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I was put on betnovate will it treat it can i also use in inside v

Jaclyn I just want to say thank you for what you do.

Sex toy video please.😊

What’s the difference between Clobatasol ointment and the cream?

I use an organic coconut oil as an emollient and when I need a barrier emollient my go to is Vaseline. Heading off to Argentina in the autumn and will be away some weeks and living in trousers … any recommendations for other emollients which will be lighter and easy to take for travel?

Have you tried EMUAID?? It has been a game changer for me!

Thank you SO much Jaclyn! You are my Super Heroine 😊 I love your style and candor and amazing committment to research and sharing! I was incredibly freaked out when 1st diagnosed and nowhere did I find better info than your website and now LSSN also! I've gotten into remission with my LS, knock wood, but I know where to turn for best info to try and Stay in remission. I currently use Neueve vulvar balm for my emollient. It is quite expensive though, so will need to switch eventually...Take Best Care, and Thanks again! ❤

Where did you buy the water bottle?

Oh my goodness. Im a black woman and my doctor diagnosed me with lichen sclerosus and i have been on a steroid cream

They currently have me on Clobetasol twice a day. They don't know what this is yet. I'm having to do my own research. Anyway. When I do it twice a day I get major headaches. Also, does large doses of Vit D3 help with this type of lichen?

Is LS also similar to Morphea or EHK Ichthyosis in any way?

Since ive listened to this podcast, i thought, why not try "wild yam"?! It seems to help so far!

After trial and error, I ended up using Aquaphor as the option that works for me. Appreciate your videos.

thank you so much for this video! many helpful answers!

Thank you so much Dr. Rubin and Jaclyn for sharing this important information with us. I am 59 years old and was diagnosed with LS 6 months ago and was also prescribed Clobetasol along with Estradiol ( estrace) vaginal cream and because of the health scares and labeling warnings on the box I held on using it for months. I saw my new PCP who assured me that it was safe and not systemic hormone so it wouldn't go into my blood stream . She told me I would feel better and would help with atrophy and painful sex. My Gyn doctor prescribed it to use 2x a week. And also assured me to use and that it was safe to use. You are both a God send❤

WOW! That was SO educational. I am 71 and my Lichen Sclerosus was diagnosed well over 10 years, by complete chance, by a medical student in my GP practice, (I live in Ireland). For another 10 years prior to that, neither my GP nor my Gynie ever saw any signs, so couldn't verify what my itching and tearing might have been caused by. My GP and Gynie are both very supportive, but neither have given me the treatment guidance that I have received in the last few days watching your LSSN videos and this incredibly interesting video, in particular. I am in the middle of the worst 'flare' I have ever had and am now realising that it's coinciding with the first anniversary of my best friend of 46 years isn't surprising. Extremely helpful. The importance of my vaginal oestrogen suppositories is such a relief to learn about, as I have been cautious about using them during a flare up. But after this video I feel much more informed and confident. I can not thank you both, Jacqlyn and Dr. Rubin, enough for this session and the work that you are both doing and enthused to do. It feels really exciting and liberating. Am now realy thirsty for more ...............

I'm allergic to coconut😢

Great video! Will definitely try the protocol! Also, Curious about how to utilize the steroid ointment more effectively? This was mentioned in your video but not explained. I just got diagnosed so I’d reaaaally like to know that part. Thank you!! ❤

Stress for sure..

I don’t know if I have LS! I’ve had itch and discomfort for 4 months. Gynecologist said he doesn’t see any signs. A dermatologist said she maybe did. Both gave me a Rx for steroid but I’m hesitant to start using if it’s not LS. How do I find a qualified specialist?

Bless U for this channel💞

such a great talk!!!

So useful! Thank you. For some reason I can’t locate your video on patch test. Please share a link. Thanks.

