What is Guillain-Barré Syndrome (GBS)?
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- เผยแพร่เมื่อ 5 ต.ค. 2014
- One Couple’s survival through life-threatening Guillain-Barré Syndrome.
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This is wonderful.my grandson 12yrs old has had GBS its a scarey disease but he is taking little steps now ...he lost so much weight initially...., he also lost the will to live due to the excruciating pain ....but thankfully mentally he grew stronger to overcome those tragic thoughts. Thankfully by the Grace of God he is still Alive! 🙏 💙🙏
I was diagnosed with GBS on November 22nd and after 3 weeks in Swedish Medical Center in Denver I am back in Albuquerque recovering. Nice to read there is hope for recovery.
Would love to hear from any of you on tips to make my road back successful.
Hi I first off want to say I'm so glad you're recovering from this . I also want to say sorry that you had to experience this . If I may ask , what were your beginning symptoms?
Intense physiotherapy and repetition of the excercises. The pain will be almost unbearable at first...I used to take pain killers just to excercise initially. It's such a tough battle and I'm going on my 16th month.... but u WILL see results and you will get through this. Good luck with your recovery and be so proud of yourself for coming this far!!
THANK U 4 this segment. I will share with my friend. He is 72. Early March diagnosis & on ventilator. It will be helpful to see an older person who has recovered. I hope to help him with his recovery. But for now he's in a facility that will work with him
Sir ... your story gives me hope ... I am 66 years old and I'm going into my second year with GBS. I spent 21/2 months in the Hospital before being released to my wifes care at home. My recovery at home was going very well and then a second round of Covid hit me and all of my progress was lost. So here we are ... starting all over again!
I'm so sorry to hear. I hope you return to full health very soon
I pray that you get better soon. While I am not 100 percent, I'll take 90 percent. Good luck to you.
My husband is in the ICU now. It happened in a matter of a few days, and a perfectly healthy, 42 year old dad of 7 just stopped being able to walk, talk, swallow, or keep his eyes open. Now he can't control his core muscles or diaphragm. Dear God, let the spreading stop!
How is your husband now?!
Blessed story. My wife just got diagnosed with it. Please pray for her and my family. Im still in shock a life change but my love for jesus is stronger.
She is going to be ok...God is with you:)Stay strong
Check Dr Joe Dispenza
Did she have a vaccine?
@@yurieinsatz600 i had the Vaccine in February 2021 and march i became ill age 45 starting with pain in my back then numbness & tingling in feet and hands, now i have no mobility and have been Diagnosed GBS (Gilliam Barry sintram) KEEP ME IN YOUR PRAYS ALL 🙏
@@natashawilliamson-ebanks4467 May the Lord grant you a swift recovery and a complete healing .. Amen 🙏🏻
I was also diagnosed with GBS way back 2009 (9 yrs. old), I don't have any problems with walking but climbing up stairs is definitely hard, i am fully recovered now. For those who are still suffering, wishing u a speedy recovery!
Nickelodeon made it through May the Lord help each and every reader which varies his love is killing our is comfort me you'd spent the Peace of Jesus Christ if you don't live in fear of a 99 cent plus of operate thank God for every blessing every breath and the Lord blessed your soul and your health
I can relate to this. I was 12 yrs. old in 1963 and developed GBS from a flu shot. Never again will I let my body be punctured again. Im 73 now and still have issues from this illness. God Bless you for making a full recovery.
Did you receive the COVID shot
@@kevinbraden9445 He's dead
@@Im_Behind_You
What an awful thing to say about someone you don't know. He probably isn't seeing these notifications.
Correct , a complete recovery is a far cry l am survivor of G.B.S.
I think they've come a long way since 1963. I'm hopeful that my friend can recover. They are starting with his therapy immediately. They also have medicines and such that they start them on right away.
I had a severe case of GBS and am still going through the recovery period with regular physiotherapy etc it's been almost 9 months since I was finally diagnosed and I still can't walk on my own though I can use a walker and through more excercise and strength training I am told I will recover . The process is slow painful depressing scary and almost impossible at times but I'm slowly seeing results. It's the most frightening thing I've ever been through and the hardest thing I've done in my life. I'm blessed to be surrounded by good friends great doctors and very patient therapists who understand my condition but it's still very difficult. Just focus keep your confidence up and always have hope that you will get well feel better and beat this horrendous disease that is completely life changing. I wish you much love and healing..
