Huge thanks to Dr. Lobanoff for his time. It was a wonderful opportunity! Check out his clinic clinic here: www.ovoeye.com/ Learn more about vision correction for keratoconus here: th-cam.com/video/kPanFRVV4uM/w-d-xo.html
My husband has keratoconus and we didn't know alot about it until your videos. So thank you. I live that Dr. Lobanoff is so passionate about his work and patients. I wish you and he were here in middle TN area. Thank you for asking such good questions too. Very helpful.
Thanks so much Kayla. Yes, Dr. Lobanoff is amazing and I am honored to work with him. So happy to hear the videos have helped you and your husband, that is the whole reason we put these videos together. Hope you can find some great doctors in TN.
My first cornea transplant was in 1984. It was a donor graft. I went from 20/200 to 20/20. I cried when I saw my 2yr old son clearly for the first time. A picture of my eye is in a medical journal somewhere. My other eye cornea was transplanted a few yrs ago. This newest one is a lab created graft. Today June 25, 2024 I had my preliminary sclera contact fitting. I can't believe how sharp my vision was. Can't wait for the final fitting.
Hi I have keretaconous how did u do the process for a cornea transplant donor ? I'm barely trying to get cross linking and it's hard to afford all the process
This is amazing to hear and watch, I actually have keratoconus for awhile now, im 27 and this excites to me hear and see of all the new ways to treat the eyes, I will one day Cross Linking done 💯 thank you!
Thank you for this video. Been diagnosed for about two years and finally got cross-link to yesterday. Just completed my left eye so I got a patch on like a pirate. I’m excited to see the results for the longest. I’ve had double vision, blurred vision and shadow vision.
I went to an opthalmologist today to see if I needed crosslinking done on my eyes. She diagnosed me with keratoconus on both eyes with my right being more on the mild to moderate severity. My right eye has been progressing more lately. She recommended crosslinking for my right eye since it's changing year by year. My left eye has been pretty much the same. They scheduled the procedure for early February. She also recommended scleral contact lenses for my right eye after this procedure is done. She said a couple months after. This video is great to see how the procedure is done. I'll give an update how it went after this is done. Thanks for the video!
After years of being misdiagnosed with amblyopia in my eye by optometrists, or being told my eye will eventually "catch up" wearing glasses; I finally saw an ophthalmologist who did a full look at my eye with a scan and confidently diagnosed me with Keratoconus. One of my eyes is in perfect health, and the other sees at about 20/50 vision (very blurry). On one hand this diagnosis was surprising, but on the other I was very happy it was caught before I went blind. I'm being fit for Scleral lenses in about a week and I can't wait. As far as prevention goes, I'll be seeing the eye doc twice a year for a while to monitor progression and the doc says if it does progress I'll be getting the cross-linking done, but the doc said only if it progresses. I found this all out recently so it's still all sinking in. Thank you for this video.
Thank you for this video I’m 16 and have to get corneal cross linking for my keratoconus on the 16th which is next week I’m anxious and had no clue what to expect so thank you this has been super helpful
Praying that they can get that research on reversing the effects of the disease. I am getting CXL in my right eye but my left eye is too far advanced..and i really dont want a transplant 😢
The idea of performing PRK during the cross linking is incredible! Had cross linking performed back in 2019. While it’s halted the progression of my keratoconus, it didn’t improve my vision at all
CLX tidak bisa menyembuhkan keratoconus tetapi menghentikan progresifitas dari penyakit tersebut. Dan anda tetap tergantung kepada lensa keras.. RGP ataupun scleral
Had this done on both eyes in Australia. Never heard of anyone whos vision got better after this procedure. The best result you can hope that it stops getting worse. For me it continued to progress after CXL.
If you listened he literally said it’s an area of his research; basically doing prk (an existing procedure for vision correction) in adjunct with cross linking. Meaning it’s an area of HIS research, that is not the current standard of care
@@cwill2127good for him. And if you had any idea about prk you would know that it can only work if you have enough cornea to slice with the laser. So this is not applicable to most people.
Hi, there a few places that do it and it is even covered by medicare now (as compared to when I first did it in 2007). I also did intacs in both eyes too. The best surgeon and doctor I found is Dr. Daya Sharma who is based in Bondi Junction in Sydney. He did a surgery for me about 3 years ago which actually improved my vision. He also does CXL. Do it asap as this thing can progress quickly and vision in most cases cannot be corrected by glasses. I have been dealing with since I was 17 (now 38) @@melaniefarenas2407
Wow, thank you so much dr for this great information. I have been told i need this procedure but i wasnt sure ehat to expect. You guys have helped me so much. Blessings.
My eye sight started getting blurry about 2 years ago but I paid it no mind because I could see great and never needed glasses before when I got eye exams. I recently started a new job at a call center and I’ve been having a very hard time seeing so I decided to go get an eye exam done and get some glasses. Today I went to get the eye exam done and the doctor told me I have keratoconus, astigmatism, and a weak right eye. He didn’t even prescribe me glasses because he said they wouldn’t be much help he referred me to another eye doctor for hard contact lenses. I’m really confused because how can I go from having perfect eye sight to having to squint and move in closer to see everything in only 2 years I can’t believe this
Thanks for sharing that Kayla. It can be super tough to have vision issues. Keratoconus is a progressive disease and can get worse over time, often asymmetrical with one eye being worse than the other. Hopefully your doctors are able to help you see much better. Also if things are progressing I hope they can offer you crosslinking too
I live in Australia. I've had crosslinking done on both eyes. My procedure was different to that. I had the liquid on my eye and the ultraviolet light, but both that I had all my temporary corneal lenses removed. Sounds painful, I know it was. The good thing though as it has been 10+years and no deterioration since. Fingers crossed it stays that way.
Why doesn't the silicon device with the puddle of riboflavin stay on the bulbus during the Application of UV-light. As shown in the video riboflavin drops are still added during the application of the light but wouldn't they just rinse off the cones tip as explained by Dr. Lobanoff?
