work wonders if you really follow the exercises 3x to 8x or more per week. And get PRP if you can afford it as well. You may have to explore and research it. I cannot stress enough how much this will help. I promise you that by seeing the correct Physiotherapist it will save years of your lives. I wish you all a speedy recovery from this hell.
5 days after a horrible FLU I was woken up by upper back pain which radiated to my shoulder. 2 weeks later pain was gone. Now I have a winged scapula due to my long thoracic nerve damage affecting my serratus anterior muscle. I am currently going through therapy.
@@tetricko Hello Patrick. I am fully recovered now after 6 months. I found a sports medicine Dr in Miami who performed a nerve conduction test which confirmed the nerve damage. I did therapy for about 3 months. I had to wait for the nerve to regrow on its own. Therapy helped a lot.
@@MoisesSimana im happy you recovered can you please give me all the details ive been suffering for almost 2 years and im at my wits end please all kind of knowledge could help me to seek treatment thank you
I've experienced an Aortic Dissection, Pulmonary Embolism, and PTS. The worst pain I've experienced is PTS. The pain medication did little to help. God help those that experience this syndrome, ease their suffering, and help them to heal quickly.
The excruciating pain +pain from HELL, as I call it) started about five weeks after my right wisdom tooth was extracted. There is no way to describe the pain, it is unbearable. In one week my doctor prescribed three different drugs which I cannot take because the side effects are dreadful. Pretension ....I refuse to touch. As for sleep.....what is that ? Wonder if physiotherapy might help ? I empathize with all fellow sufferers.
I have been living the last 5 years without use of my left arm, and in agony. I've gone through extensive testing and we just heard about PTS... I have spent every penny I have trying to find out what was wrong with me (Due to extensive history of physical trauma to brain, and spine it was tough to diagnose what was wrong with me.) I have also lost the use of my left leg about a month after the shoulder and arm loss which they couldnt understand either. I am yet to be diagnosed.. I just found out about this minutes ago and I'm researching it now, and will contact my neurologist tomorrow. Any advice on what to look for, or what you might recommend would be great. I am currently living in Florida, and after 5 years seeing local doctors and even trying Mayo clinic, I have been without an answer. Are treatment options available even if it has been this long?
Hey man i hope you recovered well. I am going through this hell too if u have any advice for me please help me. Again i pray for you to have great recovery.
You have given great info. As far as consulting doctor, its waste. If you consult an orthopedic, he will check the bones and leave it. General physician will look at it generally and won't understand. Only if the neurologist is an intelligent guy, then he can detect it, with minimal treatment idea.
I was diagnosed 2 years ago. Im getting better but I cant feel any strength at all on my right arm. Its my dominant arm too. I do martial arts and I cant recruit my right hip for power punches, kicks. Basically my right side is bust and feels useless.. Hopefully it gets better soon.
do pushups, thats how i fixed it in 6 months. my right triceps and pectoralis major were completely dead, as if they dont exist then i started trying to do pushups and after about a week i could do 1, barely
@@tetricko that was 4 years ago and after 2 months of non-stop pain it stopped hurting 90% and after 4 months of pushups i had my strength and functionality back 100% now it happened again like a month and half ago and, right now, i can still feel a little bit of pain when i wake up. after about 1-2 hours pain goes away but i still dont have power in same muscles if you have constant pain, first you should find a position where it hurts least. for me it was my arm up and bent in elbow behind my head + neck / spine forward - like when you push your shoulders backwards while i walk, i keep my shoulder up and back to reduce the pain up to 90% when i lay down, the only position that helped me was to lay on my back and keep the hand in same position - above head and bent in elbow one of the indicators that the plexus brachi is affected is if you can notice your pupils different size - Horner syndrome it happened to me the first time so, first find a position to reduce the pain to let the nerve heal and then when its pretty much healed start doing pushups to get your strength back
Vaporizing cannabis and having my shoulder dislocated gave me BPN. Vaporizing also gave me molar cavities and as soon as I started using tinctures, my cavities started healing and feeling/pain is returning to my left arm. I used to oil pull twice a day and I used to tooth powders, floss, scrape tongue but it didn't help until I completely stopped vaporizing for a year and started using tinctures instead.
Can you have this chronically? Is it possible to have this with clear EMG? I have pain along shoulder blade down arm after lifting injury, clear shoulder MRI and cervical MRI.
My god.... I cannot stop crying right now. Almost 6 years I have suffered such severe hell. I have lost everything, and all the doctors and specialists never knew the root of the cause. So many times I wanted to kill myself. I cant stop crying right now. Ive never cried so hard in my life.
Even if it cant be fixed... just to know what it could be is indescribable. Ive had muscle biopsies, spec scans, countless mri's cat scans xrays. so many treatments to treat possibilities.
I hope you feel better now! I'm trying to diagnose myself since my doctors have no idea what I have. I haven't been able to use my right arm properly for 7 years now...I'm sending you positive vibes! You're not alone!
I got this and lost more than half my strength on my right side including my tricep, right pectoral and lateral. Pain was severe for the first couple months but now just a small pain in right shoulder blade. On top of weakness those muscles mentioned above are significantly smaller than the left side.
I was diagnosed with same all the kinds, some called it,muscular atrophy, some brachial neuritis, and some personage syndrome,as they didn't give it a single name,but im experiencing body exhaustion,gradual muscular weakness, nerve weakness,etc fed of with my life intended to get suicide
@@mirshahidsaleem1529 hey how are you doing now? I got this one day while at work about 9 months ago and it has been genuinely one of the worst years of my life. The pain is enough to deal with in itself, add in the muscle weakness and the fact that just *moving a little too much during the day* causes the pain to ramp up for several weeks and the lack of empathy/understanding/consideration from my coworkers/managers who act like I'm inconveniencing them for having a disabled arm and severe pain to deal with every minute of the day... I understand. and have felt the same way at several times over the past year. I hope youve found some relief since posting this 3 years ago
This is a great video! Thanks for educating us. However, it is becoming more clear that an 90% recovery rate at 3 year is a highly inflated image, as most patients only recover up to 70% functioning at long term (info Radboud University Netherlands, were NA is studied). This may seem much, bit it means that most people stay quite impaired, as 70% means that in your daily life you are confronted with many limitations, as in driving, opening up a can etc. etc. NA is nót bening, it can be severely invalidating!. Moreover, and sadly commonly not known or publicated, NA often has a much more wide spread than only to a single or even two shoulders. Many NA patients do have muliple problems as the NA spreads out in the body, especially im the legs, but for some to the diaphragma as well. However, since one shoulder usually is the source of the infection and usually most affected, docters tend to focus solely on that shoulder, if they have any knowledge of NA, bypassing the other complaints and keeping them out of treatment/revalidation. Also recovery of function is often based on comparing left and right function, which can lead to false optimistic outcomes about recovery if both sides are affected but side more. Lastly, up to 25-30% of the patients will have multiple NA attacks, adding up to more rest-dammage each time (70% of 70% is about 50%, and so on). Damage can be prevented or limited by prednison, if immedeatly givin at the start of the attack, and most docters don't know. Maybe you could asd these important facts to a new video!
So this could also effect the leg as well after it has effected the brachio and arm? After almost 6 years, I have gone undiagnosed and it has crippled me. I just found about this about 30 mins ago and I'm curious if you know of what I might expect , or if there is any level of hope for regaining my limbs after nearly 6 years
This is important right now because inhaling herbaceuticals (vaping or smoking) is becoming a big phenomenon. Also I believe this is related to nerve-induced epidymitis in the testes.