I wish you much success and health
I too have GBS. however I am a lucky one, GOD put a doctor at the emergency entrance door. He asked me to describe how I was feeling and when I said I had no feeling in my legs, feet, arms and hands, he immediately said it sounds like GBS to me. They immediately started me on intravenous treatment of ivig. I thank GOD every day for putting that doctor there. I believe he saved my life as I am almost completely healed (still some weakness in my legs), but I was home from the hospital after only 3 days.
I got it when I was 13. I was lucky to survice it. My mother was horrible in the first few days. We were on vacation, and she just thought I was lazy. She hit me with her fist, she kicked me, screamed at me. I was a happy child before it. I am 40 now, and since then I have been suffering from extreme chronic depression. Wish I died back them
Not only depression but PTS as well? I also have depression and PTS as a result of my parents. How do you cope?
Do you think she was abused you? Mother's seem to be under alot of stress it probably because she think you was ruining her vacation wanted to act up. But I'm sure after she find that was more serious matter she feels bad the way she had act and she also take care of you through this. I been through a lot lead me to suicidal thought, I'm fighting it because of my kids because I didn't have a mother she passed when I was one. Days in days I'm try to open up with a close friend of mine because she understood. I cry many times see if I die no one would know except my uncle which his back home. I told my kids is us against the world. When my two boys fighting I get upset using bad words I'm not supposed too, I even said I will kill myself. But I told God I can't be talking like with them because I don't want my words to effect them lead them to depression like I am now, so I apologize to my boys and explain to them what I said or always said is hurtful but I don't mean none of it that I don't want to treat them bad by slander them with my words.
Look for someone you can trust to talk too and that will help, and if your mom still living talk to her she will explain and apologize. Mothers love their children's, sometimes we let anger take over that's all dear. Take care!
Hi! I got this when I was 12. I will be 42 this year!
To cut a long story short, the story with my mum is, she pretty much left me to die, when I got this. Honestly, the woman is vile.
Anyway, I hope this makes you feel a bit better. Have a great day.
Your mother plain nasty every day look at something beautiful the sky a flower apicture in a book nature Channel t v other thoughts will come to such as music poetry healing for the pain she did you best wishes
Am still recovering from GBS and the pain am still going through is unbelievable.Walking thanks to God and my doctors and my family.Hang in there it will get better.
Winnie Weru Hi!!! I have been recovering
have you experience muscle twitching during your recovery?
I have not been able to walk and I am 33
Thank you so much for sharing this video....very educational
My fiancee is currently in extended care facility after long term care facility dealing with Guillain-Barre Syndrome, hoping for the best for her. There is slow subtle improvement, I pray she gets quite well from the rehab she is getting. All I could ask is for her to be in someones thoughts, and for me to figure out things financially to get us through this time.
Praying for you and your fiancee for a full recovery inl I pray for healing from the top her head to the soles of her feet! In Jesus Almighty Name 🙏 Amen❤❤❤
Please send prayers for my uncle :( I’m so scared, he has covid and gbs… i need all the help i can get. I jus want my uncle back.
I also had GBS it took me 1 year to recovery when I was 8 years old.
Praise the lord. Bless the doctors and nurses. I am so happy you got well.
Ty for sharing , i got it 2 weeks ago and went 10 days untreated but am now recovering.
I had gbs when i was 16, im now 31 and i was in the hosp for 2 months, numb from the waste down, almost had a pace maker put in to stay alive and only had Plasma pheresis as my only treatment that was a 50/50 chance of work and had to do out patient therapy for 9 months to learn how to walk and do everything physical all over again. The most scary experience i think a person can go through and a miracle to make it out alive and return to a normal life. If gbs patients can get through this we can get through anything! Prayers to anyone who is going through this right now.
This is scary. My cousin is currently in the hospital being intubated as I try to understand what e doctor just told us. This is just unimaginable to me how she developed it. There were no causal event where we can point to. It just came on. Nobody knows where it came from. Unbelievable. I hope she’ll be okay.
Did she have a viral infection in the last few weeks before developing this?
Is she doing better? 🙏
Great story👍 🙏
Still recovering from 2017. My variant was Axonal GBS (instead of demyelinating). Was in hospital for 7 months and was completely paralyzed on a breathing machine. It is comforting to know I am not alone.
