I am 72 and suspect I have LS. I have all the symptoms and have had for several years. I had no idea what it was but your videos described exactly what I was experiencing. You would think at my age I would be over being embarrassed to see a doctor for this but I am and I am mortified to have a doctor look at this. I told my urologist about my symptoms via a phone appointment and she gave me the steroid cream. I am also on estrogen cream which has helped my UTIs immensely. In a quandary at the moment. Thank you for your videos.
@@lichensclerosussupportnetwork thanks to Your videos I had an idea what this was. Yes I was diagnosed with LS. The steroid cream has helped a lot along with the estrogen cream. I need a calendar to keep up with what days I use what! Thank you again for your educational videos and your courage to talk about topics that can be personal and embarrassing.
@@lichensclerosussupportnetwork I was diagnosed with LS. Without your videos I would never have known how to look into this. I have been on the steroid and estrogen for a while now and it has greatly improved. I continue to watch each new video of yours that comes out and learn something new every time. Thank you so much for what you do.
Hi, I just wanted to thank you for this video. You were the first person I found on TH-cam talking about this condition and I found your channel so helpful. That was about three years ago I think. I had just been diagnosed but had not been given much information on it except being given the ointment. You explained so much of the information I really needed. I’m having a flair up at the moment so I came right back to someone I trusted. I am going with the ointment again and also an emollient. Take care love your videos, so helpful for so many of us.
Aw, thank you so much for your kind words! We will actually have a video out on flare treatment and management in 2024, so look out for that! In the meantime, I hope your flare has settled by now and that you are feeling much better. Sending healing vibes
@@lichensclerosussupportnetwork Thank you for your kind reply. Yes thankfully things have settled down. I remembered that you said in one of your videos that you use a use the ointment twice a week just to keep things under control. Great advice, I have started doing the same. Love how informative your videos are. Looking forward to any and all you put out. Thank you once again.
Very helpful. I had issue with sore foreskin and inflammation. Urologist said not lichen sclerosis but I'm not convinced. Been down the long term steroid use, didn't really help. They've kind of just sent me on my way now, they don't think circumcision will help but anyway, GP gave me an emollient which I think maybe a game changer (epimax). Thanks for this video, it's very helpful
Omg! I have had LS since I was 8 years old & I just found you I am 59. I know I didn’t even think to research since I have been so ashamed along with other stuff. I think I have been in remission for a long time . I am so glad other women will not have to go thru what I did hopefully. Even I. 2000 when I was having my son the entire medical team had disgusting looks on their faces when they saw may vulva. I ended up with a emergency c- section.
Very helpful video since there is such a learning curve with LS . I was diagnosed a few months ago and am still struggling to find a balance with clobetasol and other products to supplement it with. Thank you for your product info!
Thanks for your comment. This diagnosis can be very overwhelming in the beginning, but you got this! Consider coming to our virtual support meetings - sign up at www.lssupportnetwork.org/connect With love,
I think coconut oil caused me issues with rash/clogged pores, especially around the hairline and butt area😭 It’s quite comedogenic but had so many good points for LS including anti-inflammatory!
