I was a service man for the Caterpillar dealer and we used TCE for cleaning machinery parts. It was the best parts cleaner we had ever seen. Turns out maybe not so much. My brother also was exposed and he ha s now passed, I am 73 and still functioning and carrying on but I do have PD but not extreme yet. I exercise every morning for 3/4 to 1 hour every day.
I have PD which I was exposed to Agent Orange while serving in the US Navy during the Vietnam War. I live outside of Rochester and can't seem to find a good Neurologist. I'm on 3 tabs of 25/100 Sinemet 4 times a day. I have tried supplements like entacapone, selegiline and a few others and they made me feel worse. I know you have to give them time to work and I did that but it didn't work. Also tried a few anti depressants and again I felt worse. Am just coming of Lexapro and am having hangover symptoms . Brain zaps as I call them and very weak and tired all the time. Also I am starting to have bad gate functions and allot of stiffness. Everyones PD as they say is different. I just don't know what to do. I am tired of playing pharmaceutical gymnastics. I am at a loss.🥺
Welcome home and thanks for your commitment to our country. You are not at a loss. You continue to advocate for yourself and do whatever you can to improve your quality of life. Make sure you are establishing a healthy exercise routine, something to improve flexibility and mobility. We are thinking of you, Barry! ❤️
I believe people are being misdiagnosed either by mistake or intentionally. There are other conditions that cause tremors and/ or stiffness. I saw 3 different nuerologists; 2 said l did and the third said not. The only thing the yes doctors did was prescribe increasing amounts of C-L which did me little good. Are they in cahoots with big pharma? I finally decided to stop seeing doctors. I am much better on mega benfot 250 mg daily and magnesium threonate 144mg per day. No side effects, no tremor.
Interesting. I believe we are on a journey into finding out the effects of chemicals used in our modern lifestyle as well as those added to processed foods. That said, dad who passed away just a year ago at the age of 92 with Parkinson’s, lived in a small village in the mountains away from life in general all his life. Clean air, clean living, no alcohol, no smoking. No exposure to any chemicals… there were none and he was never exposed to Paraquat. It was never used. He was a professional tennis player and was still playing well into his 60s. When he wasn’t able to continue, he joined the bowls team, walked several miles every day and basically never sat still in between. Men’s choir, computer classes, you name it, he gave it a go. He didn’t retire from the family business until he was 71. At the age of 80 he moved to be nearer to his children and at 81, he was diagnosed with PD. I thank God he was that age when first diagnosed. I dread to think how he would have reacted had he been diagnosed at an earlier age. I do think that his lifestyle helped in the sense that he was diagnosed quite late in his life, but he may be an exemption with regard to links to chemicals etc. by the way, his first cousin who is just a few years younger than dad, and who was brought up in his early years in the same village, also has PD.
Thanks for sharing your story of your dad. Sounds like an amazing man who lived life to the fullest. Agree, we must monitor the effects of chemicals used in our lives that we are unaware of and do whatever we can to bring awareness to change. As the fastest growing neurological disease suggests this is only the beginning of rapid growth. Thanks again for listening! Help spread the word of our mission and be sure to check is out our site for ways to support our cause.
I am also fairly new diagnosed - 3 months ago - although I know now that what my PCP thought was just an Essential Tremor 3 years ago was actually PD. Am on C/L and it helps mostly but coming to terms with other aspects of this disease has been challenging. I have been a daily workout guy for 25 years - thank GOD, clean & sober for 22 years, but I remember us guys joking about 'Paraquat' years ago when we smoked lots of pot that was coated with PQ. I've wondered recently if that could be the reason why I have this now. Anyway, I will order the book. What I can say to others new on this ride - ask questions and be persistent even if most doctors get agitated by that! We DESERVE to have answers even if we have to get pushy! Thanks to you both on the video.
I watched the whole video expecting some small hope for some new research info or other new treatments and I just hot more depressed. If the dr put 20 percent of his enthusiasm into treatment and finding a future cure that alone would help people with pd.
I’m 76, retired golf pro, diagnosed in 2013, no tremors but mobility issues Waiting for cure. I think I got it from playing golf. Too many pesticides."..
We agree, he is fantastic. Be sure to check out this book: www.amazon.com/dp/B07V33WBBF?ref_=cm_sw_r_kb_dp_001E9S7RR4T2V8N24HKE&tag=kpembed-20&linkCode=kpe
We apologize for any troubles with the audio. We look forward to having Dr. Dorsey join us again soon for updates and will focus on improving the audio quality then. Thanks!