Had CXL done a few years ago, sadly it failed, ended up with 2 transplants. I have to say CXL was the most painful thing I have ever had done, the pain lasted 3 days…….
The pain comes from having the epithelium removed, its basically a surgically induced abrasion that exposes the corneal nerves. Thankfully it was only a few days. Bummer to hear things didn't work out as well as planned. How are the transplants coming along?
OMG that's terrible!! I'm very sorry this happened to you. I have done CXL in both eyes and both were done quite effectively. The pain lasted for about 24 hours
It is a great honor for me because I saw this very useful video, especially appreciation and respect to you sir. All I hope you will be near to help me get rid of a hard life full of despair and frustration that kills me every day, because of what I suffer from.😔
I had lasik 2 years ago and for maybe 1.5 years everything was good, except for dry eyes but I became very disciplined with using eye lube. Then, my right eye became so blurry, distractingly blurry, and by the 3rd time I followed up with an eye doctor (I moved in between) he diagnosed me with keratoconus. Much worse in my right eye, so I have my right eye on this Wednesday and I’m a little nervous now bc no one said anything about pain after. I’m reading comments from others who’ve had the procedure and mention how painful it was to recover. The doctor doing the procedure made it sound like I could drive home after and recovery might be 2 days. Also nothing about pain medicine for post-op.
Hi Dr. Allen. One major question I felt was missed was epithelial on vs off surgery. When I had my crosslinking done, my epithelial was removed first. And in research, this is the only FDA-approved method correct? This video didn't talk about all the epithelial being removed, which for me was the biggest part of my pain and healing process afterward. So was this procedure done with the epithelial still intact? I feel like this topic would have been a huge part to include in this video considering the aftermath of its being removed. And I hear it is always different from one doctor to another whether it is removed or not. When I got mine done, there was no special device to hold riboflavin in place. It was the standard 30 minutes where it was dripped over time in my eye before the light was applied after the epithelial was removed.
Amazing question Lucas! Thank you. Yes, epithelium off is the only US FDA approved procedure at this time. I apologize that we were not as clear in the video, but this patient had received the PRK procedure before the surgery so yes, the epithelium was removed beforehand. Otherwise, is it typical to experience discomfort during the healing process.
Hi Luka, I agree that patients should know about the epithelial being removed and that it takes about 4 days to grow back in most cases. In my son's case it took almost 7 days to grow back. The healing process for him wasn't just 2 days. He had severe pain for the first 5 days. On day 7 the pain was gone. Also, people must know that they may find their eyes being extremely sensitive to light for a while, not just a day or two. My son also had the procedure twice now within two years on the same eye. So it isn't always 100% successfull and the bad spot on the cornea can continue to deteriorate. I feel that most TH-cam videos are a little misleading because they make it sound like a quick almost painless procedure that fixes all your problems and it is not.
I have a few videos on it here: th-cam.com/video/USIG_KjlvNs/w-d-xo.html Depending on the stage of the disease, your eye doctor may recommend to 1. Don't smoke, 2. lower cholesterol, 3. Take AREDS2 vitamins if you doctor recommends them for you. 4. Wear eye protection from the sun. 5. Eat healthy, lots of green leafy vegetables. 6. Some studies show diets rich in omega 3 (not in supplement form but dietary sources) can help 7. Continue to follow up with your eye doctor as they recommend. I hope to have more videos soon about recent studies on eye vitamins.
I had this procedure done 6 months ago, the procedure shown here is an Epi-On procedure and it heals quickly while I had the Epi-off done where the epithelial layer is removed which has a higher success rate. Since my cornea was really thin my doc adviced me against prk my vision is slowly recovering (still not at the level it was pre cxl) but I'm fairly positive and Incase anyone who's going to have this procedure done have a gap of atleast 3 months between two eyes.
As far as I've heard c3r doesn't improve vision it just halts the progression I've done c3r on my right eye was suggested to do it for left by one and not to for my by another doctor since it is a little thin and has scarring I'm using rgb lenses for both eyes and it's really good almost crystal clear vision so would suggest the lenses for any improvements ,as they don't do other surgeries like icl and transplants until like 6 months
Hi dr, thank you for for all you do... I just had a cross-linking procedure done... How long do I have to wait before I can use my soft contact lenses in the eye that was worked on?
I have had keratoconus for about 10 years now. I have done cross linking and Ferrera ring before 5 years, I have tried many contacts lenses and sceleral lenses seems the best although my vision still 80% and I need glasses with the lenses to achieve almost 95% vision. I Wana ask it's possible to do topography guided PRK after 5 years of my crosslinking surgery, how successful is this surgery and how many percent will my vision improve with this surgery?Does the success rate effected by severity of keratoconus. I suffer with lenses somedays I can't wear my contacts deu to irritations and those day I can even walk around house deu to my poor sight.
I have astogmatism, my glasses give me 6/6 vision with no blur but don't suppose to correct other aspects of my atigmatism, such as lines of light coming out of a light source and ghosting vision, and the weird part is that the ghosting and streaks of light change when I squint or fully open my eyes.
Aberrations are pretty common with higher amounts of astigmatism and optical correction. Being that you notice more clarity with squinting vs opening the eyes, means there may be some room for improvement. If you would be willing to pay for it and try it, there are hard contact lenses or scleral lenses that may offer superior vision with less ghosting.
I had high levels of double vision and astigmatism in my left eye using rgb lenses it completely negotiated it and it gives me crystal clear vision. But it takes a while to get used to these lenses , can't wear then more than 8 hrs at a time and must be very hygenic with them. you also can't do athletic stuff or sports as it literally falls off.
I had my surgery 3 weeks ago, still not heald 100%,about 70% heald. Doctor recommended to stitch my eye lid to help with healing,not sure what to do. My eye is still very light-sensitive and swollen.
I have forme fruste keratoconus and was turned down by 1 surgeon already because of the atypical “subclinical” presentation I have. Would he be willing to do the surgery anyway?
When I had my crosslinking done they had my eye closed for the first 20 minutes and they would open it to administer the riboflavin, and then 30 min under the light. Why is there a difference in procedure and does it matter?