Yes! Coconut oil is not for everyone. Everyone is different and will have different reactions but there are definitely tons of options. Any plant-based oil -- hemp, jojoba, olive, etc, can be helpful. Shea butter is nice because it's so thick. With love,
They are in the description box as well, but here you: Product Links: FemmeSense - www.femmesense.ca/ - use code LABIALOVE23 for 10% off. Momotaro Salve - momotaroapotheca.com/ - use code JOYONJOYONJOY to save 10% off (not our/my code The other products mentioned do not have 1 site in particular and depends on your location so just Google them and/or search for them on Amazon (wherever you are located): -SweetSpot Labs Rescue Balm -Coconut Oil -Vmagic -Vaseline -Aquaphor Healing Ointment -Aquaphor Diaper Rash Cream With love, Jaclyn
I use 2 different 'creams' the Dr prescribed an emollient cream called Zerobase. I use this during the day. Bedtime I use Epaderm ointment. This is a thick ointment. I wear non perfumed panty liners to keep my underwear clean. Since using both these I don't have as many flare ups. ❤
@lichensclerosussupportnetwork yes, I'm in the UK. It has taken me years to find something that works. Before that, I was back and forth to the hospital. It's so much better now. Take care 🙂 💕
Thank you for this educational video🙏🏻 I really appreciate all of your videos ❤I use V- magic ,olive oil and oxidized castor oil , I believe constant usage of these products have helped prevent a lot of fusing plus my steroid use . I’ve had LS for 6 years
Ahhh I wanna try oxidized castor oil too, I just can't afford it right now, but one day - I've heard great things about it. Thanks so much for sharing all of this. With love, Jaclyn
Thank you for this video. Its very helpful. Just a little tip, i have all my underwear stained. Before washing it in the machine, i rub them with a fragrance-free dish soap and i let them soak for 10 minutes in warm water. Then i put it to a regular washing cycle in the machine. It removes the stains :-) !
I am very curious about what you do about the collateral damage to your underwear with emollient, barrier creams, clobetasol (and I also use estrogen cream). I am going through underwear like crazy because as you know, pads irritate the area. I am very interested in hearing what you have to say.
I don't really have collateral damage personally. But in fairness, I don't buy expensive underwear. I use cheap, cotton, oversized briefs and if some product gets on it, that's fine, I've never had issues with it not washing out. I also never apply so much at a time that it's dripping through my underwear or anything, but that's just me. I know everyone is different. Barrier creams like Vaseline may be better since they stay put more and are colorless, but I haven't had issues with coconut oil or FemmeSense balm in the past. With love,
Some providers say whole area, others say only where you have LS. I personally do whole area and don't have issues. Been in remission for 3 years. - Kathy
They are in the description box as well, but here you: Product Links: FemmeSense - www.femmesense.ca/ - use code LABIALOVE23 for 10% off. Momotaro Salve - momotaroapotheca.com/ - use code JOYONJOYONJOY to save 10% off (not our/my code The other products mentioned do not have 1 site in particular and depends on your location so just Google them and/or search for them on Amazon (wherever you are located): -SweetSpot Labs Rescue Balm -Coconut Oil -Vmagic -Vaseline -Aquaphor Healing Ointment -Aquaphor Diaper Rash Cream With love, Jaclyn
I have small cuts way back in the vagina near the cervix. Been put on clob treatments. Unsure at this point if it is LS cuz she can’t do a biopsy yet. I was not sure if this is typical location cuz it’s so far back there. The last time I used Vaseline pre clob and suspected diagnosis' it burned really badly. I am sort of scared to put anything back there. Awaiting results of further tests. I am normally an active person and this has sidelined me in a way I have never known. And wonder if I will ever get back to my active lifestyle
I hope you've been able to see a provider for this. LS rarely if ever affects the inside the vagina. You may be dealing with lichen planus which does affect the vagina. Check out this resource lssupportnetwork.org/lichen-planus-or-lichen-sclerosus-can-you-have-both/ I hope you feel better soon.
Thank you so much for talking about this. I was diagnosed with Lichen Sclerosus 3 yrs. Ago. And use the steriod cream but i hate the dryness that comes with it,( which seems to make the LS worse.) What do you mean when you say fusion? Whatever it is i dont want it. But i have notice horrible burning pain around the anal area so i need something and now that i have viewed your video i have experimenting to do. I have tried so many different types of hyper allergic soaps and all of them irritate. Thanks again for having this youtube site. Now i have to grab the coconut oil 😊
Honestly, the struggle of finding the right moisturizer, cleanser, etc. can be a huge challenge. There are so many options out there and we all react differently. I explain what fusing is in this video - th-cam.com/video/k3aa1thCmbM/w-d-xo.html - hope you get some relief from the pain soon!