New subscriber , newly diagnosed 3/1/22 PD , then on 3/23/22 , now diagnosed with PD'ism , waiting to see new Dr for 1st time in Nov. . So confused with the Dr ( neuromuscular ) diagnosis and sending me to a different Dr . Been watching your videos and so many others as well . Thanks for all that you do Margaret
Thanks for subscribing and watching! We are so thrilled to hear that you are enjoying our POP Profile series and seeing value in our interviews. Wish you all the best in your journey! Check is out @poweroverpd on Facebook, Twitter, and Instagram - but also poweroverpd.org to help join the fight! Stay in touch!
Sorry to hear that. I hope you find value in the series that sheds light on the various research and treatments offered. Also, find some local places to build a habit of movement exercises. We wish you all the best! You are not alone!
We provide free exercise wellness programs to help those battling Parkinson's Disease and financial struggles. Also, we are partnering with the Michael J Fox Foundation to support the National Plan to End Parkinson's Bill that would also help the financial impacts of the disease. Please read more about that and support! www.michaeljfox.org/news/congress-reintroduces-national-plan-end-parkinsons-act
You lost me at Co(n)vid P(l)andemic. And promoting shots in the arm for viruses. Wonder how many of these poisons triggered the next wave of PD? But hey, if it helps your book sales.....
![The Long Road to Hope: Ending Parkinson's Disease [FULL DOCUMENTARY]](/img/n.gif)
I was a service man for the Caterpillar dealer and we used TCE for cleaning machinery parts. It was the best parts cleaner we had ever seen. Turns out maybe not so much. My brother also was exposed and he ha s now passed, I am 73 and still functioning and carrying on but I do have PD but not extreme yet. I exercise every morning for 3/4 to 1 hour every day.
I have PD which I was exposed to Agent Orange while serving in the US Navy during the Vietnam War. I live outside of Rochester and can't seem to find a good Neurologist. I'm on 3 tabs of 25/100 Sinemet 4 times a day. I have tried supplements like entacapone, selegiline and a few others and they made me feel worse. I know you have to give them time to work and I did that but it didn't work. Also tried a few anti depressants and again I felt worse. Am just coming of Lexapro and am having hangover symptoms . Brain zaps as I call them and very weak and tired all the time. Also I am starting to have bad gate functions and allot of stiffness. Everyones PD as they say is different. I just don't know what to do. I am tired of playing pharmaceutical gymnastics. I am at a loss.🥺
Welcome home and thanks for your commitment to our country. You are not at a loss. You continue to advocate for yourself and do whatever you can to improve your quality of life. Make sure you are establishing a healthy exercise routine, something to improve flexibility and mobility. We are thinking of you, Barry! ❤️
I believe people are being misdiagnosed either by mistake or intentionally. There are other conditions that cause tremors and/ or stiffness. I saw 3 different nuerologists; 2 said l did and the third said not. The only thing the yes doctors did was prescribe increasing amounts of C-L which did me little good. Are they in cahoots with big pharma?
I finally decided to stop seeing doctors. I am much better on mega benfot 250 mg daily and magnesium threonate 144mg per day. No side effects, no tremor.
Interesting. I believe we are on a journey into finding out the effects of chemicals used in our modern lifestyle as well as those added to processed foods. That said, dad who passed away just a year ago at the age of 92 with Parkinson’s, lived in a small village in the mountains away from life in general all his life. Clean air, clean living, no alcohol, no smoking. No exposure to any chemicals… there were none and he was never exposed to Paraquat. It was never used. He was a professional tennis player and was still playing well into his 60s. When he wasn’t able to continue, he joined the bowls team, walked several miles every day and basically never sat still in between. Men’s choir, computer classes, you name it, he gave it a go. He didn’t retire from the family business until he was 71. At the age of 80 he moved to be nearer to his children and at 81, he was diagnosed with PD. I thank God he was that age when first diagnosed. I dread to think how he would have reacted had he been diagnosed at an earlier age. I do think that his lifestyle helped in the sense that he was diagnosed quite late in his life, but he may be an exemption with regard to links to chemicals etc. by the way, his first cousin who is just a few years younger than dad, and who was brought up in his early years in the same village, also has PD.
