I have just been diagnosed after 2 and half years of being in terrible pain, having neck/head tremors, not being able to walk, etc… Finally I have hope with this diagnosis. Now I can get on a plan to target my problem areas! Finally… some hope! 🙏Thank you Lord!
January 2024 I am grateful for my diagnosis and tests . But why is there not as much medical effort into treatment? As the patient in the video said she whooped for joy at the opportunity of getting her life back 🎉
FINALLY FND IS GETTING ATTENTION! I am still currently suffering from it. To this day, even my doctors still don’t know why I have it. But let me tell you it’s scary
I just got diagnosed with it and it is miserable and debilitating 😭 look at the other comment I just made... you don't happen to have neck problems do you? All my symptoms came after my neck injury but it wasn't like a car accident or anything so I didn't know the neurological symptoms were coming from my neck at first. You can stretch the cervical ligaments over time (in my case from having my head bent down all the time doing artwork, dancing, roller coasters and twisting my neck too far looking at my back/shoulder in the mirror) and the c1, c2 misalignment/instability that results can cause a MESS of neurological symptoms even before you get pain! 😭
This is such a poorly understood disorder. I had everything thrown at me, nobody recognized it until I got to the movement specialist who recognized it right away.
I've had FND for four years. I was not diagnosed by a doctor, but found out myself from the internet. I've learned to walk and talk again by myself with no help from medical professionals. But I feel my progress has flat lined in the last two years. Some help from professionals would be a godsend, but I don't know if or when it will be treated here.
I also figured if out on the internet, I've had this since 2015 and j haven't been able to work nor see a doctor because I have no insurance. The only reason I didn't commit suicide is because I've had 3 grand babies born since 2013. When I finally found this I broke down and cried like a baby and I'm 50 years old.
@@rhondabradshaw7787 I know how you feel. I've also contemplated suicide. My relationship with my kids and grandkids also prevented me from doing so. Mindfulness meditation helped me turn of certain thoughts for a while. All the best.
There is no treatment for what we have. Just to live with it. I have one of the best doctors in America and even he says there is no cure. Going to the doctor for it is like giving people money to learn about it more.
I didnt had hope also anymore. Because first you see proces and then suddenly it stops. But i believe with 1. God and 2. the new resources there is hope. Remember the moments you felt you couldnt take it anymore and your still here... Its a hard and complicated condition, it looks like its hopeless, but its not hopeless.
I was recently diagnosed, I struggle to walk some days I used to run regularly before all this and I recently miss it. Are you able to do much exercise other than walking? Thanks.
We have to speed awareness I think to get more help and programs like this. I had an opportunity to do regular PT it helped me be able to walk up stairs and down and toe to toe. (Practice makes it easier every time)
I wonder if the woman in this video had neck problems before or when her symptoms started. I just got diagnosed with FND after more than a yr of suffering. I also had atlas misalignment and cervical instability when my symptoms started... I just didn't know I had those neck problems at first because I had neurological symptoms and not as much pain so of course nobody took me seriously and I was misdiagnosed several times and my symptoms got significantly worse until I found my upper cervical chiropractor. I am looking into the therapy in this video and also prolotherapy for my neck which I believe is the cause of my FND and still greatly aggravating it. It struck me that this lady said she was a chef and my neck doctor/prolotherapist treats a lot of chefs and dentists whose jobs involve having their head bent down for hrs at a time every day... which is a big part of what contributed to my neck injury as I am an artist and always had my head and/or whole upper body bent over my work 😭
How can we get this kind of treatment in other areas? I was supposed to join a program (outpatient) in Seattle but it has not gotten off the ground as promised and now the COVID19 is in the mix.
have just been diagnosed with fnd and it is real and wouldnt wish it on anyone, myn feels quiet severe and they are not sure on ms also yet, I'm lied on the hospital bed writing this and I'm holding in the tears, my legs go numb and tingling, blurred vision, tired and the worst Is the blocked head feeling and the tremors/jolting.. I would really like to talk to others who have this as I'm scared right now, it's getting hard to walk and my life has suddenly changed, they say stress makes it worse but how can I not be stressed and upset
Hi I’ve recently been diagnosed and it’s been so difficult, I used to be able to run 10k no problem, now I can barely walk some days. The pain in my back is unbearable I’m still unable to get help from my doctor. How are you doing now? Are you able to do more activity? Please tell me there is hope! Thanks.