Coconut oil is the most popular moisturizer in the community but it's not for everyone. We encourage everyone to test what your body likes and use that. There are no strict rules when it comes to these things. It's a matter of testing.
I have a question I haven't been able to find an answer to... should you use steroids if skin is red or cracked? Or should you wait until red skin is healed and use say castor oil instead?
Personally, I'd book in with a doctor who can examine the area to see what is going on and how you should treat. I'd keep the area hydrated with your emollient of choice until discussing with your doctor. Often red and cracked skin is a sign of irritation - could be yeast, dermatitis, reaction to steroids, or other - best to get checked out to know for sure.
thanks for this video. I prefer to use an oil in a spray bottle so I dont have to apply with my hands so do you think MCT oil is ok as its the liquid form of coconut oil? have you tried this?
My friend who makes and sells skincare products says coconut oil is drying to the skin. Also, I've read that it's strong antimicrobial properties interfere with the natural vaginal/vulval flora which can create problems for some women.
Thanks for sharing this! We've consulted with a number of dermatologists and gynecologists and LS specialists all of whom recommend it and say it's safe to use. Of course, everyone is different. Some people find that it causes yeast, others love it. When it comes to emollients, it's all about finding what works for you and your body. I wasn't saying you have to use coconut oil, just that that's what I use. I've been using it for 4 years and not had a single issue. I do not have a lot of money, so I have to use what's cheap and what works for me. I'm glad you have products that work for you! At the end of the day, there are tons of options which is great because everyone has different preferences and reactions :) With love, Jaclyn
If you have the medical studies showing coconut oil disrupts the vaginal and vulva, I'd love to read those - please feel free to email them so I can educate myself :)
I guess it depends on how you are defining 'works' here. No emollient is meant as a cure or treatment, they are adjuncts to your primary plan. So do you mean works = cure, works = treat, works = feel better, works = hydrated?
I haven't personally used it so I can't say but I've heard a couple of people say they like it. Everyone is very individual with their choices; it's all about finding what works best for you.
I’ve used Perrins original and found it did ease symptoms but I’ve stopped using it now as it was working out expensive. I tried coconut oil but that seemed to cause BV so now I use a standard emollient from the supermarket used for eczema and seems to help
THANK YOU!!! THANK YOU!!! THANK YOU!!! Have I told you THANK YOU!?!!!!!!! I found out a little over a yr ago I have LS. I got t steroid ointment n they gave me ""KY Jelly-which I don't really care for."' Bt I looked up some articles about LS on Google, n looked at t leaves. I saw t one, of an elderly woman that was so ""fused"" I don't know how she even was able to pee, let alone clean herself up afterwards. I didn't know at t time it was ""fusing"" bt it SCARED t CRAP OUTTA ME!!! I wondered if that was gona happen to me--I was, to say t LEAST--TERRIFIED!!! Bt then I found you n you was explaining it w t tape n oil, then I understood. N you mentioned about ""coconut oil"", which I had some I never opened n used. I tried it n I ❤❤❤it!!! Thank you so, so, very much!!! As you can tell by all t exclamation marks n capital letters I'm an expressive person (like all other artists n musicians). N I really want you to know how much you've helped me n put my mind, n nerves, at ease. When I first found out what I had, I sat in t Dr's off n cried my eyes out. I don't have any itching bt I have buring, searing, pain!!! I said, 'I don't wana live if I haveta go thru this for t rest of my life.' When I first got my Clobetasol ointment I thought HALLELUJAH, I've got something that works!!! Bt I wasn't told to not use it e-ver-y sing-le day. So I used it all t time n then I really started to hurt n it didn't stop. I was discouraged n depressed, to say t LEAST!!! Bt, aft watching several of your videos, I got it right. MAN, you think t Gynocologist would of explained it to me😢. So any way, I feel like I'm finally on t road to recovery. I'm encouraged, not depressed, or angry, or ANYTHING NEGATIVE!!!!! So, THANK YOU!!! N don't stop helping us women, PLEASE N THANK YOU!!! I'm so happy I found you!!! Jeannie Beal
Aw, wow, thanks Jeannie. I'm so glad to hear that things are going so well for you! Thank you very much for your kind words. Wishing you all the best on your healing journey. With love,
So glad to hear your good news! I have been using the steroid cream for almost 6 months because I have new areas popping up that need it. Were you in remission and still using it? I know Jaclyn used hers for a year with no issues. I’m concerned about using it and having something like you had. I also have atrophy with pain involved!😭
I am 72 and suspect I have LS. I have all the symptoms and have had for several years. I had no idea what it was but your videos described exactly what I was experiencing. You would think at my age I would be over being embarrassed to see a doctor for this but I am and I am mortified to have a doctor look at this. I told my urologist about my symptoms via a phone appointment and she gave me the steroid cream. I am also on estrogen cream which has helped my UTIs immensely. In a quandary at the moment. Thank you for your videos.