So glad i found your channel - although i wouldn't wish this on anyone, it's such a comfort ro know i'm not alone with this miserable condition. I've had LS for around 40yrs (now in my mid 60s) & was finally diagnosed last March. I'd had a uti the previous xmas with dreadful flaring itching & abdominal & clitoral pain & copiois discharfe, but couldn't get to see a doctor (everywhere was full up) so i ended up going to a sexual health clinic (i told a lie & said i'd had a sexual encounter - they wouldn't have seen me quickly if i'd told them i'd been married & had the same sexual partner for 40 odd yrs). All the usial std tests were negative & they didn't pick up the LS but at least i got treated for the uti, (& was given yet again candida treatment which didn't work). I was in agony but found some relief with aloe vera soothing & coing gel. I finally got to see a doctor in January & asked if i could be referred to a dermatologist - he thankfully readily agreed, stating there's a condition called lichen planus & i could well have that, although he said, the sexual health clinic should've picked that up. Doctors over the years just kept getting cross with me, saying it's not candida so they're not going to even bother testing me for that as tests kept coming back as negative, even though i'd kept complaining of chronic itching, pain, & copious green discharge over the years which was getting worse & worse, & i'd been for many tests including gynae scans, etc. I finally got to see the dermatologist in the following March who took one look at it (properly) & diagnosed LS. She said i've had it for many years & i have fusion & atrophy (i just thought it was where i was sewn up a bit too tightly after the birth of my daughter, & that age had also taken its toll). She said it's like breast cancer was years ago as it's a bit of a taboo subject that no one is talking about & because i've had it for so long without treatment, it carries a risk of cancer so i have to be vigilant. I was also referred to urology as i'd got a slight prolapse & having bladder problems. I'm still struggling to get the LS under control & had to use betnovate instead of dermovate cream, which i had to apply morning & night for a few weeks before going on to just nightly, & every time i tried to reduce to every other night it would flare. I have cptsd from childhood abuse & trauma so my nervous system was shot to pieces, along with M.E., fibromyalgia, & i also have a spinal disease & am diabetic. I've been having therapy for the cptsd & find meditation beneficial. I just wish this was more widely known about - both by women in general & by the medical profession - & i can't help thinking if this had been picked up years ago it wouldn't have gotten so bad for me. Thanks again, Jaclyn, for all the helpful information you share with us.

this is extremely helpful. Starting pelvic floor pt tomorrow and hoping they thoroughly address my constipation along with my vaginal pelvic floor problems (I have LS and vestibulodynia)

good information! Thank you!

Thank you! Your videos are so helpful for me!!!!

This is a great video thank you. Jaclyn do you have something research based you have found regarding use of estrogen for LS i could share with my doctor?

Thank you so much for helping those of us with LS work towards better health, and talking about the 'women's issues' that really aren't talked about. So appreciated.

This is such a helpful video! From someone newly diagnosed with LS thank you !

Super helpful video Jacqlyn- thank you so much for getting Dr. RUBIN on and asking her all these GREAT QUESTIONS!!!🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼

Kathy, do you know if micro cuts in the perineum area are always indicative of LS or can they be from something else like atrophy? I have the micro tares but no other signs for LS…no whiteness.

Thank god for these two ladies

Thank you for this outstanding information. At age 77 I'm learning more and more about a part of my private body. Urine stream is a problem for me, in that I constantly have to restart to empty. I really don't know to talk to either my GYN or GP about it, I would appreciate guidance in how to talk with a doctor about it.

Jaclyn, huge thanks for this excellent information. I don't know what I would do without all the information you provide. I am in the UK and have a wonderful dermatologist whom I see 3/4 times a year. I have oestrogen for the vaginal opening only as if I used it internally I had thrush continually. I use one kind of steroid cream weekly on the clitoral area and another three times a week on the labia areas. I have lost my labia and have fusing over the clitoris and have been concerned about my urethra and urination! So this has been timely.....

Meu grande problema é a atrofia. Não tenho manchas e pouca coceira. Sinto dor e pele atrofiando. Tenho incontinência urinária. Nesse caso os hormônios seria bom para mim?