I suffered my Brachial Neuritis 4yrs ago,with the extreme pain to complete paralysed, then an acute scapula winging.l got a nerve test for confirmation,but the signs were plain to see.l am still recovering from it as l recently got another nerve test done to show it was still healing after 4yrs.l was so desperate that l visited a chiropractitioner when l was diagnosed and it has help my arm get back to normal position as it had dropped down and l can use it ,but it can still goes limp and very weak and pain on my ribs at the side and neck pain .l also got diagnosed with small fiber Neuropathy ,today infact, as l have other issues.Because it's a rare condition Brachial Neuritis it's difficult to find the right help.l would definitely try a Chiropractor again and there are amino acid ALA which is ment to help damaged nerves ,is also worth a try.Good luck.
I'm almost 5 year's in this coming Aug. Please find a D.O. they can give you adjustments putting everything in place you will be sore for a couple days but it helps. Google Anthony West D.O. as an example...... Better than a chiropractor and PT combined 🤓
Your ribs are out of place they are probably raised putting pressure on the brachial plexus. Subluxation is the word another word for out of place. A D.O. uses muscle movements to realign your body. No snap crackle pop like in a chiropractor's office.
Okay hopefully this gets read by everybody here. Let me tell you from experience. This is under rare diseases 1.64 in 100,000 people. It does not get much attention. You guys all need a very very very well known Sports Physiotherapist with IMS certification, and who has axcess to Platelet Rich Plasma treatment plus actue knowlege of your own individual specific presentations. There are 50 muscles the Brachial Plexus supplies or some shit like that. Confusing for the layman. Stop wasting your time in the gym anymore. It will only produce intense frustration and get pracrically zero results. Here's why. If there are 50 or so nerves roots, branches, and connectors that run down the c5 to t1 which are inflammed in PTS ( Parsonage Turner Syndrome,) I have to ask: Are any of us qualified to know how each of our 50 or muscles have been affected by this disease? Given the unique presentation each of us have? Not a chance. That requires a Sports Physiotherapist who has more knowlege than the other hacks out there treating geriatrics or whatnot. No disrespect. My reasoning is I wasted 7 years dealing with unqualified Physios who did not Professionally say so. Or refer me to someone who could help. I will save you each the headache and tell you. Your MD cannot help, your Neurologist can only help so much. But a qualified Sports Physiotherapist with IMS can work wonders if you really follow the exercises 3x to 8x or more per week. And get PRP if you can afford it as well. You may have to explore and research it. I cannot stress enough how much this will help. I promise you that by seeing the correct Physiotherapist it will save years of your lives. I wish you all a speedy recovery from this hell.
My father and I have both developed symptoms that appear to be PTS 4 and 3 weeks respectively, after our second covid vaccination. We both had shots in the right arm and it is the right shoulder and arm that the pain started out of nowhere while we were sleeping. Neither of us had a trauma event. We happened to be on the phone and he mentioned he was seeing an orthopedist and I said I was too. Then we realized it was for the same thing. Hmm
Hi Tim. How are you doing now? I woke up to severe pain in my left arm which is where the 2nd phizer dose was administered. I diagnosed myself pretty much because doctors are useless and 4 weeks after initial onset I am in hospital on a pain management plan. I am on prednisone as well as lyrica and will see my neurologist once I'm out. At what point did you start feeling better? I pray you have... any advice would be so much appreciated.
I got Brachial Neuritis from a Virus the pain was severe lasted for three weeks the weakness is lasting for over six months. This reminds me of Bell’s Palsy except when I had Bell’s it didn’t hurt Brachial Neuritis felt like a broken arm I took morphine.
I also had breathing issues with my second episode and ended up in hospital and they still didn't know it was brachial neuritis,only with my third time did they do a nerve test as my scapula was sticking out bad.
I was awoke from my sleep early one morning because i felt uncomfortable, as i tried to get back to sleep i realised that my left shoulder was in excruciating pain. I immediately had to get up out of bed and pace around the house. No position i put it in could give any relief at all. I had no idea what was going on. i thought did i dislocate my shoulder in my sleep or something? For the next 4 nights trying to lie down was near impossible so sleep was practically out of the question. Sitting on my lounge cradling my left arn was the only spot i be in. 1 year down the track and i haven't had an episode of that magnitude again, but problems are definitely there. Some movements with my left arm have just no power. The video describes it the best as a frozen shoulder, it just will not move when there is resistance. Visually it doesn't look good as i have winged scapula with visible muscle deterioration. It makes my weight training hard now because my left arn is significantly weaker than my right and starts to hurt when doing exercises a lot quicker. The doctor says its PTS and there is nothing we can do. I just have to wait it out. Does anybody have any suggestions on how to at least re build the muscles that have 'wasted away'? Anybody elses story similar to mine? Message me
I had pretty much the exact same thing happen to me as you described in 2009. I had it so bad that once the pain subsided (about 2 weeks) my arm was paralyzed from the elbow up, and certain parts of my arm were also numb. It took about 1 year before I could even think about going to the gym again. started with actually doing wall push ups and benching with a broomstick. and then SLOWLY working from there. it's been about 7 years and I'm still not 100%. however, all my secondary muscles have taken over and you would never know. the only way I can tell there is still some damage left is when my
DR. asks me to move my arm in specific positions. it was the worst pain i have ever felt in my life and It's a long road to recovery, however you'll get there. just hang in there.
i had same problems SINCE i got dental work done. teeth and jaw are one, sends out to the muscle and nerves, and they send it to arms. pls remove rootcanals and have a holistic dental check
Sir, after my surgery my emg shows denervation of infra and supra muscles. Please guide me what all the best exercise should I do to become 100% normal...Please reply
Hello. I'm suffering from tingly and numbness of my shoulders down to my fingers. No real pain at all just numbness when using tools and also when I sleep. Can you help?
Can Nerve root compression c5-c7 cause bracius neuritis and cause pain in throat and left side of head? In addition US found lipoma 3 cm underbleft shoulder blade, tad slips under it and pain is also there, so doctors say that lipoma does not cause pain, but I am not sure weather this is a coincidence or there are two parallel conditions that cause pain.
I fell out my door and grabbed the door jam as I was falling causing my arm to extend and caused me not to be able to raise it at all , about a week later I had a heart attack which I’m still on medication for . I now still have burning pain down my arm and across my back and chest and up to my throat it wakes me nightly almost feels like another heart attack but it only last a very small time . I’m now wondering if this has been the cause the whole time .
The worst pain of my life was caused by this. If I had had a gun, I would have shot myself. There was literally no position which offered any relief. The pain was constant and unrelenting. Having no medical insurance at the time, I suffered without treatment.
+Indrid_Cold There is not really a treatement... So your didn't miss anything.. Steroids do not always help for all people. I have the Heriditary form (HNA) suffered about about 8- 9 attacks already. Every 1-3 year.. Shortest attack was about 5 days in that most acute pain, longest was 6 months. And there is nothing you can do really.. They offered steroids and Lyrica.. but that i didn't want to take. Most people i know with the normal form only had it once in a lifetime. So... been there done that can be your addagio now.. ;-) Hope you recovered well. It takes 1-3 years..