My Father got this disease back in 2013. He was Paralyzed completely. He Luckily recovered by extreme treatment after 3 months. Now, he can run like before. Alhamdulillah
Good of you to share knowledge information about different types. Part of the issue is that those who do know about types and symptoms and causes ... I mean specifically the exact reason WHY it happened. Is there live ingredient in the vaccine that gets loose in the body and it attacks the nervous system? Or is it a mosquito-bourne or vector-bourne or water-bourne pathogenic cause where the pathogen eats the collagen rich nerve sheathing? And the immune system therefore triggers the response to attack it. GBS isn't the only disease considered to be an auto immune disorder. Lyme disease us and Lyme is caused by spirochetal bacterial infectio n(borelliosis). There are several others in the auto-immune disorder catagory, including but not limited to VD, HIV, Lyme Disease (LD), Lupus(SLE), infectious arthritis, rheumatoid arthritis (RA), Septic arthritis, Muscular Sclerosis (MS), Psoriasis, Type 1 diabetes, IBS (IRRITABLE BOWEL SYNDROME, etc., etc.
I feel certain that the disease & health agencies know what the underlying disease is some of which are "engineered" from GAIN of function R & D. They are using the spike proteins from some of these bacteria and viruses to put in vaccines. It's nigh unto impossible to treat a microscopic organism that can hide in. It's biofilm from your immune system so the body can't easily wipe it out. The immune system can do collateral damage fighting a disease or it can simply raid the bodies tissues.
There's a good reason they keep everything shrouded in mystery. They tell the public and patients that they don't know what causes are. But yet they are developing treatments. They know a lot more than they let on. Frontline doctors are also left out of the loop. They don't know what to do to help.
But they can delineate very detailed symptom lists and can do lab tests. But they are never quite forthcoming to the patient.
The research labs are heavily funded, by federal (taxpayers ) money, by the military, and by private donors like BG&MG Foundation and others including private citizens.
The immune response also will require the body to raid it's own tissue stores.
I believe you are 110% correct on all you've said . I also believe organisms of this strain is in flouroquinolone antibiotics as well . Look up the damage flouroquinolones do to people
I’ve had GBS twice ( 2 years old and 18 years old ) and I’ve been better for about a year.
keeley norgaard isn’t it rare to get it twice? My brother did
Is it cured compleatly
Because presently I am suffering
@@anniemariekennedy2505 it is rare to get it twice, but it happens! This is exactly why they recommend that GBS survivors do not have any further vaccines post GBS diagnosis. You can also have a relapse from everyday illnesses eg. viral infections & bacterial infections, and as I previously mentioned vaccines.
Thank Jesus Christ I can tell you he is a miracle worker he is real he's more powerful than any doctor or medicine in the entire world!!
@@ImNotInLoveItsJustAGameWeDo I can vouch for you here, post GBS my doctor mentioned that everyday illnesses, vaccines or especially the flu jab is more likely than anything to cause a relapse
Proceed with caution, common sense and medical authorization, but proceed, I am 58 now, and was 50 when I got it, first thing I worked on was: Let's find out what my new capacity is, so I did everything I used to do but under my new reality, crawled on the floor to the bathroom, kitchen, yard, and tried everything, believe it, this allowed my body to use all my body muscles, eventually getting up and standing, then walking, on crutches at first, then a cane, used to go out to the convinient store, then farther each time, uneven fields, rocks, rain, whatever, slow but firm, a month after the hospital I got on a bus to go to work, and still do, no noticeable difference from anyone else, I know I am one of the lucky ones, but I didn't know that until I tried, go for it, start over, and keep going, have a nice life regardless ✌🏼👍🏼
Prayers Sent for all those who have it 🙁
my brother has been suffering from gbs since 11.05.2018 and tody in 23.06.2018 he has got very slow progressing and can just move very very little of his foot finger. though he has given immunogloblin inj on 17.05.2018 to 21.05.2018. he can take food by his mouth since 11.06.2018 but still in foley catheterization. pray for him
How about your brother now (19 jan 2019)?
Is he recovered completly
My dad has GBS, he was diagnosed with it since 2018 as well, he hasn't recovered completely now in 2021 he has being progressing but very slowly, the doctors said it had being one of worst case they had have, he died 3 times but the doctors made the possible to revive him, he survived the 3 times but he now is doing good, trying to recover to 100%
My dad is suffering from the same condition right now😔 aghhh I can’t even explain how painful it is to see my loved one on ventilator fighting for life
Bless them.
I'm had gbs in the fall of 2022 in the hospital and rehab for 9 weeks, like you first three weeks was in darkness. With determination and hard work was walking on week 14. I was told I'd never walk again, 😊
I was diagnosed with Gbs back in February, thank you for sharing!