@Moose185 I got diagnosed yesterday with multiple sclerosis 😔 and I have learnt to deal with it,, it's still hard but I have been taking sertaline tablets and it basically helps me not be so depressed. I also would do 10k no worries and I'm the type of person that if I'm doing something like say the garden I want it all done right there on the day so at the end it looks nice and finished but I have had to learn that I need to do bit by bit, I have learnt when i need to rest and you will in time aswell, I done my garden a few days ago and didn't stop at all but I noticed the next day for sure! My body was tremors my neck stiff and back and couldn't walk properly, balance wasent good at all but another thing is Its took 8-9 months and I realise I have to accept it, it's scary because I also may have cancer which I will know in around 3-4 weeks time, we have to be strong and I was against me taking any depression tablets but they really do help me cope with issues, they are still there and hurt but the sertaline makes me just get on with it. Sorry about the essay lol. I really hope u are keeping strong and there is hope...there's always hope.....
I agree. There was definitely an up tick in the numbers following C_ov_I'd and that caused a log jam for CT scans and MRI's. I had to wait 6 months for the first available appointment in Little Rock. Many have to wait past the new year. I had sudden onset on March 7th this year.
Hello, guys! One of my closest friends was recently diagnosed with FND. Half of his body is paralyzed, he's receiving treatment and has made some progress since then, so I'm not too worried about him. But the interesting thing about his case is that he had several dreams prior to the onset of his symptoms in which half of his body was a statue. Has anyone here ever gone through a similar experience?
I have just been diagnosed after 2 and half years of being in terrible pain, having neck/head tremors, not being able to walk, etc… Finally I have hope with this diagnosis. Now I can get on a plan to target my problem areas! Finally… some hope! 🙏Thank you Lord!
January 2024 I am grateful for my diagnosis and tests . But why is there not as much medical effort into treatment? As the patient in the video said she whooped for joy at the opportunity of getting her life back 🎉
FINALLY FND IS GETTING ATTENTION! I am still currently suffering from it. To this day, even my doctors still don’t know why I have it. But let me tell you it’s scary
I just got diagnosed with it and it is miserable and debilitating 😭 look at the other comment I just made... you don't happen to have neck problems do you? All my symptoms came after my neck injury but it wasn't like a car accident or anything so I didn't know the neurological symptoms were coming from my neck at first. You can stretch the cervical ligaments over time (in my case from having my head bent down all the time doing artwork, dancing, roller coasters and twisting my neck too far looking at my back/shoulder in the mirror) and the c1, c2 misalignment/instability that results can cause a MESS of neurological symptoms even before you get pain! 😭
@@JacksonStar4757 yeah I didn’t get a neck injury
@@GUMMIESKITTLES_JAS045 did yours just come out of nowhere
@@JacksonStar4757 yes, I suddenly fainted at school on sept, 13, 2022. Was rushed the hospital because I froze up and couldn’t breath
@@GUMMIESKITTLES_JAS045 oh no I'm sorry. When I went to the ER, I thought I was having a stroke or seizure but it might have been a dystonic storm
This is such a poorly understood disorder. I had everything thrown at me, nobody recognized it until I got to the movement specialist who recognized it right away.
I've had FND for four years. I was not diagnosed by a doctor, but found out myself from the internet. I've learned to walk and talk again by myself with no help from medical professionals. But I feel my progress has flat lined in the last two years. Some help from professionals would be a godsend, but I don't know if or when it will be treated here.
I also figured if out on the internet, I've had this since 2015 and j haven't been able to work nor see a doctor because I have no insurance. The only reason I didn't commit suicide is because I've had 3 grand babies born since 2013. When I finally found this I broke down and cried like a baby and I'm 50 years old.
@@rhondabradshaw7787 I know how you feel. I've also contemplated suicide. My relationship with my kids and grandkids also prevented me from doing so. Mindfulness meditation helped me turn of certain thoughts for a while. All the best.
There is no treatment for what we have. Just to live with it. I have one of the best doctors in America and even he says there is no cure. Going to the doctor for it is like giving people money to learn about it more.