I had a weird experience this morning when I woke up. When I woke up anything I looked at looked like I was closer than it than I actually was for about an hour. It felt like my eyesight was after improving and everything I looked at was 2 x zoomed in. I was feeling slightly disorientated when I was watching TV because when I looked at a person they were twice as big as they usually are. My eyes haven't gone back to they were yesterday and all day my eyesight feels like it's slightly better than it has been with years.
Hi, and thank you for your amazing videos. I was diagnosed with Keratoconus 2 years ago, and have had CXL on both eyes. It has worked wonderfully on my right eye, but I will need another on my left. I was wondering how long after having the procedure will I have to wait before I can travel by plane? I currently live about 2 hours plane ride from my home town due to studies, but my Ophthalmologist (in my home town) don't want to refer me to someone closer (which I support, he is my country's leading expert on Keratoconus). As such, I will be doing the procedure during Christmas. However, last time I remember being told that I shouldn't lift something heavy for about a month after, as to not elevate the pressure in the eyes. So will I be able to fly home about two weeks after the procedure, or will I have to wait?
Could you do a video on toxoplasmosis vs histoplasmosis? I just got referred to a specialist due to retinal scaring / partial vision loss for those & your content is the easiest way to get a broad understanding of eye related issues.
Wow that means a lot! Thank you. Yes, both of those are good topics to cover. I will put them on my list. I would like to collab with some OBGYN docs on Toxo as that is such a big topic for pregnancy.
I had my crosslinking surgery on the day that it was approved in the US. Still had to pay for it under the experimental payment because it wasn’t official when we payed for it
in the "Dr Lobanon's Research" section he mixing the cross linking with another proceedure. I was led to believe the cross linking *alone* could improve vision but after crosslinking and after a scleral lens im told i wont see the thickening of the weak parts of the eye in a scan until up to a year. If keratoconus is from rubbing the eye too much and it takes up to a year for crosslinking to work means that the crosslinking really didnt do anything. BUT sclera lens give protection of the cornea and the shape of the lens is doing most of the work
Hi, i have a same problems and i dont live in USA. is there similar treatment anywere else lr does this doctor do international trips and surgery? In case of comming in USA my insurance will not cover it and will need to pay for it, what is the average price for 1 treatment? Thanks 🙏
Hi Sir, I was diagnosed with Keratoconus last year and the doctors told me that either I can get surgery or get contact lenses (hard). I am using hard lenses since then and it has helped. Do I have to get a surgery in future?
Thanks for the great question! There are many factors that can come into play whether someone needs crosslinking surgery or not. Such as age and if the condition is indeed progressing. I personally feel it is best to consider having it done if you are younger (under 40) and when I have a patient that shows their keratoconus progressing. Which we often have people back every 6 months to monitor. Contact lenses can help with improving vision with keratoconus but it doesn't stop the disease from getting worse.
@@madness5693 You can join the keratoconus subreddit it helped me a lot to get a few question cleared up but always prefer the advice of your doctor over fhe people on the internet.
Is it possible for the UV light to be applied at such an angle that the majority hits the retena at the optic nerve head to limit any damage to the retena !??
I had pseudo keratoconus, and then progression was seen in my right a week ago. My cornea became steeper apparently so now my corneal specialist is recommending CXL. I'm very scared because I can hardly sit still when someone taps me on the shoulder, so I don't know how I'll manage to sit through this procedure.
Thank you so much for this information! Just happened to come across this video🙏 My son had the cross-linking procedure done few years ago. Are there supplements eye drops that help further? Thank you so much
I paid $5000 for this procedure and feel like nothing has changed. So for one, there was no improvement in vision. I was told that this procedure was only to slow down the progression. 6 yrs later I feel like this was a tip off since even after the procedure you either have to continue with the glasses or continue with rgp contacts or scleral.
I agree my sister had this procedure done 2 years ago she paid $2500 for each eye the insurance wouldn't cover it because it wasn't FDA approved at the time she still legally blind in one eye
It is only so it doesnt escalate which is why its best to do as soon as possible. I am very advanced in one eye. Theres nothing short of a cornea transplant that could fix it.
That was the operation they were going to give me, but as my keratoconus has not deteriorated for quite a few years we figured it would not be of much benifit, plus I am in my early 30's now
It is true that keratoconus typically slows down as we get older. However, just as your doctor has been doing, we need to monitor for progression. As soon as I see progression in the disease I refer patients for the procedure. It is the best thing we have at this time.
@@DoctorEyeHealth Do you see many cases of Bilateral Keratoconus? I've never met another person with it personaly and I was diagnosed with it 16 years ago
Hello thank you for the clear video which is helping me get over the nerve of having this done. I only have one question which is so I have to have the contact after the procedure as I’m not comfortable having a contact in my eye?
Well we tell patient to plan for at least an hour. If someone does have a more complex disease, such as keratoconus, it may require more testing and a longer discussion, so it may take longer. As a clinic we are often booked a few weeks out. While we are always happy to see patients who are willing to travel, I know there must be some very qualified professionals locally in your area. I used to go to school in San Antonio, and I recall it taking about 22 hours to drive from South Texas to my area.
I have done my crosslinking procedure yesterday for right eye. After the surgery it was too painful. Today it much better but still have some pain also continuously leaking water from my eye. But if we want to save our vision we need to go through the pain 😅.
I understand the cross linking will help to lock the corneas in place but what about people with advanced conditions and need the corneas to be the proper shape before cross linking.
Hello. I am 47 and have had keratoconus for years. I am currently in Scleral lenses. I am interested in cross linking, does my age and length of time prevent me from being a candidate for cross linking?
