Hi Amber, I am April and I am about to join the ostomate club!! Thank you for your channel, I am binge watching now. Thankfully, my surgery is not emergency and I have spoken to my dermatologist about how to get my skin in the best condition possible before surgery. I am 59 so my skin is declining with age. I am also finding as many ostomates on TH-cam as I can so that I can learn and be as prepared as possible. Sending you gratitude from Atlanta GA.
I want to let you know I know it’s been a long time since you did a video and you’re probably not into it anymore but your videos out of all of them were really good for me in every way and the vegan ostomy. I hope you post again sometime I really really do.
I had 24 hours to wrap my head around having a stoma (2 weeks ago). I love your bright outlook and encouragement in your videos ❤️ Its a bit of a scary ride at first so finding someone that makes you feel its all going to be ok is so important. Thank you and God bless you!!
I have been following you for over a month now I am a little nervous about having my Ileostomy done on June 27th, but I will say you have made things a little less to be nervous about because of your video's so thank you.
Hope you had an amazing summer, Amber!!!!! This is my first summer with my ileostomy and it hasn't slowed me down at ALL. I spent the day at Disney World yesterday, no issues at all, but of course I took care to drink lots of Drip Drop!
Great video, I will definitely look into those liquid IV products, because I play golf a lot and live in South Carolina, so I am constantly dehydrated. Keep smiling, enjoy your summer.
Now that I'm well enough to travel again (because my ostomy was a life saver!), I'll be driving cross country for business and to visit family and friends starting next month. These tips may make a big difference. Thank you, and God bless you for helping so many others! 💖
@@thewisepowerchair2369 I pray for God's best for you, and that your life becomes richer and happier than you ever thought it could be. I'm not kidding when I say my ostomy saved my life. Every day I wake up and thank God for another day.
*Hi y'all! Wanted to share a kit-suggestion for folks who haven't put one together yet. *My sister brought me a travel pack for toiletries and cosmetics. It's nice looking, has loads of pouches and zippered sections, and opens up to hang on a bathroom stall hook, or on the bar of my headrest, when I have to drain or change my pouch system, in my backseat. I take it everywhere and it hangs in my bathroom when I'm home. It's waterproof, easily cleaned and when it's all closed up is lightweight and easy to carry. *It holds three sets of changes, plus a water bottle (for pouch rinsing), deodorizing lubricant, a roll of small, heavy-duty waste bags (that come with each set of Sensura Mio pouches) paste, wax rings, expanders, wet wipes and air freshener, panty liners, and sn undies change (in event the pouch springs a leak). *One of the best gifts I've ever received and got it on eBay for under $20 with free shipping. 👍☺️
Thank you, Amber for all the great videos. I'm scheduled for a colostomy next Wednesday and really scared. You have helped me so much watching and learning from you. You have given me hope that I can get my life back.
Thank you so much. I have had my ileostomy for a year and your videos are so positive. You make me feel like I can do anything. I too was a prisoner to my bathroom before surgery. I am so thankful for my "Winnie". I haven't been able to do too many veggies or fruit. How did you start adding them in your diet? Can we eat black pitted olives? Can I eat uncooked fruit? I know I can't do the skins. Hope you have an amazing summer. You are a blessing
I've only had my ileostomy 2 months, and have been able to eat fresh papaya , watermelon, and golden kiwis (only the flesh part, not the seeds in the center). I cut them small, eat only a little, chew well, and drink after. I've had no problems and it's great to get something fresh! I wasn't able to eat these before surgery without getting really sick.
Thank you for this! I just received my ostomy in October 2022 and I have been nervous for the summer. I’m most worried about how my skin under my flange will be in the heat and if the heat will cause leaks. We have had a few really hot days recently where I live. One of the hotter days that reached 90 degrees I thankfully did well! I drank a gallon and a half of water and several drip drops that day! I’m staying hopeful!
Hi Amber Wanted to thank you for the info and your positivity. I came home from hospital yesterday . I knew the technical part cuz I was a nurse but you helped me understand the part I did not know. God Bless you
Y’all are amazing! I’m on my 4th month, it’s really kicking me in my mental state right now. I tried to swim. I ordered a vacuum seal wrap. I think it was a size to small. I’m in tears rn bc nobody around me understands these things. Ima be ok. I have a family beach trip in late August. Idk if I’m gonna go. I love y’all so much! 42 male. How do you swim? Thanks so much y’all!
If any body reads this and has crohns like me,i would like to know what medication your on,i tried humira and it gave me blistering flaky skin,then i was put on entivio and had a flare, iv had my ostomy for almost a year now.
I'm here at the Hospital..In the Morning Monday I'm having Major Surgery.. colostomy Stoma Reversal Surgery in the Morning at 5:30am.. Keep me in your Thoughts and Prayers 🙏💕🌹♥️😁💐🙏💕🌹
Love your videos. I'm 3 weeks post surgery, and having issues with the my bag staying secure on the actual bandage part. I can change my bag and within 5 minutes its already pulling loose from my skin. Any tips for me?