+Ilse Steurs Well, it's been quite a few years since my last attack. I had it twice (1992 and 1995). The second attack was the worst. I was in utter agony. I don't know what kind I have. I do know that it did permanent damage to my brachial plexus since an electrical conduction test showed very abnormal signaling. My left side never did fully recover its strength, and that's my dominant arm. When I was in the worst of the pain, I knocked myself out with vodka. The next morning, the pain was gone, but my upper arm shoulder and back were paralyzed. Took a full year to recover. Since then, I have suffered all kinds of autoimmune illness. I've been on narcotic pain needs for about 8 years. They allow me to function and run my business.
I had this years ago on the left side of my body, it’s been 3 years and my left side is still weak and cramps easily. I work out regular I’m thinking my nerves permanently damaged
@@MrLetsplayagame at first the pain was aching and sharp, constant. Weeks later it started to get better after seeing the chiropractor a few times but then all my muscle wasted away. There’s still some slight dull pain in my back periodically
@@MrLetsplayagame mine feels like someone is trying to stab my arms off at the cartilage in my left arm whre it meets the shoulder, i am constanatly flexxing and in constant pain..
Hello Sir, my pain started as a sharp needle pain in back of my right shoulder 3 years ago and it spread to my entire right side, I have weakness, numbness, stiffnessand pain in my right arm and right leg mainly in knee, calf and ankle. I have gone to a ortho doctor but his physiotherapy prescription made my pain more worst. Can you please suggest how can I get better and heal this condition? Is this brachial neuritis? Pleas ehelp me suffering from 3 years almost😭🙏
You will need an MRI scan to properly diagnose. That said the acute phase of brachial neuritis normally resolves in under three months and it's effects limited to shoulder and arm.
first of all dont panic, then you should undergo proper physiotherapy but dont overstress muscles involved. eventually pain will resolve and strenght will come back 100% guarantee. swimming is very good for this aswell. and dont take comments of people who have no balls to fight something close to heart :)
I am actually swimming everyday and has seen improvement. But I have no grip strength at all, and I cant recruit my right hip for power moves (I do martial arts and my non affected side is way stronger) I hope to get my strength back this year. I really hope it will happen. Dont want to deal with another year of this.
Dear Doctor, I used to workout bullworker during my 20's when I had a sudden jerk caused by my coquettish behaviour of copying the professionals which had my neck almost locked in a angular position. As in this video when you said that the pain/ condition would subside in a week, it happened with me as well. Be that as it may, this jerk induced pain still comes back suddenly without a caution or any misdeed on my part reminiscing the days of bullworker (sling) practicing . I am a chronic asthma patient too with severe nasal polyps in the right nostril. I don't know which malady is connected to what, but as per some suggestions here, will swimming help me in controlling sudden onset of pain? Thanks for your consideration, Bullworker Freak
I’m currently going through it and for some reason, weightlifting and steam rooms relieve the pain when massage or NSAIDs didn’t make a dent. Issue is trying to sleep. Lying down is when it is most painful. Maybe I should sleep in the steam room 😀
I found postural relief with arm over head, max paracetamol, and sleeping tablets enabled me to sleep. In my case the acute phase lasted three weeks. In my case standard pain meds to including morphine didn't help. I was able to get three tabs of prescribed fentanyl, it was the only drug that relieved the pain and I saved these for the worst periods. However where I live, unless you have terminal cancer three is all you can get. It's a vile disease. Those who haven't suffered don't understand the intensity of the pain. In my case the acute phase lasted three weeks and ended as suddenly as it came. Good luck.
@@jimgraham6722 I’m glad you are on the mend. Luckily the acute pain period ‘only’ lasted for 2 weeks. sounds like some poor souls here have had it for much longer. I really feel for them. My forearm was part paralyzed of the back of it, but I am slowly building some strength up.
I am suffering from Branchial nuritis but there is no pain. I am getting less sensation. I am not able to pull my arm up bcoz my muscle is no generating and power to do so. pls help
Plz sister help me I'm suffering from the same,,I would like to know from u,plz contact me via social media or in other way so that I could learn from u as I'm suffering from 2012
first go see a holistic dentist. remove rootcanaltreated teeth. if you grind teeth at night you could possible see someone for this, ive heard botox in jawmuscles releases night pressure. the body is holisitic, everything is CONNECTED. prolotherapy could help too but first see a dentist is my advice. hope it helps!
i have same problem since last 5 months it happen right after my daughter was born and i had c-section even after doing MRI test doctors don't know how to treat this. i am screwed i don't know what to do. if some one knows treatment please let me know
Go on the Mayo Clinic blog for Parsonage Turner Syndrome to learn ways people have coped with this syndrome. It took me 9 months to get the right diagnosis. I went to a neurologist who also had a degree in neurophysiology.
Okay hopefully this gets read by everybody here. Let me tell you from experience. This is under rare diseases 1.64 in 100,000 people. It does not get much attention. You guys all need a very very very well known Sports Physiotherapist with IMS certification, and who has axcess to Platelet Rich Plasma treatment plus actue knowlege of your own individual specific presentations. There are 50 muscles the Brachial Plexus supplies or some shit like that. Confusing for the layman. Stop wasting your time in the gym anymore. It will only produce intense frustration and get pracrically zero results. Here's why. If there are 50 or so nerves roots, branches, and connectors that run down the c5 to t1 which are inflammed in PTS ( Parsonage Turner Syndrome,) I have to ask: Are any of us qualified to know how each of our 50 or muscles have been affected by this disease? Given the unique presentation each of us have? Not a chance. That requires a Sports Physiotherapist who has more knowlege than the other hacks out there treating geriatrics or whatnot. No disrespect. My reasoning is I wasted 7 years dealing with unqualified Physios who did not Professionally say so. Or refer me to someone who could help. I will save you each the headache and tell you. Your MD cannot help, your Neurologist can only help so much. But a qualified Sports Physiotherapist with IMS can work wonders if you really follow the exercises 3x to 8x or more per week. And get PRP if you can afford it as well. You may have to explore and research it. I cannot stress enough how much this will help. I promise you that by seeing the correct Physiotherapist it will save years of your lives. I wish you all a speedy recovery from this hell.
I have the cure !!!! One day I woke up unable to get up from back pain. Then, I started feeling a burning sensation throuout my arm and hand. To finish beeing completely numb. It hurt so bad that I litteraly begged my doctor to amputate my arm, which of course he refused and thank God! I suffered unimaginable pain for months. The only thing I found to help was wearing a neck and arm support brace. Until one day, at work, a colleague feeling funny , poked me right in the elbow nerve (you know, the one that gives you electric shocks?) I almost fainted from the pain. As I was laying down my head on my desk trying to cope with the pain, about 10 minutes later I started feeling my hand again !!!! 20 minutes, I could feel my arm!!! I could not believe it, the pain was slowly disappearing!!! So everyday for the next 3-4 days , I asked people (I trusted) to poke me on the elbow nerve as hard as possible or if I was alone, I would use a corner wall to bang my elbow on it. Well it completely disappeared. I swear it works!! Now and then it comes back but as soon as I feel it, I make sure to poke that nerve and it goes away. I met 2 other people having the Pts and I showed them the trick and it also worked. One of them almost crying saying he's been in pain for so many years. I'm simply writing this in hopes it gets to the maximum of people suffering from this excruciating syndrome and get cured fast and free!! Also, the reason why I shared my story in details is in case some doctor comes to this post and can understand this to help patients in the future. I wish you good luck and welcome back to your pain free life!