How Are you doing now? Can you walk?
Im praying for you🙏 my mom was diagnosed in March 2021, she is still currently in the hospital recovering ❤️
Hope you’re doing better now
Can just one foot be affected by this ? I will get a checkup soon. Very sore bottom of foot and I haven't. injured it.
@@xuikin i m suffering from gbs im still cant walk 😢
My mom was diagnosed a month ago and has gotten IVIG treatment now she’s in a rehab facility. I’m hoping she will regain movement it’s been extremely hard on our family. 😞
Prayers and thoughts. Strong 💪 my twin sister 😅❤️😅 has this it's been along few months
My mother had this. She remained paralyzed from waist down for last 3 years of her life. She died of congestive heart failure
When you got the gbs one thing that should AVOID is pneumonia. My dad got gbs 38 days in the hospital and 22 in the ICU and sadly he still ended up dying. He died at aug 28 2021. He is enemy is not really the gbs but the pneumonia which made him weak and eventually killed him.
كم كان عمره عندما توفا وهل كان يعاني من أمراض والدك
I AM recovering, 2 years ago. Spent 5 months in the hospital, 20 days Icu.
You can with the help of God,. Just pray.❤️🙏
Hei Susana how Are you doing now.?
I have gbs Too since nov. 2019 still recovering
@@xuikin I can walk now with a stroller! Took time. How are you doing? What was the first thing you could do?
@@sueforte4947 thank you for your answer 🙏
@@sueforte4947 i also walk with a walker outside.
I feel safer at home, so i walk on my own
@@sueforte4947 it was fantastic to shower standing again
I got GBS about 8 months ago. Fortunately my doctor diagnosed it very quickly and got me on IVIG. I had a virus in my upper respiratory system about a week before I got GBS and within 3 days I was pretty much paralyzed from the neck down. My lungs were not affected and didn't need a ventilator. I started to walk in about 10 days much to the surprise of the doctors but they believed it was because of being an avid hiker and was in really good physical shape. It took at least 6 months to be able to raise my hands above my head but I am able to do it now. I am back to hiking again and averaging 50 miles a week. But the only thing that hasn't gone away is the neuropathy in my arms, hands and fingers. Doctors told me it may be permanent but I have learned to live with it.
To anyone that is watching this video and reading the comments and is healing from GBS, hang in there! You will heal but it will take time. I was fortunate that I didn't get it as bad as some people but even in the severe cases the body can mend itself. You just have to be patient and stay positive! 👍🏽
You were lucky…. My dad is suffering from it… and the IVIG isn’t working…. He’s unconscious on the ventilator… please pray for him😔…
@@Mimi.Momoss Sorry to hear about that. I hope that he recovers. Try to stay positive.
so your arms, hands and fingers are getting better or not? I am also recovering from gbs but my right hand and fingers doesnt seem to improve
@@954zia I have full movement and control of both arms, hands and fingers but I still have neuropathy (numbness) in them. I was told that the neuropathy would probably be permanent. Otherwise I am living a normal life like I did before gbs hit me. Sometimes it takes time to recover and physical therapy is very important. I hope you totally recover.
have you experience muscle twitching during your recovery?
My in law is suffering from gbs. It’s 20 days he is still in icu with pneumonia, high fever , and has bolted stomach.he is diabetic patients.we are so worried with all the complications he is having every week.
karina wood sorry to hear that, hope he is recovering well. I have gbs to atm and its a very traumatic experience
How is the one doing?
is there any connection between gbs and ms(multiple sclerosis)
9/12/15 diagnosis.. Still on crutches.. Balance issues.. Essential tremor in hands.. Note: not all disabilities are visible.
Hi just a question can GBS present with different symptoms
Other than pain and paralysis
Which vaccine did he get before the onset of GBS symptoms?
I had GBS in 98 aged 17. It went from my foot to hip in my left leg in under 12 hours. Lucky for me it only went that far. Still it took 6 months for it to completely vanish. I'm 40 now and do have some issues in that leg but still do everyday things.
have you experience muscle twitching during your recovery?
@@954zia yeah and alot of pain. 20 plus years later I still have some trouble in that leg.
What did your treatment consist of?
Pain relief and exercise
@@Juggyjuggy no IV immunoglobulin therapy?