You need checks for cancer checks
@@Jklmnopjkl I have an appointment with gynecologist next week so hoping to get some answers. Thank you.
How was your appointment? Did you get answers?
@@lichensclerosussupportnetwork thanks to Your videos I had an idea what this was. Yes I was diagnosed with LS. The steroid cream has helped a lot along with the estrogen cream. I need a calendar to keep up with what days I use what! Thank you again for your educational videos and your courage to talk about topics that can be personal and embarrassing.
@@lichensclerosussupportnetwork I was diagnosed with LS. Without your videos I would never have known how to look into this. I have been on the steroid and estrogen for a while now and it has greatly improved. I continue to watch each new video of yours that comes out and learn something new every time. Thank you so much for what you do.
Hi, I just wanted to thank you for this video. You were the first person I found on TH-cam talking about this condition and I found your channel so helpful. That was about three years ago I think. I had just been diagnosed but had not been given much information on it except being given the ointment. You explained so much of the information I really needed. I’m having a flair up at the moment so I came right back to someone I trusted. I am going with the ointment again and also an emollient. Take care love your videos, so helpful for so many of us.
Aw, thank you so much for your kind words! We will actually have a video out on flare treatment and management in 2024, so look out for that! In the meantime, I hope your flare has settled by now and that you are feeling much better. Sending healing vibes
@@lichensclerosussupportnetwork Thank you for your kind reply. Yes thankfully things have settled down. I remembered that you said in one of your videos that you use a use the ointment twice a week just to keep things under control. Great advice, I have started doing the same. Love how informative your videos are. Looking forward to any and all you put out. Thank you once again.
This is such a helpful video! From someone newly diagnosed with LS thank you !
You are so welcome! Have you seen this resource? lssupportnetwork.org/drjill
Very helpful. I had issue with sore foreskin and inflammation. Urologist said not lichen sclerosis but I'm not convinced. Been down the long term steroid use, didn't really help. They've kind of just sent me on my way now, they don't think circumcision will help but anyway, GP gave me an emollient which I think maybe a game changer (epimax). Thanks for this video, it's very helpful
Omg! I have had LS since I was 8 years old & I just found you I am 59. I know I didn’t even think to research since I have been so ashamed along with other stuff. I think I have been in remission for a long time . I am so glad other women will not have to go thru what I did hopefully. Even I. 2000 when I was having my son the entire medical team had disgusting looks on their faces when they saw may vulva. I ended up with a emergency c- section.
OMG I'm so sorry you had to experience that, it breaks our heart to hear things like that. You and your vulva are not disgusting! Sending you love,
Very helpful video since there is such a learning curve with LS . I was diagnosed a few months ago and am still struggling to find a balance with clobetasol and other products to supplement it with. Thank you for your product info!