@@yasminibz9270 the start i tried not to get the second one...but i only last 1 month n caved in..it seemed like my body was craving the second shot...
I'm suffering this along with amyotrophy following being positive for hepatitis e - I'm currently in no mans land with no help on the horizon- I have tightness and numbness remaining in all limbs as well as my stomach
Anyone who managed to recover from this can share their experience? Every doctor i went to felt useless. On top of the pain my scapula is winging too alot. I hope a speedy recovery for everyone :/
Yes, I did, but it took quite a while. Required extensive physio over a period of several months, combined at times with pain meds, muscle relaxants, and even a cervical traction kit, ffs. Excruciating pain.
Long and slow. Left shoulder. Excruciating pain for 2 weeks, tears kinda pain. Took 4 Ibuprofen every 4 hours and slept sitting up with elbow on arm of chair. Only position I could get any sleep in. Sat in same position all day. As pain started to subside, my Deltoid totally atrophied. Looked like a 90 year old man in the nursing home on my left side. Ortho had no clue until he brought in a kid just out of College. He knew what PTS was. Had EMG done. EMG was normal. I think the EMG was normal because the pain had subsided and obviously the nerves were back to normal. But, I was left with no strength, could not lift my arm above my shoulder. He put me on PT. But, the PT was as painful 3 weeks after as it was the first day with no progress. I quit the PT and just started about normal activities, not stressing the shoulder. Everything slowly came back on it's own without PT, even the atrophied Deltoid. I am back to 80-90%. My final test was Golf. I lost 10 yards on my Irons and more on my Driver. I am going to start PT again to see if it makes it better or worse. I am certain everyone is different. If I were ever hit with it again, I would look for someone well-versed in PTS. I might or might not have lost alot of time with Doctors knew nothing about it. But, I believe rest and time is the only thing that will fix it. From onset to 80% was 6 months.
I was not officially diagnosed, but my symptoms were exactly as described and on both sides. Prednisone helped followed by PT. Felt normal after 8 months
Shelly Colson are you having this syndrome now? I have Pain on my shoulder and arm weakness for over a month, did MRI and got referred to spine specialist and he thinks I have Parsonage Turner syndrome. I collapsed after the second shot of merderna and ended up in ER. I wonder if the vaccine cause the syndrome
It's 1am here where I am. I have no one to talk to about this and it is eating me alive. I left voicemails on my doctor's phone lines.
This unknown illness has (obviously) effected my mental health not knowing and living my life in a bed. I dont care at this point if it cannot be fixed. Just knowing what it is restores more hope than anyone could ever imagine!
have you recoverd
Are you any better
Took them 3 months to figure out what is was for me. Sucks so bad.
Doctor Ebraheim is no one but you can really explain this very well.
Thank you so much for enlightening our minds
Dear Dr. Ebraheim, thank you very much for your clear and straight-to-the-point explanation. Being a patient, this is truly appreciated. Greetings from Italy
I had PTS. Woke up to excruciating pain one morning and was unable to move my arm. In the ER no pain medicine helped, but prednisone did. After the pain subsided-about 2 weeks-my arm remained paralyzed for an additional month. I could grab things with my hand but couldn’t lift it. I developed muscle atrophy too. It’s been several years and I’m fully recovered. PTS is a mysterious syndrome.
I have same as you.. i hope i will refind all capacity. It hurts still by night..
@@heddap1787 yep me too , got it after a vaccine 4 weeks ago , unbelievable pain and still only getting 1 to 2 hours sleep with limited arm function , any advise for me ?
@@marts5555 believe in it, hope it, work on it everyday for 30 mins if you can ... I have had 10 days of anti-inflammatory drugs and I am in 40 sessions of physiotherapy. I now raise my arm. and I can carry ... 500 grams by lifting it ... only. it is a long journey. nobody knows in fact, because after the neurological reconnection at 80%, it is now necessary to do an immense work to re-muscle again and again ... They told me in 18 months you will be able to raise your arm, in 4 months, I'm there. the course is long and with stages. courage!
@@Apophenia_Pareidolia__Izou thank you for your kind response, 3 physo sessions already under, long Rd to recovery, thanks again
@@marts5555 I got it after my 2nd moderne dose. I went to the chiropractor for the acute nightly pain and slept with a hot pad under my shoulder. I think that helped. Acute lasted 2-4 weeks than did physical therapy
I got this in both arms, about a month ago... The pain was literally (no exaggeration) like my arms were being ripped off at the shoulder. The only relief was opiates, but the hospital is so stingy with them, now, I was only able to get enough for 1 day. Finally, after 2 1/2 weeks, the pain subsided, and now I cannot use my biceps, for anything. It's a pretty bizarre and random condition, and still not understood or respected by many medical professionals.
how is your dental situation?
Okay hopefully this gets read by everybody here. Let me tell you from experience. This is under rare diseases 1.64 in 100,000 people. It does not get much attention.
You guys all need a very very very well known Sports Physiotherapist with IMS certification, and who has axcess to Platelet Rich Plasma treatment plus actue knowlege of your own individual specific presentations.
There are 50 muscles the Brachial Plexus supplies or some shit like that. Confusing for the layman.
Stop wasting your time in the gym anymore. It will only produce intense frustration and get pracrically zero results. Here's why. If there are 50 or so nerves roots, branches, and connectors that run down the c5 to t1 which are inflammed in PTS ( Parsonage Turner Syndrome,) I have to ask: Are any of us qualified to know how each of our 50 or muscles have been affected by this disease? Given the unique presentation each of us have?
Not a chance.
That requires a Sports Physiotherapist who has more knowlege than the other hacks out there treating geriatrics or whatnot. No disrespect. My reasoning is I wasted 7 years dealing with unqualified Physios who did not Professionally say so. Or refer me to someone who could help.
I will save you each the headache and tell you. Your MD cannot help, your Neurologist can only help so much.
But a qualified Sports Physiotherapist with IMS can work wonders if you really follow the exercises 3x to 8x or more per week. And get PRP if you can afford it as well.
You may have to explore and research it. I cannot stress enough how much this will help. I promise you that by seeing the correct Physiotherapist it will save years of your lives.
I wish you all a speedy recovery from this hell.
5 days after a horrible FLU I was woken up by upper back pain which radiated to my shoulder. 2 weeks later pain was gone. Now I have a winged scapula due to my long thoracic nerve damage affecting my serratus anterior muscle. I am currently going through therapy.
How are you now and any tips you can give me?
@@tetricko Hello Patrick. I am fully recovered now after 6 months. I found a sports medicine Dr in Miami who performed a nerve conduction test which confirmed the nerve damage. I did therapy for about 3 months. I had to wait for the nerve to regrow on its own. Therapy helped a lot.
@@MoisesSimana im happy you recovered can you please give me all the details ive been suffering for almost 2 years and im at my wits end please all kind of knowledge could help me to seek treatment thank you
@@MoisesSimana what type of theraphy did you do?
@@Esj.91 same therapy that is followed when brachial neuritis focused on working on the serratus anterior muscle which is the muscle I had paralyzed.
I've experienced an Aortic Dissection, Pulmonary Embolism, and PTS. The worst pain I've experienced is PTS. The pain medication did little to help. God help those that experience this syndrome, ease their suffering, and help them to heal quickly.
do u have rootcanaltreated teeth? dental problems in the past? teeth grinding at night?
