❤❤❤yes it's a constant battle. I'm loving listening to your story. I'm Type 1 and my friend Donna MacDonald on Alignable, a Type 1 has not taken insulin in 17 years ❤❤❤
Thanks for this video! I really needed to hear this since I am struggeling at the moment. I'm 64 living in Germany and was diagnosed type1 3 months ago after waking up in Intesive Care with ketoacidosis. The past 5 years I have been living low carb since my mom was a type 2, I didn't want to travel the same route. Fat chance! This is worse! What was absolutely new to me is the connection to other autoimmune deseases. The doctor at the hospital just looked at me and told me they didn't have to wait for further results since I have vitiligo. Therefore I am all with you about educating people about type1.
Diagnosed at 32 with type 1 Lada three months ago and omg I miss eating freely, not carb counting and taking insulin for everything I eat/drink 🥲 But I get to stay alive & not feel like crap or look emancipate so that’s a huge plus lol! Thank you for sharing! As a newly diagnosed person this helped a lot! ❤
I just got diagnosed with t1d 2 months ago im so scared i dont wanna die im only 21 :( no one in my family had diabetes or any auto inmune condition I'm feeling way too overwhelemd, thank you for talking about your story I already miss eating pizza at my friends place
I was diagnosed with LADA 8 months ago at 51, 3 months after becoming an empty nester. It has been a new life all around. I could relate hearing your video. Cheese is my life right now. Lol. (With my cholesterol level, my Dr would probably not like that, but when you're sooo hungry, well...) The amount of mental load that goes with the proper management of diabetes is probably the hardest to try to explain to non-diabetics.
I was first diagnosed with diabetes at the age of 42, 18 years ago. I found out the hard way after going to the ER very sick. My blood sugar was then 850. After 3 days in the hospital, I was released as a type 2. I spent 8 frustrating years with the diagnoses. In my 7th and 8th year, I hit rock bottom. The primary care doctor I was under the care of then threw me under the bus, saying I wasn't being compliant with my care. I was at my wits end. Thankfully, my wife, I had a friend who was PA. She suspected that I might be a type 1. She pushed me to find an endocrinologist. I found the best in my state. On the first appointment , he reviewed my medical records from the time I was in the ER. He was mad at the ER doctor for not recognizing the markers that pointed towards T1. I should have been on insulin from the very beginning. Blood work at the endo's office confirmed that I had T1 diabetes. July will be 10 years since I was correctly diagnosed with T1 diabetes.
I was diagnosed as a young adult at 20, at the beginning of my junior year of college. It was really hard… I don’t remember a whole lot about my life before as it’s been almost 17 years since my diagnosis. Now at being almost 37, and ttc, and it not happening… I can’t help but wonder, could it have worked better was I not diabetic? Also I have no one in my family with it either and often feel misunderstood.
Samantha, how high was your BS at diagnosis? With how nice your bs usually are and the fact that you can eat some things w no insulin imo says you absolutely saved a bit of pancreatic function. 😊 I was 980 at diagnosis and it’s been a very wild ride!
Does your pancreas produce some insulin? If does, what's your insulin level? I recently had my very first insulin test done and it turned to be 19pmol/L when the normal range in 20-180pmol/L. However, my glucose level and A1c is within normal range. I think this I just caught the beginning of entering into type 1 diabetes.
Not that having diabetes is easy, it certainly isn’t, but I would think being gluten free would be much harder. Which condition do you find harder to deal with? PS. I do not have a gluten intolerance but have been type1 since I was 9 years.
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❤❤❤yes it's a constant battle. I'm loving listening to your story. I'm Type 1 and my friend Donna MacDonald on Alignable, a Type 1 has not taken insulin in 17 years ❤❤❤
Thanks for this video! I really needed to hear this since I am struggeling at the moment. I'm 64 living in Germany and was diagnosed type1 3 months ago after waking up in Intesive Care with ketoacidosis. The past 5 years I have been living low carb since my mom was a type 2, I didn't want to travel the same route. Fat chance! This is worse! What was absolutely new to me is the connection to other autoimmune deseases. The doctor at the hospital just looked at me and told me they didn't have to wait for further results since I have vitiligo. Therefore I am all with you about educating people about type1.
