Thank you for this. I have Ehlers Danlos and Hypermobility, dysautonomia (positive tilt table test), etc., and a trigger event of getting hit by a semi-truck at 65 mph on 12/15/2010. All of the pieces are finally fitting together after seeking answers since childhood.
Wonderful webinar, I learned so much! Thank you to Dr. Rowe & The Ehlers-Danlos Society for this important information. I will be on the lookout for the print out as well
This just radically changed my daughter's life and my own. We both have hEDS and have orthostatic intolerance which presents in different ways. Thank you so much!
Thank you so much for sharing this informative webinar. As someone diagnosed with EDS, POTS and MCAS I have found this information extremely helpful and look forward to sharing it with my GP and trying to implement the non-pharmacological solutions.
I been directed to this video from the Ehlers Danlos Syndrome Page on Facebook, really informative, would to love know how medication such as amatriplyn would affect with suspected POTs I have also got hEDS and Fibromyalgia
As a certified holistic health coach who loves learning about medical conditions and investigating natural wellness solutions for them, how would I be invited to attend these webinars live?
They're webinars - all you have to do is sign up beforehand. They're announced in our newsletter, sign up through ehlersdanlossociety.dm.networkforgood.com/forms/connect-newsletter-sign-up, at our web site www.ehlers-danlos.com/webinar-schedule/, on our Facebook page, facebook.com/ehlers.danlos/, on Instagram @ehlers.danlos, and on twitter.com/TheEDSociety - the next is scheduled on January 30, more information soon.
Dr Rowe is the best
This has explained my condition completely
Thank you for this. I have Ehlers Danlos and Hypermobility, dysautonomia (positive tilt table test), etc., and a trigger event of getting hit by a semi-truck at 65 mph on 12/15/2010. All of the pieces are finally fitting together after seeking answers since childhood.
Wonderful webinar, I learned so much! Thank you to Dr. Rowe & The Ehlers-Danlos Society for this important information. I will be on the lookout for the print out as well
This just radically changed my daughter's life and my own. We both have hEDS and have orthostatic intolerance which presents in different ways. Thank you so much!
Thank you so much for sharing this informative webinar. As someone diagnosed with EDS, POTS and MCAS I have found this information extremely helpful and look forward to sharing it with my GP and trying to implement the non-pharmacological solutions.
13:40 No HR or BP changes but do have reduced cerebral blood flow. Therefore should respond to therapy. Dutch study.
Has dr. Francis Visser publish the low orthostatic tolerance research yet?
Good webinar. Thank you very much. Many things confirmed the belief that we are on the right line with medication.
How do we get a print out of this presentation, if one is available. Thank you Dr. Rowe & EDS Society!
This was amazing! I hope to get my pcp/ np to listen. They are clueless on how to help me.
What is it called when the HR and the BP spike severely when standing?
slide at 36:56
Need a support group, we live in Surprise, Arizona
Great explanations and succinct information
This is extremely useful. Thank you.
Okay trying dairy free and body shapers first. Thankyou!
I been directed to this video from the Ehlers Danlos Syndrome Page on Facebook, really informative, would to love know how medication such as amatriplyn would affect with suspected POTs I have also got hEDS and Fibromyalgia
As a certified holistic health coach who loves learning about medical conditions and investigating natural wellness solutions for them, how would I be invited to attend these webinars live?
They're webinars - all you have to do is sign up beforehand. They're announced in our newsletter, sign up through ehlersdanlossociety.dm.networkforgood.com/forms/connect-newsletter-sign-up, at our web site www.ehlers-danlos.com/webinar-schedule/, on our Facebook page, facebook.com/ehlers.danlos/, on Instagram @ehlers.danlos, and on twitter.com/TheEDSociety - the next is scheduled on January 30, more information soon.
How do I get a print out?
The slides are available in PDF from bit.ly/2TBj1sZ