Welcome back! I just had surgery in October and in December for my lipedema. I’m happy to share my journey with anyone interested or thinking of doing it themselves.
It’s going well. I went to Dr. Amron. My lower legs are healing much slower than my upper legs did. The procedure it self was not bad at all. I’m still swollen but no regrets.
@@lawlessastrology My stents were put in 2021. I felt it was more painful than having my children. lol. The pain subsided after a couple days. I felt some relief but 3 yrs later I still have a lot of pain in lower left leg & swelling. My vascular surgeon said my reflux is good and there r none that need to be abalated. Hence my journey cont to find remedies n answers. What type of surgery did u have?
I found your channel recently and I am so happy you’ve just started posting again. Thank you for your honest and useful content. Wishing you a wonderful 2024 🎉
I am blessed to have found you. I missed you! Thank you for all help! My feet are ridiculous. I can hardly wear my special shoes. They swell up fast even after my velcro electric pumping. My feet go totally numb. I can’t walk on them. I’m in a wheelchair. What should I do next to help? What pumps do you use? How did you find a specialist? I have a nurse who helped with size of wraps to order. It once was one leg. Now the other leg is too. I’ll do anything to stop this disease. Thank you ver6 much for listening! Joni
Hello, I have only just fallen down the Lipedema rabbit hole. I am 54 and Keto almost 9 years. Down 100lbs and thought I was a failure because my arms and lower body NEVER reflected it. I check all the boxes for Lipedema and to put a name to what I have is a relief, well. for now till I get a diagnosis....fingers crossed. I have made an appointment with my GP and asked if she was well versed in Lipedema and she knew some things. I will jump through hoops for the insurance company with the hopes that MAYBE they will approve surgery someday, but for now I have a name for it and can start the path for the conservative measures.
Welcome back Rebekka. It's just so nice to see you here I was so worried. I was diagnosed last April and still have days where i find it hard to cope emotionally. I haven't decided whether I should try for an operation on the bases that I would need several procedure probably performed abroad too (I live in the UK). I am also not sure if it is best to be operated on at a very early stage (stage 1 max 2) or just try to cope with conventional therapies to see if I can keep it stable this way. Sadly we all know that lipoedema is a chronic illness that comes back. I am just lucky I am not a youngster anymore. Hope you are ok. Big hug to you.
You need to keep doing videos to get the word out! People need to know about lipedema AND healthcare systems need to acknowledge this progressive condition so they can best get ahead of this. Diagnosis should not begin at Stage 3!
hi Rebecca, so glad that you’re feeling better and back on TH-cam…we missed you, but so glad that you made yourself a priority! Good luck with the new job!
I've never been officially diagnosed but fit the diagnostic critera. Two questions. Any evidence for benefits with red light therapy? Which specialty of doctors treat lipedema?
I loved most your weight loss journey. It gave me great hope. Do you know about how many calories you had each day? And I like how positive I feel after listening to you. More sturdy!! Now it’s the insurance thing. When the govt releases codes for coverage. They have until April, even though coverage began in January. And finding outlets who file the claim for us vs filing ourselves? And how to do that. And I live CZ Salus leggings. So I’m not sure how to get those covered. I guess hoping Amazon opens a Medicare division is way out there!!! 😂😂😂. See ya again soon. Congrats on the new job, and take care of yourself. Bye bye
@sturdywoman are you still accepting questions? Is there any evidence that it's possible to break up the fibers around lipedema/inflamed fat manually? I've also heard of a machine that puts out 30/40 Hertz that supposedly can target fat to help loosen it?
@kristinamayer616 yes, I am! The survey is still open. I see your question above but if you have others feel free to drop them there and I check them periodically. ❤
Hi Rebekah! I'm curious what your journey to diagnosis looked like? I recently saw a specialist here in San Francisco and was certain I would be diagnosed (I have lipedema in my arms, legs and abdomen), but the doctor was reluctant to diagnose me because I didn't display cuffing at the ankles/wrists. It was extremely frustrating. She suggested she would review some recent MRI's to determine if these had evidence of lipedema, but for now I still don't have a diagnosis and wondering what to do next. I've started compression, which helps a lot with pain, using a leg riser, and diet changes. Just not sure what to do or where to go next. Thank you for all that you do to share awareness about this disease!
Welcome back! I just had surgery in October and in December for my lipedema. I’m happy to share my journey with anyone interested or thinking of doing it themselves.
I would love to hear how it went, during and recovery.
Me as well..
It’s going well. I went to Dr. Amron. My lower legs are healing much slower than my upper legs did. The procedure it self was not bad at all. I’m still swollen but no regrets.