@@gijsbon8065hello.i have cracked wisdom tooth and now I'm sick with PTS my arm is handicapped
U think is related?
@@domencendak9481 my molar are fucked up to. I currently believe I have PTS atm
Thanks for the terrific, in-depth video!!
The excruciating pain +pain from HELL, as I call it) started about five weeks after my right wisdom tooth was extracted.
There is no way to describe the pain, it is unbearable.
In one week my doctor prescribed three different drugs which I cannot take because the side effects are dreadful. Pretension ....I refuse to touch.
As for sleep.....what is that ?
Wonder if physiotherapy might help ?
I empathize with all fellow sufferers.
Try Lornoxicam 8mg or Diclafenac injections.
I do not notice the effects of acupuncture, chiropractic, ostiopathy, physiotherapy and massage.
Hey, me also shoulder pain after a tooth was extracted. 🙄
Mine started from wisdom tooth too.
Hey man can you update us on your recovery and how did you do it.
A treatment that combines antibiotics, Prednisone, gabapentin, chiropractic and massage functions to me.
one of the best , thanks
Thank you
I have been living the last 5 years without use of my left arm, and in agony. I've gone through extensive testing and we just heard about PTS... I have spent every penny I have trying to find out what was wrong with me (Due to extensive history of physical trauma to brain, and spine it was tough to diagnose what was wrong with me.)
I have also lost the use of my left leg about a month after the shoulder and arm loss which they couldnt understand either.
I am yet to be diagnosed.. I just found out about this minutes ago and I'm researching it now, and will contact my neurologist tomorrow.
Any advice on what to look for, or what you might recommend would be great.
I am currently living in Florida, and after 5 years seeing local doctors and even trying Mayo clinic, I have been without an answer. Are treatment options available even if it has been this long?
what is the situation in your mouth? did you have rootcanals? are you teethgrinding at night?
Hey man i hope you recovered well. I am going through this hell too if u have any advice for me please help me.
Again i pray for you to have great recovery.
You have given great info. As far as consulting doctor, its waste. If you consult an orthopedic, he will check the bones and leave it. General physician will look at it generally and won't understand. Only if the neurologist is an intelligent guy, then he can detect it, with minimal treatment idea.
sounds about right
I was diagnosed 2 years ago. Im getting better but I cant feel any strength at all on my right arm. Its my dominant arm too.
I do martial arts and I cant recruit my right hip for power punches, kicks. Basically my right side is bust and feels useless..
Hopefully it gets better soon.
do pushups, thats how i fixed it in 6 months.
my right triceps and pectoralis major were completely dead, as if they dont exist
then i started trying to do pushups and after about a week i could do 1, barely
How are you now and can you recommend anything?
@@tetricko that was 4 years ago and after 2 months of non-stop pain it stopped hurting 90% and after 4 months of pushups i had my strength and functionality back 100%
now it happened again like a month and half ago and, right now, i can still feel a little bit of pain when i wake up. after about 1-2 hours pain goes away but i still dont have power in same muscles
if you have constant pain, first you should find a position where it hurts least. for me it was my arm up and bent in elbow behind my head + neck / spine forward - like when you push your shoulders backwards
while i walk, i keep my shoulder up and back to reduce the pain up to 90%
when i lay down, the only position that helped me was to lay on my back and keep the hand in same position - above head and bent in elbow
one of the indicators that the plexus brachi is affected is if you can notice your pupils different size - Horner syndrome
it happened to me the first time
so, first find a position to reduce the pain to let the nerve heal and then when its pretty much healed start doing pushups to get your strength back
Vaporizing cannabis and having my shoulder dislocated gave me BPN. Vaporizing also gave me molar cavities and as soon as I started using tinctures, my cavities started healing and feeling/pain is returning to my left arm. I used to oil pull twice a day and I used to tooth powders, floss, scrape tongue but it didn't help until I completely stopped vaporizing for a year and started using tinctures instead.
Well there’s my answer. I literally just wondered this. Thank you
Brachial plexopathy is there and motor neuropathy also.
On prednisolone 60mg from last 15 days
How long I had to depend on steroids
Can you have this chronically? Is it possible to have this with clear EMG? I have pain along shoulder blade down arm after lifting injury, clear shoulder MRI and cervical MRI.
ill find out because they say its pinched nerves
My god.... I cannot stop crying right now. Almost 6 years I have suffered such severe hell. I have lost everything, and all the doctors and specialists never knew the root of the cause.
So many times I wanted to kill myself. I cant stop crying right now. Ive never cried so hard in my life.
Even if it cant be fixed... just to know what it could be is indescribable. Ive had muscle biopsies, spec scans, countless mri's cat scans xrays. so many treatments to treat possibilities.
I hope you feel better now! I'm trying to diagnose myself since my doctors have no idea what I have. I haven't been able to use my right arm properly for 7 years now...I'm sending you positive vibes! You're not alone!
MrCarter'sRods how are you doing now? Really sorry to hear about your pain, may you get well soon
@@mohsinishfaq2554 assalamuallikum,plz bro I want learn from u as I'm suffering from the same from 2010,plz give ur contact or social media access
@@carterscustomrods This is late, but you don't/didn't have brachial neuritis; BN is a temporary temporary condition.
How to differentiate between parsonage turner syndrome and tos
Excellent! Thank you !!
I got this and lost more than half my strength on my right side including my tricep, right pectoral and lateral. Pain was severe for the first couple months but now just a small pain in right shoulder blade. On top of weakness those muscles mentioned above are significantly smaller than the left side.
I have experienced it. In my case there was a slow recovery. Good luck.
Jacob it muscle atrophy. I'm one of the rare persons that have PTS hereditarely
Thanks dad.
Shouldn’t we say “Acute shoulder pain + winging of scapula - Rule IN (not rule out as you said) brachial neuritis”?
I think he means if you have acute severe shoulder pain and winging, you need to rule out brachial neuritis
I was diagnosed with same all the kinds, some called it,muscular atrophy, some brachial neuritis, and some personage syndrome,as they didn't give it a single name,but im experiencing body exhaustion,gradual muscular weakness, nerve weakness,etc fed of with my life intended to get suicide
@@mirshahidsaleem1529 hey how are you doing now? I got this one day while at work about 9 months ago and it has been genuinely one of the worst years of my life. The pain is enough to deal with in itself, add in the muscle weakness and the fact that just *moving a little too much during the day* causes the pain to ramp up for several weeks and the lack of empathy/understanding/consideration from my coworkers/managers who act like I'm inconveniencing them for having a disabled arm and severe pain to deal with every minute of the day... I understand. and have felt the same way at several times over the past year. I hope youve found some relief since posting this 3 years ago
This is a great video! Thanks for educating us. However, it is becoming more clear that an 90% recovery rate at 3 year is a highly inflated image, as most patients only recover up to 70% functioning at long term (info Radboud University Netherlands, were NA is studied). This may seem much, bit it means that most people stay quite impaired, as 70% means that in your daily life you are confronted with many limitations, as in driving, opening up a can etc. etc. NA is nót bening, it can be severely invalidating!. Moreover, and sadly commonly not known or publicated, NA often has a much more wide spread than only to a single or even two shoulders. Many NA patients do have muliple problems as the NA spreads out in the body, especially im the legs, but for some to the diaphragma as well. However, since one shoulder usually is the source of the infection and usually most affected, docters tend to focus solely on that shoulder, if they have any knowledge of NA, bypassing the other complaints and keeping them out of treatment/revalidation. Also recovery of function is often based on comparing left and right function, which can lead to false optimistic outcomes about recovery if both sides are affected but side more. Lastly, up to 25-30% of the patients will have multiple NA attacks, adding up to more rest-dammage each time (70% of 70% is about 50%, and so on). Damage can be prevented or limited by prednison, if immedeatly givin at the start of the attack, and most docters don't know. Maybe you could asd these important facts to a new video!