Is the treatment option mentioned between 4.45 to 5.17 available to patients? It seemed he said it is in research but also said the end that patients have received 100 % improvement in correct and uncorrected vision. Please expand on it please
Hi, I got a question. Is it safe to store daily disposable lenses in solution and reuse them after showering? For example if you go for a run in the morning with them, then store them, shower, and reuse them after showering? Thnx in advance.
hi! i’m not the dr but yes! daily lenses can be taken out and put back in throughout the day. just remember to clean them in between uses, don’t reuse them for more than 1 day, and please never sleep in them because corneal ulcers are not fun :)
Hello I had the same procedure done and a big thing my doctor told me to wear are sunglasses will I have some that are 20.00 from Walmart that I lost for almost a week when I found them again it got me thinking that I need a back up pair so I was wondering if you can recommend any sunglasses that block uva , uvb ray and all the other bad( important) stuff my sunglasses need to do to keep my eye healthy and safe , between 20 and 40 $ is my limit maybe 50
Hey thanks for asking! Here are some that I have had, given the cheaper price they may not be of the best build quality but they should all have full UV bit.ly/WearMeProGlasses These are a bit more money but great uv and polarized lenses bit.ly/HobieEyeWear And these are super cool and affordable too mariener.nl/en/
I had a keratoconus procedure done but I was not booked for a post-operative procedure and they did both eyes at once. No contact lenses either! I was requested to go get a 👓 How long does the vision take to improve? Is it normal?
I know there are some different procedures and some professional variability. But usually the eyes take several months (4-6) and even up to a year to fully stabilize. Depends on a case by case basis as well.
my right eye thickness 474,,, left eye thikness 515um,, one doctor say me need right eye prk with cxl,, another doctor say just need Cxl right eye..now What can I do now? Can I do CXL with both eyes?
I have keratocnus and have had acute corneal hydrops my vision has been getting progressively worse these last couple years I wonder if this would help 😊
Hey doc! I had cxl done on both of my eyes about 6 months ago. I wanted to ask can i go to the gym and workout and start lifting weights and stuff? I've read somewhere online that lifting heavy weights will increase intraocular pressure on the cornea while might lead to the progression of keratoconus.
So.. I heard I've got keratoconus in both my eyes, I've known about the left one but just heard about right 2 days ago. The doctors pretty much told me my left eye is a lost cause, even though I first saw them about this exact problem over 5 years ago. They didnt do a thing..
I'm sorry to hear that. I had to bug my optometrist about tbis. I went to a different optometrist to get safety glasses for work and decided to do an eye exam to update my proscription. He mentioned to me right away that I had keratoconus and I should talked to my doctor about crosslinking. I would've never known about crosslinking until he mentioned it to me. My regular optometrist never mentioned it to me and when I asked her about it, she said I would be a good candidate. Lol I wish she would've told me this years ago.
Huge thanks to Dr. Lobanoff for his time. It was a wonderful opportunity! Check out his clinic clinic here: www.ovoeye.com/
Learn more about vision correction for keratoconus here: th-cam.com/video/kPanFRVV4uM/w-d-xo.html
Hello doctor . I found out that the corona virus disease is related to the eye fly disease, which is the spots inside the lens of the eye.
What about using amnion to help the recovery period?
My husband has keratoconus and we didn't know alot about it until your videos. So thank you. I live that Dr. Lobanoff is so passionate about his work and patients. I wish you and he were here in middle TN area. Thank you for asking such good questions too. Very helpful.
Thanks so much Kayla. Yes, Dr. Lobanoff is amazing and I am honored to work with him. So happy to hear the videos have helped you and your husband, that is the whole reason we put these videos together. Hope you can find some great doctors in TN.
My first cornea transplant was in 1984. It was a donor graft. I went from 20/200 to 20/20. I cried when I saw my 2yr old son clearly for the first time. A picture of my eye is in a medical journal somewhere. My other eye cornea was transplanted a few yrs ago. This newest one is a lab created graft. Today June 25, 2024 I had my preliminary sclera contact fitting. I can't believe how sharp my vision was. Can't wait for the final fitting.
Congratulations! I'm just starting my process thankfully I don't have to do the invasive procedure yet lol
Do you always doubt the truth. Learn to say without a doubt.
Hi I have keretaconous how did u do the process for a cornea transplant donor ? I'm barely trying to get cross linking and it's hard to afford all the process
I have also caratoconous
DOCTOR EYE HELTH WHAT A BRAUTIFUL VIDEO YOU DO THE IMPOSSIBLE TO PRING US VIDEOS LIKE THIS I CANT THANKYOU ENOUGH
🙏 Thank you so much!!!!
This is amazing to hear and watch, I actually have keratoconus for awhile now, im 27 and this excites to me hear and see of all the new ways to treat the eyes, I will one day Cross Linking done 💯 thank you!
Thank you for this video. Been diagnosed for about two years and finally got cross-link to yesterday. Just completed my left eye so I got a patch on like a pirate. I’m excited to see the results for the longest. I’ve had double vision, blurred vision and shadow vision.
How did go????
Did ur vision improve a little bit?
Thank you so much for the informative video! Keratoconus is definitely an underserved community!
I went to an opthalmologist today to see if I needed crosslinking done on my eyes. She diagnosed me with keratoconus on both eyes with my right being more on the mild to moderate severity. My right eye has been progressing more lately.
She recommended crosslinking for my right eye since it's changing year by year. My left eye has been pretty much the same. They scheduled the procedure for early February. She also recommended scleral contact lenses for my right eye after this procedure is done. She said a couple months after. This video is great to see how the procedure is done. I'll give an update how it went after this is done.
Thanks for the video!
How did you get on
how was it? is the eye seeing better?
@@uuhAce Your vision doesn't improve it just prevents it from getting worse which it naturally would.
I had CXL done on one of my eyes about 4 years ago, no progression of KC so far, and my cornea actually got a bit better according to my Dr
After years of being misdiagnosed with amblyopia in my eye by optometrists, or being told my eye will eventually "catch up" wearing glasses; I finally saw an ophthalmologist who did a full look at my eye with a scan and confidently diagnosed me with Keratoconus. One of my eyes is in perfect health, and the other sees at about 20/50 vision (very blurry). On one hand this diagnosis was surprising, but on the other I was very happy it was caught before I went blind. I'm being fit for Scleral lenses in about a week and I can't wait. As far as prevention goes, I'll be seeing the eye doc twice a year for a while to monitor progression and the doc says if it does progress I'll be getting the cross-linking done, but the doc said only if it progresses. I found this all out recently so it's still all sinking in. Thank you for this video.
