Wow I heard about CFS associated with long COVID from physics girl, and damn that's a nasty chronic illness. Hope they work out something with the resurgence in cases. Is CFS extremely rare ? What other causes exist out there ? I love your setup to chill and play at the same time, I always hoped the gaming peripherals would allow a similar thing out of the box, like console play allows... But it hasn't come yet... Anyways cheers to you, the yt algorithm has brought me here, and thank you for the videos!
Hey Tenns! Thanks for commenting! I'm not really sure how to describe how common it is, but it's common enough that most doctors have at least heard of it. Having said that, it's also rare enough that most doctors have ONLY heard of it. When I first tried to figure out what was wrong, I seen hundreds of doctors in desperation. The only way I ever found one that knew anything about it was to talk to the CFS/ME society of our province (Provinces are like U.S. states). As for causes, the two big ones are life threatening viral infections or serious physical trauma, especially rough stuff like car accidents. In my case, it's hard to say which one caused it, but I had a pile of infections all at roughly the same time. If I had to guess, I think the dysentery is the one that triggered it. I still had mono when this happened, but the dysentery was bad. I mean BAD bad. I didn't know you could lose that much blood and not die. And I lost blood like that all day, every day for about two weeks. What's strange about CFS though is that for some people (And I'm in this group), getting a coronavirus infection (As in, a traditional cold virus) will often make us feel better. I still remember the first time this happened. At the time, I was usually sleeping 16 to 18 hours a day, then spending a few hours up. Even then, I was still just dragging my arse like someone had perpetually just shaken me out of a deep sleep. Then I got a regular old cold. Typical cold stuff. Eyes just running constantly, constantly sniffing and snorting, plugged sinuses, coughing steady, etc. And yet, I felt SO good that when bedtime came, I didn't even bother. That first day, I only got a couple of hours of sleep and yet I STILL felt amazing. Second day, same thing. At this point, it's been a few days and I've only got a couple of hours of sleep. Yet, I still feel amazing. This went on for about four days maybe, maybe a bit longer. I would get a few hours a night at most, yet I still felt absolutely sharp as a tack. But, this highlights just how bad CFS destroys your life. Even with a cold, even with only a few hours of sleep a night, even half a week of that, I STILL felt WAY WAY WAY better than I normally did with just the CFS. Even Covid did this to me after the initial B.S. that almost killed me. The first three days, it was almost entirely in my lungs and attacking my heart. But after it backed off a bit, I got a few days of this "cold virus CFS cure" thing. Very strange. :/ And thanks again for taking the time to comment. If ya have any other questions about it, feel free to ask. :)
Note: This only seems to happen just before or just after a really rough CFS/ME period. This particular effect usually only lasts a day or two when this particular thing happens. For those who don't know, CFS/ME is called "Chronic Fatigue Syndrome", but it's about as descriptive as saying having your house burn down would ruin your weekend. CFS screws with pretty much everything in your body. Your brain can't switch modes to enter deep sleep (I get zero minutes of slow wave sleep. We've done the polysomnograph to prove it), you can't maintain your temperature, digestion quits at random or runs backwards (Yes, that's as unhappy as it sounds), you can only eat certain things, you constantly feel so run down you feel like you've been drugged, your glands all swell up, and all kinds of other stuff.
You're more than welcome. :) CFS/ME sure causes a lot of weird, random, frustrating crap to deal with. But, at least I'm in a position to try and explain it in the odd video here and there. You'll notice I tend to post in little bursts here and there and that's just me trying my best to play/create/post when I'm feeling a bit better. Thanks for taking the time to reply Gronk! :)
So, I'm doing aim training now and it's about 24 hours later and the trails thing is down to about half of what it was yesterday, maybe even 1/3. :) Little easier to hit what I'm shootin' at now!
Wow I heard about CFS associated with long COVID from physics girl, and damn that's a nasty chronic illness. Hope they work out something with the resurgence in cases.
Is CFS extremely rare ? What other causes exist out there ?
I love your setup to chill and play at the same time, I always hoped the gaming peripherals would allow a similar thing out of the box, like console play allows... But it hasn't come yet...
Anyways cheers to you, the yt algorithm has brought me here, and thank you for the videos!
Hey Tenns! Thanks for commenting! I'm not really sure how to describe how common it is, but it's common enough that most doctors have at least heard of it. Having said that, it's also rare enough that most doctors have ONLY heard of it. When I first tried to figure out what was wrong, I seen hundreds of doctors in desperation. The only way I ever found one that knew anything about it was to talk to the CFS/ME society of our province (Provinces are like U.S. states). As for causes, the two big ones are life threatening viral infections or serious physical trauma, especially rough stuff like car accidents. In my case, it's hard to say which one caused it, but I had a pile of infections all at roughly the same time. If I had to guess, I think the dysentery is the one that triggered it. I still had mono when this happened, but the dysentery was bad. I mean BAD bad. I didn't know you could lose that much blood and not die. And I lost blood like that all day, every day for about two weeks. What's strange about CFS though is that for some people (And I'm in this group), getting a coronavirus infection (As in, a traditional cold virus) will often make us feel better. I still remember the first time this happened. At the time, I was usually sleeping 16 to 18 hours a day, then spending a few hours up. Even then, I was still just dragging my arse like someone had perpetually just shaken me out of a deep sleep. Then I got a regular old cold. Typical cold stuff. Eyes just running constantly, constantly sniffing and snorting, plugged sinuses, coughing steady, etc. And yet, I felt SO good that when bedtime came, I didn't even bother. That first day, I only got a couple of hours of sleep and yet I STILL felt amazing. Second day, same thing. At this point, it's been a few days and I've only got a couple of hours of sleep. Yet, I still feel amazing. This went on for about four days maybe, maybe a bit longer. I would get a few hours a night at most, yet I still felt absolutely sharp as a tack. But, this highlights just how bad CFS destroys your life. Even with a cold, even with only a few hours of sleep a night, even half a week of that, I STILL felt WAY WAY WAY better than I normally did with just the CFS. Even Covid did this to me after the initial B.S. that almost killed me. The first three days, it was almost entirely in my lungs and attacking my heart. But after it backed off a bit, I got a few days of this "cold virus CFS cure" thing. Very strange. :/ And thanks again for taking the time to comment. If ya have any other questions about it, feel free to ask. :)
Note: This only seems to happen just before or just after a really rough CFS/ME period. This particular effect usually only lasts a day or two when this particular thing happens. For those who don't know, CFS/ME is called "Chronic Fatigue Syndrome", but it's about as descriptive as saying having your house burn down would ruin your weekend. CFS screws with pretty much everything in your body. Your brain can't switch modes to enter deep sleep (I get zero minutes of slow wave sleep. We've done the polysomnograph to prove it), you can't maintain your temperature, digestion quits at random or runs backwards (Yes, that's as unhappy as it sounds), you can only eat certain things, you constantly feel so run down you feel like you've been drugged, your glands all swell up, and all kinds of other stuff.
This is so interesting! Thanks!
You're more than welcome. :) CFS/ME sure causes a lot of weird, random, frustrating crap to deal with. But, at least I'm in a position to try and explain it in the odd video here and there. You'll notice I tend to post in little bursts here and there and that's just me trying my best to play/create/post when I'm feeling a bit better. Thanks for taking the time to reply Gronk! :)
So, I'm doing aim training now and it's about 24 hours later and the trails thing is down to about half of what it was yesterday, maybe even 1/3. :) Little easier to hit what I'm shootin' at now!