So this could also effect the leg as well after it has effected the brachio and arm? After almost 6 years, I have gone undiagnosed and it has crippled me. I just found about this about 30 mins ago and I'm curious if you know of what I might expect , or if there is any level of hope for regaining my limbs after nearly 6 years
@@carterscustomrodssame this happened to me on 2016
Is there any difference between brachial neuritis and brachial neuropathy?
This is important right now because inhaling herbaceuticals (vaping or smoking) is becoming a big phenomenon. Also I believe this is related to nerve-induced epidymitis in the testes.
I suffered my Brachial Neuritis 4yrs ago,with the extreme pain to complete paralysed, then an acute scapula winging.l got a nerve test for confirmation,but the signs were plain to see.l am still recovering from it as l recently got another nerve test done to show it was still healing after 4yrs.l was so desperate that l visited a chiropractitioner when l was diagnosed and it has help my arm get back to normal position as it had dropped down and l can use it ,but it can still goes limp and very weak and pain on my ribs at the side and neck pain .l also got diagnosed with small fiber Neuropathy ,today infact, as l have other issues.Because it's a rare condition Brachial Neuritis it's difficult to find the right help.l would definitely try a Chiropractor again and there are amino acid ALA which is ment to help damaged nerves ,is also worth a try.Good luck.
I'm almost 5 year's in this coming Aug. Please find a D.O. they can give you adjustments putting everything in place you will be sore for a couple days but it helps. Google Anthony West D.O. as an example...... Better than a chiropractor and PT combined 🤓
Your ribs are out of place they are probably raised putting pressure on the brachial plexus. Subluxation is the word another word for out of place. A D.O. uses muscle movements to realign your body. No snap crackle pop like in a chiropractor's office.
Okay hopefully this gets read by everybody here. Let me tell you from experience. This is under rare diseases 1.64 in 100,000 people. It does not get much attention.
You guys all need a very very very well known Sports Physiotherapist with IMS certification, and who has axcess to Platelet Rich Plasma treatment plus actue knowlege of your own individual specific presentations.
There are 50 muscles the Brachial Plexus supplies or some shit like that. Confusing for the layman.
Stop wasting your time in the gym anymore. It will only produce intense frustration and get pracrically zero results. Here's why. If there are 50 or so nerves roots, branches, and connectors that run down the c5 to t1 which are inflammed in PTS ( Parsonage Turner Syndrome,) I have to ask: Are any of us qualified to know how each of our 50 or muscles have been affected by this disease? Given the unique presentation each of us have?
Not a chance.
That requires a Sports Physiotherapist who has more knowlege than the other hacks out there treating geriatrics or whatnot. No disrespect. My reasoning is I wasted 7 years dealing with unqualified Physios who did not Professionally say so. Or refer me to someone who could help.
I will save you each the headache and tell you. Your MD cannot help, your Neurologist can only help so much.
But a qualified Sports Physiotherapist with IMS can work wonders if you really follow the exercises 3x to 8x or more per week. And get PRP if you can afford it as well.
You may have to explore and research it. I cannot stress enough how much this will help. I promise you that by seeing the correct Physiotherapist it will save years of your lives.
I wish you all a speedy recovery from this hell.
Hey man did you manage to recover? I hope so.
If you can give me advice because i am going through this hell right now.
@@Ggelinas man i am from the middleeast there is no physical therspist with what you re saying. Can u help me?
My father and I have both developed symptoms that appear to be PTS 4 and 3 weeks respectively, after our second covid vaccination. We both had shots in the right arm and it is the right shoulder and arm that the pain started out of nowhere while we were sleeping. Neither of us had a trauma event. We happened to be on the phone and he mentioned he was seeing an orthopedist and I said I was too. Then we realized it was for the same thing. Hmm
Hi Tim. How are you doing now? I woke up to severe pain in my left arm which is where the 2nd phizer dose was administered. I diagnosed myself pretty much because doctors are useless and 4 weeks after initial onset I am in hospital on a pain management plan. I am on prednisone as well as lyrica and will see my neurologist once I'm out.
At what point did you start feeling better? I pray you have... any advice would be so much appreciated.
Hey both of you, I’m experiencing the same post covid shot.
Me too. Pfizer booster then one month later pain and paralyzed right arm
Did you recover?
how long after your shots did the pain develop and which vax was involved?
also curious if you have developed any POTS like symptoms as well
I got Brachial Neuritis from a Virus the pain was severe lasted for three weeks the weakness is lasting for over six months. This reminds me of Bell’s Palsy except when I had Bell’s it didn’t hurt Brachial Neuritis felt like a broken arm I took morphine.
Felt like someone was trying to drill into my shoulder blade for about a month. Morphine didn’t touch my pain.
I also had breathing issues with my second episode and ended up in hospital and they still didn't know it was brachial neuritis,only with my third time did they do a nerve test as my scapula was sticking out bad.
It’s felt like a stone inside my chest when ever I’m out of breath I hear you!!
@@PhuriousStyles l can,t lie on my right side when sleeping as l feel my breathing restricted .
How are you now
@@PhuriousStyles do you think that is related to the arm pain ? I have the same symptoms after the Pfizer covid shot
@@sarahlorenz901 me 2 bk in 2021 oct-dec...now im here finding out i am not the only one who got tricked into the "self check out line"
I was awoke from my sleep early one morning because i felt uncomfortable, as i tried to get back to sleep i realised that my left shoulder was in excruciating pain.
I immediately had to get up out of bed and pace around the house. No position i put it in could give any relief at all. I had no idea what was going on.
i thought did i dislocate my shoulder in my sleep or something?
For the next 4 nights trying to lie down was near impossible so sleep was practically out of the question. Sitting on my lounge cradling my left arn was the only spot i be in.
1 year down the track and i haven't had an episode of that magnitude again, but problems are definitely there.
Some movements with my left arm have just no power. The video describes it the best as a frozen shoulder, it just will not move when there is resistance. Visually it doesn't look good as i have winged scapula with visible muscle deterioration. It makes my weight training hard now because my left arn is significantly weaker than my right and starts to hurt when doing exercises a lot quicker.
The doctor says its PTS and there is nothing we can do. I just have to wait it out. Does anybody have any suggestions on how to at least re build the muscles that have 'wasted away'?
Anybody elses story similar to mine? Message me
I had pretty much the exact same thing happen to me as you described in 2009. I had it so bad that once the pain subsided (about 2 weeks) my arm was paralyzed from the elbow up, and certain parts of my arm were also numb. It took about 1 year before I could even think about going to the gym again. started with actually doing wall push ups and benching with a broomstick. and then SLOWLY working from there. it's been about 7 years and I'm still not 100%. however, all my secondary muscles have taken over and you would never know. the only way I can tell there is still some damage left is when my
DR. asks me to move my arm in specific positions. it was the worst pain i have ever felt in my life and It's a long road to recovery, however you'll get there. just hang in there.