I'm 64 & have been recently diagnossd with LS after complaining for more than 40yrs of itching, burning, weird discharge, abdominal pain, painful sex, & doctors repeatedly treating me for candida which had no effect so they just used to get annoyed with me as all sexual health tests, including candida, kept coming back as normal. I then got really ill with a uti last Christmas & was told i couldn't see a doctor u til 17th January so i went to a walk in centre where i was given antibiptics. Things didn't seem to improve so i ended up going to a self-refer sexual health clinic (had to tell a fib & say i'd had a one off sexual encounter so i could get to see them urgently, otherwise if they knew i'd been sexually faithful to my husband for the last 42 yrs, & he to me, they wouldn't have seen me). They tested me for everything & examined me, & all tests came back as normal. I finally saw a doctor in January & asked to be refered to dermatology because of the infernal itching. I finally got to see a dermarogist in March who took one look & diagnosed LS, saying i've had it for many years & i have atrophy & fusion &, because it's gone untreated for so long, it carries a small risk of cancer so to be vigilant. She prescribed steroid cream (evernight for 4wks, every other night for 4 wks, then once a week for 4 wks) & a special wash & a barrier cream. I was also told to use estrogen cream & to go back in 3mnths. I couldn't use the wash or barrier cream as they made the condition worse. I saw her after 3mnths with some very slight provement but not much & was told to keep using the creams & go back in 6mnths. Each tine i tried to reduce the steroid cream, the condition got worse. Then a huge flare happened, with skin literally peeling off - so painful to sit & walk so i started using a different cream & applying twice a day, which has helped but i'm very aware of the skin thinning side effect. I alao use the estrogen cream twice a week, inside & out, & avoid high oxcilate foods & drinks & am hoping that sometime soon things will start to improve so i can get this under control. I have discovered that stress can affect it & i have quite a lot of stress, including cptsd from chldhood abuse & trauma for which i am now at last receiving therapy after many years of waiting. I'm angry that this wasn't picked up years ago as it may not have got to such an advanced state. A doctor i saw recently because of the flare up told me to stop looking online for information as it's often incorrect, not to bother with the diet as it's not proven, & showed me lots of pictures of very bad & extreme LS & told me i shouldn't be worrying as i'm nowhere near as bad as those & that i don't have fusion (i know i do & the dermatologist had already confirmed that). I'm appauled & astounded that this isn't talked about more in the media - women's magazines would be a good start - & that GPs are not trained to look for it when presented with appropriate symptoms. My dermatologist said it's a bit like breast cancer & pms were years ago as no one talked about those to start with as they were considered taboo subjects, & that many doctors just don't really know about it. The health service here in England UK has really got behond a joke & doesn't look likely to improve any time soon, with over worked & under paid staff being part of the problem. Here's hoping that more people get to know about channels like these so they can get the help they need, & earlier rather than later.

I have estrogen cream but how often am I to use it? Do I put it inside or rub in on the outside or both? I didn’t get instructions really

So then WHY to we have to beg our medical providers for vaginal hormones?

Consult with your medical provider?????????????? Not in this world!

My doctor is not open minded, and my symptoms are out of control 😢, scary. I'm 55, and probably single forever because of LS, it's horrible!

My primary was so not on board with estrogen therapy because of stroke and heart attack. I was recently diagnosed with lichen and it feels like the Sahara desert down there. Also urinary frequency from pelvic floor dysfunction causing dehydration in the whole body especially vagina. Intuitively I know I need something to plump up the tissue of the vagina.

Sooooo tired of our medical system.....lack of training in so many doctors.

I’ve noticed your puppet in a few videos on this topic! I’m wondering if this is just my experience. I’ve found that the hood material is more of a stretchy spandex-like tissue that’s glued on parts rather than a firm immoble structure. (I’m thinking leggings with an improper seam vs a big puffer coat) After years of work, I no longer have adhesions on the edge of the hood. But rather, I pull back the stretchy hood and the adhesions are creeping up from a more internal part of the hood. The stretchiness makes myofascial release tricky at this point and I’m a bit stagnant with my progress now.

Hello ladies thank you so much for your informative videos. Any recommendations on a specialist of LS in the central Pennsylvania region? I am current being treated by my Obgyn but not sure if I neede additional specialist for my condition God bless you both 🙏

I have a question I was diagnosed with LS 5 months ago. I have no itching and the white patches are gone. I have been watching your videos and wanted to thank you for sharing these. Mybquestion is should I have redness on the skin on my bottom ? My skin looks red like a diaper rash. I think I may have applied outside the area thar needs medication could this be the issue? Also, i think i am applying more than the pea size amount that you recommend. My doctor just prescribed the medicine and i was on my own😔was not told to soak just apply meds 2x a week

Does LS ever spread to the outside of the vulva?

Absolutely love your channel. Thanks to all your educational videos I was pretty sure I had LS. Went to a gynecologist asking her what she thought and it was confirmed. Now on estrogen for dryness and UTI plus steroid cream. Lots of improvement. Had never heard of LS but thanks to you I was able to get treatment sooner. Thank you so much. Please stop the clicking sounds you make. Sorry.

It makes me so angry and sad that most DRs know nothing about the clitoris and can respond negatively if you say you have a problem with it. I'm sure if I was a man who said that my dick wasn't working properly I would be immediately taken seriously.

Please can someone suggest the best steroid cream for me to buy? I don't know if and when I will ever find a DR to help with this. I only just found out that I have this condition (without LS,) and I just ordered some hydrocortisone 1% cream but I don't know if that is strong enough or not??