Thanks for sharing your story of your dad. Sounds like an amazing man who lived life to the fullest. Agree, we must monitor the effects of chemicals used in our lives that we are unaware of and do whatever we can to bring awareness to change. As the fastest growing neurological disease suggests this is only the beginning of rapid growth. Thanks again for listening! Help spread the word of our mission and be sure to check is out our site for ways to support our cause.
I am also fairly new diagnosed - 3 months ago - although I know now that what my PCP thought was just an Essential Tremor 3 years ago was actually PD. Am on C/L and it helps mostly but coming to terms with other aspects of this disease has been challenging.
I have been a daily workout guy for 25 years - thank GOD, clean & sober for 22 years, but I remember us guys joking about 'Paraquat' years ago when we smoked lots of pot that was coated with PQ. I've wondered recently if that could be the reason why I have this now.
Anyway, I will order the book. What I can say to others new on this ride - ask questions and be persistent even if most doctors get agitated by that! We DESERVE to have answers even if we have to get pushy!
Thanks to you both on the video.
Our pleasure! Thanks for watching. Your best advocate is YOU! 🙌
@@poweroverpd 2:16
0:59
Prevention is better than cure.
I watched the whole video expecting some small hope for some new research info or other new treatments and I just hot more depressed. If the dr put 20 percent of his enthusiasm into treatment and finding a future cure that alone would help people with pd.
John Pepper has some good videos and information about how he handled his PD.
All healthy life style variables.
If there is a way to clean up the audio, please do and repost.
I strongly 2nd that!! The sound is difficult to tolerate, but interested in content.
I’m 76, retired golf pro, diagnosed in 2013, no tremors but mobility issues
Waiting for cure. I think I got it from playing golf. Too many pesticides."..
EXCELLENT❤🎉
We approve of this message! 🙌
Thanks Dr Ray Dorsey for a great video
We agree, he is fantastic. Be sure to check out this book: www.amazon.com/dp/B07V33WBBF?ref_=cm_sw_r_kb_dp_001E9S7RR4T2V8N24HKE&tag=kpembed-20&linkCode=kpe
I have been suffering from PD since 2007 and treatment started since 2015 . Now taking Betacap TR 40 and Tryptomet-10. Is it right?
We apologize for any troubles with the audio. We look forward to having Dr. Dorsey join us again soon for updates and will focus on improving the audio quality then. Thanks!
Is there an audio version of your book. Thank you
There is! Thanks for watching our interview and be sure to subscribe for more!
www.audible.com/pd/Ending-Parkinsons-Disease-Audiobook/1549123521
Vietnam 1969-1972. Exposed to Agent Orange in the central highlands. Parkinson’s really sucks but I understand that the VA has become very proactive.
Welcome home. Thanks for sharing your story. Yes, support and awareness have come a long way! We still have a lot of work to do together.
New subscriber , newly diagnosed 3/1/22 PD , then on 3/23/22 , now diagnosed with PD'ism , waiting to see new Dr for 1st time in Nov. . So confused with the Dr ( neuromuscular ) diagnosis and sending me to a different Dr . Been watching your videos and so many others as well .
Thanks for all that you do Margaret
Thanks for subscribing and watching! We are so thrilled to hear that you are enjoying our POP Profile series and seeing value in our interviews. Wish you all the best in your journey! Check is out @poweroverpd on Facebook, Twitter, and Instagram - but also poweroverpd.org to help join the fight! Stay in touch!
i find naroligist r useless my 9 year battle had no help yet
See my comment?
I have parks.
Sorry to hear that. I hope you find value in the series that sheds light on the various research and treatments offered. Also, find some local places to build a habit of movement exercises. We wish you all the best! You are not alone!
Ok
All talk bla bla. Nothing ever gets done
Exactly!! foundations asking for money for research- nothing done - no one else the patients !!! financial struggle... is terrible-
Sir, where can I get this medicine. I am living in Kolkata, India and the name of the medicine pls
We provide free exercise wellness programs to help those battling Parkinson's Disease and financial struggles. Also, we are partnering with the Michael J Fox Foundation to support the National Plan to End Parkinson's Bill that would also help the financial impacts of the disease. Please read more about that and support! www.michaeljfox.org/news/congress-reintroduces-national-plan-end-parkinsons-act
You lost me at Co(n)vid P(l)andemic. And promoting shots in the arm for viruses. Wonder how many of these poisons triggered the next wave of PD? But hey, if it helps your book sales.....