Hi, how did your scleral lenses work? Have you done the crosslinking procedure?
Thank you for this video I’m 16 and have to get corneal cross linking for my keratoconus on the 16th which is next week I’m anxious and had no clue what to expect so thank you this has been super helpful
I wish you the best next week! So happy for this video as well.
I wish you the best next week! So happy for this video as well.
Praying that they can get that research on reversing the effects of the disease. I am getting CXL in my right eye but my left eye is too far advanced..and i really dont want a transplant 😢
Me too. They didn’t catch mine in time
The idea of performing PRK during the cross linking is incredible! Had cross linking performed back in 2019. While it’s halted the progression of my keratoconus, it didn’t improve my vision at all
CLX tidak bisa menyembuhkan keratoconus tetapi menghentikan progresifitas dari penyakit tersebut. Dan anda tetap tergantung kepada lensa keras.. RGP ataupun scleral
Had this done on both eyes in Australia. Never heard of anyone whos vision got better after this procedure. The best result you can hope that it stops getting worse. For me it continued to progress after CXL.
If you listened he literally said it’s an area of his research; basically doing prk (an existing procedure for vision correction) in adjunct with cross linking. Meaning it’s an area of HIS research, that is not the current standard of care
@@cwill2127good for him. And if you had any idea about prk you would know that it can only work if you have enough cornea to slice with the laser. So this is not applicable to most people.
@@ausmate5235yes you need to have above 450 microns cornea thickness
Hi where in Oz did you get the surgery? My daughter just diagnosed with Keratoconus, she's 17y.o.
Hi, there a few places that do it and it is even covered by medicare now (as compared to when I first did it in 2007). I also did intacs in both eyes too. The best surgeon and doctor I found is Dr. Daya Sharma who is based in Bondi Junction in Sydney. He did a surgery for me about 3 years ago which actually improved my vision. He also does CXL. Do it asap as this thing can progress quickly and vision in most cases cannot be corrected by glasses. I have been dealing with since I was 17 (now 38) @@melaniefarenas2407
Thanks for this. My son is having cross link surgery in March.
How is he doing now?
Has his vision been restored?
I had the cross linking in both eyes about 5 years ago. Can i still have the topography guided PRK treatment?
i'm having my right done on Tuesday. This was an incredible video. thank you so much
Wow, thank you so much dr for this great information. I have been told i need this procedure but i wasnt sure ehat to expect. You guys have helped me so much. Blessings.
Me too! Did you do it?
Can cross linking be s
done for someone who has already had corneal transplants.
Thank you SO much for ALL of this information! My son's surgery for his left eye is at the end of june; right eye in august. ❤
My eye sight started getting blurry about 2 years ago but I paid it no mind because I could see great and never needed glasses before when I got eye exams. I recently started a new job at a call center and I’ve been having a very hard time seeing so I decided to go get an eye exam done and get some glasses. Today I went to get the eye exam done and the doctor told me I have keratoconus, astigmatism, and a weak right eye. He didn’t even prescribe me glasses because he said they wouldn’t be much help he referred me to another eye doctor for hard contact lenses. I’m really confused because how can I go from having perfect eye sight to having to squint and move in closer to see everything in only 2 years I can’t believe this
Thanks for sharing that Kayla. It can be super tough to have vision issues. Keratoconus is a progressive disease and can get worse over time, often asymmetrical with one eye being worse than the other. Hopefully your doctors are able to help you see much better. Also if things are progressing I hope they can offer you crosslinking too
I've had my prescriptions double every 6 months for 2 years straight before. I feel your pain but it's not unheard of by any means.
Which one is better c3r or cxl
I live in Australia. I've had crosslinking done on both eyes. My procedure was different to that. I had the liquid on my eye and the ultraviolet light, but both that I had all my temporary corneal lenses removed. Sounds painful, I know it was. The good thing though as it has been 10+years and no deterioration since. Fingers crossed it stays that way.
Thanks for sharing!
Have you had any patient that came in and it did not hold? And if it did not hold, what would you do if that happens?
Im having this surgery in two weeks thanks for the video ❤
Why doesn't the silicon device with the puddle of riboflavin stay on the bulbus during the Application of UV-light. As shown in the video riboflavin drops are still added during the application of the light but wouldn't they just rinse off the cones tip as explained by Dr. Lobanoff?
Had CXL done a few years ago, sadly it failed, ended up with 2 transplants. I have to say CXL was the most painful thing I have ever had done, the pain lasted 3 days…….
The pain comes from having the epithelium removed, its basically a surgically induced abrasion that exposes the corneal nerves. Thankfully it was only a few days. Bummer to hear things didn't work out as well as planned. How are the transplants coming along?
OMG that's terrible!! I'm very sorry this happened to you. I have done CXL in both eyes and both were done quite effectively. The pain lasted for about 24 hours
It is a great honor for me because I saw this very useful video, especially appreciation and respect to you sir. All I hope you will be near to help me get rid of a hard life full of despair and frustration that kills me every day, because of what I suffer from.😔
I had lasik 2 years ago and for maybe 1.5 years everything was good, except for dry eyes but I became very disciplined with using eye lube. Then, my right eye became so blurry, distractingly blurry, and by the 3rd time I followed up with an eye doctor (I moved in between) he diagnosed me with keratoconus. Much worse in my right eye, so I have my right eye on this Wednesday and I’m a little nervous now bc no one said anything about pain after. I’m reading comments from others who’ve had the procedure and mention how painful it was to recover. The doctor doing the procedure made it sound like I could drive home after and recovery might be 2 days. Also nothing about pain medicine for post-op.
How are you doing now?
Hi Dr. Allen. One major question I felt was missed was epithelial on vs off surgery. When I had my crosslinking done, my epithelial was removed first. And in research, this is the only FDA-approved method correct?
This video didn't talk about all the epithelial being removed, which for me was the biggest part of my pain and healing process afterward. So was this procedure done with the epithelial still intact?
