I've had multiple sclerosis for 12 years. My doctor wants me to choose between Ocrevus and Lemtrada. I'm leaning towards Lemtrada because it's not a continuous treatment. I wanted to know your opinion on it. What do you think? Can it stop the progression?
My opinion is that you need to be happy with your doctor. How many times have they used Lemtrada (Ocrevus is ubiquitous) before, what are the monitoring arrangements for the five years afterwards, what is the infrastructure there? And so forth. I feel similarly regarding not going in every 6 months for something ad infinitum. #Mavenclad and #Lemtrada explained #IRTs for #MS th-cam.com/video/51MLiHvI2Xc/w-d-xo.html
Six years ago I was offered Lemtrada. For various reasons I decided against it - needle phobia and precarious employment being the two main reasons. While I've been fine on the treatment I did choose (DMF) if I was offered it again I'd go for it. It's just a shame it wasn't right for me at the time! If it had been I'd be completely done with any kind of treatment by now. Gavin Giovannoni is even going so far as to call it a cure.
Actually I lie. I was in stable employment by then and could have taken the time off and away from the office...(I turned down a drug trial when it would have been too disruptive to my work, with contracts that often weren't renewed until after they finished. I'm conflating the two memories!). I was just too chicken at the time.
Wow! I was targeting 3:45 until illness and injury struck. I thought I was going to have to defer but had some rest and did my rehab exercises and got through my 20 run on Sunday with a smile on my face. My marathon is back on! After I got home I finally set up a fundraising page for the MS Society too.
I've had multiple sclerosis for 12 years. My doctor wants me to choose between Ocrevus and Lemtrada. I'm leaning towards Lemtrada because it's not a continuous treatment. I wanted to know your opinion on it. What do you think? Can it stop the progression?
My opinion is that you need to be happy with your doctor. How many times have they used Lemtrada (Ocrevus is ubiquitous) before, what are the monitoring arrangements for the five years afterwards, what is the infrastructure there? And so forth. I feel similarly regarding not going in every 6 months for something ad infinitum.
#Mavenclad and #Lemtrada explained #IRTs for #MS
th-cam.com/video/51MLiHvI2Xc/w-d-xo.html
Six years ago I was offered Lemtrada. For various reasons I decided against it - needle phobia and precarious employment being the two main reasons. While I've been fine on the treatment I did choose (DMF) if I was offered it again I'd go for it. It's just a shame it wasn't right for me at the time! If it had been I'd be completely done with any kind of treatment by now. Gavin Giovannoni is even going so far as to call it a cure.
Actually I lie. I was in stable employment by then and could have taken the time off and away from the office...(I turned down a drug trial when it would have been too disruptive to my work, with contracts that often weren't renewed until after they finished. I'm conflating the two memories!). I was just too chicken at the time.
Wow! I was targeting 3:45 until illness and injury struck. I thought I was going to have to defer but had some rest and did my rehab exercises and got through my 20 run on Sunday with a smile on my face. My marathon is back on! After I got home I finally set up a fundraising page for the MS Society too.
Pls drop me a line at dominic@theMSguide.com Thanks.