My son got GBS and was admitted to hospital in Kenya .It took almost a week to single out the cause of his paralysis .ICU 45 days.He is almost ok .How can we get more information on GBS.He almost died in hospital.
Where are they located my 19 yrold son was just diagnosed
Mine hit in 02.still have to concentrate to walk.and time to time it comes back.
How does it just start?
I think my daughter might have a version of this.. A milder case but we can’t get a neurologist to even consider this .. All the hear is migranes and latch on to that .. we r getting no where .. .. My daughter has , facial and chest numbness, weak legs and hands , headaches, dry heaving , dizziness and some vision changes and other symptoms .. They come and go there one day gone the next but the same symptoms just on a rotation..
im a surviver 2 plus years
I am gbs paitiont from 2017.
Hi my mom has gbs she has not been attacked in the lungs , will she be anle to recover
Yes! She will recover and I know this is a scary time! her diaphragm might stop working and she may have to be put on a ventilator for the time being. They can do an immunoglobulin treatment to cleanse the blood and she will recover!! I hope this helps.
How’s is your mom doing?
@@Bella_0303 she has improved tremendously but her hands and feet has not gotten its original feeling she still feels like they are tights all the time but thank you for asking!
I was diagnosed with Guillain-barre syndrome in 2022
Did he get the Covid-19 Vaccine?
No.. Check the date of the video.. 😑
Recovering from GBS now I’m just 30 🥺
Is this similar to motor Neurone Disease. (MND)
Im interested in knowing this, as it seems very similar to mnd, im wondering how they differentiate between the two
Anyone reading this, PLEASE research the connection between GBS and the Flu Vaccine.
and the DTaP vaccine (Tetanus).
Yes. They just admitted the connection w GBS and the CUHVUD VAX. My grandma has been having GBS symptoms for months after taking vac. Drs refused to make connection to the vac. TODAY they admit the link. SO SAD
That's interesting. I had a friend who developed this after a flu shot.
Mum mum also had this syndrome
I just got diagnosed with it today, don’t know what to think or do, I’m scared I’m going to become paralysed.
@lovemachinemelb hey, how are you doing? ♥️
Joslyn hey thanks for asking! I’m doing fairly well but I’m incredibly slow & shaky at walking, I definitely can’t bend or squat, getting up from low seated positions impossible & have lost a lot of muscle strength, can’t open bottles of water etc, it’s certainly not fun but I’m working at it. X
@lovemachinemelb I’m wishing you the best, you’ve got this!! 💓
Joslyn thank you ❤️
How are doing today lovemachinemelb?
It appears you still have drop foot on your left side. You just learned how to compensate for it.
My dad just got diagnosed with this. Future?????
Don't worry bud it's not hereditary, there's no evidence nor study that it is hereditary.
Does pins and needles in different parts of the body means GBS
No.
My buddy's father died from Guillain-Barré Syndrome in 2009 after getting the H1N1 vaccine.
😭😭😭😭😭
Listed on vaccine inserts as side effect...
!
Just a FYI for everyone, notice he said he had just been on a flight, didn't feel well after, then felt worse after the flight home. Did you know that the engine air is recirculated through the cabin for all to breath? Did you know how toxic plane exhaust is? Did you know that sometimes they fumigate while passengers are on the plane? Look into it.
gbs rasagullas and gulabjamoos
Lol supposedly Gavin Newsom has this as an adverse reaction from the booster jab 😂😂😂😂😂😂😂😂
You know thia guy was warned over and over.. not to treat people the way he has. WICKED leader's are going to pay a price in this life if they don't repent they will spend eternity in hell.
They were warned! Now... Don't be surprised if these Wicked Governors who did Evil to people, wind up getting sick and dying ! May God open more of your eyes this whole thing was built on lies from the beginning.
God is going to punish each and every one of these Wicked unjust leader the unjustly locked people down destroying people small businesses allowing criminals to burn Loot and murder to further destroy people's businesses.
God is against their unjust forcing people to get this vax, even little kids.
God open your eyes that these Wicked people, are no different than the wicked of Germany. Who did similar things just using different arguments and using different division and control tactics.
This wicked Administration is using the same playbooks of the devil that all tyrannical regimes have used from the beginning of time.
They are anti-god anti truth anti Liberty anti morals and values anti-family which is why the cost of everything's going up what they seek to reward illegals the allowed criminals out of jail who did bad things.
Jesus Christ open your eyes!/
@@livefree316 government is the synagogue of satan. No matter which political party is in power