Hi there! As a new ostomite I'm still searching for a bag that works for me (the struggle is real) I'm finding the 2 piece Hollister system to be the most convenient but have a question. Do you know if a bigger flange fits any flatter than a smaller one? I'm using a 2 1/4 right now but find that it is quite noticeable, I wonder if the bigger flange would sit a bit flatter as it contours a bit more to my body? Any insight you can provide would be greatly appreciated.
hello. ı watched your an early video about entyvio medication. Did you exposed to extreme hair loss while taking entyvio medication ? If you can answer ı will be very happy. thank you.
I’m terrified of eating fruit or veg. My meals are so boring too… I’ve had my ileostomy 6 months.. and I’m still barely trying new food I’m far too scared 😟
I’ve recently changed from the wax rings to just the paste so far I have had better luck and less leaking. Now I have a lot of wax rings laying around . G do you have any suggestions on what to do with them ?
you can donate them to a homeless shelter, your home care nurse, if you know who that is or if you even had one, or the wound care clinic where you got your surgery :) they told me they always appreciate extra supplies.
Camping!!??? My main issue, is finding a bathroom, that accommodates emergency situations and leaks. Ive had a stoma for almost a year now. And too many public mishaps to count. Not enough privacy, if u need to rinse out a bag. 😢
Hi Amber what do you wear to help your bag be less noticeable under your clothes? I have a colostomy and keep some air in my bag. I hate pancaking. Any tips on best pants to wear?
Hi Amber, I am April and I am about to join the ostomate club!! Thank you for your channel, I am binge watching now. Thankfully, my surgery is not emergency and I have spoken to my dermatologist about how to get my skin in the best condition possible before surgery. I am 59 so my skin is declining with age. I am also finding as many ostomates on TH-cam as I can so that I can learn and be as prepared as possible. Sending you gratitude from Atlanta GA.
I want to let you know I know it’s been a long time since you did a video and you’re probably not into it anymore but your videos out of all of them were really good for me in every way and the vegan ostomy. I hope you post again sometime I really really do.
I had 24 hours to wrap my head around having a stoma (2 weeks ago).
I love your bright outlook and encouragement in your videos ❤️
Its a bit of a scary ride at first so finding someone that makes you feel its all going to be ok is so important. Thank you and God bless you!!
I have been following you for over a month now I am a little nervous about having my Ileostomy done on June 27th, but I will say you have made things a little less to be nervous about because of your video's so thank you.
Hope you had an amazing summer, Amber!!!!! This is my first summer with my ileostomy and it hasn't slowed me down at ALL. I spent the day at Disney World yesterday, no issues at all, but of course I took care to drink lots of Drip Drop!
Great video, I will definitely look into those liquid IV products, because I play golf a lot and live in South Carolina, so I am constantly dehydrated. Keep smiling, enjoy your summer.
Thank you for your videos and God bless you.
Great advice. I’m in Georgia. I totally understand. It’s happened to me as well. Never leave ostomy supplies in car. (21 yrs with ostomy)
Now that I'm well enough to travel again (because my ostomy was a life saver!), I'll be driving cross country for business and to visit family and friends starting next month. These tips may make a big difference. Thank you, and God bless you for helping so many others! 💖
Farsight, let me hug you and shake you by the hand and wish you every happiness in life (hoping for my Colostomy which will give me my life back).
@@thewisepowerchair2369 I pray for God's best for you, and that your life becomes richer and happier than you ever thought it could be. I'm not kidding when I say my ostomy saved my life. Every day I wake up and thank God for another day.
*Hi y'all! Wanted to share a kit-suggestion for folks who haven't put one together yet.
*My sister brought me a travel pack for toiletries and cosmetics. It's nice looking, has loads of pouches and zippered sections, and opens up to hang on a bathroom stall hook, or on the bar of my headrest, when I have to drain or change my pouch system, in my backseat. I take it everywhere and it hangs in my bathroom when I'm home. It's waterproof, easily cleaned and when it's all closed up is lightweight and easy to carry.
*It holds three sets of changes, plus a water bottle (for pouch rinsing), deodorizing lubricant, a roll of small, heavy-duty waste bags (that come with each set of Sensura Mio pouches) paste, wax rings, expanders, wet wipes and air freshener, panty liners, and sn undies change (in event the pouch springs a leak).
*One of the best gifts I've ever received and got it on eBay for under $20 with free shipping. 👍☺️
Thank you, Amber for all the great videos. I'm scheduled for a colostomy next Wednesday and really scared. You have helped me so much watching and learning from you. You have given me hope that I can get my life back.
Her videos are awesome. She has an ileostomy very different from a colostomy.
Miss Katie, may your life be blessed and happy. Wishing you all the best.
@@thewisepowerchair2369 Thank you for the kind reply. I wish you the same.