I feel like this topic would have been a huge part to include in this video considering the aftermath of its being removed. And I hear it is always different from one doctor to another whether it is removed or not.
When I got mine done, there was no special device to hold riboflavin in place. It was the standard 30 minutes where it was dripped over time in my eye before the light was applied after the epithelial was removed.
Amazing question Lucas! Thank you.
Yes, epithelium off is the only US FDA approved procedure at this time. I apologize that we were not as clear in the video, but this patient had received the PRK procedure before the surgery so yes, the epithelium was removed beforehand. Otherwise, is it typical to experience discomfort during the healing process.
Hi Luka, I agree that patients should know about the epithelial being removed and that it takes about 4 days to grow back in most cases. In my son's case it took almost 7 days to grow back. The healing process for him wasn't just 2 days. He had severe pain for the first 5 days. On day 7 the pain was gone. Also, people must know that they may find their eyes being extremely sensitive to light for a while, not just a day or two. My son also had the procedure twice now within two years on the same eye. So it isn't always 100% successfull and the bad spot on the cornea can continue to deteriorate. I feel that most TH-cam videos are a little misleading because they make it sound like a quick almost painless procedure that fixes all your problems and it is not.
@@yolandibester1657I appreciate your insight! ❤
What if i had a corneal transplant 10 years ago? Can i get crosslink?
My doctor did not give me numbing drops
When she did the procedure. My eyes felt grainy as he'll
Is there anything i can do for macular degeneration?
I have a few videos on it here: th-cam.com/video/USIG_KjlvNs/w-d-xo.html
Depending on the stage of the disease, your eye doctor may recommend to 1. Don't smoke, 2. lower cholesterol, 3. Take AREDS2 vitamins if you doctor recommends them for you. 4. Wear eye protection from the sun. 5. Eat healthy, lots of green leafy vegetables. 6. Some studies show diets rich in omega 3 (not in supplement form but dietary sources) can help 7. Continue to follow up with your eye doctor as they recommend.
I hope to have more videos soon about recent studies on eye vitamins.
Is this procedure for kerataglobus also???
Can I get corneal crosslinking with an icl??
I had this procedure done 6 months ago, the procedure shown here is an Epi-On procedure and it heals quickly while I had the Epi-off done where the epithelial layer is removed which has a higher success rate.
Since my cornea was really thin my doc adviced me against prk my vision is slowly recovering (still not at the level it was pre cxl) but I'm fairly positive and Incase anyone who's going to have this procedure done have a gap of atleast 3 months between two eyes.
I have done this procedure for 2 eyes now. How much time will it take vision to recover ? Also glasses are not giving much difference what to do ?
@@AmalDevYT dude I had this done 6 months ago, vision is still not back to pre cxl level.
What was your prescription before c3r?
As far as I've heard c3r doesn't improve vision it just halts the progression I've done c3r on my right eye was suggested to do it for left by one and not to for my by another doctor since it is a little thin and has scarring I'm using rgb lenses for both eyes and it's really good almost crystal clear vision so would suggest the lenses for any improvements ,as they don't do other surgeries like icl and transplants until like 6 months
@@sensiesama2713 hows your vision now?
@@Chin-ny4kjrgb meaning the contacts?
Hi dr, thank you for for all you do... I just had a cross-linking procedure done... How long do I have to wait before I can use my soft contact lenses in the eye that was worked on?
I have had keratoconus for about 10 years now. I have done cross linking and Ferrera ring before 5 years, I have tried many contacts lenses and sceleral lenses seems the best although my vision still 80% and I need glasses with the lenses to achieve almost 95% vision. I Wana ask it's possible to do topography guided PRK after 5 years of my crosslinking surgery, how successful is this surgery and how many percent will my vision improve with this surgery?Does the success rate effected by severity of keratoconus. I suffer with lenses somedays I can't wear my contacts deu to irritations and those day I can even walk around house deu to my poor sight.
I got this procedure at the hospital for wake forest university. The hospital billed the insurance 171K. My out of pocket was 1.3K
Just got diagnosed last year, still trying to figure out if I want to have this surgery. A bit nervous.
Get it asap. Don’t wait.
@@BlackJezuzBaby thank you! We decided to get the surgery!
@@juliannajuarez5629good it's especially important to do it sooner and not wait
@@juliannajuarez5629how did it go i was born with this and i only have one eye worth saving at this point it is nervewrecking
@@juliannajuarez5629how’s ur vision now did the disease stop progressing and did ur vision improve a little bit
Will this procedure also help some other corneal problems? If so please list a few
no it's mainly for keratoconus
I have astogmatism, my glasses give me 6/6 vision with no blur but don't suppose to correct other aspects of my atigmatism, such as lines of light coming out of a light source and ghosting vision, and the weird part is that the ghosting and streaks of light change when I squint or fully open my eyes.
Aberrations are pretty common with higher amounts of astigmatism and optical correction. Being that you notice more clarity with squinting vs opening the eyes, means there may be some room for improvement. If you would be willing to pay for it and try it, there are hard contact lenses or scleral lenses that may offer superior vision with less ghosting.
I had high levels of double vision and astigmatism in my left eye using rgb lenses it completely negotiated it and it gives me crystal clear vision. But it takes a while to get used to these lenses , can't wear then more than 8 hrs at a time and must be very hygenic with them. you also can't do athletic stuff or sports as it literally falls off.
I'm New 2 all this information..but I thank u brothers 4 Sharing yalls knowledge mann☝️✌
Happy to help! Thanks for watching
@@DoctorEyeHealth ur welcome. I'll keep watching.
I am having cross linking done tomorrow but they said they make an incision?
I had my surgery 3 weeks ago, still not heald 100%,about 70% heald.
Doctor recommended to stitch my eye lid to help with healing,not sure what to do. My eye is still very light-sensitive and swollen.
Thanks so much for this video. I am in Africa and I am wondering if this procedure is available in Africa. Thanks for your response.
