Hospital Update!
ฝัง
- เผยแพร่เมื่อ 31 ม.ค. 2023
- Welcome to my first week inpatient at Kessler Rehabilitation. So far, it is absolutely amazing and a breath of fresh air in comparison to my previous experiences at Rehabilitation hospitals. Shockingly enough, as stated in this video, the approach was always to yell at me and tell me it was somehow my fault and that I needed to just "stop shaking". Such a therapeutic approach, right? 😆 Anyways, finally I am at a facility looking for wanswers and investigating ways in which to strengthen my legs and allow for ease of mobility. I have a bunch of future videos planned so make sure to stay tuned and look out for those. Any suggestions of potential topics are greatly appreciated! Lots of love
linktr.ee/AutumnSkylar
gofund.me/e398dc33
![[LIVE] : ONE ลุมพินี 72 | คู่เอก "ก้องศึก vs โจอาคิม"](http://i.ytimg.com/vi/hT1EOSsRPac/mqdefault.jpg)
"Health insurance". Must be bloody awful! Such a brave person.
Thank you for your kindness 🙏
@@autumnskylardoeseverything I watched your other half proposing to you (alongside everyone else on the channel). We men have our "intuitions" just like you women 🚺...although we're often trained from early boyhood to discount them. I suspect we also have other similar things (those days when we're extra forgetful and dog like in our lack of attention. You know what I mean).
I would say he's a very good fellow. Who will love you no matter what. My congratulations to you both.
I'm sure your not going to be fine. But in fact are already fine.
Lots of love.
@@archiesinclair6252 thank you for taking the time to watch the happiest moment of my life and responding
Looking great 👌 🙂 glad to hear of the update, time goes fast..recovery will be even faster 👍
I hope so too thanks so much!
Great to hear from you! You sound so positive! I'm sure everything will work out! As always sending Love & Prayers! 🙏❤ or the other way around!❤
I always appreciate the support and love Glyn, thank you! Sending a bunch of it back
Stay strong Autumn. I will be still keeping you in your thoughts and prayers and hopefully that everything has been going well for you.
I see that your YT channel has been going viral, so I just subscribed to your YT channel. Sending you prayers, love, and blessings!
Thank you so much for the love and support it means a whole heck of a lot
Love your positive and encouraging attitude my dear.
All my prayers and wishes for you.Perfect health is coming soon.
Isaiah chapter 35 verses 5 and 6.Perfect health soon.
Thank you very much 😊
Best of luck with all the rehab...I'm 3 weeks into a new hip and the cabin fever I'm getting from being home is crazy
So glad to see you up and about. Sending love from our family to you. xx
Thank you so much!
Glad I found your videos, love your upbeat attitude. Makes my day brighter.
Oh that means so much to me I am so happy you found some enjoyment
You have my love and constant support. I am putting people on to your music too! You got this girl!
Thank you so much!! Hope all is well
So glad to hear that you are feeling better. You bring so much positivity, keep going and stay strong. I am sure you are gonna triumph in this battle. Sending you all the love and wishes ❤️❤️
I hope so! Thank you for the love ❤️
Keep up the good work!!!
Thank you! I will 😊
wonderful to hear an update , do you have a PO box that people can send you things once you get back home or could that be something you look into i'm sure lots of people would love to bless you !
I think I may set one up, that's a great idea! Thank you so much 💖
I hope your having a great life you deserve it
Young lady, you have a great attitude. You remind me of my wife about how she handles doctors and facilities. She use to say if you don't manage your own health no one else will. She was diagnosed with type one diabetes at age 7. She was handled differently through grade school. Before I came along at age 14, her ex dumped her and girls treated her differently. I didn't even know what diabetes was. I was a jock. We married 8 years later at 22 and had our miracle daughter two years after. So to move on why am I telling you this ; your a strong young lady, I don't know your relationship with Tommy but the way he proposed to you, please take no offense, with your medical condition says a lot about him. My mom use to tell me if you marry that girl your going to have a difficult time with her medical conditions. We did but we handled it together, just having our daughter she had to be in the hospital 30 days before c section to take the baby at the right time rush her to a children’s hospital for intense care. Two weeks. Thus our miracle baby and told to have no more. We had a lot of up and downs before diabetes took her life in 2017. We had 54 years together going back to age 14. So you stay positive and keep strong and take control of your health care. Well, this is long enough good luck to you and Tommy and your parents they are going through it also.