Thank you so much. I have had my ileostomy for a year and your videos are so positive. You make me feel like I can do anything. I too was a prisoner to my bathroom before surgery. I am so thankful for my "Winnie". I haven't been able to do too many veggies or fruit. How did you start adding them in your diet?
Can we eat black pitted olives? Can I eat uncooked fruit? I know I can't do the skins. Hope you have an amazing summer. You are a blessing
I've only had my ileostomy 2 months, and have been able to eat fresh papaya , watermelon, and golden kiwis (only the flesh part, not the seeds in the center). I cut them small, eat only a little, chew well, and drink after. I've had no problems and it's great to get something fresh! I wasn't able to eat these before surgery without getting really sick.
You said u can go swimming... what brand and type of ostomy do u use?
Thank you🥰
Sure seal stickers are essential! They keep the flange waterproof and help prevent the flange from sweating off
Where have you gone Amber?
I hope she comes back soon 🙏
Thank you for this! I just received my ostomy in October 2022 and I have been nervous for the summer. I’m most worried about how my skin under my flange will be in the heat and if the heat will cause leaks. We have had a few really hot days recently where I live. One of the hotter days that reached 90 degrees I thankfully did well! I drank a gallon and a half of water and several drip drops that day! I’m staying hopeful!
Hi Amber
Wanted to thank you for the info and your positivity. I came home from hospital yesterday . I knew the technical part cuz I was a nurse but you helped me understand the part I did not know. God Bless you
I am new to Ostomy and my home health nurse showed me your video it’s hot here in North Carolina I don’t leave my emergency supplies in my car
Y’all are amazing! I’m on my 4th month, it’s really kicking me in my mental state right now. I tried to swim. I ordered a vacuum seal wrap. I think it was a size to small. I’m in tears rn bc nobody around me understands these things. Ima be ok. I have a family beach trip in late August. Idk if I’m gonna go. I love y’all so much! 42 male. How do you swim? Thanks so much y’all!
Hello Amber, how are you? I’ve noticed there is nothing posted in quite sometime. Hope you are ok.
Love seeing your videos ! I shall be removing my supply bag from the car now …..
Good call lol! 😂💜
@@OstomyDiarieshey since long time no new video??
If any body reads this and has crohns like me,i would like to know what medication your on,i tried humira and it gave me blistering flaky skin,then i was put on entivio and had a flare, iv had my ostomy for almost a year now.
Mrs Amber, given that an ileostomy causes absorption problems and related complications, do you take any supplements, or medications for your ileum?
I'm here at the Hospital..In the Morning Monday I'm having Major Surgery.. colostomy Stoma Reversal Surgery in the Morning at 5:30am.. Keep me in your Thoughts and Prayers 🙏💕🌹♥️😁💐🙏💕🌹
I hope you're doing well now 🙏
I hope you are ok i had it ,i wanna know what medication your on taking,ive tried humira,now on entivio.
Love your videos. I'm 3 weeks post surgery, and having issues with the my bag staying secure on the actual bandage part. I can change my bag and within 5 minutes its already pulling loose from my skin. Any tips for me?
Barrier bands to secure it
maybe make sure skin is totally dry and that you haven't put any type of oil on.
Hi there! As a new ostomite I'm still searching for a bag that works for me (the struggle is real)
I'm finding the 2 piece Hollister system to be the most convenient but have a question. Do you know if a bigger flange fits any flatter than a smaller one? I'm using a 2 1/4 right now but find that it is quite noticeable, I wonder if the bigger flange would sit a bit flatter as it contours a bit more to my body? Any insight you can provide would be greatly appreciated.
hello. ı watched your an early video about entyvio medication. Did you exposed to extreme hair loss while taking entyvio medication ? If you can answer ı will be very happy. thank you.
I’m terrified of eating fruit or veg. My meals are so boring too… I’ve had my ileostomy 6 months.. and I’m still barely trying new food I’m far too scared 😟
why did you had to get an ileostomy and how old r you?
I’ve recently changed from the wax rings to just the paste so far I have had better luck and less leaking. Now I have a lot of wax rings laying around . G do you have any suggestions on what to do with them ?
you can donate them to a homeless shelter, your home care nurse, if you know who that is or if you even had one, or the wound care clinic where you got your surgery :) they told me they always appreciate extra supplies.
@@hollyyoung649 thanks Holly I’m hope to get a reversal soon
Where did you go ?
Camping!!??? My main issue, is finding a bathroom, that accommodates emergency situations and leaks. Ive had a stoma for almost a year now. And too many public mishaps to count. Not enough privacy, if u need to rinse out a bag. 😢
Amber, where are you?! We miss you, darling 😌
Hi Amber what do you wear to help your bag be less noticeable under your clothes? I have a colostomy and keep some air in my bag. I hate pancaking.
Any tips on best pants to wear?
i have serious hemorrhoids :( do I need OSTOMY