I have forme fruste keratoconus and was turned down by 1 surgeon already because of the atypical “subclinical” presentation I have. Would he be willing to do the surgery anyway?
If there is signs of progression, I suppose they would.
Was there no scraping off the film over the cornea before adding the drops?
When I had my crosslinking done they had my eye closed for the first 20 minutes and they would open it to administer the riboflavin, and then 30 min under the light. Why is there a difference in procedure and does it matter?
I had a weird experience this morning when I woke up. When I woke up anything I looked at looked like I was closer than it than I actually was for about an hour. It felt like my eyesight was after improving and everything I looked at was 2 x zoomed in.
I was feeling slightly disorientated when I was watching TV because when I looked at a person they were twice as big as they usually are.
My eyes haven't gone back to they were yesterday and all day my eyesight feels like it's slightly better than it has been with years.
Hello I just did the procedure yesterday, today I am sill feeling my eye burning , is that normal? What o can do to help with this?
Yeah I have keratoconus but I did get more about it, my question is after CXL is there other surgery
any recommendation crosslinking surgeon in UK? tried both rgp and scleral lenses but dont work well ....
Gosh I wish I knew someone to recommend. You may have to ask eye doctors in your area.
Moorfields!
crosslinking WON'T improve your vision, prk will so keep that in your mind
I had Keratoconus in my Right I had gone through a C3H treatment.
How did it go for you? What was your experience?
@@DoctorEyeHealthIt was great. Just 15-20 minutes treatment, they use some drops with continuous exposure of Laser light on eye
If number come back, how we correct the vision. Glasses possible after prk surgery? Please answer my question
Hi, and thank you for your amazing videos. I was diagnosed with Keratoconus 2 years ago, and have had CXL on both eyes. It has worked wonderfully on my right eye, but I will need another on my left. I was wondering how long after having the procedure will I have to wait before I can travel by plane? I currently live about 2 hours plane ride from my home town due to studies, but my Ophthalmologist (in my home town) don't want to refer me to someone closer (which I support, he is my country's leading expert on Keratoconus). As such, I will be doing the procedure during Christmas. However, last time I remember being told that I shouldn't lift something heavy for about a month after, as to not elevate the pressure in the eyes. So will I be able to fly home about two weeks after the procedure, or will I have to wait?
Thank you so much for the information but what about the crosslink and intact together?
As of now this wont improve vision but just prevent it from getting worst ?
Could you do a video on toxoplasmosis vs histoplasmosis? I just got referred to a specialist due to retinal scaring / partial vision loss for those & your content is the easiest way to get a broad understanding of eye related issues.
Wow that means a lot! Thank you. Yes, both of those are good topics to cover. I will put them on my list. I would like to collab with some OBGYN docs on Toxo as that is such a big topic for pregnancy.
I had a DMEK would this be a worthwhile procedure to try before doing that procedure?
That is an interesting question...I am not aware of them being used together at this time...what did you have the DMEK for?
Epithelial-on the way to go? Doesn’t insurance in the US currently only cover epi off?
can this be used even after a corneal transplant?
Any body tell me disadvantage of this surgery
I had my crosslinking surgery on the day that it was approved in the US. Still had to pay for it under the experimental payment because it wasn’t official when we payed for it
how is it now
in the "Dr Lobanon's Research" section he mixing the cross linking with another proceedure. I was led to believe the cross linking *alone* could improve vision but after crosslinking and after a scleral lens im told i wont see the thickening of the weak parts of the eye in a scan until up to a year.
If keratoconus is from rubbing the eye too much and it takes up to a year for crosslinking to work means that the crosslinking really didnt do anything. BUT sclera lens give protection of the cornea and the shape of the lens is doing most of the work
Hi, i have a same problems and i dont live in USA.
is there similar treatment anywere else lr does this doctor do international trips and surgery?
In case of comming in USA my insurance will not cover it and will need to pay for it, what is the average price for 1 treatment?
Thanks 🙏
Hi Sir, I was diagnosed with Keratoconus last year and the doctors told me that either I can get surgery or get contact lenses (hard). I am using hard lenses since then and it has helped. Do I have to get a surgery in future?
Thanks for the great question! There are many factors that can come into play whether someone needs crosslinking surgery or not. Such as age and if the condition is indeed progressing. I personally feel it is best to consider having it done if you are younger (under 40) and when I have a patient that shows their keratoconus progressing. Which we often have people back every 6 months to monitor. Contact lenses can help with improving vision with keratoconus but it doesn't stop the disease from getting worse.
@@DoctorEyeHealth got it thanks for replying Doc. I am 20 years old currently.
@@madness5693 You can join the keratoconus subreddit it helped me a lot to get a few question cleared up but always prefer the advice of your doctor over fhe people on the internet.
Is it possible for the UV light to be applied at such an angle that the majority hits the retena at the optic nerve head to limit any damage to the retena !??
I had pseudo keratoconus, and then progression was seen in my right a week ago. My cornea became steeper apparently so now my corneal specialist is recommending CXL.
I'm very scared because I can hardly sit still when someone taps me on the shoulder, so I don't know how I'll manage to sit through this procedure.
Wait, you don’t need to put inserts anymore???
Thank you so much for this information! Just happened to come across this video🙏 My son had the cross-linking procedure done few years ago. Are there supplements eye drops that help further? Thank you so much
I paid $5000 for this procedure and feel like nothing has changed. So for one, there was no improvement in vision. I was told that this procedure was only to slow down the progression. 6 yrs later I feel like this was a tip off since even after the procedure you either have to continue with the glasses or continue with rgp contacts or scleral.
I agree my sister had this procedure done 2 years ago she paid $2500 for each eye the insurance wouldn't cover it because it wasn't FDA approved at the time she still legally blind in one eye
@@DaygoropolvonPolvon there's no other option than this besides a corneal transplant which is for extreme cases
It is only so it doesnt escalate which is why its best to do as soon as possible. I am very advanced in one eye. Theres nothing short of a cornea transplant that could fix it.
Question DR if i look in the sky or white screen i see these real tiny moving black dots what is that?
