What’s In My Bag | Chronic Illness Edition | POTS, Sjogrens, CFS
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- เผยแพร่เมื่อ 30 ก.ย. 2024
- Hello everyone, I thought I would share some of the things I deal with day to day from my illnesses while also showing what’s in my bag. I have been sick for almost 3 years now, yet when people meet me, they can’t tell because I look fine on the outside. This can obviously make it even more difficult for friends and family to understand what you’re going through. If you have anyone close to you who is sick and hurting, please take a moment to drop in and see how they’re doing. Please ignore my awkwardness, brain fog, shortness of breath and repeated umms. Thanks for watching!
Instagram: @natalieleveque
Please help educate and spread awareness with the information below!
POTS:
www.dysautonomi...
Sjogrens:
www.sjogrens.o...
Chronic Fatigue Syndrome:
solvecfs.org/a...
PMLE:
www.dermnetnz....
Big props to you for shedding light on conditions that are unfamiliar to many, and for sharing your personal experiences with them.
Wishing you the best!
Ricky Garza Thank you! 😊
Hi! I have multiple different invisible illnesses-despite them being different than yours this was so helpful to me. I honestly never considered using anything for my dry mouth and itchy skin I usually just suffer through it lol. These were such simple solutions that I never even considered. THANK YOU
I’m sorry to hear that you’re in the same boat, but it made my day hearing I was able to help you 😊 I feel like we naturally get comfortable with being uncomfortable, but it really is the little things sometimes that can make life with chronic illness feel that much more bearable. ❤️
I have invisible illnesses to hope your having a good day 🥄 🥄🥄🥄🥄to you
Thank you! You too :)
i have cfs and as a college student this was helpful for me :) thanks!
Yay! Glad I could help, you’ve got this! 😊❤️
I have POTS, NCS, hypoglycaemia, chronic migraines, and chronic fatigue syndrome. I just had a fatigue crash cause I went to the doctors today and was there for two hours. Anyways I’m very new to POTS and have been watching a bunch of TH-cam videos about it and this really helped. Thanks🥰
I’m sorry for the late reply! You are a trooper!!! I’m so happy to have helped you with the video ☺️ I hope you can find things that work for you to reduce your symptoms 🥰 stay safe out there!
American woman?! That's rosie the rivetor (sp?)
Yes it is :)
hello natalie can you write them so that I find the similar stuff in my country
I have POTS too along with two other medical conditions. It's very exhausting. Both mentally and physically. However, I'm glad to know I'm not alone and I'm not the only person who has this condition. ❤🌹
Exhausting is definitely the best word to describe it! Stay strong 😊❤️
God Bless You.
Thank you
Thanks for shedding light on invisible illness.
I have food related (I think), GI problems, extreme fatigue, nausea/vomiting, and horrible migraines all the time. Every other day. Many doctor visits and no diagnosis. I am able to work full time but miss a lot. And while I’m at work struggle some days.
A lot of the symptoms you described I've had for many years but for me it mainly turned out to be a rare brain condition in which I've surgery for a few years ago. I don't experience the huge chronic fatigue anymore but it comes around at times. I'm sorry you have all these ailments. I know what it's like to have "invisible" illness and it kind of ruins your life at least it has ruined a lot for me.
Wow, I’m glad you were able to get to the root of your symptoms! ❤️ Yes at times I’ve felt it has definitely ruined my life. But in other ways, it’s made me appreciate things a lot more, especially the little things. I’d be lying if I said I wouldn’t want my illnesses to go away though 😂
Natalie LeVeque ❤️
I forgot to ask, how supportive is your husband with all your ailments and does he help you out around the house and things like that?
My husband is so supportive! Since the beginning, when I was sleeping for 20+ hours a day when it all started, he was there for me and knew something was wrong. He asks everyday how I’m feeling, makes sure I’m taking care of myself above anything (like resting & that I don’t go to bed without brushing my teeth & that I took my meds if I fall asleep early), etc. Today I made dinner and he washed the dishes. If he comes home from work to a messy home, he’ll ask how I’m feeling instead of getting angry with me. Of course this new life is frustrating for both of us in many ways, but we try to remember we’re fighting the illness together, not each other. But he’s so understanding and if anything this situation has made us so much closer. I got so lucky with him. ❤️
Natalie LeVeque ❤️
this video is so informative, thank you
I love the color of the water bottle
❤️❤️❤️❤️
Valeria Velazquez 😊❤️ love ya!
do you have swollen parotid gland?
So sorry for barely replying, life has been hectic! I don’t have a swollen parotid gland but there is a lymph node under my left jaw that is chronically swollen