Mate im hearing you.... the pain was mind blowing. And yours sounds worse than mine.
Have you been to a specialist about it? What did they say?
i had same problems SINCE i got dental work done. teeth and jaw are one, sends out to the muscle and nerves, and they send it to arms. pls remove rootcanals and have a holistic dental check
thanks for your expertise...
Sir, after my surgery my emg shows denervation of infra and supra muscles. Please guide me what all the best exercise should I do to become 100% normal...Please reply
Hello. I'm suffering from tingly and numbness of my shoulders down to my fingers.
No real pain at all just numbness when using tools and also when I sleep.
Can you help?
Can Nerve root compression c5-c7 cause bracius neuritis and cause pain in throat and left side of head? In addition US found lipoma 3 cm underbleft shoulder blade, tad slips under it and pain is also there, so doctors say that lipoma does not cause pain, but I am not sure weather this is a coincidence or there are two parallel conditions that cause pain.
Awsome video.
I fell out my door and grabbed the door jam as I was falling causing my arm to extend and caused me not to be able to raise it at all , about a week later I had a heart attack which I’m still on medication for . I now still have burning pain down my arm and across my back and chest and up to my throat it wakes me nightly almost feels like another heart attack but it only last a very small time . I’m now wondering if this has been the cause the whole time .
I got this after my covid19 vaccination
My co-worker has also. It seems many people are getting it from the "safe and effective" shot...
Same here
Same here. Did it go away for anyone ?
@@sarahlorenz901 just starting my ride 2 months ago
My husband also has it now
The worst pain of my life was caused by this. If I had had a gun, I would have shot myself. There was literally no position which offered any relief. The pain was constant and unrelenting. Having no medical insurance at the time, I suffered without treatment.
Have you been able to get obamacare?
+Indrid_Cold There is not really a treatement... So your didn't miss anything.. Steroids do not always help for all people. I have the Heriditary form (HNA) suffered about about 8- 9 attacks already. Every 1-3 year.. Shortest attack was about 5 days in that most acute pain, longest was 6 months. And there is nothing you can do really.. They offered steroids and Lyrica.. but that i didn't want to take. Most people i know with the normal form only had it once in a lifetime. So... been there done that can be your addagio now.. ;-) Hope you recovered well. It takes 1-3 years..
+Tiffany Vu R. Yes, I rely on it for the last year. Thank god for president Obama.
+Ilse Steurs Well, it's been quite a few years since my last attack. I had it twice (1992 and 1995). The second attack was the worst. I was in utter agony. I don't know what kind I have. I do know that it did permanent damage to my brachial plexus since an electrical conduction test showed very abnormal signaling. My left side never did fully recover its strength, and that's my dominant arm. When I was in the worst of the pain, I knocked myself out with vodka. The next morning, the pain was gone, but my upper arm shoulder and back were paralyzed. Took a full year to recover. Since then, I have suffered all kinds of autoimmune illness. I've been on narcotic pain needs for about 8 years. They allow me to function and run my business.
ditto.
I had this years ago on the left side of my body, it’s been 3 years and my left side is still weak and cramps easily. I work out regular I’m thinking my nerves permanently damaged
Hi. May i ask what was your pain pattern? Have you experienced constant pain (dull/burning/ache) in the rhomboid, shoulder blade and shoulder?
Thanks
@@MrLetsplayagame at first the pain was aching and sharp, constant. Weeks later it started to get better after seeing the chiropractor a few times but then all my muscle wasted away. There’s still some slight dull pain in my back periodically
@@MrLetsplayagame mine feels like someone is trying to stab my arms off at the cartilage in my left arm whre it meets the shoulder, i am constanatly flexxing and in constant pain..
10 months now going strong.
Patricia L Hello may check me n my whatsapp +255692423244....i had an accident back 2016..same case but im getting strong now
How sister,will u plz Gods sake help me by giving me the suggestion as wt u did and adopt
How are you going 4 years later? Any advice for those of us suffering? 😔
Hello Sir, my pain started as a sharp needle pain in back of my right shoulder 3 years ago and it spread to my entire right side, I have weakness, numbness, stiffnessand pain in my right arm and right leg mainly in knee, calf and ankle. I have gone to a ortho doctor but his physiotherapy prescription made my pain more worst. Can you please suggest how can I get better and heal this condition? Is this brachial neuritis? Pleas ehelp me suffering from 3 years almost😭🙏
You will need an MRI scan to properly diagnose.
That said the acute phase of brachial neuritis normally resolves in under three months and it's effects limited to shoulder and arm.
first of all dont panic, then you should undergo proper physiotherapy but dont overstress muscles involved. eventually pain will resolve and strenght will come back 100% guarantee. swimming is very good for this aswell. and dont take comments of people who have no balls to fight something close to heart :)
I am actually swimming everyday and has seen improvement.
But I have no grip strength at all, and I cant recruit my right hip for power moves (I do martial arts and my non affected side is way stronger)
I hope to get my strength back this year. I really hope it will happen. Dont want to deal with another year of this.
Dear Doctor, I used to workout bullworker during my 20's when I had a sudden jerk caused by my coquettish behaviour of copying the professionals which had my neck almost locked in a angular position. As in this video when you said that the pain/ condition would subside in a week, it happened with me as well. Be that as it may, this jerk induced pain still comes back suddenly without a caution or any misdeed on my part reminiscing the days of bullworker (sling) practicing .
I am a chronic asthma patient too with severe nasal polyps in the right nostril. I don't know which malady is connected to what, but as per some suggestions here, will swimming help me in controlling sudden onset of pain?
Thanks for your consideration,
Bullworker Freak
I think it comes from over use of the right or left arm and the muscles become fatigue.
I’m currently going through it and for some reason, weightlifting and steam rooms relieve the pain when massage or NSAIDs didn’t make a dent. Issue is trying to sleep. Lying down is when it is most painful. Maybe I should sleep in the steam room 😀
I found postural relief with arm over head, max paracetamol, and sleeping tablets enabled me to sleep. In my case the acute phase lasted three weeks.
In my case standard pain meds to including morphine didn't help. I was able to get three tabs of prescribed fentanyl, it was the only drug that relieved the pain and I saved these for the worst periods. However where I live, unless you have terminal cancer three is all you can get.
It's a vile disease. Those who haven't suffered don't understand the intensity of the pain.
In my case the acute phase lasted three weeks and ended as suddenly as it came.
Good luck.
@@jimgraham6722 I’m glad you are on the mend. Luckily the acute pain period ‘only’ lasted for 2 weeks. sounds like some poor souls here have had it for much longer. I really feel for them. My forearm was part paralyzed of the back of it, but I am slowly building some strength up.
Good, thanks
I am suffering from Branchial nuritis but there is no pain. I am getting less sensation. I am not able to pull my arm up bcoz my muscle is no generating and power to do so. pls help
Plz sister help me I'm suffering from the same,,I would like to know from u,plz contact me via social media or in other way so that I could learn from u as I'm suffering from 2012
Same here
first go see a holistic dentist. remove rootcanaltreated teeth. if you grind teeth at night you could possible see someone for this, ive heard botox in jawmuscles releases night pressure. the body is holisitic, everything is CONNECTED. prolotherapy could help too but first see a dentist is my advice. hope it helps!