Floaters
Like this? th-cam.com/video/75c_WzOd_eI/w-d-xo.html
No I have to really focus to see them I think they are more like the video you have with the white blood cells
I've had both Corneas transplanted. Does this procedure work post transplant if kerataconus returns?
That was the operation they were going to give me, but as my keratoconus has not deteriorated for quite a few years we figured it would not be of much benifit, plus I am in my early 30's now
It is true that keratoconus typically slows down as we get older. However, just as your doctor has been doing, we need to monitor for progression. As soon as I see progression in the disease I refer patients for the procedure. It is the best thing we have at this time.
@@DoctorEyeHealth Do you see many cases of Bilateral Keratoconus? I've never met another person with it personaly and I was diagnosed with it 16 years ago
Hello thank you for the clear video which is helping me get over the nerve of having this done. I only have one question which is so I have to have the contact after the procedure as I’m not comfortable having a contact in my eye?
I just had this last Friday. It wemt well although I feel sad because it doesn't improve eye vision.
I hope your recovery goes smoothly!
If anyone knows a good doctor in India or Egypt, please let me know
Hey doctor eye health,if your at Minnesota,how long does it take to go to your appointment cause I live in Houston which is far away
Well we tell patient to plan for at least an hour. If someone does have a more complex disease, such as keratoconus, it may require more testing and a longer discussion, so it may take longer. As a clinic we are often booked a few weeks out. While we are always happy to see patients who are willing to travel, I know there must be some very qualified professionals locally in your area.
I used to go to school in San Antonio, and I recall it taking about 22 hours to drive from South Texas to my area.
Hello, is eye pain normal for blurry vision?
I have done my crosslinking procedure yesterday for right eye.
After the surgery it was too painful. Today it much better but still have some pain also continuously leaking water from my eye.
But if we want to save our vision we need to go through the pain 😅.
Hello Doc, any treatment option for Stargardts disease???
I understand the cross linking will help to lock the corneas in place but what about people with advanced conditions and need the corneas to be the proper shape before cross linking.
I have my appointment for it in August 23rd for cross linking
Wishing you the best!!!
@@DoctorEyeHealth i hope, it does help me. And thank you for all of your videos.
Hello. I am 47 and have had keratoconus for years. I am currently in Scleral lenses. I am interested in cross linking, does my age and length of time prevent me from being a candidate for cross linking?
I don't think so. The procedure is so it doesn't get worse
Is the treatment option mentioned between 4.45 to 5.17 available to patients? It seemed he said it is in research but also said the end that patients have received 100 % improvement in correct and uncorrected vision. Please expand on it please
Hi, I got a question. Is it safe to store daily disposable lenses in solution and reuse them after showering? For example if you go for a run in the morning with them, then store them, shower, and reuse them after showering? Thnx in advance.
hi! i’m not the dr but yes! daily lenses can be taken out and put back in throughout the day. just remember to clean them in between uses, don’t reuse them for more than 1 day, and please never sleep in them because corneal ulcers are not fun :)
How do you know if you have keratoconus or just naturally (not because of a condition) thin corneas because of eye rubbing and allergies
Hello I had the same procedure done and a big thing my doctor told me to wear are sunglasses will I have some that are 20.00 from Walmart that I lost for almost a week when I found them again it got me thinking that I need a back up pair so I was wondering if you can recommend any sunglasses that block uva , uvb ray and all the other bad( important) stuff my sunglasses need to do to keep my eye healthy and safe , between 20 and 40 $ is my limit maybe 50
Hey thanks for asking! Here are some that I have had, given the cheaper price they may not be of the best build quality but they should all have full UV bit.ly/WearMeProGlasses
These are a bit more money but great uv and polarized lenses bit.ly/HobieEyeWear
And these are super cool and affordable too mariener.nl/en/
Hi doc it's true that if you use electric iron everyday it's gonna damage you body?
Electric iron? Like for your clothes?
I had a keratoconus procedure done but I was not booked for a post-operative procedure and they did both eyes at once. No contact lenses either! I was requested to go get a 👓
How long does the vision take to improve?
Is it normal?
I know there are some different procedures and some professional variability. But usually the eyes take several months (4-6) and even up to a year to fully stabilize. Depends on a case by case basis as well.
Please explain the pain
my right eye thickness 474,,, left eye thikness 515um,, one doctor say me need right eye prk with cxl,, another doctor say just need Cxl right eye..now What can I do now? Can I do CXL with both eyes?
I have keratocnus and have had acute corneal hydrops my vision has been getting progressively worse these last couple years I wonder if this would help 😊
I have these black spots on my eyes what is that
Impossible to say without an eye exam, too many causes to say without looking.
What are your recommendations for someone with yellowing and inflammation in the eyes due to Gilbert's Syndrome?
Hey doc! I had cxl done on both of my eyes about 6 months ago. I wanted to ask can i go to the gym and workout and start lifting weights and stuff? I've read somewhere online that lifting heavy weights will increase intraocular pressure on the cornea while might lead to the progression of keratoconus.
Dr i had this surgery nearly 9 years ago recently my left eye is again started the progression what is the reason
I have heard of some rare cases of the eye progressing again, perhaps the corneal tissue has remodeled over the years and needs to be done again.
@@DoctorEyeHealth thank you for your reply dr
I have this, and I had it done on both my eyes
thats why im whatching this video to see hyow this hgappemned
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May I ask how old are you? If you say, that Clx didnt work. Thanks
So.. I heard I've got keratoconus in both my eyes, I've known about the left one but just heard about right 2 days ago. The doctors pretty much told me my left eye is a lost cause, even though I first saw them about this exact problem over 5 years ago. They didnt do a thing..
I'm sorry to hear that. I had to bug my optometrist about tbis.
I went to a different optometrist to get safety glasses for work and decided to do an eye exam to update my proscription. He mentioned to me right away that I had keratoconus and I should talked to my doctor about crosslinking. I would've never known about crosslinking until he mentioned it to me.
My regular optometrist never mentioned it to me and when I asked her about it, she said I would be a good candidate. Lol I wish she would've told me this years ago.