I feel you on this. I’m 5 years in and diagnosed in my 40s. I am still grieving my old life. I do wish I had someone to bounce off.
Ugh I know! It’s so hard!!
I was diagnosed as a type 2 back in 2017. It wasn't up until the summer of 2023 when I went into dka. I was 41 when I was rediagnosed with LADA.
Diagnosed at 32 with type 1 Lada three months ago and omg I miss eating freely, not carb counting and taking insulin for everything I eat/drink 🥲 But I get to stay alive & not feel like crap or look emancipate so that’s a huge plus lol! Thank you for sharing! As a newly diagnosed person this helped a lot! ❤
Hope you are doing okay!
I just got diagnosed with t1d 2 months ago im so scared i dont wanna die im only 21 :( no one in my family had diabetes or any auto inmune condition I'm feeling way too overwhelemd, thank you for talking about your story I already miss eating pizza at my friends place
I'm 38 and was diagnosed 2 months ago. It's great to hear others people's story.
I’m sorry! All will be okay
Dx at 44, almost 18 yrs ago. 😢
I get it!
I was diagnosed with LADA 8 months ago at 51, 3 months after becoming an empty nester. It has been a new life all around. I could relate hearing your video. Cheese is my life right now. Lol. (With my cholesterol level, my Dr would probably not like that, but when you're sooo hungry, well...) The amount of mental load that goes with the proper management of diabetes is probably the hardest to try to explain to non-diabetics.
Welcome to the tribe
I was first diagnosed with diabetes at the age of 42, 18 years ago. I found out the hard way after going to the ER very sick. My blood sugar was then 850. After 3 days in the hospital, I was released as a type 2. I spent 8 frustrating years with the diagnoses. In my 7th and 8th year, I hit rock bottom. The primary care doctor I was under the care of then threw me under the bus, saying I wasn't being compliant with my care. I was at my wits end. Thankfully, my wife, I had a friend who was PA. She suspected that I might be a type 1. She pushed me to find an endocrinologist. I found the best in my state. On the first appointment , he reviewed my medical records from the time I was in the ER. He was mad at the ER doctor for not recognizing the markers that pointed towards T1. I should have been on insulin from the very beginning. Blood work at the endo's office confirmed that I had T1 diabetes. July will be 10 years since I was correctly diagnosed with T1 diabetes.
I’m so sorry - thanks for sharing!
I was diagnosed as a young adult at 20, at the beginning of my junior year of college. It was really hard… I don’t remember a whole lot about my life before as it’s been almost 17 years since my diagnosis. Now at being almost 37, and ttc, and it not happening… I can’t help but wonder, could it have worked better was I not diabetic? Also I have no one in my family with it either and often feel misunderstood.
Misdiagnosed for 2 years with type 2 at 34 and at 36 diagnosed with LADA after checked GAD 😢
Samantha, how high was your BS at diagnosis? With how nice your bs usually are and the fact that you can eat some things w no insulin imo says you absolutely saved a bit of pancreatic function. 😊
I was 980 at diagnosis and it’s been a very wild ride!
It was 420 when diagnosed!
Does your pancreas produce some insulin? If does, what's your insulin level?
I recently had my very first insulin test done and it turned to be 19pmol/L when the normal range in 20-180pmol/L. However, my glucose level and A1c is within normal range. I think this I just caught the beginning of entering into type 1 diabetes.
Maybe!! Not exactly sure
Not that having diabetes is easy, it certainly isn’t, but I would think being gluten free would be much harder. Which condition do you find harder to deal with? PS. I do not have a gluten intolerance but have been type1 since I was 9 years.
Type 1 is way harder than being gluten free.