"Mo: A Loeys Dietz Syndrome Memoir"

Maureen "Mo" Jurgens was born in 1995 with a rare disease as yet undiagnosed at that time. Mo's mother, Kate, a neonatal intensive care nurse, recognized the signs of birth defects right from the start: turned feet, closed fists, and a cleft palate. It wouldn't be until over nine years and seventeen surgeries later that a key discovery would lead to the diagnosis of Loeys Dietz Syndrome, a rare connective tissue disease that allows aneurysms to grow throughout the entire body as well as wreak havoc on the j

[@luisa5004]

I got the book right after my diagnosis

[@LaDimplez91]

My sister has LDS, I don't know what type, but she had been misdiagnosed with Marfan syndrome because they're so similar.
She's 29 and lost her faith because of her syndrome.. I really wanna get her this book

[@misterB2231]

لن يستنكف المسيح أن يكون عبدا لله.

[@kayleytigges1374]

I know this girl!😀 I to have LSD and met Mo at a LSD conference mo is a inspiration to people with LSD and she will hopefully become an inspiration to people around the world!😀😀😀😀😊😊😊😉😆😆😆😆😄😄😄😄

[@123gmari]

Linda Tigges same!!!!!!

[@luacartas9797]

Me too, is this conference the one that's held in Baltimore?

[@tuva2001]

I also have LDS type 4. What type do you have

[@tuva2001]

I’m 17 years old and have LDS type 4. I would be really happy if someone who have the same diagnosis wanna take contact with me because it would really help to talk to someone who understands. I live in Sweden and don’t have contact with someone with LDS except my mum and her brother. You can take contact with me on Instagram: tuva_fr

[@ReineDeLaSeine14]

Tuva Fryhl I might have LDS Type 1 and I’m 30

[@luacartas9797]

I too have LDS, im going to Baltimore to find out soon which one I have

[@tuva2001]

Lua Cardenas I hope it goes well

[@tuva2001]

ReineDeLaSeine14 I dont know much about typ 1 but I would love to learn

[@luacartas9797]

@@tuva2001 thank you, I'm 27 and I've never met anyone else with lds, I'm going to go to the conference in the summer this year