I didnt had hope also anymore. Because first you see proces and then suddenly it stops. But i believe with 1. God and 2. the new resources there is hope.
Remember the moments you felt you couldnt take it anymore and your still here...
Its a hard and complicated condition, it looks like its hopeless, but its not hopeless.
I was recently diagnosed, I struggle to walk some days I used to run regularly before all this and I recently miss it. Are you able to do much exercise other than walking? Thanks.
I’m been dealing with bad tremors and also lots of symptoms and attacks wish they had help here in Fredericton n.b
We have to speed awareness I think to get more help and programs like this. I had an opportunity to do regular PT it helped me be able to walk up stairs and down and toe to toe. (Practice makes it easier every time)
I wonder if the woman in this video had neck problems before or when her symptoms started. I just got diagnosed with FND after more than a yr of suffering. I also had atlas misalignment and cervical instability when my symptoms started... I just didn't know I had those neck problems at first because I had neurological symptoms and not as much pain so of course nobody took me seriously and I was misdiagnosed several times and my symptoms got significantly worse until I found my upper cervical chiropractor. I am looking into the therapy in this video and also prolotherapy for my neck which I believe is the cause of my FND and still greatly aggravating it. It struck me that this lady said she was a chef and my neck doctor/prolotherapist treats a lot of chefs and dentists whose jobs involve having their head bent down for hrs at a time every day... which is a big part of what contributed to my neck injury as I am an artist and always had my head and/or whole upper body bent over my work 😭
How can we get this kind of treatment in other areas? I was supposed to join a program (outpatient) in Seattle but it has not gotten off the ground as promised and now the COVID19 is in the mix.
have just been diagnosed with fnd and it is real and wouldnt wish it on anyone, myn feels quiet severe and they are not sure on ms also yet, I'm lied on the hospital bed writing this and I'm holding in the tears, my legs go numb and tingling, blurred vision, tired and the worst Is the blocked head feeling and the tremors/jolting.. I would really like to talk to others who have this as I'm scared right now, it's getting hard to walk and my life has suddenly changed, they say stress makes it worse but how can I not be stressed and upset
Hi I’ve recently been diagnosed and it’s been so difficult, I used to be able to run 10k no problem, now I can barely walk some days. The pain in my back is unbearable I’m still unable to get help from my doctor.
How are you doing now? Are you able to do more activity? Please tell me there is hope! Thanks.
@Moose185 I got diagnosed yesterday with multiple sclerosis 😔 and I have learnt to deal with it,, it's still hard but I have been taking sertaline tablets and it basically helps me not be so depressed. I also would do 10k no worries and I'm the type of person that if I'm doing something like say the garden I want it all done right there on the day so at the end it looks nice and finished but I have had to learn that I need to do bit by bit, I have learnt when i need to rest and you will in time aswell, I done my garden a few days ago and didn't stop at all but I noticed the next day for sure! My body was tremors my neck stiff and back and couldn't walk properly, balance wasent good at all but another thing is Its took 8-9 months and I realise I have to accept it, it's scary because I also may have cancer which I will know in around 3-4 weeks time, we have to be strong and I was against me taking any depression tablets but they really do help me cope with issues, they are still there and hurt but the sertaline makes me just get on with it.
Sorry about the essay lol.
I really hope u are keeping strong and there is hope...there's always hope.....
Not a medical mystery anymore after covid
I agree. There was definitely an up tick in the numbers following C_ov_I'd and that caused a log jam for CT scans and MRI's.
I had to wait 6 months for the first available appointment in Little Rock. Many have to wait past the new year. I had sudden onset on March 7th this year.
Does FND cause dysdiadochokinesia??
I am suffering from this disorder,, difficulty in walking.. Video helped me too..🤗🙂
Hello, guys!
One of my closest friends was recently diagnosed with FND. Half of his body is paralyzed, he's receiving treatment and has made some progress since then, so I'm not too worried about him. But the interesting thing about his case is that he had several dreams prior to the onset of his symptoms in which half of his body was a statue. Has anyone here ever gone through a similar experience?
YES OMG
It’s probably a way of your brain “trying” to relieve stress in forms of dreams
Could be jinn possession
I’ve got FND as well. Here’s a bit more about it: th-cam.com/video/OVJmcg4HL0g/w-d-xo.html