Thanks for your comment. This diagnosis can be very overwhelming in the beginning, but you got this! Consider coming to our virtual support meetings - sign up at www.lssupportnetwork.org/connect With love,
An amazingly informative video and hugely helpful. Thank you! :)
So thrilled you found it helpful! Appreciate you. With love, Jaclyn
I really thank you for this video
You are so very welcome. With love, Jaclyn
I think coconut oil caused me issues with rash/clogged pores, especially around the hairline and butt area😭 It’s quite comedogenic but had so many good points for LS including anti-inflammatory!
I am trying hemp seed oil for something lighter and shea butter for a barrier ointment instead.
Yes! Coconut oil is not for everyone. Everyone is different and will have different reactions but there are definitely tons of options. Any plant-based oil -- hemp, jojoba, olive, etc, can be helpful. Shea butter is nice because it's so thick. With love,
Hi, I couldn’t find the links to the products, could you repost them please? Thanks
They are in the description box as well, but here you: Product Links:
FemmeSense - www.femmesense.ca/ - use code LABIALOVE23 for 10% off.
Momotaro Salve - momotaroapotheca.com/ - use code JOYONJOYONJOY to save 10% off (not our/my code
The other products mentioned do not have 1 site in particular and depends on your location so just Google them and/or search for them on Amazon (wherever you are located):
-SweetSpot Labs Rescue Balm
-Coconut Oil
-Vmagic
-Vaseline
-Aquaphor Healing Ointment
-Aquaphor Diaper Rash Cream
With love, Jaclyn
I use 2 different 'creams' the Dr prescribed an emollient cream called Zerobase. I use this during the day.
Bedtime I use Epaderm ointment. This is a thick ointment.
I wear non perfumed panty liners to keep my underwear clean.
Since using both these I don't have as many flare ups. ❤
Are you located in the UK? Either way, thrilled to hear you found what works and what helps you - yay! With love, Jaclyn
@lichensclerosussupportnetwork yes, I'm in the UK. It has taken me years to find something that works. Before that, I was back and forth to the hospital. It's so much better now.
Take care 🙂 💕
Are you able to be sexually active?
@@janeteve5142do you use a steroid too sometimes ?
So useful! Thank you.
For some reason I can’t locate your video on patch test. Please share a link. Thanks.
Thank you!
Thank you for this educational video🙏🏻 I really appreciate all of your videos ❤I use V- magic ,olive oil and oxidized castor oil , I believe constant usage of these products have helped prevent a lot of fusing plus my steroid use . I’ve had LS for 6 years
Ahhh I wanna try oxidized castor oil too, I just can't afford it right now, but one day - I've heard great things about it. Thanks so much for sharing all of this. With love, Jaclyn
Where do you find oxidized castor oil?
Thank you for this video. Its very helpful. Just a little tip, i have all my underwear stained. Before washing it in the machine, i rub them with a fragrance-free dish soap and i let them soak for 10 minutes in warm water. Then i put it to a regular washing cycle in the machine. It removes the stains :-) !
Thanks for sharing!
Calmoseptine The Original Ointment is wonderful. It's a barrier type ointment and has menthol so it's so soothing.
I am very curious about what you do about the collateral damage to your underwear with emollient, barrier creams, clobetasol (and I also use estrogen cream). I am going through underwear like crazy because as you know, pads irritate the area.
I am very interested in hearing what you have to say.
I don't really have collateral damage personally. But in fairness, I don't buy expensive underwear. I use cheap, cotton, oversized briefs and if some product gets on it, that's fine, I've never had issues with it not washing out. I also never apply so much at a time that it's dripping through my underwear or anything, but that's just me. I know everyone is different. Barrier creams like Vaseline may be better since they stay put more and are colorless, but I haven't had issues with coconut oil or FemmeSense balm in the past. With love,
What soap do you use?
For maintenance with the steroid cream do you put it on the whole olive or just the problem spots?
Some providers say whole area, others say only where you have LS. I personally do whole area and don't have issues. Been in remission for 3 years. - Kathy
Hi would you mind sharing the lnks of the products please
They are in the description box as well, but here you: Product Links:
FemmeSense - www.femmesense.ca/ - use code LABIALOVE23 for 10% off.