How are you doing now? Any advice please?
i have same problem since last 5 months it happen right after my daughter was born and i had c-section even after doing MRI test doctors don't know how to treat this. i am screwed i don't know what to do. if some one knows treatment please let me know
Kinjal Patel hello how are you right now can you please suggest same for my mom if you got a right treatment
Sister kinjal plz help me as I'm suffering from the same since 2010
Go on the Mayo Clinic blog for Parsonage Turner Syndrome to learn ways people have coped
with this syndrome. It took me 9 months to get the right diagnosis. I went to a neurologist who
also had a degree in neurophysiology.
Okay hopefully this gets read by everybody here. Let me tell you from experience. This is under rare diseases 1.64 in 100,000 people. It does not get much attention.
You guys all need a very very very well known Sports Physiotherapist with IMS certification, and who has axcess to Platelet Rich Plasma treatment plus actue knowlege of your own individual specific presentations.
There are 50 muscles the Brachial Plexus supplies or some shit like that. Confusing for the layman.
Stop wasting your time in the gym anymore. It will only produce intense frustration and get pracrically zero results. Here's why. If there are 50 or so nerves roots, branches, and connectors that run down the c5 to t1 which are inflammed in PTS ( Parsonage Turner Syndrome,) I have to ask: Are any of us qualified to know how each of our 50 or muscles have been affected by this disease? Given the unique presentation each of us have?
Not a chance.
That requires a Sports Physiotherapist who has more knowlege than the other hacks out there treating geriatrics or whatnot. No disrespect. My reasoning is I wasted 7 years dealing with unqualified Physios who did not Professionally say so. Or refer me to someone who could help.
I will save you each the headache and tell you. Your MD cannot help, your Neurologist can only help so much.
But a qualified Sports Physiotherapist with IMS can work wonders if you really follow the exercises 3x to 8x or more per week. And get PRP if you can afford it as well.
You may have to explore and research it. I cannot stress enough how much this will help. I promise you that by seeing the correct Physiotherapist it will save years of your lives.
I wish you all a speedy recovery from this hell.
I have the cure !!!! One day I woke up unable to get up from back pain. Then, I started feeling a burning sensation throuout my arm and hand. To finish beeing completely numb. It hurt so bad that I litteraly begged my doctor to amputate my arm, which of course he refused and thank God! I suffered unimaginable pain for months. The only thing I found to help was wearing a neck and arm support brace. Until one day, at work, a colleague feeling funny , poked me right in the elbow nerve (you know, the one that gives you electric shocks?) I almost fainted from the pain. As I was laying down my head on my desk trying to cope with the pain, about 10 minutes later I started feeling my hand again !!!! 20 minutes, I could feel my arm!!! I could not believe it, the pain was slowly disappearing!!! So everyday for the next 3-4 days , I asked people (I trusted) to poke me on the elbow nerve as hard as possible or if I was alone, I would use a corner wall to bang my elbow on it. Well it completely disappeared. I swear it works!! Now and then it comes back but as soon as I feel it, I make sure to poke that nerve and it goes away. I met 2 other people having the Pts and I showed them the trick and it also worked. One of them almost crying saying he's been in pain for so many years. I'm simply writing this in hopes it gets to the maximum of people suffering from this excruciating syndrome and get cured fast and free!! Also, the reason why I shared my story in details is in case some doctor comes to this post and can understand this to help patients in the future. I wish you good luck and welcome back to your pain free life!
How about to use ultra sling (abduction pillow sling) for conservative therapy?
What do you mean? There is nervepain and paralyses. What has an armswing gonna treat?
Last October covid shot still in pain and weakness in arm 😫
Did you get it in Oct 2020? Did the weakness happen from the start or months later?
Same. Just got my first shot 3 weeks ago and hoping this wouldn’t last that long ?!😳
2021 oct-dec i got my shots 2 of them. had seizures first ... now i got this
@@yasminibz9270 the start i tried not to get the second one...but i only last 1 month n caved in..it seemed like my body was craving the second shot...
Oh God I'm suffering from the same since 2010 plz help me out,is there as way out to treat it
Find a D.O for adjustments.....
remove rootcanals by a holistic dentist, they are open to do it. are you grinding teeth at night?
@@gijsbon8065 grinding teeth yes. how to stop?
Wes Welk idk.. but def use a mouthguard at night for protection
@@jadewindom68 what does D,O refer, plz help
I'm suffering this along with amyotrophy following being positive for hepatitis e - I'm currently in no mans land with no help on the horizon- I have tightness and numbness remaining in all limbs as well as my stomach
?u ok gary?
Yes, i sufferd this disease , it's so fucked up
What do you think of gluten as cause of autoimmune illness?
I've suffered for 6 years. Scapular winging. None of my doctors knew what the issue was nor did they diagnose me. I still have scapular winging
thats poor show. you have some reason for complaint
Same here since 2010
@@mirshahidsaleem1529 I still have scapular winging 😔
So do i,arising suicidal tendency
@@mirshahidsaleem1529 😪
Anyone who managed to recover from this can share their experience?
Every doctor i went to felt useless. On top of the pain my scapula is winging too alot.
I hope a speedy recovery for everyone :/
me 2
Anyone recovered from this?
Yes, I did, but it took quite a while. Required extensive physio over a period of several months, combined at times with pain meds, muscle relaxants, and even a cervical traction kit, ffs. Excruciating pain.
Long and slow. Left shoulder. Excruciating pain for 2 weeks, tears kinda pain. Took 4 Ibuprofen every 4 hours and slept sitting up with elbow on arm of chair. Only position I could get any sleep in. Sat in same position all day. As pain started to subside, my Deltoid totally atrophied. Looked like a 90 year old man in the nursing home on my left side. Ortho had no clue until he brought in a kid just out of College. He knew what PTS was. Had EMG done. EMG was normal. I think the EMG was normal because the pain had subsided and obviously the nerves were back to normal. But, I was left with no strength, could not lift my arm above my shoulder. He put me on PT. But, the PT was as painful 3 weeks after as it was the first day with no progress. I quit the PT and just started about normal activities, not stressing the shoulder. Everything slowly came back on it's own without PT, even the atrophied Deltoid. I am back to 80-90%. My final test was Golf. I lost 10 yards on my Irons and more on my Driver. I am going to start PT again to see if it makes it better or worse. I am certain everyone is different. If I were ever hit with it again, I would look for someone well-versed in PTS. I might or might not have lost alot of time with Doctors knew nothing about it. But, I believe rest and time is the only thing that will fix it. From onset to 80% was 6 months.
I was not officially diagnosed, but my symptoms were exactly as described and on both sides. Prednisone helped followed by PT. Felt normal after 8 months
Finally I know this is what I have from the the covid Pfizer shot !
Shelly Colson are you having this syndrome now? I have Pain on my shoulder and arm weakness for over a month, did MRI and got referred to spine specialist and he thinks I have Parsonage Turner syndrome. I collapsed after the second shot of merderna and ended up in ER. I wonder if the vaccine cause the syndrome
@@huynhcindy512 yes unfortunately my arm is still weak and painful as well as my shoulder since November 2020 .
My main showed nothing and physical therapy did nothing. Cortisone shot and rest pretty much
Same i thought it was because I was sleeping on my side wrong im scared
@@shellycolson2181 do you think this is seroius? Ive also had shortness of breath as well
He pain Can't be discribed...tramadol don't helps
My last name is parsonage......
Ja hvaja
Saravana .match this disease iruku