🙏☮️
I hope we can have even a percentage of the happiness the two of you have
Super video👍
Thank you 👍
@@autumnskylardoeseverything You are welcome.
I follow Christina Doherty. I only hear updates on Facebook. She has not posted a video for two years. I think she as one of the worst cases of EDS a person could have.
Oh my I have not heard of this individual. I am so sorry she has had such a horrid experience with this disorder
Q & A please my dear. You are looking well today
Feel free to ask any questions you'd like answered!
You are a very nice and funny couple
Don't give up on yourself
I won't thank you for the loving support 😊
Gaslighting seems to happen a lot to us people with weird illnesses. I have EDS, CM, meralgia parestetica ( prob spelled wrong) and at least one cervical rib, just had blood tests apparently have a high platelet count which Ive always had for years but my current doctor is at least trying to look into whats going on with that. Glad you are getting some help from decent source now.
Ive had that same attitude being told not to be ridiculous and treated like Im crazy and was the same with my daughter and I was supporting her too, if she was a year or so younger Id have been accused of muchausens by proxy, it was definitely going that way so I got the being dismissed and treated like Im crazy for myself and for my daughter too. It would be nice if life was a bit simpler, easier healthwise at least! Good luck, hope you manage to get the chair you need, a decent wheelchair is a big thing!
Yes it is absolutely insane, doctors do not care unless you are an easy case and that's the hardest part of getting treatment, not giving up when they tell you to. I wish you both luck in your journey through Healthcare, and thank you
@@autumnskylardoeseverything Yeah exactly but |I do think the healthcare system is broken all over, am in Scotland, we still have the NHS but its so broken and thats just for people with common illnesses that are treatable but those of us with more complex health problem have barely anything. The only way we get specialists for these "rare" illnesses is when doctors decide that's the field they want to work in.
When I first found out about EDS and was first diagnosed there was a clinic here that seen 3 people a month lol which was pretty dire but we dont really hae that anymore because the professor who started it and ran it has retired now about 8 years ago and there wasnt anyone to replace him, there are some of the doctors who trained under him who are still sort of keeping it going but its not a clinic now, its just a rheumatology appointment and hope for the best. There is only one actual EDS physo specialist in Glasgow that muy daughter used to see but had stopped for a few months and they changed everything so you cant even see her now. But yeah you have to basically fight and keep fighting otherwise you will get absolutely nowhere, its not easy to have to fight so much just to get luck and get some help although when you do it can make the world of difference.
I really think I need another Occupationaly Therapy Assessment.
Good luck again, all the best! Hope you can get back to your singing again, it really sucks when you cant do a lot of the things you want to do too but am sure yuo will be back at it soon enough! All the best.
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
As a new subscriber I’m lost, were you in a accident? Or is it something you were born with? Yeah I know what you mean about doctors thinking that they know everything, my neurological team thinks that they do lol I’ve had my condition since I was six and I’m 39 now you have a great attitude btw
Thank you so much! And yes, I was born with my conditions. The severity was not known to us until I had an emergency brain surgery at 16 and then everything since has been a learning experience, wherein I learn I have all these conditions and have had them. Thanks for inquiring!
2/3/23
You are so beautiful.
Oh that's very kind of you to say!
No bra recommended in such medical condition?
Even if I had been okay to wear one after surgery, does a bra really matter?
@@autumnskylardoeseverything With due respect. Yes it does, specially when u post your personal experience for the viewing of the whole world.
@@autumnskylardoeseverything Keeping that aside, wishing u strength and courage to face such testing times and praying u get all the happiness u deserve. Plz stay strong . U r doing great😊
What you have exactly?
I am going to be posting a video going in depth with my diagnoses and what they mean but here's just the main ones: Hypermobile Ehlers Danlos, Cranialcervical Instability, Chiari Malformation, etc...
@@autumnskylardoeseverything SOLOMON'S SEAL HERB ROOT IS GOING TO CHANGE YOUR LIFE FOREVER
@@autumnskylardoeseverything it basically tighten the loose ligaments at the basis of your cervical instability(you made surgery already i see,but it helps with other adjacent levels,so you avoid other surgeries).
@Rarara Tatata while you may think a comment like this helps, I have issues that required invasive neurospine surgery. A root will not be something that will heal me.
@@autumnskylardoeseverything lol super rude answer. You probably lack the cognitive ability to read the english language.
lookin' like a snack
Haha thanks!