Momotaro Salve - momotaroapotheca.com/ - use code JOYONJOYONJOY to save 10% off (not our/my code
The other products mentioned do not have 1 site in particular and depends on your location so just Google them and/or search for them on Amazon (wherever you are located):
-SweetSpot Labs Rescue Balm
-Coconut Oil
-Vmagic
-Vaseline
-Aquaphor Healing Ointment
-Aquaphor Diaper Rash Cream
With love, Jaclyn
I find YES vaginal moisturiser really helpful
What about vitamin e? I am going into maintenance and wasn't given any guidelines on in-between days when I don't use steroids
Many people use vitamin e in their regimen. It's a personal choice.
Where did you find your white cotton underwear in bulk?
Some have found them in Costco or BJs.
I have small cuts way back in the vagina near the cervix. Been put on clob treatments. Unsure at this point if it is LS cuz she can’t do a biopsy yet. I was not sure if this is typical location cuz it’s so far back there.
The last time I used Vaseline pre clob and suspected diagnosis' it burned really badly. I am sort of scared to put anything back there.
Awaiting results of further tests.
I am normally an active person and this has sidelined me in a way I have never known. And wonder if I will ever get back to my active lifestyle
I hope you've been able to see a provider for this. LS rarely if ever affects the inside the vagina. You may be dealing with lichen planus which does affect the vagina. Check out this resource lssupportnetwork.org/lichen-planus-or-lichen-sclerosus-can-you-have-both/ I hope you feel better soon.
What is the name of the product you love? You started taking about it at 19:32 on the video.
It's FemmeSense balm and you can get it at www.femmesense.ca/ and you can use code LABIALOVE23 for 10% off.
I heard that coconut oil if used to much can cause yeast infection 😵
Everyone is different. You won't know how your body will react to it before you try it.
Thank you so much for talking about this. I was diagnosed with Lichen Sclerosus 3 yrs. Ago. And use the steriod cream but i hate the dryness that comes with it,( which seems to make the LS worse.) What do you mean when you say fusion? Whatever it is i dont want it. But i have notice horrible burning pain around the anal area so i need something and now that i have viewed your video i have experimenting to do. I have tried so many different types of hyper allergic soaps and all of them irritate. Thanks again for having this youtube site. Now i have to grab the coconut oil 😊
Honestly, the struggle of finding the right moisturizer, cleanser, etc. can be a huge challenge. There are so many options out there and we all react differently. I explain what fusing is in this video - th-cam.com/video/k3aa1thCmbM/w-d-xo.html - hope you get some relief from the pain soon!
My gyno said no coconut oil but use Vaseline thinly applied.
Coconut oil is the most popular moisturizer in the community but it's not for everyone. We encourage everyone to test what your body likes and use that. There are no strict rules when it comes to these things. It's a matter of testing.
@@lichensclerosussupportnetwork I found that Aquaphor works great for me. And Aveeno body wash is the only thing that doesn't irritate my lady parts.
@@salSweAquafor
I have some questions to ask you. How could I do that?
You can schedule a call with Jaclyn at lostlabia.com/supportcall
Anyone heard or used DMSO with there oil
I have a question I haven't been able to find an answer to... should you use steroids if skin is red or cracked? Or should you wait until red skin is healed and use say castor oil instead?
Personally, I'd book in with a doctor who can examine the area to see what is going on and how you should treat. I'd keep the area hydrated with your emollient of choice until discussing with your doctor. Often red and cracked skin is a sign of irritation - could be yeast, dermatitis, reaction to steroids, or other - best to get checked out to know for sure.
A friend finds relief with Vicks and I'm wondering if you have to keep it dry or moist?
thanks for this video. I prefer to use an oil in a spray bottle so I dont have to apply with my hands so do you think MCT oil is ok as its the liquid form of coconut oil? have you tried this?
I haven't personally tried it but I think if it works for you, then great!