@@CuteAnne100how did your surgery go?
@@lawlessastrology My stents were put in 2021. I felt it was more painful than having my children. lol. The pain subsided after a couple days. I felt some relief but 3 yrs later I still have a lot of pain in lower left leg & swelling. My vascular surgeon said my reflux is good and there r none that need to be abalated. Hence my journey cont to find remedies n answers. What type of surgery did u have?
Missed you Rebekka🎉😊So glad you know when its time to take care of you. It reminds us to do the same🎉
Thank you so very much!!!
You look terrific! Congrats on the new job!
I found your channel recently and I am so happy you’ve just started posting again. Thank you for your honest and useful content. Wishing you a wonderful 2024 🎉
Welcome back, sturdy woman! looking forward to more content :)
Thank you. I found your channel just a few months ago. Your content & personal story have saved my heath. I am so pleased you are doing better. Ty 🥰
I am blessed to have found you. I missed you! Thank you for all help! My feet are ridiculous. I can hardly wear my special shoes. They swell up fast even after my velcro electric pumping. My feet go totally numb. I can’t walk on them. I’m in a wheelchair. What should I do next to help? What pumps do you use? How did you find a specialist? I have a nurse who helped with size of wraps to order. It once was one leg. Now the other leg is too. I’ll do anything to stop this disease. Thank you ver6 much for listening! Joni
Hello, I have only just fallen down the Lipedema rabbit hole. I am 54 and Keto almost 9 years. Down 100lbs and thought I was a failure because my arms and lower body NEVER reflected it. I check all the boxes for Lipedema and to put a name to what I have is a relief, well. for now till I get a diagnosis....fingers crossed. I have made an appointment with my GP and asked if she was well versed in Lipedema and she knew some things. I will jump through hoops for the insurance company with the hopes that MAYBE they will approve surgery someday, but for now I have a name for it and can start the path for the conservative measures.
Welcome back Rebekka. It's just so nice to see you here I was so worried. I was diagnosed last April and still have days where i find it hard to cope emotionally. I haven't decided whether I should try for an operation on the bases that I would need several procedure probably performed abroad too (I live in the UK). I am also not sure if it is best to be operated on at a very early stage (stage 1 max 2) or just try to cope with conventional therapies to see if I can keep it stable this way. Sadly we all know that lipoedema is a chronic illness that comes back. I am just lucky I am not a youngster anymore. Hope you are ok. Big hug to you.
You need to keep doing videos to get the word out! People need to know about lipedema AND healthcare systems need to acknowledge this progressive condition so they can best get ahead of this. Diagnosis should not begin at Stage 3!
Have you heard that selenium deficiency is common for Lipoedema folks
hi Rebecca, so glad that you’re feeling better and back on TH-cam…we missed you, but so glad that you made yourself a priority! Good luck with the new job!
Well-done for prioritising yourself and congratulations on the new role:)
❤
I've never been officially diagnosed but fit the diagnostic critera. Two questions. Any evidence for benefits with red light therapy? Which specialty of doctors treat lipedema?
I loved most your weight loss journey. It gave me great hope. Do you know about how many calories you had each day? And I like how positive I feel after listening to you. More sturdy!! Now it’s the insurance thing. When the govt releases codes for coverage. They have until April, even though coverage began in January. And finding outlets who file the claim for us vs filing ourselves? And how to do that. And I live CZ Salus leggings. So I’m not sure how to get those covered. I guess hoping Amazon opens a Medicare division is way out there!!! 😂😂😂. See ya again soon. Congrats on the new job, and take care of yourself. Bye bye
@sturdywoman are you still accepting questions?
Is there any evidence that it's possible to break up the fibers around lipedema/inflamed fat manually? I've also heard of a machine that puts out 30/40 Hertz that supposedly can target fat to help loosen it?
@kristinamayer616 yes, I am! The survey is still open. I see your question above but if you have others feel free to drop them there and I check them periodically. ❤
What causes lipedema?
Hi Rebekah! I'm curious what your journey to diagnosis looked like? I recently saw a specialist here in San Francisco and was certain I would be diagnosed (I have lipedema in my arms, legs and abdomen), but the doctor was reluctant to diagnose me because I didn't display cuffing at the ankles/wrists. It was extremely frustrating. She suggested she would review some recent MRI's to determine if these had evidence of lipedema, but for now I still don't have a diagnosis and wondering what to do next. I've started compression, which helps a lot with pain, using a leg riser, and diet changes. Just not sure what to do or where to go next. Thank you for all that you do to share awareness about this disease!