My friend who makes and sells skincare products says coconut oil is drying to the skin. Also, I've read that it's strong antimicrobial properties interfere with the natural vaginal/vulval flora which can create problems for some women.
Thanks for sharing this! We've consulted with a number of dermatologists and gynecologists and LS specialists all of whom recommend it and say it's safe to use. Of course, everyone is different. Some people find that it causes yeast, others love it. When it comes to emollients, it's all about finding what works for you and your body. I wasn't saying you have to use coconut oil, just that that's what I use. I've been using it for 4 years and not had a single issue. I do not have a lot of money, so I have to use what's cheap and what works for me. I'm glad you have products that work for you! At the end of the day, there are tons of options which is great because everyone has different preferences and reactions :) With love, Jaclyn
If you have the medical studies showing coconut oil disrupts the vaginal and vulva, I'd love to read those - please feel free to email them so I can educate myself :)
I wonder if castor oil works.
I guess it depends on how you are defining 'works' here. No emollient is meant as a cure or treatment, they are adjuncts to your primary plan. So do you mean works = cure, works = treat, works = feel better, works = hydrated?
I mean: Castor oil feels better. Will stop the itching? @@lichensclerosussupportnetwork
has anyone one tried the perrin naturals product line?
I haven't personally used it so I can't say but I've heard a couple of people say they like it. Everyone is very individual with their choices; it's all about finding what works best for you.
I’ve used Perrins original and found it did ease symptoms but I’ve stopped using it now as it was working out expensive. I tried coconut oil but that seemed to cause BV so now I use a standard emollient from the supermarket used for eczema and seems to help
I’ve started using Dr Wolffe V cream / complements using steroid cream
THANK YOU!!! THANK YOU!!! THANK YOU!!! Have I told you THANK YOU!?!!!!!!!
I found out a little over a yr ago I have LS. I got t steroid ointment n they gave me ""KY Jelly-which I don't really care for."' Bt I looked up some articles about LS on Google, n looked at t leaves. I saw t one, of an elderly woman that was so ""fused"" I don't know how she even was able to pee, let alone clean herself up afterwards. I didn't know at t time it was ""fusing"" bt it SCARED t CRAP OUTTA ME!!! I wondered if that was gona happen to me--I was, to say t LEAST--TERRIFIED!!! Bt then I found you n you was explaining it w t tape n oil, then I understood. N you mentioned about ""coconut oil"", which I had some I never opened n used. I tried it n I ❤❤❤it!!! Thank you so, so, very much!!! As you can tell by all t exclamation marks n capital letters I'm an expressive person (like all other artists n musicians). N I really want you to know how much you've helped me n put my mind, n nerves, at ease. When I first found out what I had, I sat in t Dr's off n cried my eyes out. I don't have any itching bt I have buring, searing, pain!!! I said, 'I don't wana live if I haveta go thru this for t rest of my life.' When I first got my Clobetasol ointment I thought HALLELUJAH, I've got something that works!!! Bt I wasn't told to not use it e-ver-y sing-le day. So I used it all t time n then I really started to hurt n it didn't stop. I was discouraged n depressed, to say t LEAST!!! Bt, aft watching several of your videos, I got it right. MAN, you think t Gynocologist would of explained it to me😢. So any way, I feel like I'm finally on t road to recovery. I'm encouraged, not depressed, or angry, or ANYTHING NEGATIVE!!!!! So, THANK YOU!!! N don't stop helping us women, PLEASE N THANK YOU!!! I'm so happy I found you!!! Jeannie Beal
Aw, wow, thanks Jeannie. I'm so glad to hear that things are going so well for you! Thank you very much for your kind words. Wishing you all the best on your healing journey. With love,
So glad to hear your good news! I have been using the steroid cream for almost 6 months because I have new areas popping up that need it. Were you in remission and still using it? I know Jaclyn used hers for a year with no issues. I’m concerned about using it and having something like you had. I also have atrophy with pain involved!😭
Zincofax works well for me and is economical
Yes, I love me another economically minded consumer